MY LYME DISEASE STORY: SYMPTOMS & DIAGNOSIS | Juliana Whitaker
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- čas přidán 4. 08. 2019
- This is my experience with Chronic Lyme Disease and Co-Infections. I hope this is helpful for someone who has been diagnosed with CLD or for someone who thinks they might have CLD. Having this disease can be extremely isolating, especially when no one believes that you're sick. Luckily, you aren't alone! I’m happy to answer any questions about Lyme or my experience.
THANKS FOR WATCHING!
RESOURCES:
FIND A LYME LITERATE DOCTOR IN YOUR AREA:
www.ilads.org/patient-care/pr...
WATCH “UNDER OUR SKIN”:
www.amazon.com/Under-Our-Skin...
TAKE THE MSIDS QUESTIONNAIRE:
lymeontario.com/wp-content/upl...
I have had all of the same symptoms since I was a young girl, with the exception of asthma. I’ve always thought “I wonder if everybody feels this bad all of the time, or is it just me”. Thank You for this video, it helped me to confirm that what I’m feeling is real and I’m not out of my mind.
Been having issues with my inner ear/ dizziness problems for months. Met a person who said there's a good chance I have Lyme disease. At first, I merely brushed him off as a quack and thought my doctors knew best. After going from ENT to ENT and them dismissing it as allergies, I'm starting to give Lyme Disease a second look. My biggest issue is cost. None of these LLMDs takes insurance and of course none of these places offer any type of discount/ payment plan. Medicine is medicine I guess, and they only care about money.
That’s one of the biggest hurdles in reaching a Lyme diagnosis. The cost. The insurance companies don’t want to work with doctors who actually heal people! Healthy people aren’t good for business. So unfortunately most Lyme literate physicians don’t accept insurance and the bills are high. You may be able to ask around to see if they offer government assistance with Lyme testing. My office does this.
Recently diagnosed after 28 years of multiple problems, never sourced, only treated with drugs. Not a wise thing to do always find the source. Finally😂, a wise doctor suggested the VIBRANT WELLNESS test, which is for discovering so many infectious and tick-borne illnesses. It is worth the money. Find a doctor who will get the test for you. My Lyme has settled now in my cerebellum, the center for balance issues. I have ridiculous strange balance problems, as if walking on a bouncing ship or trampoline. Recent new treatment for Lyme, which I just started is called S.O.T. Very successful in Europe and starting in America. Done by infusion. Keep seeking. Don’t give up. Pray much!!!!!
Thank you for putting this out there and helping raise awareness! A similar story to so many of us, I also had the evil trifecta of Borrelia, Babesia, and Bartonella.
Bill Thompson thank you for watching! Sorry to hear you have the same evil trifecta. :(
I can’t tell you how validating and helpful your video was. Thank you, so much! Wishing you great health. ❤️
I got it in Santa Cruz California!!
Thank you for sharing! You're so articulate and thank you for enlightening us about this disease that is more than common and overlooked by the main-stream physicians. More as it happens...
Yes I understand been fighting it for 10 years
Thank you so much for putting this out!! I think I have Lyme as well and have an appt with a functional medicine doc next week. I’ve been searching and searching for a video where someone states their actual symptoms…and I found you! I have many of the same symptoms you did so this gives me hope that I may be on the right track. Thank you for sharing and your sweet baby is beautiful! I hope you are doing well.
You’re so welcome! I’m happy I could help. I am doing well, I had a “flair” after having Covid but I am doing great now. I’m glad you’re going to see a functional medicine doctor because you will actually receive treatment and find answers. Good luck on your journey and I hope you can heal! 🙏🏼
I hope you are well :). Lyme is known as “the great imitator” and can present differently in everyone. My playlist Lyme playlist is now insanely huge so I will likely just start a dedicated channel lol. “Rise Above Lyme” on YT also has a Facebook group that is extremely helpful, along with “Gen Lyme” has Meetup’s and a channel as well. Let me know if I can help you and I hope you are getting answers. Testing is unreliable so don’t let a negative test throw you off. Sandy
There is know money to be lmade from lyme.i in joy this good video
For ten years, I suffered from Lyme disease. The doctors said I would not recover. I was in agony daily, and I watched others die around me with late stage diseases. Prayer healed me when medicine failed me. God fully healed my disease. When Jesus found me I got baptised and started following the bible. God gave me a new family. My life is full of meaning. My heart is full of gratitude. I want to love others and share his work. You are unique to God and you are special to Him. Don't listen to the people who hate and talk negatively. Seek the Lord while he may be found (Isaiah 55:6-9)
God is calling you to Himself
Psalm 41:3
“The Lord sustains them on their sickbed and restores them from their bed of illness.”
Hi! thanks for all the info. i'm dealing with some issues very relatable. I'm also in LA area. would you mind sharing the name of your doctor? thanks
Hey, Fernando! I’m sorry you’re having health issues. So my doctor’s office closed after covid, unfortunately, but I have seen a new practice. They are called Oasis Family Medicine in Glendale and they’re very affordable for an integrative medicine practice. I hope this helps!
Thank you so much! I’m going to look them up
costochondritis was my first sympton also!! getting tested for lyme at this moment.
I wish you the best!
can I ask you if you still suffer from costochondritis after treatment? @@julianawhitaker9787
You mentioned crawling sensation on your skin. Was it all over you along or just in certain areas and how long did it last? Do you still get it?
Sometimes it felt like all over but it was very pronounced around my face, hands and arms. I feel like it even affected my hair. I imagined there was some kind of biofilm enveloping my skin and the crazy part was, when I sprayed hydrogen peroxide on the affected areas, it would bubble and fizz. When I sprayed on an area that didn’t feel “crawly” it just stayed like water. So I truly believe it isn’t fully psychosomatic, there is some physical problem happening. I discovered the hydrogen peroxide thing because I tried putting nearly everything on my skin and never found relief. I will say the longer I stayed awake, the worse it got. So I’m the morning it was usually manageable but by bedtime I was consumed by the feeling.
What treatment helped you I'm having and have had symptoms from a very young age and now I feel completely debilitating has affected my facial muscles nerves drooping on onside of my face that comes and goes
I’m sorry you’ve been struggling! I know how isolating it can be. I was diagnosed the day after I found out I was pregnant so the safest route my doctor suggested was to take azithromycin for my entire pregnancy. I had to stop taking it after birth because it isn’t good to breastfeed on it. But my symptoms were gone by then. I’ve read that having a baby also detoxes your body of heavy metals, so I believe that helped a lot. So long - term antibiotics, heavy metal detox and most importantly moving out of a water damaged building helped me immensely.
Do you mind saying your dosage etc and how long it took for you to feel well? Like you l was diagnosed with sciatica at like 16yrs old which we know is ridiculous now and the crawling sensation on the face, the costochondritis, you've helped me to tick a lot of boxes. Thank you
Omg, I'm scared. I had a tick bite in April, sick as a dog for a week, costrochrnditis often, and much more. I had a bullseye rash, and pics of it moving through my body. Now what the heck???😢😢😢
Go see a naturopath immediately! You may still be able to kill all the Lyme before it’s too late. Just google “functional medicine dr near me” or “lyme literate md near me”. Don’t make an appointment with an infectious disease dr though… they will only gaslight you and waste your time. Or, they may decide to treat you but they won’t be thorough. Chances are they will test you and it won’t be in your blood during time of draw so they will tell you they’re fine. It’s not, the spirochetes have likely already burrowed into your organs and tissues.
@julianawhitaker9787 Thank you, Thank you. Thank you! I really appreciate your information and response. As I sit and cry bc the medical community abandoned me, Thank you again. God Bless
I'm in Texas need help can't find a Dr for past 10 yrs
I’m sorry you’ve been struggling for so long.If you type into google “your city / Texas” and “Lyme literate md near me” you should find an integrative medicine doctor, holistic dr, functional medicine Md (any of those 3 can help you). But avoid any name that comes up if they are infectious disease doctors or any other traditional type of doctor. They are owned by the pharmaceutical industry and have no incentive to actually detect or treat your Lyme + coinfections. if you live in a very small town, just type the nearest bigger city into the search bar.
Have you had your wisdom teeth removed, and if so how long ago?
Yes, I had them removed in the middle of the year of being the sickest. I also had a root canal a few years before- of course I didn’t know how dangerous those things were before so I am seeing a holistic dentist soon to get my root canal removed!
I was diagnosed almost a year ago but we don't have lyme drs here in michigan. It's very difficult to find treatment.
I’m sorry you’re having a hard time finding one. Have you tried typing “Lyme literate MD near me” into Google Search? I’m sure there are some.
I just searched and found a Dr. Darren Schmidt in Ann Arbor. He offers telehealth visits if that’s too far from you.
@@julianawhitaker9787 Thank you!♡
@@pamalbert5750 you’re so welcome! If he doesn’t work out, just make sure you find one that is “integrative,” “holistic” or “functional” medicine, NOT “infectious disease specialist” only… I wasted time with them!
Hi I'm in Los Angeles thank you for your story can you recommend your doctor or private message me. I can't find a good doctor out here that deals with lyme . I've been to the best in LA . all my neurological problems started a year ago after the vaxxx
I'm having horrible functioning and I spent thousands of dollars and I can't get the answer I'm done a lot of tests too. They think it has to do with mold but on some of my tests I'm in the middle for Bartonella and one of my tests came out positive for Lyme but I'm so toxic right now no one wants to touch me.
I will send you a private message!
I haven’t been on CZcams air a long time so I’m not sure how to message you. Let me know how I can message you. I’m on Facebook and instagram as well.
@@julianawhitaker9787 do you buy any chance to know the name of your Lyme doctor and willing to give it out here
@@seanhunt2365sorry for the late response. I saw Dr. Joseph Sciabbarrasi but unfortunately his office closed! I have no idea why. There are many good docs on the west side but unfortunately not many who are affordable. If you want something affordable, try Oasis Family medicine in Glendale!