Shifter: Living with Lyme Disease
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- čas přidán 23. 06. 2020
- I AM NOT A DOCTOR. IF YOU THINK YOU HAVE LYME OR ANY OTHER ILLNESS CONSULT YOUR MEDICAL PROFESSIONAL.
Okay, let's begin. This is my story, and as I mention, the stories of Lyme I encounter are as individual as your fingerprints. I've known people to get Lyme, get immediate treatment, and overcome, while others have gone in the opposite direction spending years mired in the depths of chronic illness. I am somewhere in the middle. But, I am proof that you can overcome this particularly nasty disease and get on with your life. Stay positive, stay proactive, and think marathon not sprint.
The story of Lyme Disease is rife with secrecy, misinformation, and heaps of denial laced with questionable medical and governmental ethics. Lyme is far more prevalent, far more common, and far more far-reaching than most government agencies will admit. Lyme is global. The tick is a remarkable disease delivery machine. Resilient, relentless, and growing in numbers. Lyme is but one of many nasty little gifts this tiny beast can deliver. For those of you who wish to dismiss, wise up. The web of Lyme grows by the day.
And for those of you who contracted Lyme and got over it, well done, but remember, there are many who don't share your luck or experience. And for those of you who are living with a Lyme patient understand there is no way for you to know just how bad the Lyme experience can be. Stay patient, stay understanding, and be proactive. Good luck.
I suffer from chronic Lyme, I got sick in 2014 and finally got diagnosed in late 2015. Drs in my area won’t test for confections or anything, I have been through 6 Drs so far. Life has been hell for the past several years, my photography has come to a halt, some days I can barely get out of bed. Glad you are speaking out about it, we need more people spreading awareness.
Kristy. That totally sucks but is, as you know. a VERY common experience. The medical world doesn't want to deal with Lyme, so here we are. Pretty much everyone I know now has a Lyme story. Friend of a friend, family member, etc. But yet the CDC keeps pushing the same old tired story lines. "30,000 new cases a year," non-dangerous, easily treatable. It's nonsense.
How are you today ? Have you changed your diet ?
I have been hospitalized in institution and written up as psychosis ...still not diagnosised...after being hospitalized numerous times(still not diagnosised)and 20 years later ...I am sick...will I tell a doctor ...no ...because I don't deserve to be institionalized
@@dianecarolnordean6676 I'm so sorry & YOU ARE NOT THE ONLY ONE... sending wishes for PEACE & HEALING
And when my health finally crashed, I was in liver failure. I looked yellow and dying. I live in Florida and they are now telling us you can get lyme from fire ant bytes, of which I have had hundreds. The brain fog and fatigue, pain.
Do'n't know about ants, but "You can get Lyme here," saying happens all over the entire world now. Even in New England.
I'm Belgian. I was bitten by a tick when I was 12. I'll be 40 soon.. This disease has put me through unbelievable hell. It took my whole life from me. Doctors have been no help whatsoever. I finally got diagnosed with the 3B's in 2018. I'm treating with herbs, I'm much better than in my worst years, but definitely not cured. I cant function normally like others. But I'm no longer in constant pain or psychosis.
This is like a secret the medical community doesn't want to hear or deal with or diagnose. But it's becoming SO rampant they are finding it more difficult to cover it up.
What herbs are you taking ? as have tried traditional herbal medicines
@mews56 Well, I've changed my focus on parasites instead of lyme, and I've gone to parasite meds ( for cattle, because doctors refuse to acknowledge everyone has parasites and prescribe meds) and I have much bigger hits than with herbs or remaining focused on lyme.. I think, at least in my own case, that lyme is a co-infection of parasites, and not the other way around.. I did have some improvement from the Buhner herbs ( cryptolepis, Japanese knotweed, sida acuta, houttuynia) and parasites herbs ( wormwood, quassia, boldo, cinchona bark etc).. But for parasites, the meds are more powerful.. I found most info on how to use meds for parasites on curezone..
I'm from Belgium too Leonie wich part are you from?
@lightconnection1 Nieuwpoort, but I was bitten in the 90's in Durbuy, however, as I stated in last comment, I think I have parasite problem, which I picked up 20 years ago in Turkey or Egypt.
I can relate to your story. I was born with Lyme. It took me 35 years and two tick bites to be diagnosed. Lost my ability to count , ended up in the psych ward. I was fortunate to find a llmd a few months after that. I am doing so much better now. I haven't felt this good in a long time. I hope one day I can share my story but I'm not that brave yet. Thanks for letting me not feel so alone!
Hey Jessica, wow. The fact that you pulled yourself out of this is entirely commendable and you should be proud of where you are, regardless of what stage you are at. Happy to hear you are feeling better. Here's to hoping for an upward trend.
I live in New Jersey been bitten 3 times and just diagnosed with Lyme and I'm a mess hait my episodes
I have met others who were also sent to the psych ward. I have to wonder if they treated kindly people with Lyme but I’m pretty sure that answer is Nah. I’m 9 years in and it’s so long and lonely and takes everything I can muster. Lucky them are with caregivers and I want to send a special shout-out to those caretakers
When your dr stood up and basically said "you're shit out of luck" i felt that to my very core....😭 Its exhausting & crazy making...lymesince89 😭. Im exhausted! The look of panic on your friends faces...its horrifying
Lyme is a shawdow...it will absolutely make you live life to the best of your ability... If you don't have the strength to do that...well to bad .... YOU. HAVE. NO CHOICE! to live pretending it doesn't exist within you is TO LIVE. A LIFE. HALF-ASSED. Its a horrible ending to a mediocre existence!!!!!!
So glad you are learning to walk with it & thank you for sharing 💞
Just got diagnosed last week. 10 years after the first symptoms started. 15 (YES, FIFTEEN) years after being bitten by a tick at a zoo in Netherlands.
Oh crap. Sorry to hear that. Sorry it took that long.
Ty . Ty. Ty- It is very important you shared this video.
Every person has their own version of Lyme. So, no judgement.
Sometimes I need to hear a voice from someone who is on the same page. I’ve had Lyme for 20 years : I’m quite familiar with Plum Island: if I go 30 miles cross the Sound; there is the beast . I am at a crossroads: I need to see the next generation of informed drs. But , I know, I will get very emotional if the visit does not go well: it’s extremely hard not to be afraid:
I see many videos of others with Lyme : but they have
“people “ in their family to help them. I’m by myself . I totally live in life like nothings wrong , but you know as well you mentioned- you are physically crippled and writhing with pain. Every minute of walking and talking and balance is always in the forefront for every physical step . It’s fucking weird living this way . All the activities I loved helped my natural anxiety and moods. I can suck up the pain: it’s the loss of what I just wish I could do!!!!
I wish you so much health and strength as you go forward reaching out: Take care and I feel like survivors of some weird shit storm that hasn’t stopped-
So, stay well and much appreciated. 👍🏽🦾☮️
Man, that is rough. You just have to keep plugging and take care of EVERY SINGLE THING that is under your control. diet, sleep, etc. And keep trying new things. That riddle can be solved. Most docs are useless when it comes to this situation.
@@DANIELMILNOR505 Well what held me for all these years was that I’m an active person and hate wasting time staring at walls: So I’d drag myself out with crutches etc., but my legs have stopped helping me: so., I can’t even walk on the sand at the beach. I mean I can stand there …. But walking on the beautiful sand is brutal. But, I want to tell you: I really appreciated your honesty: and I generally here a woman’s perspective so I really wanted to hear your experience. So glad you have the human support in your life!
My partner died 4 years ago from cancer., she was my best friend:
So, no one really knew how bad it was , except her. But, you know psychotherapy is routine to keep me talking about life etc.
On editing- I love the black and white!! Well done 👍🏽! Be well, 🦾☮️
I a Lymes suffering, sufferer since I was 44 years old. I am now 81 yrs old !!! I hate to bring any one who has this unbearable disease. No one in my family understands me? My husband was my best friend, care giver & everything in between. He passed away & was by safe haven, love of my life.
Lymes bosses me around & I hate it ! I'm in horrific physical pain 24-7.....
Never took pain meds before. I caved into it if I wanted to live. I was fortunate to have a Lymes specialist where I lived. I was miss diagnosed for years. Finally I asked for a Lymes test with my umfffg number doctor? She told me off because I asked for the test ! I was to go for a cbc test which every doctor does at yr first visit !
She allowed it but said I didn't have it. Two was later I received a call from her? I was gravelly ill with Lymes. She apologized for her bad behavior from my visit 2 weeks prior. I am now still in know better after all these years? Any type of stress puts me to bed. Does anyone out there have a stres free life? 😂😢 God Bless all the Lymeies out there....❤
Wow……GREAT testimony! Thank you so much for sharing. I do want to share, 25+ years ago, top executives in Monsanto came over and filled top executive positions in the CDC in the FDA. That’s why when Covid hit, I had absolutely nothing to do with anything that they put out! I was infected with lime at the very beginning of Covid. And I wasn’t diagnosed until three years later. I didn’t go near the hospitals because, you know. And there was a couple of points where I thought I was going to go home to meet my maker. I am doing everything that you had shared about, what I can control. It radically changed my life for the better. Blessing to you and yours. And thanks again for sharing!🙏👍🏻🙌🏻
What's interesting too is how many women reach out here about Lyme. Not sure why the balance is so tipped in the female direction. Sorry to hear about your situation. Frustrating beyond belief. Lyme proves just how lame our system is if you have something that isn't popular, doesn't have a revenue stream, etc.
Thank you for sharing your story. I'm 7 months into it, and it's comforting to hear that my symptoms are real and not "in my head". I like your positive message at the end of the video.
I live on Long Island (NY). Lyme is prevalent here but underdiagnosed. I myself always suspected I had Lyme although no doctor would diagnose that and finally, I was diagnosed with ME/CFS. I was sick for 10 years (1989-1999). I still have relapses, but I am much better now. Thank you for your very informative presentation. The word needs to get out.
Sadly James, very, very, very common in my experience, and part of the issue is that the public doesn't really understand how or why this would happen, so their skepticism makes it even more difficult to mobilize folks.
Amazing video. You said everything I would say if my brain worked. Thank you so much for putting yourself out there.
That cognitive part is the roughest. I did two types of IV. Vitamin C and Glutathione. That was what got me over the cognitive hump. After two years of meds.
I’m a Desert Storm Vet. I breached 2 minefields in Kuwait as Combat Engineer and was eating and sleeping in areas of high concentrations of Depleted Uranium (DU) and also was breathing the smoke and oil fog, I rode on top of a truck without protection as we went from one side to the other, and ended up in Kuwait International Airport. We were the first convoy (Marines) to pull into Kuwait City during its Liberation. The VA docs totally dismiss those two events as having any sort of detrimental health issues. I’m losing my abilities to function properly. They found a tumor/cyst on my brain. The VA will not acknowledge the oil/smoke or the DU. They give me a shine job if I talk about it.
Please everybody, go to google search engine, look up “depleted uranium birth defects” and click on pictures/photos. Please get back to me and on this everybody. Let’s make some noise if we can, about this..
Thanks for sharing your personal experience Daniel! You are an inspiration to me to be a better photographer and you are teaching me how to tell stories. I have many plans if I can pull myself out of the rut. Thank you sir!
Dude, that is SO harsh. Really sorry to hear it. I've read plenty about returning Iraq vets and am reading about uranium mining on the Navajo Nation, another case of us totally getting over on the Native American population when we KNEW with certainty what the mining would do to the people, the land and the water. And we are still doing it. The VA is stuck in the middle of top down lies and a suffering population. It won't change until something major happens, like an enlightened, education American population, but I don't see that happening ANYTIME soon.
Daniel Milnor I’m seeing similarities in the treatment of Lyme Disease and DU.....if I could heal up, I would love to do a photo story on the lifestyle of those dealing with DU birth defects. I cry just about every time I see photos of these children born with these horrific defects, and this is all buried so hardly anyone even know about it. I appreciate you Daniel! Thank you!
It is EXTREMELY SICKENING knowing that the VA and our “government” does not do enough for the brave people like u and others.. it enrages me, I have a dear friend of mine who is a marine and suffers thru so much, on a million meds, had something blow up under his truck and destroyed his jaw and the VA did a half ass job on the plate in his cheek and jaw that he had to get it redone 4 times 😢 I’m ashamed of how we treat our vets that put their life on the line and go into some horrific territory like u did. I know it was hell for yu but I thank u from my heart and I’m so sorry
@@crissycaggiano3235 thank you for you kind words
Thank you for sharing! So many lies out there with doctors trying to make this much smaller problem than it really is... 10+ years since first diagnosis and still having issues with no help from neurologists and infectionists. I think it is vital that we share our stories to get closer to real solutions, so thank you so much for this video and I hope you manage to keep it under control!
Friends in Maine are pulling ticks off in the middle of winter. And docs are like "Ticks don't operate when temps are under 40 degrees." Lunacy.
No your presentation was NOT "a meandering mess". You were quite well spoken, passionate, easy to follow & inspirational. I just learned I have Chronic Lymes & just began treatment with a lymes literate practioner. 5 ticks in 2017 & soon after came the debilitating chronic fatigue that kept me supine majority of time. I began to question whether I had Alzheimer's . By 2019 new diagnosis of Fibromyalgia, Autoimmune Arthritis, & Shingles, along with Chronic Migraines. Then came diagnosis of Gastroparesis, POTS, MCAS and the list goes on. I am now trying to educate everyone I know & meet so they can protect themselves from this horrendous disease that triggers a multitude of Autoimmune Diseases. I mention how anyone with an autoimmune disease should get tested for lymes as lymes treatment may get the M.S. patient out of the wheelchair they've been in for 15 years. Kris Kristofferson believed he had Alzheimer's for 10 years. Then learned he had lymes...received treatment and no longer an Alzheimer's patient. Millions around the world diagnosed with CFS & Fibromyalgia, R.A., Lupus, on & on it goes. I can hardly believe how this Chronic illness is being gaslighted by the CDC. Even worse in Canada & Australia. Yes I agree it must come down to money. Pharmaceutical Industry would stand to loose billions of revenue if majority of their chronically ill patients were diagnosrd & treated for Lymes. As I write this I still cannot believe how the medical profession has turned their backs on this. You have to pay cash to get treatment. Your insurance means nothing. I encourage everyone to watch 1 or more of the numerous documentary movies on Lymes free on Utube. Our government should be educating the public and children in schools. However it's nary given any attention at all and not even money put forth for randomized placebo controlled clinical studies. Our AMA has gone after Good doctors who have saved 1000s of lives of lymes patients and stripped them of their medical license. This is why doctors freak out if you mention "Lymes". I believe there are only 12 States where physicians feel safe to diagnose & treat Lymes patients due to State Legislation put forward. This disease makes one so unbelievably sick & then to realize they are on their own & lucky if they have even 1 Lyme literate practitioner in their state. Then to realize your insurance will not pay for your treatment. It's unbelievable.
It's called Lyme disease, not Lyme's.
Ruined my life I'm over 10 years in probably 4 undiagnosed authritus Lyme's carditis and all the rest . I went from unstoppable sporting monster to frail old git in a couple of years. Aged 30 years in 10 brain fudged knackered . Raging insomnia doesn't help .
I caught my Lyme from a business trip in China...I feel you man. I lived with it for over ten years with so many doctors doing tests before finding a doctor that took Lyme as a serious condition for me. My PCP sent me to a phycologist to shrink my Lyme away. I'm still living with it...still suffering...this thing does not go away...people don't know how much we suffer...to the point suicide was even on the table.
I agree that Lyme pushed me to do better in life because I know I have a clock over my head and I never know when the timer will go off.
Oh man, sorry to hear that. I don't know much about Lyme in China but that is not good. For me the cognitive side was perhaps even worse than the physical, always being a half-second behind and not being clear, year after year. Once I felt the veil come down, via drugs, I knew it wasn't just me or something a shrink could talk out of me.
@@DANIELMILNOR505 agreed. The cognitive side definitely drove me into depression. I work in a high stress corporate job managing multi-billion dollar budgets, my responses during meetings and decision making skills are highly evaluated so having this handicap over me is very difficult. I demand I get the presentations ahead of time so I can get time to prep and take time to think things through, go in with good questions, anticipate answers, responses, etc...it is very painful.
When I got my IV done and work life became a breeze, but after three years I'm having relapses...looking like I may need to go to Germany and try the hyperthermia treatment to see if that lasts longer.
@@jinw4672There is always new treatments, we are all in the same boat, I love to find people like this man that is sharing his procces we all should speak about.
Never had Lyme, but now I'll make sure I never do.
That is the best plan and I"m not joking. Prevention, inspection, etc.
Thanks for sharing Dan
Thank you Daniel. Really appreciate this.
Thank you for your time in sharing this.
You are awesome. Thanks for the inspiration and for sharing.
That's quite a story. It sounds incredibly scary. I'm glad you have it under control. I'm also glad I watched. It made me feel much better about my current medical issues. I can't imagine suffering like you have. Thank you for the video.
Craig, ya it sucks. Totally sucks but you start to get accustomed to not being 100%. Today on my bike I had ZERO power. ZERO. For no reason. Oh well, I'll motor through it. But, it also makes you appreciate the days when things are right.
Thank you very much for sharing all you shared here! ✅️🙋♀️👋💐
Thank you for sharing your story. It's sad being alone in this, as people around you have no clue what you're going through on a daily basis...which I am experiencing now. There is hope, I'm trying to assure myself, but some days are really hard.
Lyme is exploding in the US. The same systems and organizations attempt to downplay it and when you explain the reality to people they just don't believe you.
@@DANIELMILNOR505 meanwhile with Covid lol they are sooo “concerned” and you try to explain and they look at you like your crazy lol 😂
Thanks for talking about this awful disease and giving hope to those people who have it
Thanks for sharing everyone needs to know about Lyme it’s a global pandemic and most people don’t understand it. Been fighting my fight for 14 + years your right about it being an island. It’s so annoying that we look normal because people think we’re crazy. Hope you are doing well today
COVID was the perfect illustration when it comes to America and disease. We were brought to our knees by a piece of fabric. That's it. That's all it took to crush the American spirit. We were ill prepared, had horrendous leadership and then the public showed their true colors. Not all but half. Lyme is the enemy in plain site. Was having dinner last night with two locals. My wife asked "When you are in the woods do you find ticks?" The guy looked at her like she was crazy. "Ah, yes, there are ticks everywhere," he said. "And," he added. "I've seen moose kill from ticks." "Do you know anyone with Lyme? she asked. He just pointed across the table at his wife.
1 year late, but perfect illustration. That poor moose! 🫎
BAM! Thank you for getting well enough to have enough energy to relay this brilliant information. 😎💚💪🏼
Thank you for sharing man. Nice shirt by the way.
Mr. White
Very accurate ~ I’m 3&1/2 years in (PhD RN) and I’m super aggressive in my treatment. It sucks. Thank you 🙏🏼 ❤
I think you have to be. Take the lumps along the way.
❤ Me too. Glad to share this illness with you...glad to be alive...glad to be...❤
Wow thank you so much for this information
Thank you for sharing. Your films are very inspiring.
Fascinating thank you for sharing. Wishing you continued improving health.
Thank you, I'll take it!
Incredibly terrifying story. Thank you for sharing and laying down your knowledge.
It's not a good thing to get......in short.
Thank you for fighting Lyme with everything you have. Thank you for sharing your experiences.
Thank you for the inspiration 🙏 I have Morgellons & bartonella & co infections you inspire me cause you speak so well and have cognative abilities to quickly adjust so very inspiring also thanks for all of this but especially how you went from 90 mph to 5mph and how no one understands cause I'm the energy guy among friends 6ft 3in 225 lean and no friend understands why I'm not going about with them like normal and it's frustrating and kinda hurts feelings they don't understand cause I think they don't care and the people that say it's in my head are no longer my friends and I consider them evil. Again thank you for sharing very informative and inspiring
Thanks for sharing. Hope you continue to do well and better everyday. Best!
Thank you!
Thanks so much for your video. It is a very accurate picture of dealing w lyme and co's from my experience, unfortunately. I shared it to my page to help spread awareness.
Hey Debra, cases are rampant here in New England. I see people doing things in the woods who don't seem to have any idea ticks even exist.
Jeez, horrific and inspirational story all rolled up into one. Congratulations for fighting so hard to win back your life. Working as a conservationist in South Africa, i was constantly bitten by ticks in the field, but only developed, what we used to call "tick bite fever" twice, and that was bad enough, but short term with some episodes reoccuring on an annual basis for a few years. Now I have "getting older" disease which sounds a lot like Lyme disease! Keep fighting, never give give up, never give in.
Ben, I want to visit S. Africa so bad. A friend here is buying property there, so one day.... We have a multitude of nasty tickborne illnesses here, Lyme is just one. Some are really deadly and there are no cures.
Thank you for sharing. Your message is encouraging to those of us with chronic conditions. It is possible to have a meaningful life, it just takes more effort! Thank you again, although I am not on your island, I have my own! :) I appreciate all the videos you post, Photography happens to be my new life after my condition derailed my cycling life!
Hey Cindy, I think I can see your island from my island! Yes to the effort. Makes you focus.
Thanks for sharing your story. I am glad you are coping, and have found the silver lining in that awful cloud, and have been able to advocate for yourself. When my dad was ill and in and out of hospital for several years before he died (age 91), I learned how important it is to have someone advocate for you if you can't do it yourself. I actually found something useful on the internet, and bless his heart, the doctor at the hospital read it, said he hadn't heard of it before, but said that, yes, this was what my Dad had. (I googled macular degeneration+hallucinations and found Charles Bonnet Syndrome).
Lisa, sorry to hear about your dad. You have to advocate. Most medical professionals are following a protocol dictated by the likes of pharma and insurance companies. They simply don't care. If what you have falls into the range of what works for them, sure, they are happy to play along and charge you do death. Lyme is the square peg.
Hey brother, I’m right there right now. It’s an uphill battle, thanks for sharing the light at the end of the tunnel🤙
Keep up the good fight.
I do look for photography stuff but I also watch your other videos with great interest.
Aso I do not have Lyme Disease I found this video very informative and inspiring.
Thanks for sharing and all the best!
Karl...keep it that way my friend. It's a bad one and the more alert we are the better off we will be.
My story. Oh my gosh. Been through this for over 30 years. How can someone chat with you. Llmd is insanely expensive. I walked this and still am. Way to bad I have been with Lyme disease for more than 20 years
go to shifter.media and send me a note.
@@DANIELMILNOR505 this is so similar to my life and more. I was sick since I was born into the united state navy. Make that make sense. New London Connecticut. Groton Connecticut. Maybe I sound a bit crazy. Assure you I am not. I have been questioning this my whole life and still as I breathe grandma said where the crows fly. Just a stone throw away from Plum Island. It was all covered up. I have so much to say can’t write it down would like to talk about it.
follow that link, go to the menu and then to the contact form
Just came across this. I'm 3 yrs into my chronic lyme disease treatment. I love that you shared! I can relate, of course, to it all. 😅 I am doing pretty well and am staying positive! Take care to all!😊
Good for you. It can take quite a while but what other choice do we have? Take care.
Impressive testimony, Dan. I like the "no big deal" attitude to it, which creates a contrast with the seriousness of what you're actually saying.
Florin, there were times when it was a huge deal but it was somewhat internal because most people are healthy and are doing what they need to do. So you internalize and pretend all is well. After a few years it's a real drag especially when there is SO much bogus info about Lyme.
Yo bro ham - you holdin secrets on dem glasses. Gimme the low down - super cool look. What are they ? I want to get a pair!!!
Easy. Oakleys. I have three pairs. Always glued to my melon.
Man... I really hate that you've had to go through all of this. But like you said you've turned things into a positive out of it. I really believe things happen to us so that we can help others who are or are going to walk a similar path. On another note. I just received your Panama book in the mail from Blurb. Excited to crack it open and take a look... 🙏✌️
Hey Scott, ya it's been a long six years, that is for sure. What Panama book?
@@DANIELMILNOR505 I did a search on blub for books you've done. There was a photo book on Panama that came up so I bought it. I'm now guessing that's not your photo book that I bought and waited over a month for as it got lost in the mail. Lol.
I’ve had Fibromyalgia for 11yrs and now I have been diagnosed with a recent Lyme Disease Infection. Only reason I found out is that I wondered if my Fibromyalgia was really that! Now I have both. The symptoms were so similar. Now I don’t know which are which, but I must say my pain and stiffness has increased big time.
Fibromyalgia seems to be a blanket diagnosis for undiagnosed disease
THANK YOU! I just watched “I’m not crazy, I’m sick” and I feel as though, as a Lyme patient, you hit the subject better than they did! And I have more hope watching you than the documentary. Thank you. Write a book please!
Yes, have hope. You will figure it out.
My husband and I also got Lyme in 2014. We never got a bullseye rash and we were out of work about a year. We are both Full Time Realtors so it was financially, emotionally and any other way you can think of very challenging. We went through our life savings to save ourselves. Most of what you said sounded exactly like us. We went through our primary care dr who happens to be LLMD here in Largo Florida. We were very lucky to have this in our lives. We went through IV Silver Hydrosol Therapy and then Silver orally for a year and then continued as well. We have been on many supplements and also have epstein-barr and other co-infections. I had to stop driving as I had blackouts like you describe and other issues with brain fog. So many people are misdiagnosed and have other illnesses that do not get diagnosed. We feel very lucky and very fortunate. We feel wonderful and we help so many people by having Lyme. I just got a call on Saturday from a colleague whose daughter was bit by a tick. She is 3 years old and she sent me pictures. She had her on Doxycycline on Sunday. She was able to get the tick and the head out immediately so hopefully she will be well at such a young age. Thanks for the video. It was awesome.
Hey Pat, we are now related through the family of Lyme. I was also fortunate having a job and I figure Lyme cost me $40,000 easy. I don't think American's want to look at something like health care and think "It's corrupted." Lyme is evidence it is and each of us has to undertake the voyage almost entirely alone.
So much of your story is DEAD ON with mine. Got sick on the West Coast, or Japan (Nara likely) what’s the decade of misdiagnosis, gaslighting, people insisting that it’s all in my head and that I’m just fine and making it up, because I was a tri athlete prior to hitting a wall and going to zero. so freaking amazing how prevalent it is, yet the government coverup has alerted a lot of us about the BS going on at high levels- even before the most recent “situation” in Feb 2020….
My experience is that Americans, many of them anyway, still believe we are the "good guys," no matter the facts. I get a lot of questions and doubt from folks. "Oh, that would never happen," or worse yet "Oh, that doesn't make sense," because it hasn't happened to them so they just discredit the entire thing. And the people doing the lying love every minute of this.
Man! I was about to say something about plum island at the beginning of this video. It’s a dam shame what has and is going on, on us guinea pigs. Sick, disgusting and evil!😡. Good to hear yer story and glad yer doing better. Good luck
I was diagnosed with undifferentiated connective tissue disease but now I believe I have chronic Lyme or both. I went to a little fun local outdoor concert in 2015 in Colorado and got diagnosed with the rash several days later and now several years later I’m having severe neurological symptoms and I feel like I’m going to lose my shit 😭 I’ve seen so many different kinds of specialists and I’m so tired physically and mentally. Thanks for sharing your story. ❤️
Your determination to find a way out is inspirational, I’ve had Lyme and co-infections for I’m guessing at least six years but was recently diagnosed and same as you never found a tick bite or rash. What I find intriguing is that you state you would rewrite the treatment you went through specifically the use of antibiotics. I have not tried them and just started a new treatment that is herbal tinctures based. I would be very interested in hearing what you might do differently in hindsight whether that’s here in this forum or a different avenue. Thank you for sharing your experiences and insights
I would go straight to IV antibiotics. Pulse them on and off. Skip the pills. Just not strong enough. And I would start the Vitamin C and Gluathione IV's from day one. Still do diet change as well.
I have suspected Lyme for over 30 years, symptoms started when I was about 12 and I’m now 47. Overtime they morphed into other things, but it mostly started with ridiculous fatigue and a lot of mental health issues as well as getting sick way more often than other kids with high fevers, then came chronic pain, vestibular migraines, which are not a headache. You feel totally disassociated. I get a weird metallic taste in my mouth insane vertigo. My blood pressure goes up and I feel totally disoriented and panicked. There was an entire year that I was totally bedridden, and most of my family thought I was being lazy .
There are more but I won’t list them.
I have talked about Lyme to every single doctor I’ve seen which have been countless for the last five years after I learned more about it. But other than positive IgM antibodies, the standard testing came back negative.
FINALLY went to functional medicine at the Cleveland clinic and they did Igenex testing which found it as well as TBRF. I’m waiting for results on mold, toxin testing, which is a whole another bag of
d!cks.
This just happened in March 2023 so I don’t know what lies ahead. I feel very hopeful, but it does really surprise me HOW unfamiliar this the doctors I’ve seen are. Some of them I think our legitimately great doctors as far as their intention, I do not think they are owned by Pharma.
My primary care doctor has been very supportive. He just hasn’t known what to do and the infectious disease doctor I saw was the same way. But I just can’t believe how they don’t know this information when it’s so readily available now.
The infectious disease doctor I saw I had never even heard of Igenex testing. I sent him a podcast interviewing the CEO and although he said it wouldn’t play through the portal email he did look them up and read her bio and what they do there. He Said her bio was very impressive. But said he didn’t understand what was different about it than what he did and he didn’t want me to get ripped off because it was very expensive.
Anyways, I need a Community, I need support. I don’t want to join something where all people do is complain about how awful they feel. But I do need understanding, and most likely neural retraining.
Thank you for sharing this story I hope someday I can use my journey to help people ! 🙏🙏🙏❤❤❤
This is very interesting... I’ve never met someone who have had the disease, but here in YT I’ve heard two stories already. I mean, the most important things are: 1. You are sharing your experience with people who might be suffering from the disease, and that alone is great because they do not feel like sitting on an empty island. 2. You made the most out of it and grow as a person. That is very good.
I feel very sad to see such a modern country as the US having so many problems regarding health... and also is terrifying to think that the proper information is not being shared with people... ignorance is deadly.
I resonate with a lot of things you say, Milnor. Mostly I come here to hear what you have to say about photography, since I find it very very useful and enjoyable, but this I watch because I think that hearing testimonies like these help us being more open to whatever someone might be facing because of some disease, in this case: Lyme. Also, gathering new information is never a bad thing to do.
Carlos, I was both proactive and lucky. I had a job that kept me on. And I had insurance through my job but sadly most LLMD's don't take insurance. I had to pay out of pocket for most of my treatments. But, Lyme is famous for coming and going. So I have to keep it in mind, always.
What a story man... Glad you are a bit better. Joe Rogan talks about Lyme frequently in his podcast because of hunting. He was saying similar stuff about the origin. Not a scientist of course. But still... Maybe you can send him a message or something. :)
Woah, this is insane.
I have AS, I went to every doctor around and could not get diagnosed, they kept telling me there is no reason for the pain I was in every day, and to shake it off and return to normal life, untill finally after an year I got diagnosed. The pharma industry is beyond evil,
Keep looking for ways to heal, maybe Ayurveda or medicinal mushrooms like Reishi.
I'm glad you are doing better, this was inspiring.
I think it’s a combination of treatment until you unlock your riddle. Immune system is key. Building it up.
Appreciate this information. It’s important whether we have it or not.
Pausing and Writing notes down as watching this, we moved from UK to Massachusetts Dec 2019 was amazed in the amount of ticks dog got on her from the forest we are in every day, started from February time even with her monthly tablets least they don’t latch on. Made home made spray and we all wear a (tick sonic guard thing) apparently makes them lose there coordinations within six feet of it. Always checking soph (my wife) and the dog also me. Nasty stuff.
Oh yeah also got the grass tick treated too, sort of freaked me out. Around 10 years ago had a tick latch on to the back of my leg, pulled it out and doctors sorted antibiotics.
Take care go steady interesting video thanks Sam
MA is really bad. I have plenty of friends there with Lyme and many, many others who have had close calls. Dogs are a transfer vehicle to humans, in some cases, meaning the tick will move up the food chain from the dog to the human, so good you are checking.
The second time I watched this…I have goosebumps! This is THE BEST video I’ve ever seen on what my son and I are going through!
PS. My son sees that doctor in MI. Amazing story about how he got into it! I’m not sure I should say his name, because I may have to go for further treatments.
PS, If you have mold toxicity, you’re probably going to test positive for Lyme because your immune system is compromised and it allows the Lyme to resurface.
I've got a friend here in town who walks with a cane due to Lyme/Mold.
@@DANIELMILNOR505 I’m not surprised!!
BTW, Thank you for responding. I appreciate it. This just confirms my own research on my past mold toxicity and now Lyme, with a PCR of Babesia Mycroti. I lost my teaching career to the physical and mental effects of mold, but realize I had Lyme as well. Breast implants set this off 20 years ago. ❤️
I love this. THANKYOU for sharing. I have Migraine disease. I always look fine, people cannot understand how debilitating something can be thats invisible.
Angie, very frustrating. "You don't look sick." And you are standing there barely able to converse. Stay with it. I know CBD helped me a lot with inflammation. Getting good CBD, another challenge.
@@DANIELMILNOR505 I have discovered that im able to learn more about it/ help myself way better myself than going to a neurologist who only wants to medicate. ive looked into CBD I need to look again! diet is huge contributor, thanks for the advice. 👌
You do a great job of telling your story. Just wanted to say that! I have been sick since 2009...finally diagnosed with Chronic Lyme in 2016 through an LLMD, and western blot test (but I had to figure it out through my own research, go figure). I'm finally going through treatment, started last year. Having a very rough time with treatment and the lyme, so getting the tick 2.0 test, so they can find exactly which of the over 350 strains of borrelia that I have and which co infections, so they can better target it. Seeing an LLMD, a Natropath, and a nurse practioner, who all work together. Could not have found a better team of Dr's to treat this. But WOW, this is one long, bumpy road!!! My friends literally thought I was dying too. I get that! But I will fight the fight until that Lyme is gone!
I just stayed with friends and they weren't up to speed on Lyme. When I began explaining these things I could tell there was a bit of skepticism about how and why this could be a reality here in the US. I've found if someone has a friend who got over Lyme quickly, then that just erases anything else associated with the disease. When you start explaining about being sick for years they just tune out because it doesn't seem possible. Good luck and stay strong.
@@DANIELMILNOR505 thank you! Yes. I'm lucky to have 2 close friends and a husband who gets it and sees it, so I'm so thankful for that. Everyone else does just tune it out! Just because you don't look sick, doesn't mean you aren't sick. I'm so thankful to be being treated, and also have a regular neurologist who believes in chronic lyme.
In the beginning of your video you spoke about being unwell as a child. How is your mother's health? I passed it to my children and believe that you can be re infected, passed through bodily fluid and let's not forget that none of the bloodbanks are free of it.
Look up the video "What we're (or you're) Not Being Told About Lyme Disease"
Very Informative
she has vascular dementia caused by undiagnosed LYME.
Hi Dan- Sorry to hear. My comment won’t do my thoughts justice, but I appreciate you sharing your story. I’ve had CIU (Chronic Idiopathic Urticaria) for 18 months and taking a variety of toxic medications that are making me less healthy. No one has been able to address my symptoms and my allergist even referred me to the Mayo Clinic, who decided not to help me after I filled out their questionnaire. I’m running out of options. I’m going to experiment with the usual non-dairy/non-gluten diet and hope for some change. Thanks for sharing.
Get a Lyme test, just for giggles. It is THE most misdiagnosed disease in the country.
you are so right same here in Belgium...
Thank you for this video! All that you are saying sounds so familiar! I am living in Romania, Europe but things seem much the same regarding Lyme. I have had a very difficult time to get a doctor to believe me that I have Lyme, and this has happened even though I kept the tick that bit me, sent it to the lab and it came back positive with borrelia burgdorferi. I have travelled half the country and abroad in order to get treatment.
Since no one wanted to give me treatment I went from doctor to doctor and one particularly vile lady doctor even asked if I am married and have children because she thinks that I don't have this in my life, that I have nothing to keep me busy and I have developed an obsession for borrelia. She did not even pay attention to my tests properly, I had to point out that she had read negative instead of positive but she wanted to send me to the psychotherapist.
I am very happy I never listened to these people even though in the moment they made me feel like I am crazy or bitchy or many of them said: "Why are you so scared? Why do you worry so much? You are an anxious person!". I was not scared, I simply asked them questions and expected logical answers that would not contradict each other. I simply wanted them to take a careful look at all the tests I had done and not rush the consultation I was paying for.
Really sorry to hear that. This morning alone I've had phone calls, emails and messages from folks with Lyme, here and abroad, who are all in the same situation. It's criminal but part of the process now. My suggestion is to take care of what you can take care of even without a doc's help. Things like diet, IV's of vitamin C and Glutathione, etc. Sleep, water, strict diet. Then find the doctor that believes and find a drug protocol that works.
Thanks for answering, Daniel! And thanks again for sharing this video. It's great to get some confirmation that I'm not the only one and not crazy. I'm on antibiotic treatment now, but there are still a lot of difficult choices to make and a good medical professional is hard to find. I'd like to ask you a few questions about your experience with lyme, so I'll drop you an email today. Please write back if and when you have time. Wish you good health and all the best! :)
Thank you for your story I've had it for over 15years its terribly hard. I would love to know more about your treatments I'm on the west coast need some llmd recommendations
"My guy," is on the OC at Amen Clinics. www.amenclinics.com/team/mark-filidei-d-o/ He's very involved in the Lyme world and is a no nonsense guy. He was the one that got me on the path to recovery. IV's, meds, a plan to combat the co-infections, etc.
Thank you..
Thank you
Hi Daniel,
Thanks for your video and experience. My older daughter that was studying at Boulder colorado CU, at the end of last year, was diagnosed with Lyme disease, just the same day when she was flying back home to Chile. Since then (8 months ago), she has been facing many of the symptoms that you described, and unfortunately, she is not recovering. She was tested in Chile, and the result was negative. Still, here Dr´s don´t have the experience, so we started visiting different specialists looking for another reason for what was happening to her. When I saw your video, I weak up and decided to stop looking for other purposes and come back to focus again on Lyme. Unfortunately, we are in Chile (South America), so I need to flight to the US with my daughter and visit the right specialist that can help us with a protocol or treatment. Could you please send me any information about your Dr. in San Diego that helped you?
If you prefer to emailing me, I will highly appreciate that and you can use javier@geomar.cl
Thanks a lot.
Hey Javier, really sorry to hear this but I'm not entirely surprised. Some of the basic blood cultures will test negative for Lyme, even if you are positive. One of the ways physicians and medical groups in America get around treating Lyme patients. Will email.
Make sure the tick is removed in the proper manner. I had one stuck in my knee without noticing it, brushed it away casually, saw it running away and realised it was a tick. One of its claws remained in the wound, took me months of problems to finally get rid of it.
Yes, removal is key. And testing. Many of the labs here are overwhelmed with volume but still worth doing.
This year here in Michigan ticks are really bad. My dog actually contracted a tick borne illness that according to our vet she is only the third case in history and they didn't know it existed in the USA. It was the craziest thing she would act like she had arthritis for a couple days and then seem better. One Sunday last month she spiked a crazy high fever and we rushed her into an emergency vet and they ended up only figuring it out by looking at her blood under microscope and looking through medical journals. They put her on this crazy drug cycle for the whole last month and right now she is doing well but they have no idea if there will be any lasting symptoms. That has really made us extra worried about ticks with all of the other diseases they cause and now there is a new one that they don't even know if people can get and had no idea it was here until our dog went in to the vet a little over a month ago.
Spoke to doc in MI who said he wasn't known for treating Lyme but had line out the door. It is the perfect type of terrain, foliage and animal network. I love me some Michigan and have family there. Sorry to hear about dog. Also love me some canines.
Could you please tell what was the desease name your dog had? Thanks 🙏
@@DANIELMILNOR505 son sees that doctors. Amazing man! Sorry… can’t edit on my phone.
I have a friend in the US who was diagnosed with LD on return from Cuba. Suffered for 3 years and lost eye focus which was dreadful as a full time photographer. Travelled to every doctor in USA. Somehow, discovered it wasn’t Lyme, black mould had grown to high level behind wood panelling in his house. Got rid of that and recovered. When he was OK his wife left him as his illness had pushed her over the edge. Just saying. :-)
Second, I’m waiting for COVID-19 to pass and then I face 6 weeks to 6 months of daily treatment in a Hyperbaric oxygen tent. You made it sound horrible and I’m not looking forward to it now. Thanks. :-)
Mold is TRULY horrendous and can cause all kinds of damage. I have a friend who walks with a cain due to mold exposure.
I was recently diagnosed with Lyme disease as well after 4 months of going to 8+ physicians. What we’re your coinfections? Also do you think your recovery would’ve been shorter if your doctor treated the coinfections first? Thank you. Your story is very inspirational & is giving me hope that I can get through this.
aspire.care/blog/bartonella-babesia-coinfections/. Right here. And yes, it was not until I met my fifth and final LLMD that he said "We gotta kill these coinfections first."
Very good video - did you had any suicidal ideation trought all this mess ??? Or, it never cross your mind ?
It never did, but I've never had those thoughts outside of Lyme either. I do know, however, that many others do, and I can see why. When you can't escape the physical or mental side, it can get very, very tough.
Should not have watched this. Ticks and Lyme freak me out and I did not know it was that bad. Now, with this covid pandemic, I have been wondering how people with lyme feel seeing all the effort that the scientific community is putting in the virus and how small improvement it is made in Lyme even though it is growing and spreading dangerously.
It's frustrating. But it's been happening since the 1970s and the American public, for the most part, is in denial about the corruption level permeating the medical community.
@@DANIELMILNOR505 Is that denial linked to how the health system works over there? If health works as a business and not like a public service I imagine that a chronic disease on the raise is a big no - no for them
Irony in that Covid19 will also be used as one of the cover stories . For Lyme disease story until Covid 19 finds a true cure.
I love Bitten...from what I've researched...she is spot on.
Agreed!
Hi,thanks for sharing your story it is very helpful and inspiring!! For two years I have pain in my muscles and they are very tired I'm not bedriden but gym or any exercise make me very tired/i was exercise every day before that/ all started like this,and ofter that I developed trigeminal neuralgia bilateral atypical/pain and numb face/also very big pain in my legs/arms tunels/like in restless legs,and carpal tunnel but emg not shol anything abnormal/ ton of blood work and doctors and everything is normal.Lyme test negative, but It looks like to me like chronic lyme, now im book for lyme specialist,can you tell me to you how is look my story.I know that you're not medical but I need little advice becouse Im basically alone and in big pain every day,this my main problem for men.Any advice will be good for me.
I MISSED HOW YOU GOT TO THE POINT WHERE YOU COULD RIDE YOUR BIKE, HMM I CAN MAKE IT TO THE COFFEE POT. WOULD LOVE TO FIND A LLD. NOPE NO ENERGY TO GET THERE ... LIVE ALONE.
A long process. Meds, IV's, diet, hyperbaric, etc. It's doable but you have to determine what co-infections you have first and then address the Lyme. A good LLMD is essential. Most docs are entirely clueless about the disease and face pressure from insurance and pharma NOT to diagnose.
@@DANIELMILNOR505 I was a postwoman I not could ride a car but when I was on the bike then I was back in pure mind the same day but in the car I had tunnel sight..... Antibiotica can nog go in tissues and there is the lyme hiding till you have stress and then it flares up...
@@DANIELMILNOR505Anti biotica is not good for lyme thank you ..
Also wanted to say I’m from Nor Cal we’re I got Lyme and Drs don’t believe it’s here.
NoCal, especially the Sacramento area, is one of the worst places in the US. Even the parks in San Francisco have ticks carrying Lyme. Most doctors are useless.
Thank you for this information. I too an in NM, I was bitten at a local park. I began to feel like hell 4-5 months but I think covid caused a flare in virus's /bacteria. How are you feeling now?
I'm mostly good but I have to pay attention to it. I also have to prepare myself differently especially when it comes to cycling, hiking, etc. If I don't mind my levels I will suffer for it. How many times have you heard "You can't get Lyme in New Mexico."
@@DANIELMILNOR505 never once ! There needs to be more awareness. Are you able to do hard labor and runs ? I can’t jump rope as long as I use to. I had to stop boxing 😞
Thanks for being so honest and sharing your story! I got my AG23 zine a few days ago. Been enjoying it a lot!
Mine will be here Friday!
Love to hear that!
Sounds godawful. Wishing everyone who has it good luck with finding appropriate treatments. It’s scandalous what you described about the big medical brush off in the US. I must check out the government’s stance on it here in France.
Rare to find a proactive country.
Thanks , you told my story other than timing. Got sick in 1998 when "lyme literate doctors" didnt even exist.
I can only imagine. And look at how terrible the industry STILL is. Lyme taught me how corrupt our system is and how clueless and uninterested most doctors are.
You gotta use your gut with the vast majority of so-called Lyme literate doctors because many simply self-identity as such; there is no rigorous science-based standard related to the LLMD label per se say, so be careful here. The red flag is any doctor requiring cash up front, or at time of visit if you prefer. Many desperate patients flock to "LLMD's" and justify the often hefty fees that these doctors change up front because their treatments are somehow superior, their knowledge greater, but that's often not the case at all. Please do your own due diligence by reading good peer reviewed literature to start and don't forget that unequivocal science will always be stronger than anyone's opinion. I wish you good health and peace.
Thanks for sharing this. I recently got diagnosed with Lyme also after going through months of symptoms, doctor after doctor, and blood tests. Thankfully I been doing better but the brain fog and disassociation you mention where you feel like a second or two behind still is there to some degree. I also experienced vision issues where my vision does not adjust to darkness so well. I am on my 3rd week of antibiotics and see some improvement.
Did you try any herbal protocol such as Buhner or Cowden? I am working with an LLMD but do not want to keep taking antibiotics as they are hard on the gut and stomach.
Thanks!
In my experience, most doctors are unfamiliar with the illness. If bitten or in doubt, ask for the appropriate antibiotics.
Difficult to get tested in certain part of the world. Latin America, apart from certain areas of North Brazil, is supposed to be free of the desease, hence testing there is close to inexistence.
Testing is hard almost everywhere. I still talk to people in New England who have trouble. Entire orgs in California won’t talk or diagnose it. I know because they shut me down.
I’ve had Alpha Gal for over 20 years. It took me over 6 years to get a diagnosis. This tick sickness makes you allergic to beef and pork. Any mammal that is bitten by the same breed tick I can no longer eat. When the sickness was at its peak I would have full anaphylactic reactions.
They claim at least 500,000 Americans alone now have that same issue, which means the number is mostly likely 5x-10x.
Got bitten by tick lyme disease in 1995 the year spring before yellowstone reintroduced the grey wolf. Got MisDiagnosed with epilepsy 1998 .Does it need to be diagnosed and managed as Lyme disease to be able to manage living it ? vs Epilepsy ? As the pain symptoms still linger 37years later
that sounds about right. Lyme requires specific treatment, especially when it comes to the co-infections.
My blood test on my western blot is IGM 41 AND 23 pos and in the IGG I have POS 23 I took the test to my local doctor she said Ted were did you get this test at ..I said quest I paid for it I said look says right here I have Lyme disease..She tossed me out ..Now I'm loosing all teeth fast my eyes are turning black like I got beat up..
Doctors are often caught between the AMA that denies Lyme is an issue, and insurance companies that flat out tell docs NOT to diagnose Lyme. I was thrown out of several offices for even bringing it up.
I GOT BITTEN BY TICKS IN MY YARD LIVE ON THE SIDE OF MOUNTAIN SURROUNDED BY WOODS/DEER. GOING TO THE MAILBOX WALKING MY DOGS, COUNTLESS TICK BITES. LOST TWO DOGS TO TICK DISEASE WHICH IS A WHOLE OTHER STORY.
I can't even get a doctor's appointment 😩 and in the past i went to several...here's anti depressants...🙄 and its either fibromyalgia or lyme disease or hoth knowing my luck....🙄 and i live in the uk💜
What is Big Pharmas incentive to overlook Lyme disease?
They don't have a revenue stream. The only existing treatment is antibiotics which are often given as a two-week cycle AT MOST. For pharma, this doens't work. They want you on meds you have to take for the rest of your life. There was a vaccine, briefly, but it wasn't effective and wasn't profitable enough.
The almighty dollar. They don’t want to retrain their doctors, who don’t learn about mold and Lyme!
Great video! I also struggle with Chronic Lyme and your story sounds familiar to me. In Europe there are no real LLMDs around to go to unfortunately. The ones I went to were all very disappointing.
Two questions:
- Do you still have confidence in the expertise of regular doctors other than LLMDs?
- These spikes you are experiencing: Are they occurring every four weeks perhaps?
Just like car salespeople, there are good ones and bad ones. An open-minded doctor is a good thing, but also tends to be rare. Docs here specialize and if something is outside their normal routine they often aren't interested. So no, I don't have much faith. My spikes don't happen on a regular schedule. They seem to come out of nowhere. I have to be careful with physical extreme exercise, diet, alcohol consumption, supplements, sleep, etc. So far, no pattern. Sorry to hear about your struggle but hey, we'll get there.
@@DANIELMILNOR505 Thanks for your quick response!
I also haven't got much faith in doctors either.
The best thing we as Lyme patients can do is to keep spreading our stories just like you do in your video.
This is my third year on antibiotics (currently 3 ABs). I have babesia and bartonella as well, and I think these two are worse then Lyme itself.
I agree. And you kinda have to get them BEFORE you get the Lyme.
I think even when the bacteria’s are out. The nervoussystem and immunesystem are running over still. So brain retraining could help :)!! I am also rock bottom like I am going to die and now trying it
You need to find the ONE thing that begins to tip the scale. Could be drugs, diet, IVs, something.
The worst desease i have known. It ruined half of my life. 🥺
It's a nightmare. Not for everyone but for many of us. And the misinformation coming from CDC, AMA and the rest is borderline criminal.
Hi,
I was recently diagnosed with chronic Lyme as well as other chronic illnesses and autoimmune illnesses and this is after going to dozens of doctors and functional medicine doctors. I recently had to stop working and dropped out of school and the non profit organization I was with due to my illnesses.
I was wondering if you would offer any kind of guidance so I can get to feeling at least half of how I used to feel?
Hey Emily, sorry to hear that. Always happy to share what I know. I'm not a doctor but sure did go through a lot which might help you. shifter.media has a contact form you can use.
Hey Emily, sorry to hear that. Always happy to share what I know. I'm not a doctor but sure did go through a lot which might help you. shifter.media has a contact form you can use.
Could I have gone 35 years without knowing? I think I have it.
Yes, that is more common than you know. A friend in Maine, undiagnosed for 30 years. My mother has advanced vascular dementia caused by undiagnosed Lyme.....
Yes. My doctor said I probably had it as a child and I’m 68. They think Lou Gehrig died if Lyme. It causes ALS, and he was from Lyme, Connecticut!