Juvenile Idiopathic Arthritis: Everything You Need To Know
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- čas přidán 9. 07. 2024
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Chapters
0:00 Introduction
2:44 Causes of Juvenile idiopathic arthritis
3:38 Symptoms of Juvenile idiopathic arthritis
3:55 Diagnosis of Juvenile idiopathic arthritis
5:27 Treatment of Juvenile idiopathic arthritis
Juvenile idiopathic arthritis (JIA), is the most common, chronic rheumatic disease of childhood, affecting approximately one per 1,000 children.[1] Juvenile, in this context, refers to disease onset before 16 years of age, while idiopathic refers to a condition with no defined cause, and arthritis is inflammation within the joint.[2]
JIA is an autoimmune, noninfective, inflammatory joint disease, the cause of which remains poorly understood. It is characterised by chronic joint inflammation. JIA is a subset of childhood arthritis, but unlike other, more transient forms of childhood arthritis, JIA persists for at least six weeks, and in some children is a lifelong condition. It differs significantly from forms of arthritis commonly seen in adults (osteoarthritis, rheumatoid arthritis), in terms of cause, disease associations, and prognosis.
The prognosis for children with JIA has improved dramatically over recent decades, particularly with the introduction of biological therapies and a shift towards more aggressive treatment strategies. JIA treatment aims for normal physical and psychosocial functioning, which is an achievable goal for some children with this condition.[3] Arthritis means inflammation within the joint, and is usually recognised by swelling, pain, stiffness and restricted joint movement. Symptoms of JIA vary from individual to individual. This is mainly because JIA is an umbrella term for several subtypes of JIA, which differ according to the number of affected joints, severity of disease and presence or absence of inflammation in other parts of the body.[citation needed]
The key clinical feature in JIA is persistent swelling of the affected joints. Any joint can be affected, but large joints such as the knee and ankle are most commonly involved.[4] Involvement of small joints of the hands and feet is more likely when many joints are affected ('polyarthritis'). Swollen joints may also feel warmer to touch. Swelling may be difficult to detect clinically, especially for joints such as those of the spine, sacroiliac joints, shoulder, hip, and jaw; imaging techniques such as ultrasound or MRI can be very useful to identify the inflammation.[citation needed]
Joint pain is an important symptom, although some children experience minimal or no pain with their arthritis.[5] In these children, the first sign of arthritis may be limping, especially in the morning.[5] Young children are often very good at changing how they move when they have joint pain: they learn to move so that it does not hurt. For example, a child will not push up using an inflamed wrist when climbing, instead putting their weight though the forearm. Morning stiffness that improves later in the day is a common feature (this implies inflammatory-type joint pain versus mechanical-type joint pain).[citation needed]
Swelling and pain usually result in limited movement of the affected joints, for example a knee held bent causing a limp, or being unable to make a full fist. Limited movement may reduce a child's ability to fully participate in activities and undertake usual tasks such as those used for self-care. In some JIA subtypes, more non-specific symptoms of being unwell may be present, such as lethargy, fatigue and poor appetite. Children with systemic JIA usually present with fever and a classic rash and may become quite ill. Late effects of arthritis can include joint contractures (stiff, bent joints with loss of movement) due to joint damage; limb length discrepancies and muscle wasting. Children with JIA vary in the degree to which they are affected by particular symptoms.[citation needed]
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My parents didn't know the problem until this video. Im almost 18 and im 5"4, the condition limits growth and other physical activities. I tried to change my diet but it doesn't seem to change the condition,. Sometimes I even skip school. I wish i had enough to visit specialists!!!!!!
I have JIA. But I have a pretty severe case and it’s present in around 40 joints (including my hands and every finger, knees, hips, elbows, shoulders and jaw). One thing is I don’t have visible swelling, but I have bad eyesight, which I either inherited or is asociated with JIA, and shortness of breath, but not asthma (I was tested) but rather the fatigue. My doctor and parents didn’t take me seriously (that’s why I made my appointments and visits alone except they needed a parent) so it kind of took 3 years after my complaints started to get a proper check and help. I’m currently 16 years old and my complaints started a few months after my 13th birthday. It got worse and better over time, firstly I thought it was normal growth pain. I’ve had better and worse episodes and tried out different diets and involving activities and sport in my all day life. I’m currently trying out different medication and physical therapy.
Sorry about the condition, Please stay strong.
I’ve been going through almost the exact same thing for around 4 years. I’m 18 now and wasn’t taken seriously until I was completely bed bound for months. Now that treatments and physio have started I can see improvement and hopefully can go back to a normal life in the near future. Try not to lose hope and try to research some alternative methods. Daily stretching even in bed have been a huge help along with diet (which is very very important)
Hey I'm making a reply on this
Sounds slightly similar to me honestly. Have never gotten eye involvement. I do wear glasses, but I honestly doubt that's due to JIA. Then again, glasses don't completely run in my family, so it may be it was that, not sure. But I have arthritis all over my body. In every single joint. Neck, jaw, shoulders, ribs, elbows, wrists, fingers, hips, spine, knees, ankles, toes, collarbone, etc. Literally all of it. Not the most fun thing in the world, but it's been my reality for the last 19 years
@@alexandriak7991 Hey that's painful. 19 years is a long time to be in pain! How do you cope? You're tough for holding on. How old are you btw? I posted my story below and I decided to go for NSAIDs because I couldn't take it any more. I went overseas for my bachelor's so I have to keep taking casual jobs at the same time. Fingers crossed I don't develop resistance to these tabs because they're my life. I thought avocados made me better before I took the tabs but it kept coming back so that aside
@SoulDecayer Your condition is more extreme. I've also had it for 10 years I'm now 24. Mine used to be on all major joints plus knees and elbows. But they went away completely, now I have pain in my shoulders and hips. Sometimes the sternum and mid back comes in on and off. I tried DMARDS for some months but didn't see improvements. So I stopped. When I take NSAIDS I feel like I'm cured but only for a few hours. Mostly the relief carries on to the next couple of days before it's back again.
I used to live without NSAIDS or painkillers because I made peace that it might be life long and without cure. But I've now gotten into the working stage of my life and I have no choice but to push my limits.
It's tough understanding that you can't have a normal life and big goals but one day at time makes it better. Hope y'all find healing
Thank you for sharing
Very good,
It's amazing video ,thanks.
I have this condition! Have got rashes all over my body, fatigue and fever!
thank u so much
I have this condition and now I know everything I need to Kronos tysm
Know*
There's actually two types of Polyarticular JIA. RF negative and RF positive. This video only shows RF positive. I personally have RF negative. RF negative polyarticular JIA is asymmetrical.
Nice
Is there have any solutions to solve problem punde
Very helpful
Glad it helped
❤
Love from Pakistan
I had this from age 9(ish) to age 14, smashed the methotrexate tablets and it miraculously disappeared one day. Done it all like cortisone injections, physio, had fluid drained off knees for clinical trials and then one day it vanished, I’m 27 now and my daughter is showing signs, but anyone who actually has this then don’t stress because you could one day wake up and its gone, super weird
Thank you for sharing your personal experience with juvenile idiopathic arthritis (JIA) and the fact that it seemingly disappeared as you got older. While JIA is typically a chronic condition, it's not unheard of for it to go into remission or improve significantly as children with the condition grow into adulthood. Every case of JIA is unique, and the course of the disease can vary from person to person. It's important to monitor your daughter's symptoms closely, consult with a healthcare professional, and explore treatment options if necessary. The fact that your symptoms improved over time is indeed encouraging and offers hope to others facing JIA. It's essential to have a healthcare provider assess your daughter's condition and determine the best course of action for her health and well-being.
I'm 24, soon 25, but I've been carrying a bunch of symptoms, swelling and pain around since many years. Can a rheumatologist differ between JIA diagnosed way too late and RA(rheumatoid athritis)?
Yes, a rheumatologist can differentiate between Juvenile Idiopathic Arthritis (JIA) diagnosed late and Rheumatoid Arthritis (RA) through a combination of clinical evaluation, patient history, and specific diagnostic tests. ❤️
My 8 Yr old daughter had JIA in one of her knee joint in 2016 when she was only 2 yrs old nd now these days she is again not well
How is she now? Is she on medication?
Thanks
You are welcome
👋Present 👋
Most JIA patients are RF(-).
what does RF mean?
@@johnpreston230 Rheumatoid fever/factor I suppose
I've had this jia for 10 years. I'm now 24 my physical life is terrible but I can still move daily with pain. I've learned to live without meds
I am 18 and have worsening JIA
At this point, you more than likely have osteoarthritis rather than JIA. Speaking as a 33-year-old who was diagnosed at 2 years old (although we called it juvenile rheumatoid arthritis back then), you do grow out of JIA. If the condition was severe, it may have caused enough damage where you have arthritis the way an old person does. That’s the boat I’m in. If you can, I recommend seeing a sports medicine doctor for gel injections. It’s been literally life changing for me! Good luck to you !
Avoid dairy, grain and sugar and condition should soon disappear.