This tinnitus discovery could lead to a new treatment | Kristin Barry | TEDxKingsParkSalon
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- čas přidán 7. 06. 2024
- If you thought your tinnitus was a problem with your ears, think again--literally. A new discovery about which parts of the brain connect to the auditory centres is shining light on fresh pathways to future treatments.
Dr Kristin Barry is a research fellow at the Ear Science Institute Australia and adjunct at the University of Western Australia, with her career keenly focused on investigating the changes that occur in the brain after traumatic sound exposure. Kristin was drawn to this area of research by her fascination with the phenomenon of phantom limb perception. She has also investigated drug treatments, biomedical implants, and the use of repetitive transcranial magnetic stimulation, in the treatment of hearing loss and tinnitus. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
I generally hate seeing content about tinnitus because it provides no solutions and just reminds me that I have tinnitus...
I feel the same way. I'm always engaged in something like TV or radio and I' not noticing it as much.
Yep!
No help 😭
may, might, could, thought to..., someday, encouraging, blah, blah, blah...ringggggggggggggggg!!!!!!!
The key word in the video title is "could", which usually means asking for more money for more research that usually goes nowhere. Every piece of news about a new research results ends with "more research is needed."
Whoever can cure Tinnitus should win the Nobel Prize. It is that important. This is a worldwide problem affecting everyone in the space between their ears. A peaceful mind without Tinnitus multiplied by millions could possible mean a more peaceful world for everyone.
Remember that time they gave the Nobel Prize to Obama and nobody could figure out what he did?
It could legitimately save people's lives. I've considered unaliving myself multiple times because of it.
They regretted that decision.@@jlrutube1312
o
lpp
Silence. Long sought after by many tinnitus sufferers but seldom found, and then only for short periods of respite. To sit outside at night and hear ... nothing. What a boon that would be. Thank you for your work, Kristin.
I would do anything to hear silence.
I would only get to hear the compressor station 2.9 miles away better
Dr. Barry, if you need humans to advance in your research, I will be delighted to be one of your volunteers. I want to experience silence at least the last years of my life!
@@MyColcana I'll add my name to that list!
I have no respite. Tinnitus is my constant companion. Silence would truly be a miracle.
PLEASE, PLEASE continue your research. I developed tinnitus on top of multiple health problems. Sometimes I don’t think I can bear it another moment. I pray you find a cure.
I've had tinnitus problems since childhood, though it wasn't realised at the time, in the early 1980s I developed a severe thyroid problem and went on to develop pernicious anaemia (P.A.). P.A. is a condition whereby your body cannot absorb vitamin B12 from foodstuffs and can be deadly. To counter P.A. and ensure my body gets B12 I'm required to have B12 injections, which I had on a fortnightly basis until 2020. In 2020 I increased the frequency of my B12 injections to once every 5 days, within a month I noticed my tinnitus had significantly diminished. I am now into my third year of my every 5 days B12 injection regime and my tinnitus has diminished to the extent that it is almost imperceptible when it occurs, which is very rarely. Unbeknown to me tinnitus is one of the common symptoms of B12 deficiency. Vegans and vegetarians are also at risk of developing P.A. as they may not get enough B12 into their systems to provide them with a healthy life. If you've not had your B12 levels checked I suggest that you consider this action, it may prove to be something that will provide relief from your tinnitus condition. Good luck with your health and journey through life.
I love the print on your dress! Another neuropsych nerd.
I can totally feel that i started hearing buzzing noises in my year around 2020 initially I panicked I used to wake up in nights and feel helpless and started questioning why me........?.......but now it's kind off managed some days are hard but sometimes I even forget I have it.......the only thing that worked for me is it to try ignoring it and not paying attention that doesn't mean you will not hear it but slowly slowly your mind will filter it out just like background noises.........the key point is MORE YOU NOTICE IT THE MORE BAD IT GETS.....................
Just keep listening to smooth jazz and acoustic guitar...it helps.
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max.
0 hearing loss.
3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
I’m 60 and have had ringing in my ears since I was a small child. I used to worry whether or not it would drive me crazy. Now that I’m 60 I realize that it is annoying, but is not going to drive me crazy. Life goes on. But I do hope they find a cure so others won’t have to deal with this annoying ringing.
At 70, same here!
65, same for me.
At 70...still ringing...a filipino here....
Me too.
I'm 61 my tinnitus started around 12yo. I use background noise to deal with the ringing during the day and I've been able to sleep imagining I'm hearing the ocean.
I've actually befriended my tinnitus. I've named it Tinny and when it's really intense I say "Hey Tinny, I see you're here today." This attitude came about when I realized two things. One, I had tinnitus and it wasn't going away. Two, I could scream and tear my hair out and I would end up with a sore throat, less hair, and tinnitus. I have an affliction. As afflictions go, there are worse. I had a choice to hate it or love it. I won't say I've progressed all the way to love, but I hate it a lot less. Not sure if this helps you, but it does me so I thought I would share.
Bruv's tinnitus turns into mental illness
@@nfaza80 😂😂😂
Positive attitude
A cure for this would be one of the happiest days of my life.
Fr
I remember being about 6 or 7 years old asking my mom what that sound was. My ears have rung every day, all day for as long as I can remember & it affects every conversation, every TV show, every movie, all music & sleep. Imagine never experiencing silence. I am very hopeful that it will be curable soon.
My dad suffers from tinnitus due to poor safety equipment at his prior job. I'm so hopeful for you both and anyone else having to deal with this condition.
Sane, but without asking my mom.
@@BrittneyHillsberymy dad too, while I feel for him visiting him is a nightmare. Tv blaring 24/7 to counter it. I hope he can get peace soon.
For over 40 years, I have had a constant ringing after firing a pistol w/o hearing protection. Sometimes it’s not noticeable, sometimes it causes pain. I fear I will never hear the sound of silence.
I'm in the same boat, I've had a non stop ringing for as far back as I can remember. For the longest time I didn't know true silence was a thing, I thought this ringing was normal.
I cannot remember what it is like to not have a constant high pitched ringing in my ears. It never ever ends.
If it were to end all of the sudden - I know for certain that I would cry. To just hear nothing again would be life-changing.
I hope there is a cure one day - for all of us who must live with this.
Same!
@@amykelso2066I used to pray to God that at least before I die please grant me 10 minutes of silence. I pictured myself in a forest on a Mountain overlooking beautiful views. And nothing but quiet. Peace & quiet
Amen to that!
I came hear for a solution….😢
@@3mastiffsmeI would give one of my legs to have it stop.
I'm hearing this Ted talk while also hearing my tinnitus.
Two of us
Me too🙋🏻♀️😂
Teeeeeeeeeeeeeeeee
Me too buddy
I was hearing mine before I even saw the video title, I'm still hearing it.
It never seems to actually go away, but rather varies in intensity and tonight its goiglng strong.
In reviewing the literature I found it disturbing that most treatments currently considered "effective" do not alleviate the tinnitus. Cognitive behavioral therapy, educational counseling and "habituation" are common treatments that have been studied. This only perpetuates the "learn to live with it" approach. Thank you for seeking the true root/roots of tinnitus. Please continue to disseminate your research so more care providers can be aware and more understanding about tinnitus.
Same with a lot of chronic pain issues.
I had powerful tinnitus that started when I was 20. Multiple frequencies both low and high. Omnipresent. "Nothing wrong with me." It dissipated a noticeable amount by 22 and by the grace of god was completely gone by 26. Also with no explanation. I pray for anyone afflicted and hope a cure is discovered.
It feeps good to know that there are chances that It might disappear one day just like that!
Is what you're saying really true? It just disappeared or you were doing things to alleviate it, it counts a little more! Please
Please add this old guy to your prayer list!
My tinnitus is really aweful.
Peace to you in Christ Jesus!
Former lead singer in bands. I stood next to the drummer and keys.
My tinnitus is outrageous and generally intolerable. It got so bad I began to lose my perception of pitch.
My condition now includes clicks, pops and whizzing zips as well as the old ringing of 10+ pitches.
If you can help me and people like me it would be a miracle. How can I find out more?
It will be a decade easy before they get to a point where they will probably be able to treat folks.
@@janedoe3043 Shore's Auricle device is likely to become available in the coming 2-3 years. That has demonstrated actual reduction in tinnitus, not just perception.
There’s a video that maybe can help :
@@anacaeiro1049The link to the video didn't post. Can you repost / re-paste it? Thank you!
You may want to check if there's any clinical trials for it, and how to participate.
My God, thank you for your passion on this topic. I've suffered from tinnitus for over 39 years.
It has progress to the point where it seriously affects my strength and ability to carry on with regular activities. It has become so overwhelming and virtually impossible to live with.
I'm so grateful that this video came to me. It is truly encouraging knowing that you are working diligently on a solution and that a conclusion is near. Thank you!!!!
Have you had your victim levels checked? My B12 was low ad taking a supplement that dissolves under my tongue helped me for a few days.
I went into a bar in the summer of 1987 where a band I would describe as post-punk (or 4 guys who thought it was still 1976 maybe 😂) were playing at deafeningly loud volume. Me and my mate stayed long enough for a few beers and Ive had high pitched ringing in both ears ever since.
@@nleem3361That advice demonstrates that you don't understand what tinnitus is. What about yoga 🧘♂️ did that work too?
@@user-fed-yum I have actually heard some people say B12 can help. There are some people out there that think supplements and/or vitamins can help. I don't think the science supports any of this, but certainly couldn't hurt to try.
@@jimsimpson1006 My tinnitus is completely due to loud music. Both concerts then I got into car stereo. I had a stereo in my 90 CRX that could do over 120dB, and I routinely listened over 105db a lot. My left ear being closer to the left speakers in the door is worse than the right.
My mom is experiencing constant tinnitus since age 35, she's 68 now and only recently she heard this name and actually got some advice on treating it(making her feel a bit better about it)! She said that just getting to be understood by the doctor makes a huge change and knowing she's not alone in this world hearing this constant sound!
Many thanks to all scientists and doctors learning more and more about it!🙏 Maybe one day people like my mom will be able to be completely free of this hearing issue!
You’re cute
I've never had a moment's silence. I'd love to be free of it.
Some day we will be free of it. It's called death.☹️
Please do nasal steaming using a tablespoon of vinegar after water has been boiled, morning and evening. That cured mine
@@mattdonna9677 That's been my hunch. Love to be proven wrong.
😢@@mattdonna9677
@@elizabethalvarez4819 Can you describe how to blow your nose with vinegar more specifically?
i have constant tinnutus in both ears since 2018, they became louder than ever in 2021 with the pandemic. now 2 year laters i don't hear them as much, idk if i just got used to them or if i'm being lucky but if you're struggling with tinnitus then know that they can reduce themselves with time and luck, stay positive and strong people !
also thank you Dr Kristin for you work, i hope one day anyone will be able to cure them like it is nothing but a simple cold.
no, I've had tinnitis for 22 years and it has gotten much louder...hearing it all the time.
Incredible work! I've been listening to tinnitus at 11,000hz for 30 years, and would love to one day hear the world again as it should be heard. Wishing you every success.
Just one frequency? There's always, like, 6 or 8 goin' in each ear ... and none of 'em musical. At least give me a pleasant Maj 7 chord or something ...
@@SgtSnausages same here, whistles and pulses competing in each ear, but I can say for certain that if I play 11,000 hz from CZcams, everyone in the room covers their ears except me, saying "Is it playing a sound yet?" I would love to lose the tinnitus. I'm not feeling well today so it's double volume too! Ooh, maybe that's something that fits her theory.... headaches and louder tinnitus always happen together. They must have a connection.
Wow. Now I have a way to show someone what I hear. 11000 hz on CZcams. I honestly can’t believe I never thought of looking for something like that myself. Thank you.
@@heatshield I installed a frequency generator app on my phone. When I played 8900hz at the same volume as the sound in my head my family all visibly winced. And when I have a headache, the volume increases by at least 2x.
We, tinnitus sufferers, need to create secured website which will allow us to give money to fund tinnitus research.
Something with a number, to motivate us to give even more.
And the money should be given to most promising solutions, to actually reduce or even eliminate tinnitus.
Instead of being passive, we can now, thanks to internet and digitalisation, at our level, be part of the solution!
As someone with tinnitus, & hearing loss, continue researching this!
The type of tinnitus I suffer with sounds like a summer night filled with crickets in the background… it’s annoying. Thank you for posting this video, i have hope for the future!
Omg, I have the same thing! You're the first person I've heard to describe it like that.
Crickets? Yep. Sometimes, on bad days, cicadas. Days like today. Bloody annoying.
Mine sounded like crickets for the 40 years I've had tinnitus. Then I got a Moderna booster, and that night it was so loud I went outside to see what the noise was. It quieted back down to a more normal level, but the crickets were gone, and a more annoying high pitched sound took its place. I would like the crickets back. The booster also affected my voice.
It’s been cicadas for 40 years, with the occasional high-pitched tone for me.
I’ve had tinnitus all my life. It never recedes. It’s louder than you. I can’t imagine what hearing might be like without it.
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max.
0 hearing loss.
3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
Mine is lifelong as well. I get rare moments where it goes silent, and it startles me. Momentary respite in the daily torturous screaming that never ends. White noise generators help me to a certain extent. Quiet spaces are deafening to me. Walking into my closet is almost head crushing. Like jackhammers on my skull.
Maybe we should create a secure fund where we can donate for research for tinnitus. I am sure this fund will receive a huge amount of money.
@@5pilesI hear you. I’m in my 50s, had this high pitched constant pealing in my ears since I can remember. I was suicidal through much of my 20s and 30s. And 40s. I have no idea how I got through all that. I’ve tried all the tricks. Found a tone generator app and located one of the main tones (mine’s braided, a cluster of tones with several dominant and many subordinate frequencies). No change, though. Another comment said they’d had occasional relief. At this point, I don’t know what hearing would be like without the ringing. One foot in front of the other - you can do this.
I had an operation for a slipped disc in the neck and after the operation woke up without my tinnitus. Unfortunately it came back after 45 minutes. Still that was 45 minutes of bliss.
I've had tinnitus as long as I can remember. I do not have hearing loss. I didn't know that ringing in my ears wasn't normal until my Mom mentioned to me as a child that my Dad was grumpy because he had a cold and that made his tinnitus louder. I asked what tinnitus was and then realised not everyone's ears made sound.
I don't feel like I have hearing loss either. I just notice I need to turn up the volume often, to drown out the noise, which others perceive as me going deaf. It's quite a battle at times...
I also thought that tinnitus was normal, since I have several chronic tinnitus since age 8. It was only at 13 years old that they became so loud I thought I was losing my hearing and that I started to tell my family about it. I also don't experience hearing loss, in fact I have an abnormally good hearing. This brings me hope that one day we'll get rid of these noises.
I'm exactly the same. I thought it was sound caused by blood flow. Mainly because tinnitus is always described as "Ringing" and my tinnitus is a high tone/hissing sound.
Btw my hearing has been tested by an audiologist and was considered normal - no hearing loss
@@PaulG.x Same here. My hearing is excellent, except for the frequencies where the inner beep occurs (It can vary a bit). On those frequencies I was considered 'deaf' as I didn't hear the 'outside' beep. The inner one outbeeped it.
As a child I thought that the super high tone was the sound of silence.
I suffer from the worse form of tinnitus and I suffer from it at night, every night. I wish people would take this more seriously. Apparently, it gets so bad for some people that they have damaged their ears or attempted/committed s u I c d e. It might not cause any physical issues. But, it can drive someone crazy.
I know 2 people that have thoughts because of tinnitus. One is a stranger I found online and the other is me myself. Even though both of us got a pretty understanding/supportive environment, going through it is still pretty hard. My only wish is that anyone suffering from tinnitus could get a full recovery soon.
I'm curious what form of tinnitus you have. Do you only have tinnitus at night? Can you please elaborate a little, thanks.
@@sine8811 are you trolling?
24/7 for me.
Pulsatile Tinnitus.
It’s the sound of pulsing.
The reason it’s the most serious form because it can be life threatening for some people. Every few years I get scanned to see if I have any tumors. But, the pulsing can be caused by a number of things, not just the present of a tumor.
It only happens when I’m going to sleep. So, I put some drops of castor oil in my ears and then put an earplug in. I can still hear it, but not as much.
If you have any more questions, let me know. I’lol be happy to answer them and I’ll try my best to provide as much information as I can. ☺
@@jasond4752
My tinnitus is absolutely horrible and I’m really hoping the medical world can figure something out to give us some peace and relief. This is horrible.
Why wait for the medical world? Your doctor is probably reading up on his cancer, HIV and heart attack patients before worrying about your ears ringing.
If there is a 80% cure in those thousands of papers, that's a pretty good enough cure rate.
But any breakthrough cure will need years or decades of trudging through the FDAs bureaucracy to get to you.
You have a computer and the ability to do internet research. Read those papers! Do it yourself.
Have you tried white noise therapy?
@@StalkedByLosers I sleep with white noise on every night for past 7 years. It helps but my ringing is definitely louder than the white noise generator. The generator is at ballpark 50 decibels. My tinnitus is loud hissing and a couple of different kHz high pitched ringing. Sometimes I hear clicking sounds..occasionally it gets louder for a second then back to the regular volume…if it gets temporarily louder, why can’t it get temporarily (or permanently!!) quieter???
Those of us with chronic tinnitus would really love to find out about any new breakthroughs..
@phonkyfeel1 geeze. I have mild tinnitus but not that bad. When it gets bad, I suspect (call me nuts) that I'm hearing the electricity in the walls. Once it got so bad at night that I was hearing a modulation in the ringing. I focused in on it and I heard a woman talking on the phone, I swear. But that was the worst case, the ringing was so loud I could not hear anything else. I promptly went to the hearing center and they tested my hearing. I was hearing in super high pitched ranges above normal and could not hear lower frequencies in the human voice range. I told them I'm hearing the electricity in the walls and they looked at me scared. I came back for a followup a few weeks later and it had calmed down already and my hearing was back to normal
@@StalkedByLosers yours sounds uniquely bad. Glad to hear it went away. I think I’m a lifer…it’s been going on for a couple decades now at least (I’m in my upper 40’s). If medical insurance would pay more for assessment and possible treatments I’d put more effort into looking for help. It’s just going to be so expensive…added stress to the tinnitus. Anyways, hope your ringing stays away for good.
Thank God researchers are finally looking into this area. Tinnitus affects so many people and yet there is no cure.
God won't fix it, science will
Many of the medications given by doctors - are the cause for tinnitus!! I was put on blood pressure med that started my tinnitus, I changed meds but that did not make the tinnitus go away. 😢
@@barrywalker1288 It’s a common phrase. many people, theistic or not, say it.
If we could only get our illustrious government to give a little money to the researchers, they could find a cure a lot quicker.
How is god involved? Did the vatican or some church or temple or mosque give a multimillion grant for tinnitus research or what du you mean by "thank god?"
I had mild tinnitus for 10 years, but 2 years ago it exploded to a level I couldn't bear and I had a nervous breakdown. I was hearing multiple sounds at the same time, so loud, as if it was vibrating my soul.
Since then it's settled down a bit, but it's a horrible condition and anyone that tells you otherwise has never had severe tinnitus. I will say that MILD tinnitus isn't that bad though. I guess like everything it's a matter of severity.
I have had that experience before. It was very nerve wracking. Hearing the ringing at multiple vibration levels at the same time, i went into panic mode. It settled down but I hear it now sometimes louder and constant. Normal day to day sounds don’t distract me from the tinnitus anymore
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max.
0 hearing loss.
3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
I'm glad you said this. I have suffered from tinnitus for over 2 decades, but in the first half of 2020 it quite suddenly got significantly worse. I have little doubt that there are reasons for that.
That is true. Levels can vary quite a bit. One problem with tinnitus is that nearly everyone has experienced mild, transient "ringing in the ears" and think that is what it is. However, moderate continuous tinnitus is far worse, and severe forms can be devestating and life-changing. Adaptation over time usually occurs, but it remains a daily challenge. Unfortunately, one sure way to increase the volume is to think of it or watch a TED talk about it 🤐 As others have said, I truly miss the sound of silence.
@@5pilesvery interesting about fasting
I once had tinnitus, it started during a very psychologically difficult time for me and it was like a mosquito sound. So it continued for around 8 months. Then when it started to happen when i started to sleep in another house and I understood it's psychologic problem. Btw since childhood, mosquito sound has always created obsessive effect on me.
Anyway I searched google and in a journal it was said that oxytocin deficiency is a reason for tinnitus. So I understood my problem. But because oxytocin sprays are not sold in my country, I searched for ways that men can increase oxytocin. Scientists found that looking at babies increased oxytoxin. I know it sounds weird but for a couple of days I looked at babies before I sleep. Second day tinnitus stopped and first 2 days I saw very chill and vivid dreams. After 3-4 days I stopped but tinnitus did never come back. Maybe it will be a cure for some of you. Gecmis olsun
Thank you, kanka
Hmmm. Can you cite your sources of information. I’ve done tons of reading about tinnitus and never once read anything like you’ve stated. Also, it doesn’t just go away. Maybe you have something different.
@@phonkyfeel1 Hello. If you search "tinnitus oxytocin" on Google, sources will show up. But I have to add, I guess you're a drummer so your case might be different than mine. I can tell it worked for me because the tinnitus still haven't came back. Hope it helps
I've had Tinnitus for at least 20 years. I did panic a little bit when it first happened but since then I'm completely unaware of it the vast majority of the time. My hearing has dropped off to the point that I am told I need hearing aids (never bothered - just easier to say "what" :-). I meditate a lot. I've sometimes used it for meditation by focusing on the sound - if you feel a lot of anxiety about this work on acceptance, we all grow old, break down, and fail a bit at a time. In terms of the things that fail, this cause no pain, no real suffering that you don't create for yourself. This is the way things are, gain acceptance and it'll never bother you again. Try mediation, it will have a great positive impact on your life overall and this is but one small thing, but give it time - don't expect a few months or a year will get you there. It's only a curse if you label it that and keep that internal narrative going. Maybe one day they will find a cure, but it's not a big deal to me either way. Stop the victimization tape loops and save yourself a great deal of suffering. 😏 Best of luck to all.
Best comment here. Find ecceptance
My mother suffers terrible tinnitus in her left ear, almost never can she live without hearing it, not to mention she says it's so loud she almost cannot hear from her left ear, so thank you for doing this, I hope your works will be fruitful
I have tinnitus on my left ear only as well. The ENT doctor detected a slight hearing loss on the left ear and concluded that the tinnitus was related to the hearing loss.
Thank you for the talk and giving us an idea of your research and that of others. Please continue your research, many of us hope you’ll be very successful!
These are great news!! Thank you 🙏 I’ve been living with tinnitus for 20 years and I manage to cope with it even though I’m a drummer, taking many precautions, but I’ve adapted… still, what a delightful feeling it would be to be able to enjoy pure silence once again! What a dream!!
How to manage?
I cope with my tinnitus by thinking it’s just my internal hard drive, kind of like the sound of a computer humming away.
I LOVE your thought. Kind of me too. I “like” to think that the ring is the sound of this powerful computer brain humming and computing at light speeds ..
I always put in my head that is the sound of silence. I though that for so many years until I found out it was tinnitus.
@@zugheysalcido oh really? Are you good at ignoring it then? I've had it for 9 months constant and it's like beeping morse code with varying tones on top. Very hard to ignore and at night i don't know how to ignore it.
@@zugheysalcidobro that was literally me. Ignorance is bliss really hits different with this one 😭 hope you’re all doing well
@@APRBaller I had a eardrums
Rupture like 2 months ago . Had infection and ottitis mastoiditis. Had surgery. Can’t hear well and the ringing got worse
However I am able to ignore it most of time meditation helps a lot
Having previously worked in EMS and having sirens directly overhead while in the cab of an ambulance, I can guarantee you that my tinnitus is from that career.
That certainly does happen, but for some of us, we've always had it and likely always will have it, barring an effective cure. In my case, it seems like it's because I've got super sensitive hearing and if I'm not actively listening to something then I've definitely got ringing in my ears. If I am listening to something, then there's a decent chance that I'll still have ringing in my ears. For whatever reason, the nerves that convey the signal just really like to activate for no particularly good reason. I guess they just want me to know that I could hear something if there was something to hear or they're trying to cover over the various other noises in the room.
Keep up this research! I developed my Tinnitus at age 14 due to ear drum damage from having so many tube put in during my younger years. I am now 55 and I honestly cannot tell you what silence sounds like. More than 40 years of the continuous ringing, which in the last 5-6 years also started in my other ear. I would love to be able to have moments when someone says "sit silently and clear your mind" and I can understand what silence is.
Can i ask how you are doing? are you managing ok and getting on with life fine? Does it hinder you in any way, affect your sleep etc? I've had it 9 months constant like beeping morse code and have recently become ok with it during the day, but struggle at night as it appears so loud and noticeable. I still struggle with the concept that this is my life now.
I would absolutely sob if this ringing stopped.
Thank you for researching tinnitus. Please continue. I have had to deal with this for most of my life and it is maddening. I honestly think that it has been a factor on my chronic depression. Here’s hoping that you find a way of getting rid of it in my lifetime so I can finally be at peace.
There is a well known link between tinnitus and depression. Not sure which is the cart and which is the horse in each case, but there is a link.
Yes, and maybe we should create a secure fund where we can donate for research for tinnitus. I am sure this fund will receive a huge amount of money.
@@chadibenchakroun6465давайте создадим фонд!
Thank you so much for your work. I’ve suffered from it day and night for years and thought I was gonna lived with it for the rest of my life. This is really exciting news! Looking forward to the cure.
I've got tinnitus, it's a bloody nightmare. I have to sleep with a fan on every night. And I have to take medication to help me go to sleep. I'm only 19
May God bless you
Pregabalin. Talk to your doctor.
I have very bad tinnitus but it doesn't really bother me all that much. Like anything in life, you kind of get used to it.
Sometimes, not always but sometimes Nasal sprays can ease it. Used in sinuses not your ears.
Maybe try honey inside the ear and eat honey and cinnamon sticks daily, I get this problem after airplane rides and it helps me
Ohh honey, I’ve had it for over 35 years. I’ve learned to live with it. Some days it’s really horribly bad. But other days I completely forget about it. I don’t have hearing loss and I’ve never found help for it. You will work through it. I hope they find a cure or a way for you to cope with it. Just remember, you aren’t alone. Lots of us suffer from it. ❤
I’ve had tinnitus since serving in the Marine Corps. I hear it constantly. It makes it very hard to concentrate and even fall asleep. It drives me crazy.
Same. Semper Fi!
I have got tinnitus after firing AK-74 (Kalashnikov) without hearing protection... Instructors were morons. 3rd day in the Ukrainian army and lost hearing + tinnitus FOREVER.
Great job, Dr. Kristin Barry!!
as a vet with tinnitus I am deeply hopeful for this
This is music to my ringing ears! I've been living with tinnitus for a very long time and I'm only 46. So long that I don't remember what silence sounds like. I would pay a LOT of money for a cure.
Thank you so much for hosting this TEDx. You've given me some hope that I'll hear nothing again.
The Stanford hearing lab has made progress in regenerating hearing in live animals. Dare I say hopeful progress for us. They accept donations.
@@owntor1 Thank you for letting me know! I'm going to start following and donating to their research.
So happy you’re back on CZcams! Can’t wait to see the progress of your home, it’s absolutely stunning so far.
This is huge, keep it up. I can only guess that tinnitus is one of the most common afflictions in the US and especially one without as much public discourse as others.
Please keep the research going ❤❤❤
Considering I've lost hearing on my left ear completely and abruptly, and all that remains is tinnitus, this talk made my day. I don't know if I'll ever hear in stereo again, but being able to enjoy peaceful silence without "interference" will make me happy.
20 years in a loud rock band gave me chronic tinnitus. It sounds like crickets constantly and its worse at night when there's no other sounds. If I wake up at 2 in the morning, that's it for me. There's no getting back to sleep it's so loud. I really hope this sort of research can produce a cure in my lifetime.
I have been suffering from tinnitus for the last 13 years. Its good news that scientists are working towards its cure.
I developed hypertension in my 60's and my mild tinnitus exploded into a devastating condition, I didn't sleep for more than TEN weeks, I really thought that I could not survive. I finally got in touch with an audiologist. It was SUCH a relief, I cried when I found out there was a pathway out of the madness.
The most important part of the treatment was when I was told that there was A LOT that could be done help deal with tinnitus.
@@PaulKinley54 My hearing aid has a feature to mask and cover my tinnitus. Could not live without it.
Please share, what could be done?
There is SO much to be done. First get in to see an audiologist to get a proper assessment. Tinnitus has a base in the "fight or flight" mechanism and in the degradation of the hair cells in your ear. Get the proper explanation from the audiologist.
For me learning to "ignore/minimize" the ringing was crucial.
I'm sleeping again although I have occasional bad days.
Seeing the audiologist was life changing.
@@brianmacadam4793 I am glad it helped you! Thanks for the answer, sounds like a good idea!
I am glad to see this topic is being researched on. Thank you :)
Thank you very much for your support, commitment and generosity.
Thank you Kristin. Good luck on your research! I hope the cure and treatment will be find.
Please more research on tinnitus! This is very important!
I have chronic tinnitus. I'm so glad people are working on this. It can be a very hopeless and helpless feeling to know that I'll be hearing those tortured mosquitoes squealing away in my left ear until I die.
What I've had to accept is that that sound will always be there, but the degree to which it bothers me varies greatly, so it's still worth living :)
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max.
0 hearing loss.
3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
hang in there mate :(
@@5piles yah. Will do. I have enough appetite problems that I won't risk the fasting but I take teeny tiny bits of diazepam and it dulls it. I also find cbd helps with over catastrophizing. My herbalist recommends a gingko tincture and it's mildly effective, besides being a light nootropic
When you don't have it it doesn't seem like a big deal but when it's just you and it in a dark room at 3am you realize what a nightmare that is... The endless sound. But there are highly effective ways to reframe.
Even this video gave me the concept of "phantom sound" which gives it a mysterious trippiness instead of just being distressingly annoying
THANK YOU! keep up the great work!
Thank you for your research and all this information.
Ive had tinnitus since May this year. Just randomly started one day. I had a virus that same week and the ENT thinks my audotory system was just damaged from the virus, resulting in tinnitus.
When I'm busy and my mind is elsewhere, I forget about it completely. But entering a quiet room etc and it's like "I'm still here".
It's definitely improved in the six months it's been there. There have been points recently where I swear for a few minutes it's either gone or so quiet it has no impact.
Most days I'm positive, and I think about the prospect of it dissipating one day.
Other days I just want to end it all, because the thought of living with this forever, or it getting worse, really scares me.
Its so disappointing that for something which can really devastate people, there isnt a medical cure for it.
Susan Shore can help us. I had it since January 2015 after a virus… a cold with 38,3. It is still here. You will have good days and bad days. Its true. Now I’m 26yo. Stay strong, bro ❤
24/7/365, it's like torture.☹️
This is incredibly valuable. I originally only thought tinnitus affected older generations...
Until I started getting it several year ago - and learnt just how inconvenient it is to live with on a daily basis.
Please continue the research and we'll hope and pray for a cure one day!
Thank you Dr Kristin Barry, for your hard work in trying to help people!!!!
Well done! I am a chronic suffer of tinnitus.
This is why neurology is important!
I hope that her research continues to bear fruit. If I could someday be healed of tinnitus, it would be a god send. Her speech and her awkwardness actually made me uncomfortable at first, so I'm glad I kept watching since what she said toward the end does bring hope to so many.
I think she was both very eager to share what she has uncovered and very nervous to give the talk! Glad she kept going and persisted, public speaking makes many people nervous
That was probably the most beneficial CZcams video I've seen in 6 months..
How can I volunteer for human trials?
My tinnitus is super annoying, and absolutely constant.. 24 hours a day for at least the last 3 decades.. I literally can not remember what it was like to have silence in my head.
This makes sense because my chronic tinnitus seems to sometimes feel like its from further inside my head than my ears. That said, godspeed to you and the other researchers on finding if not a cure at least an alleviation or treatment.
Same here, it is not from my ears at all.
my perpetual tinnitus was so loud it would wake me from sleep after 1 hour max.
0 hearing loss.
3x 0.5mg clonazepam helped dull the nervous system, significantly lowering the sound, otherwise i would have had no choice but to shotgun myself. also 2 day fasting clears the tinnitus but the moment i eat ANYTHING even liquid makes the tinnitus blaze.
my tinnitus sounds like comes from the behind the eyes, lowering toward the upper neck.
I'm so glad so much research is being done on tinnitus. It seems like most information I find on tinnitus pairs it with hearing loss though. I do not have hearing loss. My hearing is actually excellent. But I have had tinnitus ever since going to physical therapy for some neck and shoulder pain I was having. The day she palpated my cervical spine almost 10 years ago is the last time I heard silence. I hope those of us who are tinnitus suffers without hearing loss will also benefit from the research being done. What I wouldn't give for a few moments of silence.
Have you mentioned this to your ENT doctor? Ever since I contracted this, I've felt there is a definite connection to tension/stress, especially in our cranial area, (particularly jaw, around the ears, & neck), as I've found some relief after deeply massaging at the back of my jaw, where it opens, and right next to my ear. It would make sense that aside from loud noise physically damaging our ear's ability to hear, that the volume also causes stress & tension to mount, and over time, or even in that moment, it may bring on the tinnitus.
I know the night I got it, I was highly stressed & agitated, for after protecting my hearing (working as a musician) for 40 years, that the guitarists on stage with me that night, would play so overly-loud that it would cause the monitor speakers to howl & scream as the feedback would occur, really pissed me off. So much so, and it had been so long since I had to endure such volume, I totally forgot I had a great pair of earplugs in my sax case! My ear hurt for weeks afterwards, and I developed that hissing, which eventually spread to my other ear as well.
The fact that having your spine palpitated directly led to your tinnitus, directly correlates to my sense of our nervous system, via the spine and cranium, playing a major role in this condition. If not the absolute cause, it definitely sounds like a trigger, and also an avenue to explore, as far as bringing a good level of relief, if not curing/preventing.
Please reach out to a university or other research organization that is currently studying tinnitus, and tell them your story. You can easily find them via a web search, as some are already in stage II or III levels in their research. It's sad that such an intrusive condition has been around at least 50 years, & perhaps forever, yet only in more recent years, have more studies been launched. I'm sure that drug companies, seeing how large the market is, have jumped in with both feet.... Good luck, and you might want to find a top pro massage therapist who knows how to deal with releasing the jaw muscles (one familiar in treating clients with TMJ).
❤ great talk and just wonderful news/progress. Thank you.
thanks for researching this... a lot of us are suffering badly!! so glad to hear that you are looking into it.
Thank you for your work. I am 64 and have tinnitus my entire life. My hearing always check out as perfect so at least I have that. But to know true silence would be a wonderful thing. For me, silence is not hearing anything else but that constant tone. It is difficult to describe to others what it is like and I have them think about a warm summer evening when either the crickets or cicadas are doing their thing. There is that constant, steady background noise that keeps the night air from being totally quiet. That is what I have only with perhaps a bit more electric "tone" than something like that which is organically generated.
I wish you well in your research. Millions of us are counting upon you and your team.
Ive had constant tinnitus since i was 13 or so. This news make me hopeful
Thank you for talking about this! Excited to hear bor about RTMS
I've had tinnitus absolutely continuously for 26 years. For most of that time, we've been plagued with ads for terribly disappointing treatments and, at worst, pure scams. This is the first time I've allowed myself a glimmer of hope of having the ringing stop before I die
Good to know there is some research in this area, even if it is still in the early stages. My tinnitus started around age 30, was intermittent in one ear, and slowly overtime progressed to being constant in both ears.
Over the same period I have also experienced some progressive hearing loss, especially in the higher frequencies.
I haven't reached the point of requiring hearing aids, but the tinnitus can definitely affect quality of life, and can, perhaps subjectively, feel worse or more noticeable during periods of stress.
Hopefully an effective solution can be found for future generations. Good luck with your research.
A dentist caused my tinnitus from drilling too long while attempting a root canal. Its been years and its still as loud as then. I remember it took several months before my brain started to essentially ignore it and I was able to function again, sleep, etc. It tested my sanity all the same.
I'm in my 60s, I've had tinnitus since I was 15. I'd quite like to experience hearing the sound of...nothing, because I don't even remember what that is like.
Wow this is a big find! Thank you Dr. Kristin Barry!
Thank you for this light in the beeping dark. I'm in the constant tinnitus group since 1996, which started after a car accident. I really hope you can figure this out for all the generations to come.
Me too!! So annoying!!
Me three! The driver that hit me got off scott free, while I am stuck with tinnitus and neck pain.
@@mailjabber It's crazy, isn't it? And so many people don't even seem to take this seriously...
@@lisawicks7425 It is. And do you ever meet someone who takes it seriously? I hardly do...
@@PaulKater absolutely not!! I can definitely drive me crazy though and mine is 24/7 … is yours? 😡
I clicked so fast! I have tinnitus and it’s pretty Loud. I have to sleep with the TV on or it actually drives me nuts. I’ve sat on the side of my bed and cried. I’m 62 & have had it for 6 years. I’d pay ANYTHING to alleviate it.
This woman’s voice is making my ears ring.
I have had tinnitus and high tone hearing loss for almost 50 years, following a scuba dive. After about 3 years the vertigo went away, and after more years I became habituated to it. How wonderful it would be to hear silence before I die. I have no expectations of that, but I hope this new research provides relief for younger generations. My advice would be, hang in there - you can get used to it.
Guess I'll just repeat what everyone else is saying... keep up the good work! Have had chronic tinnitus for about 25 years now. Would love to hear perfect silence again. For all those sufferers... hang in there!
I am 42, have tinnitus since 21 so half of my life with this condition. I have forget, as many of you are, have the silence sounds. It is so nice to know that so many smart and dedicated people are trying to solve this problem, and that we will probably have a solution in, lets hope, near future.
I would litteraly cry if i ever heard silence again
No CURE. Millions of pathways in brain . Cannot pin point which is misfiring😡 . I feel ur frustration.
Heres my story ; I had a sinus infection from AIR CONDITIONING in the ceiling, particles were breathed in at work. I have whooshing hissing beeping tones 4 over a year now. Blew nose hard and ears popped. Went deaf in right ear. Infection cleared with antibiotics(amoxicillin)from hospital. Right ear Hearing returns. Now this EMOTIONAL STRESS OF NOISE. Tried MASKING NOISES by headphones. 4 hours a day. Bit of a relief. Annoyingly Noise comes back.
DR gave “brain blocker signal medication” didnt work, instead caused MEMORY PROBLEMS.
THREW POISON TABLETS in THE BIN thats were they belong.
Phoned hospital and was told Still on ENT waiting list. Appt due THIS Y E A R ?
Lack of DR’s & regular strikes over pay. It seems the “almighty creator” has overlooked earnoise.
Thank you so much for the research, I've had tinnitus since my 20's and now I'm nearing my 60's.
I developed Tinnitus way before I ever heard the word for it, after being in multiple rock bands with guitars on #11. That was 40 years ago. I mostly don’t notice it until I’m in quiet environments or until I think about it. It is always there, like several mosquitos buzzing near my head. I know people who have had it much worse, where it was so loud they couldn’t sleep, & it was driving them crazy. Please continue the research, and Thank you for doing so. My idea was similar to noise eliminating headphones, where if you produce an opposite audio waveform it would cancel out a sound. Since Tinnitus is not really a sound, but something produced by the brain, you couldn’t sample it, or could you? With a Neural link or similar?
Love the descriptive of mosquitos! Is exactly what I experience.
My tinnitus journey began after an ear infection, resulting in significant hearing loss and persistent ringing at 9.5 GHz. Despite initial struggles, I chose to face it with positivity. Life's challenges teach us to value every moment. 💪🏻😉
This happened to me as well after an ear infection.
@@averiwatkins8163same
4 weeks for me so far, after viral inner ear infection, labrinthitis, an ER visit for severe acute dizziness, most hearing in left ear gone, muffled and tinnitus. Brain MRI next and high dose prednisone. Praying it all goes away. Sorry we're in same club.😢
I have non stop tinnitus. Some days it is so bad it actually hurts and break down in tears cause I just want it to stop. It NEVER goes away.😢
I appreciate the work!!! Go you!!!
It has been a full year for me now, constant high-pitched ringing. My whole body feels like it has changed, constantly tense, much more anxiety. Thank you for your passion and research. Where can we sign up for human trials??? Keep on keeping on. It will save countless lives when a cure is found. Tinnitus can be truly unbearable and unescapable. Not a great combo.
When my attention is elsewhere, I do not detect or register my constant tinnitus. When I am aware of it, I don’t let myself focus on it as something horrible or annoying. I noticed this same phenomenon as a child before I had tinnitus because we lived under a flight pattern. The planes would roar overhead, making conversation impossible, but if I wasn’t conversing or listening to anything, I was unaware that a plane was overhead. My brain tuned it out for me. Maybe there is a way to train the brain to tune out tinnitus all the time. Hypnosis or a new cognitive therapy. Not excited to apply magnetic forces to my brain.
Thanks you for looking for a cure to this awful condition.
Thank you for researching and trying to find a cure/relief. You do the (screeching) world a great service.
So I have noticed over the last few years it has continued to get more frequent, I thought it was something normal but my ears are extremely sensitive, thanks for your explanation
Yes! I desperately need this!
I've had it going non-stop for over 20 years now (in my 20's it was 'just' intermittent). I just learned to ignore it for the purpose of sleeping and everyday life. But I have no doubt it affects my concentration skills, and this along with increasingly worsening hearing has definitely contributed to me participating even less in social circumstances.
I've had tinnitus since before I was 5 and I'm over 40 now. It's directly correlated to my exhaustion level, and goes away with I take my ADHD meds (which boosts the prefrontal cortex). It's definitely way more complicated than just hearing loss!
I made that connection too as I have been ADHD all my life. The prefrontal cortex connection is interesting. If they do human trials with the magnets, I'll be first in line.
Ive been undiagnosed ADHD for most of my entire life. Now I’m 49. I have been wondering the SAME thing-if there is a correlation between anxiety/stress and tinnitus. I have had low-level tinnitus for probably 25 years due to my chosen life path in music. But it only got to a horrible level when I started getting very stressed out during the past few years. VERY interesting and hopefully there’s scientific research on this.
Very interesting talk. My wife suffers badly. She was born with frequency limitations due to incomplete cochlea development and after a serious incident developed this hidden disease.
Hopeful that some kind of cure/mitigation is on the horizon.
As someone with pretty serious tinnitus, the only advice that works in the end is: stop caring about it and don't pay attention to it. As hard as it may sound (pun not intended), paying less attention actually lessens the impact.
Agree totally, I've had tinnitus for years but it doesn't really bother me, if I don't give it my attention and actually listen to it then I'm not actually aware of it.
I'm sure you're right, but what I find hard is 'not' thinking about it.
When I sit in a quiet room, I almost wait for it. I wait to hear it.
I have no idea how I'm supposed to reach a stage where I don't think about it
As someone who suffers from tinnitus fairly regularly (especially when I lay down to go to bed at night), I've found that if you gently tap the back of your head with your fingers (where the ridge is at the back of your head -tap gently along that ridge for 20-30 seconds with your fingers, then stop ....then repeat) - doing this several times often relieves my tinnitus. I remember I once saw a video which gave instruction on how to do it, I can't remember why it works (something to do with the occipital lobe) but it does for me at least. If you also suffer, I'd highly recommend trying it.
Thank you so much for this info. I used to experience tinnitus as a result of my car accident and recently I don't. I have been listening to music, mostly classical music.
@@ewalichorowicz4614 Hope it helps for you! I've tried to find the video to paste a link, but can't find it anywhere. I feel more people should know about this - while I think it doesn't help everyone, it helps many and is worth knowing/sharing etc :)
Thanks. I tried this & it seemed to work. Not initially, but I tapped a bit harder & it seems to have quieted down a fair bit.
Might just be placebo though. Still, if it works...
@@The0rs That's excellent news! I'm so glad this info has helped people like it helped me. My understanding is that it works for lots, but not all cases. If it doesn't work at first, just keep tapping for a short while :)
I have titinus for a few years now and it never stop. 24 seven.😢
Really interesting!
My wife has been treated with RTMS for other reasons but that made me aware of it and how fricking incredible the technology is. I will 100% be paying attention to this to possibly treat my decades old tinnitus.