What's the Prognosis for Long Covid? | Live Q&A with Dr Tamsin Lewis and Dr Andrew Greenland
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- čas přidán 4. 07. 2024
- In such a fast moving landscape, in terms of our knowledge around treatment, management and physiology of Long Covid, it helps to share as much of the latest medical thinking as possible. So I'm very happy to share this Q&A with Dr Tamsin Lewis - (MD & Long Hauler) and Dr Andrew Greenland (NHS A&E Consultant and Functional Medicine specialist) discussing a wide range of patients’ questions on Long Covid, and the role that supplements can play in aiding recovery and managing symptoms.
And - a huge apology to Dr Svetlana Blitshteyn for temporarily misplacing her surname during the discussion, I blame the Long Covid brain fog!
Contents:
0:00 Respiratory issues & Steroid Pumps
8:17 Ivermectin
13:00 Lingering heart issues prognosis
20:06 Is LC auto-immune?
27:39 Muscle aches and pains
31:12 Vaccination and Long Covid
37:50 Prognosis from LC dysautonomia
44:15 When will Long Covid symptoms resolve?
46:15 Gez's thoughts on prognosis
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For more information on Wellgevity:
www.wellgevity.com/covid
Wellgevity launched a long covid arena to support people suffering from Long Covid to help signpost to diagnostics, treatments, protocols and expertise that many struggle to find. - Věda a technologie
Know how all of y’all feel! I’m 19 years old and I was living an active young life before my body started acting weird and I was confused. Heart palpitations and brain fog made me feel like a zombie. I’m only 7 months in and I have been doing much better. My life is different, no doubt, but I have accepted that and made the most of it. Breath work, meditation, and ice baths have eased my symptoms to the point where I can exercise fully and think clearly. Still a battle every day, but I’ve learned to enjoy the challenge and better myself everyday at the same time. Mental health is crucial in the long covid game. If you are stressed and frustrated all the time(I GET IT) then your body won’t have energy to recover and relax. Feeling more connected to my mind and body than ever!! Long covid may suck a lot but it can also be a learning experience in how we treat our bodies and our mind. WHEN I fully recover, I will carry these practices of mindfulness, breath work, and cold therapy with me for the rest of my life. You guys stay strong out there and remember that life is a gift:)
Absolutely agree! I would be keen to hear more about your ice therapy! What is the mechanism behind ? Thank you for sharing a bit more!
Very wise words from one so young!
@@tanjamannhart4665 look up the Wim Hof Method! It’s all about getting into the autonomic nervous. The cold increases blood flow and lowering hear rate.
im 18 years old and still struggling after 7 months. Still cant exercise or function in social life. School is a nightmare which makes me feel depressed seeing those active healthy teenagers. Im so depressed and feel like it will never stop.
@@jtfroese8270 thank you for this! Took my first cold shower today but need to look deeper into it!
Hey Gez - been a long time. I’m not going to jinx it by saying I’m “recovered,” but I will say I’m now living a very full life! I know stories of improvement provide people with hope, so I wanted to comment here with an update on my progress. All the best to everyone out there wherever you are in your journey. Won’t be spending time here from now on to give myself a break from medical material but thanks so much for what you’ve been doing for people over the last 18 months. Keep fighting everyone!
Great to hear you’re doing well Bobby!
I've learned to manage it through trial and error, but unfortunately, I've not been good about documentation. Yes, I totally get "I’m not going to jinx it by saying I’m “recovered,”".
Legend Bobby good on ya!
I like it better when Gez does all the talking. I like the way he complies information and presents in an organized and concise way. - One of my long hauler symptoms is lack of patience, lol.
Unfortunately those films where I do all the talking take more work to produce, finding the time and energy is a challenge sometimes!
@@RUNDMC1 Hey I understand. You've been very helpful and I really appreciate your efforts... Just love your presentation style.
@@RUNDMC1 I hope you know just how AMAZING a presenter/communicator (humanist) you are. I hope your healing goes well, and we thank you so deeply for all the energy you have invested in this/helping us all this time. Amazing, and in these difficult times . . .
Getz is the master in that department.
That is a very wise strategy Gez, and no one would want to jeopardise your recovery.
Perhaps you could give your speakers guidelines as to how to present information in more layman’s terms.
Suggest that they present the information more slowly so that people without medical degrees can hear the words accurately so they can google any jargon and also so they can absorb the information before the next pearl of wisdom is presented.
Some speakers appear to be addressing fellow doctors rather than the general public.
For the professional, this may be simple but if the purpose of your podcasts is to help the general public, It needs to be at a level that the educated person can understand.
I am an occupational therapist and have quite a lot of knowledge but even so I have to repeat sections to take in what is being said.
I suspect for people not in the medical field some of it must go over their head, Which is a shame because it can be explained more simply.
By the way, I have recommended your episode on returning to work to the employer of one of my patients and she is going to send it out to the company nationwide as she found it so helpful.
My patient successfully used the guidelines to return to work this Monday.
Ivermectin, flush Niacin, NAC, Krill oil, Vit D(sunlight or supplements on cloudy days) and zinc/vitamin C lozenges. I have always been extremely low carb eating Mediterranean style diet for the last 5+ years. That has been my recovery and my long haul symptoms were really bad for nearly 2 months before I needed to take action. I also incorporated Yoga and red light/NIR. I had to stop lifting weights and doing anything that involved endurance training because my body would not recover but now I am 100% back to normal and thankful for dr's that are trying to discover the truth.
how long did your long covid last and what were your symptoms? very glad you're recovered!!!
I am also wondering how long it's taken you to recover... Glad to know people are recovering 100%
Thanks Gez, Dr Tam and Andrew for taking the time to share your thoughts and experiences. I am part of the phase 2 long haul wave (Dec 2020) and honestly feel the insights you have shared over this past year have helped accelerate my recovery journey. There is still a long way to go but looking back from where we started there is definitely some improvement! And I am more hopeful after this vid. :)
Thanks Andy!
Thank you very much Dr Tamsin for your honest view/ opinion on the matter.
Thank you all so much! Wonderful to see doctors so willing to keep up with research and distill to practical advice and treatments to try. For the question on burning feet, I was recently diagnosed with erythromelalgia which is tied to orthostatic intolerance, dysautonomia and vascular issues. Heat and exercise makes the burning in the hands and feet so much worse. Perhaps worth asking a doctor for an evaluation. I would note that of course my doctors totally dismiss any tie to dysautonomia because like Gez my heart rate doesn’t increase to POTS levels any more 19 month into this, but also jacks up to 120+ just weeding or walking about the garden until I can lie down. A heartfelt thank you to Gez, Andrew and Tamsin for sharing their expertise and research with us. You give us hope…
Thank you Mae!
Your videos are always very informative and uplifting. Thank you! Wanted to add that quite a few people on Reddit and Facebook groups seem to be recovering between 12 and 18 months. Not all obviously but a considerable amount.
Thanks Alex! I’ve got a study on this which I’ll be publishing soon
Thanks! This is so good to read! Recovery stories help to keep going !
@@tanjamannhart4665 definitely! I myself am at 10 months and about 90% recovered.
Hearing this is so so uplifting and encouraging.
Glad to hear sonepeople feel they have recovery. I'm coming up on month 20. Some Definite improvement.... but not close to being normal yet.
Well done Gez....We appreciate you!!! My booster is Sat. Learned alot from this conversation! Thank you Gez!!! From North Carolina!💜 Keep going everyone!
Thanks Kelly! Hope the booster goes well!
A very interesting and informative presentation with lots of things to think about. Although initial symptoms were mild 19 months ago my lungs are slowly getting worse over time. I’ve now been taking corticosteroids since may (I would love to be on a 5mg dose, have been between 30-4.5mg) but always crash on lower doses. Am currently on 8.5mg and slowly tapering. Recent blood test showed very low cortisol levels so off to see an endocrinologist soon. Symptoms do improve over time in my experience but I’m still not at a point where I could work reliably day to day. It sound macabre but good to know I’m not the only one In this boat still 19 months in. Thank you for spending time and your valuable and limited energy on this subject still!
Thanks Martin!
19 months deep here. Thanks for this video
I recently found your channel and have been watching almost all the videos. I have had ME for 9 years. It was moderate. I could work 16 hours a week. I caught covid in March this year and it’s made me more unwell than I ever was with ME. My ME was triggered by a virus. I live in Scotland so there is literally no help at all here. Since catching covid I have been off work. My Gp has done a couple of blood tests but despite having heart palpitations and chest discomfort havent as much as taken my pulse. All they do is write me fit notes. I have been referred to an infectious diseases doctor. Not very sure what they will be able to do & the last time that happened they basically referred me back to my Gp. Your videos have helped me understand I am not on my own but also realised how much I am totally palmed off by my own Gp. Thank you for all that you do. I hope you are continuing to see improvements. Take Care. Claire x
I’m so sorry to hear this Claire - you might find my recent videos with Dr Boon Lim helpful as your palpitations are likely a function of dysautonomia. Wishing you the best in your recovery!
@@RUNDMC1 thank you. I will definitely watch it. I am watching oldest to newest. I am learning so much. Even after all these years. Take care.
Thank you
Great work here.
Extremely helpful, thank you 💛
Fantastic video thanks so much
You are all great. I have Long Covid; caught the virus in March 2020. I agree about the mental/emotional element. I noticed that I would feel worse when I had any kind of emotional interchange of a negative nature. Unfinished emotional issues. I had abuse growing up. I have processed it most of my adult life, but continue to see this as a gift to learn to love myself much more. I like the route Mother Nature offers. My inner voice tells me the direction is to reach balance by attaining better OVERALL health. I know it's the right way to go. I got worse after the second jab, as well. It is quite powerful, I think my immune system was pretty upset about it. LOL!! I am much better now.
Thanks for a most interesting and informative discussion, Gez, Tamsin and David. I got reassured at many levels- I would like to know a bit more about your experience in brain fog and loss of concentration. I also have developed a very low tolerance for things like aggressive people, violence etc that before would have not, make me upset now. Would you think this is any common? Thanks very much. I had my infection in March 2020, and I am much better now, but still struggling sometimes with brain fog. Thanks for any comments in advance! And best wishes to all here
Hi Olivia - yes, conflict and stress levels are hard to manage. Your body is already stuck in a high alert (sympathetic NS) response so it just gets overloaded.
Excellent talk, thanks again Gez. I thought I was pretty updated on the whole thing but you guys gave me various new insights. It seems like the most important part is to modulate the nervous system (and gut health which is accounts for 75-80% of immune system regulation), which takes time and is multifaceted (unfortunately there's no magic pill). And deal with LC and other PTSD to decrease our perceived sense of (unconscious) danger all the time and make sure we're mostly in a rest&digest state. I've already come to terms with the fact that I may have some leftover symptoms for the rest of my life, but I have also improved greatly and will do what it takes to get better. Time and patience!
What were your symptoms Elfi? Did you have fatigue ?
@@EdHunteR87 Yes, I had (and still have a bit of) fatigue and many other symptoms most likely due to inflammation (gut, lungs, heart, circulation etc).
Time and patience indeed. Thanks Elfi!
Have enjoyed and appreciated all the work these folks have done in helping us understand what’s going on with our bodies.
Have to say although I appreciate the straightforwardness I feel less hopeful after this vid 😞
Not the intention to bum anyone out!
@@RUNDMC1 I know it wasn’t. You’ve all done such great work, as I said. Selfishly was just hoping to hear more about clean recoveries post 12months.
@@sublimestudi000 people all over the world are drinking the miracle mineral solution it ends post viral conditions in hours ,stop listening to these fools they all have long covid and are vaccine injured too ,mms saved my brothers life 14months of long covid ended in less than 12 hours
@@Beekind799 lol wth are you talking about
@@13conker13 long covid can kill you ,i heal long covid on a daily basis ,thats what i am talking about,all gone in less than 12 hours
regarding antihistamines, they oddly stuff so many fillers and stuff into the pills that are well known to cause issues for some people. You'd think that anti-histamine pills would be hypoallergenic!
They can be compounded at compounding pharmacy. Organic brown rice flour only filler. I take Ketotifen.
Any idea if prescription Hydroxyzine has that crap in it? I’ll look it up, but figured I’d ask. Thanks!
@@CMK_Patriot Sorry, I don't know
Thank you all 💗
Thanks Jane!
Awesome video again Gez loved that you guys address the Heart issues in the absence of anything other than clear test results.
Where are you? In Germany having HELP? If so where I’d like to get in on that
Thank you so so much. Your videos are so helpful. Please keep on looking for answers, you are closer than any doctor I have met. And I have seen over 20 different doctors in god knows how many visits since this shit started.
Won’t be letting up at this end Christian!
@@RUNDMC1 Thank You Gez, please stay on it for all of us.
Your video caught my eye because although I now feel more or less 100% well, at 20 months post infection, I lost all my hair (head and body) within a few weeks. My dermatologist said that alopecia is an autoimmune condition.
So sorry to hear this :(
Dr. Tam thats exactly what happened to me. I started working out HIT training 1 x and bam! I was miserable and had almost all my symptoms come back full force for 8 weeks. Im now just starting to get a bit better, but I will never do that again. My first symptoms that come back full force are heart racing chest pain, nausea and indigestion, gastritis is very painful, dizzy, and just unwell feeling. Its amazing how just so much of exertion of the body can restart those symptoms.
Thanks for sharing your experience. It sounds very similar to mine… about four weeks after a fairly mild covid infection that began in early December 2021. I decided to reignite my training and run a moderately paced 5k followed by a higher intensity weighs session. The next day I was absolutely slammed with overwhelming fatigue, brain fog, palpitations, chest pain and more. It’s been about 8 weeks now and many symptoms have eased but I am far from normal. How are you getting on?
@@GeoCK1 hi how are you? I'm doing much better, no fatigue. But I am still just doing the minimum of exercise. I dont dare go full force. I am on a blood pressure med to help with the racing heart. I think it help a little, but I still get a bit of a racing heart in the am when I get up out if bed and then it goes away . Also at night it may go up a bit when I am sleeping. Its very strange but the body is in a fight or flight mode when that happens, it just turns on and you have no control over it. I do alot of breathing exercises and also calming the vagus nerve is crucial. Alot of counciling to cope with these outburst. Most of my other symptoms are gone , or under control. I take H2 blockers to keep the inflammation down. 1 is 40mg of famodine daily and a allergy pill here and there I cant take them all the time they dry me out too much. But I would say over all much better and on the road to full recovery. Just like you I am scared to work out full force, so I do just a bit here and there and listen to my body! I wish you the best of luck! Blessing to you! Take care of yourself!🌞♥️🙏
@@user-fd1qb7ml2j Glad to hear that you’re doing better! It’s always encouraging and inspiring to hear positive stories 🙂 I’m still struggling daily with fatigue and disautonomia 🙁 But staying positive and taking control of things that I can like diet, supplements, pacing and avoiding stress. Thanks for the tips and strategies you used to aid your recovery! Wishing you the best!!
I've had 3 covid infections, along with bad relapse in April due to infection with surgery. The second and third infections of covid I took very high doses of Vit D3 (40,000), Zinc Acetate (260), Ascorbate Vit C (3,000) for 7 days of fever, then reduced to about half remainder of worst level of infection. Did notice less upper respiratory/asthma effects, except for that odd initial feeling of a vise clamping down on lungs/rib cage first week of each new actual infection, but not relapses. (many relapses) Yet I continue to take about 10,000 Vit D3 (and K2 for best absorption) twice a week and I see it can help almost as much as my inhaler for asthma that is worse now. Long Covid since May, 2020, is beyond difficult, life altering and I will look into your recommendations. Other supplements I take when I can afford them Vit B1 and 3, NAC and "spray" form of Glutathione. (pill form is not absorbed well). CoQ10 for heart inflammation and palpatations. The dizziness and weakness are the worst part for me. I have much concern this is turning into long term or permanent dysautonomia/POTS. I recognized this last year after first infection as I have a friend with it unrelated to covid. Last, know that my Infectious Disease team who treated the hematoma and infection during surgery for removal of TVT Mesh 3 months ago said many of their patients with new serious infections are having terrible long covid relapses. Wondering if you have heard this opinion.
Hi Mary - yes, long haulers who then get new infections (of any kind) are prone to serious relapse.
Interesting to hear Dr Tamsin's advice on using the lungs to avoid them getting lazy. As an overbreather with costochondritis I feel my hestitation. Now I'm learning better diaphragm breathing but feel my intercostals at side and rear I'm underusing due to soreness ,it could be a cycle. Thanks
I tend to have costochrondritis when triggered from worsening asthma, chemicals and of course covid. You mention you are an overbreather. Could you describe that and do you ever have odd breathing patterns from long covid? Feels like I need speech therapy. Thanks.
@@marystout1606 hi since COVID and bereavement my breathing has changed it was upper chest hyperventilating. I'm trying to slow it down using an app called Breathe and had physio who helped me breathe more with diaphragm/ relax. Look at Liz Bills channel for breathing, voice exercises, using straws etc. Speech therapy I'm waiting for now. There's exercises you can find online e.g pausing between sentences to breathe again from diaphragm, good luck
I agree with Dr. ANDREW. I am on Metopropol for my racing heart and I hate the side affects they are terrible.
My goodness, this is absolutely packed with so much information, it's really hard to keep up. So wonderful you three have access to all these different options to try out and see what helps. Tamsin, throwing everything at it is the way to go, if only everyone with LC had this option. Tamsin mentioned at the end sending out an email with links and I was wondering how to get on the mailing list. I couldn't keep up with everything, even though I have listened three times!
Great video Gez. You can tell Dr Tamzin is currently in Spain she is glowing with health. Us poor brits look like something from the Walking Dead during the winter months
I am so super happy I tested herpes negative after many years of searching for cure #Doctorojie
I’m with you there Andy!
After being a long-hauler for 14 months I completely recovered 3 months ago thanks to Dr. Bruce Patterson's clinic.
Interesting, your the first I heard of this claim. What drugs seemed to work?
What are the symptoms of hypothalamic dysfunction?
Fatigue.
Weakness.
Lack of interest in activities (anhedonia)
Headache.
Loss of vision.
Unusually high or low blood pressure.
Frequent thirst.
Body temperature fluctuations
Am finally getting over long COVID after getting it in December 2021. My Doctor here in the US was of no help, so I turned to You Tube and owe a big Thank You to Run-Dmc and all the interviews he conducted. Am still taking massive supplements recommended by him and others, lost 30 lbs. which I did not have to lose. My wife says if I turn sideways and stick out my tongue, I look like a zipper! I developed CFS in 2008, and COVID triggered it back. Have not been able to resume working out, but walk at work 3-5 miles a day at work. I eat healthy, but went off histamine foods which has helped immensely, have introduced some back in my diet. Stay away from the jab! Too much bad results!
Please get the jab! The bad results are with Covid, not the vaccine! I have long Covid. 3 jabs, no problem, and no second infection.
What was the turning point for you? What helped the most?
How long were you on low histamine foods before reintroduction? I am vaccine injured and on h1+h2 blockers.
GOD BLESS YOU!! PLEASE SHARE WHAT YOU DONE TO GET YOUR LIFE BACK IM SUFFERING EXTREMELY BAD PLEASE HELP
Another good one Gez, tackling some tricky questions that don’t necessarily have rosy answers!
You mentioned your latest survey results, when do you think you will be ready/have the energy to publish that? No pressure, just curious! Still on the fence about getting my first vaccine dose.
Hi Jack - that film will most likely be up next week!
Please get the vaccine! I have long Covid. 3 jabs, no problems. And more importantly, no Covid reinfection.
@@lynnmcbride9236 had my first one last week Lynn. So far so good.
@@jackmarriott7354 I’m so glad! Good luck!
@@jackmarriott7354 I had a significant relapse after my 2nd jab and I was so devastated. But I think I'm getting back to my pre-jab levels. So if you do experience a relapse, try not to panic and try to give yourself plenty of rest to ride it out. Mine lasted about 3 weeks. Good luck!
I decided 3 weeks ago to try ivm and use it as flccc tells. It did help a lot, but still not perfect at all. I hope the improvement will stay and continue in the right direction!
@Alexandra Couture watch Christy Reisinger MD her video Hope for Long haulers details how she treated about 60 of her Long Haulers with Iver with a considerable improvement in their condition but said some of them needed more than one course of treatment.
@@fjspicer1 I used flccc and took ivm for 4 courses. Nothing helped me..sadly. I continue on it as prophylaxis 2x a week tho.
@@christine41861 eat a bit of fatty food take a tablet bromelain/papain wait for 5 minutes then take 18mg ivm and 50mg zinc daily for 4 days in a row
@@Beekind799 Oh no no, the magic cure is to buy your scammer ass mineral solution...
Please do a talk with Dr Asad about his latest treatment I'm Germany! Saw him on the BBC earlier and was like it's the guy from Gez's videos!!
Hi Sami - yes I’ll be covering Apheresis on the channel in due course!
Concerned upon hearing one of your contributors had a return of L/C symptoms after 2nd jab. I too experienced this after recovering from effect of 1st jab where L/C symptoms appeared and were settling down had 2nd Jab in may 21 and returned with a vengeance, only now beginning to see some improvement. Very wary about having the 3 booster not sure what to do.
If your body says "no", then follow it's advice. I think the vaccines are definitely working, but our immunes systems do not take kindly more spike protein, even if it is synthetic.
Hello, I just can not understand the name of the drug for dizziness and the nervous system...? Thank you so much for your great work
Hi iam long hauler also with asthma lung infection it is now 6 months i have been to hospital Drs .
Just wondering what people’s thoughts on the Apollo neuro are? I spend a lot of time meditating/deep breathing/using the sensate to calm my nervous system down and made a lot of progress since doing this. So my thoughts are that a device that activates my parasympathetic nervous system for large portions of the day can only boost this even more? But it’s not cheap, and I do already have a sensate which is a similar device
May 2020 had covid pneumonia but my o2 sat was good so was not hospitalized. I had the 2nd Moderna shot and my breathing got so tight I thought I was dying. Chest and Ekg good a slight increase in white blood cell count. Does anyone think prednisone 5mg daily is bad. The shot made my long covid aweful. Any suggestions?? Prednisone seems to be the only thing that helps.. Does anyone know how long these symptoms last after the shot. Ty.
10 months in and struggle everyday, will it ever get better😔
Keep looking after yourself Matt, I know how you feel.
10 months here too. Basically apartment bound except for dr appointments. Gotta stay hopeful
@@darcydistefano363 same here
@@RUNDMC1 thanks Gez, the only thing that relieves the joint and muscle pain is the cryotherapy chamber I go in once a week which reduces the pain by about 50%, the fatigue is hard to manage and had to go back to work to get a wage, things seemed to improve slightly after the 2nd Jab after I had a week relapse which felt like I went back to the start of it all, I do mobility physio most days to try get my functionality back. Covid has destroyed my hormones and I had next to zero testosterone left which I now on TRT for but I had to find all that out privately as the NHS wasn’t interested and all you get from the doctor is you have long Covid hopefully it will go soon, frustrating isn’t the word for it. Thanks for all your videos they are very informative which help a lot try deal with this.
If Long Covid is due to Autoantibodies attacking ACE2, which is instrumental for Blood Pressure regulation, does that mean High Blood Pressure and cardiovascular issues like heart attacks and strokes await those with LC?
More likely due to clotting issues than ACE2 auto antibodies it looks like
Interesting about exercise… now I understand why surfing is much easier for me to recover from as opposed to weightlifting sessions, even when I feel like I am moderating intensity.
You’re doing well if you’re managing to surf!
@@RUNDMC1 I count myself very lucky!
Interested to know what others can tolerate in terms of exercise . I have relapsed for a few weeks after attempting to walk every other day for about an hour ..I felt great whilst walking but now two weeks on I'm still struggling with terrible muscle aches and heavy fatigue .
Hour long walks are pretty punchy Ella!
@@RUNDMC1 yes I think I've definitely over done the walking but my body wasn't telling me.it was too much, otherwise I'd have definitely stopped . I guess it's about learning to accept where are currently and not compare how we used to be prior to catching covid.
The art of pacing is so hard isn't it but I hope the quicker we learn , the greater chance we all have of fully recovering. I'm learning the hard way with this relapse that's gone on for weeks.
my brother had long covid for 18months it was literally killing him,he was bed ridden and couldnot breathe,i made hima drink of the miracle mineral solution in les than 12 hours he was recovered ,he could walk up and down stairs and take deep breaths ,i have put hundreds of long covid people onto it,i dot know anyone it didnot work for and its safe,if you want details message me,after drinking the mms you have to take a protocol what i designed to address the nutritional deficiencies that gave you a weak immune system ,if you have had these new vaccines i cant help you
I’m the exact same way… how are you feeling today? I am 13 weeks post Covid, and still fighting this debilitating fatigue.
I had covid un march 2020. I'm still Very sick.
My Main issued are acid reflux, dizzines and tiriness
A change of diet is a big help for acid reflux.. I took out coffee and tomatoe products as well as chocolate. Linda
@Dermot Fitzpatrick Hi Dermot, what is the evidence for your advice above? You write so clearly.
I am pretty sure that you are not a fan of Dmitry Kats. But I followed his latest protocol (mainly melatonin+ niacin) and it cured my last symptoms. I am a march 2020 long hauler - and I have tried a lot before that protocol…
Very glad to hear you’re doing better. I have spoken about both melatonin and niacin before on the channel!
@@RUNDMC1 I remember your talk with Ade Wenzel and NK Alex - but not anything about Niacin and Melatonien. Which one was it? Also they need to be combined. Niacin makes you flush - melatonien makes you tired. But if combine them you neither flush nor gets tired.
👍
I’ve not spoken about the two of them in combination, just mentioned both of their use individually.
Dmitrys problem is Dmitry. Are you still taking the niacin and melatonin?
I have everyday symptoms, my joints hurt ,shooting muscle pain, smell ,taste come and go, sleep issues. Severe flare days I stay in bed,2,3,4,days .Any body else have the same issues ?
Thank you all. Could I ask for how long should I be steroid-free before taking the ana test?
Another really good video and a great service to all of us!! It's always great to hear from longcovid suffering doctors. I think I would be a bit more positive on the long term prognosis though. The big difference between SARS1 and longcovid is the sheer volume of people affected, and that is driving both R&D spend and some creative thinking using currently available treatments (bc007 / apheresis). I doubt there was very much available to SARS1 long term sufferers. I completely agree on the multiple causes of longcovid, but we can already test for quite a few of the proposed causes eg. reactivated virus testing, microclots (recent study), spike protein (Dr P), auto antibodies (Berlincures) etc - admittedly none of this testing is readily available and there are gaps, but that hopefully will come in time. Specific treatments then dependent on test results. My only concern is that it will be a long time (if ever) before this testing and treatment is available to the general population via NHS. I hope the apheresis is going well for you? - I am not long back from 4 treatments in Kempten. Fingers crossed
Hey Ronan, yes agree with all of the above. The problem is accessibility of these tests and treatments for the vast majority of sufferers out there!
Hi Ronan - what was your experience of the apheresis treatment? Has it helped?
Gez, what do you think of Bruce Patterson's theory? I would be interested in hearing from more of his patients to understand the success rate. Thanks
I think the macrophage evidence seems reasonable/likely. Treatment protocol I’m not really able to comment on!
I can tell u from experience (been on it for 3 weeks atm, they said improvement can be seen between 2-4 weeks), that it is not helping me. Not only that, but I am unable to achieve proper communication with them, as they are very (more than I can say) rude, unprofessional and rarely respond despite all my attempts to reach them.
So far, I am not pleased. I have spent $700+, for no results. I don't regret it, as it was an option I was watching for months before deciding to try it out, based on what I considered good evidence for possible improvement.
But so far, it's all snake oil.
@@phantomtr1 hi I was wondering if you could say some of your symptoms I got the blood work panel done but I don’t want to pursue any further if my symptoms are similar to people that it’s not helping. Thanks
@@broz4490 I have more symptoms than I can physically read off a list, haha. I had strong HR and pots symptoms, but most of those have gotten much better. I have palpitations, shortness of breath, I can stand for 10 min max, walk for about 5. Dysautonomia related symptoms. Scalp issues, nausea, weakness, left side limb and chest pain, numbness, dizziness. My O2 looks normal.
@@phantomtr1 did they prescribe you maraviroc and a statin? Thank you!!!
Hey @RUN-DMC - how'd the apheresis work out for you in the end?
I’m not ‘in the end’ quite yet so I’ll be talking about it when I am!
There are a lot of supplements listed, I couldn’t follow it all but can someone help to provide list?
I ve only got Glutathione down not sure if correct
Also I found the auto immune link interesting because I have develop a series of hay fever, asthma, eczema and food intolerance - feels like my bony gone in panic mode
Thanks so much for that! I am much better with a daily minimal dose of prednisolone 3.75 mg plus supplements to support mitochondria. Also i get weekly infusions of antioxidants. Any good alternative (may be plant based) against inflammation? I eat also lots of ginger. And Alternative meds to sleep. Thanks!!
Great to hear it Tanja!
Gez how is your heart rate lately? Mine has slowed down a bit. I have been using the breathing exercises, and also learned how to reset my Vagus nerve. You can do it up to 2 to 3xs a day. It works. I have had the indigestion along with the heart rate racing at times. I hate the waking up at night with my heart racing. I take Metopropol 25mg 2x daily seems to help but I would luke to get off of that. I just had endoscopy and colonoscopy and it was clear I had gastritis of the stomach and my colon was normal. But I experienced an awful recovery after the procedures. I have had these tests before and never experienced pain as I did. They took biopsy from stomach and also did some more irrigating and suctioning in the colon to see better he said. But I truly believe that having long covid had made this worse than past times. I donth think we heal as well because of the virus. Its taken me 3 weeks to feel better since my tests, and I'm still trying to calm down my gastritis. Its getting better, but it really has opened my eyes to further surgeries or procedures that may upset my bodies healing process.
Are you still feeling fatigue? Mine had gotten way better.
Well I hope you are getting better as time goes by. Thank you for sharing about Dr. PATTERSON. I was going to do his protocol and also thought it was a bit too much. Im looking into doing ivermectin at low dose for the 5 days. But right now I am going to try the Quercetin for a few weeks, along with the high doses of vitamin C.
My tachycardia has calmed down recently - glad you’re managing better too!
@@RUNDMC1 oh im so glad your tachycardia is getting better. We have to keep going on no matter what. Yesterday was my down day. Guess I did too much the two days before. Today a bit better! Good luck to you Gez!!! Thank you for sharing all the good info for us long Haulers!♥️🙋♀️
@@RUNDMC1 Gez I meant to ask, have you had the tachycardia in the middle of night sleeping and it wakes you up? I have it when I'm sleeping and I wake up with burning pain and nausea in my stomach and chest and my heart is racing. Its very frustrating as I am under gastroenterology care and it's not working. I also see a cardiologist who has me on Metopropol, and I'm wondering if the Metopropol is causing my stomach issues. Please let me know if you, or you have heard of this symptom at night from others who have commented on your videos. I just need to contact someone who can help me with the long covid symptoms. I looked at Dr. Tam and the other doctors website. There is a Dr. Ardis here in the US I am trying to contact.
Gez.. I finally got up to 100mg niacin at once. No flush!! R u still at 250? Should I keep on going ?? Choo choo this poor little train .. still having trouble moving my caboose and omg the head pain. Now it’s gone on to these trigeminal nerve attacks right down my cheek and jaw. My teeth zapping insane wanna just die pain.. it’s gotta be inflammation in my head and neck.. blood vessels or something nobody can see in normal tests… so the niacin I wanna keep building up.. but still very slowly?? So hard for me to do anything at a snails pace. Well that was the old me. Trying to slooooo…my old habits of rushing about.. I haven’t had a good day tho in quite a bit. Sad.
You can try upping gradually to 500mg, many people including myself have noticed a marked improvement after taking more than 100mg daily. Titrate by 25/50mg at a time, week by week. Best wishes🖤
@@Miss-Hellcat666 oh! Ok. Thank you! I’ve been steady on 100 for 2 weeks now. Ok. Did you take it once a day or through out your day? So tomorrow I might take 125 at once..?
I'm going on 14months without much change. I still like Dr. Ade Wentzel theory that the primary energy system is broken and we are running on a secondary system which is terribly inefficient and produces toxins. When I try to do even light physical activity, the next day I feel like I have been poisoned and it takes another day or two to recover. The only problem is niacin and the suite does not help much. I still take the niacin because it does seem a help a touch. I wish there would be more research in this area.
Yes metabolic dysfunction is at the heart of our problems.
Can any of these doctors help us? Are they taking on LC patients, I heard Dr. Tam say she's prescribed ivermectin to some patients. Just wondering. Im taking in all the advice, but some of it my doctors don't know anything and won't even prescribe them for me. What can I do?
Is there any evidence coming through about what might help prevent long covid taking hold? Family members currently have an active covid infection and we have family history of ME and long covid. Are there any known dangers to taking a long covid supplement protocol as a preventative approach?
Hi Jenny - wouldn’t hurt to take some niacin and aspirin early doors - and then just spend as much time resting and recovering as possible
anyone knows how the second infection affects long covid? Im 7 months into it and feel like got covid again. Im really stressed
I am so super happy I tested herpes negative after many years of searching for cure #Doctorojie
Hello, I just can not understand the name of the drug for dizziness and the nervous system...? And also i stopt using H1 an H2 ... Should everyone use it for LC...I am over a year and half sick and with me it got worse and worse then almost good then the 2 vaccine just made me crash worse than ever before ... now just trying to get back up again i am folowing you guys sins the biginning cuz here in Belgium there is no help what so ever...Thank you so much for your great work
Might it be Ginkgo Biloba?
Are you referring to meclizine? It’s commonly used for vertigo/meniere’s disease. Do not use gingko biloba. It can cause bleeding behind the retina. And not a good choice during long covid because of the endothelial damage.
I just had to get the third jab to stop a long wuflu flare up… my muscles are almost back to my normal lifting capacity, but the lungs don’t seem to be improving anymore.
You didn't have shortness of breath with the jab. I got worse after 2nd jab
Hi Gez thanks for the video! Do you know if a recovered long hauler can catch long covid again?
Yes, unfortunately they can :(
@@RUNDMC1 Sounds like a good topic for an upcoming video.
How are these people exercising and functioning, drinking wine? Im 1 year in and can barely walk to the mail box.
I am suffering from GI symptoms after having covid 2 times. Can anyone help and chills aswell. Thankyou
Mr. Medinger how do I get in touch with you? I am looking for a good GP, cardiologist, gut doctor, or someone who is experienced in addressing long haul symptoms. I need a referral and I hope to hear from you soon.
I would either contact the doctors at Wellgevity or Dr Tina Peers - they will be able to help you and point you in the right direction.
19 months in and totally bed-bound.
So sorry to hear this Joan
I am quite optimistic that research on lc progresses quick and will allow some meds to at least ease symptoms until a cure is available. I had good results with accupuncture. It helped me getting energy back and to get over the days. I also found help by integrative medicine. They are still medically trained but have additional knowledge that is very helpful here including vegetative nervous system and mitochondrial therapy. Don’t give up!!
For vagus nerve stimulation a relatively cheap TENS machine with the earlobe attachment does the job.
Gut issues are quite quickly resolved with small doses of Lactobacillus reuteri Protectis. The gut flushes this every four days so it can be used sparingly. Also avoid eating anything beyond 6pm or even earlier to reduce those nights of gut discomfort.
I'm 17 months in and most of not all of my physical symptoms have improved quite a lot. The brain fog and effort-induced fatigue still persists, moreso with mental effort than physical. Conversation remains a big challenge as there is a high cognitive cost when 'chatting' to people. This makes me a bit reclusive, which sucks, but the rest seems to help so hopefully I'll be able to socialise again before too long.
The quality of rest is something I am still learning to really understand and focus on, but rest seems to mean quite literally doing nothing for large chunks of time....
Thanks guys for all the data in this lengthy episode. Hope you weren't too exhausted afterwards!
Oh and for sleep issues, melatonin, 5htp, ashwagandha and magnesium seem to help me
Thank you Jon! Totally agree on the cognitive cost of conversation by the way.
@@RUNDMC1 we need to create a long Covid silent retreat... 🧘♂️ Modelled on nine perfect strangers but not quite as insane.. 😂
Thank you everyone 😁👍
Thanks Richard!
Mr Gez, can you please link the vagus nerve ear device?
Search for vagal tens
@@RUNDMC1 thank you, I have already, but there's so many devices. They are pretty cheap, except for nurosym. How do u know what settings to use
(For some) once infected, it never ends…
I was Infected in March 2020 and since then I have had 2 Positive PCR tests and 2 positive antibody tests.
I am sure if I was tested on PCR every 90 days it will still show me as positive! Saying that I have strangely never tested positive once on lateral flow tests.
I had Both AZ injections during 2021,
along with over a dozen interactions with Paramedics and the hospital during 16 months worth of symptoms and health issues since last year.
Recently I had yet another Positive PCR test
(Oct 2021) and I am now convinced at this point that the Virus is just constantly mutating within me and will be with me indefinitely.
How about using intermittent fasting to restore our inmune system by getting rid of old macrophages and other cells that might be causing part of these symptoms? I’ve heard anecdotal stories of people recovering to almost 100% by doing IF.
For how long?
@@phantomtr1 depends on the person, some about 3 to 4 weeks, others several months.
It’s a bit of a cult - but if you can tolerate it you can try it!
@@lvaleiron how many hours a day and is water allowed? Thanks
@@solids1451 People typically do 16:8 IF (16 hours fasting, 8 eating, water, some teas and coffee is allowed), in addition 24hr, 48hr and 72hr water fast on the weekends is part of the protocol people have been using
I got no relief from a 15 day prednisone therapy. No head or neck pain or pressure relief. I just want to say, I can’t afford all these supplements or testings. So I think I’ll be bed bound for retirement now. My husband was due to retire and costs have skyrocketed so badly we barely fill his gas tank and car repair. I’m sometimes thinking I’ll stop all these supplements. I am swallowing like 30 a day. Maybe one of those is making me worse. Who knows. I’ll now rewatch this a 5th time lol. Comfort in all your voices.
So sorry to hear things are this rough for you Christine
So sorry to hear things are this rough for you Christine
Try this please.
. upon waking up in morning and before bed do heartfelt gratitude for at least five things.
. Then forgive as much as you can anybody.
. Type in CZcams *happy music* and listen to the music in bed after gratitude and forgiveness rituals.slowly move your body and dance to it, even if it means sitting in bed and shaking your arms and legs to the music.
. Start "a very low carb diet* and gradually over a period of 3 weeks transition into a keto diet.
. Along with the keto diet "introduce intermittent fasting* , first week fast between *7pm until 11am*. (16 hours) and the 2nd week 6pm until 11am (17 hours)........ try doing atleast 17 hours fasts everyday. "Research intermittent fasting and the keto diet *
I also take organic msm powder mixed with vitamin C Powder mixed in warm not hot water.
I'm sorry I'm not a good communicator but *I've decided to fight back and regain my health* .
God bless and stay positive joyful and grateful. We live is strange storage time's.
Indeed you are a man of your words #Doctorojie my herpes is totally gone
Adding something: I checked my recovery, resting and regular heart rate pre Covid with my Apple Watch. Going all the way back to 2017 - the numbers are clear: heart is working fine for me - that’s why I really think it’s a mental game…I was much worse 2018 in terms of the raw numbers…super weird
RUN_DMC / Gez Medinger .. Seeing as Ivermectin isn't available in the UK or through the NHS, I don't see why you're still talking about it. I haven't improved since being discharged from ICU, and haven't been given any follow up since, and I work in the NHS. I don't seem to remember any of your guests being seriously ill with COVID, but they all seem to have access to help with their "condition".
The audience for these films is international - and it is possible to get hold of ivm in the UK! I don’t necessarily advocate taking it though.
Has anyone tried amitriptyline for there symptoms ?
Yes it helps at the beginning for sleep and headaches but after a while it does nothing. I have the feeling it is Best to have it intermittently
@@marcofreyssonnet9673 did cause it tachycardia
@@kp968 t the beginning it had an exciting effect then it got better
@@marcofreyssonnet9673 did you have pots symptoms
GABA ( gamma amino butyric acid) , an amino acid and neurotransmitter that is highly anti - inflammatory and acts as an anti - anxioltic could well be helpful to LC sufferers. It has a good safety profile and well tolerated. I contacted Professor Prudhomme at Toronto University asking if it would possibly help in LC ( he was investigating it's anti-inflammatory activity in type 2 diabetis cell lines, and he said :"give it a go, although I'm using much higher concentrations in cell lines but seeing positive results.") l use it for IBS and have EDS /joint hypermobility and find it helps this condition, as well as sleep and well being in a high- stress job.
Not had LC but hope this is helpful to some out there. Inexpensive, available in 750mg capsules or powder.
Thanks for a very informative and great video, once again Gez. You're by far the best presenter out of these 3 stooges !😄
anxiolytic!
You don’t need to worry about typos! :)
Disappointed a lot of these treatments are very expensive. I ha e to say I feel much better apart from being very unfit and sob. I did have both jabs. Big reaction to first but none to second. And am going for the boost. Many thanks for the info and thanks for doing these Gez
It’s a pleasure Annie, and yes I agree - you need to be rich to manage long covid, on supplements alone 😣
My GP today has said I meet all the criteria for ME/ CFS having got covid in January 2021 .
Has anyone else been diagnosed with this whilst dealing with long covid ?..
Most of us would qualify I’d have thought
Apparently Long covid activates EBV which causes all these symptoms the doctors here don't know fuck all. Sleep good and eat good. Gd luck
For me, I believe it’s really in my mind. (C recovered)
Believing in something is the best!!! Pitty it's not so easy for everybody..... But you have a point!
I wish it were in my mind. It would be gone
Hi there to all long haulers get rid of the medication that doctors throw at you and let your body heal like myself
Special gratitude to #Doctorojie for curing my herpes
I'll
Ginger .
If you go the V route.... You probably keep on doing it... You have or had long covid because you didn't treat early enough... Flccc!!!! Last year it was difficult but now we have ivm..n