What are the signs and symptoms of post sepsis syndrome 2020
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- čas přidán 5. 07. 2024
- Discussing the physical and psychological aspects of post sepsis syndrome.
Also talking a bit about my story.
Sepsis survivor stories the podcast
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Signs and symptoms of post sepsis syndrome Cheat sheet
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Signs and symptoms of sepsis cheat sheet
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Thank you so much. I’m one year post sepsis and wish I’d known what to expect following discharge from the hospital. I couldn’t understand why I was experiencing so many changes in my entire system. Your podcast is a great blessing to sepsis survivors.
I have had Septic shock twice and sepsis 5 times due to kidney damage. I thought I was going crazy wondering why I was not focusing on living and constantly worrying about getting it again. I thought my menopause was brutal but this explains alot to me.
I had Sepsis 7 weeks ago and now have a hard time staying focused and remembering what I'm doing. The fatigue was awful and I definitely worry about getting it again.
I'm going through that now. I had it 3 weeks ago.
I was on life support for 12 days... I am 16 weeks post septic shock... I am struggling. I've lost so much hair!!! I had to cut 15 inches off bc of how thin it has become.
TBF the hospital didn't even tell me I had sepsis, they still haven't told me to this day. After I survived the sepsis they claimed I had chrons and left me on steroids for 6 months, no pain relief for a year and when I finally saw gastro consultant he was confused why anyone thought I ever had chrons. I learnt about my sepsis through a SAR after a friend who is a doctor told me it was sepsis
I had to learn how to walk again through physical therapy I also
have neuropathy. I’m thankful to be alive.
You survived for a reason Cecillia. Xxx
Cecillia hope the neuropathy isn’t too much of a pain. Hope you are well xxx
The same happened to me. I couldn’t walk, and I still have neuropathy.
Wow this is very pertinent information! I just found you. I think my son had sepsis from 2 severe infected abscesses. He was acting crazy and one morning he came in the kitchen screaming he was freezing. He was angry crying sleeping for hours and hours. The dentist did emergency surgery cut both teeth out. He was drinking alcohol to kill the pain prior to the Surgery which made it worse. After the surgery he was on heavy duty antibiotics and steroids and more drugs OxyContin 30 mg. He was going crazy 1 week of this medication. Screaming yelling running out the door . It was awful. They never actually said it was sepsis but I believe it was.
Thank you! I was “oh, so that explains it”, throughout your video!! ❤️
I have been in sepsis twice. The sond time I was much older than the first time. When I came home from the hospital the family thought I should just bounce right back.
That's how it's been for me. Had it twice last year. Once after a c section and a second time after appendicitis. I am trying to find ways to restrengthen my body, mind, spirit.
The temperature disregulation is insane. Before this happened was , always , always , always hot. Now I'm cold constantly, even when its hot , so weird !
it can be in the 80s outside and i cant get warm im about 5 months in recovery...but it is slowly getting better
I had Sepsis around two years ago caused by an infected Gallbladder which progressed to Septic Shock. I was in an induced coma for 3 days and almost died.
What I recall is very different from what you are describing. I, of course, had a high temperature. I was unable to control any of my body movements. If I tried to get up it was almost impossible and I would actually lose total control of my movements, flying against walls, etc.
I had respiratory failure when oxygen was taken off for an xray before a diagnosis was made. However, after surviving I had no other symptoms. It was also very difficult listening to your video as you spoke so slowly.
She is very accurate in describing the post sepsis symptoms may the Lord Jesus heal your body of this illness
I had sepsis I am 85. Still have swelling and neuropathy which is bad hard putting shoes on walking and balance is difficult hair loss
Thank you for sharing this very difficult process in your life .😮
Thank you I had sepsis and spent a month in hospital since being home I’m always either super hot or freezing cold and have been super emotional too I’m back to work in February because I can’t afford to be off anymore
I completely understand that last bit. Hope you’re okay. Let me know if you need anything. I’m on Instagram @LauraWilliams.Sepsiseducator
Thank you for sharing, the anxiety has been crazy
Hope you are ok
@@laurawilliamssepsiseducati5642 my doctor is taking very good care of me
@@houstonwells3404 how are they helping your anxiety? I'm starting to realize my panic and anxiety is sepsis/ post icu and open heart surgery. Everything. Because I never had an issue with anxiety or anything ever
Thank you just getting through Sepsis
Thank you. Xxx❤
I had sepsis and pneumonia 4 weeks ago. I lost a lot muscle and lung capacity. I am back to work and rebuilding my body. PSS I never heard of it. Must a British thing. But Sepsis and Pneumonia will not define the rest of my life! You too will heal.
I was admitted in the hospital with sepsis on February 14 th of this year stayed in the hospital 4days worst experience of my life had never heard of this before that day Im thankful to be alive im also terrified of it returning.
I’m 4 months post hospital and I can’t anymore, this is driving me insane and I feel so damn useless all the time
Things will get better. One day at a time.🙏🏼
I was hospitalized in September with sepsis from a rare bacteria. The psychological problems are the.worst! My short term memory is shot. I've lived in this town 60 years and suddenly I'm turning down wrong streets. I'm feeling pretty useless myself. I know I'm getting better, but I never realized it would be so slow. Dr told me today that I might be able to return to work in March!
I know it's 8 months later, but sending love your way ❤️ ❤️
I can relate to your experience. Septic after ruptured bowel and then surgery with colostomy.
12 days in hospital - on antibiotics and recovering from surgery.
Discharged and on Day 4 at home I became septic again without knowing what it was at the time.
Father in law died of this a couple years ago. I just got out hospital with it. Could have died if I wouldn't have listen to small voice telling me to call 911. Now Im trying to study it. Very painful and scary. I was healed in a 4 days which is unusual.
I just got out of hospital with Sepsis on July 7th. It's a very hard thing to go through. So many people don't understand how difficult it was!! I'm so happy you survived!! I'm having issues with swallowing food now, so I have to go to a GI. Prayers for your recovery. Just know others are going through this right now, too. Best wishes for our recovery🙏 And I'm now suffering with the psychological part.🙏
What meds do they give you for the mental part? I feel like im going insane
I wish I had known
Sepsis has given me PTSD, and I worry I will get it again.
I had painful legs and sciatic pain really bad for 3 years after septic shock. I still have to stay in bed a lot, from exhaustion. The pain has gone but pops back in every once in a while. Will it ever completely get better? It's been 4.5 years since septic shock.
Hi Alexandria. In the research and from my experience it can take time. The research isn't really there at the moment however with the research going into long covid and the similarities between pss and long covid there will hopefully be some answers
Also I am on Facebook and Instagram more than here at the moment as needed a break ( emotionally ) due to ptsd. Also, I keep trying to upload stuff and there seems to be an error.
Has anyone had a problem with their body retaining fluid after recovery. It's been 15 months since sepsis. My face gets tight, my upper legs have pockets of fluid, I discovered fluid retention throughout my body. Lately, I feel it's harder to breathe. Im not sure if it's anxiety or panic attack related. I've developed raynauds as well. I would deeply appreciate anyone who had sepsis to share information with me.
I had 4 teeth pulled on may 11th . But 2 months before is when the pain started. Now my whole body aches from neck through legs. Severe aching.I do have taste issues since then. I’m also supposed to be seeing a kidney specialist for some other things i think I’m 3A kidney wise. The area where they pulled the teeth is swelled up inside. So I told my husband I need to go to the hospital. He doesn’t think so but I’ll go.I just need to get cleaned up and the energy it takes for that is exhausting so what do you think
Oh yes and the sweating profusely i have also
Im post sepsis now 4 months...im still tired and have brain fog. I cant complete the activities i want to do in a day.
I have this for 8 months... Any thoughts... I get the fever and chills
Can you have sepsis for 3 weeks?
I had sepsis last year In August and I swear I feel like I’m going crazy. I’m so terrified of getting sepsis again I check my temperature, blood pressure and oxygen frequently. I also have a lot of memory issues I always had memory issues but it seems to be much worse. I feel like my anxiety is awful too. 🥺
I’m 3 and Hal yrs now posst sepsis I’m not the same so weak tired mind goes blank depression aching all over scared to death if getting it again like you I check everything ,
My daughter has been recovering from sepsus. She has the feeling of being cold, dry flaky skin and her hair has been falling out until it is very thin. She wants to know if the hair will grow back or should we start thinking about a wig?
Hi. Only just saw this comment sorry for the late reply. How long ago did she have sepsis. Is she ok x
@@laurawilliamssepsiseducati5642 She was diagnosed on Nov 10, 2020. 8 days in hospital and sent home with a PICC line and strong IV antibiotics 4 times a day. The PICC line was removed on Dec 24, 2020. She is getting better day by day. We are still keeping her isolated because of the Covid-19 virus being so bad in Tennessee and her red blood count is so low. Thanks for asking. What should I tell her about her thinning hair and scaley skin?
@@2ladyhomesteadershodge898 right one of the big things is it can take a while. What I did was I cut my hair. I used oil and protein mask in my hair every few weeks. Get some handcream and make sure that she rubs it in to her hands and nails and just below Below where the nail is there is a dip and that’s where the nail starts growing that is something called the matrix so get her to rub there as well because it will stimulate the circulation. You need to make sure that you’re at some point seeing a podiatrist with her because one of the things that can happen is nerve damage. The reason why it is when you have sepsis the main thing that your body is trying to do is to keep blood and oxygen in your brain heart and lungs and everything else is an afterthought so this is why you can lose your hair about a month after because her nails and skin it’s a 28 day cycle So if you’re using a new face cream for example use it for 28 days because it’s only then that you actually see what your skin looks like with that cream. I like my analogies can you tell? For some people it can take a while it sounds like she had a pretty major infection and please make sure that you’re keeping an eye Out for signs of infection because the first three months are where the blood count is so low. Have you been in contact with any of the Sepsis charities. Are you on Facebook?
I'm worried about sepsis relapse. I didn't have bacterial sepsis. I actually Contracted Covid19 Viral Pneumonia which turned into Covid19 Viral sepsis. I had all the symptoms you addressed. Hot and Cold, no sleep. shortness of breath, body aches. joint pains, dizziness, blacking out when I would stand, chest pressure when standing, burning when breathing in. I am so worried about it releasing. Plz share your advice.
Hi Cory The main thing I would recommend is to get counselling for me I honestly swear that counselling was a godsend for me
My biggest fear is if I will relapse. Let me explain in short. I was admitted Saturday to the ICU there diagnostic scans (X-Ray, Contrast CT, Angio, EKG, Heart Ultrasound) showed no Covid19 Pneumonia. However confirmed Covid19 viral sepsis. I was released 4 days later. Follow up with my primary 2 days later, He send me back to the hospital for a stat Contrast CT angio study which reveals Covid19 Pneumonia spots and Small Blood Clots and an area that couldn't be read with dye with 4 tries. So I am on blood thinners and Dexamethasone. I am nervous about my immune response and inflammation starting the moment I run out of this medication. I just wish I knew if I will have a relapse or how can I prevent one from happening.
Spread Awareness of PSS it is real. Has me loosing hope for recovery I'm close to giving up. Receiving treatment but maybe. The next person will.
really nice vid. lovely style.
IReillyPod GMail thank you. I do a new video each Sunday
Im dying from undiagnosed sepsis and wished i could have pss .
Xxx are you ok john. Are you on iv antibiotics?
@@laurawilliamssepsiseducati5642 they gave me iv antibiotics but they didnt work I'm laying in bed waiting to die .
@@johnkimball5872 you have made comments as of a year ago almost telling people you are dying of sepsis yet you still as of recent, pop up in comments?
@@laurawilliamssepsiseducati5642I didn't have sepsis. But I think I do now
@@gamersofthegalaxy7920I didn't have sepsis then but I think I do now for 3 weeks!
I'm dying
Dr sent me home
I don’t know if I said on this one but after I had sepsis and went to the doctors with all of the after effects that I was having which was all that three of the symptoms I was asked he told he had sepsis they did bloods but because I am one of those really a symptomatic annoying people everything came back negative
But are you okay
I'm dying
@@theresageiger584 are you still dying?
@@theresageiger584are you alive?
I nad sepsis...ut was aeful. Wa a v pug in. Hospital in I a cU...feal nitemare!
You TOTALLY LOST ME,MAYBE YOU SHOULD READ MORE UP ON SEPSIS,THEN COME BACK AND DO A VIDEO
I am very sorry that you felt this way. I am talking from my personal experience. Often my memory is impaired. What would you like me to be more clear on and I can do that for you Sherrie
If you dont like her video go away you miserable soul. Its her story not yours .
Sherrie, I have had sepsis and this video is spot on. Don't be mean
Sheri , same - basically she explains what sepsis is , then the long term effects......get some counseling, take your misdirected rage somewhere else!! - as a nurse and a sepsis survivor , spot on !!! Lost almost all my kidney function post sepsis.....one came back one didn't
Most importantly @sherrimedellin5575 if your lost go find a channel that will help you understand THEN COME BACK AND CRITICIZE 💯