WEEKLY VLOG | I have struggled this week | Gastroparesis
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- Äas pĆidĂĄn 24. 08. 2024
- Hey everyone,
Firstly, I just want to say I am soooooo sorry for uploading this late, I ended up in hospital on saturday which will be explained on my latest vlog and I only feel human today!
Also secondly, I am so emotional in this video hahaha honestly idk what came over me this week, I think just stress and girl problems.
Really hope you are all ok and catch up really soon!!
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Instagram: Beths.battle_
Facebook: Beths.battle
Email: beths.battle@outlook.com
PO BOX:
Beth Gallery
City House
131 Friargate
Preston
Lancashire
PR1 2EF
Speak soon â€ïžâ€ïž
I know you've uploaded this a few days ago now but a tip for overnight feeds/fluids: tape the extension to your skin and the giving set to your pajamas, this way even if it gets pulled there's two securing points having to come undone before your tube is at risk of being pulled. It's highly unlikely that everything would come apart through one night! I used to do this at the beginning and now I only need to tape my tube to my stomach to make me feel secure xx take care
Thank you so much!! Someone mentioned to me about getting some type of medical tape which Iâve ordered from the GP, I canât for the life of me remember what itâs called though đ but thatâs a really good idea because I didnât think about doing that, it would make me feel so much more relaxed. Thank you! â€ïžâ€ïžâ€ïž
Love the new intro đ sending lots of love!
Thank you so much!! Hope you are okay xxx
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xxxxxxx
With the pulling out at night. Iâve been in and off nj tubes for years and I use to attach the tube to my top with just like a hair clip. Like the claw type ones so doesnât damage the tube but I felt like it wasnât so freely hanging if that makes sense! It helped my mind of it just being free and me wrapping myself in it or what not x
Thats a really good idea! I think it's just about putting your mind at ease to make you feel better, because a lot of the time I know it's just in my head but I can't get rid of the thoughts lmao. I think I will try that!! thank you xxx
Beth Gallery yeh I hear ya. So much of the time itâs just in our head but yeh the clip one really helped me for sure cuz it just didnât feel so loose and free. Felt more protected I guess :) hope it helps x
I sorry you ended up in hospital. I find my pain is much worse with my period too especially hips and back. I hope you get better soon. Take care and be safe
Thank you!! Iâm feeling much better now. Itâs so strange isnât it I really donât know what it is that causes it when Iâm on, I wish I knew but I donât think it can be controlled đ«đ« hope you are ok!! Xx
Periods do weird things to body. It is lovely to be a women (not) sometimes haha.
Not doing too bad one day at a time
Keep going â€ïžâ€ïžâ€ïž
You too x
I canât remember but Iâm pretty sure on one of my pumps I once had I held down the prime button and it worked faster too :) but itâs been a while so could be wrong x
On this abbot pump you can press the prime button and it does it automatically for you but it still takes forever :( but I know there are a lot of different pumps with other companies that are a lot faster!! I used to be with another company (Not Abbot) and it was much faster! xxx
Do you have EDS as well Beth? Just occurred to me as I have EDS, Gastroparesis, Enteroparesis (Bowel), Part paralysed bladder, pancreas & gallbladder (have peg-j tube, spc catheter, Bowel irrigation). Bad joint pain from subluxations & the odd dislocation, autonomic neuropathy, POTS, ME/cfs, Lyme Disease, etc etc. Where did you get your intro tune from? The caravan/home looks cool a nice blank canvas to decorate how you want it. The Nutricia giving sets will prime in a similar way/you can by pass the giving set in similar area. As a frequent hospital flier lol 40 surgeries in 10 years, sick most of my life hang in there chick I feel for you lots of love â€ïžâ€ïžps. If you pm me Iâm happy to send you some grip-lock dressings to tape your tube extensions down (Velcro dressings) to stop movement also clipping rest of your extensions & giving set to your pj top with Tubie clips helps too I use the medi-derma S barrier wands for my tube site. I feed 20 hrs via pump and Iâve never pulled my tube because of the grip-lock dressings ;) can give you some tips about being connected at night as I always am for the last 2 years. I hear you about the feeling sick of being sick. xx
You've had so many life changes n with not feeling well im sure it would mess with your feelings. You're at the end of your rope..could that be what you were trying to say earlier? Hope you're feeling better soon. Take care.â€
I think that's what I was meaning to say, I sometimes say things and then I stop and think... that made no sense... hahah thank you so much Cathy hope you are ok!! xxx
Have they ever talked about doing IV hydration? Also, could your tube be too small for your stoma? Could that be causing the leaking? Or maybe your balloon doesnât have enough water in it? Just throwing out some ideas.
I've heard about this before but I've never really looked into it/heard much about it! Is it easy to ask for? They checked my tube around 3 months ago and measured the size and said it was perfect so that's not the answer unfortunately :( I wish it was haha so it would be easily sorted! and the balloon I've increased the water behind it and it still seems to leaking! Hope you are okay xxx
Miss you , you have been gone for a bit. Hope your okâ€ïž
Thank you Bob â€ïž
Oh wow u say so many things like me babe. I always say messy home and messy mind and it messes with yr head and throws u off big time. I also been in that place of I'm so sick of being sick as I have been so unwell for a while now, every day is bad enough anyway but I just feel like everything is getting worse and I'm not getting back to my base unwell đąđ€đ·.
Awww can't wait to see u guys in yr caravan. I can imagine it can feel quite lonely as yr not with yr family and the dogs and with James working. Bless u. Rhen have ur hormone on top of it and everything hits so bad and anything makes unwant to cry.
Oh bless ublove needing more fluid, u do so well, me when I do run fluid.... omg đ€ą so bad and can go faster that 20-25ml and hour. So hipe u do well with the extra fluids lovely, and hoping no bad dreams or thoight being on yr pump through the night.
I was doing night feeds and I was so scared as dean don't stop moving, he moves fast and will grab things. It went OK as I staying up on 3 pillows but I switched to day feeds.
Oh bless u lovely sont like seeing u so upset sweetheart. If u ever want to chat u can message me. I been in a bad way and a bad place so if u want talk things over I'm.always here for u lovely.
Oh and James is quite quiet compared to me when I do play COD, but not been playing as been far to unwell and just not moved even when I'm busting for the toilet lol. Dean was walking me to the loo. I cant fit my walking in the blood flat and can't wait for bungalow.
I bloat when running fluids also. My body hates water.
I have pcos and suffer os extremely bad with cramps and it really make all my other conditions so much worse đ and I'm a big softy anyway but I .so bad at that time of the month.
Oh with ubtjere lovely. My hair needs washing but we could on manage to get in the bath today. Hair will come another day..... đ€đ»đ€đ» soon I hope loo xx
Deffo got to laugh or will deffo cry. Xx
Sending love and healing to u babe and wrapping u in a big bubble of of calm, love, light and healing and hoping some better days come soon for u xx đđ
Can you not do a higher rate of fluids during the day or bolus water?
I tried to run it at a higher rate and omg it was such a bad decision it made me feel so sick and I had the worst stomach ache đ€Ł because it goes into my bowel I have to do everything soooo slow but Iâve been putting extra water in when I do my flushes but Iâm gradually trying to build up my rate xxx
I thought you would of tried that I understand it usually 1ml/hr every couple of hours or even days. Sometimes the body does silly things for no reason. I hope you are feeling better soon and get back to baseline stability soon if not better than baseline. Chronic illness can be a pain in the posterior at times and it is ok not to be ok. Take care