#Guillain
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- čas přidán 31. 07. 2016
- This video provides an overview and explanation of Guillain-Barré Syndrome, its investigations and its treatments.
It describes how it is caused as an auto-immune process and the recent linkages to Dengue Fever and Zika Virus.
The major sub-types are described such as AIDP, AMAN,, AMSAN, ASAN, Miller Fisher Syndrome and PCB.
Curative Treatments such as Plasma Exchange (PLEX) and Intravenous Immunoglobulin (IVIG) are explained.
Supportive Treatment such as Pain Relief, Anti-Thrombus, Cardio-Respiratory care are outlined and the importance of Multi-Disciplinary Rehabilitation is emphasized. - Věda a technologie
![Peripheral Neuropathy Home Remedies [Leg & Foot Nerve Pain Treatment]](http://i.ytimg.com/vi/q586fnELj7w/mqdefault.jpg)
I have noted many people have mentioned the Axonal Variant GBS for which I too have been diagnosed with and my prognosis is poor.
It seems to be a mutated chronic version in Asia and South America now.
I am in Australia and probably consider we are part of Asia both geographically, politically , socially and culturally.
I was on IV Ig which didn’t help me at all but made me unwell with fevers, nausea etc.
Currently it’s been just over one year and I am still paralysed and have nil reflexes. Physio is a must to help you get by in your day to day living.
OT to help with your fine motor skills to improve your quality of life.
Speech Therapy to assist with Dysarthria and testing your swallow reflex. I myself don’t require a speech therapist as I worked for many years in Otolaryngology Head and Neck surgery where I assisted patient’s who had pharyngolaryngectomies etc (had their vocal chords removed due to throat cancer) . I’m aware currently that I am slowly aspirating my saliva at night as I have awoken several times from choking.
I hope to die in my sleep rather than die slowly by aspirate pneumonia.
At times I cannot type . My hands have wasted away and my fingers no longer work in unison anymore.
I wish anyone who has Axonal Variant GBS well.
Don’t give up as your bad days are worth putting up with to experience your good days.
Thank you for explaining GBS clearly and the sub types. I had GBS on holiday in thailand I had eaten something that was not quite right, giving me diarrhoea however on the third day it cleared up. On the 4 th day when i woke up i could only move some parts of my body but within 2 hours i was disabled except for my toes. I was lucky the hospital did a lumber puncture and said i had GBS. Treatment was IVIg blood dose yes very expensive but it worked slowly and it enabled me to return to the uk in a wheelchair. I spent some 4 weeks in hospital slowly recovering. It has taken me @18 months to fully recover and my body strength is nearly back I do go to the gym 3/4 times a week the only problem is fatigue.
I'm happy for you. Did you take antithrombosis injection? When did you beginn with physio? Thanks in advance 🙏
Well presented solid information.
Very informative, thank you
Nothing about miller fisher??
There certainly is-watch the video properly! (4:43) Bw Simon
Thank you so much. It was very informative. My mother has this syndrom. She has paraparese, and loss of sentibility in the fingere and half face. We start tomorrow the therapy with human imunoglobulin, and i hope this will make her better 🙏. I would like to know what kann we do to prevent side effects from this syndrome. Thank you in advance
Sir kindly teach electrophysiology in NCS, EMG in GBS
Though I appreciate this video, it is quite overwhelming. I found this disease and was originally thinking it was the disease my mother has. She has been struggling with allergy/paralysis reactions for the past 2 1/2 years though, which shows that it is not Miller Fisher. She reacts to so much of everyday things she has a difficult time going out in public. It has been even more difficult to find doctors who are willing to listen and work with her to find out what the problem really is. Do you have any idea if there is a disease with these symptoms, but last for a much longer proof of time? Will it ever go away? Most importantly, do you have advice on how to find a specialist for her (traveling is near impossible because of her reactions).
Hi Jessy, thank you for your questions. Firstly, these videos are not for people trying to self-diagnose, they are informational for people with a confirmed diagnosis, or those wishing to find out more about a particular condition. The information provided about your mother's condition is quite vague and so I cannot comment on any aspect. In addition, I do not provide online consultation services as I believe this to be unsafe, so please do not add any more information. Wishing her only the best of health from whatever is causing her symptoms, best wishes, Simon
Dr Simon Freilich, thank you for your reply. I was not going to assume you’d be able to diagnose simply through my comment, but it was worth a try. Truly we just feel helpless in finding someone who will listen and help push us in the right direction. My mother has been to numerous doctors (autoimmune, allergy, rheumatoid arthritis, neurologists, etc.), but to no avail. I was hoping that by researching on my own and commenting we could possibly get a push in the right direction as to where to go or who to connect with. Thank you for your work and your response. I know you are a busy man, so know that I truly appreciate that you responded to my comment.
sir im from india and im now 80 percent recover so now im able to stand and walk slowly o now how many time to recover
Thanks for the video Simon, so GBS is like an umbrella term and each of these conditions falls under the GBS heading ? or are they separate entities
Paul O'Brien, Thanks, that's a great question! There's an ongoing debate about this one which effectively divides between 'lumpers' and 'splitters'. There are good reasons for either position. Personally, I prefer to see it as an umbrella term for practical reasons. Bw Simon
HappyShocker thank you !
Due to ocd problem I have taken idrv vaccines in 2016,2017,2018,2019. I have taken booster every year. Now I fear of gbs. It will affect due to unnecessary vaccines
Hi, my name is Abdul vahid I had suffered from gbs 27 years ago when I was 6 years old . Had taken physiotherapy for around 7-8 year. Got good improvement in movement but not able to stand and walk. Is there any treatment available that I can try now.
Hi Vahid, at this time point, nothing specific thar I can suggest with regards to the nerves. Bw Simon
@@DrSimonFreilich what about future, will this be stable or going to impact as i grow older?
Vahid plz can u tell me more about your treatment as my doughter is 8 year and diognose amsan
Sir I want to know about miller Fisher syndrome pls? My husband has GBS he has given ivig treatment and now he's getting better but I worried most is his miller fisher syndrome does it go away on its own? Pls help..
hello sir. i m from jabalpur india.i have gb symdrome from 3 months.but doctors here say there is no medicine for it.plz guide me about this.
its treatment is ivig
imunoglobin iv is the treatment
respected sir, me form India my bro aslo suffering from GBS since Oct 2018 . there is no improvement of nruves
Hi, I'm sorry to hear that and GBS can have very long lasting and significant effects on the nerves. Bw Simon
I had GBS in 2010 year.
How did you get better?
@@budgiem5733 Im fine now, I just get tired quicker and slower at work.
Can this go away without treatment?
Hi, the idea of treatment is damage limitation and the less damage the better. For some it might avert the need for more intensive treatment, recovery is faster and residual weakness is less. Bw Simon
Thankyou
Dr. Simon, I am from INDIA. My mom is suffering from axonal variant GBS from last 30 days and given IVIG treatment two times. After IVIG, she is suffering from fever from 3 days. Plz help me and give me your suggestions. Any of your email ID.
Hi, sorry to hear of this but I don't do online consultations. Best wishes though, and a speedy recovery, Simon
It’s not abnormal to have a fever post IV Ig as you are receiving others antibodies thus her body is reacting normally as it is recognizing foreign bodies. If the fever doesn’t taper off after 3 days take her to her doctor.
Mohini Rastogi I have Axonal Variant GBS too. I too was given IV Ig which I too had fevers post treatment. However it didn’t help me.
I am in a wheelchair permanently and have been told I shall die when my nerves attack my diaphragm and or die from aspiration pneumonia. I’m currently aspirating slowly despite sleeping upright etc.
It’s terribly painful and I am on my state government trial of Marijuana THC/CBD oil so I don’t need opiates thankfully.
Axonal Variant GBS is found in mostly Asian countries and now South America.
Poor prognosis unfortunately but don’t give up fighting this awful disease.
Not commonest form. Correct English is most common form.
verey handsum💋💋💋❤❤❤💝💝