"Chronic Fatigue Syndrome: A Unifying Theory" Charles Lapp, M.D.
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- čas přidán 29. 04. 2011
- This presentation was made during the OFFER 2007 Provider Conference. The speaker is Dr. Charles Lapp and his topic is, "Chronic Fatigue Syndrome: A Unifying Theory"
Bateman Horne Center is a non-profit clinic and research center, advancing the science, treatment, and education of ME/CFS, fibromyalgia, and related conditions.
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I have had CFS/ ME or whatever...for at least 20 years. I have been treated as lazy, a bit crazy ,hypochondriac ,weak and hypersensitive by family,friends and coworkers. The first 10 years more or less I had no idea as per what was wrong. It was more than obvious that something was really wrong. I have been suffering from all symptoms,sometimes more sometimes less ,sometimes with part of the symptoms sometimes with all. My day to day life is generally dysfunctional and I m incapacitated to some degree or other. No doctor has been able to diagnose me .i have had to research extensively on my own but have found no cure. I am now 41 years old I have an excellent looking physique and look very fit. One would never guess. What I have discovered and I can attest to conclusively is that when I get to spend more than 2-3 days at my mountain cabin all the symptoms seem to retreat greatly!! I even have days when I am almost symptom free! So what do I think ? Well, 1 I have much less stress there, 2 I drink pure and clean water 3 I am more active there physically ( cause I must, carry wood ,do some weeding , different fixes around the house etc) 4 I breathe cleaner air 5 I watch hardly any tv or spend time on my pc 5 I walk in nature 6 I receive much less electromagnetic radiation 7 I m in a virtually chemical free environment ( I also use chemicals to the minimums) 8 it is much much quieter than in the city. I have been astonished at the fact that whenever I m up there I get better .so I kept a diary in the city and on the mountain, including everything,what I do ,don't,my symptoms etc. something else that seems to help to an extend is : vitamin C ( minimum 1000mg) , ginseng extract , magnesium ( minimum 500 mg) , a good vitamin B complex ( high dosage) the latter is something that seems to help me if I take daily for a minimum of a month . My greetings and solidarity to all involved in the illness patients and researchers alike.
Yours seems exactly like my story. Except that I'm 47 and had it for 30 years. I also look fit and one could never guess. I may feel better in the mountain but I couldn't do an extended experiment so far. I have a suspicion that I feel better when I have a lot of runny nose. As if that would cleanse my nose (and my body/brain). I also have chronic sinusitis. Do you relate to that?
Mold
This is glorious, I been tryin to find out about "myalgic encephalomyelitis association" for a while now, and I think this has helped. Ever heard of - Diyadelyn Ziyily Idea - (Have a quick look on google cant remember the place now )?
It is a good one of a kind guide for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) without the normal expense. Ive heard some amazing things about it and my brother in law got amazing success with it.
@Anti Jesuit Thank you! No, no mould whatsoever
@@lorenzocampos2200 Amazing, I do have chronic sinusitis! I haven't noticed of syptoms dissipation during runny nose days. I wonder if chronic sinusitis is just a coincidence..I will definitely record runny nose days from now on.
Whoa.... I've been ill for years. This is me.
Mine started with a virus that was flu like and I never recovered. My Doc's don't have a clue on how to treat me, they've given up.
Thank you for sharing all this wonderful research. God bless you.
6 years ago. That says it all, doesn't it? 6 years and still no one much cares. I've had this 20 years and am facing the fact that I will die with it.
Brenda Reed same here, had it since 1985 :(
I'm so sorry Brenda. I can't imagine having fit for 6 years. I've had it for 2 and it's been a struggle. I can't seem to figure out how this suffering glorifies God or brings any benefit to humanity. It has slowed me down and put a pause on my life. I'm trying to understand what good can come from this. God, help us figure it out.
Me too Brenda.
Yep, honestly I don't really know how long I've had it but I do know its been OVER 10 yrs..likely longer. It's been so bad that I'm hardly able to get up and do anything for a lil over 10 yrs. My entire "prime" of life spent in absolute misery struggling to even get food in my belly. No freakn end in sight.
I did think at first when the covid "long haulers" thing began that maybe there was a silver lining & some progress might be made in treating this cursed disease, but the more I've learned the more I realize that any of the progress will only be for people who's CFS started with covid.
Yeah well Charles Lapp should be the poster child of what's wrong with the medical system.
Can we have a video about the connection between mold exposure and ME/CFS? I feel it’s underlooked. Thanks!
I feel like Heidi. Only when she got out of the dark, damp living quarters and went to the mountains with her grandfather, did she thrive! Same with me. I’ll never be able to get to the mountains.
I believe one of the major triggers for me was getting breast implants. Deathly sick for over 12 years until I found out about how toxic they are and that they cause fungal infections, and had them removed, did I even begin to get better, but so much damage was done, I don’t know if I’ll ever be well again. You’d never know it by looking at me, either.
I was diagnosed with ME 5 years ago and today have been diagnosed with a brain tumor which the neurology consultant says is almost certainly the cause of my illness all along.
If you have ME and haven't seen a neurologist yet then go to your doctor and insist on it. At least get the possibility of a neurological issue ruled out. The longer this kind of thing goes un-diagnosed, the less likely it can be effectively treated. I was fobbed off by GPs for 5 years and it might now be too late for me.
It would also be helpful if you can find a really good doctor for the "M.E." as they could also help make the differential diagnosis; they would more likely to catch that your symptoms aren't typical. Dr. Hyde has found the majority of people with "pure fatigue CFS" (10-15% of the overall ME population) actually have missed heart disorders, cancers, etc. Misdiagnosis of conventional illnesses as M.E. is very common.
Oliver Tatlow will an MRI scan show this?
Omg, I hope not! I also noticed you never responded to replies. Hope that doesn't mean you've passed away. 😟
You're so right about the longer the illness progresses the less likely it is to be treatable. I've literally spent close to a decade trying to get medical help but STILL am no closer to even getting a diagnosis!
Actually at first I assumed I was suffering from some type of sleeping disorder bc of the way Im still exausted after plenty of sleep. Only for the past few years did i finally realize that CFS matches my symptoms exactly (even tho I'd love nothing more than to find out it's something else that's treatable!)
I also worry that I might have cancer somewhere. I'm at my wits end at this point. I'm so sick of no Drs taking this seriously despite my insistence that I'm barely able to function to the point of almost not even making it to that appt. I'm currently searching for a new primary Dr. Idk what's so hard about ordering some tests!? This is my life just going down the drain and I'm beyond sick of being too sick to do anything!!
I got carried away there..sorry. But great advice & thank you!
@@heatherrhodge2588 I'm still here. Just don't get around to answering all comments
I'm an RN who cycled 200 mi wkly and was always active until 12-24-09 when I got "the flu"! In the past year since I've finally become strong enough to think, breath and walk again, I've searched for the answer to what has happened to me! Thank God for the supportive Dr's and researchers who are finally realizing this is a REAL epidemic from Hell and are looking for answers! I never would have believed it until it happened to me! I'm praying for the cure! Thanks, is not enough for your work!
Chris, how are you doing now? Curious to follow up with you.
Brilliant talk by Dr Lapp. One of the best overview talks on ME/CFS I've ever seen.
I have 2 TBI's a skull "fracture" and not much help - Ive lost everything and everyone - I ve been denied disability 6 times - life sux - Id rather be dead
Why is no one talking about mold exposure and its connection to ME/CFS?
I’m wondering the same thing.
@@goldilockz6517 you're kind of cute.
Can we get the “therapeutic approach “attatched here please ?
Thank you. Makes good sense.
God bless you dr. Lapp. Keep up the good work.
excelente presentación. La bibliografía es impresionante
Id love to get the notes from this - seems like a great review
Some things that may help: enzyme supplements, avoid gluten, sugar and stress.
Alpha Lipoic acid and B supplements may help somewhat. Avoid bad fats.
Good fats are: avocado, nuts (peanuts are legumes, not nuts), cold olive oil.
Some of these suggestions take some stress off of a taxed immune system.
a bit technical for the lay person, but a couple of new ideas added to my research. thank you
Please, put subtitles for non-English ME people . ( its very difficult to understand /translate, just listening) Tks !
Mycotoxins from mold=CFS