"Fibromyalgia: New Insights, New Hope" Part 2
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- čas přidán 5. 07. 2024
- "Fibromyalgia: New Insights, New Hope" Patrick W. Wood, M.D., Pacific Rheumatology Associates, Chief Medical Officer, Angler Biomedical Technologies Part 2
Bateman Horne Center is a non-profit clinic and research center, advancing the science, treatment, and education of ME/CFS, fibromyalgia, and related conditions.
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I'm a mental health counselor who specializes in treating folks with childhood trauma (BPD). I have Fibromyalgia and PTSD from my own childhood trauma. Firstly, thank you for your research- it's so greatly needed! I developed symptoms around age 10-12 and wasn't diagnosed until age 21, because of the lack of research and the stigma. I'm now 33 and struggling every day to manage my symptoms, though being a therapist I've learned many skills that help tremendously. I've met so many people with Fibromyalgia, who have childhood PTSD in my 8 years of practicing that I'm convinced these two issues are related. PTSD is a brain injury that occurs with trauma. My own personal conceptualization of fibro (just my musings and anecdotal experiences... I don't have the capacity to conduct the research) is that it's not unlike BPD, in that they're both maladaptive responses to trauma that "work" in the short run. Because of where I meet people with fibro (at work), we are nearly always/always "stuffers" (folks who adapt to chronic invalidation by internalizing the invalidation). My poetic description of this is that our bodies hold the trauma that our minds could not handle. Many of us are very successful and also very good at caring for others, often at our own expense. Again, these are just my experiences and my own efforts at understanding my pain. I just wanted to share, in case it resonates with anyone.
I 100% agree... Well said
My Girlfriend has Fibromyalgia and she suffered quite a lot of trauma from her childhood (her mother died as an alcoholic when she was only 9) all the way through to her adult years. She was sexually abused by numerous males for many years and also physical abuse. The downside of being pretty ☹️
Do you think there is a Link between this sort of trauma and weakening the immune system or other physical weakening, which in turn provides an opportunity for the body to not be able to function and/or defend itself against acquiring these ‘diseases’, at least in some instances❓
Cheers, Laurence ✏️
I've had fibro for over 20 years. It is my conclusion that fibro is a form of PTSD. I grew up in a extremely dysfunctional family and stuffed so many traumatic events. When my mother died almost 20 years ago, is when my fibro manifested. On a scale of 1 to 10, l was a 10+. Now, l am about a 4 or 5, some days a 3, and once in a while a 2. But l had to do a lot of things, like change my diet, exercise, AND therapy. I learned l suppressed many painful memories and the more l cried and released the emotional trauma, the healthier l became. I am not free of fibro, but l feel like l have my life back. I was ready to commit suicide because of all the pain, and my pain list was very long. I thank my lucky stars, and for whatever reason, l was led in the right direction to heal. The mind and body are not separate, they are one.
Can you explain more please
About any medication
Hats off for this research we need more research in this area
I think that doctors who don't recognise fibromyalgia as an illness should be publicly shamed! It makes me so angry that not only do patients have to battle with this horrible illness they then have to endure negativity and disregard from doctors when this ^ research is proof of the illness and all these studies are being done to demonstrate that.
This was 8 yrs ago ..... how long does it take to get this research into the brains of our doctors?
Michael D. Robinson omg! That makes me even more annoyed!
tracey johns w
@@turnitupmike exactly!! 👏👏
Totally agree it's disgusting! 2019 only getting answers 2 months ago since 1998 ?
Thank goodness a family medicine faculty member took up this research! I'm a neurology PA, and most neurologists I've worked with don't think fibromyalgia is real, and certainly wouldn't want to claim the disease in their specialty! Thank you for your research!
Amy Gregg I just want to know how to benefit from these findings, as someone suffering such bad fibro symptoms at this point that I cant even hold a job or anything. Doctors so far in my area haven't done & won't do anything but prescribe slightly higher dose of Ibuprofen- which obviously is not working- and there's no way I'm gonna beg for more pain med options only to risk opioid addiction :0(
@@VicDame LDN
@@VicDame ‘2i
VicSer - Find a Rheumatologist, preferably an older one, who not only treats people with different types of Arthritis, but also treats people with Fibromyalgia (FM). Older Rheumatologists tend to have more patients with FM, and are more likely to prescribe better pain killers for you, opiates, to get your pain under control, not just Ibuprofen. The first 2 years I had FM, the doctor I was seeing (a family practice) told me I had early Osteoarthritis. I was in so much pain, I thought I had bone cancer, or something else that was horribly painful. My boss had really bad Rheumatoid Arthritis, and she referred me to her Rheumatologist. On my first visit to him, he asked me questions the family doctor never asked me, like "how are you sleeping?" Sleeping was horrible because I was waking up every hour, all night long, and I felt more tired in the morning than I felt when I went to bed. He asked me "where does your body hurt?" I told him it hurts almost everywhere, which it did, and still does, including my feet. My feet are where my FM started, and within a week, the pain worked its way up through my body including my neck and the back of my head. The only part of my body that doesn't hurt is my arms.(not counting my shoulders) I'm lucky in that sense because I have met people who could no longer drive because the pain in their arms prevented them from doing so.
Older doctors have more patients too. You should look online first, because most doctors including Rheumatologists have a website, and often include pictures. Call some offices, and ask if they have FM atients. Mine has more FM patients than ones with Arthritis. He has been my doctor for 32 years out of the 34 years I've had FM.
With FM you get a sleep disorder too, and a Rheumatologist who treats FM will prescribe you an antidepressant, Amitriptyline. (brand name is Elavil) It's not for depression, it's taken at bed time and helps you get to Stage 4 sleep and keeps you there until morning, and you wake up feeling rested. If you don't have a sleep disorder that makes you wake up several times each night, you might have something else that mimics FM like Lupus Erythematosus, or Addison's Disease, Ankylosing Spondylitis, or Myalgic Encephalomyelitis (previously called Chronic Fatigue Syndrome).
If you do in fact have FM, there is an FDA approved blood test for it that has been in use since 2012. Go to: www.fmtest.com for more information and how to get it.
This doctor, Dr Patrick Wood was my doctor until he moved out of state. None better! Miss you much, Dr Wood.
, I also have fibromyalgia. I think it's from other pressures that are in the brain I think the way I got mine was when my dad hit me on the head when I was a baby and then all the pressures that I went to with a child because I did have a narcissistic mother so you know I wish somebody would just figure out what this disease does to people and how to to get it to where we don't have to be sitting on the couch all the time it hurts for me to do my laundry it hurts me to do so many things.
Thank you for your work to help us. Unfortunately most doctors just don't care.
Very impressed with research the more the better and one day we will find a cure. I've had fibromyalgia for 15 years and it's totally destroyed my life in every way . I'm tired of trying new things all the time but we must fight on never give up .
It's all about money. It's hard to find the right doctor who cares. Took me 5 years to find one in 2003 I am now 65 years of age. 🇦🇺👀
Always fight! I have fibro tol. 5 yrs ago couldn't leave the house. Now I can and work from home part time. Progress CAN be made xx
WARRIOR you're amazing never ever ever give up
10:46 “Experiences the world unfiltered”….. I’m literally sobbing. I’m not crazy.
My symptoms started after I contracted viral rheumatoid arthritis after a stomach virus that went through my family. They got over it, I got worse and worse. I was misdiagnosed with tick fever 10 days. New doctor properly diagnosed and put me on steroids. I recovered but the damage was done. Luckily my new doctor also was willing to treat me for a real problem though at the time I wasn't testing typical fibro.( I do now) I still suffer but he doesn't treat me like a nut case. So appreciate doctors who research this problem. So little helpful info out there.
Hmm. Sounds a lot like me but no one believes me
There was an article in National Geographic recently about a newly discovered bacteria linked to RA.
Exactly wright
Doctor .
Finally after 16 years of chronic pain and having fybromyalgia
A doctor is that makes me know I’m not crazy 😜 .
*For doing the over time measure of the brain.... start with kids of mothers with fibro. My gma has it, my mom has it, i have it, and im already seeing signs in my daughter. ADHD/ADD also run in the family. All us girls!*
Sir you are a genious. I am canadian polish biologist in Poland I left BC because I had developed Fibro from Hell I came back to mom old continent to Poland to die literally. They put me through the bunch of teste lots they discovered nothing to brain scans, pet scans and nothing. I now understand. I fell sleepy . I don't shut off the pain ever. What did though where i took non steroid untinflamatory drug injections for two weeks. On exactly 10 day the pain subsided for one month. Than returened after exactly one month like bad dream. This is hell .
I agree with you it's hell!!!
I'm so glad I'm seeing these posts. It's so hard to get someone to explain any of it.
What I've found thru my own research is a majority of my symptoms can go back to my whole life. I have PTSD from profound abuse too. Plus something as simple as grinding my teeth to much worse things as not being able to stand up or if I do get up I'm shaky and I list to one side. I'm starting to write things down because I'm losing my words and memory. Thank God for doctors who believe you.
This helps me understand so much of what I have been going through for the past 20 years...Thank you!
Wow. Thankyou so much for this, and thankyou everyone for your supportive comments to each other. ❤❤❤
Now, let’s ask each fibromyalgia patient, if they have ever experienced being ‘abducted’......or if they had been raised in an abusive/dysfunctional family.
Yes
Yes, very traumatic life.
Thank you so very much! I have FMS for 20 years- No DR wanted to see me - “oh no it her again”- I was labelled mental case Somatic you name it in the mental world- I was that. I am suffering soooo verrry much now I unable to get up or do anything now in this late stage. No one cared esp. neurologist! So yes I am very happy you have taken this up on yourself to help people like me. Even to put daywear on it is so very painful.
The don’t shut off the pain bit makes sense to me, most healthy people would for example put their clothes on and forget they’re there soon after, me however I’m always aware of them and have to have soft materials as clothes.
It annoys me that people have to suffer for knowledge to be gained. That system hasn't changed in 30 years! Maybe the people enduring these tests should be awarded alot of money and a medal!
Hasn’t changed for hundreds of years. Patients are always blamed for their own predicaments.
I was diagnosed with fibromyalgia in 1992 by the Mayo Clinic in Scottsdale AZ, and brought the diagnosis back with me to Pueblo CO.
What was their treatment plan, if any?
Thank you for your research. I was diagnosed with Fibromyalgia before everyone knew the name of it. I know at least one Doctor who thinks that it is a lazy diagnoses and not the real issue.
I remember when I was young having pain and being told it was just growing pains. The problem is that I wasn't growing very much. At one point, I could tell myself that I wasn't in pain several times and the pain would cease. At some point, I lost that ability. Now I feel pain all the time.
I have disc degenerative disease and have at least one herniated. I have also had neck issues and due to seven concussions, have damaged my neck. Even as a child, I needed to lay down to read so my neck would be supported because of pain.
With Post Concussion Syndrome and other issues like TMJ had so much pain, brain fog, hyperactivity, losing words, and exhaustion, migraines, among other things. I had dementia symptoms. When my Doctor put me on Elavil and found my maintenance dose, it was a game changer. While I still have symptoms, I can function to work. My health is still not great, especially after some more diagnoses after I had long Covid, but my brain works so much better. Being able to work is a blessing even though getting out of bed can be difficult.
I can't have anything with nutrasweet in it. I also have a sensitivity to MSG. If I drink a diet coke......I have a chance of having a flare up. Where I flare up is my lower back and my gleuts. The pain is so intense that if I take an incautious step my hip goes completely out from under me and I almost fall. They did a DNA test on me to check for Lupus and I had a double hit on it. My Great Aunt died of Lupus in the 1940s. I also got a double hit on Rheumatoid. My Great Aunt had crippling arthritis. I have rheumatoid moving in. My Grandfather also had Parkinson's. I also have osteo arthritis. I have restless legs and fog. I also have cold sensitivity. I'm cold all the time....and am sitting here, in June, with my space heater blowing on my feet to keep them from stinging.
This is my life.
I hope you are still reading comments from this old post, I’ve just discovered you.
I have life long symptoms of FM and was finally diagnosed when I was 35.
I indeed have all symptoms.
However, when I was 50 I found out I was born with a clef pineal gland, in other words a benign tumour on my pineal gland.
My first thought was, so do I have FM BECAUSE of the tumour, or do I have symptoms of the tumour that have nothing to do with FM?
I instantly thought there must be a connection, but nobody has been interested in any of my questions.
I hope this in some way helps your work.
Thanks for this presentation, you are doing a great job. Regards!
Bravo thank you for believing
In our illness ur a kind brilliant man
So sad it dosnt more language
My pain levels and inflammation are definitively linked to my intake of sugar products.
Letter Head Mine aswell incl gluten.
Are you still suffering, I've had it for 5 yrs
Thank you doctor from France for your work
this is very interesting. My father had parkinsons and lewery body dementia and I have crps and fibro, and I have noticed many of my symptoms are identical to his symptoms when he had the early stages of parkinsons
My god. There is proof! And it's 11 years old and some are as old as 2007 so 14 years! What is going on? Why are not all doctors know this?
Please tell me more diagnosis & treatment options have come from this ... & if so, I need new doctors who know how to deal with fibromyalgia.
I have had fibromyalgia for about 15 years. I was also diagnosed with chiari malformation and arthritis, my everyday life is pure he'll. I'm in pain beyond measure every second of everyday of my life. The drs here in my small southern town are clueless as to what I go through, most don't believe in fibromyalgia, I'm often treated as if I'm mentally unstable, have no drive to help myself. I'm a mother of three, it's difficult and near to impossible to be the mother they deserve, I push myself just to get out of bed everyday and be as active in their lives as I can. I just decided to make an appointment with two of my drs and I'm going to request they watch your videos. I'm praying this wakes then up to what is real and not my imagination. My hope is they look into ways to better help me live better everyday with lessened pain. This syndrome is mine to bear, I accepted I have this to live with, I just won't accept that I deserve to be ignored and treated as crazy when their are ways they could help me and others here that suffer the same. We matter. Thank you beyond words and gratitude for being one that wants answers and looks for them and you don't rely on following others in their beliefs, you are an amazing man. Blessings to you and your team.
Awful Pain not treated with Pain meds doctors have been threatened to treat chronic Pain with opoids, I'm actually dying from intense pain, they won't help!
11:48 this explains why pain medicine BARELY takes the edge off my pain, and why I do not ever feel high or even good when I take it. Also why even the “pain medicine” doctors I’ve seen say that there is no way I can still be in pain. 💔
Curious to know if there is a connection between early childhood trauma and FIBRO in later life?
What is the name ofde docter
Yes
I'll volunteer for any studies or trials
Me too
And me in a heart beat 25 years is anough life sentence ?
Me too 100% i been suffering for 20 years just it’s getting worse 🙏
@@GeorgieGorman I'm also ready for those who are negative regarding the horrid pain I suffer every minute of my life. Added to all of the above is a total knee replacement 5 days ago. I wanna punch someone!! The pain is taking over every second of my life! I'm sick of it!
Me too Memphis
Interesting, how do we make more dopermine?
Play music, exercise/stretches, be in sunshine,more deep sleep& regular schedule sleep ,sex,eat healthy, eat more protein,pay attention to and fix gut health
have there been tests in fibro with parkinsons medications for dopamine take up?
OMG this makes soooo much sence!!!
I definitely have a neck issue when I have a headache the worst pain is in my neck, I have my husband but a lot of pressure on my neck and I barely feel the pressure. Something tells me that this idea with neck and fibromyalgia maybe a big connection to a missing piece of a puzzle. That will be my next step is to get my neck checked.
Pls chk it out I ended up with such severe shoulder blade pain that I danced because I didnt know what to do with my arms
MRI showed u had an abcess stuck to my c4 c5 c6..
Thank you for this!
I had trouble following any of this - but my son has ADHD and he has trouble with pain regulation, medication didnt help when he had kidney stones, he has trouble with stress regulation (explosive temper with the tiniest bit of stress), and mood regulation (as a kid he would get angry when he hurt himself or was scared). It just struck a chord when you mentioned these things. I have ADHD myself but he is EXTREME. Always wondered why he was and is so challenging but perhaps he is missing important brain chemistry.
Edit: and yes sorry I know this video wasn’t about ADHD but because dopamine levels are such a feature of ADHD I was looking for parallels I guess.
I have given birth to 4 children with no drugs. Fobro pain is worse. and unlike childbirth which you know will end you dont know when the fibro pain will end
Thank you.
Please update to 2019 from 2010
I can't believe after all this time these severe symptoms & cfs me and still no tests to diagnose & treatment.
This is all weird. I was misdiagnosed with PD and on dopamine for 2 years. That was 7 yrs ago. I already have hypersomnia and rheumatoid arthritis. So I actually felt better as far a thinking and balance but only for a month. Since then I've been diagnosed with fibro and a genetic heart disease. I still have RA and hypersomnia as well. I've always wondered why I felt better for a few weeks only and next 2 years the dopamine did nothing.
Thank you thank you! so far to go l don't think l'll make it There are so many who need help please and soon thank you
My Girlfriend has Fibromyalgia and she suffered quite a lot of trauma from her childhood (her mother died as an alcoholic when she was only 9) all the way through to her adult years. She was sexually abused by numerous males for many years and also physical abuse. The downside of being pretty ☹️
Do you think there is a Link between this sort of trauma and weakening the immune system or other physical weakening, which in turn provides an opportunity for the body to not be able to function and/or defend itself against acquiring these ‘diseases’, at least in some instances❓
Cheers, Laurence ✏️
I also have spondylosis of the cervical spine
Can fibromyalgia cause speech problems too?
Im slurring alot of words for the past year and i forget words as if i dont know how to talk. Its crazy
Absolutely
I have a slight out of the blue catch like stutter
omg yessssss
Isn't Welbutrin good for dopamine?
Re. Your hypotheses: Then why do I bruise before feeling pain? Could it be fibro patients feel pain because damage is actually being done, due to sharp Crystalline build up in tissue?
This is interesting. A brain scan found calcification and its been found in my breast tissue. Could this be related to crystalline
apparently, they call fibro fog ADD now.. ? Just diagnosed with ADD, and have had fibro fog for years.
Ive had fibro for over 25 years. The pain is from hell along with the rest of it .but im also a musician who plays anything from a to z . Also a singer
My question is . How it is possible to have both...ok dif parts of the brain controll the workings. But how can i play a piece of music while in cronic pain
Its not easy but . I still play not missing a beat . Complacaited pieces fibro fog can some times slow me a bit . Not in thinking but just the pain of playing guitar
Can wipe me out ... I would love to see a study between fibro and music mabe their might be some way for music to rescue the patient
Calm the pain or knock it out ?. I know that while im playing .tbe pain fades not as strong as if im just sitting aound ? Listing to music might have the same effect
But playing can help at least in my case . Who knows what we might find . Best of luck to all who suffer one day we will be free
Good health
That wall lamp is pretty creepy 😳
Doesn't explain for FM co-occuring with RL & BP
Who is the doctor. I really need a dr. I've called every dr i can and specialist most have no idea what I'm talking about let alone treat.
Dana Shannon You need to see a rheumatologist. They treat arthritis and other similar syndromes.
Good luck!
Soooo.....
They are still saying it is all in our heads, except now it is in our brain not our imagination.
I have to laugh, or else I would cry.
😂🤣🙃😅😂😭
Smart guy
I would volunteer for a study
I've been asking my Doctor to find a study group and put me in it
Childhood trauma.
The brainshrinks first from not enough dopamine. Maybe not a doctor just guessing
Wait... I'm 30 and diagnosed with fibromyalgia... IS MY BRAIN ROTTING???? MY BRAIN IS SHRINKING???? EXCUSE ME!!!! I'm actually freaking out.
Who’s a good Dr. that you know in Florida I Need a fibromyalgia Dr….. to get my SOMAS BACK… Congress…
Is this why I can take T3's, and it doesn't work?
YES! ME TOO sorry caps but eureka moment
What T3. ???😅
Irriversable atrophy?
I hope not
I've had fibromyalgia for many years now, and I'm finding it difficult to understand what how why. It's called FIBROFOG!😱😔
Dopamine : do Fitness !
Absolutely agree, excercise produces dopamine.
Thing is people with FM suffer terribly after doing exercise and it becomes a catch 22 cycle.
I would rather feel pain every damn day then have you hurt those rats in the lab. How is their pain worth less than mine? Shame on you people!
I agree!
+patricia ferrari It's nice to actually hear the opinion of a ENGLISH DR even if he DOES work in the U . S
The alternative is people, so thankyou for volunteering.
Wish I were perfect
10:03 OMG YES !!!!!! I’ve been told I’m crazy/that doesn’t hurt/stop whining/get over it my whole life, and now thanks to this fascinating doctor, I can see that I am not. 🥹🥹🥹🥹