What has happened with my health resulting in hospital - PART 4 UPDATE - TW: WEIGHT LOSS/Emetophobia
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- čas přidán 24. 11. 2022
- Hey everybody,
Hope you are ok!!
TRIGGER WARNING THROUGHOUT VIDEO WEIGHT LOSS/Emetophobia
Part 1 Update:
• What has happened with...
Part 2 Update:
• What has happened with...
Part 3 Update:
• What has happened with...
I hope this vlog finally explains everything. I have officially been diagnosed with Intestinal Failure. It's due to rapid transit in my small bowel which is now officially 9 minutes. I have extremely slow transit in my stomach due to my Gastroparesis which we knew about anyway, rapid transit in my small bowel and then slow again in my colon.
Unfortunately there is no treatment at present, however I am remaining hopeful and I can also be looked after by the IFU unit in Manchester.
As I said in the video, I was also told it's impossible for me to have SIBO, due to the rapid transit so it's more than likely the additional symptoms was the Fungi and Candida that was confirmed.
Thank you all again for how amazing, supportive and kind you have been! It's meant so much to me and has really put a smile on my face.
Hope to catch up with you really soon.
🌟 Find Me
Instagram: Beths.battle_
Facebook: Beths.battle
Email: beths.battle@outlook.com
PO BOX:
Beth Gallery
Box 525
City House
131 Friargate
Preston
Lancashire
PR1 2EF
Thank you from the bottom of my heart to be this incredible Human Being, you will probably never know all that you give, through your words, your humanity, your wonderful soul and so beautiful heart. It is incredibly sweet to see your adorable family including "my" dear James of course. Thanks to be Thank to exist Beth. 🌹🌹🌹
Beth you are so strong I have just been diagnosis with Gastroparesis they are trying to get a treatment started for me.i am so happy you found out your good news and are gaining weight . Please keep me in your prayers I will have you in mine too.
You must be relieved to finally get a true diagnosis. Its frustrating having all these doctors telling you all different diseases it could be. I feel for you as you described terrible stomach pain n losing so much weight. I just had that happen with excruciating pain n losing so much weight. Although I have something way different than you, as I said I felt your pain with every word you said. It's good to see you're getting better n soon will go home. Sending healing prayers 🙏 ❤️ take care.❤️❤️
Thank you for being so vulnerable with us, Beth. So sorry to hear what you’re going through, but so glad to hear you’re feeling better on the TPN already! Your bravery is admirable. You’ve got this! Looking forward to seeing your furry friends again ❤
That’s so kind of you thank you so much 🥺🥺❤️❤️❤️
Wow that was emotional 😢, such a kind person having to deal with this, thank you for being so vulnerable. So glad your feeling better.
Thank you so much ❤️❤️❤️
Oh my goodness Beth, I’m so so sorry it’s taken this long to get a diagnosis. Thank you for sharing the full story - it definitely deserved 4 parts! I’ve said it before, but you are a true warrior 🥰 xxx
Thank you so much ❤️❤️ xxx
Aww Beth, you are beyond amazing and you're positivity and outlook honestly makes me so proud. Love your videos, currently going through a scary time myself and your videos really help! Fingers crossed you're home soon and get to be with your dogs, James and family soon! ❤️ sending lots of love xxx
I’m so sorry you are going through a rough time 😢😢❤️ if you ever need anything let me know!! Thank you so much honestly ❤️❤️ xxx
I feel so sorry and sad for u Beth 😢❤️❤️. U don't deserve this 💔. Ur such a lovely girl . I hope this TPN helps u. Could u do a video abt TPN ? Wat is it ? And can u still eat normal foods. I hope u get home soon and thank u so much for sharing ur journey ❤️❤️❤️ x
Thank you so much 🥺🥺❤️ TPN is basically nutrition that can feed somebody intravenously via veins and close to the heart, so instead of getting nutrition through my bowel it’s now via intravenous! I’ve started recording a video about TPN to explain everything that’s happened so far but to be completely honest I’m still learning about it too!! ❤️❤️ xx
Thank you so much 🥺🥺❤️ TPN is basically nutrition that can feed somebody intravenously via veins and close to the heart, so instead of getting nutrition through my bowel it’s now via intravenous! I’ve started recording a video about TPN to explain everything that’s happened so far but to be completely honest I’m still learning about it too!! ❤️❤️ xx
Thank you so much 🥺🥺❤️ TPN is basically nutrition that can feed somebody intravenously via veins and close to the heart, so instead of getting nutrition through my bowel it’s now via intravenous! I’ve started recording a video about TPN to explain everything that’s happened so far but to be completely honest I’m still learning about it too!! ❤️❤️ xx
Beth you are an inspiration, I hope that your recovery now goes well and you get used tour new kind of normal. Sending you lots of love xx
Thank you so much 🥺❤️❤️❤️
@@bethgallery1140 ❤️
Oh Beth I'm so sorry😭😥 I hope the TPN can bring you your life back. You deserve so much better than what your body throws at you. You are looking a lot better😊 I hope your weight continues to improve so that you can have some energy back. You are one hell of a trooper! 💓
It’s definitely improved SOOOO much so far so I’m really hopeful and looking forward to a fresh start! Thank you so much ❤️❤️ xxx
@@bethgallery1140 yeah it's so clear. You have a lot more life in your eyes and you're smiling a lot more because you have the energy. My friend is on TPN and has been for years - she has a little family and it absolutely thriving on it. It's the beginning for you not the end xx
I am so glad that you have a correct diagnosis and are on TPN now. Though I truly I don’t understand why you were not put in TPN much much sooner. You should not have had to suffer so long.
Thank you lovely, hopefully onwards and upwards from now on xxx
We support you Beth coz ur a sweet & sincere lass🙋🏻
You are so kind thank you so much xxx
Hard to find extra words to add to all the beautiful comments already written by other viewers. But it is late here and I am teary eyed feeling the feels with you by the stuff that seemed right under the nose but so hard to find previous to new eyes. I am so proud of you for being able to express what is going on physically and mentally. Sending you 🤗 Best wishes for the training and trip back home.
Thank you so much ❤️❤️❤️ xx
Thank you so much ❤️❤️❤️ xx
Thank you for the update.
I’m so sorry that you’ve been through so much pain & discomfort in the past few months, it must’ve been so hard for you.
I’m so glad that things are starting to improve & you’re feeling better.
Just curious, will you be able to have TNP at home?
Take care. x
Thank you so much ❤️❤️
Yes! Thankfully!! Currently been trained to safely disconnect myself and then I will have a care company coming in for a while to connect me to the TPN everyday as I don’t yet feel ready to connect myself! Xxx
@@bethgallery1140 Whoops, I meant TPN. That’s great that you’ll be able to have it at home. x
Sending love. My friends little girl survives on TPN. She has lost most of her intestines and bowel due to other reasons. For the most part she is able to do normal things and attends school and plays with friends Xx
Aww really!! That made me smile knowing she is still able to do normal things, thats something that has been bothering me! I guess as time goes on I will learn to adapt, I think it's just because it's super new at the moment! xxx
SIBO can cause transit problems too slow or too fast transit causing malabsorption. Love to you Beth really appreciate your honesty and bravery so glad they put you on tpn I was guessing IF when you first got sick due to symptoms (IF = intestinal failure) I’m slow stomach & oesophagus > and varying intestinal as super fast/slow and colon is slow so hard to manage sometimes placements of a jej tube can sometimes rarely further push certain people/cases into intestinal failure as a complication xx
Thank you so much, it’s still so new to me!! Yes I’ve heard about how a J surgery can cause it, I was speaking to another girl the other day where that happened to her! My feeding tube revision surgery was in April, and the scan I had done that confirmed the intestinal failure was in January, so it was already happening before the surgery but I’m not sure if it made it worse once I had the surgery because all my main symptoms seemed to happen after the surgery, it could be a coincidence I’m really not sure 😫 because of how fast the transit it, my consultant said I would never have actually had SIBO because bacteria physically wouldn’t have time to grow, and the doctors here never actually confirmed SIBO via anything they just thought it was that due to symptoms, so I am more than sure the symptoms of my bowel was the Candida and fungi but tbh I will probably never know 😢 you are so amazing going through all of this, thank you so much it’s nice to know there is other people with similar things going on ❤️❤️❤️
Beth what a horrible time you have had in hospital. My opinion is they left you too long malnourished and never really treated you and investigated properly and your dr in Salford was amazing and wiped the floor with excellent care and a official diagnosis which should have been sorted 12 months even 6 months ago. Can definitely tell put weight on and looking so much better. Glad improved and getting back to usual self. I know intestinal failure is a horrible diagnosis but it just proves a big of digging into issues and listening and even repeating tests prove a vital and life saving for you. Take care.
Thank you so much 🥺🥺 it’s been a journey but I’m so relieved to know what’s wrong now and I can finally look for a way of moving forward. So glad you can see a difference already, surely it can only get better from now! Thank you so much again ❤️❤️❤️
My goodness Beth, how frustrating for you that a typo means you’ve had to go through months of hell.
In happier news? You sharing the Tom walker song in Insta/TikTok meant that my fiancé and I have now found our wedding song. We’ve had such a tough time with gastroparesis so could relate in similar ways to you and James
Awwww I’m so glad!!! It’s such a lovely song isn’t it! 🥹🥹❤️❤️
Awwww I’m so glad!!! It’s such a lovely song isn’t it! 🥹🥹❤️❤️
Would a vagus nerve stimulator implant help with your digestion? The vagus nerve is the largest parasympathetic nerve- stimulation helps with a range of problems from autoimmune to inflammatory diseases. They’re also studying it to see if it can improve autonomic ns problems? Obvi increasing parasympathetic stim might help digestion. Just thinking outside of the box here.
Edit: they’re are heaps of studies on vagus nerve implants and digestive conditions.!definitely something to bring up to your team. Kia kaha
I just spoke to my mum because I recognise the vagus nerve stimulator and she said a consultant spoke to me about it a few years ago and said it wouldn’t help however it would absolutely do no harm in asking again!! When I meet with the intestinal failure unit I will absolutely bring this up, thank you so much xxx
Your title says part 2 lol
🤣🤣🤣 I spotted that after I posted lmao xxx
@@bethgallery1140 no worries it made me chuckle cos it’s something I’d do hahaha 🤣 sending love to u hun hoping your home for Xmas xx
Can I ask hun did the change of place of your Jej have a role to play in the Intestinal failure or was your last tube issues the start of it all as u did have so much issues before u had it replaced higher up. Just curious. I am so sorry that this has happened but I am so glad your now on the right treatment & have a diagnosis finally even though it’s not what you would want. Also no need to thank me for the care package I just send my love & hugs to u xx
@@2bluebottle the scan I had done in January that confirmed I had intestinal failure that was missed, was a few months before my new feeding tube surgery, so I had intestinal failure before that. I’m not entirely sure how long it had been going on for but I did notice some slight weight loss before my tube surgery however after I had the surgery it seemed as though everything got worse, which I’m not sure if it’s a coincidence or if it impacted it to worsen however the 13 minute from the scan was confirmed in January! Hope that all makes sense.
Thank you so so much xxxxx
@@2bluebottle the scan I had done in January that confirmed I had intestinal failure that was missed, was a few months before my new feeding tube surgery, so I had intestinal failure before that. I’m not entirely sure how long it had been going on for but I did notice some slight weight loss before my tube surgery however after I had the surgery it seemed as though everything got worse, which I’m not sure if it’s a coincidence or if it impacted it to worsen however the 13 minute from the scan was confirmed in January! Hope that all makes sense.
Thank you so so much xxxxx
Here for you with this, I have intestinal failure too, and know all the struggles that comes with it, I’ve messaged you on instagram if you ever need a chat or any support as you navigate this! 💕
Thank you so much!! I’ve not been on Instagram in quite a while, I will check it today! It will definitely be nice to speak to somebody else going through the same thing!! Xxxx