Surviving Sepsis: Insights on recovery and Post Sepsis Syndrome
Vložit
- čas přidán 24. 04. 2023
- In the second episode Dr Ron speaks to UKST Lead Support Nurse Oliver Jones about sepsis recovery, with a focus on Post Sepsis Syndrome (PSS).
Oliver’s background as a critical care nurse makes him the perfect candidate to discuss what information and aftercare is needed for sepsis survivors.
Together with Ron, he explores the impact of PSS on people's lives and the challenges of getting it recognised by health professionals, insurance providers, and employers.
The pair discuss ways in which health professionals can help patients who may be experiencing problems after sepsis, and give an overview of the fantastic support services provided by the UK Sepsis Trust.
Find out more about Post Sepsis Syndrome: sepsistrust.org/get-support/s...
Get support: sepsistrust.org/get-support/
Guests: Dr Ron Daniels, Oliver Jones
Producer: Beth Kirkbride
Thank you so much for educating people
Two weeks after being septic shock ,i m now home but i am having issues with remembering normal words and followingand processing thoughts.I feel muscle weakness and my body aches and short of breath
PTSD seems to be common in septic shock patients. Johns Hopkins did a study on this and looked at patients on respirators, particularly noting those treated with narcotic pain relievers in the course of treatment. Best wishes to all 🙏🏼
I'm still weak in my legs, lost muscle mass, and I'm so stressed
I’m 4 months after getting out of hospital, I was in hospital for over 5 weeks with septic shock and respiratory failure from MRSA-pneumonia and I was put in a medical coma for two weeks at the beginning and I was on a powerful for rheumatoid arthritis and that’s how I got that sick 😢. My stamina is a joke, I can’t freakin sleep, I’m terrified of going to sleep some days, my appetite is starving and no appetite at the same time, I can’t fathom taking any form of immunosuppressant for my rheumatoid arthritis and my stupid rheumatologist is pushing to get me back on one 🤬she completely ignored my concerns about this medication type 😢 I’m not going back to see her again, she can fo. The doctors had to use 3 different pressors at the same time to keep me alive and that did some serious tissue damage to my hands and feet, my feet took the worst of the tissue and nerve damage, but my hands didn’t escape scott free 😢 I have worsening numbness in my right hand thumb, index finger and now the entire back of my right hand is numb, my left hand thumb is missing quite a bit of flesh from dry gangrene, literally half of the cushion on my left thumb is just gone and this causes immense pain from having the bone so close to the surface of my thumb now and holding things in my left hand is a painful bad joke. All of my toes are still mostly numb, with tiny little spots of feeling on 4 out of 10 toes and this makes driving impossible, walking up and down stairs is deadly at best, and my poor right arm can no longer tolerate having blood pressure cuff on trying to take my blood pressure, it only gives extremely low readings and I have to constantly tell the nurses if they don’t believe me they can take a blood pressure reading on each arm and see what I’m talking about, they have and it proves me right every single time 😢that there’s something really wrong with my right arm, because it’ll give a reading of 60/41 and then they take it on my left arm and it reads 110/70! It’s getting worrisome to me and it’s so hard to get into a specialist right away in the USA 🇺🇸 it’ll be 6 months before I can even see someone for the first time and I’m not that patient when it comes to deteriorating conditions 😢but it’s not enough to go to the emergency room either so idk anymore, sometimes I wish I hadn’t survived because I feel like such a fckn burden on my family nothing seems to be getting better 😢 I don’t have any energy whatsoever and I’m supposed to be going to OT/PT to work on my stamina and I can’t summon the energy to make an appointment ffs 😢 I have PTSD from this hospital stay and illness and it’s hard getting my fckn husband to wear a mask at work and when he goes to the store, then he expects me to kiss him….not happening ever again because we were both told if I wanted to be as safe as I could, both of us have to wear masks while out in public, him because he kisses me and he’s not taking me seriously anymore, so I’m seriously contemplating moving out or he does and we either separate permanently or divorce, I don’t care which anymore because nobody is taking my fear of getting sick again seriously and guess what, 2 months after getting out of the hospital and he had been back to work for 8 days without a mask and our entire family, me especially, GOT INFECTED WITH COVIS and he treated it like it was no big deal. I remind him daily that he wasn’t the one intubated for 3 weeks and had a tracheostomy just to be able to fckn breathe and still no respect for what’s left of my life at 53yo . I would love to be around for my granddaughter, but it’s not looking good thanks to this idiocy 🤬😭🤬
My phone sucks, pos, my hands are fu, 4 weeks iv in hospital, hole foot called celluitis, bs it is sepsis, severe. Home 10 weeks, add groin rash, knee swelling, aw, I really like my w.c. , really hate bill: $173k ??? F*** THEM. hope you are ok, really!
My mom had sepsis in February was in icu for 2 weeks and a rehab for 3 weeks. She's now on antibiotics for the rest of her life. Is that true you need to be on antibiotics for life!? She's also 77 yrs old