INIM Webinar - Understanding ME/CFS Today: A Clinical & Research Approach

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Komentáře • 16

  • @pjyothi6533
    @pjyothi6533 Před 4 lety

    Is sweating with IR sauna recommended if also doing coco charcoal?

  • @pjyothi6533
    @pjyothi6533 Před 4 lety

    Dr Rey I just had some blood labs done that showed high levels of Aspergillus and 2 other types of mold. Is it OK for me to try and follow the Bulletproof method as well as infrared sauna? I'd rather work with a provider but many seem to want to do other type of treatments that I'm not sure are standard. Do you have a recommendation for me here in Texas? BTW I have requested an appt with you as well. Thanks

  • @mr.invisible926
    @mr.invisible926 Před 4 lety +1

    Would you please suggest how to find a local physician or PCP who will work with ME/CFS specialists? I have already seen several functional medicine and environmental medicine practitioners (and many more specialists).

    • @danashannon8234
      @danashannon8234 Před 4 lety +1

      There are about 7 me/cfs Drs.... google me/cfs doctors/clinics. I hate to say....I have been to at least 10 doctors in the last year and a half with no luck in fact I feel like its been terrible. I am now so severe I can hardly get to a doctor..... very sick....no help.

  • @pjyothi6533
    @pjyothi6533 Před 4 lety

    What is a good liquid Glutathione?

  • @taradrolma7612
    @taradrolma7612 Před 3 lety +1

    I agree with others who can't afford private doctors, but Dr. Klimas has contributed a lot to the ME/CFS community over the years in the form of educational videos. It's a very sad situation. I pay a lot for Medicare and supplemental insurance along with the cost of supplements and can't afford private doctors.

  • @kathyhalveygibson4485
    @kathyhalveygibson4485 Před 4 lety +2

    It would be better if the speakers were easier to understand. It seems the information would be helpful if it was spoken more clearly.

    • @marciemyers6585
      @marciemyers6585 Před 9 měsíci

      They are most certainly well-versed but if it’s not understood it’s of no value to us patients. I’m sorry to say this but it’s truw

  • @danashannon8234
    @danashannon8234 Před 4 lety +2

    I just looked at your site & it says you no longer accept insurance. This video says you take medicare. How are we expected to private pay for all of this? Seriously?? Those of us who are sick ate disabled and are barely making it month to month. Are you for real?

    • @NSU_INIM
      @NSU_INIM  Před 4 lety

      Hi Dana, we apologize for the delayed response. Back in September 2016, we made the decision to move to a cash pay only clinic so that we could remain operational and be able to provide care for our patients.
      We do provide detailed receipts so that patients are able to submit claims to their insurance company for possible reimbursement.

    • @danashannon8234
      @danashannon8234 Před 4 lety +1

      @@NSU_INIM how unfortunate. This is just how it is for ME ppl. Most of us are broke.

    • @taradrolma7612
      @taradrolma7612 Před 3 lety +1

      @@danashannon8234 and for those of us with severe illness it is too hard to do the paperwork. Just another example of how the financially well off get the best care while the rest of us suffer. I have found a functional medicine doctor in California who accepts insurance. After more than a decade of illness I am finally getting help. The supplements are very expensive so there is no extra money for docs.

    • @gypsypath1
      @gypsypath1 Před 3 lety

      @@NSU_INIM Which still means you have to have the money available to pay upfront. With an illness that frequently means you can't do very much to earn money. I guess you have to do what you have to do to stay in business, but it just sucks for the majority of us who can't pay for the expensive private doctors.

  • @breakouttohealth-sharonsim6496

    Irina Rozenfeld doesn't seem to understand what a keto diet is. It is high fat NOT high protein. And, many ME/CFS patients, particularly women, are short of amino acids. High protein is not detrimental to kidneys, nor is high fat. Testing and monitoring is important.

  • @danashannon8234
    @danashannon8234 Před 4 lety +1

    Too bad the best doctors only accept cash. If you want any kind of diagnosis of me cfs or testing or treatment..... ya better be rich as heck.

    • @taradrolma7612
      @taradrolma7612 Před 3 lety

      Sutter Institute for Integrative Health in Northern California accepts insurance.