Chronic Pain: How YOU Can Help!
Vložit
- čas přidán 18. 05. 2016
- ((OPEN ME))
Don't forget to Subscribe to my channel
I have Fibromyalgia which is an unpredictable, challenging condition - for myself and the people looking on.
Here are 11 Tips that will hopefully enable you to help someone who suffers with pain. These can be applied to people with back & neck problems, sports injuries, herniated disc, arthritis, neuropathy, fibromyalgia syndrome and myofascial pain syndrome.
Please leave Comments/Feedback below! :)
Yvonne x
Thank you so much, Yvonne, for this video. I am 45 and have had Fibro for most of my life, and nobody gets it, even when I explain. My mom gets it better than my dad; my dad just gets angry at me when I sleep all day. He doesn't understand that when my body says "No" to getting out of bed, there's nothing I can do about it but to stay in bed. Sometimes I feel all alone and misunderstood. Thank you for posting these videos---they make me feel less alone.
You are amazing .helping us all around the world.I am 68, woman , who is just like u in fibro and in personality. I will use all that u say.I will pay it forward with others❤️❤️
this was actually really validating. I don't know anyone with fibromyalgia really and i tend to feel like the things i experience are somehow my own fault or me being silly or something. It's hard to explain, but this helped somehow. Thank you. oxox
I think I get you... I used go through phases of questioning myself, my pain tolerance etc and just thought I should suck it up and stop complaining...but now at least I have no guilt or shame...glad it helped in some way. It's a pretty f*cked up condition😒😒😒
Ah, this is so helpful! Going to show it to some of my friends and family members. The last one is especially imoportant for me I think. I don't have the same energy as everyone else to stay out all night and the ability and acceptance to go home has always been such a relief to me at those times!
Yayy! I'm glad. Wouldn't it be great if we lived in the same country and could go partying together?! Guarantee we would become so in sync with eachother. #FibroFriends Te he he he😂
wow u are a godsend,only stumbled over yr videos this morning(been up since 3) and it just makes such a difference to sit and listen to someone who is experiencing what i am.
i was diagnosed 6 yrs ago at the age of 32 after a brain operation and my life changed completely, i must add i have a very loving and supporting family that "try"to understand my condition but never fully will unless they experience it (which i hope they never have to), so its refreshing to me to hear someone who completely understands all that this "life sentence" disorder does to a person.
thankyou and keep up the great work.xx
Hi lyndsay! Thanks for leaving this lovely comment! If you have any video requests be sure to let me know. Sending you all the very best :) Yvonne xx
You're definitely spreading awareness, and even more importantly, you're enabling empathy: even though this video talks about what friends and family can do, it also makes people appreciate what the fm sufferer must be going through in order to need this kind of consideration. ...
P.S. Again, it's great to see your positively energetic presentations demonstrate how you're overcoming the burdens yourself--it must be absolutely inspiring to those who are earlier on the path to health.
Your feedback is so much appreciated!! And brings me support too :)
Thats spot on we want empathy not sympathy which I think quite alot of people think we want.
So succinctly put, excellent advice for anyone who knows someone with chronic pain.
Thank you - I tried to target people who not only have fibro but just CHRONIC PAIN and how somebody in their everyday life can help! I'm glad you found it so helpful :)
Can you please please please make a video about your experience getting diagnosed? I've been chasing a diagnosis for 3 years now, only just learned about fibro recently and (I swear I'm not just looking for any problem to hold on to) feel I've found my next conversation with a doctor (once i get my health insurance back in 2 long months. I've felt so many times in the past that no one believes me when I've said this overall pain and fatigue is not from lack of self care or perseverenece. I would appreciate it ever so much. -Kelsey
hey kelsey!dont worry AT ALL i believe you and your horrible experience of pain & fatigue. im not sure a video on that will float but i will DEFINITELY consider it. i was lucky because a pain specialist i saw was excellent. my advice would be to see a *specialist* (rheumatologist/pain specialist) not a normal doctor. dont be put off if you find someone who doesnt seem convinced of fibromyalgia as most doctors would be. you still get the odd specialist who isn't up to date at all.
Thanks for sharing! I'd love to know how you did your makeup too, beautiful!
Thank you so much honey 😘
Finding Purpose in Pain wow yeah just ask about someone’s makeup when there talking about chronic pain?
Hi I have fibromyalgia 3 years high level pain everywhere , I think I've had every medication to help Fibro am I winning probably not , I've just weened of butrans ,, oxynormme and trying pregablin and it's helping I believe which is a miracle for me I have a high tolerance with medication , I'm wanting to know how I can control the horrible food cravings on pregablin , I've been watching ur videos on Fibro u are very knowledgeable and straight to the point
thanks for the feedback. i actually have some videos on binge eating. some of what i say can apply. food carving sare very hard to tackle, especially when it is medication induced.what sorts of foods have u been craving?? xxx
hi thank you for getting back to me , carbohydrates and sweet food etc and im on 600 mg of pregabalin the urges are very strong i have put on a stone in 4 weeks , how are you so positive the pain really gets me 24/7 hope i can get to a place where you are one days x
honestly im not positive the whole time - pain wear u down no matter what. (u obvs know that). bu i promise that u will get to a point where the better days are sooooo much more meaningful and u appreciate doing really simple things when u arent in such bad pain. hang in there and try to be kind to yourself. i know the whole weight thing in itself can be hard....xoxox
So funny!Nobody cares about anyone this much to consider what you say
shahilagh 😞😞😞I’m so sorry you think that. I do agree that it’s like that for the majority of people...but the people closest to those suffering should care enough,if they truly love you. And then there ARE rare people who would do this for anybody who they know is suffering. I know I would, I truly would
YvesyM ideally yes but not that ever happened to me. I wrote another comment on one of your videos. Hope you r well