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No, I had no side effects while on Busesonide. However, it should only be taken for about 6 weeks. Very expensive too. I have some pills but will only take them if everything else fails. Am now taking Nutricost Boswellia Extract supplement, twice a day. 1,200 mg. It is very helpful. Hope this helps.

So thats all you ate for 2 weeks. Rice? No fat? Meat? Wow... ❤ thank you for sharing. Note to self, leave my LDL alone

I’m so happy for you that you’re living life again!

I look forward to hearing if this works.

I was diagnosed with lymphocytic colitis over a year ago. Had gone in for a routine colonoscopy and endoscopy. Thankfully my doctor decided to take biopsies and I found out what was causing stomach pain and constant diarrhea. She put me on Budesonide, a very expensive drug, but it really helped. Unfortunately steroids should not be taken long term and when I stopped, I had a flare up within a month. And have not be in any remission since. Am now on the low FODMAP diet. Early days, so no help yet. Imodium has become my constant companion. Happy to find you.

Was just diagnosed with this. I was glad to hear information on this very condition. We were diagnosed around the same month. Thanks for sharing

Have you been checked for hyperparathyroidism?

I was just diagnosed with lymphocytic colitis today, after having diarrhea for a year. No pain. Looking forward to hearing your story.

😊 Ajoyib, sokin va qunoqlik jamlanmasi 👍

Best Wishes I'm struggling also .

I’ve just been diagnosed with lymphocytic colitis… life has not been good at all. I’ve had this for years but only just been officially diagnosed from a biopsy. It’s hard work 😢

I have this too as well as several other inflammatory conditions. I have acid reflux. PPIs used to treat reflux can also cause this condition which is dumb they even put you through so much to try and find reflux. Recently I was changed to carafate which basically works like a PPI did to protect my stomach but instead for the intestines. However it isnt a treatment for LC. IBGaurd (I take the CVS generic) is the only help to counteracting a flair along with OTC antidiarrheals. I generally cant take steroids due to cortisol issues so doc is still trying to work out if I can try budesonide. To be honest everything this poor soul has said is trademark for Autonomic Dysfunction hope you were checked for that as well! A common occurrence for people post covid.

So glad I came across this! I just got diagnosed with lymphocytic colitis after having doctors telling me it was uc for about two years and symptoms for a lot longer. There is so little information on this, but this video with all the links and stuff is supper useful. I am only 20 years old so I'm in this for the long haul.

So, do you have to buy your meat from a special place because it may have cross-contamination?

look into astragalus root to calm your immune system down get it from pure mountian botanicals

My GI was worthless; I can eat eggs, nothing carbonated or caffiene, no catchup, mustard, spices other that salt. I can't have anything with Lactose, so I drink lactose free milk and ice cream. No cheeses, white bread is ify. If you look at ingredients when shopping, almost everything has milk in it or some spice. I can eat Liver sausage, Sliced turkey , a banana, Saltine crackers. My list of what I can eat is much shorter than what I can't eat. Oh, I can have fried chicken w/o breadingI collapsed from Anemia; My blood tested low on iron and I've been taking 65 mg Fe every night. I have a complete blood test every 3 months to maintain my iron. I've always been below normal on platelets, but never below 130. I can eat french fries, and potatos, mashed. Oh, when you take Iron 65mg per day you don't get diarhea, you are constipated.

Awaiting endoscopy and colonoscopy. Have just the general diagnosis of colitis right now. So sorry to hear all that you and others are going through. Thank you for making videos. Might I suggest getting a bidet for the bathroom? Game changer on the feeling cleaner aspect.

I'm finding out which version in 2 weeks. I can eggs but under no circumstance can I eat pork. God, I miss bacon.....

I too have lymphocitic Colitus. I just got diagnosed about 6 months ago. And am still on Budesinide.😢

thank you and hope your healing better. i like the beef heart for my heart issues. lots of taurine and coq10

I just have been diagnosed with lymphocystis colitis just happen I had a colonoscopy already planned and the doctor put me on a FODMAP diet with budesonide 3 3mg in morning with my follow up in 6 weeks. I hope you get better soon. My doctors were great.

Ulcerative colitis which I know you didn’t say you have that buuut it causes respiratory and health palpitations.

I would like to know does this cause hair loss? The reason I ask is I’ve been losing my hair.

Very informative, and I’m so sorry you and your family are going through this, we’ll definitely be praying for you all.

i dont hear anything

I hope you’re getting better. I have lymphocytic colitis too (2017)

i hope that you will have a blood draw at your family physician or internist’s office to test for dna evidence of celiac disease. it’s easy and it’s needed to rule out celiac entirely. and, as another commenter stated, you need to eat a certain amount of gluten for a certain amount of time beforehand apparently for it to show on colonoscopy. other than the possibility of celiac, doctors are a scourge…especially for women. keep researching yourself so that you’ll know what tests to ask for. i wish you much luck!

Thank you so much for this information.

I’ve had this for over 20 years. Told due to years of taking Aleve for period pain and hangovers. Was just taken off Budesinide because it’s not for long term use, can affect your immune system. Going to try Cholestrum, but it says that it can erode your teeth, but what the hell? Bad teeth or living like this. Now I’ve had 2 er visits for fecal impaction which was insanely painful, so colonoscopy and endoscopy coming up in 2 weeks. I have 10 or more episodes a day.. I’ve just learned to live with it and accept it. Have a boat and am Leary to go on it. Anyway, glad to find this forum for support..

I had microscopic colitis which was caused by an SSRI called Zoloft. It is a terrible condition. It went away when I stopped taking Zoloft and went onto a different medication.

Waiting for biopsy results now.....glad to know there is support and the more we talk, the more people will know!!

I can tell you from personal experience it is just not one issue at play. My experience started with: Asthma, Celiac Sprue, Hypothyroidism, Fibromyalgia, Bouts with diarrhea, polyps removed from colon; more diarrhea; Migraines (take meds for that) then … vomiting; more diarrhea. Ended up have it for over 10 years. Now I have Lymphocytic Colitis; Chronic Kidney Disease (from all of the Diarrhea, it has damaged my kidneys), had my throat widened from gastric reflux (added Nexium); Microscopic Colitis; and Bile Acid Malabsorption. Mayo Clinic is one of the few places who can actually test for this specific issue. So I take Nexium; Migraine Meds; Depression Meds; Budesonide, Colestipol, and Loperamide (all for Microscopic Colitis, Colitis). No two people are the same so the same meds do not work for everybody. Two huge ways to help this issue: FODMAP diet (cutting out acids, chocolate, sauces; and RELAXATION techniques. Stress will never help you. It aggravates the condition. You are on the right track. Bananas; rice; applesauce; (easily digestible foods). My issue is so bad I cannot eat raw vegetables or fruit. It’s too much for my stomach to digest. Lean meats (cut out heavy sauces) vegetables; gluten Free foods; low sugar, etc. Oh, I also have Pelvic Floor Dysfunction. So considering all of the above, there is no quick answer. It’s the proper meds, diet, exercise, and relaxation. It’s important to take your meds at the same time everyday. Take thyroid pill first. Wait and hour or two, then take your other meds. Mayo Clinic in MI has the best Gastro Docs.

You need to heal your microbiome. Find a good Functional Medicine Dr. Who will help you get to the root causes of your symptoms. And heal your body. Avoid the Western Medicine GI Dr.s. They can’t help you and only want to give you drugs to cover up the symptoms.

YOU ARE ONE BRAVE YOUNG LADY. I AM A 73 YR. OLD WOMAN THAT STARTED WITH THE SEVERE PAIN, THROWING UP, AND THE DR. TELLING ME IT IS IBS...IT STARTED RIGHT AFTER MY FIRST COVID VACCINE IN 2020...I HAD A COLONOSCOPY AT ABOUT THAT TIME AND THAT IS WHEN MY GASTRO DR. DIDN'T TELL ME THAT THE DIAGNOSIS WAS UNTIL I HAD BEEN TO SEVERAL DR.S, CLINIC'S AT MY PRIMARY SAID IBS. THIS LAST TIME I WENT TO THE GASTRO, I SAID "WHAT DO I HAVE AND WOULD YOU WRITE IT DOWN PLEASE" THAT IS WHEN I LEARNED ABOUT LYMPHOCYTIC COLITIS, ON APRIL 14. SINCE THEN I HAVE HAD 2 VERY BAD SPELLS OF PAIN AND THROWING UP WHITE TURNING TO BROWN FOR 4 HRS. LAST SUNDAY. EVERY SIP OF WATER WOULD MAKE ME THROW UP. I AM NOW ABLE TO DRINK WATER AND EAT SOME WATERMELON THAT I SUCK THE JUICE OUT. THIS IS ALL NEW, AND I AM TRYING TO FIND A HOME OF INFORMATION. THE DR.S DON'T GIVE YOU ANYTHING BUT A PILL I WAS TO TAKE TO CALM THE SPASMS AND MADE ME THROW UP. IT IS ALL NEW. THANK YOU FOR SHARING YOUR JOURNEY. DO YOU KNOW OF ANY GOOD SUPPORT GROUPS OR BOOKS??

Love this ❤ Hoping you’re well and healthy 🙏❤️

Thanks, Shea, for taking the time to make this video and share your story. After dealing with chronic, moderate to severe lymphocytic colitis for more than 10 years, I'm finally looking for support to help cope with the issue. Family and friends try to be supportive, but don't seem to be able to understand the profound effect it has on your life. There's definitely some attitude that it might be at least partly an emotional rather than physical cause. Always easier to attribute that as the cause when another answer doesn't seem obvious or easy to understand. I've been treated by various gastroenterologists; lucky that during my initial colonoscopy for severe diarrhea, the doctor took biopsies and diagnosed the condition. However, as you point out, the doctors quickly prescribe a medication (in my case, budesonide - mesalamine wasn't very helpful) and then basically say "good luck with figuring out diet, lifestyle" and wait for remission. Remission periods have been very rare and brief during my journey. It's apparent that the patient is pretty much left to deal with it themselves. After so much time, wish I had more definitive insights and recommendations. Basically, I avoid dairy (oat milk is my good friend), high-fat and fried foods, sugary foods, gluten. Can't eliminate caffeine but I do limit the amount I drink. Cooked vegetables such as mashed butternut squash, sweet potato, other root types are usually okay. I do eat lean chicken. Will check out the book you show on your video. Good luck on your journey, it's great that you have your music and that puppy to make life happier:)

I have celiac disease diagnosed at 33 waiting on biopsies for lymphatic colitis after recent colonoscopy; this is what I had when originally diagnosed with celiac disease I am now 46. Thank you for your video.

Thank you I am just starting this journey and find your episodes to be very helpful. Each person is different and the doctors don't have the answers!

Hope you are doing okay. Just discovered this series. I don’t have lymphocitic colitis, but I have dozens of food intolerances picked up late in life. What helps me: Taking vitamin B12 sublingually and after 20 minutes swallowing it. Pressure cooking food seems to make food break down into more basic units. Food processing food until finely chopped or creamed also helps the digestion. Chewing food fifty times before swallowing. Toasting my bread into super thin slices and air frying until crisp (yeast intolerance). Eating a very wide variety of food in each meal (I do well on with buffets during my vacations) seems to help get around my system reacting strongly to intolerances; at home I mix a very wide variety of whole grains, presoak in warm water overnight, then pressure cook into a porridge. I do very well on cruciferous veggies because I think they suppress yeasts that I am intolerant of. I eat the foods I am most intolerant of at the very end of the meal and take one-third of an antihistamine pill at the start of each meal. Hope one of these suggestions might be helpful, if you have not previously tried it already.

I’ve had IBD since the late 1980’s. I was diagnosed with lymphocytic colitis on my 3rd colonoscopy/biopsy. My next colonoscopy (different doctor) I was told that there no such disease. Note to self: next time you get bad vibes from a Dr. RUN AWAY! Anyway, prescription sulfasalazine did not help. fasting, carnivore and keto have all helped. Bone broth is fantastic. An over-the-counter product called IB SootheR from Life Seasons helps. It contains triphala, caraway, slippery elm, marshmallow, and bifidobacteria. I had IgG food sensitivity testing which identified certain triggers to avoid. Good luck! I’m 70 years old and have been pretty good as long as I avoid triggering foods.

I was diagnosed with MLC 11 years ago, but on Budesenonide, but never really went into remission, but was able to get down to taking 1 capsule per day to sort of control of it. New GI doc in 2019 wanted to see me get off the long term use of Budensonide, so we tried a new med Cholestyramine packets, I take one every day with applesauce or liquid and it has worked wonders and also it is not expensive. I now can go out without worry of any accidents, and my stools are normal looking, you can also take up to 4 packets a day if necessary, and this is not a steroid. Good Luck to you in your journey to get better.

Oh Shea I’m so sorry. I’ve lived with this for over 10 years and I know what you’re talking about. I have CC and found Wayne Persky soon after my diagnosis. It saved me. I was so overwhelmed and I have no husband, or young children…I know what you mean about the low energy and brain fog. They are real and the pain is as well, it can be very painful. I used to have to keep a waste can I could use to vomit in whilst I used the toilet…it’s awful. First look for ‘the potty people’ online…they are a group of wonderful people who will help you learn to live with this and together we will get more attention for this disease. It isn’t rare and it isn’t painless…I spent so many years not leaving the house due to the stress of this illness. I think you’re brave and doing a service with these videos. Thank you…for your courage and best of luck.

Thank you for sharing! I was diagnosed with LC a little over a year ago.

I have this. Had problems for about 15 years before finally getting diagnosed. Was dismissed by many doctors for years. They just didn't get it. I'm much better now, but not at 100 percent, after being put on med about 3 years ago. I had lost 27 pounds by the time I was finally diagnosed

In January 1990, following 10 days in Saudi Arabia and Bahrain, I developed almost uncontrollable diarrhea with 6-8 trips daily. After a few weeks will no relief, regardless of reduction of alcohol and restricted diet, I visited a gastroenterologist. We spent several weeks trying to rule out possible parasites and mid-East viruses, all to no avail. In mid-February I had a colonoscopy during which my doctor took several bioscopies. Immediate report was that the colon was clear, but several days later the report on the bioscopies identified collagenous colitis. While my doctor knew of this diagnosis, I was his first patient diagnosed with this condition. There was little information or research on the condition at that time. But he prescribed Dipentum, a Rx medication then being used for ulcerative colitis-an aspirin-type medication that travels to the gut before being absorbed. After about 6 weeks on this medication, my diarrhea cleared up and I was able to end medication and return to norma-life food and drink. I have had a colonoscopy at least every 5 years thereafter., each of which diagnosed collagenous colitis but without any obvious change in the condition of that layer of the bowel. Since 1990 I have had three flare ups-without being able to identify a reason for the flare ups. In 2013, in the middle of a wonderful restaurant meal, it hit me again. Thinking it might be just run-of-the mill diarrhea, I waited a week before consulting my gastroenterologist. At that time he prescribed Xifaxan, a medication then being prescribed primarily for IBS. After about 4 weeks on that medication, the flare up passed. I was hit with another flare up in the fall of 2019, while enjoying of meal at a friends home-had to excuse myself in the middle of the meal. Contacted my Doc the next day and he again prescribed Xifaxan-this flare up ended in about 3-4 weeks on that drug. My most recent flare up began in August of this year-again with no warning or other symptoms. My doc again prescribed Xifaxan. However, this time the symptoms had not subsides after almost 2 months on this drug that had worked before. Also during this time, my gastroerterologist of more than 30 years retired, but he referred me to his own gastroenterologist for follow-up. I saw the new gastro Doc the first week of November of this year, and he prescribed 900mg a day of Budesinide-a newer drug designed to treat my specific condition of collagenous colitis. I have been on Budesonide for 12 days , and have seen marked improvement in that short period. And I believe this drug has had a much more direct and fast acting result than any others. I will see my doctor at the end of next week for follow-up. Unlike you, and others on CZcams, having variations of microscopic colitis, I have never had any belly pain, other that the momentary indication before having to visit the commode. I also have been unable to identify any specific foods that might have triggered these four periods of flare up. When not in a flare up, I have no limits on food or drink. This lengthy comment is to let you know there are others with this condition but that there are variations of it. I also don’t suffer from many of the additional symptoms you are enduring. But I do understand the nature of your condition and believe your CZcams series will be a great resource for others. Please fell free to respond with thoughts or questions. Patrick

Hi Shea!This is beautiful!!

Gluten, most dried fruit, FODmaps. more than half of UTI's can be flushed out forcing fluids. (I take chanca piedra for a few day when it feels like something may be starting) Look into interstitial cystitis (it' autoimmune, more prone because of other autoimmune)

i got diagnosed today with this specifically so thank you for this!!

I’ve had IBS since the 60s, and just was diagnosed with lymphocytic colitis. I think the technology has to catch up with us because I also had a killer brain tumor that they found just the year that the machine was invented they could find it (1988). I am thrilled with all the high technology, but sometimes it is literally a pain in the butt! Blessings, DrRed ❤️💋

Coffee has always been one of my most favorite things in life. I also have Lymphocytic Colitis and bouts of severe diarrhea. One day I was listening to a lady's video about coffee and said, as soon as I quit regular coffee and went to decaf the flairs decreased in half. I was in the middle of a bad flair, so I went to the store for some decaf and the diarrhea and stomach pain stopped almost immediately. I was shocked to find this out after all this time, plus that I actually like the decaf. Hope this helps someone else.