David Putrino: Long Covid and Functional Neurological Disorder
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- čas přidán 3. 05. 2023
- David Putrino, a neuroscientist and physical therapist, is director of rehabilitation innovation at the Mt Sinai Health System in New York. Over the last three years, the rehabilitation center he oversees has worked extensively with patients experiencing prolonged symptoms after an acute bout of Covid-19, or what has become known as long Covid (LC). On Monday, he posted a thread beginning with this:
"We are in our fourth year of work to understand #LongCovid and we now know things about it thanks to science. After being told again by a quasi-well meaning, if uninformed, clinician that LC is just functional neurological disorder (FND). Here’s a thread on why LC IS NOT FND.“
I spoke with Dr Putrino earlier today about his thread and some of the push-back it received.
What is that mental condition called where a medical professional gets a lifechanging anxiety of their own lack of knowledge, so much they blind themselves into a self-preserving delusion, which triggers the mechanism of successfully blocking out all information and evidence on conditions they don't understand, then effortlessly directs all their energy into telling a physically sick patient they're mentally ill, so the risk of patient death outweighs own ego death?
Thanks for your work, it means a massive deal to many. Cheers
Cognitive dissonance
Exactly!
Thank you for David for your constant advocacy. I am housebound two years with diagnosed post-covid ME-CFS and FND. Both conditions are extremely disheartening in terms of lack of treatment and support. Your research gives such hope, thank you
Thanks for this.
So glad I'm still in the control group. I never got Covid19, any variant. My heart goes out to those of you who got this and can't shake it.
Thank you for this incredibly credit report - i had to beg for doctors to do something - I practically died from 2 different meds. My mind is a little clearer & when i hv energy i try & research meds & supplements etc. i have to listen at least 5 times to understand & then try to write notes. I got the Delta Variant mid july 2021! Its now May 2023. Im about to lose my job. Was in the hospital for almost 3 weeks. I thought, give it 2 more weeks to rest & I should be ok. Two days out I got Covid Toes which was so painful I could barely walk w/ stabbing pains that felt like being stabbed by knives! I thought I would die. From there things went down hill. I now had a list of ailments & symptoms. Had to fight with my doctors cuz i had to save myself to be able to take care of my son with Autism becuz i have no family. I would cry every day. I felt no one would listen. My neurologist said don’t take any narcotics for pain as it can make the covid brain permanent - so just kept enduring the pain. I lost things constantly, ended up stuttering if I got stressed - i could feel the muscles in my neck freeze like rocks when that happened, i would lose my meds... etc etc. Doctors in the hospital may have saved me, but doctors outside practically drove me to a huge depression as i had to fight to get someone to help me! A huge thank you for this information. My whole body is affected! And i keep trying, listening & reading when my body lets me. There are days i just want to give up. I so greatly appreciate the acknowledgment & hope!!! If things dont go well for me is there anywhere i can donate my brain & organs for any studies to hopefully help others? For my son’s sake i hope i make it thru but hope with more organs more answers will come for all suffering.
What are some of your symptoms?
I got a Covid-19 infection in April 2022, and I am still suffering from it. I have received the diagnosis of FND, which I do not agree with. So, thank you for this video.
About as real as long Lyme and co-infections, in other words, disease and immune responses proving that allopathic doctors do not completely understand how these systems interact.
I’ve had long covid for 29 months and neurological issues is just part of the cascade
Thank you! Very helpful interview.
Living with long COVID has been a roller coaster ride for better than three years. I've learned a great deal about treatments that work for me. The key is a diet free of any types of sugars and occasional fasting (I suspect COVID remains in the gut and sugar feeds it.); moderate exercise; a cocktail of supplements used to treat AIDS patients with damaged mitochondria back in the 80's; serrapeptase, nattokinase, aspirin as blood thinner, and atorvastatin for endothelial dysfunction; a host of supplements and vitamins.
Today, I can easily walk five or six miles on level surface, but climbing hills requires pacing. Mowing the lawn and strenuous yard work requires pacing.
Recently diagnose with PMR polymyalgia rheumatica, I now take 15 mg steroids daily, the PMR being the latest problem associated with COVID, the autoimmune systems compromised by whatever. I just roll with the punches.
I’m right there with you. Just about the same
Should of just got vaccinated ffs
Spike protein will remain in your system indefinitely and will destroy the bifida bacteria providing no dense gut Flora.. Which creates mental and cognitive clouding
@@camjones1106 You’re not understanding, your IQ must be very low
Hope you stay this way
so many heath problems can be solved by determination and the sheer will to go ALL non gmo, all carnivore. no fast foods, seed oils, grains. most of my family and friends would rather die than give up eating out, where most of the food poisons exist. I struggle too with not going to restaurants.
How can you identify the tissue/multiorgan damage? Most of us in the LC community have been through lots of testing coming out clear. Am I missing something? Thanks for trying to resolve the puzzle
It depends on what tests you got. The tests your GP and even a specialist can order often won’t show much, but in a research lab you will see differences between Long Covid and healthy controls. Mas spectrometry for example can see DNA Methylation profile differences and protein profile differences, that are vastly different in Long Covid compared to healthy controls.
Interestingly those same Long Covid patients profiles match ME/CFS
Also a lot of the findings of Long Covid patients are from autopsy, after the patient died from an unrelated cause like a car accident.
There’s also the 2 day ICPET (invasive cardiopulmonary exercise test) which on day two shows massive problems with VO2 Respiratory Exchange Ratio, and other strange anomalies in both Long Covid and ME/CFS. This particular ICEPT is being researched by Dr David Systrom at Brigham and Women’s Hospital in collaboration with Harvard University
Dr Systrom also found ‘Pre load failure’ in these patients. (The failure of the heart to preload enough blood for the following beat) don’t worry that doesn’t kill you
Note if you are very unwell don’t do the ICEPT test because it can make you very unwell. As induces a ‘Post Exertional Malaise’ crash
11:00 Correct. 24:40 correct.
Also yes ME/CFS = LC = PVS(Post Viral Infection). Same process, with variation in view of originating viral infection.
I have mast cell disease and the hyperimmunity it causes is almost identical to long Covid. Mast cell stabilizers can help.
@Noway Yes, probably from childhood vaccines! Pin cushion injury is a great description lol
Me too isn't it great?
AT last we are less invisible. I am very excited now WE all might get research help.
Hydroxyzine
Some times. Not always,
Do you have Ehlers Danlos? Hypermobility?
My blood pools in my extremities now. The longer I am standing or the harder I use my brain I get worse.
I started having similar symptoms 10 years ago from a moderate Statin dose and a family history of statin issues like the typical muscle and joint pain. Started having anxiety, POTS the other could be abusing soda like i did drinking 6 pack or more of mountain dew daily causing nerve damage like what diabetics suffer from.
2 years and 8 months, still struggling
I'm over 4 years now, my first infection was dec 2019. I've had 2 reinfections. I'm in a covid clinic but they're as lost as I am. My muscles are gone, no thighs or bottom left. Sleep is difficult. I cant exercise or walk more than a block without pain. I've aged 10 years in 4. My lungs arent affected, no shortness of breath, but I do get rapid heartbeat . I wake up exhausted. A day of activity means 2 or 3 days with recovery. I'm 62 but was younger looking than my age until covid, very active and healthy. I've lost the ability to write (cant focus for long) and I seem to have developed symptoms similar to ADHD. its all so frustrating. I've also had 6 ovarian tumors removed in the last year.
I hope you fully recuperating I am 3 years LC. Losts of pain not energy at all just 10 minutes in one day . Did you have operation while with long covid? were your tumours benigne? I ask I have pain in my ovaries. Can not go to doctor no energy. Very sick palpitation chest pain.❤
@@romygime5822 yes, they were benign. I'm having 1 year followow up scans next week.
@@romygime5822 yes, all 6 were benign, I recovered well and yes, I had long covid when I had the surgery.
I know this video is a year old now, has there been any progress on this? There's no treatment in the UK and I've been ill for 2 years now.
my symptoms of LC are muscle fasciculations, cramps, and pounding heart beat
been to so many doctors and no body can help
is this FND?
no.
I'm having long covid.I have found quinine has helped me a lot.I drink tonic water and take pills for muscle cramps that have quinine it them .Also pineapple has natural quinine in it.
Is long covid really vaccine damage? I lost my ability to walk 5weeks after my 1st mandated covid vax never had covid - now diagnosed with FND caused by anxiety. I have never had anxiety either.
THE question. How many who have long covid are also jabbed vs those who had the virus but no jabs?
I just heard testimony here on youtube under Senator Rennick given before The Australian Congress by a pfizer spokesman. This spokesman stated that myocarditis is an AUTOimmune situation. If the jab causes myocarditis, which clearly it is, the spike proteins that the body attacks are in all the organ systems so there will be massive attack. Welcome to a new nightmare.
Watch Dr. Been Medical Lectures.
I had a severe reaction to the vaccine and shortly after got covid and developed long covid now diagnosed as ME. When I spoke up about the vaccine the doctors turned on me and I was forced to leave my practice (I'm in no way anti vaccine but had issues with this one)
I had long covid before I had my first vaccine, but I would think that introducing the spike protein would make that a possibility as we now know it doesn't stay in the arm and will reproduce in organs.
I'm guessing it's both.
Shame on this guy! Is he trying to blame other illnesses to where the real danger was given to the public!!!! I will never listen to this post!!
Lmao imagine this is the guy you’re associated with for the rest of your life lolololol
One word Hydroxyzine
Pleas explain…
@@BJ-bc7sl google it, antihistamine may work for symptoms
Who cares! I am Fully UnvaCCinated! Healthy and Happy!😁💪😎
Yep, the ELEPHANT in the room nobody will talk about.
Cool there are fully unvaccinated People sick with LongCovid or MECFS. What about them?
Would you like a participation trophy?
If you don't care, why are you here?
@@abrasionequation4632 Why are you here?
I believe CHRONIC STRESS is one of the most important factors as to why people develop MCAS, Long COVID, Chronic Fatigue Syndrome/ME, Fibromyalgia, Chronic Lyme Disease, and POTS.
Loss of a Loved One, Divorce, Loss of a Job/Financial Security, a Traumatic Accident or Childhood Event, Surgery, or Athletic Overtraining are all examples of Chronic Stress. A Type-A High Achiever/Perfectionist Personality typically will place healthful activities, such as getting a proper night’s sleep, as secondary to accomplishments.
An acute infection, such as COVID-19, can be merely the Trigger to the complete breakdown of an ALREADY Compromised Immune System from Chronic Stress. Once the breakdown occurs, secondary infections of other viruses (such as Epstein-Barr Virus), bacteria, molds, protozoans, and parasites that were FORMERLY being held in remission will now resurface. There is also little innate Immune System response to stop any NEW infections. The exacerbation of the effects of Environmental Toxins, Autoimmune Diseases, Allergies, and other Comorbidities may further complicate the disease and make it unique to almost EVERY Long Hauler! 🙀
Chronic Stress suppresses the Immune System and Digestion, making it more likely to develop Immune System dysfunctions, such as MCAS, and poor absorption of essential nutrients, leading to deficiencies that can cause issues like Leaky Gut.
A deficiency in B-Complex Vitamins can lead to Leaky Gut as well as a Leaky Blood/Brain Barrier. A leaky BBB will allow pathogens and foreign proteins into the Brain, where they may cause inflammation, leading to Disautonomia, Brain Fog, Loss of Memory, Headache, Depression & Anxiety, Chronic Fatigue, and other neurological symptoms.
Deep Sleep is the ONLY Time the waste products of inflammation and normal metabolism are removed from the Brain, so reduction of Chronic Stress to allow a Good Night’s Sleep is important for treatment. Typically, a Change in Attitude is required to reduce Chronic Stress and disrupt the endless repetition of negative thoughts.
LifeWithKyle discusses how he uses Meditation to Calm his Nervous System and diminish Long COVID symptoms during a relapse. He offers Guided Meditations SPECIFIC to Long COVID.
Fasting is a good Lifestyle Change to help restore integrity to the Gut and Blood/Brain Barrier. It gives the intestines a rest from Digestion, allowing energy to be focused on Repair. Fasting is a Stress on the Body, and like Exercise, should be approached gradually. You should start with Time-Restricted Eating, gradually reducing the time of your Daily Feeding Window until you are comfortable eating within an 8 hour or less Feeding Window. From there, you can attempt a 24 hour or Multi-Day Fast. Don’t be discouraged if you end a Fast early. You can try again on another Day.
Fasting will be easier if you follow a Healthy Low Carb, Whole Food Ketogenic Diet. Dr. Eric Berg can show you how to begin. Eliminating Grains and consuming Nutritional Yeast, a great source of B-Complex Vitamins, along with supplementing Vitamin B1, will help to restore Intestinal and Blood/Brain Barrier integrity.
Where to find more info?
1) LifeWithKyle
2) JUST ROB
3) Raelan Agle
4) Gez Medinger
5) Simply COVID
6) Dr. Eric Berg
Some people have found Corticosteroids, such as Prednisone, can offer relief from Long COVID symptoms. The problem is Prednisone can produce bad side effects. Dr. Berg offers a natural alternative in the video, “A Natural Prednisone or Steroid Protocol.” It involves vitamin D3, B5, and C in large doses. It is claimed to help calm down inflammatory immune responses without the deleterious side effects of Prednisone.
Many Long Haulers are fit, Elite Athletes - UltraMarathoners, Triathletes, Competitive Bikers, Rock Climbers, etc. I’ve heard several Doctors who treat Long COVID patients remark on this fact. I propose CHRONIC STRESS is the Root Cause of Long COVID, Chronic Fatigue Syndrome, Fibromyalgia, Chronic Lyme Disease, MCAS, and POTS.
Chronic Stress may result from Loss of a Loved One, Divorce, Loss of a Job/Financial Security, a Traumatic Accident or Childhood Event, or a Surgery. But People fail to recognize Athletic OVERTRAINING is also a Chronic Stress.
When you Exercise, the Muscles, Tendons, and Bones of your Body are broken down. Your Body repairs and strengthens them during the Recovery Period to adapt to the increased Stress. However, if you start Exercising again before Complete Recovery, you just continue the breakdown of your Body, leaving you susceptible to disease and injury.
The Chronic Stress of Overtraining suppresses the Immune System and Digestion, leading to Immune System dysfunction and Nutritional Deficiencies, due to lack of proper absorption. Though the Overtraining Athlete appears Fit on the outside, it masks internal problems. The acute COVID-19 infection is merely a Trigger, resulting in the complete breakdown of an ALREADY Compromised Immune System.
Your typical Overtraining Athlete is often a Type-A Overachiever/Perfectionist Personality who forgoes getting a Full Recovery or a Good Night’s Sleep in pursuit of Athletic Achievement. These are also the ones who are susceptible to Long COVID.
The key to maximizing athletic performance is to become a Student of Recovery after Exercise, maximizing Deep Sleep, and following proper nutrition to Optimize the Immune System, and keep Blood Glucose and Insulin at lower, more optimal levels.
I've never been stressed yet I have long covid, so I don't believe its a cause.. but it IS a result!