Meet Marinda, Terminal Illness Told With Dance | My Last Days

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  • čas přidán 7. 05. 2019
  • Marinda Davis is a renowned choreographer, having worked on shows like World of Dance. Marinda is not predicted to live past the age of 40. Her diagnosis of type four Ehlers-Danlos has not stopped her from traveling the world and continuing to share her story through dance. Tune in to the CW on May 22 to watch the newest season of My Last Days.
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Komentáře • 394

  • @Participant
    @Participant  Před 5 lety +98

    What message would you give to people who have to face a life circumstance that seems insurmountable?

    • @mackenzieburton3522
      @mackenzieburton3522 Před 5 lety +13

      to keep going and make every moment count. to fill yourself with feeling. thank you for this video, ironically my grandmother passed away 11 years ago today and her name was also Marinda (but we all called her Rin). I miss her so much as I have now hit some huge milestones without her but this video was like her saying through you, "hey I'm still here, so keep going"

    • @mackenzieburton3522
      @mackenzieburton3522 Před 5 lety +5

      My Rin would have loved Marinda and her work.

    • @nancysmith9981
      @nancysmith9981 Před 5 lety +5

      SoulPancake let your heart dance for your feet

    • @missseveri3512
      @missseveri3512 Před 5 lety +7

      You are not alone

    • @Participant
      @Participant  Před 5 lety +3

      @@mackenzieburton3522 Beautiful!

  • @kalleygirl7
    @kalleygirl7 Před 5 lety +444

    This series has radically changed my life. Please never stop making it

  • @42042O
    @42042O Před 5 lety +219

    This is why we should just be kind to others. You never know what someone else is going through. She’s so inspiring. She really made lemonade out of lemons. I hope she makes it for a long time.

  • @kristinahabchi1862
    @kristinahabchi1862 Před 5 lety +347

    Ugh her last quote.
    "What's in your way? Move it."

  • @KRIS-sh8wp
    @KRIS-sh8wp Před 5 lety +115

    01:32 "I want everyone to remember: The thing you take for granted, someone else is fighting for." ~ Miranda Davis👆❤👏
    #Godblessandkeepheralways🙏
    #EPIC💯

  • @KatGrijalva
    @KatGrijalva Před 5 lety +143

    I have hope that she will make it past 40 💖

  • @mdb2879
    @mdb2879 Před 5 lety +183

    *I really appreciated that her story was all displayed by dancing. Never seen something this special. It made me cry because just by seeing it, I kind of feel as if I had experienced it*

    • @Hunter-zu9qs
      @Hunter-zu9qs Před 5 lety +3

      seems like you want attention by *writing your whole ass comment like **_this_*

    • @Participant
      @Participant  Před 5 lety +13

      @@Hunter-zu9qs If you don't have anything nice to say, you're not thinking hard enough.

    • @mdb2879
      @mdb2879 Před 5 lety

      @@Hunter-zu9qsWish you could do One per cent of what this lady is achieving

    • @mdb2879
      @mdb2879 Před 5 lety +2

      @@Participant thanks soulpancake for Always standing for positive inspiring feedback

    • @Hunter-zu9qs
      @Hunter-zu9qs Před 5 lety +3

      @@Participant mate, you either disable your comments or deal with it, the whole world is not going to change for you

  • @rachelhartjes313
    @rachelhartjes313 Před 5 lety +44

    I am 28 with EDS. Its incredible how so many EDSers story are so similar! You are not alone... no matter what you're going through!

  • @gailajones6798
    @gailajones6798 Před 5 lety +57

    “The thing you take for granted, somebody else is fighting for”... beautiful girl your strength is beyond words
    Thank you for sharing 💕

  • @kwilson5724
    @kwilson5724 Před 5 lety +164

    I am a dancer with Ehlers danlos, Hashimotos, POTS, and MCAS and I look up to Marinda immensely, you are a warrior, I back you up whole heartedly. Thank you for your existence and the sheer impact you've had on this world.

    • @jenmercado8860
      @jenmercado8860 Před 5 lety +7

      Just curious, how are you able to dance with POTS? Most people can't even stand. As someone who recently got diagnosed with IST I relate.

    • @kwilson5724
      @kwilson5724 Před 5 lety +8

      Jen Mercado I struggle with standing as well but I take many medications and on good days when I’m not flaring I can dance. Usually I do pass out in dance or have to sit down or lie down under a fan after every few minutes and I have to have snacks on me and lots of Gatorade. It’s hard but for me as of right now it’s not impossible. I know I’ll get worse in the future so I’m doing as much as I physically can right now before I can’t do it anymore. Last year it was fairly easy to dance and this year it’s getting a lot harder to do, but I manage.

    • @jenmercado8860
      @jenmercado8860 Před 5 lety +8

      @@kwilson5724 I'm sorry to hear that. My condition is extremely similar, but my heart rate is high no matter if I'm standing, sitting out laying down. It's a struggle, but I agree we need to make the best of our lives. I wish you the best. ❤

    • @kwilson5724
      @kwilson5724 Před 5 lety +5

      @@jenmercado8860 Thank you! On good days my resting heart rate is 90 on rough days (Or this entire month haha) has been 115 bpm even when lying down. It's a really tight balance to still dance but I try to find ways to work it in. Wishing you the best and praying for some relief!

    • @lindsaysheffield
      @lindsaysheffield Před 5 lety +2

      K Wilson SCI, EDS, POTS, MCAS, and some other stuff over here. Awesome that you’ve found a way to make dance work for you :)

  • @hannahbailey6424
    @hannahbailey6424 Před 5 lety +29

    A girl I went to school with recently passed away due to EDS type 4. (vascular) She was due to have surgery to correct an aneurysm. It ruptured in her sleep. It was so sudden and heartbreaking for our community. I wish you the best Marinda❤️

  • @tammypmartin3460
    @tammypmartin3460 Před 2 lety +9

    I love to dance as well. I have ehler Danlose syndrome, hyperthyroidism and cerebral herniation with an aneurysm. I just love how you take on life and not letting these health issues define you. You are my role model and thank you for doing this. May God keep continuing blessing you. I also love to dance but I end up dislocating my joints and I fall all the time. I also have scoilis as well. I am 52 years old now. I am totally disabled and in severe pain. I can't say thanking you enough. My aunt also had this disease and she passed away away at 46 years old and she was a dancer too

  • @valerie4912
    @valerie4912 Před 5 lety +28

    “The thing you take for granted someone else is fighting for”
    I knew I was going to cry but this pulled on all my heart strings.
    From one dancer to another.. YOU GOT THIS!!

  • @jessb436
    @jessb436 Před 5 lety +17

    "The thing you take for granted, someone else is fighting for " wow that really hit home

  • @louiseclarke2507
    @louiseclarke2507 Před 5 lety +29

    I just got cleared of not having EDS ontop if three other chronic health conditions. But the process of going through diagnosis after diagnosis has been so difficult on my family, so to her parents I commend your strength and ability to let her fly in the face of desperately wanting to hold on to her. You have given her life and love.

  • @jojustjo
    @jojustjo Před 5 lety +185

    Oh my goodness, I'm ugly crying. Thank you Miranda (and SP) living "normally" and becoming disabled at 27 was definitely my hardest journey, but I feel after 27 was the most rewarding. You just see things differently. Videos like this keep my spirit alive. Hugs, love, and prayers.

    • @trumpnicemoveclinton3067
      @trumpnicemoveclinton3067 Před 5 lety +8

      I real feel for you...I hope you gain strength and peace each day ❤❤❤

    • @jojustjo
      @jojustjo Před 5 lety +3

      When I edited, the SP ❤went away. But if you see this, thank you for taking the time to read the comments.

    • @lindsaysheffield
      @lindsaysheffield Před 5 lety +4

      Jo Withrow hang in there! I also became permanently disabled at 27 (I’m 34 now).

    • @TheTeresaFarah
      @TheTeresaFarah Před 5 lety +3

      bless you.

    • @jojustjo
      @jojustjo Před 5 lety +2

      @@lindsaysheffield, I am now 39. I'm not going to say the pain gets better. In my case, it gets worse. But I now mentally perceive the pain differently. I think I enjoy life more now because everything I see, i see differently than I used to. Life is very beautiful and amazing. Hang in there.

  • @brooklynbarrett4978
    @brooklynbarrett4978 Před 5 lety +63

    I love this series. I always finish watching a video feeling different about life.

  • @tanyastamant
    @tanyastamant Před 5 lety +13

    What a beautiful soul. I have five autoimmune diseases and possibly one more and therefore I know a little of what she is going through. My prayers are with her and all who deal with chronic and terminal illnesses and deal with pain. God bless you!

  • @purpletetrisdragon
    @purpletetrisdragon Před 5 lety +11

    I am so glad you are doing what you love, which is immerse yourself in the world of dance. I have Cystic Fibrosis and many other health challenges. I am 35 and it’s a miracle I am alive. Watching the choreography of your life moved me to tears. So much love, you are not alone. 💜

  • @dustyhart
    @dustyhart Před 5 lety +20

    "People need people" you are right Marinda, sending love your way xoxo

  • @alannah9427
    @alannah9427 Před 5 lety +14

    And now I’m crying. She is so inspirational and moving. Really touched my heart.

  • @anndaems9617
    @anndaems9617 Před 5 lety +18

    OMG she went to Costa Rica , to Spirit Dance and my daughter had the pleasure to take classes with her!!!😍

  • @adhdmonster1369
    @adhdmonster1369 Před 4 lety +17

    I’m extremely impressed by how masterfully crafted and beautiful each of these episodes are. The cinematography and score unquestionably enhances the stories of these individuals, making them extremely moving and impactful. Whoever is involved with the production of this series should be very proud of themselves.

  • @tonysopranoholdinganeedler1638

    This series is helping me come to terms with my anxiety revolving around dying. Thank you.

  • @thecrunchyoreo7545
    @thecrunchyoreo7545 Před 5 lety +51

    Living with chronic pain is something you never imagine yourself being able to get out of. Then, I see these people acheiving so much and striving to prove their illness wrong. And I'm left wondering what happens to us who can't fight the pain. Who can't go back to how our lives used to be before. I want to just find a little bit of hope.

    • @lindsaysheffield
      @lindsaysheffield Před 5 lety +11

      Grace Ellis I feel ya. I love success stories, but then people see them and wonder why I’m not able to overcome MY disabilities. As amazing as these stories are, they are few and far between. I’m just average. Some days are good, some days are bad, and I have to learn my OWN limits...

    • @Synicizm
      @Synicizm Před 5 lety +6

      12 years, and I'm still struggling with saying goodbye to myself. I feel ya. I wish I knew the answer, but you're not alone.

    • @22suzie44
      @22suzie44 Před 3 lety +6

      Thank you for having the strength to make this post. Becoming disabled is life changing & sometimes there is NO coming back or relief. We learn to live within our parameters constantly hearing ways to make it better or even fix it. Sadly, that's not always how it works.
      Perhaps we can take from these stories that even though our story is different that there are people who can make the climb and find a "new normal" that works for them. That does not make us weaker or a wimp...it makes us have to write our story the best we can, regardless.
      The daily pain that stops us is real...but the emotional impact it has is worse than any physical discomfort. No amount of yoga, positive thoughts, or self healing will ever work for some folks. Like it or not, we are not quitters and have strength that can be immeasurable.
      (Thanks for reading my mini rant...)

    • @katjoy9260
      @katjoy9260 Před 2 lety +2

      I'm left with completely chronic pain issues after I shattered my femur @ 29 I have Cerebral palsy since before birth and I was a premature baby but I have held down a part time job at 15 working with special needs kids from about age 15 to 22 not a single regret it got me to put my heart and soul into something that I still stand so strongly for I believe it possible if you are able you should work and help put your heart out and back into your community not for the $ for your experience in life

  • @meganlynn864
    @meganlynn864 Před 5 lety +8

    Although I ball my eyes out each time I watch “my last days” My life has changed. 💛

  • @nlc43
    @nlc43 Před 5 lety +17

    I love Marinda! I totally remember when she choreographed that beautiful dance piece for Dancing With The Stars that depicted her experiences with POTS/Dysautonomia, a condition that I also have. It brought tears to my eyes for our shared experiences to be amplified and to see such a beautiful interpretation of her journey. She is not only a fighter, but a brilliant choreographer and inspires me as a fellow chronic illness warrior and dancer. Thank you so much for featuring her story, and choreography! She is a beautiful ray of hope!

    • @limagaymothertrucker
      @limagaymothertrucker Před 5 lety

      Nicole Campbell I was thinking that exact same thing I was actually diagnosed with pots

  • @daniellemisin4049
    @daniellemisin4049 Před 5 lety +14

    So incredibly moving. As a former dancer sidelined by injuries I know how hard it can be to lose that part of your being...dancers feel so deeply and navigate life through dance. My heart hurts for you Miranda, but what a beautiful impact you have made on every person you come in contact with. I wish you only the very best in your journey. ❤️❤️❤️🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻

  • @naaderhasani4129
    @naaderhasani4129 Před 4 lety +14

    Please don’t stop making these inspirational documentaries, they have been changing my life 😍

  • @oliviagrace7638
    @oliviagrace7638 Před 5 lety +7

    I just shared this with my childhood friend who dances, and we had a long talk about how much we love each other and how important the arts are to tell stories. She sent me her choreography project from college that I never would have thought to ask for, and I cried watching it as much as I did watching this video. I cannot wait to continue the conversation with her. Thank you Marinda for opening conversations and inspiring people to move ‘that thing’ in their way. You are inspirational, and mesmerizing. You still dance truthfully and beautifully- even through other people.

  • @feliciachambers8559
    @feliciachambers8559 Před 5 lety +9

    She is obviously so loved. 😭❤️ she has some amazing people around her!

  • @HeatherBryant22
    @HeatherBryant22 Před 5 lety +17

    This made me laugh and cry with goosebumps the entire time. I feel the dance in my heart as a long ago dancer and as someone who has Ehlers Danlos Syndrome type 2 as well as several other major diagnoses. Thank you for this!

  • @rachelsimpson7129
    @rachelsimpson7129 Před 5 lety +26

    I just fell in love with this woman! 🙏🏻❤️😘

  • @mkay2864
    @mkay2864 Před 5 lety +10

    I am so happy I got to watch this. I am a dancer living in NYC so if you live here there's no way you don't know who Marinda is. I have also gotten to train with and be mentored by many of the people that she is mentored by including Sheila. I havent had the pleasure of being able to learn from Marinda but hope I do sometime soon. You are beautiful and brave beyond belief. I have been following for so long and never truly understood your full story. It is a beautiful and inspiring one and I hope you know how much of an impact you have had on so many lives near and afar.

  • @atozrecovery518
    @atozrecovery518 Před 5 lety +28

    I'm 46 and was told last month I have 6 months to live. I've had heart bypass surgery and 20 stents and 3 arteries 100% completely blocked. I have a cardiac loop recorder and a morphine pump to numb the chronic pain. I'm just trying to spend more time with kids and grandkids
    Even worse my 19 year daughter has 3 autoimmune disorders and dissanomia is one of them. I know I butchered spelling sorry. I pray for her wellness more than mine. 😥

    • @adyarym
      @adyarym Před 4 lety

      Hello......

    • @elisar8594
      @elisar8594 Před 3 lety +1

      I hope you and your family are doing well!! Stay strong!

    • @yfa6244
      @yfa6244 Před 3 lety +1

      I hope you and your daughter receive a miracle!

    • @whowho1881
      @whowho1881 Před 2 lety

      I hope you are well. Honestly, this is why I’m adopting. I will never pass on my conditions I couldn’t live with myself.

    • @atozrecovery518
      @atozrecovery518 Před 2 lety +2

      @@whowho1881 my husband passed away a month ago, I am just now going through his pages.

  • @valloryredner45
    @valloryredner45 Před 5 lety +8

    This is exactly how I feel. I'm not afraid of dying..just leaving my family behind. I've been sick for so long...doctors are trying to figure out whats going on. She's so strong and brave ❤

    • @kpark2024
      @kpark2024 Před 4 lety +4

      Valerie Redner I’m praying for you! Jesus loves you!!

  • @XxSakurafairy24xX
    @XxSakurafairy24xX Před 5 lety +22

    So excited to see new 'episodes' of these BUT makes me extremely sad because i hate seeing what people have to go through

  • @tinapinch7494
    @tinapinch7494 Před 3 lety +3

    I knew she had ehlers. I do too. It's genetic but it can manifest in some people. I have classic type as well as type 4. My heart is OK so far. They don't think it will kill me but it is still very painful to live with. I dislocate everything except my elbows. I was adopted too. Thank you for sharing our struggles. People don't get it at all.

  • @jnanashakti6036
    @jnanashakti6036 Před 5 lety +28

    Geez Louise, SoulPancake... can I have my heart back? You keep stealing it with all these stories. Second thought, take my heart. You do good things with it.

  • @journalingwithtam
    @journalingwithtam Před 5 lety +4

    Watching the dancers portray her story while she told it, gave me chills!! But her strength. Nothing but God! 🙏

  • @joelarama
    @joelarama Před 5 lety +8

    EVERYONE needs to watch this video. Miranda is a true inspiration to so many. God bless you beautiful hoomin. X

  • @madison8568
    @madison8568 Před 5 lety +13

    I have type 4 of EDS as well. Presentation of EDS in general patient to patient with every type of EDS is unique and the severity can range from very mild to very severe. I also got sick around puberty when I was 14. Now here I am 6 years later with a very severe case of EDS so severe doctors think something else is going on.
    I have a central line (IV essentially in my chest) that gives me IV nutrition dripped into my heart, two feeding tubes (G and J), and an ileostomy (a bag of my own poop attached to me). I have 25 other diagnosed co-morbid conditions and take 20+ medications a day. I wear braces to keep my failing body from falling apart completely. I will have all of devices for the rest of my life however long that is and I am ok with that. If this is best my health is I am okay with that. I am ok.

    • @sandradalton1611
      @sandradalton1611 Před 5 lety +1

      You sound like such a strong soul. Prayers for you. 💘💘💘

  • @LuneSaavedra
    @LuneSaavedra Před 5 lety +6

    She feels like the center of the universe. My god, this video is so refreshing to watch.

  • @rosamorel9621
    @rosamorel9621 Před 5 lety +9

    Every time I watch one of your documentaries; I learn and learn more and more about life. To the point that my depressions are gone, and I'm accepting whatever I'm going through. Liking it or not.
    Thank you. Hope she gets to accomplish her dreams with God helps.

  • @phoenixshultz9580
    @phoenixshultz9580 Před 5 lety +95

    Its these people that got me a diagnosis this early. I'm 15 and I got diagnosed. I have type 3 EDS. Instead of it being quick. It's slow. Same prognosis but prolonged. I know her pain. I feel it. Only someone with EDS truly understand this

    • @tay2944
      @tay2944 Před 5 lety +1

      Phoenix Shultz I’m so sorry

    • @FiMilton
      @FiMilton Před 5 lety +15

      Phoenix Shultz type 3 is not like vascular EDS and very likely won’t kill us (I have it as well). I hope you find some ways to help you cope with the pain. 💖

    • @alannah9427
      @alannah9427 Před 5 lety

      Phoenix Shultz be strong, you can do it.

    • @Ishuuuxix
      @Ishuuuxix Před 5 lety

      ❤️❤️❤️🤗U will be OK promise

    • @knuddelkatze452
      @knuddelkatze452 Před 5 lety +5

      Type 3 isn't that bad. Have it myself. Just learn how to cope with the progressing pain.

  • @thehuney56
    @thehuney56 Před 5 lety +5

    Oh my gosh I'm sobbing. I really want to see her production. I love the strength and drive she portrays as if she's not constantly in pain. Its....so beautiful.

  • @MissJemimah254
    @MissJemimah254 Před 5 lety +12

    The thing we take for granted someones else is fighting for soo true

  • @mythirdchannel
    @mythirdchannel Před 4 lety +4

    what a woman, wow, just wow. I can't imagine going through all of that, and still find the strength.

  • @MrWildapil
    @MrWildapil Před 5 lety +20

    Thank you, Marinda, for sharing and being so open and vulnerable.
    Justin, the quality if this particular episode touched me deepest. I am not sure what it was, perhaps the context of dance reaching places in my brain that hadn't been exercised before. For that, I thank you, too.

  • @rebekahbridges-tervydis5054

    Terrific. I love storytelling thru dance!

  • @kyatomhave6080
    @kyatomhave6080 Před 5 lety +11

    Oh my gosh Justin! You’re so sweet toward every single person in this series and you are making such a difference in the way I view my life. Thank you for this... and for making such a difference and for introducing us to these wonderful people.

  • @judylee3589
    @judylee3589 Před 4 lety +2

    SO, so very beautiful. The dance touched my heart, her heart touched my soul and her friends and family touched the world with this story! Thank you Miranda!

  • @AHillson1
    @AHillson1 Před 5 lety +4

    this hits close to home...I see your struggle on a near daily basis here...as a child, a set of twins lived across the road, more like sisters as they were ALWAYS over...9 years ago we lost one suddenly, days after giving birth to her first son and 5 days following my own birthday - aortic rupture, in the car, with her twin sister beside her. End result..ED4, and soon after the discovery her twin had the same. It changed everything, no more sports, constant visits and tests, a little boy growing up without his mom yet knowing what his mom would look like in his aunt's face, and the constant worry K could be gone in an eye blink just as her sister was....

  • @chibaby0306
    @chibaby0306 Před 5 lety +9

    Gosh this gave me so much goosebumps, miranda you r such a queen and a beautiful angel. Thank you for sharing your gift. The dancers are absolutely phenomenal! !! It's also amazing how she has so many positive friends around her!

  • @marioannamarioanna1070
    @marioannamarioanna1070 Před 5 lety +24

    I was watching for maybe 3 minutes and I thought: this must be EDS. I also have EDS. Officially I have the better type, but I am bedridden for I think 7 years now (and I mean 24/7 bedridden) and my intestines aren’t ok either. Cannot eat, cannot go to the toilet myself (my bowel doesn’t work well) and EDS has lots of comorbids for most patient. So dysautonomnia etc is kind of part of the EDSyndrome. And allergic reactions due to mast cell problems are common as well. It is very good that EDS is at the map lately. Cause doctors often miss the diagnosis. I hope Marinda will live for a long time and I will thank her for the dance. Cause it is perfect. And it tells the story in a way which is more easy to understand for other people. So thank you for this documentary and thank you for the dance Marinda!

    • @abigail607
      @abigail607 Před 5 lety

      Marioanna Marioanna Why are you bedridden? I have eds too, and at some point you have to make the choice to get up and try. You have to recondition your body. I’m not trying to be mean, but you will live in a bed for the rest of your life until you die miserable if you don’t make a decision.

    • @marioannamarioanna1070
      @marioannamarioanna1070 Před 5 lety +4

      Abbie W I don’t think you are mean, don’t worry. You just didn’t have enough information to understand. I didn’t write it down because it is a long story. But I have worked hard for years and years. Trained a lot and I still do. I believe in use it or lose it. Despite having lots of other illnesses as well (like Crohn’s desease, Sjogrens, a tumor and so on) I didn’t stop me from training, walking etc. Even when I had my wheelchair I did as much as I could and even more. But my life wasn’t that easy. I am not a person who puts problems outside, in contrary I feel very responsible, but fighting the government for almost all I needed pulled a strong bill. My doctors helped me, the judges supported me a lot, but my situation wasn’t common and I live in a country where everything is caught in rules. So not fitting the boxes gave lots of problems just to get the aid I needed. And with all my diseases especially the EDS overloading the body was destroying. And the overload was huge .
      I feel lucky because my body did a good job for a long time and my spirit kept alive. I had a very good social network, good doctors, good nurses and not to forget: good judges. But it is a pity that I have to fight a lot just for basic things. My doctors were proud of me for staying optimistic and training how much it hurted. The only thing I thought was: use it or lose it so I was afraid to stop exercising. But then my intestines, stomach and bladder stopped. The pain was no longer under control. My lungs gave problems and after I think 30 years of persevere and enjoy life I had to choose: an social life from out of my bed or a life that would consist uit fighting, exhaustion etc. And for me being a social, caring and loving person was the most important thing in life.
      But, I still exercise, and I still fight for better laws so that people after me won’t get in the same trouble when they don’t fit the boxes. Cause I think it is important to have mattered....

    • @lindsaysheffield
      @lindsaysheffield Před 5 lety +1

      Marioanna Marioanna ahh, gastroparesis is hell...I’m on blended/liquid diet. My bowel/bladder issues are from a spinal cord injury but I have a bunch of autonomic and immune diagnoses as well...best of luck to you!

    • @gijanine3701
      @gijanine3701 Před 4 lety +3

      @@abigail607 it's not like being bedridden is a choice. And eds is different in everyone so don't compare your experience with theirs

  • @mae._.7676
    @mae._.7676 Před 5 lety +48

    I have EDS type 3, mine won't kill me but will and has made my life grieving what I could once do. I can't raise my arms above my head. I can't do any sports or even go to the gym. EDS is underdiagnosed especially type 3. It took me 16 years. We need more awareness

  • @violette80
    @violette80 Před 5 lety +7

    Marinda, you are amazing!!! And your parents are lovely! Thank you for being such an inspiration 💕

  • @missmeowsby
    @missmeowsby Před 5 lety +3

    I have hEDS, a different type from Miranda's, and am so happy to have EDS brought into the spotlight. This made me tear up. The struggles and associated illnesses that come along because of EDS are real and difficult. Thank you for sharing her story.

  • @TheNewMailLady
    @TheNewMailLady Před 5 lety +2

    The dancing made me feel like I was really going through your life Miranda, the ups and downs, the pain and torment, the whole thing. You are an amazing woman with amazing friends, family, and support. I wish you the best of everything life has to offer! 💙💜💙

  • @theSarahendrix
    @theSarahendrix Před 5 lety +24

    Beautiful... I'm speechless. Sending so much love and admiration from France

  • @misterimeg
    @misterimeg Před 5 lety +3

    I am speechless. This really touched my heart. Wish you all the joy and love for the rest of the life that the world could give you. ❤️❤️❤️

  • @ghostmoss8158
    @ghostmoss8158 Před 5 lety +3

    When you have EDS it’s like you’re supposed to run from your pain, hide your fear, distract yourself. But maybe it’s okay to run to it, not away. I’m amazed by this art & her not running from it. I’m so glad I got to see this video.

  • @moyzies
    @moyzies Před 5 lety +6

    I was diagnosed with Ehler's Danlos Syndrome type three last year at age 19.
    It was a diagnosis we fought for, not so much in specific but just we wanted an answer as to why certain things were happening and why I wasn't able to do some of the things I used to. I was relieved to finally have a name for what I was dealing with, but at the same time I had to spend about a month mourning over the loss of ability to do the things I was once able to do so well, the things I loved so dearly.
    Of course now I focus on the things I still can do - even the things that might require a little assistance. I know that I have a rough road ahead, and that there are complications or illnesses that are correlating to my EDS that I will face or am facing even now, but I'm not going to let that stop me.
    We are strong. We are powerful. We are Zebras.

  • @LillianJEllmore
    @LillianJEllmore Před 5 lety +2

    This woman is a fighter and I am so moved by her story! Please keep choreographing because your dance hit home for me on so many levels!

  • @chunichoden3926
    @chunichoden3926 Před 4 lety +1

    she is beautiful the way she is . I am so touched.

  • @krazyoldlady.989
    @krazyoldlady.989 Před 2 lety +1

    I really want more stories, more episodes of "My Last Days". I suffer from stomach ulcers and have bad flare ups and acid in my throat, my doctor said it will more than likely cause throat or stomach cancer and I've been going through this for some years and the pain is crazy but I'm trying to prepare my kids for when i do get it. Throat cancer kills pretty fast so i know they have to be able to talk and ask these now. These types of shows make it easier, make it possible to start that conversation. We ALL are going to die one day but i think we need to talk about death when we're living. I just love and hope this show comes back, and when My Last Days come i can share my story.

  • @misterscruffle
    @misterscruffle Před 4 lety +1

    im so incredibly moved and inspired by Marinda's story. Thank you for being alive and for being you and sharing your life to help others by inspiring.

  • @Pain-zg5pq
    @Pain-zg5pq Před 4 lety +2

    God this had me in tears, good people do exist.. her story shook my soul man

  • @kilmoturtles1
    @kilmoturtles1 Před 5 lety +104

    I hope she was able to forgive her mother.
    She will need to realize that her mother lost her way. Her mother may have been a dancer in her soul,too, but she lost her way in life and was never able to find who she really was.
    People do not become addicts because they want to ruin their lives and the lives of others around them, they become addicts because their brain craves something it is lacking.
    It's also a vicious cycle, because you take the opiate to feel better about the guilt of taking the opiate and all the other things in life that you feel you are a loser at.
    Her mother stole happiness from tomorrow for today when she started taking an opiate - and that is never a good thing, because you will have to pay all of that back at some point, and many cannot afford to pay it back.
    I wish this girl luck.. I feel I see a spirit that will DESTROY what the doctors have said... she will go WELL BEYOND 40

    • @abigail607
      @abigail607 Před 5 lety +2

      Jim Smith You can’t make that prognosis. You aren’t a doctor, let alone her doctor. Don’t make things up, you can’t justify that.

    • @MARINDADAVIS
      @MARINDADAVIS Před 5 lety +20

      She has long been forgiven. :)

    • @ARTSIEBECCA
      @ARTSIEBECCA Před 5 lety +3

      @@MARINDADAVIS that is awesome!

    • @ReineDeLaSeine14
      @ReineDeLaSeine14 Před 5 lety +1

      It’s also possible her mom had EDS and didn’t know.

    • @thelegendofzoey
      @thelegendofzoey Před 5 lety +3

      Abbie W oh stop. It’s called being positive. Pull the stick out of your ass.

  • @JulianVegaMerisi
    @JulianVegaMerisi Před 4 lety +1

    The Music, the dance, everything is so moving, Im suffering from very deep episodes of Anhedonia right now, after having some issues with alcohol withdrawal and this definitely moved me, THANK YOU!

  • @BeyondMezure
    @BeyondMezure Před 5 lety +2

    What a beautiful life you just shared with me in a matter if minutes! Amazing human being, brave and fierce. What a testament of perseverance!

  • @lilwackadoodle
    @lilwackadoodle Před 5 lety +3

    Well it's not even 7am and im bawling. So much beauty here.

  • @daksmom1999
    @daksmom1999 Před 5 lety +2

    Absolutely powerful video. We all should have her passion for life like she does. We all should push forward with life when faced with adversity, like she does. Bless Marinda.

  • @heidimiele6835
    @heidimiele6835 Před 5 lety +4

    I am so profoundly moved and touched by your strength and your tenacity from life. My heart aches for your situation in the trials you’ll be facing until your last days. But please know this we were created by a loving God who would love to except you into eternity through what his son did on the cross. I pray that you know and feel how truly loved you are by your creator.

  • @Dina-ew1pk
    @Dina-ew1pk Před 4 lety +2

    The thing you take for granted others are fighting for. That is some powerful stuff 😥

  • @Judy122550
    @Judy122550 Před 5 lety +2

    Thank you for this powerful video. I worked in a pharmacy for 27 years I seen people live & out live what their diseases said they should. You have wonderful loving parents & so many people loving you . ( Judy )

  • @jessamonet2634
    @jessamonet2634 Před 5 lety +3

    Beautiful in every aspect. Thank you for sharing your story. 🥰😘

  • @origamibird5902
    @origamibird5902 Před 5 lety +1

    it always makes me so sad when i see people's stories that are terminal, they have so much to give... so much more to live for, it always makes me think of myself and how ready i am to die... not in a sad sense but because i am saved and i know eternal life is awaiting. bless your soul and all you do in this life for everyone.

  • @tjastrow1976
    @tjastrow1976 Před 4 lety +2

    What a beautiful soul! Much love Miranda

  • @tmd6625
    @tmd6625 Před 4 lety +6

    Aloha fr 🌋Hawaii,
    Brilliant series.
    " The only certainty in life is death."
    "Live life to the fullest for we only live once."
    Mahalo, Thank you for sharing this video.
    T.🌺

  • @susuoftexas7460
    @susuoftexas7460 Před 5 lety +5

    You are a beautiful, inspiring strong woman thank you for sharing this with the world

  • @melukaussie7128
    @melukaussie7128 Před 5 lety +3

    Very inspiring, thank you for sharing your story, you are such a beautiful soul!

  • @loree72
    @loree72 Před 5 lety +2

    Wow amazing! bless her, her parents and friends!

  • @C.kirk1287
    @C.kirk1287 Před 5 lety +2

    You are my hero sweetie ❤️ I hope you get to see this beautiful message and know how much strength you have radiating through your story 💪🏽❤️ You are sooo special ❤️❤️

  • @annalise1139
    @annalise1139 Před 5 lety +2

    18:05 “you guys, did that just happen?” Lolol made my heart smile

  • @amyb7648
    @amyb7648 Před 5 lety +2

    What a beautiful video, what a beautiful person Marinda is...she is amazing ❤❤❤

  • @laylenhope9327
    @laylenhope9327 Před 5 lety +28

    I have ehlers danlos and dysautonomia and I was adopted, my biological mom was addicted to drugs and was also taking them while pregnant with me. I have a different type of ehlers danlos, so it’s more manageable, but it’s interesting how similar my story is to hers. I wish her the best

  • @AW301517
    @AW301517 Před 5 lety +1

    I have EDS type 3-she has type 4. So many of us have been dancers and such...good to seee a documentary shining a light on this horrible disease too many of us are born with. Happy EDS awareness month!

  • @TheAgeofFabulous
    @TheAgeofFabulous Před 5 lety +1

    I love this story. I hope Marinda has the best life. I have hypermobile Ehlers Danlos Syndrome (formerly known as type III) and I understand a lot of what Marinda goes through on a daily basis in regards to pain the physical ailments. I walked into work today with a bone in my foot out of place and the only way to get it back into alignment was to continue walking on my foot. The pain feels almost as bad as breaking your foot, I know because I’ve broken the same foot. Vascular EDS has the shortest life rate but a life with EDS sucks. Any type is a life sentence of pain. I know I’m going to get Hashimotos, it’s not if, it’s when. My mom is the one that gave me EDS and I’ll be getting Hashimotos as well. I could list my surgeries and reconstructions, including my face - I call it my 2013 model. EDS, I feel you Marinda. I feel for you.

  • @itsjustmyopinionbut1671
    @itsjustmyopinionbut1671 Před 5 lety +2

    GAVE ME CHILLS, OMG THAT DANCE THO ❤️

  • @kiiraadams261
    @kiiraadams261 Před 5 lety +3

    So beautiful and inspiring xx

  • @caramelkisses8857
    @caramelkisses8857 Před 5 lety +2

    This is a gorgeous dance. It’s breathtaking ❤️

  • @jfaria77
    @jfaria77 Před 5 lety +2

    Beautiful!!!!!🙌🙌🙌🙌🙌🙌

  • @janetatum8966
    @janetatum8966 Před 5 lety +3

    I remember seeing Merinda on DWTS! I have EDS. Seems like hEDS. But awaiting genetic delineation by a geneticist to rule out vEDS or other form of EDS. I also have Dysautonomia (POTS), ME/CFS, etc. What a fighter and awesome individual! Best to you, Merinda! We need more research and treatments for chronic illnesses so awesome people like you can live LONG and productive lives!!

  • @Specialbonediet
    @Specialbonediet Před 5 lety

    I was diagnosed with EDS type 3 at 13 and it changed my life completely, I don’t live the way I used to, and in some ways it’s a good thing. I hope I can become so hopeful and come to terms with myself. Keep going, it’s worth it

  • @kimjackson7810
    @kimjackson7810 Před 5 lety +2

    This story....that dance....this woman......💜

  • @MH-fv1ib
    @MH-fv1ib Před 5 lety +1

    I looked up what EDS was because I was like I am not getting enough info from this video. But man do ppl go through a whole lot from this. Her courage makes it worth knowing you can be that determined in your mine to keep going. Her last statement touched my heart. I will move it out my way. Imma go accomplish my dreams and make them reality. God Bless you Miranda. I enjoy dancing a lot, never took a class but expressing how you feel through it moves your soul. 🙏🙏🙏🙏🙏🙏🙏.

  • @marydalton5851
    @marydalton5851 Před 5 lety +1

    Such an inspiration !! I will be watching DWTS looking for you 💞

  • @Sierralovescharles
    @Sierralovescharles Před 5 lety +5

    Sending good vibes and love to you💕

  •  Před 5 lety +3

    Exquisite living! Thank you for inspiring me.