White Matter Disease
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- čas přidán 13. 12. 2022
- In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, Dr. Karen D. Sullivan discusses white matter disease: what it is, how it affects your brain health and what you can do about. Learn more at www.icfyb.com or follow us on Facebook at icareforyourbrain
In my 63 years, it’s become very clear to me that most doctors have little interest in prevention and prefer to wait until a disease has progressed to the point of being able to satisfy the insurance company where additional tests & treatments are concerned. I’m sure there’s exceptions, but not usually.
🎯 yes! I was told a nephrologist would laugh us out of the office if we showed up asking for help with a sudden, significant & persistent reduction in kidney function because it wasn't bad (enough) yet (in an otherwise healthy appearing young person). Yet when consulting "Dr Google" it said treat kidney disease early to prevent further damage!! What is wrong with doctors today that they aren't interested in the mystery of how to keep one healthy? They aren't interested in finding any causes early on to *prevent* progression of disease? 🤦♀️
THAT'S BCOS THE SICKER AND SICKER YOU CAN BECOME OR THEY CAN MAKE YOU, THEY MAKE MOOOOORE MONEY
@sanddollar252 omg you are so right I have this and a three inch cyst on my brain but they won't do nothing till I get worse they put me on med so I don't get seizures until it does worse they drain the cyst....smh
@@Mutt-mutt now that's just absurd! What damage could be occurring in the brain while your cyst is deciding what to do next. I'd get a 2nd and 3rd opinion. Sending you lots of luck & hugs!
i have a growing arcnid cyst in the angle between the pons and cerebellum and all they did was an mri every couple of years. well now they are doing it yearly because it's still growing. at first, they said not to be concerned because it wasn't large enough to need any treatment. well, that was almost 6 years ago. it just keeps growing. now they say oh well it's not grown enough. first, the doctors' take was, that if it grows then we'll consider a treatment. Now, it's oh well, it's growing but not large enough to consider treatment. Never mind the symptoms with my vision continually declining and the pain from chronic (5-6 days per week) migraines and pressure just getting increasingly painful each year. they literally were only focus on the IF it starts to grow, and now WHEN it becomes larger ENOUGH. All I want is for them to admit that this mass in my brain needs to be addressed since it is of concern to my vision. I mean living with the pain is awful, but I'd like them to find a course of action that would treat my vision from continuing to decline, even more. At least let me claim partial blindness during parts of my days. i have a feeling that next they well say well you havnt loss ENOUGH vision YET, for it be of a concern for us to consider any type of treatment.
Thank you for this. Got a type 1 CSVD diagnosis from an MRI one year ago, along with high blood sugar, high cholesterol, and obesity. Immediately stopped all added sugars, went whole food, plant based w addition of salmon and eggs. Began a walking program. I Fast 12 hrs overnight. Have gone from a 2x to a L. All blood work in normal range. My memory and multitasking have improved, my arthritis also, and I am happier and more motivated and serene than I have been in decades! Your explanation of this scary issue is so perfect! I watched my mom increase her drinking and take to her chair as she began her decline, and the proactive lifestyle I chose has lessened my fears and shown amazing results! It was so so worth it!
WOW. Impressive. Kudos to You.
Most encouraging. Thank You.
Excellent! Keep up the good work!
Great job! You are on the right tract for quality of life.
You’ve done an amazing job. Your testimony was inspiring. Big congratulations to you! 🎉🎉🎉
👏🏻👏🏻👏🏻👍🤩
I'm 43yrs old and just got diagnosed. Can't think or get words out alot of the times and constant idk what to do feeling. No emotions or being able to take responsibility for my own self. It's frustrating when you've always been a single working providing momma and now a nothing. It needs more awareness for sure. Thank you thank you for this information ❤
Same here. I also have horrible brain fog, and at times I get disassociation attacks.
me? i simply dont care anymore. about anything
I’m 54 years old and going thru the same thing. MRI with and w/o contrast indicated small foci of increased T2 weighted blah blah blah deep in the subcortical white matter.🥴
Your not a nothing. Your everything to your child. I have been there. I am now 58 and got this white matter crap to! It's not b the worse thing that can happen as my brother had a fatal brain tumor. Your.doing the work of 2 parents. Pat yourself on the back !!
Ashley, You are NOT a “nothing”! God made you a miraculous woman who loves her wonderful children, extended family and friends. Read my comment. Our bodies may fail us, but this doesn’t change our importance in this life. Take rest that God has us in His loving hands.❤ Krista
I have moderate white matter disease. Everything you have said in this presentation has been helpful. I am 76 and had frequent migraines start up again last spring every day for almost two months. Had the MRI and was diagnosed. My BP varies and is normal while resting. I am a retired RN working in surgery, Long term care and later in my career , did case management, teaching PNs. I have been having frequent falls and need now to focus on my walking---just as you mentioned, My physicians at Vanderbilt are wonderful in helping me. I will start water therapy soon as I love to exercise in the pools. Thank you so much for your lecture. May God Bless you richly for this support. Judy
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My wife was diagnosed in 2017 with Alzheimer’s 52 years old. Brain scan showed some white matter. She was put on meds to slow progression. I believe today her condition would be called FTD. She had lots of headaches,stress with job and not a very good diet. She loved chocolate and Coke. But she did love to go for walks often. By 2022 she had deteriorated so much I could not properly care for her, and found a good care facility. This is a very devastating disease. Later that year she passed away. I am sharing this information in the hope that it may help others. Thank you Dr. Sullivan for all your work and dedication. 😇
Unfortunately for me and my family, statins have caused us severe cognitive side effects. My father was told that his episode of being so confused that he sat on a laundry basket and used it as a toilet was dementia and we were told to put him in a nursing home. We asked the doctor to review his medications and found that he had reported problems with confusion when taking statins and had been taken off them but another doctor put him back on them. He was admitted to the hospital and taken off the statins for the final time and eventually regained his memory and ability to take care of himself and his financial matter as normal. However, he said he never felt the same. I hope there will be something else besides statins to help with vascular health for those of us who can't tolerate them.
Something similar happened to my friend's father. Best of luck to your father and you.
There is an alternative. I have genetic CYP450 Defects that includes toxic build up of statin medications. Instead I take the rx ezetimibe. It reduces bad cholesterol 25% and has been effective for me.
Statins are bad. A main stream medical relic of the pharma. Plenty of evidence based research solutions are available that have surpassed this form of treatment.
This is why i looked at the comments my jaw dropped when she praised statins and I know for a fact the statins messed up my mother I told her years ago to get off it that it's going to cause her diabetes and dementia guess what I'm dealing with I have to clean up this mess and the rest of my life is ruined caretaking it is 24/7 and at this point taking her off it hasnt helped. Shes w me now in my 1 bdrm apt. She doesnt want to stay in her condo its been 2 yrs nonstop and tge last 3 months, entire summer at my house. The damage these medications do is criminal
Thanks for sharing this. I've been trying to convince my relative to stop theirs since they are declining too. But they won't because they do whatever the docs tell them to. They stopped for a period of time and their cognition and memory restored. Their depression improved. About 6 months later they went back to the doc and the doc asked why they weren't taking them and so my relative went back on them. They don't even need them, their cholesterol is only barely on the the high side
I was just diagnosed with White Matter disease. You’ve given me back hope, thank you🙏🏻❤️
I'm so glad.
Yay Kathy!
Excellent talk! What hit me most was the lack of self-initiation. I just refuse, it seems, to do things and it has resulted in my feeling really bad about myself. This causes even more ingrained non-initiation and resulting emotions of guilt and shame. Knowing it's 'not me' but a physical manifestation of my brain it has caused my mental energy level to increase and gets me off my buns and starting to do the things I really want to do. Oh, I'm a 77 yr female with hereditary heart disease and have had 1 heart attack and 2 mild strokes. All I can say is thank you, thank you, thank you!
You are welcome, Beverly! Keep trying!
Thanksto you to this explanation in 1998 I took a brindar MRI the diagnosis was atrophy both parietalwith White matters but I WAS 40 years ols I WAS working with chemicals but no explanationand is Boeing continuos no explanationuntil now I took severas times CT sean and MRI and lastima week I took another because I have pernicious anemia and dizziness it came the same you explanation but the neurologist said it does not mean nothing for him even it was diagnosed microvascular disease but he said no meaning for him is the second one iam pre-diabetic and diagnosed with MAS multiple autoinmune disease alopecia universal hashimoto and pernicious anemia what I can do
@@OscarGarcia-yk6gqOscar, please find another doctor who is willing to engage with you as a patient. They are often hard to find now, but they are out there! I have dealt with multiple issues for many years, and my faith and family have kept me grounded. Yet, when you need medical help, there is no substitute. Look for referrals among those you trust. Do research, read, travel if you must to a University Hospital setting for a specialist. But you cannot expect a stranger to do what you won’t do for yourself. PLEASE, keep up the good fight until you partner up with a great doctor! You will be so happy that you did. God bless you, Oscar! 💗
@@OscarGarcia-yk6gq I can relate. It seems like Drs don’t know what to do with it so they either throw a chemical at it or ignore it as a normal sign of aging. 😢
yeah, and then they just want to throw psych meds down your throat; which, in my observation as a professional, just make everything worse, if not a large contributing factor for many.
I was just recently advised that I have this after having an MRI of the brain. This video has been so very informative and now I'm not as afraid as I was when I read the report. Thank you for being a blessing
You are welcome!
I feel the same way. I don’t feel as afraid anymore after watching your easy to understand video. Your house is beautiful and your skin is as well. May God bless you
That's wonderful, thank you for sharing!
I am 69. Had TBI and was found not breathing in 2006. Immediately following I had to start wearing glasses, started having decreased hearing and lost all my nursing knowledge ( I’m a RN) and had no Short term memory so unable to retrain. So in 2009 was put on 100% disabled. Now having extreme dizziness, poor balance, eyes get worse every year, decreased concentration and mental focus, falling & tripping. Now having severe BP fluctuating that got more severe about 3 mos ago( now getting under control.)HX of migraines, urinary incontinance, and lace of initiation. Forget to eat.
Question: how fast will I get worse? Is this terminal?
My Neurologist said my dead white matter is deep in the Front, top left & right, temples and the pond is not functioning well. THANK YOU for taking time to do your very educational videos. 💕Krista
Thank you so much!! I was diagnosed with vascular dementia by Neurologist. I felt like, well she is the doctor BUT I really wasn’t ever convinced about her diagnosis due to several things as I have trouble with word finding but not with much else. I am 73.
Thank you so much for your presentation!! I am going to research this further until I am satisfied it’s a true diagnosis.
So happy I found you. You explain it so well
Much appreciate the technical improvements, especially the video, and the information you provide is always so helpful!
Thank you so much! I'm 40 and recently read that I had "old mild small vessel disease" on my very recent MRI brain scan. Everything I read online scared me, so this made me feel a lot better. Thank you!
6/6/23: Thank you, Dr. Sullivan for this excellent video! So clear and to the point. I am 81 and a recent CT scan mentioned this white matter issue. And have recent falls, balance issues, multi-tasking difficulty, difficulty starting things, etc. I recently started walking and have a walking buddy in France. We report in by text after our walks. Helps tremendously with motivation. I have also discussed with my sister setting up a buddy system about the healthy eating. That should be a great help in starting it and sticking to it. I’m also going to look online for the balance training that you mentioned. And… I will be sharing your video with my 6 siblings. Can’t thank you enough!
Thank you so much for taking the time to explain this complex subject. I am 61 and recently went for an MRI and they found some ischemic changes and explained this was parts of the brain where the oxygen was limited. Basically as you've said an early warning sign. The doctor has prescribed a statin, advised of low saturated fat diet, cut down on carbs and take more exercise. I have also been referred to neurology. Basically all the advice you have given in the video. Thank you again for taking the time to explain, the message to me is clear, look after your health, it's precious and priceless.
Yours was an outstanding, clear, understandable, powerpacked, & engaging presentation that conveys the pathogenesis of white matter disease better than the vast majority of other help videos. Keep it up! - Jim Eastep, DVM Diplomate, Vet Path (ACVP)
I had a hot on the head that required per my age a CT examination. I got this diagnosis and it scared me. My internist told me that it is quite common in people of my age 76. And a history of chronic hypertension. But I am still concerned so I watch every video that I can to inform me. You and another video has helped to educate me and make me feel better.
One of the best communicator's i've ever heard and, I'm a public speaker. Great topic and excellent information! I subscribed and shared! Thanks.
What a blessing you are Dr. !!
Thank you for speaking to this concern. My MRI came back showing white matter and all the other terminology I was not familiar with. My doctor is unavailable until next week so this was extremely helpful to gain a better understanding.
I feel blessed to hear your talk. Thank you for the great info and kind delivery.
I just shared this with my sister. Our mother passed away from the complications of brain atrophy. My sister and I were both informed we have these white spots ( my scan also showed a TIA sometime in my past) but nothing more was told about it to either of us. Thanks for this information. I’m 70 years old and rarely sprout a gray hair, so much for that information. When I was first informed, I resigned to the great possibility that this was inherited especially after learning my sister shows the same thing.
This was super helpful! I love the way you explain things in ways people can understand.
Enjoy your talks. It stimulates me. I worked in field for 35 years before an accident at work sent me into early retirement. I do enjoy this field an encourage all the youngbpeople in my life. I have had a cva and heart attack. I am a lucky woman. Stress Kills....you are so correct in this. Will enjoy your next conversation.
Just diagnosed due to crushing headaches getting worse over 2 years, now migraines.
First video I've ever looked at was yours! Thank you!
Thank you so much for this - such great information!! A recent CT scan showed some changes to my basal ganglia, corona radiata and frontal white matter and I'm waiting to get a MRI in the next few days. Listening to you is helping me panic less and be better prepared for whatever diagnosis comes out of the MRI!
Thank you so much. I found you when I was researching Statins. Exactly what you said, an MRI for another issue showed I have mild white matter disease. I am 74 and see some of those symptoms. I still work and have a active social life but I’m going to up my game after listening to you.
Thank you for the video. I have had 3 MRI’s & 2 CT scans over a nine year period and not once has my doctor or the hospital emergency doctor ever said a thing about them. I had to ask for the reports and CD’s or I wouldn’t even know anything was going on. I had to change my primary doctor of 21 years recently because she retired. I ask My new doctor about the issues that I am having prior to watching your video. She gave me a referral to see a neuropsychologist. Your video will help me prepared with any question I may have after the testing is complete. 4 month wait to get in for the testing. I learned a lot from you video and truly appreciate you for taking the time to make it.
Very informative. It's something I've wondered about for a while. Thank you.
Brilliant. How fortunate are your patients.
This video was so helpful. I will be watching more! I’m 67, almost 68 and have diagnosed with moderate small vessel ischemia!! Ver scary! I’m doing the things you said to and hopefully it I can keep it from getting worse. Thank you ❤
I’m 71 and just diagnosed with WMD from mri…. Thanks for great info. More than I got from my doc!
Thank you very much. Great presentation excellent easy to hear and understand you. I am 70 continuing study of neurology regarding my own diagnosis and wife's brain surgeries for tumor surgeries. I have brain stem injuries pons and trigeminal nerves right side of head and face. Had been quadriplegic for 2 years after hit from behind in 1991. Was unable to speak until therapy. Was able after that to earn a JD and pass bar exams. Recent surgery confirmed brain stem injuries. Interesting experience living like this. I was an Electro mechanical engineer before injury so I find neurology to be somewhat familiar logic wise. Had another neurosurgery 5 months ago to relieve compressed spinal cord at c7. God bless you Doctor for encouraging me with your teaching.
Thank you for covering this as most primary physicians just blow this off as either migraine induced or age related. I have never had such a concise explanation for what concerned me and still does at the age of 70. I was extremely active as far as hiking and exercise during my 60's but during the pandemic was less active and can tell a difference on many levels. Could you talk about the significance of pulsatile tinnitus as I have developed this in the last year in my left ear and it is driving me crazy!!!
Thank You so much for the detail analysis .
Thank you for sharing your knowledge. Much appreciated
Thanks for this information. I was participating in a study and got an MRI as part of it. I wasn't expecting any bad news because my cognitive functioning seemed okay, but then I got the alarming results of the scan. It was scary to be told there was a problem without any specifics, so your video helped calm some of my anxieties by answering some initial questions I had. It is good to be armed with some general facts and a hopeful attitude until I can get in to see a specialist.
Thank you so much for this inspiring video. Three weeks ago I experienced a violent fall in my bathroom that included a hard smack to my forehead, injuring my nose, eyebrow bone, neck, shoulder and many more areas of the body. After going to urgent care I was sent to radiology department for a CT scan. Next thing I know they say severe concussion and mild Microvascular ischemic Disease. I am 67 years old with existing memory deficit for about a year now. This diagnosis totally freaked me out. You have explained this so well, you are so kind to give the good news to me that my daily life habits can help me live the long life I have strived to live. As an artist, I have goals to paint as long as I can stand up and hold a paintbrush in my hand. You have given me so much hope now knowing that I will live to see the days where my collection of art will mean something. I look forward to continuing my daily walking routine and also working out with my PT. Thank you so very much.
God bless you. SR Wolf Studio Arts.
Thank you for your clarity on this subject. I have many questions that I’ll go back to ask my consultant.
You are such a blessing to all of us. Thank you for your wonderful, easy to understand information!
Merry Christmas and Happy New year 😊
Thank you so much for posting this video. My husband has suffered cognitive decline over the past few years and refused to see a neurologist or have an MRI. He finally had an MRI several months ago and the neurologist said he has White Matter Dementia. There is next to no information out there about White matter dementia. All the discussion and research seems to be about Alzheimer’s. Thank you for explaining this disease. I had no idea that stroke is also a risk.
Excellent!! You are a plethora of information presented in a easy to understand tone and pace.
Thank you for the very useful information, at 49 years I have just been given the news that I have white matter disease and I wasn't given much more information other than I should be careful and start getting an appointment with the neurologist which didn't help ! Your information did help to clear things and to be more calm, Im quiet healthy, sporty, non smoker, very low wine drinker , low cholesterol, low blood pressure BUT I suffer from migraines and I do stress easy....now I can take this into account in a more calm way so THANK YOU VERY MUCH!
You have just described my mother in laws symptoms to a T. Her neurologist has just ordered a MRI. This information , I believe will be very valuable to us as a family. Thank you!
Thank you so very much for this video. Words cannot describe how grateful I am that this exists. As a TTP patient who struggles with neurological issues since plasma exchange, I cannot emphasize enough how this knowledge has alleviated some of my anxiety. Understanding what is happening to me is important so I can help myself. Thank you again.
Thank you so much this best description I’ve heard on White matter disease. I ‘ve subscribed !
Great video. Thank you for speaking in plain English for the rest of us to understand.
Welcome to my world. Thanks 4 the understanding, explanations + ways 2 help it.
Thank you very much for taking the time to explain this. My wife was recently diagnosed with WMD as a result of scanning for possible balance and other issues. Her diagnosis was mild hyperentsities. She is experiencing minor balance issues, memory, multi tasking and increasing urinary incontinence problems. She is 68 and a smoker who refuses to give it up. At this time she isn't truly convinced the disease is contributing to her problems which I understand. She is scheduled for a sleep study and then some cognitive tests before we follow-up with her neurologist.
I have white matter disease caused from HBP and non of my Dr's have brought up the use of statins. I am 63 and so glad that I took the time to listen to your program today. Thank You
Thank you so much for such a clear and informative video. My MRI stated bilateral chronic white matter small vessel ischemic changes. No mention of mild, moderate or severe. Also mentioned Fazekas 1. I haven't met with my neurologist yet, but feel better prepared to ask questions thanks to your video. I'm starting improving my brain health today!
Very helpful! Thanks for the information!
Excellent video. I have been wondering about this subject for years. I really need to use your recommendations immediately as I hope it’s not too late. Thank you so much.
Love this. Thanks. I just had an MRI and have mild white matter disease. So what you say is spot on. I need to exercise more. So thanks!
64 yr old male MRI saw white matter disease. Very formative very helpful video thank you very much I appreciate you.
Thank you so much. I’m one of many asking this question.👍
This has been the most informative video I seen on white matter yet! Thank you so much for the clear and thorough knowledge, and for sure that inspiration! Mahalo, thank you in Hawaiian. I will subscribe to your Channel.
Thank you! Thank you! ❤️ I'm 61 and having migraines. Just got my results back from my MRI and I have mild white matter disease. I was so happy to come across your video! I'm not so frightened now❣️
Surprisingly good discussion for the general public from someone who is not a doctor of medicine.
Thank you for this video. I'm a 37 yr female. I was diagnosed w/mild sleep apena. I'm going to take this condition more serious.
I had a dramatic presentation of “numbness” and harsh tingle and clumsiness right arm, leg, then head and neck. Not a stroke. Told it was cerebral small vessel disease.
But it’s have continued with many parasthesias, sudden weak feelings, feeling “stoned”, sleeping way too much, episodes sea of brain fog. Illness, “stress”, heat, “overdoing” exercise all case se it to be worse.
I have searched and searched for examples in f other people with my symptoms who have small vessel disease and cannot find any examples. I’m 66, this first occurred when I was 60.
Hi Dr. thank you for your excellent explainations. I'm having some problems, so saw a neurologist recently, than had an MRI, thought I had MS, he said I had what you were talking about. Wants me to take meds. Right now I have decided to treat it only with lifestyle and possibly with suppliments. I am cutting down salt in my diet, all sugar out, dairy free, no processed foods, etc. am trying to exercise more and need to drink a lot more water. Cutting down on stress is a major hurdle. I have watched other Drs. who have helped people with Alzheimer's etc. stop and/ or reverse their condition. That is what I intend to do with God's help. Again thank you for everything.
Thank you for your informative and helpful videos.
Very informative, to the point, yet calming to us sufferers.
Thankyou.
This was a truly informative video that helps me understand my diagnosis and confident in the next steps I need to take. Thank you!
This is so helpful. I also love your guided meditations for TBI. I had a bad fall at work and my MRI also showed I have confluent white lesions, so it is tough trying to get over the dizziness and heavy headedness of the fall and now deal with the MRI results. Thank you Dr. Sullivan!
Thank you so much for this information! You do an excellent job explaining it thoroughly; helping to remove the fear and leaving me feeling empowered about it!
Thank you so much. I was in hospital recently for an unrelated matter. I had an MRI and it said 'advanced cerebral small vessel disease'. No other comments, no recommendations. I've been trying everywhere to make sense of this and have just ended up scared. Thanks to this video I now understand why my ability to multi-task has almost disappeared. Why I just can't be bothered to do the things I like to do and why I need a walking stick these days. Just knowing this would make me depressed, but your comments on getting fitter etc make me hope I can fight this thing. I'm 77 but not out yet!
I just have to say you are truly a god sent angel for each and everyone of us worried about this condition . The crazy thing is my daughter was born with periventricular leukomalaysia and now here I am at 45 (I think) & it’s now showing up in my life
Excellent. Thank you! Will share.
I was just shown my MRI. No explanation as you mentioned. Just lost my mom to dementia so I’m pretty sad to hear this is what I might have. But thanks for the tips. I appreciate it. May God bless you.
Thank you, lots of great information 👍
Thank you Dr Sullivan for this wonderful presentation. I am 68 and I recently had a brain MRI with and without contrast. There are multiple small deep, pericallosal and subcortical white matter signal hyperintensities in the corona radiata and centrum semiovale bilaterally. There is minimal diffuse atrophy. I have a follow up appointment in a couple of weeks. Your presentation was very helpful in explaining what may be going on with my brain. Hopefully my doctor will address these issues. Thanks again!
Thank you for this! I was diagnosed in my late 20s, which was about 12 years ago. I saw different neurologists. They ran tests, but no answers. Last year, I finally found out that my cholesterol was so high when I was "Morbidly Obese", it caused atherosclerosis inside the blood vessels in my brain. I was put on baby asprin, and my migraines have gotten sooooo much better (less frequent).
Thank you for this very clear explanation, Dr. Like many of the other people commenting, I have been dealing with white matter lesions for several years now. MS was ruled out, but my neurologist did continue with follow up imaging. I have three autoimmune diseases that were not diagnosed until a few years after the first sign of these lesions (Lupus, Sjogren's and CIDP). It was all very confusing to me since these conditions can cause symptoms similar to MS.
Was just diagnosed a couple days ago in ER. Thank you for this I'm 56. seeing neurologist next month
Thanks for covering this issue so well!!! Your calm and respectful explanation of white matter disease has relieved a concern of mine. Finally getting a CPAP has made a huge difference in my ability to function. Sleep and oxygen are SO important!!! Thanks again. Have a blessed holiday.
That's wonderful Debbie!
I appreciate your kind words, Debbie.
This video was so very informative. I was diagnosed two years ago with White matter disease at 52. I just had an MRI this week to see if it has progressed as I've had a pretty severe headache. I learned more in this video than I learned at my neurologist. I will be seeking a new neurologist as I now know there is more treatment and care available. Thank you so very much.
This was very helpful in calming my nerves. I appreciate the information and the encouragement to start trying to change things for myself.
Thank you god. This was so helpful.
Okay, that answers questions I've had for years! And provides some "what next?" Answers too. Wow. So much here that applies to me and why certain things are happening. Thank you from the bottom of my heart.
You are so welcome, Esther!
Thank you so much. This was an excellent explanation of the disease. I appreciate it.
excellent discussion/information thank you
I am 75 and just received my MRI results today. I went in due to tremors in my hand. I read that I had mild chronic ischemic white matter. The upside is the rest of the brain was good.
I had severe migraines from puberty to menopause but no high blood pressure, heart disease, never smoked so was surprised. I do have incontinence and some minor balance issues.
I will contact my GP and get a referral to a neurologist but your video was so comprehensive and reassuring at the same time. This type of reaching out from a specialist is not only informative but comforting. Many thanks ❤
This was so helpful
Thank you so much for covering this subject, I am 70 and just was diagnosed a month ago but do not know what stage, you have shared so much more than my primary Doctor, I have been all over the internet researching this disease, since then I have changed my eating mostly trying the Mediterranean diet, he did give me a slip for balancing therapy which is why I kept asking why I don’t walk straight, I finally got to go for a Ct Scan, and that was the result, he said it is nothing that can be done but with God there is always hope, my bloody pressure has lowered since I switched my food intake, I also joined the Y ( I am over weight). Listening to you also have given me hope, thank you for explaining so well and I am sorry for being so long, if you need to add something to me I appreciate it. Thanks again.❤
You got this! Keep going in the right direction and it will pay off!
Thank you for your explanation
Really enjoyed this talk. I have had 5 TIA's two over Easter and one after one one night but didn't know one that took me into hospital and one while I was in hospital. So quite worn out. I have come home now and have to have physio sometime and walk when I can. I do palates and go to that and cannot wait to get back. Really interesting talk. XX
This was very interesting and you explained it well. ty and the new lighting very nice.
Glad you liked it and thank you!
Thank you for this very helpful video. At 63, I was just diagnosed. Thank you!
I had a grand mall seizure as a kid and was later diagnosed with epilepsy. That was when they did a scan of my brain and found out I had white matter foci hypentensities. I just had a scan recently and the doctor pointed it out. It scared me but learning I've had it since a kid (age 10, I'm now 39), I feel like there's only so much I can do. It's still scary to hear. Thanks for touching on this topic.
I have it also. Do you mind if we share numbers. I have questions
Hello, I'm 37 and the pathologist had mentioned this on my MRI report. I have been having vertigo issues since 2014 and noticed my forgetfulness has been more than just brain fog. I normally have low blood pressure, and not a diabetic and a history of passing out since 2002. I'm hoping my neurologist will take my case seriously.
This video is reassuring though.
Very grateful to accidentally find you in the mass and variety 19:22 of “opinion” on this topic. You explain so CLEARLY what one needs to know!!! ❤ (Sydney Australia)
Glad it was helpful!
Thank you! I have watched at least 20 videos on this subject and no one make it more clear then you! Thank you so much!
Thank you Glen! That's quite a compliment!
Thanks for this doc! Really helpful :)
I’m dealing with cognitive issues. Had my MRI come back with chronic micro vascular ischemic change and mild patchy T2 flairs in the subcortical and peri ventricular. This video was helpful in understanding my issues.
i watched like 10 videos on this condition and this one is the only one that explained it to me properly. thank you
That's quite the compliment, thank you!
I'm 38 had a stroke in 2015 my MRI this week showed more white matter this exam than my last. That was the short answer I got over the phone, this video was much more helpful. Thanks
My son now 45 has had progressive white matter disease since age 32. He also has other medical issues. Do wish you the best with peace and happiness.
Tony supposedly the white matter damage is irreversible but yours got better
I thank you from the bottom of my for your kindness in giving the public information we would not have been otherwise able to illicit as easily. You’re wonderful and I appreciate you
You are very welcome! I appreciate your kind words!