Yes and not only do they know that, they take advantage of that and BULLY AND ABUSE US!! That is the even sicker part of it. If I had a dime for every psycho “doctor” who yelled at me and was absolutely wrong.. I’d be rich!! It’s a shame bc there are a few incredibly good, honest, decent and knowledgeable doctors out there just not enough. I basically almost died if left up to them but I had enough will to live that I found ways to naturally cure myself (almost!) it only took 8 excruciatingly long years and a few doctors who listened and gave me what I requested. For the rest… BITE ME!!!
Thank you for this video. My daughter was diagnosed in 2012 when she was 17. We suspect she got it when she was 5. 13 years undiagnosed. 13 years of being told nothing was wrong with my kid. 13 years of doctors writing in her notes that I was making her sick. I was happy to know there was a reason when we found out, but the ride for the last 4 years has been awful!! A year and a half of antibiotics and expensive supplements and she is still testing positive for Lyme. She is 22 and her life is full of pain and uncertainty. It's beyond devastating. I am broken and so is she. Oh and it was my daughter's Algebra teacher who told us to test her for Lyme. Yes folks. Her Algebra teacher diagnosed her. Not a freaking doctor.
+Melissa Abbott You know when your ill and your life becomes unmanageable. People cannot fake these symptoms. They're horrible. Hope she is getting help. Still none in Arizona.
AMC...sorry you have this insidious disease, I have it too, for 10 years now. But please don't convince yourself there is no hope, there is ALWAYS hope, in fact you happen to live in an area that has multiple options for treatment. It hinges on your finances, but if I had the $$$, I would opt for high dose IV Vitamin C, IV Ozone, or IV H202. Unfortunately I don't have the dollars for the consistent application of those treatments, but maybe you do. I'm taking the slow, but cheaper route, herbal tinctures and enzymes, and I'll be taking them for the rest of my life. Best of luck to you, start checking around for some places that offer the IV treatments, they work.
Mister EIE Thank you. I will look into it. I'm limited in funds also. I've been disabled from this illness for 15 years now. Trying not too lose hope!!
11 years undiagnosed for me, and yes, this disease wreaks havoc on one's body and life. To think that a child would go through this truly breaks my heart, and I can only imagine how difficult this must have been for you as her mom.
An incredible discussion of Chronic Lyme Disease by one of the world's top experts! Amazing! Thank you Dr. Phillips for exposing CDC and IDSA's lies about Lyme! NIH's Mishandling of Lyme Disease is "a Horror Show." -Stephen Phillips, MD, past President, International Lyme and Associated Diseases Society
I want the $80,000 out of pocket that I spent so far trying to find a diagnosis and then treatment not covered by insurance. If I had been tested in 2011 when I came home from Cape Cod by my physician instead of laughing at me when I suggested I might have Lyme after having a rash and the flu instead of it growing inside me until I tested positive in 2013 I wouldn't have been left with multiple sclerosis type symptoms that I can only manage through treatment right now. There is no cure for those of us who have had the infection for nearly two years before treatment. GP, to internal medicine doctor, to neurologist, to rheumatologist, to ENT, to endocrinologist, to cardiologist, to acupuncturist, to chiropractor to natural medicine doctor until finally finding a diagnosis. 20 months of nearly losing everything and the hopelessness of doctors telling you there is nothing wrong with you.
Tony Felice - I am just going to say, I am so extremely sorry for what you had to go through, and what you still have to go through because of our Mafia criminal medical establishment. Even a million dollars cannot pay you back for your loss. Nothing can. I do wish you the best in seeking treatment. Treatment works, early treatment is superior.
My boyfriend was airlifted from a local hospital to a top hospital in our State with internal bleeding, etc... He is a tree worker and was a landscaper for many many years. Anyway, after 2 days in ICU an Infectious Disease Dr. came into the room and started asking questions. About Mono, STD's, etc.. I mentioned I wanted a Lyme test. He literally yelled "it's not Lyme"...Well guess what, after 7 days in ICU and a positive dx of Lyme and Babesiosis which is a parasite disease. Really, the first words were "it's not Lyme" and they weren't going to test him.....I am so grateful for this video and I am calling Dr. Philips office in the morning. Shame on the CDC....Yeah, Dr. Phillips
Thank You for this video. I have had Lyme disease with a co-infection of Babesia for eleven years. It has destroyed my life physically, financially, socially and has strained my relationship with my family. Many days I feel like I am just existing and not LIVING. A great video that all medical professionals should watch.Kathy Gosselin
Exactly, Kathy. For what it's worth, after 2 years, your story has helped me to not feel quite so alone and to know I really am not crazy--well, not totally--, or stupid. or weak, or pathetic. Thank You, and I hope you are doing better. Check out Dr. Richard Horowitz... Blessings to You...;0)....
My situation is similar as I've been fighting Lyme and coinfections for 12 years. A couple of years of expensive antibiotic treatment did help at first but I'm still very debilitated and rely on my parents to look after me. They are old, retired and at times, losing patience with the relentlessness of this and keep asking when I'll be independent and looking after myself. I'm in England and no longer have faith in the LLMD I was seeing some years ago. I'm housebound so don't have the option to travel for treatment either. I just feel so stuck.
I’m being treated by a natural healer in Canada. He treats people worldwide without antibiotics. empathealing.blogspot.ca He has had success for a number of illnesses but is focused on Lyme. Highly recommend.
Exactly, not LIVING, just Existing barely, I do mean barely I am sorry for us, just remember, detour people, wicked detour, the future IS GOING TO BE A BEAUTIFUL PERFECT PARADISE and, the only thing this wicked system of things can do about that is, to make the GOOD HEARTED suffer terribly. Knowing the TRUTH is half the battle, and oh what a battle it is...Aah !?!
I have had chronic Lyme for 11 years now, i was ill for two years prior to being totally taken over by the disease remembering a rash 4 years prior around the trunk of my stomach never knowing about Lyme. Like all other patients seeking help i was seen by 12 specialists in every area of the medical field and walk away depressed and wanting it all to end. I was in a black hole, i first reached out for physio therapy because of thoughts of killing myself. I was an athletic healthy woman my whole life and no one could help me something was taking my life over. While playing competitive women's softball i collapsed with heat stroke that seemed to be the start of my journey into a life of hell. I experienced joint and muscle pain, migraines, head and body ticks like Parkinson's, light and hearing sensitivity, fatigue could not lift my body and panic attacks. Need less to say i lost my job and became disabled. Now after years of Lyme disease treatment i refer my self as a functioning Lyme patient. If i get stressed, change of season, cold weather or have surgery i relapse and it can last months. So here we are summer 2016 bite by another tick and on major antibiotics again. WHEN IS THE GOVERNMENT GOING TO FUND THIS MAJOR EPIDEMIC.
Same story almost to a tee good luck. I can’t believe the drs I get major ptsd if I go to public hospital/healthcare so much I can’t walk in the doors anymore I would ratheff to die in the street.
These are fantastic interviews. Thank you for doing them and getting this information and informed medical opinions out into the world for everyone suffering to find.
Thank ya'll for speaking out I wish everyone lived by those words "you have to do whats right in this world" I am 36 & have had Lyme my entire life & was just diagnosed this past year I have never known normal & the worst part is my Dad was diagnosed with Lyme in 1981 at UVA after he had seizures & over 100 blood clots one went threw his pancreas causes him to go into a diabetic coma for about a month & that's when I they found out all of his medical problems came from a deer tick bite As many times as my mother told me that story I never remember hearing the words Lyme disease it was just always deer tick bites on Daddys legs which they actually wanted to amputate I always knew if I even wanted to have a conversation with him it couldn't be about today or yesterday it had to be about years ago because that's all he knew I've walked right in his path & have gotten to visit the same places such as the psych ward I have taken care of this disease sense I was 15 because it took away my dad's ability to take care of hisself & even though most nights I ended up on the floor crying & screaming & praying to God so loudly I know he had to have heard because Daddy medicated hisself with alcohol as well so he wasn't always the easiest patient I could never leave him even though there were some nights my Mom & I would ride around & finally find some church parking lot we could park the car at & sleep in the car for the night because the Lyme & alcohol didn't mix & he would go into rages & just beat on the walls all night I can't even believe that this disease that I watched destroy him was also living inside me & destroying me as well I can't even begin to touch how this took away disease took away everything from me growing up... my mom because she had to work 2 jobs due to medical cost my dad because he wasnt Lyme had taken over his entire body from head to toe I guess I never realized how crazy I was growing up because I was to busy taking care of him & making sure the house was clean mom's laundry was done because she worked so much I could tell a million stories about how my entire life has been about this disease & just how it truly destroys families All the years Dad was in & out of the hospital no Dr even mentioned they were testing him for Lyme I recently saw his medical records from a 2007 trip to the ER it stated the DR came in to check tick bites on his legs he was having hallucinations he had no alcohol or drugs in his system but that he could go home No wonder he did usually drink because no one would help him The last thing I want to share is when my Dad went into that coma my Mom was in the process of divorcing him because of his drinking but the Dr's told her he would never walk out of that hospital alive but he did & when he did he had obviously gotten better from the Lyme he stopped drinking for 12 years he didn't start drinking again until life became to stressful & his Lyme was triggered again but the CDC says there is no underlying cause of addiction I've always be told I was born with my that addiction inside me, born with the ability to make bad choices but could not have possibly been born with something psychical that my parents had That makes absolutely no common sense Thank God I did find a wonderful Dr who has been treating me for Lyme & helping me get my common sense back
Jessica Turner Sooooooo sooooo sorry! 😭 I hope you’re doing better now in some miraculous way. I hope you will seek counseling too. You have to talk about it all... 🤗🙏
I've had Lyme for over 20yrs and its leveled out to a manageable level to function mostly normal. I had to self diagnose myself and tell the dr here in California to specifically test me for Lyme and it came out positive. I was out on antibiotics for close to 2 years on the couch and and finally felt human. I still have heart problems and foggy memory. I have been using medical marijuana to get sleep and relax... Helps me a lot to hold my job and get needed rest. If you're a dr reading this it's absolutely real... Get over it and start researching. Great video. Thank you
Lyra Nara it's on utube. Lymes is their specialty. They cure it with a powerful herb. Dr. Christine Siepe can treat you from a distance after studying the blood sample you send her. The herb is Atemesian.
@@Kate-jh1yp Did she cure your Lymes? I am certain that doctors like Dr Phillips would look into use of this herb you mention if it has worth. He is clearly passionate and genuine about finding a cure for these conditions.
THANK YOU THANK YOU THANK YOU! I was diagnosed in 2014 with Lyme and am still battling and am finding it hard to be treated. The cover up is so egregious and I fear that my life will be shortened because of lack of concern in the medical community to get down to the real grit of Lyme and finding cures!
I have natural remedies that work every time, and as an energy healer, I treat with the frequency of the needed remedy. This way, Lyme is gone in less than 15 minutes.@@cryptomojo9728
Went to three hospitals, one a children's mental hospital with proposed schizophrenia and schizoaffective disorder and was ordered to a mental institution. Thank the lord for my parents who ignored those reductionists and was referred to Carrie Yerkes P.A. outside of Charlotte, NC. 3 Months into treatment and already back in school and prospering socially and academically. Spread the word folks who have a testimony that will help EVERYONE become familiar with lyme and its ramifications.
I lost everything my health, my work as a nurse, my children, my daughter who died with lyme, my friends, my self esteem, all this while my ex is trying to destroy me wont let me see my children. If I could afford a lyme doctor I might have a chance its been 35 years my whole adult life. Was it the 5 blood transfusions I got in 1978 after an accident? never felt well after that. Its a nightmare disease and you do feel like no one cares. My ex tells people Im a faker ! Believe me I used to .work while the room was spinning around Im tough but this is impossible! Id rather have a life and not be beggiing God for help all day and night. Thanks Dr Phillips you are a hero in our lyme community.
What you wrote here Elsa is almost identical to what my life has been like since 1980, the summer I painted the outside of my house. Bites and rashes on my legs I attributed to other bug bites. From there, have been fighting uphill battle. I will not write the history here, too tired....be assured I have empathy for you and all the others here. I pray a miracle comes your way....by the grace of God. Do not give up....as long as we have breath, we have a chance to have a better quality of life.
Same here, elsa; I sincerely hope you found a way to health. I'm in the same situation; I'm doing this on my own, no doctors will treat me up here anyway, so I've begun studying Dr. Richard Horowitz, and reading his excellent books, especially his 2nd one HOW CAN I GET BETTER; he has several videos here on YT. I know this is a bit late, but if it helps anyone even a little.....
I'm right there with you. I didn't lose any children yet but they haven't had any symptoms except one got breast cancer in her early 30s. She's doing okay. She runs now, not fast. She's 6'1". I hope you didn't get any of my blood. Not sure when I got it but it could have been around the time that you got it. I donated blood most of my life because I had no idea I was sick. I quit donating when I was diagnosed. Where did you live in 1978? I have the severe dizziness now.
I have found Dr.Donald Liebell In Va.Beach I have been treated for three woks. Already feel better just pray it continues. Invented be our government they want us dead. Dr. Liebell is a holistic dr.
What strikes me in most good Lyme interviews like these, is that they are solely focused on tick bites. Where is the information about infections by mosquitos, flees, horse flies, blood donation, pregnancy, sex, etc?
They do not seem to acknowledge studies that have shown these routes of transmission. Like it is some big secret. And they fail to mention the link to Alzheimers as well.
cause it is a biowarfare disease. It cannot be acknowledged just like Gulf War Syndrome or Syphillis-Tuskagee. The aim is to infect and document for future, not treat. Read about Plum Island.
It is because it is too hard to go off the subject to other vectors. There is so much controversy that to deter to other vectors is an automatic disqualifies the speaker with the listener. So, most advocates will narrow their discussion to the most critical points. This interview covers more than we get...and it is amazing to see how much they were able to cover!
Yep. 2004 two doctors said I have borrelia in my blood but trivialised it. In retrospect I had classic symptoms. By 2007 I was virtually in a coma with paralysis, a fit and severe head pains and phenomenal pressure. I was an athletic adventurous marathon runner. Doctors are STILL saying it's psychological (!!!!). By pure chance I found a Lyme doctor who immediately put up an antibiotic drip. Oral and IV antibiotic continued for 5 years in total as it keeps coming back. Still now in crippling, horrific daily pain. The health insurance only pay for antibiotics. So I pay all my own health costs. I can't sustain this neither physically nor financially much longer. And this is Germany where there supposed to be oh so Lyme aware. Yep, it's an ABSOLUTE horror show. The ignorance is overwhelming - yesterday I had to explain at the pain clinic what a herxheimer is...
Invest in Biocidin, buy directly from the site not Amazon so you know you are getting the actual product. The liposomal version is superior. Follow the dosage directions to a T. The next thing is Tu Fu Ling (Chinese sarsaparilla) it has to be the Chinese kind, no exceptions. Oregano, Clove, Cinnamon, and Garlic oils have all been scientifically proven to kill spirochetes in 7 days without regrowth/return of infection. Same with grapefruit seed extract and whole stevia extract. I wish you the best of luck.
This interview explains the disease well from both doctor and patient perspective, very familiar to me as a mother of a child who had a long struggle with Lyme. As I learned more, I advocated more for his treatment, and eventually he overcame his symptoms. I am convinced that a person cannot overcome this disease without treatment, because the bacteria cannot be removed from the body without treatment to kill it.
You deserve a lot of credit for helping your child. Most of us get no support from even our families and that prevents us from fighting for ourselves. Just too sick to care anymore, if nobody else cares, why bother? Especially when the treatments can be so miserable and often ineffective.
@@johncaccioppo1142 never give up!!! Keep your diet healthy not much processed fast foods, Organic, gluten free, low carb, low sugar. Green/black Tea. Add Cumin to all your foods daily. (Or can take a pill) Take a spoonful of Apple Cider Vinegar diluted in clean water daily as needed and add more vitamins, enzymes (Beeno) as needed until you feel better. Also vit D, C, B, calcium (Osteo Biflex) fish oil, flax seed oil, omega 3, DHA for the brain health. doxycycline and anti-fungal pills as needed. Pre and pro biotics (Digestive Advantage gummy’s organic salads) organic blueberries for gut health. Anti-inflammatories (Zyrtec) Mucinex for sinuses/ear infections, walking or exercising as much as you can. Dance, sing, Meditation. Mindfulness. Support groups, friends. Educate friends and family. Spiritual supports. Keep on truckin’! 🙏❤️
I am in the UK. I have been sick with Lyme since a tick bite with EM rash in 1988. Bitten again in 2013 by another tick. I have finally been diagnosed with Lyme disease, Anaplasmosis and Rickettsia (all contracted within the UK), but it has taken 28 years and a lot of heartache and perseverance to get this diagnosis and some form of treatment. It's a national disgrace and I'm very angry about how much my life has been devastated by something which could have been treated all those years ago :'( We need change very soon, this is wrecking lives. I have most probably also infected at least one of my children and breastfed for 18 months as I was not aware that I had Lyme disease then. I feel so guilty!
It was done as part of the "extended lyme panel" test done by Porton Down RIPL. I was positive for Epidemic Typhus and Spotted Fever Group but I don't know if they tested for others as well.
First time I got fired as a patient because the doctor didn't like my question or questions. My feelings were so hurt and I cried for three months. I didn't know where to go or what to do when I was so sick. Just to be short, I can tell a doctor off very easily now. I first learned to really put them down and if they yelled at me, which many of them did, I yelled right back. I now take the approach of sympathy for them that did not receive proper training in medical school. That catches them off-guard and usually leaves them speechless. Sometimes, rarely, they are interested and want to learn and want to help and do all they can and even learn. Sometimes they just say other things. I figure it takes about ten doctors to find one that might be helpful.
It's rare to find a doctor who can perform a clinical diagnosis these days. They're not properly trained. The only thing they know how to do is order tests. They can no longer read patients.
I live in Ireland, in 2008 I was bitten by a deer fly and during the following 3 weeks I had a red circle on my knee which the locals all dismissed as some kind of bite and suggested I take piriton. By the 3rd week it had changed to a rainbow circle that covered my whole knee. Black in the centre followed by yellow, red, green and blue a perfect target. One night I felt like I was dying with flu like symptoms and others. Eventually the next day after I had begged my husband to call a doctor we managed to get a lift into town. The doctor I saw was a stand in for my usual one who was on holiday. He gave me anti hystamines and pain killers so I left thinking that was all it was. An hour later he called me at home and told me he had been speaking to a friend of his who is a blood specialist in Cork hospital and told him it was Lymes they were both quite excited and wanted me to go back in the next day so I could meet up with them. The doctor also sent a different prescription to my local chemist. Apparently I was only the 2nd known case in this part of Ireland so not many doctors knew what it was. I was unable to get transport to see them both so just took the new medication. Now I have Lyme's arthritis, Fibromyalgia and lots of other related symptoms I don't know what to do as my current GP has brushed lymes off as being something that happened years ago and wouldn't be relevant to any diagnosis now?
Thank you, They now act as though Lymes is a figment of people's imagination and say that everyone in this area of Kerry would have markers for Lyme's because of all the deer in the National park.
GPs and Infectious disease specialists in Ireland follow the CDC Lyme guidelines. Which are entirely false and out of date. Take matters into your own hands, trust me. I live in West Cork, have had neurological Lyme for 13 months, I bounced around between doctors for 8 months before educating myself. I was in the Hudson Valley in 2014 but may have caught Lyme here also like yourself. Your doctor more than likely gave you a few weeks of Doxycycline when you first developed the rash, but this is entirely inadequate to treat later stage forms, and may not even eradicate early forms. Other antibiotics can help you though. Stop listening to your ill-informed GP, there is A LOT you can do for yourself, people who take a pro-active approach to healing their Lyme get better. If you want to talk more, message me.
I can't stress enough the importance of NEVER accepting Prednisone if there's even a slight chance you have lyme disease. Due to a misdiagnosis of Vasculitis by Cleveland Clinic in '05, I was given steroids from 2 - 80 mg. per day for one year. That allowed the lyme to flourish. I'm now completely disabled with neurological chronic LD, battling dozens of symptoms daily and praying for the "cure." One year of oral antibiotics tore my stomach up leaving me with chronic gastritis. Insurance will not pay for IV antibiotics. Yes, millions are suffering like me.
thank God for you to people. and the interviewer all three of you be blessed. I have Lyme I have had to do it myself I've had to get my medicine overseas I only found out I had it because a friend of mine told me his symptoms it blew my mind he was officially diagnosed I was not. So I quickly moved on this. I would love to see dr. Phillips
I live in South Florida and was diagnosed a month ago after seeing 12 Dr's. I can not find a Dr that treats Lyme disease. The last infectious disease Dr I saw wants to put a PICC line in and 4 months of recefton. Where is he located I will travel for treatment?
+Kimberly Gentile you found a dr willing to treat you, but don't want the treatment? Dr Phillips is in Wilton, CT. There is a group on facebook called Florida Lyme League that can give you a list of drs in your area. Also Florida Lyme Disease Association and Florida Lyme Support Group. They all have great info. And people.
Michele, I got the list from the ILAD. There are very few and none accepts my healthcare.The Infectious disease Dr wants to treat it with a PICC line and 4 months of rocefton, however the Primary says I have too much Fungal infections happening so antibiotics for that long can hurt me.
+Kimberly Gentile i sent you friend request on facebook. you can accept and then see the list of lyme groups I'm in and ask them how they handled the lyme with fungal inf. Lots of experience there. And some doctors as well.
I had a positive western blood in 2003. My whole life was taken from me. I've seen dozens of doctors. When I have a flare I go to the urgent care get doxycycline and that's how I've been treating my own Lyme, because I cannot get a doctor to address my symptoms. I get liaison in my mouth, headaches, stiff neck, joint pain, reoccurring sinus infections and my vision is so bad. If I don't get antibiotics I end up bedridden and out of commission. I'm furious with these doctors that don't listen to reason. I live in Tucson, Arizona but I believe I was bitten when in Colorado. I cannot get them to even test me for co infections without them saying if I had these I'd be dead? This has been a 17 year nightmare. I was active and an loved life, now I'm lucky if I do anything that doesn't take the wind out of my sails. Just getting through the day is a chore. We need help, how do we get it?
please launch a big awareness, I have suffered since 2012 and fibromyalgia is my diagnosis but enrs ana are always there, extreme fatigue, brain fog, pains everywhere, mental instability like depression anxieties, severe poor memories. I am in Alberta Canada where MS and a lot of other autoimmune diseases are prevalent and we are in large farming and ranching communities. The doctors here need absolute course on this!
I have had Lyme for 31 years. Diagnosed 3 years ago by a LLMD. How did I get it...blood transfusion. I lived in CA had a car accident in 1985 and was in a hospital in Reno, NV. I have the EAST coast Lyme and co-infections. I had never been on the East coast. I became systematic while I was in Rehab working through my injuries. All things considered....I am much better but am now suffering a set back. Living in central AZ and contacting Lyme clinic in Scottsdale......what an ordeal for Lyme patients.
It's so true and very sad. I've seen doctors at Penn Medicine, John Hopkins, several local Delaware hospitals. They have absolutely no idea how to detect and treat this disease.
I have been self treating while I wait for someone intelligent to guide me through it. I am so grateful when I see CZcams videos like this. But I am still suffering everyday. And a lot of us don't have the money to get these elaborate treatments from some of these specialists
I'm doing the Rawls MD protocol and have the supplements on autoship for discount. I'm one week in and I feel like I have a little bit more energy. They say it takes people 6 months to 12 months of being on the protocol to feel 50% better with the average being 9 months. Here's to hoping fingers crossed!
I am in the middle of a Lyme horror story, my wife has been sick for over 3 years in bed, wasting away she has gone to over 20 doctors who told her it is in your head, go home and get a life. She would not come positive on the Elisa or western blot finally positive on 57 test, the infectious disease were the worst. We have spent copious amounts of money and she in the beginning was getting really well, but the factor told her I can't give you more then a month to 6 weeks of meds. When the meds stopped she immediately to awful.
Had lymes Carditis month ago, felt fine after treatment of 200mg doxycycline. Now I'm having trouble waking and getting up with horrible pains, tingling and aches, walking slowly until I can stretch. Feel like sleeping all the time, getting depressed a little. I'm anxious and lay down watching TV all day. Can't stand the sun and used to love the beach. This video is so helpful but where can I find a good Dr? Maybe I have MS. Ear ringing and brain fog is horrible. Every day is a struggle more and more.
I had Lyme for three years before diagnosis. only one month initial treatment. got bitten by a tick in 2009 and not diagnosed until 2012 when I had stroke like symptoms .now in 2016 I am still sick. auto immune markers such as high antiphospolipids ,double stranded dna and polyclonal gammapthy. joint pains,pericarditis with SVT ,fatigue ,burning red fingers etc I do have a great internal doctor who believes in chronic Lyme. just had a scope to check for internal bleeding as have anemia and if after all tests come back o.k I will do a longer antibiotic course. despite the awful side effects . more awareness about Lyme is needed. I was pregnant when I contracted Lyme and after one fever my amniotic fluid got too low. thankfully my son is o K. he has life threatening food allergies .not sure if any connection. at the time I was diagnosed with swine flu by a doctor that did not bother to do a swab even though I was pregnant. . Anyhow I changed my health insurance because my old insurance were very Lyme disease ignorant. so glad I did . I used to run but now walking causes pre synscope. hope one day to feel better. feel so bad about all the people wrongly diagnosed with other diseases and being treated with steroids when they need antibiotics. scary that healthy ticks contracted Lyme from patients with ' post Lyme disease' in the studies conducted.
Just saying, I would think your son has Lyme. I have Lyme, and as it gets worse, so do the allergies. I is much more effective to treat a young child than to wait until it becomes so permanent. Hope your son gets treatment. Just my opinion.
I have it since my childhood after getting sick from a tick-bite. I get antibiotics early after but never really recover from it. Now 16 years later I'm chronically ill from lyme-disease and several other infections but no one believed me even with positive bloodtests.
I love your anger. I am very tired of all those, doctors and others who say you have to handle this disease emotionally. Lyme victims who are angry, and have good treatment resources, can, by enlarge, recover.
Ha! So great to see someone else who is tired of hearing everyone talk about the emotional side of healing lyme. I just got what I am calling a "happy" angry (cuz I love it!) a few months ago when I discovered Chronic Lyme Disease and I WILL get better because of it! I think I have had this since childhood with odd symptoms. Got really sick 8 years ago but mild enough for Drs (& myself) to write off. So Fucking Done!! I loved the anger too 😁
I also must share, so many take this seriously. I’ve had a stillborn, ( twins), I’ve also had many miscarriages, 3 of my children I have with me on earth, two of them have had blood cancers, my son received a Bone Marrow transplant from my oldest daughter, it saved his life. Cld shouldn’t be ignored. During the time I carried my children, I was diagnosed with MS, this was back in the early 80’s. One thing that sticks out is when I was taking the prenatal vitamins, & being pregnant, I felt really healthy!! When I went through Holistic care and treatments for Lyme’s, my body finally, began to feel healthier than I’d felt in such a long time. Now, in my late 50’s, I’m feeling worse when I began treatments 6 years ago. I’m being invaded again with this horrific disease, I’ve been trying to find another way of treatments, simply because, I have so much to live for, my grandkiddos, kids, & during those months when I finally was feeling really good, I dream of this feeling again. Wouldn’t we all when that felt so good, to feel so good?!!
Its controversial because there is a cover-up regarding the origin of Lyme disease, the complicity and/or ignorance of various medical professionals and societies regarding the nature and severity of the disease, and the rush to profit from an ill-conceived and disastrous recombinant vaccine. Without a cover-up the liabilities would be incalculable.
I have known this doctor for 20 years..Back years ago...he was looking in the right direction..I have watched this video...and HE IS SPOT ON...especially about the medical community calling a host of other serious medical 'SYNDROMES' such as Parkinsons , M.S. A.L.S. , Chronic Fatigue, Fibromyalgia, heart disease , in utero heart damage ( babies , fetus get sick when in the womb) etc....HE IS CORRECT....DISULFIRAM , BTW WORKS...Thank you Stephen Cohen and his wonderful wife and Dr. Liegner and Doctor Rajadas at Stamford University for having the guts to let patients try this.. DISULFIRAM .IT FUCKING WORKS....This came out before the first DISULFIRAM treatment came out...BTW.STEVEN.....you are SPOT ON....you always have been..GREAT RESPECT FOR THIS FELLOW
I just finished 3 mos. course of Disulfiram at full dose. You are right. It kills spirochetes better than anything, because it is a very small molecule which penetrates the brain and biofilm. But the treatment is horrific and can leave you suicidal. Not for the faint of heart.
If you have been diagnosed with lyme, have you looked into mold as it mimics the same symptoms. If you have not been tested for mold highly suggest you do.
I also get bit by many other bugs and many people i know do not get bit by bugs. I wonder if its something in my blood that attracts bugs. Something in my blood getting me stiff and getting arthritis?
I've heard information that the government infected ticks and the Northeast with Lyme disease as a bioweapon and is doing research on the public about the effects of Lyme disease. Make no mistake there is a history of our government doing study such as this on its citizens. This would not be the first time that this would have been done. Please dr. Phillips look into this!! I've been diagnosed with fibromyalgia and I'm on disability as well as my daughter and we are suffering greatly. I suspect we have Lyme disease as I remember a terrible tick bite as a child.
I’ve been dropped by many doctors , they don’t believe Lyme’s exists, I have CLD, with all the testings and all. It’s unreal how much damage it’s caused my body, crazier, not one of those doctors truly wanted to do any further testings. Our story is so familiar.
Definitely go to a Lyme Literate Dr if you suspect Chronic Lyme Disease. Regular western Drs and even many specialists rarely if ever have capacity to treat long term Lyme or Neurological symptoms. I was lucky to find a specialist LLMD / ND who treated me after 25 + years of misdiagnosis, and probably saved my life as I was debilitated / in severe decline.
If only people would invest some time & educate themselves PRIOR to getting infected and thus help to shorten their personal struggle through misdiagnosis & treatments. This is truly a wonderfully informative interview and I've added it to my list of Lyme edu videos. Thank you Fox5NY and Dr Steven Phillips & guest (Dana?). The very last part helped me to figure out that even though all 3 of our children from birth had struggles, our first was breastfed the shortest amount of time but today he's seeming to be the healthiest. I never knew breastfeeding was an issue yet I had not been properly diagnosed with Lyme then either. So connecting the dots continues!
Many get Lyme disease NOT from a tick, that's true. My hope is that awareness about the truth about how Lyme disease is spread will empower people to become proactive to protect themselves. I never had a bullseye rash & can't determine how & where I was infected. Likely that's the case for others too. Nobody is invincible yet it seems that the CDC wants to keep people clueless.
Even if you are educated, like me, you may not have the funds to do anything about it. So you are left trying to educate the mainstream doctors, and failing.
Let me clarify, I'm dismayed with our US Government, Medical, Legal, & Insurance professional communities about the truth that's getting brushed under the rug & sadly generations are seriously impacted.
I'm still pounding my already aching head against the wall for running through grassy fields and thick woods for years totally clueless and ignorant about lyme disease. I figured if a tick bit me, I'd feel it, and if it spread lyme disease, I'd get the bullseye. When I DID suspect I had symptoms of lyme (5 years ago), my pc talked me out of testing. She said it would cost a lot of money, insurance wouldn't cover the more accurate test nor the antibiotic treatment if the test was positive. She advised me to buy several vitamins from her site to support my immune system (which I still take). Now I regret not pushing for that test. It truly is an insidious disease. I'm seeing an infectious disease specialist now and spreading the word to others. But even those that ARE informed and DO their best to protect themselves and their children and pets can get infected. It's a microscopic PREDATOR!
Good straightforward explanation of the disease and the politics. Using antibiotics, however, is dangerous and backward. Chronic lyme and similar syndromes require a more comprehensive and gut-friendly approach.
The same in Denmark I have the same problems Dr don't want to help me and the don't Care respect this strong woman I have been to Dr one week after tick bite Dr she's told don't worry nothing worng go home and 2 months I have lyme
Said that to me, too. I wonder if they just don't know how to treat this. It's crazy and quite negligent not to even refer people to an expert, in the least.
What about a walk to WDC. " L'Union fait la force". We must demand the Congress to acknowledge the needs of our amazing youth stricken by this disease. Most are not even able to walk. We will walk for them. A support system has to be established asap. This is an extremely expensive way of no life. Sufferers need emotional, physical and financial support. Insurance companies must change their system in regards of Lyme. Let us get organized, donate time and voice. Approach your local papers, write in your blogs, talk to your colleagues and friends, search Lyme cases through your area newsletters. Organize and address your representative. Celebrities are useful to propagate the message. Address them for help. This is what I do since my lovely young daughter was diagnosed and goes through hell.
I’ve had it 11 months. My old army buddy now a MD is on it and has really been the only doctor to even act as though it’s real or post Lymes. Please let me get better I’m just now having heart weird things happening. And Alzheimer’s type things.
Omg I have all these symptoms and I was diagnosed with Lyme couple of days ago. I have depression and anxiety and heart issues and rash and joint pains and so many other things. It’s so sad. I had mri done and nothing was found. I had sooo many tests done and nothing.
@@HighFiveFriend I’m doing way better now. Thanks for asking. I’m improving my gut and trying everything holistic and I’m feeling way better now. A total different person. I’m glad this treatment is helping.
For years doctors have been telling me I have Fibromyalgia with no proof. I’m starting to think I have Lyme disease instead. As a man I’m told that Fibromyalgia is rare for me. So maybe it’s Lyme and I need to be tested.
Yes. 10 years ago I had heart failure. They put me in heart floor of hospital and put a stent in heart. Never followed up with any other symptoms. Said it is common to have ANXIETY, which I said how does that manifest? They gave me Klonopin and said to keep doing my yoga after follow up visit. This is just a preview of decades of being a host to LYME. NO HELP FROM DOCTORS. EVERYONE OF THEM SENT ME TO PSYCHIATRIST. AMEN
I had the classic bullseye rash when my daughter was 4 months old. My doctor put me on penicillin for I believe 10 days. When my daughter was 4 years old, she had a horrible reaction to a penicillin antibiotic and had huge hives everywhere. The hives arrived on the 7th day of treatment. I had been breastfeeding when I took the penicillin. I feel like I should have stopped breastfeeding when I was determined to have been bitten by a diseased tick, but at the time my doctor told me it was safe to continue. My daughter is now 21 and has a lot of joint issues and a syrinx in her spine. I just wonder how much of this is all related to the Lyme disease exposure. And I wonder if I should have her checked for Lyme but it seems like the tests are not conclusive. I heard in this video that the treatment is doxycycline so I’m not sure I received the correct treatment for it. So much to figure out!
@@sandracrocker6143 she is well. Still allergic to PCN. She has had a couple of episodes of random allergic reactions we haven’t been able to pinpoint the source of. Not sure if it’s related to this or not.
@@sandracrocker6143 she hasn’t but that’s a thought! She has hypermobile joints and migraines, she has had a couple of random episodes of allergic reactions we haven’t been able to pinpoint the cause of. I will mention it to her doc! Thank you!
@@Racetigress It has been well proven that 2 weeks is not long enough treatment to kill Lyme. And it is transmissible to baby. It is a very high probability for both of you for Lyme/co-infections. I would recommend pursuing this HARD and with a LLMD or similar. Regular docs are not trained for this and testing can cause life long issues and disability if not addressed. Here is my other channel/playlist and contact info is there if you want to chat further. m.czcams.com/play/PL-mRlb8isgG2jeUt-oslk2A2w08OXyVg2.html
Sylvia Birkhammar , Your best bet my friend is a course of Doxycycline and an excellent diet, no stress and rest often. It can take up to a year or longer to improve significantly. Work to boost the immune system after your doxy treatment. Avoid smoking cigarettes, alcohol in any large quantity or at all. Watch being out in the sun with Doxy, you become sensitive to light and get headaches often among other side effects and because of the purging process the body goes through. I cannot stress drinking enough good water and quality vitamins and minerals. Take salt baths, Epson salt or the like and try to keep as active as possible after the initial shock is ocer. Good luck and Lord bless you
This last time if I didn't go to ER when I did I would be DEAD. My children told me to go. Finally I went. I was told j almost died. 4 days of IV Doxycycline and still almost died.
I was treated for 2 wks with Doxcycline six years ago. I had heart palps, brain fog and more. My blood test was NEG. I started taking specific vitamins i read about and Glucosamine Condroitin MSN. I started to become allergic to things. two CT surgerys with ganglion cysts. Shoulder surgery. Gall bladder out. I still wake up very stiff many days. Have a Swollen hip that comes and goes. Other hip hurts now and again, comes and goes! What is wrong? Maybe RA or arthitis. I went to a RHeumatologist and she said if my blood test was NEG that i did not have lymes! Don't believe Her! Where can i find a great Doctor?
+Kat Trina. I am so very sorry you are being mistreated. I call it extreme medical abuse of Lyme disease victims. Not perfect, but a place to start. If you look up a local Lyme support group and go to a few meetings, you will learn how Lyme victims in you area get treatment. You may have tried this already.
I know exactly what you mean about the pain that comes and goes! I have Lyme, EBV and VZ (shingles) viruses. Have suffered for endless years. No reliable tests available. Multiple food allergies, endless pain, brain fog, memory loss. Was supposed to have my gall bladder out but didn't, as I discovered it was "referred" pain from Shingles. Finally a naturopath tested and I was positive for all three viruses. Gave me herbal medicine (liquid) and within two weeks the pain had DRAMATICALLY improved. I feel 30 years younger? I'm still working to rebuild the immune system as the Lyme is still showing, but at least life is more normal. I also have Celiac Disease which is common factor with Lyme. Celiac means I have major problems with any "drugs". Most doctors do not study Lyme or viruses, so cannot help.
15:31 Why didn't the guest who wrote a book level with the interviewer by telling her the truth as to why Lyme is so controversial and the reason why the government want touch it with a ten foot pole. They would not tell her so I will. The first cases of this disease was discovered in children in the 1970s in Lyme Conn. after they had been playing around a boat dock that brought workers to and from a bio Terr or isM lab on Plum Island, located 10 miles off-shore. This lab employed a Nazi scientist, that came over after WWII, with the now declassified Project Paperclip, and his expertise was in warfare using biting insects. The bottom line is that the governments we have entrusted with our health and well-being have become almost fully corrupt and are not overseeing "leaky" labs that contain dangerous pathogens and this needs to be addressed by Congress. There is no value in creating more pathogens that can somehow get out of a "leaky lab". There is enough already to wipe out known populations. It is pure lunacy for our taxpayers money to be spent making more. Most people would hand big Pharma the money gladly than to go through what we are being put through with Lyme and now the virus. More protections need to be put in place. Also, no monies should be spent developing new pathogens to infect humans. That money needs to be spent on preventing and curing the pathogens and the chronic illness caused by them that humans are now experiencing.
I still do not know anyone who is 'cured' of Lyme (I had a Lyme support group so I know quite a few people with Lyme), yet this young patient is 'well'? From treatments that do not work for most Lyme patients? Do tell what the miraculous treatment was? I went to a prominant LLMD and did not get better after 4 years of antibiotic treatment including iv antibiotics and including high end alternative treatments like hyperbaric chamber treatment. Nada.
please tell us how to get to this doctor..... I can find no one no dr who even knows a thing..this has all but killed me and my children who all have it..one lost his legs the other seizures..she s an rn...and other lost his mind....its horrible....im still alive and desperately need to get to this intelligent dr....
can we improve the bodys defense somehow? is a lyme vaccine possible? interesting that so many female singers have lyme btw, shania twain and avril lavigne too.
I live in CT...we DO have a senator who has advocated for Lyme: Richard Blumenthal. Also I’ve had JIA and the ONLY antibiotic we really use is Sulfasalazine. I’ve never experienced improvement with other antibiotics and I’ve had it for 20 years. Parkinson’s and Alzheimer’s can be caused by mitochondrial dysfunction and Alzheimer’s may be part of a type of diabetes. This guy is full of it.
Cure Lyme with T cell activation causing T cell proliferation with NB protocol nbprotocol.proboards.com/thread/90/cell-activation "This process leads to the production of many millions of T cells that recognize the antigen."
Dr Phillips should look into Dr Brownstein & Dr Flechas per iodine, boron, etc sufficiency. I understand that that's not the route he's attempting to take things from a public-fight perspective, but from a treatment /aide perspective it may help many of his patients. Seemingly a bit too much reliance on prescription drugs that, by his own evidence presented, don't entirely work much of the time. ..and they don't contradict but compliment one another in fact.
There are other subcutaneous parasites that carry bacteria that cause the same symptoms. Dirofilaria Repens (dog roundworm) for one, it carries Wolbachia. It causes a suppressed immune system, arthritis, enlarged spleen, muscles aches, muscle weakness and eventually total loss, shooting pains, chronic fatigue, nerve inflammation. They're spread by ticks, mosquito's, etc, highly contagious. Published papers call it an unrecognized epidemic. It was 1975 when I was bitten, had a life of disability, unable to work, an indescribable journey, still no resolution, still being passed from doctor to doctor. I've purchased the treatment from India, nothing left to lose.
This one of the best interviews on the subject I have ever seen
Indeed, this is my go-to video to send to newly diagnosed people that are confused by all the disinformation / controversy
This video saved my life.
"Alot of time we're really too sick to argue..." that's right on
Yes and not only do they know that, they take advantage of that and BULLY AND ABUSE US!! That is the even sicker part of it. If I had a dime for every psycho “doctor” who yelled at me and was absolutely wrong.. I’d be rich!! It’s a shame bc there are a few incredibly good, honest, decent and knowledgeable doctors out there just not enough. I basically almost died if left up to them but I had enough will to live that I found ways to naturally cure myself (almost!) it only took 8 excruciatingly long years and a few doctors who listened and gave me what I requested. For the rest… BITE ME!!!
Thank you for this video. My daughter was diagnosed in 2012 when she was 17. We suspect she got it when she was 5. 13 years undiagnosed. 13 years of being told nothing was wrong with my kid. 13 years of doctors writing in her notes that I was making her sick. I was happy to know there was a reason when we found out, but the ride for the last 4 years has been awful!! A year and a half of antibiotics and expensive supplements and she is still testing positive for Lyme. She is 22 and her life is full of pain and uncertainty. It's beyond devastating. I am broken and so is she. Oh and it was my daughter's Algebra teacher who told us to test her for Lyme. Yes folks. Her Algebra teacher diagnosed her. Not a freaking doctor.
+Melissa Abbott You know when your ill and your life becomes unmanageable. People cannot fake these symptoms. They're horrible. Hope she is getting help. Still none in Arizona.
I'm so sorry about your illness. I wish there was something I could do for you. Hugs from a distance
AMC...sorry you have this insidious disease, I have it too, for 10 years now. But please don't convince yourself there is no hope, there is ALWAYS hope, in fact you happen to live in an area that has multiple options for treatment.
It hinges on your finances, but if I had the $$$, I would opt for high dose IV Vitamin C, IV Ozone, or IV H202. Unfortunately I don't have the dollars for the consistent application of those treatments, but maybe you do.
I'm taking the slow, but cheaper route, herbal tinctures and enzymes, and I'll be taking them for the rest of my life.
Best of luck to you, start checking around for some places that offer the IV treatments, they work.
Mister EIE Thank you. I will look into it. I'm limited in funds also. I've been disabled from this illness for 15 years now. Trying not too lose hope!!
11 years undiagnosed for me, and yes, this disease wreaks havoc on one's body and life. To think that a child would go through this truly breaks my heart, and I can only imagine how difficult this must have been for you as her mom.
An incredible discussion of Chronic Lyme Disease by one of the world's top experts! Amazing! Thank you Dr. Phillips for exposing CDC and IDSA's lies about Lyme!
NIH's Mishandling of Lyme Disease is "a Horror Show."
-Stephen Phillips, MD, past President, International Lyme and Associated Diseases Society
I want the $80,000 out of pocket that I spent so far trying to find a diagnosis and then treatment not covered by insurance. If I had been tested in 2011 when I came home from Cape Cod by my physician instead of laughing at me when I suggested I might have Lyme after having a rash and the flu instead of it growing inside me until I tested positive in 2013 I wouldn't have been left with multiple sclerosis type symptoms that I can only manage through treatment right now. There is no cure for those of us who have had the infection for nearly two years before treatment. GP, to internal medicine doctor, to neurologist, to rheumatologist, to ENT, to endocrinologist, to cardiologist, to acupuncturist, to chiropractor to natural medicine doctor until finally finding a diagnosis. 20 months of nearly losing everything and the hopelessness of doctors telling you there is nothing wrong with you.
You took the words out of my mouth. Financially and emotionally devastating all while being ill and in severe pain. I hope you are improving.
Have you tried the Cowden protocol? I've heard god things about it
or a rife machine? I've also heard good things about rife
Tony Felice - I am just going to say, I am so extremely sorry for what you had to go through, and what you still have to go through because of our Mafia criminal medical establishment. Even a million dollars cannot pay you back for your loss. Nothing can. I do wish you the best in seeking treatment. Treatment works, early treatment is superior.
+Tony Felice I feel your frustration. I've had every kind of doctor you mentioned, with no hope. I fear this disease will be the death of me!
My boyfriend was airlifted from a local hospital to a top hospital in our State with internal bleeding, etc... He is a tree worker and was a landscaper for many many years. Anyway, after 2 days in ICU an Infectious Disease Dr. came into the room and started asking questions. About Mono, STD's, etc.. I mentioned I wanted a Lyme test. He literally yelled "it's not Lyme"...Well guess what, after 7 days in ICU and a positive dx of Lyme and Babesiosis which is a parasite disease. Really, the first words were "it's not Lyme" and they weren't going to test him.....I am so grateful for this video and I am calling Dr. Philips office in the morning. Shame on the CDC....Yeah, Dr. Phillips
That's crazy!!! And infuriating! What is wrong with doctors, really!
Thank You for this video. I have had Lyme disease with a co-infection of Babesia for eleven years. It has destroyed my life physically, financially, socially and has strained my relationship with my family. Many days I feel like I am just existing and not LIVING. A great video that all medical professionals should watch.Kathy Gosselin
Exactly, Kathy. For what it's worth, after 2 years, your story has helped me to not feel quite so alone and to know I really am not crazy--well, not totally--, or stupid. or weak, or pathetic.
Thank You, and I hope you are doing better.
Check out Dr. Richard Horowitz...
Blessings to You...;0)....
My situation is similar as I've been fighting Lyme and coinfections for 12 years. A couple of years of expensive antibiotic treatment did help at first but I'm still very debilitated and rely on my parents to look after me. They are old, retired and at times, losing patience with the relentlessness of this and keep asking when I'll be independent and looking after myself.
I'm in England and no longer have faith in the LLMD I was seeing some years ago. I'm housebound so don't have the option to travel for treatment either. I just feel so stuck.
I’m being treated by a natural healer in Canada. He treats people worldwide without antibiotics.
empathealing.blogspot.ca
He has had success for a number of illnesses but is focused on Lyme. Highly recommend.
Exactly, not LIVING, just Existing barely, I do mean barely I am sorry for us, just remember, detour people, wicked detour, the future IS GOING TO BE A BEAUTIFUL PERFECT PARADISE and, the only thing this wicked system of things can do about that is, to make the GOOD HEARTED suffer terribly. Knowing the TRUTH is half the battle, and oh what a battle it is...Aah !?!
I have had chronic Lyme for 11 years now, i was ill for two years prior to being totally taken over by the disease remembering a rash 4 years prior around the trunk of my stomach never knowing about Lyme. Like all other patients seeking help i was seen by 12 specialists in every area of the medical field and walk away depressed and wanting it all to end. I was in a black hole, i first reached out for physio therapy because of thoughts of killing myself. I was an athletic healthy woman my whole life and no one could help me something was taking my life over. While playing competitive women's softball i collapsed with heat stroke that seemed to be the start of my journey into a life of hell. I experienced joint and muscle pain, migraines, head and body ticks like Parkinson's, light and hearing sensitivity, fatigue could not lift my body and panic attacks. Need less to say i lost my job and became disabled. Now after years of Lyme disease treatment i refer my self as a functioning Lyme patient. If i get stressed, change of season, cold weather or have surgery i relapse and it can last months. So here we are summer 2016 bite by another tick and on major antibiotics again. WHEN IS THE GOVERNMENT GOING TO FUND THIS MAJOR EPIDEMIC.
Same story almost to a tee good luck. I can’t believe the drs I get major ptsd if I go to public hospital/healthcare so much I can’t walk in the doors anymore I would ratheff to die in the street.
These are fantastic interviews. Thank you for doing them and getting this information and informed medical opinions out into the world for everyone suffering to find.
Great interview and information that needs to be spread far and wide.
Thank ya'll for speaking out I wish everyone lived by those words "you have to do whats right in this world" I am 36 & have had Lyme my entire life & was just diagnosed this past year I have never known normal & the worst part is my Dad was diagnosed with Lyme in 1981 at UVA after he had seizures & over 100 blood clots one went threw his pancreas causes him to go into a diabetic coma for about a month & that's when I they found out all of his medical problems came from a deer tick bite As many times as my mother told me that story I never remember hearing the words Lyme disease it was just always deer tick bites on Daddys legs which they actually wanted to amputate I always knew if I even wanted to have a conversation with him it couldn't be about today or yesterday it had to be about years ago because that's all he knew I've walked right in his path & have gotten to visit the same places such as the psych ward I have taken care of this disease sense I was 15 because it took away my dad's ability to take care of hisself & even though most nights I ended up on the floor crying & screaming & praying to God so loudly I know he had to have heard because Daddy medicated hisself with alcohol as well so he wasn't always the easiest patient I could never leave him even though there were some nights my Mom & I would ride around & finally find some church parking lot we could park the car at & sleep in the car for the night because the Lyme & alcohol didn't mix & he would go into rages & just beat on the walls all night I can't even believe that this disease that I watched destroy him was also living inside me & destroying me as well I can't even begin to touch how this took away disease took away everything from me growing up... my mom because she had to work 2 jobs due to medical cost my dad because he wasnt Lyme had taken over his entire body from head to toe I guess I never realized how crazy I was growing up because I was to busy taking care of him & making sure the house was clean mom's laundry was done because she worked so much I could tell a million stories about how my entire life has been about this disease & just how it truly destroys families All the years Dad was in & out of the hospital no Dr even mentioned they were testing him for Lyme I recently saw his medical records from a 2007 trip to the ER it stated the DR came in to check tick bites on his legs he was having hallucinations he had no alcohol or drugs in his system but that he could go home No wonder he did usually drink because no one would help him The last thing I want to share is when my Dad went into that coma my Mom was in the process of divorcing him because of his drinking but the Dr's told her he would never walk out of that hospital alive but he did & when he did he had obviously gotten better from the Lyme he stopped drinking for 12 years he didn't start drinking again until life became to stressful & his Lyme was triggered again but the CDC says there is no underlying cause of addiction I've always be told I was born with my that addiction inside me, born with the ability to make bad choices but could not have possibly been born with something psychical that my parents had That makes absolutely no common sense Thank God I did find a wonderful Dr who has been treating me for Lyme & helping me get my common sense back
Jessica Turner Sooooooo sooooo sorry! 😭 I hope you’re doing better now in some miraculous way. I hope you will seek counseling too. You have to talk about it all...
🤗🙏
I've had Lyme for over 20yrs and its leveled out to a manageable level to function mostly normal. I had to self diagnose myself and tell the dr here in California to specifically test me for Lyme and it came out positive. I was out on antibiotics for close to 2 years on the couch and and finally felt human. I still have heart problems and foggy memory. I have been using medical marijuana to get sleep and relax... Helps me a lot to hold my job and get needed rest. If you're a dr reading this it's absolutely real... Get over it and start researching. Great video. Thank you
Lyra Nara it's on utube. Lymes is their specialty. They cure it with a powerful herb. Dr. Christine Siepe can treat you from a distance after studying the blood sample you send her. The herb is Atemesian.
What are names of the tests
@@KikitheBarber I had the wester blot test.
@@Kate-jh1yp Did she cure your Lymes? I am certain that doctors like Dr Phillips would look into use of this herb you mention if it has worth. He is clearly passionate and genuine about finding a cure for these conditions.
THANK YOU THANK YOU THANK YOU! I was diagnosed in 2014 with Lyme and am still battling and am finding it hard to be treated. The cover up is so egregious and I fear that my life will be shortened because of lack of concern in the medical community to get down to the real grit of Lyme and finding cures!
I can help you if you are open to alternatives that work and work very quickly.
@@mikecarey1990What alternatives are you talking about?
I have natural remedies that work every time, and as an energy healer, I treat with the frequency of the needed remedy. This way, Lyme is gone in less than 15 minutes.@@cryptomojo9728
How are you today ? Your message is 7 years ago , I hope to hear from you
This Is an awesome interview!! Props to this doctor.
This is one of the best interviews with an LLMD I have ever seen. Bravo Dr. Phillips and thank you. Find me on Facebook big hugs
THANK YOU. There needs to be more courageous doctors like you.
Went to three hospitals, one a children's mental hospital with proposed schizophrenia and schizoaffective disorder and was ordered to a mental institution. Thank the lord for my parents who ignored those reductionists and was referred to Carrie Yerkes P.A. outside of Charlotte, NC. 3 Months into treatment and already back in school and prospering socially and academically. Spread the word folks who have a testimony that will help EVERYONE become familiar with lyme and its ramifications.
One of the best things I have seen in a while. Congratulations to the interviewer too!
I lost everything my health, my work as a nurse, my children, my daughter who died with lyme, my friends, my self esteem, all this while my ex is trying to destroy me wont let me see my children. If I could afford a lyme doctor I might have a chance its been 35 years my whole adult life. Was it the 5 blood transfusions I got in 1978 after an accident? never felt well after that. Its a nightmare disease and you do feel like no one cares. My ex tells people Im a faker ! Believe me I used to .work while the room was spinning around Im tough but this is impossible! Id rather have a life and not be beggiing God for help all day and night. Thanks Dr Phillips you are a hero in our lyme community.
What you wrote here Elsa is almost identical to what my life has been like since 1980, the summer I painted the outside of my house. Bites and rashes on my legs I attributed to other bug bites. From there, have been fighting uphill battle. I will not write the history here, too tired....be assured I have empathy for you and all the others here. I pray a miracle comes your way....by the grace of God. Do not give up....as long as we have breath, we have a chance to have a better quality of life.
Same here, elsa; I sincerely hope you found a way to health. I'm in the same situation; I'm doing this on my own, no doctors will treat me up here anyway, so I've begun studying Dr. Richard Horowitz, and reading his excellent books, especially his 2nd one HOW CAN I GET BETTER; he has several videos here on YT.
I know this is a bit late, but if it helps anyone even a little.....
I'm right there with you. I didn't lose any children yet but they haven't had any symptoms except one got breast cancer in her early 30s. She's doing okay. She runs now, not fast. She's 6'1". I hope you didn't get any of my blood. Not sure when I got it but it could have been around the time that you got it. I donated blood most of my life because I had no idea I was sick. I quit donating when I was diagnosed. Where did you live in 1978? I have the severe dizziness now.
I have found Dr.Donald Liebell In Va.Beach I have been treated for three woks. Already feel better just pray it continues. Invented be our government they want us dead. Dr. Liebell is a holistic dr.
What strikes me in most good Lyme interviews like these, is that they are solely focused on tick bites. Where is the information about infections by mosquitos, flees, horse flies, blood donation, pregnancy, sex, etc?
They do not seem to acknowledge studies that have shown these routes of transmission. Like it is some big secret. And they fail to mention the link to Alzheimers as well.
He does talk about pregnancy and sex. But yes, they should always mention insects can transmit it in addition to ticks.
He does discuss Alzheimers
cause it is a biowarfare disease. It cannot be acknowledged just like Gulf War Syndrome or Syphillis-Tuskagee. The aim is to infect and document for future, not treat. Read about Plum Island.
It is because it is too hard to go off the subject to other vectors. There is so much controversy that to deter to other vectors is an automatic disqualifies the speaker with the listener. So, most advocates will narrow their discussion to the most critical points. This interview covers more than we get...and it is amazing to see how much they were able to cover!
Thank you for all you both do for the Lyme community.
Yep. 2004 two doctors said I have borrelia in my blood but trivialised it. In retrospect I had classic symptoms. By 2007 I was virtually in a coma with paralysis, a fit and severe head pains and phenomenal pressure.
I was an athletic adventurous marathon runner. Doctors are STILL saying it's psychological (!!!!).
By pure chance I found a Lyme doctor who immediately put up an antibiotic drip.
Oral and IV antibiotic continued for 5 years in total as it keeps coming back.
Still now in crippling, horrific daily pain. The health insurance only pay for antibiotics. So I pay all my own health costs.
I can't sustain this neither physically nor financially much longer.
And this is Germany where there supposed to be oh so Lyme aware.
Yep, it's an ABSOLUTE horror show. The ignorance is overwhelming - yesterday I had to explain at the pain clinic what a herxheimer is...
man i wish we were in some other planet where ticks dont exist!
Invest in Biocidin, buy directly from the site not Amazon so you know you are getting the actual product. The liposomal version is superior. Follow the dosage directions to a T. The next thing is Tu Fu Ling (Chinese sarsaparilla) it has to be the Chinese kind, no exceptions. Oregano, Clove, Cinnamon, and Garlic oils have all been scientifically proven to kill spirochetes in 7 days without regrowth/return of infection. Same with grapefruit seed extract and whole stevia extract. I wish you the best of luck.
@@allilin928 thank you 🙏 I will try all except I get nauseated from Stevia. Maybe allergic?
Excellent. Thank you to the interviewer to Ms. Parish, and especially to Dr. Phillips. We are on the right side of history.
Great interview. Thank you!
This interview explains the disease well from both doctor and patient perspective, very familiar to me as a mother of a child who had a long struggle with Lyme. As I learned more, I advocated more for his treatment, and eventually he overcame his symptoms. I am convinced that a person cannot overcome this disease without treatment, because the bacteria cannot be removed from the body without treatment to kill it.
You deserve a lot of credit for helping your child. Most of us get no support from even our families and that prevents us from fighting for ourselves. Just too sick to care anymore, if nobody else cares, why bother? Especially when the treatments can be so miserable and often ineffective.
@@johncaccioppo1142 never give up!!! Keep your diet healthy not much processed fast foods, Organic, gluten free, low carb, low sugar. Green/black Tea. Add Cumin to all your foods daily. (Or can take a pill) Take a spoonful of Apple Cider Vinegar diluted in clean water daily as needed and add more vitamins, enzymes (Beeno) as needed until you feel better. Also vit D, C, B, calcium (Osteo Biflex) fish oil, flax seed oil, omega 3, DHA for the brain health. doxycycline and anti-fungal pills as needed. Pre and pro biotics (Digestive Advantage gummy’s organic salads) organic blueberries for gut health. Anti-inflammatories (Zyrtec) Mucinex for sinuses/ear infections, walking or exercising as much as you can. Dance, sing, Meditation. Mindfulness. Support groups, friends. Educate friends and family. Spiritual supports. Keep on truckin’! 🙏❤️
@@gigisasz4580 Epigenetic, biochemical approach to nutrition and health is the way! Making a recovery... Thanks friend
I am in the UK. I have been sick with Lyme since a tick bite with EM rash in 1988. Bitten again in 2013 by another tick. I have finally been diagnosed with Lyme disease, Anaplasmosis and Rickettsia (all contracted within the UK), but it has taken 28 years and a lot of heartache and perseverance to get this diagnosis and some form of treatment. It's a national disgrace and I'm very angry about how much my life has been devastated by something which could have been treated all those years ago :'( We need change very soon, this is wrecking lives. I have most probably also infected at least one of my children and breastfed for 18 months as I was not aware that I had Lyme disease then. I feel so guilty!
C Read What Rickettsia test did you have?
It was done as part of the "extended lyme panel" test done by Porton Down RIPL. I was positive for Epidemic Typhus and Spotted Fever Group but I don't know if they tested for others as well.
C Read Thank you, i hope that they find you some relief. You are in my prayers.
thank you keep educating the public.
First time I got fired as a patient because the doctor didn't like my question or questions. My feelings were so hurt and I cried for three months. I didn't know where to go or what to do when I was so sick. Just to be short, I can tell a doctor off very easily now. I first learned to really put them down and if they yelled at me, which many of them did, I yelled right back. I now take the approach of sympathy for them that did not receive proper training in medical school. That catches them off-guard and usually leaves them speechless. Sometimes, rarely, they are interested and want to learn and want to help and do all they can and even learn. Sometimes they just say other things. I figure it takes about ten doctors to find one that might be helpful.
It's rare to find a doctor who can perform a clinical diagnosis these days. They're not properly trained. The only thing they know how to do is order tests. They can no longer read patients.
I live in Ireland, in 2008 I was bitten by a deer fly and during the following 3 weeks I had a red circle on my knee which the locals all dismissed as some kind of bite and suggested I take piriton. By the 3rd week it had changed to a rainbow circle that covered my whole knee. Black in the centre followed by yellow, red, green and blue a perfect target. One night I felt like I was dying with flu like symptoms and others. Eventually the next day after I had begged my husband to call a doctor we managed to get a lift into town. The doctor I saw was a stand in for my usual one who was on holiday. He gave me anti hystamines and pain killers so I left thinking that was all it was. An hour later he called me at home and told me he had been speaking to a friend of his who is a blood specialist in Cork hospital and told him it was Lymes they were both quite excited and wanted me to go back in the next day so I could meet up with them. The doctor also sent a different prescription to my local chemist. Apparently I was only the 2nd known case in this part of Ireland so not many doctors knew what it was. I was unable to get transport to see them both so just took the new medication. Now I have Lyme's arthritis, Fibromyalgia and lots of other related symptoms I don't know what to do as my current GP has brushed lymes off as being something that happened years ago and wouldn't be relevant to any diagnosis now?
So sad. Your GP is a criminal in my personal book.
Thank you, They now act as though Lymes is a figment of people's imagination and say that everyone in this area of Kerry would have markers for Lyme's because of all the deer in the National park.
GPs and Infectious disease specialists in Ireland follow the CDC Lyme guidelines. Which are entirely false and out of date. Take matters into your own hands, trust me. I live in West Cork, have had neurological Lyme for 13 months, I bounced around between doctors for 8 months before educating myself. I was in the Hudson Valley in 2014 but may have caught Lyme here also like yourself.
Your doctor more than likely gave you a few weeks of Doxycycline when you first developed the rash, but this is entirely inadequate to treat later stage forms, and may not even eradicate early forms. Other antibiotics can help you though. Stop listening to your ill-informed GP, there is A LOT you can do for yourself, people who take a pro-active approach to healing their Lyme get better. If you want to talk more, message me.
Thanks Jake, I would appreciate learning more as I am still suffering quite badly with joint pain etc. How do I message you?
No problem, my e-mail is jakehassett23@gmail.com, send me a message and I'll get back to you.
I can't stress enough the importance of NEVER accepting Prednisone if there's even a slight chance you have lyme disease. Due to a misdiagnosis of Vasculitis by Cleveland Clinic in '05, I was given steroids from 2 - 80 mg. per day for one year. That allowed the lyme to flourish. I'm now completely disabled with neurological chronic LD, battling dozens of symptoms daily and praying for the "cure." One year of oral antibiotics tore my stomach up leaving me with chronic gastritis. Insurance will not pay for IV antibiotics. Yes, millions are suffering like me.
Thank you so much for sharing that! I was talking to my doctor about steroids because if my bone and joint pain. Thank you 💓
Agree.. steroids do not work for this or intestinal diseases like Crohns. It literally killed my dear Mom in the late 1980’s.
@@gigisasz4580 I'm so sorry for the loss of your Mom. I believe to this day physicians are simply drug dispensers, sadly.
thank God for you to people. and the interviewer all three of you be blessed. I have Lyme I have had to do it myself I've had to get my medicine overseas I only found out I had it because a friend of mine told me his symptoms it blew my mind he was officially diagnosed I was not. So I quickly moved on this. I would love to see dr. Phillips
Indeed a brilliant interview
Steven Phillips saved my life.
I live in South Florida and was diagnosed a month ago after seeing 12 Dr's. I can not find a Dr that treats Lyme disease. The last infectious disease Dr I saw wants to put a PICC line in and 4 months of recefton. Where is he located I will travel for treatment?
+Kimberly Gentile you found a dr willing to treat you, but don't want the treatment? Dr Phillips is in Wilton, CT. There is a group on facebook called Florida Lyme League that can give you a list of drs in your area. Also Florida Lyme Disease Association and Florida Lyme Support Group. They all have great info. And people.
Michele, I got the list from the ILAD. There are very few and none accepts my healthcare.The Infectious disease Dr wants to treat it with a PICC line and 4 months of rocefton, however the Primary says I have too much Fungal infections happening so antibiotics for that long can hurt me.
+Kimberly Gentile i sent you friend request on facebook. you can accept and then see the list of lyme groups I'm in and ask them how they handled the lyme with fungal inf. Lots of experience there. And some doctors as well.
+michele b at least i think that was your page, lol. what's a belly button birthday?
I had a positive western blood in 2003. My whole life was taken from me. I've seen dozens of doctors. When I have a flare I go to the urgent care get doxycycline and that's how I've been treating my own Lyme, because I cannot get a doctor to address my symptoms. I get liaison in my mouth, headaches, stiff neck, joint pain, reoccurring sinus infections and my vision is so bad. If I don't get antibiotics I end up bedridden and out of commission. I'm furious with these doctors that don't listen to reason. I live in Tucson, Arizona but I believe I was bitten when in Colorado. I cannot get them to even test me for co infections without them saying if I had these I'd be dead? This has been a 17 year nightmare. I was active and an loved life, now I'm lucky if I do anything that doesn't take the wind out of my sails. Just getting through the day is a chore. We need help, how do we get it?
Igenx does much better testing than Elsa or western blot test. No insurance. They have a price list.
please launch a big awareness, I have suffered since 2012 and fibromyalgia is my diagnosis but enrs ana are always there, extreme fatigue, brain fog, pains everywhere, mental instability like depression anxieties, severe poor memories. I am in Alberta Canada where MS and a lot of other autoimmune diseases are prevalent and we are in large farming and ranching communities. The doctors here need absolute course on this!
I'm sorry you have been struggling for that long :(
Great session. Thumbs up and strong will in the fight.
I have had Lyme for 31 years. Diagnosed 3 years ago by a LLMD. How did I get it...blood transfusion. I lived in CA had a car accident in 1985 and was in a hospital in Reno, NV. I have the EAST coast Lyme and co-infections. I had never been on the East coast. I became systematic while I was in Rehab working through my injuries. All things considered....I am much better but am now suffering a set back. Living in central AZ and contacting Lyme clinic in Scottsdale......what an ordeal for Lyme patients.
Me too what clinic are you going to
Thank you Dr Phillips
It's so true and very sad. I've seen doctors at Penn Medicine, John Hopkins, several local Delaware hospitals. They have absolutely no idea how to detect and treat this disease.
She said it !! Stole your life and it will nevwr be the same !! I want my life back !!
I know what a REAL doctor is . today.
It stole my life , too
I have been self treating while I wait for someone intelligent to guide me through it. I am so grateful when I see CZcams videos like this. But I am still suffering everyday. And a lot of us don't have the money to get these elaborate treatments from some of these specialists
I'm doing the Rawls MD protocol and have the supplements on autoship for discount. I'm one week in and I feel like I have a little bit more energy. They say it takes people 6 months to 12 months of being on the protocol to feel 50% better with the average being 9 months. Here's to hoping fingers crossed!
thank you All for Raising Awarness on this devastating Lyme disease,,👍
Great interview I feel the same way about doctors here in the uk for the NHS the care is non-existent for long existing Lyme
It's all about money.
I am in the middle of a Lyme horror story, my wife has been sick for over 3 years in bed, wasting away she has gone to over 20 doctors who told her it is in your head, go home and get a life. She would not come positive on the Elisa or western blot finally positive on 57 test, the infectious disease were the worst. We have spent copious amounts of money and she in the beginning was getting really well, but the factor told her I can't give you more then a month to 6 weeks of meds. When the meds stopped she immediately to awful.
Great interview and interviewer!!!
Had lymes Carditis month ago, felt fine after treatment of 200mg doxycycline. Now I'm having trouble waking and getting up with horrible pains, tingling and aches, walking slowly until I can stretch. Feel like sleeping all the time, getting depressed a little. I'm anxious and lay down watching TV all day. Can't stand the sun and used to love the beach. This video is so helpful but where can I find a good Dr? Maybe I have MS. Ear ringing and brain fog is horrible. Every day is a struggle more and more.
You need more treatment ASAP that’s Lyme symptoms
I had Lyme for three years before diagnosis. only one month initial treatment. got bitten by a tick in 2009 and not diagnosed until 2012 when I had stroke like symptoms .now in 2016 I am still sick. auto immune markers such as high antiphospolipids ,double stranded dna and polyclonal gammapthy. joint pains,pericarditis with SVT ,fatigue ,burning red fingers etc I do have a great internal doctor who believes in chronic Lyme. just had a scope to check for internal bleeding as have anemia and if after all tests come back o.k I will do a longer antibiotic course. despite the awful side effects . more awareness about Lyme is needed. I was pregnant when I contracted Lyme and after one fever my amniotic fluid got too low. thankfully my son is o K. he has life threatening food allergies .not sure if any connection. at the time I was diagnosed with swine flu by a doctor that did not bother to do a swab even though I was pregnant. . Anyhow I changed my health insurance because my old insurance were very Lyme disease ignorant. so glad I did . I used to run but now walking causes pre synscope. hope one day to feel better. feel so bad about all the people wrongly diagnosed with other diseases and being treated with steroids when they need antibiotics. scary that healthy ticks contracted Lyme from patients with ' post Lyme disease' in the studies conducted.
Just saying, I would think your son has Lyme. I have Lyme, and as it gets worse, so do the allergies. I is much more effective to treat a young child than to wait until it becomes so permanent. Hope your son gets treatment. Just my opinion.
22 yrs here without treatment. :(
Senator Blumenthal has been a champion for Lyme patients.
I have it since my childhood after getting sick from a tick-bite. I get antibiotics early after but never really recover from it. Now 16 years later I'm chronically ill from lyme-disease and several other infections but no one believed me even with positive bloodtests.
I love your anger. I am very tired of all those, doctors and others who say you have to handle this disease emotionally. Lyme victims who are angry, and have good treatment resources, can, by enlarge, recover.
ruined more than 20 years of my life, still fighting with it.
20 years..... damn!!! i just want to die right now!!
Ha! So great to see someone else who is tired of hearing everyone talk about the emotional side of healing lyme. I just got what I am calling a "happy" angry (cuz I love it!) a few months ago when I discovered Chronic Lyme Disease and I WILL get better because of it! I think I have had this since childhood with odd symptoms. Got really sick 8 years ago but mild enough for Drs (& myself) to write off. So Fucking Done!! I loved the anger too 😁
trebelclef 28 years now and now at its worse,sometimes you really just like giving up.
39 years and counting.
It's not fatal, it will just make you wish you were dead.
I also must share, so many take this seriously. I’ve had a stillborn, ( twins), I’ve also had many miscarriages, 3 of my children I have with me on earth, two of them have had blood cancers, my son received a Bone Marrow transplant from my oldest daughter, it saved his life. Cld shouldn’t be ignored. During the time I carried my children, I was diagnosed with MS, this was back in the early 80’s. One thing that sticks out is when I was taking the prenatal vitamins, & being pregnant, I felt really healthy!! When I went through Holistic care and treatments for Lyme’s, my body finally, began to feel healthier than I’d felt in such a long time. Now, in my late 50’s, I’m feeling worse when I began treatments 6 years ago. I’m being invaded again with this horrific disease, I’ve been trying to find another way of treatments, simply because, I have so much to live for, my grandkiddos, kids, & during those months when I finally was feeling really good, I dream of this feeling again. Wouldn’t we all when that felt so good, to feel so good?!!
Look up Lyme disease and Plum Island if you really want to be pissed if you have Lyme disease.
Its controversial because there is a cover-up regarding the origin of Lyme disease, the complicity and/or ignorance of various medical professionals and societies regarding the nature and severity of the disease, and the rush to profit from an ill-conceived and disastrous recombinant vaccine. Without a cover-up the liabilities would be incalculable.
Nicholas Eff , Plum Island research center
watching 2023 🙌
love this > lyme awarness 🙏
well said thank you doctor.
its ignorance and banter is horriable, menwhile the patients suffer in silence.
I have known this doctor for 20 years..Back years ago...he was looking in the right direction..I have watched this video...and HE IS SPOT ON...especially about the medical community calling a host of other serious medical 'SYNDROMES' such as Parkinsons , M.S. A.L.S. , Chronic Fatigue, Fibromyalgia, heart disease , in utero heart damage ( babies , fetus get sick when in the womb) etc....HE IS CORRECT....DISULFIRAM , BTW WORKS...Thank you Stephen Cohen and his wonderful wife and Dr. Liegner and Doctor Rajadas at Stamford University for having the guts to let patients try this.. DISULFIRAM .IT FUCKING WORKS....This came out before the first DISULFIRAM treatment came out...BTW.STEVEN.....you are SPOT ON....you always have been..GREAT RESPECT FOR THIS FELLOW
I just finished 3 mos. course of Disulfiram at full dose. You are right. It kills spirochetes better than anything, because it is a very small molecule which penetrates the brain and biofilm. But the treatment is horrific and can leave you suicidal. Not for the faint of heart.
@@paulieinct what you mean by leave you suicidal??
If you have been diagnosed with lyme, have you looked into mold as it mimics the same symptoms. If you have not been tested for mold highly suggest you do.
How do you get tested ?
love 💘 this good lady reporter 👏 🙌 👌 ❤ very intelligent 👌 👍 👏
I also get bit by many other bugs and many people i know do not get bit by bugs. I wonder if its something in my blood that attracts bugs. Something in my blood getting me stiff and getting arthritis?
I've heard information that the government infected ticks and the Northeast with Lyme disease as a bioweapon and is doing research on the public about the effects of Lyme disease. Make no mistake there is a history of our government doing study such as this on its citizens. This would not be the first time that this would have been done. Please dr. Phillips look into this!! I've been diagnosed with fibromyalgia and I'm on disability as well as my daughter and we are suffering greatly. I suspect we have Lyme disease as I remember a terrible tick bite as a child.
Fibromyalgia is Lyme Disease, so is MS, maybe even Parkinson's.
I’ve been dropped by many doctors , they don’t believe Lyme’s exists, I have CLD, with all the testings and all. It’s unreal how much damage it’s caused my body, crazier, not one of those doctors truly wanted to do any further testings. Our story is so familiar.
Definitely go to a Lyme Literate Dr if you suspect Chronic Lyme Disease. Regular western Drs and even many specialists rarely if ever have capacity to treat long term Lyme or Neurological symptoms. I was lucky to find a specialist LLMD / ND who treated me after 25 + years of misdiagnosis, and probably saved my life as I was debilitated / in severe decline.
Any recommendations for LLD Specialist in NYC/NJ or Tri-State area?
Christine de la Garza look into Dr. Eugene Eskow. He saved my life.
If only people would invest some time & educate themselves PRIOR to getting infected and thus help to shorten their personal struggle through misdiagnosis & treatments. This is truly a wonderfully informative interview and I've added it to my list of Lyme edu videos. Thank you Fox5NY and Dr Steven Phillips & guest (Dana?). The very last part helped me to figure out that even though all 3 of our children from birth had struggles, our first was breastfed the shortest amount of time but today he's seeming to be the healthiest. I never knew breastfeeding was an issue yet I had not been properly diagnosed with Lyme then either. So connecting the dots continues!
educate prior to getting infected? Many did not get it from ticks.
Many get Lyme disease NOT from a tick, that's true. My hope is that awareness about the truth about how Lyme disease is spread will empower people to become proactive to protect themselves. I never had a bullseye rash & can't determine how & where I was infected. Likely that's the case for others too. Nobody is invincible yet it seems that the CDC wants to keep people clueless.
Even if you are educated, like me, you may not have the funds to do anything about it. So you are left trying to educate the mainstream doctors, and failing.
Let me clarify, I'm dismayed with our US Government, Medical, Legal, & Insurance professional communities about the truth that's getting brushed under the rug & sadly generations are seriously impacted.
I'm still pounding my already aching head against the wall for running through grassy fields and thick woods for years totally clueless and ignorant about lyme disease. I figured if a tick bit me, I'd feel it, and if it spread lyme disease, I'd get the bullseye. When I DID suspect I had symptoms of lyme (5 years ago), my pc talked me out of testing. She said it would cost a lot of money, insurance wouldn't cover the more accurate test nor the antibiotic treatment if the test was positive. She advised me to buy several vitamins from her site to support my immune system (which I still take). Now I regret not pushing for that test. It truly is an insidious disease. I'm seeing an infectious disease specialist now and spreading the word to others. But even those that ARE informed and DO their best to protect themselves and their children and pets can get infected. It's a microscopic PREDATOR!
They mention there are 2 manuals for treatment one being the better. IDSA and sounds like ILADS?
Good straightforward explanation of the disease and the politics. Using antibiotics, however, is dangerous and backward. Chronic lyme and similar syndromes require a more comprehensive and gut-friendly approach.
that's what I'm worried about
This was so interesting
I ended getting better a year ago. But then I was bit by another tick. Here I am in the throes of lyme again.
Don't let them make you give up !!
The same in Denmark I have the same problems Dr don't want to help me and the don't Care respect this strong woman I have been to Dr one week after tick bite Dr she's told don't worry nothing worng go home and 2 months I have lyme
Said that to me, too. I wonder if they just don't know how to treat this. It's crazy and quite negligent not to even refer people to an expert, in the least.
What about a walk to WDC. " L'Union fait la force". We must demand the Congress to acknowledge the needs of our amazing youth stricken by this disease. Most are not even able to walk. We will walk for them. A support system has to be established asap. This is an extremely expensive way of no life. Sufferers need emotional, physical and financial support. Insurance companies must change their system in regards of Lyme. Let us get organized, donate time and voice. Approach your local papers, write in your blogs, talk to your colleagues and friends, search Lyme cases through your area newsletters. Organize and address your representative. Celebrities are useful to propagate the message. Address them for help. This is what I do since my lovely young daughter was diagnosed and goes through hell.
Hold up. I'm not all the way thru this yet but can someone tell me more about these Lyme spinal lesions?
I’ve had it 11 months. My old army buddy now a MD is on it and has really been the only doctor to even act as though it’s real or post Lymes. Please let me get better I’m just now having heart weird things happening. And Alzheimer’s type things.
Omg I have all these symptoms and I was diagnosed with Lyme couple of days ago. I have depression and anxiety and heart issues and rash and joint pains and so many other things. It’s so sad. I had mri done and nothing was found. I had sooo many tests done and nothing.
How are you doing?
@@HighFiveFriend I’m doing way better now. Thanks for asking. I’m improving my gut and trying everything holistic and I’m feeling way better now. A total different person. I’m glad this treatment is helping.
@@BN-nq5wb Yayyyy! 😃
For years doctors have been telling me I have Fibromyalgia with no proof. I’m starting to think I have Lyme disease instead. As a man I’m told that Fibromyalgia is rare for me. So maybe it’s Lyme and I need to be tested.
How are you?
Yes. 10 years ago I had heart failure. They put me in heart floor of hospital and put a stent in heart. Never followed up with any other symptoms. Said it is common to have ANXIETY, which I said how does that manifest? They gave me Klonopin and said to keep doing my yoga after follow up visit. This is just a preview of decades of being a host to LYME. NO HELP FROM DOCTORS. EVERYONE OF THEM SENT ME TO PSYCHIATRIST. AMEN
I had the classic bullseye rash when my daughter was 4 months old. My doctor put me on penicillin for I believe 10 days. When my daughter was 4 years old, she had a horrible reaction to a penicillin antibiotic and had huge hives everywhere. The hives arrived on the 7th day of treatment. I had been breastfeeding when I took the penicillin. I feel like I should have stopped breastfeeding when I was determined to have been bitten by a diseased tick, but at the time my doctor told me it was safe to continue. My daughter is now 21 and has a lot of joint issues and a syrinx in her spine. I just wonder how much of this is all related to the Lyme disease exposure. And I wonder if I should have her checked for Lyme but it seems like the tests are not conclusive. I heard in this video that the treatment is doxycycline so I’m not sure I received the correct treatment for it. So much to figure out!
How is your daughter?
@@sandracrocker6143 she is well. Still allergic to PCN. She has had a couple of episodes of random allergic reactions we haven’t been able to pinpoint the source of. Not sure if it’s related to this or not.
@@Racetigress glad to hear she is well. Has she been evaluated for Lyme yet?
@@sandracrocker6143 she hasn’t but that’s a thought! She has hypermobile joints and migraines, she has had a couple of random episodes of allergic reactions we haven’t been able to pinpoint the cause of. I will mention it to her doc! Thank you!
@@Racetigress It has been well proven that 2 weeks is not long enough treatment to kill Lyme. And it is transmissible to baby. It is a very high probability for both of you for Lyme/co-infections. I would recommend pursuing this HARD and with a LLMD or similar. Regular docs are not trained for this and testing can cause life long issues and disability if not addressed. Here is my other channel/playlist and contact info is there if you want to chat further. m.czcams.com/play/PL-mRlb8isgG2jeUt-oslk2A2w08OXyVg2.html
I really want to know HOW you're treating Lyme desease. I live in Sweden. It's impossible to find any doctor here willing to treat this illness.
Sylvia Birkhammar , Your best bet my friend is a course of Doxycycline and an excellent diet, no stress and rest often. It can take up to a year or longer to improve significantly. Work to boost the immune system after your doxy treatment. Avoid smoking cigarettes, alcohol in any large quantity or at all. Watch being out in the sun with Doxy, you become sensitive to light and get headaches often among other side effects and because of the purging process the body goes through. I cannot stress drinking enough good water and quality vitamins and minerals. Take salt baths, Epson salt or the like and try to keep as active as possible after the initial shock is ocer. Good luck and Lord bless you
Sylvia- herbs & supplements are working here. I order online. Also cut out gluten & sugar
@@mlasko74 just worried about killing off the good bacteria
The same as Denmark the doctors are lazy the don't Care
my diagnosis was shrugging shoulders. not professional!
This last time if I didn't go to ER when I did I would be DEAD. My children told me to go. Finally I went. I was told j almost died. 4 days of IV Doxycycline and still almost died.
I was treated for 2 wks with Doxcycline six years ago. I had heart palps, brain fog and more. My blood test was NEG. I started taking specific vitamins i read about and Glucosamine Condroitin MSN. I started to become allergic to things. two CT surgerys with ganglion cysts. Shoulder surgery. Gall bladder out. I still wake up very stiff many days. Have a Swollen hip that comes and goes. Other hip hurts now and again, comes and goes! What is wrong? Maybe RA or arthitis. I went to a RHeumatologist and she said if my blood test was NEG that i did not have lymes! Don't believe Her! Where can i find a great Doctor?
+Kat Trina. I am so very sorry you are being mistreated. I call it extreme medical abuse of Lyme disease victims. Not perfect, but a place to start. If you look up a local Lyme support group and go to a few meetings, you will learn how Lyme victims in you area get treatment. You may have tried this already.
I know exactly what you mean about the pain that comes and goes! I have Lyme, EBV and VZ (shingles) viruses. Have suffered for endless years. No reliable tests available. Multiple food allergies, endless pain, brain fog, memory loss. Was supposed to have my gall bladder out but didn't, as I discovered it was "referred" pain from Shingles. Finally a naturopath tested and I was positive for all three viruses. Gave me herbal medicine (liquid) and within two weeks the pain had DRAMATICALLY improved. I feel 30 years younger? I'm still working to rebuild the immune system as the Lyme is still showing, but at least life is more normal. I also have Celiac Disease which is common factor with Lyme. Celiac means I have major problems with any "drugs". Most doctors do not study Lyme or viruses, so cannot help.
Go to ILADS website.
15:31 Why didn't the guest who wrote a book level with the interviewer by telling her the truth as to why Lyme is so controversial and the reason why the government want touch it with a ten foot pole. They would not tell her so I will. The first cases of this disease was discovered in children in the 1970s in Lyme Conn. after they had been playing around a boat dock that brought workers to and from a bio Terr or isM lab on Plum Island, located 10 miles off-shore. This lab employed a Nazi scientist, that came over after WWII, with the now declassified Project Paperclip, and his expertise was in warfare using biting insects. The bottom line is that the governments we have entrusted with our health and well-being have become almost fully corrupt and are not overseeing "leaky" labs that contain dangerous pathogens and this needs to be addressed by Congress.
There is no value in creating more pathogens that can somehow get out of a "leaky lab". There is enough already to wipe out known populations. It is pure lunacy for our taxpayers money to be spent making more. Most people would hand big Pharma the money gladly than to go through what we are being put through with Lyme and now the virus. More protections need to be put in place. Also, no monies should be spent developing new pathogens to infect humans. That money needs to be spent on preventing and curing the pathogens and the chronic illness caused by them that humans are now experiencing.
I still do not know anyone who is 'cured' of Lyme (I had a Lyme support group so I know quite a few people with Lyme), yet this young patient is 'well'? From treatments that do not work for most Lyme patients? Do tell what the miraculous treatment was? I went to a prominant LLMD and did not get better after 4 years of antibiotic treatment including iv antibiotics and including high end alternative treatments like hyperbaric chamber treatment. Nada.
Seriously nothing helped
please tell us how to get to this doctor.....
I can find no one no dr who even knows a thing..this has all but killed me and my children who all have it..one lost his
legs the other seizures..she s an rn...and other lost his mind....its horrible....im still alive and desperately need to get to this intelligent dr....
we are not doctors, but if you are willing to try something alternative, head over to our page!
What are the names of the tests?
only 17,00 views a shame
How do I contact you
He's in Wilton, CT. He ha stopped seeing patients, (once a year he opens it up) but he does have a nurse practitioner who treats.
7 year old interview and he already knew way more than most docs know even still.
can we improve the bodys defense somehow? is a lyme vaccine possible? interesting that so many female singers have lyme btw, shania twain and avril lavigne too.
I live in CT...we DO have a senator who has advocated for Lyme: Richard Blumenthal. Also I’ve had JIA and the ONLY antibiotic we really use is Sulfasalazine. I’ve never experienced improvement with other antibiotics and I’ve had it for 20 years. Parkinson’s and Alzheimer’s can be caused by mitochondrial dysfunction and Alzheimer’s may be part of a type of diabetes. This guy is full of it.
Cure Lyme with T cell activation causing T cell proliferation with NB protocol
nbprotocol.proboards.com/thread/90/cell-activation
"This process leads to the production of many millions of T cells that recognize the antigen."
HAD INSURANCE for this reason. NOW I have NOTHING!
What about all the coinfections and mold
Dr Phillips should look into Dr Brownstein & Dr Flechas per iodine, boron, etc sufficiency.
I understand that that's not the route he's attempting to take things from a public-fight perspective, but from a treatment /aide perspective it may help many of his patients.
Seemingly a bit too much reliance on prescription drugs that, by his own evidence presented, don't entirely work much of the time. ..and they don't contradict but compliment one another in fact.
can Lyme disease cause renal failure? even if it's a few years after bite?
Yes :(
Yes
I believe it is what has caused my 3rd stage Kidney Disease.
If you don't have money your screwed because lyme treatment isn't covered by insurance..I've been sick for 8 yrs ad don't know where to turn.
There are other subcutaneous parasites that carry bacteria that cause the same symptoms.
Dirofilaria Repens (dog roundworm) for one, it carries Wolbachia.
It causes a suppressed immune system, arthritis, enlarged spleen, muscles aches, muscle weakness and eventually total loss, shooting pains, chronic fatigue, nerve inflammation. They're spread by ticks, mosquito's, etc, highly contagious. Published papers call it an unrecognized epidemic.
It was 1975 when I was bitten, had a life of disability, unable to work, an indescribable journey, still no resolution, still being passed from doctor to doctor. I've purchased the treatment from India, nothing left to lose.