Ally Hilfiger: 'Bite Me: How Lyme Disease Stole my Childhood, Made Me Crazy and Almost Killed Me'
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- čas přidán 12. 05. 2016
- Set against the backdrops of the fast-paced fashion and entertainment industries, BITE ME shares the heartbreaking and hilarious stories that moved Ally forward on her journey to freedom and health. Its themes will be familiar to the 300,000 Americans diagnosed with Lyme disease each year, many of whom, like Ally, wondered for years what was wrong with them.
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I was sent to an Infections disease doctor. Who laughed at me and told me that Chronic Lyme was a treatable illness w antibiotics. It's been 2 years since I was diagnosed with chronic Lyme by my primary care physician who is the only other person who empathises with me. He is at just as much of a wicks end as I am bcuz now 2 different I.D. doctors have laughed me out of the office with a Rx of Doxycycline and telling me that I won't have any flare up for 2-3 years oh how wrong are these Infections disease doctor but if they try to use their own protocol for my Lyme they can lose their right to practice. Now I'm dealing with nurological Lyme and I don't know which is worse. 😔 I need a support group and a Dr who is not afraid to practice with me and my illness.
Hi, are you still dealing with symptoms from Lyme? Your story is similar to mine. I was blessed enough to find a doctor that had her own experience with Lyme years prior, so she understood what I was going through. This is one of those things where you have to advocate and fight for yourself. I believe many people have this disease but have yet to be diagnosed with it because like you said doctors can lose their license. As the symptoms mimic other illnesses, many people are misdiagnosed for something else.
Ashley Dickerson as of right now, No I have not found a Lyme literate infectious disease doctor. It’s maybe 6 months or more now since my last doxycycline regimen. I feel ok now but, get these pains in my neck and shoulders. Plus I struggle with the neurological part of Lyme and, As far as I know there is no antibiotics for the brain and the mental heath of a Chronic Lyme patient. I live in Massachusetts, there are many people who I know or am aquatinted with who describe their fibromyalgia, chronic fatigue, or neuropathy among others. I always tell them even though they are diagnosed it’s not a bad idea to ask the doctor about a Lyme test. Thats one thing that makes me so angry about it is that, my doctor had to request a Lyme test for me. It’s not a mandatory thing they test for which I think is ridiculous especially when we are living so close to CT. A simple Lyme test To figure out my problem it took them 2 years to run the test. I might have not had to be in chronic stages if they had given me the Lyme test when I first went in to the ER with Bells Palsy syndrome. Right then the dr. Should have known that it was Lyme. The Drs are so uneducated about Lyme it’s truly sad.
There are doctors in CT that are chronic Lyme literate and are able to treat Lyme patients without worrying about losing their license but, unfortunately... I have health insurance through the state of Massachusetts and it doesn’t work for doctors who practice in other states. It makes me so mad the fact that I can see the pain in my primary care doctors eyes I know that he cares about his patients and he feels for me but, he can only do so much for me, and it’s frustrating I’m sure you know that already though. Thanks for reacting to my comment best of luck to you on this crazy journey. Blessings for good health
@@Dorisasaurus1133 What an interesting story. Doctors can be mean. It's especially hurtful when you're so sick and desperate for their help. I also believe if you were treated early you could have been spared most of your chronic Lyme symptoms. I lived in Houston, TX when I contracted it. I don't know how or where I was when I got infected. I got extremely sick and thought I was going to die. The worst symptom I had was horrific hallucinations. I feared my family would have to put me in a psych ward. I tried to explain to them but they didn't understand. I started praying everyday for God to reveal to me what I was sick with. At the time I had never heard of Lyme. I researched my symptoms for hours daily. Anyhow, similar to your story no doctor here wanted to test or treat me for it. I must have seen at least 25 doctors. I was so desperate for help. Long story short, my family moved to Massachusetts in 2010 because I had learned about the Lyme literate doctors there. I was paying out of pocket to see a Dr. in Hampton, CT. It's been about 10 years since I first got diagnosed. We moved back to Houston after 2 years. I still deal with neurological symptoms such as forgetting stuff or brain fog but nothing as bad as in the beginning. I pray for your healing because I understand what you're going through. Take care❤
Ashley Dickerson you’re so sweet. Wow moved all the way up here to get help you are a trooper. I’m glad you got to see a good Lyme literate doctor. I’m so glad you got some of the relief you so desperately needed. I know that if we had the money we would be seeing a Dr. in CT as we truly aren’t very far from the CT line here in Worcester MA my insurance doesn’t work in other states ugh it’s an endless loop and it stinks. Right now I’m dealing with the brain fog and I feel so silly when I’m explaining something to someone and I know exactly what I am trying to say but cannot find or remember the words that I was gonna say. Or the ever popular what was I just saying?? I hate it. Im praying that between my dr and I we can find a good Dr. to treat me I have changed my diet to more Fruits and green veggies I drink a lot of smoothies Lol! and I take vitamin D and Iron supplements. Also take multi vitamins but now have vitamin D deficiency and Anemia. So I take extra of the 2 of them.
I appreciate your prayers and know that I’m saying one for you right now.
Blessings to you from Me All the way from Worcester Massachusetts
Best wishes hope you stay healthy
@ Mandi Loren...did u ever try the bee sting treatments?
Did u ever try the bee sting treatments? And did it help?
Doctors in South Africa are covering up Lyme disease and I cant understand why??
Ty
You go girl check out rise above lyme fb group. Thank you for using your well-known name to draw attention for the rest of us I know it's not easy.
Hello i want to read your book. Sorry i did not hear about you before….
One more thing I tested a year and a half later I had no idea what it was(I had a huge bullseye but didn't recognize) lyme test was negative but they put me in doxy anyhow. Thank God mainstream medicine doesn't seem very educated about it but it has come a long way since you were undiagnosed
They iterrupt her all the time 😡
its called morgellons disease the skin bugs thing im a lyme sufferer im so glad u have a dx God bless u
I luv aly