PSA suddenly doubled - living with stage four metastatic prostate cancer
Vložit
- čas přidán 16. 04. 2024
- All of sudden it’s got real, anyone suffering with prostate cancer dreads the call that we get each month to give us our latest PSA reading but nothing can compare you for the one that says your PSA has doubled
Thank you for watching this video, I’ve been making these videos as a vlog sharing my journey through Advanced Metastatic Prostate Cancer.
My world literally fell apart on Sept 15th 2021 when I was diagnosed with Advanced Prostate Cancer which according to my Oncologist is incurable (although ive never accepted that) Questions such as how long have I got left how bad is it , in fact, a whole host of frightening thoughts, where suddenly swarming around my mind and exploding at opportune moments when I felt most vulnerable.
If I were to be honest, I was lost and lonely to begin with. People don’t know how to deal with someone who has stage four cancer. It’s a taboo subject. I honestly didn’t know who to turn to for help. It can be a dark place and I only wish I could have found a channel such as this to help me through those early days.
I started writing a blog whilst I was in hospital and recovering at home after the initial treatment phase.
I then decided to make this vlog because it seemed a better way to get my story out there. I want to provide a channel where I would continue telling my story for as long as I can and invite comments from others that can also help and share their own experiences.
Cancer can be a lonely place, and I hope this channel will help someone else who may be a bit lost and feel alone whilst dealing with their own diagnosis and experience.
Nothing is ever as bad as you think it will be, and that seems to be the case so far with my experience with Prostate Cancer.
Thank you for watching the video. Please comment and subscribe if you feel like it, and please share the videos with anyone you think may find them helpful
Woody ❤️
Enjoy the kids, your holiday mate. You're an inspiration for us blokes going through it.
Thanks Carl
Woody stay strong and positive. Keep sharing...thanks bud.
Thank you, I will 🙏
@@Livingwith-prostatecancer you will win the fight
From Greece I am in the same situation just stay strong and close to your family best wishes and have in mind that only the lord knows
I wish I was in Greece I love the Greek islands
I tell myself when the cancer bobs, I weave and when it zigs, I zag and if I can just keep doing that, before I know it I'll be an old man dieing of something else. We all still have a lot of living left to do!
Enjoy your holiday Woody! It's never easy when one encounters bumps on the road, but I know you will remember that you are being monitored closely and have access to treatment options. And you've got support from family and your friends around the world. Cheers, Reid
Thanks Reid I’m grateful for all the support I get
My heartfelt concerns and strengths go towards you Woody...I've been following your posts for sometime now and I never fail to admire and get something from your videos.
You stay stay stong and we will keep strong for you also 🙏
You are so welcome
As a fellow patient, my heart goes out to you Woody, down there in Medway, my former home. You’re an outstanding advocate for this dreadful illness. I wish you nothing but strength and warm wishes. Really emotional typing this. You’re amazing. - John
Hi Woody , so much admire your positivity.
My brother and I have been advised to keep an eye on our PSA because my father had surgery on his prostate 14 years ago,?but my GP tells me I can’t have a blood test because it’s not quite a year since my last test!!!! , the tv is nightly is reminding us that we us men from mid life on should keep one eye on things! screening and prevention are the new words in this future approach!!!! but hay this is modern Britain, sorry for my rant.
Thinking of you mate and try to enjoy your family holiday.
Mark, beef/arable farmer from Cheshire/Shropshire border
Thanks John that’s very appreciated
I’ve lost faith in GPs I’m afraid. My cancer was misdiagnosed for 8 months as sciatica.
Knowing what I know now I would not be waiting a year to get a test if I was you.
So sorry to hear about your results. Hope there are different treatment options available to you. I'm just 12 weeks into a stage 4 PC diagnosis myself. On ADT, waiting for radiation.
Sorry to hear your PSA results mate.
Just keep fighting and enjoy life as much as you can...
Cheers Gary
Woody I am sorry that your PSA has almost doubled and you had some bad weather on your holiday. Try to stay positive.
Thanks Mike
Best of luck Woody, try to keep positive, as you say new treatments emerging every week❤
Keep believing
As always Woody, thanks for your honesty, iam on a similar journey with doubling psa, but it is what is you have to keep going. Take care, god bless , Phil, enjoy your break.
Thanks Phil as you say it is what it is. Not a great deal we can do about it but live life the best we can
So sorry PSA rise your positivity and attitude WILL get you through keep strong
Thank you James
So sorry here that woody there's lot out there' medication out there . my heart goes out to you mate we are all with you
Thanks Keith
Stay Positive!! Go play as much ping pong as you can!! Enjoy those walks!! Breathe in the fresh air! You Can Do It!!
Thank you Bob
Woody, sorry to hear about your psa rise- hang in there and as you say enjoy every day as it comes along, that’s a lesson that we all learn on this journey. You are dead right about the AI. A gripe of mine is how hopeless (ie non existent) our PC screening is in the UK. It’s because of this that we have people with stage 4 PC . This is an easy task for AI. I was looking at the data of my blood test records and it is a classic case for AI analysis - that’s what I do in my day job _ I am a scientist working in analysing ( making sense of) of big complicated data files. I nearly asked the oncologist if I could have the data so I could run it through my software. I don’t think he would have got it, and at the time we were meant to be focussing on my latest mri scan so I let it go. Stay positive and keep the videos coming.
I agree Derek, I wonder how many lives could be saved with a screening program
I hope your latest MRI is a good result for you 🙏
@@Livingwith-prostatecancer Woody yes it looks like my mets have "dissappeared". I had 5 in my lymphs and one on my spine. The oncologist thinks it is the Prostap and apalautamide, I think my excercising is also helping. Am having a further MRI in 6 weeks to confirm. Then if that is clear I think I will pay for a PSMA PET scan to really see what is happening ( the the doc says he can't do that for some reason) Any mets left I will then go for spot radiation treatment. - Keep the videos coming!
You're in my prayers Woody
Thanks Anthony🙏
Sorry to hear that. Good times are coming. PSA will come down soon.
I’m hoping so, thank you
I’m with you woody.
Hi Woody hope they can find a suitable treatment to halt your PSA rise, keep strong, new treatment coming out all the time now!
That’s what I put my future hopes in Frederick
What treatment did you have Woody, My gleeson 8 was treated with 18 months of Adt hormone injections then 20 radiotherapy sessions, just being monitored every 6 months now, hope they come up with a successful treatment plan for you keep positive m8.
Sorry your PSA is on the rise I hope you can get a good treatment God bless you in your journey
Thank you James
Very brave,
Chin up my friend... me too! PSA doubling 60 days yikes! No awful rowing toward God for me... a little tap dance toward oblivion more to my liking.
Good luck Charlie keep believing
I read that prostate cancer has a high cure rate..but I see many with reoccurrence in here
I think it all depends how early it is caught. If it’s caught early it can be managed very well
Have a psma pet scan to locate the recurrence sites and have stereotactic radiotherapy to those spots. Consider luteuim 177 . There is new treatment coming with actinium 225 .
Vita d as well....
Hi John have metastatic prostate stage 4 number 150 2 months on erleada 240mg with zobone drip monthly monthly lucrin first month down 4 now 1.45 i have bone all over
What i trying say if this may help you God bless
God bless to you too
I would be interested to know PSA figure.
Just risen from 0.98 to 1.78 been very slowly creeping up for the last 5 months now
How high is the PSA now....doubling sucks, for sure, however, as you know, there are other medications available. Keep in mind men live for a long, long time with prostate cancer. If your cancer was the aggressive type, you would be dead already. So, I am confident that you will deal with it, and live a long time ( I had prostate cancer myself and have ongoing PSA tests too), and have had a number of treatments (not an "active surveillance" patient at all).
My cancer is 9 out of 10 on the Gleason scale which is pretty aggressive , but so far it’s not acted aggressively, I’m very lucky
My PSA started doubling every month which is scary. I did some research and found cooked tomato products were very helpful. I started taking tomato ketchup 3 times a day off a spoon and it stopped rising. Now I take tomato puree about 20 grams 3 times a day plus some ketchup and I'm fine. I'll just keep on this. I treat it as medicine. I'd rather do this than chemo which will still fail eventually. Good luck and take care whatever you do.
I’ve read about the tomato thing and it’s something I’m going to start doing thanks for the comment
Cooked tomatoes, especially Roma tomatoes absolutely help lower PSA and are extremely helpful as part of prostate cancer treatment. Eat tomatoes every day. Every single day. Stewed, cooked, even raw. But, the cooked is better.
I’ve started drinking tomato juice and drinking tomato purée ( there are worst things) I’ve read a bit about it I think it’s worth a try. I guess there is only one way to find out.🙏
@@Livingwith-prostatecancer Agreed. It can't hurt and there's a lot of papers saying it does a lot of good.
@@Livingwith-prostatecancer Yes, it's worth having a go.I take 3 heaped dessert spoons every day about 60g grams a day plus extra spoons of quality low sugar tomato ketchup. You get used to it and it's far better than the alternatives. I've taken far worse things. Good luck with it.
Surely your psa is still very low?
In relation to normal yes, but it’s rising for 5 months now.
@@Livingwith-prostatecancerI wish your next blood test shows better , lower result, a mr of lower back is good from time to time for examining what is going on. I wish you all best, dear Woody.