Severely Brain Injured by a Prescribed Medication
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- čas přidán 19. 06. 2024
- Elizabeth was a typically developing child until she started convulsing one night and went into a weeks long coma. Her parents believe this was caused by a medication that was prescribed to her for asthma. This resulted in a severe brain injury which left only a sliver of her cerebral cortex unaffected. Elizabeth's family wants others to know that even if their situation is unique, they are still a loving and caring family.
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There is absolutely NO reason for these parents to shoulder this kind of guilt. It's not their fault at all. I wish they could've sued the medical provider who put that child on an adult dose of Theophylline. An entire family's life destroyed and nobody is held accountable.
There's probably no proof, and meds are clearly labeled for interactions, possible side effects, etc. Read them folks. You Americans are always so ready to sue everyone in sight, rather than taking a second to remember that doctors hard working are humans.
Thats not how things work, doctors try their best to save their patients, we cannot live in a world were we sue doctors or we would not have any doctors.
@@HLl564oh come TF on. Doctors were prescribing alcohol and cigarettes to pregnant mothers at that time too 🤡 totally not the doctor’s fault huh 🤡
In profoundly hard of hearing today wearing two hearing aids to be able to be part of the social world.
Why was I born this way ? NO
When I was three I developed an ear infection which turned into an abcess. My family doctor was on holiday and his practice was being covered by a document prescribed penicillin which my notes clearly stated was not to be prescribed for me but worse than that he prescribed an adult dose.
The moment our doctor who was a family member returned he checked my notes and came knocking on our door at 11pm to check me out.
I spent the next three weeks in hospital after being taken there directly by him.
By time I was 6 I had hearing loss and attended out patients from then to now. I had damaged eardrum due to the strength of the eardrop
( also adult dose) that actually burned it. As I grew older I had several operations including plastirectomy I have worn hearing aids for over 25years now
All because of a doctor's mistake.
😢
“She didn’t smile for about …20 years”
“She cried for the first year or 2”
Bruh, this is heartbreaking.
Putting a loved one in a nursing home isn't a topic that is often discussed on this channel. It's good to see it. This was a fascinating interview.
I agree! I'm happy that we get to see this perspective.
These parents have succeeded as amazing parents. For Elizabeth and the other children.
Please pass onto them @SBSK. Absolutely brilliant parents. Noone could have done any better
@@mason74551No you're not.
God bless this family. ❤🙏
It’s a painful and difficult decision when it’s a parent, and I can’t imagine how difficult and heartbreaking it must be, when it’s your child.
People who say they would never put their loved one in a facility has not walked a mile in your shoes.
It's a damn sight better than being overwhelmed
It's really a disgrace that her parents were just sent home with no social services assigned to help them. In a way, it's harder to deal with than the death of a child.
The support for families of children with special needs here in South Africa is non existent.😢
That was decades ago in the US. Medical knowledge has improved, is my impression. Although, today, one political party in the US still laughs it off. So, my hopes are diminished.
@@chuckthebrindlepittie6820in many ways it's not better. Many horrible things happen today as well. The things we are ignorantly doing today? Well, we're IGNORANT of them so we don't know they're wrong yet.
Totally agree. The things we are spending money on instead of on Elizabeth is to all of our shame. Lots of people screaming at each other about meaningless things when the answer is right in front of us
I was sent home with my son after his birth in 1987. He has a rare genetic disorder. I was given no instructions, nor guidance. The only thing I was told was that he wouldn’t live long…. He’s in his 30s now. 🤷
"I'm just weak." Funny because I don't think I've seen many stronger people than this. Amazing family.
Agree her mom may have been broken a few times but it speaks volumes that she’s gotten back into life each time. A truly amazing family❤
That made me so sad because you can tell that she isn't weak.
I couldn’t agree more. It sounds like their daughter is getting exceptional care. All children deserve care, and the other kids needed mom, too. I 100 percent believe they did the right thing in this case. Special people need special care, and sometimes professional care is the best. I wish that every person in her situation had a family like this behind them. Elizabeth is a lucky young woman, despite her disability. She is so loved and it shows. Her connection with her sister is so very special.
The weak thing would have been to refuse to admit that she needed additional resources. She did the strong thing. ❤
@@nerysghemor5781 That is 100% spot on. She is exceptionally strong, even if she doesn't see it herself. They all are and you can really tell how much of a loving family they really are.
I felt emotional when her mother talked about how she felt guilty about leaving her at a care facility. Her parents are so sweet.
Exactly!
sometimes its best to do. when my friend's daughter was born she was born with severe retardation and her parents had no choice. it sounds mean but when you are in the care of trained professionals you are more at ease with your loved one
@@user-mq5dr1jh5t taking care of a disabled person is incredibly hard. People who shame those who let professionals take care of them have no idea what it's like
@@user-mq5dr1jh5t my stepdad gave custody of his severely autistic son to the state, which was not uncommon at the time. He visited his son often, and took him places, but caring for an adult child with such severe needs was very difficult. Some people may feel it's unkind or unloving, but that's far from the truth. I have nothing but compassion for Elizabeth's parents.
Sometimes people need more care than can be given by a non professional.
There is nothing to be guilty about. Her quality of life improved because y'all provided her with round-the-clock care at a good facility.
Came in to say the same thing. I work in healthcare and so often I see caregivers approaching or fully in burnout, where their own health is taking a back seat, and I’ve seen caregivers pass away before the care recipient because of it. Elizabeth’s dad hit the nail exactly on the head. They are 2 people providing 24 hour full care, likely total assist for many needs. In a nursing facility there are 3+ shifts with a full staff. I wish more people would acknowledge the benefit and quality of life that can be achieved for the family and the care recipient by embracing institutionalization. They can focus on being her PARENTS instead of having to focus on being CAREGIVERS.
@@rtracy1216true but there's also the fact that a lot of people get slapped around, sexually/financially abused, and also stolen from when they're in those facilities!🤮
That’s why it’s so important for families to do thorough research into each facility beforehand- it sounds like these parents have done that, and found great places for their child to thrive and have the best care possible. The ultimate act of love, in my opinion.
@@guardianangel9517 there’s also the fact that family members and loved ones are more guilty of that behavior than professional facilities. Why even bring this point to the conversation?
@@guardianangel9517 Then solve that problem, don't blame caregivers for needing help.
“She didn’t smile for 20 years.” Bless these Parents!
I can't imagine how hard that would have been. Smiling, hugs etc are the rewards you get in return for the relentlessness of child raising
@@sarahp8937Whatever they did to keep working with her and make her feel like smiling, even after going through such tough times together…I am so glad that they got to that place. ❤
She looks very happy and content. But why so many moves to so many different facilities? 🤔
@@missmew5240 I'm guessing that a facility was bought out by a new corporation or whatever and insurance changed. Or she could've been in a facility that only cared for children up to 12 years old. Then one that was up to another age. Sometimes a new corporation is in charge and staff changes and it's not an improvement, shall we say. There are several reasons like this that might've caused them to want to move her.Sometimes you find a fabulous facility but there's a long waiting list. So you place your loved one in the next best and fabulous facility until you are accepted.
@@missmew5240Things can change with time. Sometimes it’s because a facility closes its doors. Sometimes beloved staff leaves and is replaced with people who are not as competent. Sometimes care needs change, and you need to find somewhere else more qualified. Given how active her parents are in her life, I’m sure they have kept a very close eye on her and the care she receives. I think it’s wonderful how the mother is always committed to ensuring her daughter has the best care possible at all times, and will move wherever is necessary in order to do so.
The way Elizabeth looks at and reacts to her sister, I think that connection is 100% real
I felt that too
Oh my goodness, the Love and support I am feeling from everyone just floods my heart! Thank you for not judging me and giving your support and listening to Elizabeth's story. Her sister, Mary Kathryn, is responsible for making this happen. She contacted Chris and wrote a beautiful essay, asking Chris to give Elizabeth a chance to tell her story. And Chris, you did a wonderful job. You made us feel so comfortable and your questions were so poignant and you are doing such amazing work. I applaud your efforts to bring light and love to the disabled!
Well done Mary to yourself, your ex husband and children for telling Elisabeth’s story. Being vulnerable is a brave choice and only you and your family know the challenges that life has presented you with. Sometimes there is no reason or rhyme to life and we cope and survive in only the ways we know how to. I would like to say …I hope you have had a chance to unpack and unravel the experiences with a trusted person, either professional or friend wise, that allows you some solace and peace of mind. Allow the kindness you extended to your daughter and family members to be gifted back. Some times the weight of certain outcomes challenges even the most strongest and wisest… it’s a reflection of the seriousness of the task, not the judgement call on someone’s character . The discussion around stigma is most important, as often silence allows it to remain , as is. Wising you and your family moments of joy.
You are a good woman Mary. Don’t ever forget that! Much love from Australia x
Mary you're so honest and sweet and you've been through so much. Its not you're fault ,none of you deserved this. I'm sending you so much love. My names Mary too ❤
You are a wonderful mom and you’ve done the very best for all of your children. This was absolutely not your fault. I can’t even imagine the pain you’ve gone through. Yet you’re still showing up for your daughter in every way. That is strength. ❤
Thank you for sharing your and Elizabeth's story. You are incredibly strong and did the absolute best you could raising all of your children. I am sorry you have had to bear so much guilt and grief. I see nothing but love, devotion and an incredibly resilient and loving mother.
Momma looks so good to have a 39 year old child. Goodness she's stunning and so sweet.
my jaw dropped, when she said 39. I thought she was going to say 12 🫢
@@Notaravisen Not a lot of sun exposure bitterness ,,habits like smoking ,and responsibilities of daily living etched in her face !
The girl is 39????
Yes, the daughter is 39.@@RyuuChan3821
@@NotaravisenThought the same thing. She's older than me.
It’s sad that the parents feel guilt about having her in the care institution due to stigma even though they visit every weekend and they didn’t want their other children to feel neglected
It's not a mental institution itvis a medical care facility. Big difference. 😊
@@shawndewitt3587!!!
It's not due to stigma. They feel bad about it. Being in an institution isn't the same as being at home.
I am a full time caregiver for folks with a wide range of developmental, physical, and/or mental disabilities. This video hit my heart in a special place. I’ve followed SBSK for several years now…but this one really hit home to what many of my clients and their families go through. Shout out to Elizabeth, her sister, and parents for being such an incredibly supportive family unit regardless of divorce/life changes/distance/etc.
I am glad Elizabeth was included in the interview. I feel like she was picking up on a lot of it, and she really appreciated this handsome guy, with good energy coming and talking to her (not just about her).
J ai beaucoup d empathie pour ces parents ❤étant moi même maman d un grand garçon de 43 ans polyhandicapé (cécité, autisme, psychotique ,incontinent) la vie est bousillée à jamais, et la médecine, en termes d avancée, est nulle !Ces choses ne devraient jamais exister, la vie est injuste 😢🇧🇪
Elizabeth's sister seems like such a genuine, thoughtful and resilient person. Elizabeth is lucky to have her, and she clearly is lucky to have Elizabeth.
Watching her talk about her bond with Elizabeth was so profoundly beautiful ❤
Her sister is pretty.
It looked clear to me that Elizabeth's sister is one of her favorite people! She had the BIGGEST smile for her! It looks like she loves her family being around her.
For those who are wondering, the medication that lead to Elizabeth's seizures (theophylline) is rarely used these days. It's still an important medication for those who need it, but thankfully we have many other options to treat asthma these days that are safer.
Oh wow! You’d think the FDA would ban such a medication because of this horrible side effect. But, I’m it isn’t used unless it’s necessary.
That’s good to know.
The fdas history is One of the bloodiest ones you can look into
I hope it was rarely used in those days too! You have to have really severe asthma to need theophylline, and never at 18m in the U.K. you need to monitor levels etc.
@@CattyT1
Interesting 🤔
Man, you can really see the tole it has taken these parents raising a disabled child/adult. Absolutely gut wrenching.
*toll
She's really smart too. She's normal mentally but lost her ability to control her body. Poor woman
@@leahtv7778 no, she's not 'normal' mentally, and she's not just paralysed. she's intellectually disabled. she never went to school. If you're talking about her intelligence, at no point did they say her IQ was 'normal'...
@@leahtv7778 This isn't true, I'm unsure where you got that from. Her entire brain was destroyed and she only has a small part of her cerebral cortex left functioning - that is not normal mentally. She likely has the mental capabilities of a small child.
@@leahtv7778they literally said she barely has any cerebral cortex function left.
I am schizophrenic. This is often an extremely severe mental illness. I am an individual that probably can't live independently. I understand why my family has put me in a nursing home. I still love them. Amen.
Amen ❤
They still love you too.
Bless you. xx
Nursing homes can be better than being at home for many people. Some people are happier in nursing homes.
A schizophrenic who supports Hamas… no surprise there. Yall are the reason we need loony bins.
People who say “I would never put my loved one in a nursing home “ don’t know what they are talking about. Unless you are in that situation you can’t say anything about it.
Well said! I’ve never been in this situation but it’s VERY easy for me to see how it’d be massively overwhelming-there’s no way I could personally handle it. What I can’t believe is how many other people are incapable of empathy and are so holier-than-thou. The majority of people really are trash and it’s ironic because they’re usually the ones acting morally superior.
Well I do cast a little bit of judgment but hear me out:
Especially with non verbal folks, these care facilities are abusive. There was a case near me recently where a non verbal woman was you know what and got pregnant at a care facility.
Hopefully they visit frequently and have found an extremely rare nice facility (though I’m convinced that those don’t exist sadly).
I've worked in a couple of nursing homes and you have to be so selective of the home you choose. I never witnessed any violence or aggression toward the residents but I did notice some negligent behavior. Elderly people usually don't have much of a drive to eat or drink, so an aide would ask once and if refused wouldn't offer water until hours later. They under-offered water to lower the amount of diaper changes. Keep in mind many of these places are understaffed and underpaid.
@@princesspikachu3915I’m sure they were picky and/or knew someone.
@@princesspikachu3915I guess they found TWO "rare" facilities then.
You didn´t institutionalize her and leave. Whoever thinks that severly lacks intelligence. What you did and continue to do is acquire the care she needs, and you never left her. Your incredible strong love and committment to Elizabeth is phenomenal.
Yes, sometimes you need to ensure the person you love has around the clock access to professional caregivers.
As a disabled person, me and my family have found it extremely difficult and EXPENSIVE to find good help. And my needs aren't nearly as complex as Elizabeth's. I'm sure she's receiving the help she needs, and her family continues to show her the love and care that any human being deserves. ❤
They live over 2 hours away and only see her occasionally. They left her.
The mother’s mother telling her it was her fault is wrong. I’d call it evil. What a horrible thing to say to your child.
Ikr I was in disbelief. I had to rewindjust to process.
I'm a devout Christian, and a severely physically disabled person for most of my life.
Not only is God not punishing her, God is absolutely not punishing Elizabeth! This is Elizabeth's life, and she didn't incur God's wrath as an 18 month old baby. Her mother learned some bad theology somewhere.
This was not your fault, mama. You may know it at some level, but you're punishing yourself for Elizabeth's sake. You don't need to hold onto the shame and guilt anymore. You've done so well for your daughter.
The Bible says to run the race, fight the good fight, and keep your faith. You have done well serving God in this life ❤
What more honorable, dignified way to live out a life than to graciously serve your disabled daughter and give her a safe life, cared for, ensured she's loved. God bless you and your incredible family ❤
U can't hear I take it ..at @726 she says "it's NOT your fault" turn on closed caption ...and no point does the mom say anything u heard .
After u listen kindly F off!!!
@@bodyofhopeu need to become a devout reader. She NEVER said any of that 7:16 and on...
U just made every devout Christian look awphul
She told her ‘it’s NOT your fault” 7:23
Momma you are not weak. You are so so so strong and you did your best for Elizabeth to the best of your abilities
"There's no getting over it. There is adapting to it." Wise words.
This man alone makes me believe in humanity alone I love you
Dear Elizabeth's Mother. I am not religious in the same way you are... And yet, when I look at my kids (all 4 are special needs to various degree), I like to tell myself that I am their mother beause I am just an awesome parent who is cabable of loving unconditionally, because with me they have the most fulfilling life possible. What I am trying to say is that, perhaps, you had Elizabeth because the Universe (or whatever diety you believe in) thought that she deserved the best mom ever and that best mom was you. It may not be my place to say, but you. are. a good. mother. Don't allow anyone to persuade you otherwise. It. is. not. your. fault.
I don't believe she thinks it's her fault because it is the doctors fault. I believe it was the grief if losing the daughter she once has and should have had that brought her to her knees and to the psychiatric hospital twice. The guilt was from allowing that doctor to perscribe her that and giving it to her and now knowing better. But she couldn't have known better. She trusted the doctor, like most people used to. These days, doctors are not as trusted and it's why we go for 2nd, 3rd, 4rth opinions.
@@TheKatarinaGiselle I think she means Elizabeth's mother shouldn't believe what her own mother told her, that God is punishing her for something bad that she did. She said her mother told her when bad things happen to you, it's God punishing you. Smfh...
It was abusive of her mother to say that god punished her. So so abusive and traumatic. She is dealing with some generational trauma alongside the grief she has for what her daughter could have had. So complex but I think your message is beautiful.. she was chosen to be the best mom. I love that outlook so much.
I used to be a carer for a wonderful, beautiful woman in her late 40s who has a very similar story to Elizabeth. She was born healthy, then when she was 18 months old she had a massive seizure which caused a severe brain injury. She is now non verbal, tube fed and unable to walk without 2 people helping her balance. All that out of the way, she is now 52 and incredibly happy and healthy despite her challenges. She always has a smile and brings joy to everyone around her, and she can communicate more with one look than most people can with a whole book!
Thank you for your comment. Do you know what caused the seizure? I ask because I have a 13-month old.
@@AS-qg1xu I actually don't, I don't think her sister even knows, and she told me her whole story as far as she knows.
The way Elizabeth smiles as people talk to her is something that we can all learn from.
The guy that is on these video is the nicest kindess person ive ever heard in my life.
He is a very impressive person!
he is an empath probably a hyoka very rare
@@burgundyjayde whatever he is it needs bottled
@@Martynfletcher87 He offered his daughter his shoulder and calm presence, and she drifted off to dreamland.
“Life doesn’t end but it sure changes”. Such an incredibly strong family with a great philosophy of life.
I really feel for that mother for ending up in a psychiatric hospital twice over this stress. I'm very sorry for her, but at least she had resources to control her anxiety. That's something to always be thankful for.
I hope she is not on psych meds
@@JFlower7 Why?
@@JFlower7I hope she has whatever meds she needs.
@@JFlower7 I agree, they gave me epilepsy! Thankfully no more severe brain damage though, like poor Elizabeth.
The feeling of fault is horrible
The sister explaining the strong bond between them was so beautiful. I think she would be there for Elizabeth no matter what.
My son Brandon had a vehicle accident in 2013, he was 16 and had a brain injury. He couldn’t communicate at all really. He lived 3 years, most of the time in a pediatric nursing facility 2 1/2 hours from home. My brother bought a beautiful 5th wheel and put it at a park 1 mile from the facility. That enabled us to have a family member with him almost all of the time. We had a camera in his room connected to an app on my phone so I could see him anywhere I was at any time. We bought a van so we could take him to town, the lake, etc. I know the helpless feeling and the stigma of having your child in a facility. As they get bigger, it’s impossible to lift and move them to bath them, give them the. Are they deserve and work to survive, the list goes on!! We did bring him home before he passed and I am so thankful for that time. They have done AMAZING with Elizabeth for 37 years!!!!!! They can now put cameras in their rooms and they would feel so much more connected to her!! God bless this family! They will be with her restored one sweet day…
I have a 24yr old brain damaged daughter. When the mom said she worries about when she dies one day that just got me, that's my biggest fear!! 😢
I have a 30 yr old son in the same situation and I feel that way.
❤❤❤
People don’t understand how much effort it is to take care of a medically complex person. I’m not even as severely disabled as this girl but I know my family struggles to care for me and me myself. I completely understand why a family might need a higher level of care like a nursing home.
There really is a lot of unfair judgement about it. Just lifting someone, frequently, takes a lot of physical endurance that many people don't have. Add in age causing joint and back issues and it reaches a point that parents just can't do it themselves anymore. Institutional care can be excellent or it can be terrible depending on how a particular place is operated, but it's not always an act of neglect. My own grandmother, 99, is looked after my father who is himself in his 70s. He and his sister are still hemming and hawing over it, but her mobility and cognitive decline worsen steadily and I keep telling him he needs to research a placement now and not wait til it's too late to be choosy anymore. It's better than letting her needs go neglected because his bad back is getting in the way.
To Elizabeths mom, you are NOT WEAK. You are a mom that has all of her energy stolen. Your daughter is happy and has assistance 24/7. Sending you love and hugs.
My daughter was on cissapride as an infant for GERD In the early 90s. Gerd wasn't well studied then like now. I questioned the dosage with the major at walter reed, he insisted it was correct. I discovered she was given 10x the adult dosage, she was 3. I never gave her the dose prescribed, it seemed wrong. She told me her heart kept stopping. Her doctor was horrified and sent us to the ER for an EKG. The major got into trouble (military) and the medication was removed from shelves. My daughter is 31 now. We were lucky that she's ok. Prayers for this family.
A "major" prescribing? Why did you see a military man for medical care when doctors were available? I feel like this story is missing context
@fritzfxx Walter Reed is a military hospital. You can have Dr's who are Majors, Sergeant Majors, etc
@@fritzfxx see above
I would absolutely put a child I loved who needed intensive care in the hands of people who could give it to her better than I. My exhaustion and lack of ability to work and sustain myself socially would not benefit any child. Much love to this whole family. I wish I had this close of a relationship with one of my sisters. ❤
It’s never too late❤
I hope this beautiful, loving mom is getting consistent, frequent, quality mental health care for herself. She clearly has so much deep pain, trauma from seeing her child suffer a traumatic brain injury, intense and layered guilt, religious trauma from her childhood, relationship issues with her own mother, and whatever else she struggles with that we know nothing about. This sweet woman deserves to have some of this heavy, heavy weight that she's been carrying around for the last 40 years lifted, and the only way to do that is to get consistent, ongoing professional help. It's an act of self love and she deserves it.
bless this mom for opening up about her own psychiatric struggles, it’s not often talked about on the SBSK channel how much of a toll caretaking may take on someone!! this family is incredible
Shame on the Grandma telling her daughter that God is punishing her no wonder poor lady ended up
In a physiatrist ward two times. Sounds like she didn’t have the support she needed most! Like the love and support she gives her own daughter❤ I’m Christian and my belief is God is a loving God not a vengeful God!!! Please forgive yourself! You did nothing wrong! P heal Jesus loves you for being a wonderful kind and caring woman!!
some people have that belief because then they can tell themselves that because they are "good" then nothing bad can happen to them like those "bad" people. But it's contradictory to the gospel entirely, Jesus directly refuted such a statement about a blind person before healing him in the bible. People like that haven't even read the scriptures they claim belief in.
I agree ❤.
Brave, honest people. I feel strong respect.
I agree with what most everyone else here has already said; there's nothing to feel guilty about. Life threw an unimaginable challenge to your family, and you gave Elizabeth the best care possible. There is no shame in that. Everyone here in the SBSK comments wish Elizabeth and her family all the best in life!
Her sister gives off an awesome energy, I smiled as soon as I saw her.
Elizabeth's sister speaks very profoundly. I wish this family a life of peace. Tragic, beautiful video.
Her mother describing a knife going through her heart each time she sees her child in her injured state, is absolutely heart wrenching. These parents have had such a heavy cross to bear.
I wouldn’t even try to understand what they’ve gone through. These parents are angels.
These loving parents have never gotten over what happened to elizabeth😢…I think they made the best decision for them and Elizabeth….no one can judge other peoples decisions….i want mom to know this wasn’t ever her fault and I’m sorry her mom told her that…this family could benefit from some therapy…they need some healing….love to this family ❤️
My daughter died at birth, so a completely different situation, and yet so much of what mum and especially Dad said resonated with how myself and my partner feel. Sending Elizabeth and her family so much love and support xxxxxx
I'm so sorry. That's awful.
You had no previous warning, such as an ultrasound, during pregnancy, about the potential risks to your offspring, or the bleak odds/likelihood of having an unhealthy, disabled baby. So, never doubt yourself. I am very sorry.
So, So sorry! I know ,I don’t know you , but it’s got to be the most heartbreaking scenario ever. I hope you have a gentle journey on getting through the grieving process❤
Im sorry for your loss. I just had a baby and I can’t even imagine it but as I read your message and listen to this video, I slightly have an idea of the kind of pain you guys are feeling and my heart aches. I cried for you both. Just know there is someone out there in this crazy world thinking of you. Sending you all hugs! ❤️
So sorry
The medical industry needs to be held accountable for the consequences of their actions, like what happened to Elizabeth.
Yes, Elizabeth's dad is correct - two people cannot handle the level of care the she needs. I know this just from a taste of it when my dad was ill. Even with my mom and all four of us siblings doing our best there were simply things we couldn't do, situations we were not equipped to handle whether professionally or physically. I'm so sorry her parents feel guilty - to me they are an inspiring example of a devoted and loving family. It's a privilege to learn about their experience. I'm grateful to them for being willing to share - and thank you Chris for providing this considerate platform!
Heartbreaking how guilty Elizabeth’s parents feel. Not their fault in the slightest! Not to mention how the hospital left them without answers or support. It’s clear they made the best choice for Elizabeth, and love her very much.
Oh my heart broke a little when Mom said she is just weak. I don't see you as weak, you went threw so much hardship, pain and grief and managed to keep your daughters and yourself alive! You raised two wonderful women. If that is not strength, I don't know what is. And even if you wish you were even stronger - you are human and not made to be perfect.
As her personal friend I can tell you she's anything but weak! I tell her all the time she's one of the strongest, most compassionate, intelligent, beautiful and amazing people I know! And she's always concerned more about you than she is about herself. Her son is a very successful physician and her daughter is very successful also! Plus you can see what a compassionate heart her daughter Mary Katherine has. She did an incredible job under the most trying, difficult circumstances anyone can imagine... with grief that continues... and how can it not?
Elizabeth’s smile for her sister is next level awareness and love.
Mumma, you are NOT weak, you’re realistic of her care needs and how to give her the best care.
I give these parents so much respect because they never abandoned their daughter. TBI is probably the most horrific.
Definitely, and mental illness too.
I work at an intensive care nursing home for medically complex, fragile kids/young adults, and have seen many parents over the years. They run the gamut of involvement, but NONE of them can be judged by anyone not in their shoes. I'd give a lot to be able to ease this mom's pain.
I worked two summers in an ICF level facility. There was a teen girl that had development meningitis at 7-8 and was severely disabled as a result. Her dad was a widow and he came every couple of days to sit and talk with her. There was a tape of the girl reading before she became ill.
I watch so many gruesome stuff on the news that desensitizes people...then I come on youtube and I see this...And start to cry...
These parents have absolutely nothing to feel guilty about!
My brother used to manage a group home for developmentally disabled adults. I would visit often. The patients and staff were all like one big happy family. The staff had such affection for the patients, and the patients got such great care, better than they would've gotten at home with one or two exhausted, stressed parents.
What a great family. I love the connection the sisters have -- soul mates. 💜
The sister saying she talks to her sister on walks when they are hours away from each other is how I was with my best friend who passed away almost a year ago. Absolutely broke my heart but made me feel so unbelievably happy for them and their beautiful bond
I love how open they are that it was and is tragic for them. A lot of people always say they wouldn’t want it any other way, but of course you want your child to be healthy and I don’t think there is anything wrong with saying that if you could change what happened back then, you would.
Even though she has a brain injury I believe she's somewhat happy and smiles and has a loving family it's taken a tole on them my heart goes out
A neurosurgeon who recovered from a brain injury once told of feeling blissful because the logical side of her brain was not working properly so it may not always be as bad as it seems from the patient's perspective .
I hate that her mom feels so guilty. I don't think she's done anything wrong. It's easy to judge from the outside, but unless you're in the situation you can't say what's best for someone else's family!
I rarely comment, almost never. But i just want to say- dear parents, you’re a one strong team. I’m truly moved and inspired by your unconditional love and strength.
These parents deserve happiness. Its obvious they love Elizabeth. It shows. Based on this interview they've been fantastic and made the right decisions no matter how tough they were
It is impossible to imagine what this beautiful family has gone through during the last 37 years. What a candid, heartbreaking conversation. Elizabeth is a remarkable woman. Wow, what else can I say?
I hope her parents read these comments and get to see how lovely they really are. They deserve to know how incredible they are for holding that space for their daughter as well as their other two children.
@Elizabeth’s mother. You are not weak. Please don’t say that. You are super strong and amazing. You haven’t let your daughter down in the slightest.
These parents are such sweet and caring people. The mother is carrying the weight of the world on her shoulders, i hope she can find peace❤
you really know how to pull the people from your interviews out of anonymity. and you do so in the kindest and most respectful way.
To the mom, you are in no way weak. You and your family have had a lot to deal with, some people would have totally given up. Even would have given up the child if something like this happened. I really hope this nice family doesn't beat themselves up too much. They seem very loving, caring, and strong to me 😊🫶
It absolutely broke my heart when the mother said her own mother believed God was punishing her. That is atrocious. That is unfathomable. God did not punish this loving, devoted mother. God works in the hands of the care staff. I’m shocked. I can’t help but cry. I wish I could give her a big hug and tell her that her mom was wrong.
Elizabeth really lit up with her sister....
I wish I could hug you sweet momma....
This must have been so tough for the parents and the siblings as well...
She smiled after 20 years omg!
Thanks for sharing their story!
Im sure that smile was a beautiful ever lasting gift for the family
@@xx-el9gl yessss
I will keep saying this..Parents of Special Needs Children are the Hero's of our world ..God Bless.
Ive lost 2 children and you never get over them being gone. I will never be the same.
You have my sincere sympathy for the loss of your children.
Her parents and sister are so amazing with her. I know how they feel. I had a daughter with a disability as an infant (spinal muscular atrophy). She was born in 1985. The hospital sent her home and taught me how to do NG tube feedings and that was about it. No further suggestions or anything from hospital staff. She lived for 7 months. To this day, I feel guilt and I miss her immensely. I did all I could do to keep her comfortable, loved and happy.
I am so sorry for what you have gone through. You deserved much more support from the medical community than you received.
@@jeanetteh.9240 Thank you for the kind words. It was a very rough and emotional time in my life.
I'm so sorry for your loss 🙏🏽😢 I hope she's resting in peace 🙏🏽
Currently living this nightmare. My now 11yr old son got his brain injury at 14 months old due to seizures he had from an underlying infection. I had a 6yr old son at the time and went on to have a daughter now 7. I have never related so much to another parent/family. The worst hell imaginable and somehow I've avoided being hospitalized... Medication has saved my life!
🙏💕🙏💕🙏❤️🩹❤️🩹❤️🩹❤️🩹❤️🩹
The emotional pain these parents have gone through is truly palpable. Yet, they are so loving and so concerned with all three of their children, it is really so touching. I'm so sorry this medical accident happened but it was not "karma" as the mom's mom sort of implied. It was bad luck. Yet, through the hard work of these parents, the family feels united, despite the medical needs and attention Elizabeth requires. Elizabeth does have the sweetest smile and seems to reserve her remaining cognition to connect with her family. Her sister is very compassionate, in all of her discussion of this situation. I wish the best for them.
My heart goes out to Elizabeth and her family. When her mother said that her mother told her it was her fault it brought me to tears. It was never your fault. There was nothing you could or should have done differently. We all do the best we can with what we know at the time. Wishing all the best for this incredible family.
The mom is so incredibly strong, you can feel her pain. She’s so obviously caring and loving, she did everything right and none of this was in any way her fault.
🫶🏼 I love how much the sisters look so alike, especially when they laugh together 🥰
And the couple of times when their mum smiled 🧡 .
At 42 years old, I took a prescribed medication for a sinus infection. I had taken the medication before without incident. I started taking it on Jan 6th, 2000 and I was declared totally disabled on the 13th, 7 days later. I had developed Stevens-Johnson Syndrome. I had been a nurse for over 20 years and had a 5 year old little girl.
Thank you for coming on the show. I have a son with an undiagnosed condition, lots of medical trauma, the brain is affected. I am currently staying at a neurorehab center with him for intensive therapy and in the midst of brain injured children with their moms. It is so moving, it seems like every one of us has experienced a medical mishap done to our child and it is unfathomable what that caused exactly in each child but your story is on the extreme end of the spectrum. Bless Elisabeth and the parents! I hope you share more on other platforms because it is very good to listen to you and it helps me with my story. Much love from Switzerland!
How is it possible for this Mom to have a 39 Yr old daughter ? Wow - she is so beautiful. And she is very far from weak - so strong and brave.
Thanks for sharing your story, Elizabeth . I'm sorry you have been so affected by the medication.
I'm so glad you have such a loving family and that you have learned to smile again.
Mom and Dad are so lovely.
Give them my love and accept a great big hug from me.
Janice 🇬🇧
Exceptionally mentally and physically exhausting to take total care of a very disabled person, guys you’re doing a dang good job!!!❤❤❤❤
Her smile when he was talking to her was everything. Wonderful to see how they interact with Elizabeth❤❤❤
One of the most touching and real videos...
Elizabeth IS responsive.She responds so warmly to her father, he must be a really good person. Good bless this family,I wish them everything wonderful 🙏💗🙏💗
This family is very special. Their love and devotion to their children including Elizabeth is amazing.
I am going through one of the toughest times of my life right now, but boy does this video provide some perspective. God bless these wonderful parents and their beautiful child.
Bless this family. You can see exactly how much they love Elizabeth and how well they’ve taken care of her.
What an amazing interview. Such a strong family.
Bless you parents, I can't imagine what you went through.
The mother looks so beautiful despite her age.
She's a personal friend and yes, she's absolutely beautiful-inside and out! ❤
Takes about half a second to love this amazing lady!
the way Elizabeth sleeps so soundly on her dad's shoulder makes my heart warm
Mama, from every other mama out here, thank you for letting us share in some of your pain. I can only hope that you feel us out here, offering you the grace you can’t quite give to yourself yet. ❤
This channel always helps me feel better
This is such an important topic, all too often hushed up. This is such a strong family to be willing to discuss the taboo topic of parents who cannot handle what it takes to care for a disabled child. Chris, this might be one of the most important interview videos you've done on your channel.
As a mother this breaks me to my core.... Shes a great mother.
As her friend I can tell you she's a wonderful incredible mother... she's by that bedside every other weekend and Elizabeth's dad goes on the weekends that she isn't there.
I don’t think any of them realize just how amazingly strong they are. Getting Elizabeth the best care she can be given is admirable, not shameful! I adore this family. These are the kind of people I’d be friends with. ❤️