I’m ironically killing four hours until my next full blood panel while listening to this video. Getting a fresh snapshot ultrasound next week and first transplant interview next month. Two and a half years sober, last beer was the night before I was hospitalized. I have the complication of sarcoidosis which turned out to be the culprit behind chronic autoimmune hepatitis but drinking didn’t help obviously. Low fat low sugar high carb diet and tons of fruit has made a big difference. I love that you’re doing these regular videos to take a lot of the fear out of the experience for the newcomers to this journey. There’s some rough realities to face but a lot of positives that can come out of the process. Even if a transplant doesn’t go down I’ve learned to adjust my lifestyle and my activity to my stamina, energy levels and so on. Your closing note about being a positive in someone’s day is possibly the most important advice you gave. Mental and emotional well being is critical, even if it’s a couple of my favourite candy bars in a mug next to my bed for those 3 a.m. ‘what is the point of all of this’ experiences. I’ve explained to a few others that major lifestyle changes (diet, medication, addiction recovery) aren’t buying you a future or ‘extra years’. They’re paying owed rent and allowing you to stay a while longer so long as you stay in good graces with your landlord (your body) who has heard every excuse under the sun. Thanks again for your channel and all your work.
I was diagnosed about the same time as you I think. After intensive care, hospital for about two months I was told I needed a new liver. did about a year sober. I said I didn't want the operation as I'm 50 old and have no children ans somebody younger would be better. I've accepted death. Keep being sent for MRIs and on many many meds;) I just try and make someone smile every day 👍
Hello Nick. First I want to thank You for Sharing All that You Have. I just spent a week in the hospital because Of my potassium and magnesium levels were dangerously low from not eating I guess. It was horrible experience. I had an aprn gaslighting me telling me I Need a psychiatrist and there is nothing wrong With Me. I've lost so much weight and still. I can't get in with G.I. For 2 months. I'm at the end of my rope. I have ZERO emotional support. I had my husband but her passed a few years ago. I cry constantly. I've just had enough. Thank You for letting Us share With You. I will B praying for You...... I Care
Thank you so much for your kind words! I'm truly sorry that you feel so alone, but know that I'm out here thinking of you. Cirrhosis is such a lonely disease for a lot of reasons. Obviously most people even medical professionals can't truly understand. Know that I do and so do the rest on the channel. Take care of yourself and I look forward hearing about your progress.
I am 14 years since my initial diagnosis transplant visit, and MELD is still under 10. I chose to drop out from Mayo JAX as I was tired of the entire process and let nature take its course. BTW they are a well-oiled machine and all testing and labs, visits were coordinated to be done within 2-3 days. First test out of the bag every time was a drugs of abuse panel. I do not drink and do not use drugs, so that was fine, I am still followed by a GI, but have come up with a very good plan when it goes sideways. I have never had ascites and never had varices. People need to keep in mind that getting a transplant is a lifelong process. There are drastic problems that come from the anti-rejection meds such as diabetes and you have to have a designated person to make decisions for you, travel with you and assist you.
Thank you and it's my pleasure! If you have any topics you'd like me to cover, just let me know in the comments and I'll be happy to do so to the best of my ability.
@fortressfarms82 thank you so much. I was diagnosed in February of this year. I'm not sure if you have covered this topic yet, but I'm just wondering about nutrition.. that would be a good topic I would love to know more about from your perspective.
I’m ironically killing four hours until my next full blood panel while listening to this video. Getting a fresh snapshot ultrasound next week and first transplant interview next month. Two and a half years sober, last beer was the night before I was hospitalized. I have the complication of sarcoidosis which turned out to be the culprit behind chronic autoimmune hepatitis but drinking didn’t help obviously. Low fat low sugar high carb diet and tons of fruit has made a big difference. I love that you’re doing these regular videos to take a lot of the fear out of the experience for the newcomers to this journey. There’s some rough realities to face but a lot of positives that can come out of the process. Even if a transplant doesn’t go down I’ve learned to adjust my lifestyle and my activity to my stamina, energy levels and so on. Your closing note about being a positive in someone’s day is possibly the most important advice you gave. Mental and emotional well being is critical, even if it’s a couple of my favourite candy bars in a mug next to my bed for those 3 a.m. ‘what is the point of all of this’ experiences. I’ve explained to a few others that major lifestyle changes (diet, medication, addiction recovery) aren’t buying you a future or ‘extra years’. They’re paying owed rent and allowing you to stay a while longer so long as you stay in good graces with your landlord (your body) who has heard every excuse under the sun. Thanks again for your channel and all your work.
Holy shit. I saw your old video ages back. You look so fucking healthy in comparison. Thats insane.
I’m ironically killing four hours until my next full blood panel while listening to this video. Getting a fresh snapshot ultrasound next week and first transplant interview next month. Two and a half years sober, last beer was the night before I was hospitalized. I have the complication of sarcoidosis which turned out to be the culprit behind chronic autoimmune hepatitis but drinking didn’t help obviously. Low fat low sugar high carb diet and tons of fruit has made a big difference.
I love that you’re doing these regular videos to take a lot of the fear out of the experience for the newcomers to this journey. There’s some rough realities to face but a lot of positives that can come out of the process. Even if a transplant doesn’t go down I’ve learned to adjust my lifestyle and my activity to my stamina, energy levels and so on. Your closing note about being a positive in someone’s day is possibly the most important advice you gave. Mental and emotional well being is critical, even if it’s a couple of my favourite candy bars in a mug next to my bed for those 3 a.m. ‘what is the point of all of this’ experiences.
I’ve explained to a few others that major lifestyle changes (diet, medication, addiction recovery) aren’t buying you a future or ‘extra years’. They’re paying owed rent and allowing you to stay a while longer so long as you stay in good graces with your landlord (your body) who has heard every excuse under the sun.
Thanks again for your channel and all your work.
Hello Nick. 🎉. Very good information there. I wish you the very best, you know that 💚💚🙏🏼🙏🏼
I was diagnosed about the same time as you I think. After intensive care, hospital for about two months I was told I needed a new liver.
did about a year sober. I said I didn't want the operation as I'm 50 old and have no children ans somebody younger would be better. I've accepted death.
Keep being sent for MRIs and on many
many meds;)
I just try and make someone smile every day 👍
Youre helping many people Nick!Gottee is coming in great !
Hello Nick. First I want to thank You for Sharing All that You Have. I just spent a week in the hospital because Of my potassium and magnesium levels were dangerously low from not eating I guess. It was horrible experience. I had an aprn gaslighting me telling me I Need a psychiatrist and there is nothing wrong With Me. I've lost so much weight and still. I can't get in with G.I. For 2 months. I'm at the end of my rope. I have ZERO emotional support. I had my husband but her passed a few years ago. I cry constantly. I've just had enough. Thank You for letting Us share With You. I will B praying for You...... I Care
Thank you so much for your kind words! I'm truly sorry that you feel so alone, but know that I'm out here thinking of you. Cirrhosis is such a lonely disease for a lot of reasons. Obviously most people even medical professionals can't truly understand. Know that I do and so do the rest on the channel. Take care of yourself and I look forward hearing about your progress.
I am 14 years since my initial diagnosis transplant visit, and MELD is still under 10. I chose to drop out from Mayo JAX as I was tired of the entire process and let nature take its course. BTW they are a well-oiled machine and all testing and labs, visits were coordinated to be done within 2-3 days. First test out of the bag every time was a drugs of abuse panel. I do not drink and do not use drugs, so that was fine, I am still followed by a GI, but have come up with a very good plan when it goes sideways. I have never had ascites and never had varices. People need to keep in mind that getting a transplant is a lifelong process. There are drastic problems that come from the anti-rejection meds such as diabetes and you have to have a designated person to make decisions for you, travel with you and assist you.
Stay strong!!!!
Love this channel and your content. Thanks for the information from your perspective!
Thank you and it's my pleasure! If you have any topics you'd like me to cover, just let me know in the comments and I'll be happy to do so to the best of my ability.
@fortressfarms82 thank you so much. I was diagnosed in February of this year. I'm not sure if you have covered this topic yet, but I'm just wondering about nutrition.. that would be a good topic I would love to know more about from your perspective.
I’m ironically killing four hours until my next full blood panel while listening to this video. Getting a fresh snapshot ultrasound next week and first transplant interview next month. Two and a half years sober, last beer was the night before I was hospitalized. I have the complication of sarcoidosis which turned out to be the culprit behind chronic autoimmune hepatitis but drinking didn’t help obviously. Low fat low sugar high carb diet and tons of fruit has made a big difference.
I love that you’re doing these regular videos to take a lot of the fear out of the experience for the newcomers to this journey. There’s some rough realities to face but a lot of positives that can come out of the process. Even if a transplant doesn’t go down I’ve learned to adjust my lifestyle and my activity to my stamina, energy levels and so on. Your closing note about being a positive in someone’s day is possibly the most important advice you gave. Mental and emotional well being is critical, even if it’s a couple of my favourite candy bars in a mug next to my bed for those 3 a.m. ‘what is the point of all of this’ experiences.
I’ve explained to a few others that major lifestyle changes (diet, medication, addiction recovery) aren’t buying you a future or ‘extra years’. They’re paying owed rent and allowing you to stay a while longer so long as you stay in good graces with your landlord (your body) who has heard every excuse under the sun.
Thanks again for your channel and all your work.
You're alive
Oh yeah