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My Chronic Illness Journey Episode 2 Even Mild Stress Hurts!
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- čas přidán 16. 05. 2021
- Thank you so much for all the support! ❤️ In general people talk about trigger foods with Microscopic Colitis, but today I’ll be talking about another trigger -- STRESS! Things I use to be able to handle, now cripple me. Even as I was editing this to post today, I've been flaring from the stress of keeping the boys off the video games. 😩
Links:
Microscopic Colitis Support Forum: www.perskyfarms...
The Meat Racket by Christopher Leonard: bookshop.org/b...
Dr. Temple Grandin: www.grandin.com
Low-carb vegan: www.dietdoctor...
Keto vegetarian info: www.dietdoctor...
Ken D. Berry, MD 10 AUTOIMMUNE Conditions Benefit from CARNIVORE Diet (Research) 2021: • 10 AUTOIMMUNE Conditio...
Doctor’s Best Magnesium: Amazon no longer carries the one I got. The reason I got it is because there are no other ingredients. Check your local health food store.
Microscopic Colitis Matters: / @microscopiccolitismat...
Praline Noel: / @stomachsister
Where you can find me:
Facebook: / sheamcintoshford
Instagram: / sheamcintoshford
So glad I came across this! I just got diagnosed with lymphocytic colitis after having doctors telling me it was uc for about two years and symptoms for a lot longer. There is so little information on this, but this video with all the links and stuff is supper useful. I am only 20 years old so I'm in this for the long haul.
Thank you so much for this information.
Awaiting endoscopy and colonoscopy. Have just the general diagnosis of colitis right now. So sorry to hear all that you and others are going through. Thank you for making videos.
Might I suggest getting a bidet for the bathroom? Game changer on the feeling cleaner aspect.
I hope you’re getting better. I have lymphocytic colitis too (2017)
I feel your pain. It's so confusing! I had just ordered a quarter farm fresh beef and I can't eat any of it! My husband and kids can, though. I ate three bites of lamb on mother's day (I had prepared it and chewed it well) and I was in pain and on the toilet within two hours and paid the price for two days! It's so hard to tell what to eat. I only eat very few things. Literally. BEFORE I got really bad and got diagnosed (who knows how long I have actually had this) I pretty much did paleo, keto. carnivore but now I can't eat any diet-just a few things. I go back to my jerk doctor tomorrow afternoon and I will make a video after that to update you. That person on that group was very immature to treat you like that. Girl, click the X and don't go back! Hang in there and keep posting these videos. It's helpful for us to know we are not alone. One thing I started doing it soaking at least three times a week in a warm bath with Epson salt, a candle, bath pillow, hot herbal tea. Schedule the time and make it a priority to help destress. I hope today is better for you. P.S. Tex on Persky Farms (MC Forum) has given me the best diet advice although I never like what he says, it helps!
Isn't that crazy about how we all react to different foods? That all fuels the stress! 😩 I hope you have success with your doctor this time, but based on past experience, I can imagine that you probably won't. 😒 I'm friends with the creator of that group, so I go back. But I don't comment on any of that girl's posts anymore. I share my knitting/book videos in that group, and my episode 1 of my journey. But I didn't share this video 😂 And since I'm going carnivore to try and treat this condition, I probably won't be sharing future videos unless my diet changes. 🤣 I now miss my garden tub in our previous house. A nice candlelight soak sounds lovely! Being creative helps me destress if I'm not in too much physical pain. Maybe soaking in the pool once it's warm enough will help too. Once I'm done with my 90 days, I will go back and revisit the Persky Farms diet advice if I'm still struggling. ❤️
I too have lymphocitic Colitus. I just got diagnosed about 6 months ago. And am still on Budesinide.😢
Thank you I am just starting this journey and find your episodes to be very helpful. Each person is different and the doctors don't have the answers!
Hi..
I hope you improve..
And keep going with the channel.. everyday is a challenge... l feel good sometimes and feel horrible the next..
And Yes.. stress is a big factor in this disease... more stress more flare ups...
I'm posting a new video tonight or tomorrow. 💜 Been in a better spot lately. 😁
Wow. The lady calling you a murderer. 😢 I went to a dietitian and she suggested I eat vegetarian. Ugh. It feels like no one understands sometimes.
I’ve gotten the appendicitis like pain for years. Doctor has no idea why. Stress messes me up too and there is always stress with my parents being sick and having 5 kids.
I really hope you figure out what will help you!
Oooh, yeah, I can't imagine the stress of 5 kids! I've only got 2 and I've been flaring this week just from the stress of limiting their screen time! 😂 I hope your parents are able to get better soon. ❤️ It would be great to have one less stressor in your life!
I hope you're a little better. I have a long list of auto immune issues that started when I was 9 or 10 years old and I'm now 71. I was diagnosed with LC at the end of 2017 I only weighed 93 pounds and 6 months before that I had been a little overweight at 130 pounds. My journey is long and I'm ready to go back to keeping a food and poop diary to try to figure out why I'm having a few diarrhea flares lately. They started again after I let myself get "glutened". I thought I was using gluten free oats for about a month and they weren't GF. For four years before LC I had been on prednisone to help with pain from Polymyalgia Rheumatica (only old people get this and it's in remission now). A nurse practitioner encouraged me to taper off the prednisone even though blood tests and pain showed inflamation. When I had to go to a new rheumatologist she thought I looked like I either had aids or anorexia. That same week I saw a GI doctor who told me there were several clues to MC before he did the biopsies. I have celiac. I had weaned myself from prednisone. I was taking a lot of Aleve for the RA pain. I was drinking Ensure to try to keep from losing more weight and I didn't realize it has artificial sweeteners. I had been avoiding artificial sweeteners for decades, but I was concerned about making sure Ensure was gluten free and was clueless about the sweetener....I know sugar isn't good for us, but why put artificial sweetener in a drink that is supposed to give a person more calories so they won't starve to death? So...NSAIDs and artificial sweeteners are bad for LC and many people with LC also have celiac. By the end of the six months of tapering off prednisone and the weight loss from constant diarrhea I lost much of my strength and still haven't regained it, but I do get exercise and lift a few weights. I rarely have pain, so I feel so sorry that you do. When I do, I know how awful it can be. Okay I need to get to the point here. I was prescribed Budesonide (three capsules) and after six months tried to taper to two and eventually to none. I couldn't taper at all, so the GI said I was one of the small percentage who don't go into remission and I would have to take it forever. The good thing but also bad thing was that it also masked my RA. It isn't supposed to affect more than the colon, but it did. After three and a half years it quit helping the diarrhea!!! The GI told me to go on a FODMAP diet, but it didn't help so he prescribed Lomotil. My Rheumatologist suggested I get a second opinion. I did and I started taking CHOLESTYRAMINE. The dosage is one packet in water, but I often have strange issues with medications, so I decided to start slowly. At first I mixed a packet and drank 1/2 and refrigerated the other 1/2 for the next day. It turned out that I only needed 1/3 each day. There a couple of drawbacks, but I think it's better than the Budesonide, even when that was working. Steroids really did bad things to me. Cholestyramine depletes Vitamin D, so I take extra every morning and evening and if you don't brush it from your teeth it will harm the enamel. I hope you go into remission, but know that there are options to the Budesonide. I appreciated your videos and I'm going to work hard at my diet. Back in 2017 I could find very little information on Microscopic Colitis. Our neighbor is an orthopedic surgeon and has suggested I go the carnivore route, so now I'm going to try. I wish you well Shea. Kerry Braithwait
Uggh to the artificial sweeteners! I've done that before, looking specifically for gluten, only to overlook something else to cause me problems. I really hope the carnivore route helps you! Trying to navigate all those medications and their side effects must truly be a challenge! FODMAP didn't help me either, nor did AIP protocol. Even carnivore only worked when I switched to the lion diet version of it (only ruminant meats). But I'm slowly able to start adding other meats back in. I hope you find answers too!
I'm finding out which version in 2 weeks. I can eggs but under no circumstance can I eat pork. God, I miss bacon.....
What is your experience with fish ?
Thank you so much for watching! 💜 I cut fish out of my diet for several months, when I was focused on the lion diet (only ruminant meats.) I've been able to reintroduce wild caught salmon without issue. I tried wild sardines in water and had significant cramping, but the week I tried them it happened to be a really busy semi stressful week, so I'll probably try them again. I tried salmon as sashimi recently, and it gave me cramping problems. Don't know if it's because the fish was raw, or because it was probably farmed. 🤷♀️