Living with Turner Syndrome (Missing a X Chromosome)

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  • čas přidán 27. 08. 2024
  • Celeste was born with Turner syndrome and only has one X chromosome. They want the world to know that there is nothing to fear about their uniqueness, it is simply a reflection of natural human variation.
    Connect with Celeste: / celeste.mcdonnell
    SBSK Patreon: / sbsk
    SBSK Socials:
    / specialbooksbyspecialkids
    / chrisulmer
    / specialbooksbyspecialkids
    / sbsk

Komentáře • 1K

  • @silivror
    @silivror Před 2 lety +1041

    My wife had Turner's. We were married 29 years before she passed away last summer following heart surgery. She was so joyful, smart, a talented musician, and such a loving mother to our 2 adopted sons. We miss her so very much. I hear echoes of her in Celeste. Thank you for making this video.

    • @stepht7508
      @stepht7508 Před 2 lety +31

      Sounds like you are pretty special too.

    • @marranm4950
      @marranm4950 Před 2 lety +11

      I’m so sorry Silivror that you lost your wife recently You sound like your a wonderful man and Celeste was very fortunate to have you in her life God bless you sir Mary N.Ireland

    • @Shelbyneat
      @Shelbyneat Před 2 lety +10

      Sorry for your loss. Glad you have great memories of her! Sending love ❤️

    • @toddburgess5056
      @toddburgess5056 Před 2 lety +4

      So sorry for the loss of your wife.

    • @bharatgoel8809
      @bharatgoel8809 Před 2 lety

      There goes another sympathy seeker

  • @kaitlindowd9564
    @kaitlindowd9564 Před 3 lety +1504

    I have Turner's and I feel so blessed to be a part of the 1% that lived. Thank you for putting out a video that spreads awareness. Celeste you have done a wonderful job representing the syndrome. You have even taught me a thing or two. God bless! ❤

    • @Wouldyoujust_
      @Wouldyoujust_ Před 3 lety +24

      I'd be super interested to watch a video if you made one. Just saying ❤ I'm super glad you're well and this was helpful to you

    • @fartpotatoes
      @fartpotatoes Před 3 lety +10

      @@Wouldyoujust_ Same! I was checking to see if they've made a video on their channel, because they could be pretty interesting. I'm always not so sure if these people are telling the truth or not to get attention, but either way, I wish her a great life ☺️

    • @heatherc1563
      @heatherc1563 Před 3 lety +15

      I had a cousin who had Turner syndrome. She died when I was really young. I don't remember much but I do remember I really liked her. I think Celeste did a great job as well. Times like these is when I think the internet is so cool and even better connecting. ✌

    • @anne-mariekaterivartti1822
      @anne-mariekaterivartti1822 Před 3 lety +10

      Thank you for your wise words! I wish I could always remember to praise variety of individuals… But too often I end to get miffed -without any valid reason. I wish all best for you. We may have missing or wacky chromosome but the question is; are we living our lives or just let a chromosome let us down.

    • @NoobieToob
      @NoobieToob Před 3 lety +1

      Where exactly is this X-chromosome and how does it get deleted?

  • @sopuruobiesie4303
    @sopuruobiesie4303 Před 3 lety +531

    "Just because we're different doesn't mean we cannot connect". Thanks for that quote Celeste; and for reminding me to embrace humanity's diversity.

    • @oBCHANo
      @oBCHANo Před rokem

      She is so inspirational.

  • @svenmarkert6368
    @svenmarkert6368 Před 3 lety +741

    This may be the most educational interview I've seen on your page. It was really interesting to hear about Turner syndrome. Celeste did such an amazing job explaining their challenges.

    • @annelien3432
      @annelien3432 Před 3 lety +15

      There are many other aspects to TS, mainly physical ones, that were not mentioned- a huge number of other possible physical traits and some more or less significant health risks, esp. heart and autoimmune conditions. The mental health struggles can come with TS, but often don't, at least not this severe.(As far as I know, we might sometimes have an innate tendency towards anxiety, but the link to depressions is much weaker and strictly caused by the things we can go though, and substance abuse is probably not (much) more common than in the general population). "Learning issues" are typically more a very unique set of strength and weaknesses (good verbal abilities, struggles with e.g. spacial relationships) we can have, that can make some particular subjects harder than others for us, and so on. Also, TS is a condition with a huge variation between different individuals who have it. Celeste wrote somewhere they explained a lot more during the interview, but obviously the video would have been too long. I agree, that they did do an amazing job though. If you are interested in learning more, the TSSUS- Website and CZcams channel- might be a good place to start.

    • @luvscats3
      @luvscats3 Před 3 lety +49

      @@annelien3432 Hey! It’s Celeste from the video and thank you so much for so eloquently writing out more info about TS! 😊 As you said in your comment Chris and I did talk about a lot of the possible symptoms of TS, what symptoms I have and their impact on my life. But talking about all of that in addition to our conversation about being LGBT and mental health would have been a 3 hour long video if it was all kept in the final video haha. I would encourage anyone reading this comment and interested in learning more about TS to look up the Turner Syndrome Society of The United States or other similar organizations for more information! Also I will say I had to have open heart surgery recently because of issues with my heart caused by TS. So please anyone with TS reading this make sure you have your heart checked out and if needed monitored regularly by a cardiologist!! Thanks again Annelie I really do appreciate you sharing more info for people!!

    • @annelien3432
      @annelien3432 Před 3 lety +5

      @@luvscats3 Thank you so much for your kind words! I think sharing information about TS that is as correct as possible is in the best interest of all of us. Also, I hope your recovery from your surgery is going well.

    • @nocomment2468
      @nocomment2468 Před 3 lety +3

      Thank you for sharing so much about yourself, Celeste! You seem like a very cool person.
      Wishing for your quick recovery, and hoping that you have easier days ahead!

    • @Kitkat-rl2fm
      @Kitkat-rl2fm Před 2 lety +3

      John being called cute is part of the problem!!!

  • @radlilalien3406
    @radlilalien3406 Před 3 lety +545

    my little sister had turners and i totally forget she has it haha it’s so wild to think other people see her differently cause my sister is so normal to me and she can do everything on her own and she’s just the fricken coolest little kid i’ve ever met, all of my friends and anyone who meets her just lovesss her

    • @ImLiterallySoup
      @ImLiterallySoup Před 3 lety +12

      "had" ? is there a treatment or is it a typo

    • @juliapruitt5672
      @juliapruitt5672 Před 3 lety +11

      Hahahahaha, SO funny, so true for me too. The story of my sisters life: "Before Turners diag: Nobody knows how rare and special I am! After Turners diag: Nobody cares how rare and special I am?ALBATROSS!" Mom: "not until you finish that broccoli, young lady."

    • @absamuraiff2261
      @absamuraiff2261 Před 2 lety

      (;

    • @Kronus_Music
      @Kronus_Music Před rokem +2

      @@ImLiterallySoup the D and the S are right beside each other so I'm assuming typo lol

    • @tanyaosterman
      @tanyaosterman Před rokem

      That's how it always is when we take each person as an individual, the only way we ever should.

  • @dylandrake4325
    @dylandrake4325 Před 3 lety +900

    My girlfriend has triple x syndrome. She's born with a extra X chromosome . She's taller than average, has broader shoulders, bigger cheekbones, and has trouble learning. She struggles with depression and self confidence too. I didn't know there was a opposite of her condition. It's interesting. You and her are very similar mentally but almost opposite physically

    • @annelien3432
      @annelien3432 Před 2 lety +57

      These conditions are "opposites" mentally, as well, if you want to call it that. How many X chromosomes you have does have an effect on cognition. With TS, verbal IQ tends to be higher than performance IQ, or mathematical IQ, if you want to call it that. With Triple X, the exact opposite is true. IF they have any learning disabilities, those with TS tend to be diagnosed with discalculia, those with Triple X (and Klinefelter`s) with dyslexia. That`s actually fascinating, also for thinking about possible average (!) differences between 46XX females and 46XY males. BUT. People with a 45X karyotype and almost any other karyotype within TS tend to be of average intelligence, as are those with a 47XXX karyotype (you can have even more additional X- chromosomes- that tends to come with intellectual disabilities, the more Xs you have, the more pronounced). For us with TS, that translates into average to above average educational outcomes. I am not sure about Triple X though.

    • @californium-2526
      @californium-2526 Před 2 lety +24

      @@annelien3432 Triple X has low-average to high-borderline IQ averages (e.g. 80-90 IQ), as far as I know. This translates to slightly worse learning skills than 46,XX and 45,X(0) women and girls. 48,XXXX and 49,XXXXX, two very rare aneuploidies, are the most associated with intellectual disability (e.g. IQ

    • @HonestlyAnnaFun
      @HonestlyAnnaFun Před 2 lety +1

      Me too.

    • @rthorofthehillppl
      @rthorofthehillppl Před 2 lety +20

      All I know is that IQ has been proven to be bull crap

    • @bitanmandal977
      @bitanmandal977 Před 2 lety +4

      Actually, this condition is called "Superfemale" I guess.
      For her two X chromosomes are active, and the third one is a Barr body, the inactivated one.

  • @turtlenecksok
    @turtlenecksok Před 2 lety +473

    as a woman with turners, i appreciate your classification of it as an intersex condition. a few years ago a lot of women with turner syndrome pushed back against the label of intersex because they felt like it threatened their womanhood and how others perceive them as women. people like you educate and make others realize that this is not the case, that you can identify as a woman or any other gender identity while having turner syndrome. i appreciate you!

    • @ebincd2362
      @ebincd2362 Před 2 lety +24

      @@davidmccallum3950 this isn't really the channel to troll or shitpost if that was your original intention. if it was your original intention, i hope you get to be introduced to this wonderful community
      otherwise, hopefully denisa explained what's the difference between biological chromosomes and gender identity to you C:

    • @dominicstewart-guido7598
      @dominicstewart-guido7598 Před 2 lety +12

      @@davidmccallum3950 Obvious troll is obvious.

    • @dantecristero
      @dantecristero Před 2 lety

      People suicide because of your evil ideologies. She is a woman with a syndrome. Not anything else

    • @possum1238
      @possum1238 Před 2 lety +1

      this is such a beautiful comment

    • @Frdrck2.0
      @Frdrck2.0 Před 21 dnem

      Not true. She's still a woman.

  • @bigbarkingdog2010
    @bigbarkingdog2010 Před 3 lety +109

    Celeste is brave and extremely articulate. Great strength. Hat's off to this highly intelligent person and entire family. Thumbs up.

  • @hotgibson123
    @hotgibson123 Před 3 lety +95

    Wow just found this. I have turners too. Celeste is so strong. I’m so happy to see someone like me reflected online. So happy that you are doing this work! Sending so much love your way!

  • @mekathemoneymagnet1015
    @mekathemoneymagnet1015 Před 2 lety +324

    I lost my daughter when I was 8 months pregnant due to turners. She would have been 13. My heart still aches. I wonder what she would have been like. My life has not been the same

  • @riverramos9586
    @riverramos9586 Před 3 lety +97

    I have turners myself and it’s amazing to see some awareness. It’s rarely talked about and it’s great to be able to relate to others with
    the same condition :)

    • @Kitkat-rl2fm
      @Kitkat-rl2fm Před 2 lety +2

      I feel as a Turner Syndrome woman it does not represent my personal views or gives a positive awareness about TS.

    • @karaigrayson8198
      @karaigrayson8198 Před 2 lety +2

      @@Kitkat-rl2fm tell us about your views

    • @magical571
      @magical571 Před 2 lety +6

      @@karaigrayson8198 They have just been ranting in other threads were celeste's views are being praised, cause they took it to mean "this is what turner syndrome is and i don't feel represented" instead of "this are celeste's views, if they don't align with mine, well, they don't have to, i might as well do my own video or something to be a positive influence"

    • @karaigrayson8198
      @karaigrayson8198 Před 2 lety

      @@magical571 true

    • @karaigrayson8198
      @karaigrayson8198 Před 2 lety +2

      I have turners myself and I know it

  • @PhillipeKnippel
    @PhillipeKnippel Před 3 lety +162

    Celeste seems to be such a good friend. It would be nice to hear about the friends of the people you show us. Hugs from Brazil bub.

  • @jessicakes0025
    @jessicakes0025 Před 8 měsíci +24

    I just got told yesterday that my unborn baby has Turner’s syndrome. I came here to find out more information, so I thank you for speaking out about your life.

    • @nah_.
      @nah_. Před 7 měsíci +1

      How are you doing now?

    • @prufrockrocks79
      @prufrockrocks79 Před 3 měsíci

      Congratulations on your pregnancy! I wish you all the best.
      My son had a birth defect and we found out before he was born. When I told people about him, everyone looked sad and no one said 'congratulations'. Our son had surgery soon after birth and survived, and now he is completely 100% fine, but I always remember that I wanted that congratulations when I was still pregnant with him. I don't know much about turner syndrome, but this person seems lovely, so be pleased about your pregnancy and enjoy it.

    • @ClarisNdoroRealEstate
      @ClarisNdoroRealEstate Před měsícem

      They just told me the same that my daughter has Turner syndrome too. Five months pregnant

  • @myahswings9766
    @myahswings9766 Před 3 lety +76

    “It’s just a reflection of a natural human variation “. How beautiful. Thank you Celeste for putting it so simply and so beautifully.

    • @MossyMozart
      @MossyMozart Před 2 lety

      @Myah's Wings - And there many stops on the pathway of human variation.

  • @sidneybolam5655
    @sidneybolam5655 Před 2 lety +31

    Celeste seems like a super cool person. Thanks for this interview, I enjoy hearing them about their experience.

  • @tatumpiano
    @tatumpiano Před 3 lety +44

    Celeste is brilliant and so insightful. A really good, kind hearted person. Parents did a fine job and should be proud!

  • @jadesita98
    @jadesita98 Před rokem +18

    I cannot. Celeste is such a sweet person. Love how they managed to understand their self. I have POS and can understand the thing about not identifying as a woman or a man, since we physically don’t look like a mas/fem stereotype. It’s very hard to explain, and I admire you for being so brave and just be yourself.

  • @r.l.7319
    @r.l.7319 Před 3 lety +30

    Celeste, you seem to be a really smart, determined, reflected and interesting young person. I'm so glad you got help for your mental health struggles and that you are so brave to talk about it openly. It took myself years to get help and even longer to feel comfortable to talk about it... We learn about diagnosis like yours in med school but I really love to get opportunities like this to hear from people who have it, since it's so rare we don't get to meet patients.
    It's really important for me to connect human faces and storys to all these medical terms they bombard us with.;) Thank you for doing this interview!

  • @Robinicat
    @Robinicat Před 3 lety +109

    Such a serious, intelligent, self aware person Celeste is!

    • @oBCHANo
      @oBCHANo Před rokem

      I love her, she is great.

  • @medaperson5055
    @medaperson5055 Před 2 lety +15

    I came back to listen to Celeste's first video after the second and I'm convinced that this is more of what the world needs: open, rational, empathetic conversation. Thank you for sharing this with me. It's making an impact.

  • @tracyd693
    @tracyd693 Před 2 lety +83

    Thank you for acknowledging that addiction is a disease, or an illness as you said, dad. It's so disheartening and painful when people think addiction is a choice and that addicts are bad people who deserve to be thrown away with the trash. So thanks 🙂

    • @brazil3207
      @brazil3207 Před 2 lety +1

      what makes you think that ddiciton is not a choice?

    • @TheUuhhh
      @TheUuhhh Před 2 lety +2

      I definitely chose it. Don’t regret it either

    • @zifengpi4776
      @zifengpi4776 Před 2 lety +3

      Addiction becomes a whole lot more harder to makes the right choices. But that also doesn't mean it isn't a choice. It's just a bad one.

    • @eboniz
      @eboniz Před 2 lety +5

      @@zifengpi4776 choices create addiction, in the same way that a choice can create anything. it doesn’t mean that it is, as a whole a choice.

    • @tracyd693
      @tracyd693 Před 2 lety

      @@brazil3207 see my explanation to j. k. A

  • @tashaparfitt5374
    @tashaparfitt5374 Před 2 lety +16

    I have Turner Syndrome so I wanted to say thank you for this video to represent and educate about TS also thanks for explaining how we're technically intersex as I found that interesting even though I personally identify as female

  • @TeenWolfFan1011
    @TeenWolfFan1011 Před 3 lety +115

    I had just found out my sisters unborn baby has Turners. She already has 3 sons and this is her first girl and at the moment, she is super upset. But I believe that this little girl is here for a reason and she is going to be badass like her mom! 💕

    • @kaitlindowd9564
      @kaitlindowd9564 Před 3 lety +25

      @Wolfgirl93 tell your sister that someone with Turner's agrees with you. Turner's is a part of me and I can't imagine not having it. There are challenges for sure but I am also living a great life filled with so much love and support. It doesn't hold me back and has made me super strong. I hope this helps her and I'm sure she appreciates you being the strong positive support she needs. ❤

    • @deprimentium9892
      @deprimentium9892 Před 3 lety +3

      WOW!! Keep us updated!

    • @TeenWolfFan1011
      @TeenWolfFan1011 Před 3 lety +12

      @@kaitlindowd9564 that’s right! No matter what we are going to love her. And those big brothers of hers are going to be so protective of her 💕 lol she’s probably not gonna have a dating life 😆

    • @karaigrayson8198
      @karaigrayson8198 Před 2 lety +4

      Don't worry I'm sure your niece will be OK if sure with love and support she'll get through it .

    • @bitanmandal977
      @bitanmandal977 Před 2 lety +4

      @@TeenWolfFan1011 how's she? And mom?
      And her big brothers? They're happy, right? 😊

  • @carriekayak8530
    @carriekayak8530 Před 2 lety +10

    By the way, Celeste, you're finishing statement was beautiful! You are an inspiration and amazing human. We are all different! And that's what makes humanity so exciting! 💗

  • @galeweaver790
    @galeweaver790 Před 3 lety +22

    What a wonderful, mature person! I admire Celeste's attitude toward life.

  • @MrDavidock
    @MrDavidock Před 3 lety +266

    Celeste seems so so cool. I'm sure they're a blast to hang out with.

    • @MrDavidock
      @MrDavidock Před 3 lety +28

      Also, "it's just a reflection of natural, human variation..." that was so well and eloquently put.

    • @adamburge6985
      @adamburge6985 Před 3 lety +5

      Yeah Celeste seems Kool lol

    • @FermentedZucchini
      @FermentedZucchini Před 2 lety +7

      Who is they? Celeste is one person

    • @Belerofonte64
      @Belerofonte64 Před 2 lety +13

      @@FermentedZucchini pronoun used by people who do not want to be referred as neither she nor he, like non-binaries.

    • @soupyweb
      @soupyweb Před 2 lety +15

      @@FermentedZucchini they/them/theirs can and has been used as singular and plural for a long time

  • @kaiblue9586
    @kaiblue9586 Před 3 lety +47

    It's so nice to see their family being supportive! I'm sure it's been a challenging journey for all of them, but they really seem to be doing well now.

  • @bradyhannam7931
    @bradyhannam7931 Před 3 lety +11

    I randomly clicked on this not expecting to learn this much. Not just about a condition I had never heard of but also about an absolutely lovely person!

  • @cotybare9720
    @cotybare9720 Před 2 lety +6

    My niece has TS. This was very helpful to me. It also reminds me of how blessed we are to have her at all! Thank you to all of the moms that understand that their children have worth even when they are a bit "different."

  • @modenam9046
    @modenam9046 Před 2 lety +14

    Celeste, you certainly come off as much more confident than I feel most days at 45 years old. Even though I don’t have TS, there is so much you said which I can relate to.

  • @katvelyte
    @katvelyte Před 3 lety +94

    I absolutely love their earrings. I was just watching them reflect and shine the whole time.

    • @michaelhowarth3557
      @michaelhowarth3557 Před 3 lety +4

      same :)

    • @Good-DaySunshine
      @Good-DaySunshine Před 2 lety +7

      Me too... they are reflective of her personality!

    • @katvelyte
      @katvelyte Před 2 lety +8

      @@Good-DaySunshine their* personality

    • @mrmojorising-
      @mrmojorising- Před 2 lety +4

      @@katvelyte their? But it's just her

    • @katvelyte
      @katvelyte Před 2 lety +25

      @@mrmojorising- I'm not sure how much you know about pronouns so I'll assume you're asking in good faith. Some people who don't identify as male or female would use the singular pronoun they/them (e.g. someone left their wallet behind). Celeste indicated in the video that they should be referred to as they/them, not she/her. You will notice their mother also uses they/them pronouns when referring to Celeste. So yes, they can be used to indicate speaking about a group, but can also be used for a person of unspecified gender.
      Also fun fact! the singular use of 'they' has been around in the english lexicon for longer than the singular use of 'you'.

  • @lost.in.scaradise
    @lost.in.scaradise Před 2 lety +14

    My partner is a person with ts, & I've been soaking up all the info I can find on it. This video was particularly helpful. (Plus I LOVE it when parentsof lgbtq+ kids be so supportive & use the correct pronouns. It legitimately warms my heart) Thank you!

  • @clairiebeario
    @clairiebeario Před 3 lety +11

    I was just watching another SBSK video and wondered if there was one with someone with Turners and this popped up in the search! I have Turner's too and experience(d) many of the struggles Celeste has. It's actually kind of refreshing for the focus in this video to be more on the mental health aspect. I feel there's more focus on physical treatment and the social and mental effects just don't get addressed even though those affect me more.

    • @alam5055
      @alam5055 Před 2 lety +4

      Yup. I have Turner's syndrome too and mental health struggles aren't talked nearly enough so I appreciate this interview so much. With proper medical treatment I got as a child, now as an adult I hardly experience any medical symptoms besides thyroid problems (but well, they may or may not be caused by the T.S.). However, the mental health struggle is real.

  • @kraftpunk5947
    @kraftpunk5947 Před 3 lety +45

    This man is a great man. I hope life gives him everything he deserves. You can tell he's sincere, truly cares and loves the people he interviews.

    • @artisticchilddrawing4086
      @artisticchilddrawing4086 Před 2 lety +2

      They use they/them pronouns btw

    • @kraftpunk5947
      @kraftpunk5947 Před 2 lety +7

      @@artisticchilddrawing4086 Chris does? I didn't realize.

    • @eamondo1076
      @eamondo1076 Před 2 lety +13

      @@kraftpunk5947 I think this misinterpreted who you were talking about.

    • @carriekayak8530
      @carriekayak8530 Před 2 lety +8

      @@artisticchilddrawing4086 Kraft Punk is talking about Chris. ( I had to read this a few times...)

    • @artisticchilddrawing4086
      @artisticchilddrawing4086 Před 2 lety +4

      @@kraftpunk5947 I was talking about Celeste

  • @diegocolato
    @diegocolato Před 3 lety +10

    Celeste is such an intelligent person. This is one the best videos I have seen on this channel

  • @lauriemashek5419
    @lauriemashek5419 Před 3 lety +46

    They are so articulate! Comes across as very smart with a lot of common sense. They could be a teacher or advocate for persons with physical challenges.

  • @-Vitalis-
    @-Vitalis- Před 2 lety +6

    2:44

  • @krisb928
    @krisb928 Před 3 lety +17

    Thanks for this interview Celeste! Those earrings look great on you 🥰

  • @ana.cats.
    @ana.cats. Před rokem +16

    they seem like such a nice person to be around!!

  • @mt7427
    @mt7427 Před 3 lety +11

    I think you are wonderful, you are so well spoken. I don’t think you look different. It was great to meet you.

  • @ivorellarackley4401
    @ivorellarackley4401 Před 3 lety +118

    I legitimately think Celeste is an attractive person, I love their smile and the way their eyes turn down. 😍 I think they are super cute, plus they're funny and obviously well educated! What a wonderful person

    • @aerialabby
      @aerialabby Před 3 lety +22

      Using their is confusing

    • @guildedcult
      @guildedcult Před 3 lety +40

      @@aerialabby then educate yourself.

    • @odditycat2716
      @odditycat2716 Před 3 lety +22

      @@aerialabby Well, that's the pronoun they use. So get used to it.

    • @haileycandeza-solano
      @haileycandeza-solano Před 3 lety +7

      @@aerialabby i agree. It's like "it" was possessed with a battalion of spirits.

    • @malenmimielephant5875
      @malenmimielephant5875 Před 3 lety +20

      @@haileycandeza-solano I'll possess you with a battalion of spirits

  • @anitaarnold6534
    @anitaarnold6534 Před 2 lety +6

    Go Celeste! You are so articulate and millions of miles ahead of so many other "normal" people. I loved how you described the natural beauty of biology and all of its differences. So proud of you!

  • @alxee1203
    @alxee1203 Před rokem +2

    This was very moving. Celeste is so articulate and well spoken. Which I’m sure is a lovely reflection on their parents as well. What a bunch of lovely people. It feels so good when someone can speak in an intelligent way about things I care about. What a lovely way to connect

  • @19th-Nervous-Breakdown
    @19th-Nervous-Breakdown Před 3 měsíci +1

    What an intelligent and well spoken person Celeste is.

  • @evanitschinger
    @evanitschinger Před 3 lety +14

    What a GREAT HUMANBEING - thank you both for this interview.

  • @dorothylin5145
    @dorothylin5145 Před 2 lety +22

    Wow, what a wise person Celeste has grown into. They are someone I would love to have conversations with, to just hang out and learn from. Celeste seems so cool! If Celeste reads this, thank you for sharing. :0)

  • @frogprincess412
    @frogprincess412 Před 7 měsíci +1

    Thank you for sharing Celeste's story. Im so glad they were able to find the road to recovery. As a recovering addict I can relate to them trying to mask things. One day at a time is the best advice I have gotten for recovery and life in general. The support they have from their parents is so wonderful.

  • @ca.r1334
    @ca.r1334 Před 3 lety +32

    Dude, I think what you do is awesome! You meet so many fun people, love your videos

  • @soundwavs1961c
    @soundwavs1961c Před 2 lety +13

    You should be a teacher, you are so intelligent. God bless Celeste ❤️

  • @itme999
    @itme999 Před 3 lety +24

    Celeste is lovely and I also love that their parents are so supportive. Thank you for this. 🥰

  • @zacharyhollendonner3948
    @zacharyhollendonner3948 Před rokem +3

    As a med student trying to learn more about Turner Syndrome this was very helpful. Thank you for sharing your story.

  • @diamondhead203
    @diamondhead203 Před 2 lety +4

    Wow, what an amazing, intelligent person Celeste is. How unique and interesting Celeste is and was said so eloquently….everyone is different and that is what makes life special. Love the video and the message.

  • @karlahemphill3414
    @karlahemphill3414 Před 2 lety +16

    That's exactly how I feel. Replaying in my head a social situation that I've had and then picking it apart. Like, " Why did I say this or that."

  • @savi1734
    @savi1734 Před 2 lety +9

    Celeste has BEAUTIFUL eyes. They have a fantastic canvas for makeup💖 I’m jealous lol. Celeste seems like a wonderful person and I’m so glad you gave them a chance to speak about the difficult yet inspiring experiences of living with turners syndrome.

  • @AltairScuti777
    @AltairScuti777 Před 3 lety +50

    They have such a nice energy radiating from them, I'd love to be their friend ✨

    • @alfredoaohansen7468
      @alfredoaohansen7468 Před 3 lety +6

      All of the people in the video honestly seem very nice

    • @dyrtybarstud5261
      @dyrtybarstud5261 Před 2 lety +2

      Celeste radiates such a nice energy, id love to meet them. If you are going to use pronouns use them correctly. Substituting a pronoun where a name should be used is disrespectful and fails to recognise the person.

    • @Kitkat-rl2fm
      @Kitkat-rl2fm Před 2 lety

      Does not represent most TS woman

    • @MossyMozart
      @MossyMozart Před 2 lety +8

      @@Kitkat-rl2fm - Celeste represent their self.

  • @fernandojesuscortesvalverd9359

    Viendo este canal siento emociones que me hacen sentir vivo, muy vivo...
    Por momentos siento que se me rompe el corazón y al mismo tiempo siento tanto amor y tanta...tanta fuerza...
    Estas personas son únicas y sabiendo que existen... mi mundo por algún motivo es más bonito, hacéis de mi visión del mundo algo hermoso.
    Gracias a tod@s por existir, sois inspiración para mi.
    Gracias.

  • @nincure
    @nincure Před 3 lety +10

    Good for you for kicking the addiction!! 💚

  • @damamen1
    @damamen1 Před 2 lety +5

    Beautiful interview.. you are are awesome, Celeste.Your parents are amazing as well (touched my heart).

  • @healingfear
    @healingfear Před 3 lety +10

    What Celeste said about what they hoped people get out of this interview, is exactly what I love about this channel. I also value all sweet kindness, compassion, and love I see here. Life can be hard but it's better with a friend.

  • @Wildlifesupernannyfan
    @Wildlifesupernannyfan Před 2 lety +7

    The X chromosome is replaced with extra glory for the sweetest patient. Thanks fir sharing.

  • @adamburge6985
    @adamburge6985 Před 3 lety +5

    To Celeste-
    You know what..I like you Celeste. Lol You are pretty kool. I never heard of this Turners stuff B4 but I just watched your video and liked it. It was interesting and informative. Thanks for sharing who you are! I believe God blessed you with all of your individuality and differences for a reason. Videos like these are really doing amazing things for a lot of people honestly. They are helping people. Thanks 4 that. Shout out to the producers too! ✌️

  • @charlesbrown6503
    @charlesbrown6503 Před 3 lety +5

    Celeste you ate truely beautiful. Keep up the good work of teaching peopke about Turners syndrome. Chris thank you for introducing us.

  • @Abigailbates43
    @Abigailbates43 Před 2 lety +2

    i got to admit your videos are great educational i have spent hours watching your videos and as a disabled person myself who has asperger sysdrome watching these videos has taught me alot

  • @yaborges
    @yaborges Před 3 lety +20

    I have Turner's syndrome too. Is good to know that I'm not alone

    • @kaitlindowd9564
      @kaitlindowd9564 Před 3 lety +1

      I have it too. When were you diagnosed?

    • @annelien3432
      @annelien3432 Před 3 lety +2

      Hey, I have TS aswell. Maybe you would like to join some Fb groups if you have not already? You are definitely not alone in this.

    • @alam5055
      @alam5055 Před 2 lety +2

      @@kaitlindowd9564 I have Turners too. I was diagnosed when I was 7 years old

  • @Wagon113
    @Wagon113 Před 3 lety +11

    Celeste, you are rad!! Much love from Jersey 💕

  • @vikkisloviter909
    @vikkisloviter909 Před 2 lety +4

    Celeste, you are remarkable. LOVED this interview.

  • @kristabayliss860
    @kristabayliss860 Před 2 lety +2

    What a wonderfully intelligent, insightful and articulate person. Thanks, Celeste.

  • @carolionroar
    @carolionroar Před 3 lety +10

    Really love this interview. Thanks for sharing your story with us, Celeste!

  • @catsara9114
    @catsara9114 Před 2 lety +5

    "Natural human variation" I love this expression :-)
    I just learned a while ago that my disability falls under the new term NEURODIVERSITY. And I find this endearing somehow and a little cool😄

  • @Jessica_Valerio
    @Jessica_Valerio Před 3 lety +73

    As a trans woman, it meant a lot for me to see a non-binary person included in SBSK. I'd love to see someone specifically trans like myself on this channel so people can be reminded that who we are is genetic, not socialized.

    • @annelien3432
      @annelien3432 Před 3 lety +25

      As someone with TS: most people with our condition identify as female- they actually mentioned that in the video- so I personally do not like TS being refferenced as an example for a non-binary condition. There might not even be any difference in our gender identities compared to the 46XX population at all. And, to me at least, there is a huge difference between identifying as non-binary and identifying as trans- only the former might actually be more common with TS, for understandable reasons. Also, every more complicated character trait is always influenced by genetics as well, as environmental factors interacting with each other- which of course has nothing to do with "bad upbringing" or anything like that.

    • @dogfartcatpuke3759
      @dogfartcatpuke3759 Před 3 lety +8

      @@annelien3432 she didn't say that.... also nb is trans.

    • @isetta4083
      @isetta4083 Před 3 lety +13

      @@annelien3432 you don't need any condition to be non-binary, anyone can be non-binary and any positive representation is nice for enby people

    • @annelien3432
      @annelien3432 Před 3 lety +1

      @@isetta4083 That's true.

    • @luvscats3
      @luvscats3 Před 3 lety +15

      @@annelien3432 Hey! I just wanted to clear up from the video that I was telling how I identify and my story. I personally identify as nonbinary and intersex. But that is only speaking for myself and not the TS community. As you stated most people in the TS community identify as women. I apologize if my explanation of how I understand my identity sounded like I was speaking for everyone with TS.

  • @carltondobbs5774
    @carltondobbs5774 Před 2 lety +2

    Hi Carl and Misha here!!! You are wonderful!!!! You will be great !!! Enjoy life!!!!!! Sometimes we all worry way to much about differences!!!!!!!

  • @amyandbaby7847
    @amyandbaby7847 Před 3 lety +17

    Wow they have AMAZING parents!! Parents that would actually sit there with you during your treatment, and put themselves in your shoes as an addict/ abuser is just so beautiful to me. And Celeste is such a sweet, cool soul. Def think we could hang out n enjoy eachothers company

  • @mandinixx
    @mandinixx Před 2 lety +4

    I've watched this video before but I've come back to it. My niece was born last month and just diagnosed with Turner Syndrome. I just want her to be okay. 💜

  • @Dx-Dm
    @Dx-Dm Před 2 lety +20

    Hi, I'm a newly graduated physician that happens to be non-binary (they/them). I've been contemplating going by my pronouns starting in residency and this video helped to give me some courage. Thank you!

  • @soangiewrites5639
    @soangiewrites5639 Před 10 měsíci +1

    I lost my child, Lillian Lou, to TS 13 years ago. Thank you for sharing your story, Celeste. This may seem odd, but listening to you made me feel motherly. I wish you all the best.

  • @partypoison5135
    @partypoison5135 Před 2 lety +1

    no because the owner of this channel is so understanding i love this channel so much :(

  • @sarahpilleeventing
    @sarahpilleeventing Před 3 lety +7

    They’re so well spoken! Loved hearing your story Celeste

  • @phile5437
    @phile5437 Před 2 lety +5

    Their story is great and I'm thankful they shared it. Thanks Celeste.

  • @a-sheepof-christ9027
    @a-sheepof-christ9027 Před rokem +11

    Celeste has such a cool and laid back personality. She also seems to have a strong sense of identity without any "ego". People are blessed with Celeste's presence.

    • @alistair_yippee
      @alistair_yippee Před 7 měsíci +1

      i’m fairly certain they actually use they/them pronouns but other than that i definitely agree with what you’re saying.

  • @missy7613
    @missy7613 Před 2 lety +2

    “I’m always down for a new friend.”
    Celeste you are awesome!!

  • @johnfisher5363
    @johnfisher5363 Před 2 lety +3

    Thanks for educating me on Turners. You are a wonderful teacher!

  • @runninggirl2765
    @runninggirl2765 Před 2 lety +3

    I've researched quite a bit about ks, so didn't see anything surprising, but wanted to see how the family was approaching it. Mother is gorgeous inside and out!

  • @chelseabaylor3475
    @chelseabaylor3475 Před 3 lety +7

    Brava/Bravo! Celeste, you are an intelligent, thoughtful, determined person. You handled that interview with remarkable poise and aplomb. It was a pleasure to watch you and your parents. (PS, the interviewer was pretty good, too :-) )

  • @allip7295
    @allip7295 Před rokem

    Celeste, Glad you felt comfortable Sharing your Story 💖 I also have Turner Syndrome, and ended up taking Growth Hormones from 5th-8th Grade. And, as you mentioned, Support and Learning to become Comfortable with who you are as a Person really helps! We are actually about the same height, as well!!

  • @marmor5930
    @marmor5930 Před 3 lety +4

    Thank you Celeste for sharing your story. I admire you.

  • @NeonSolo
    @NeonSolo Před 2 lety +10

    I love Celeste, omg they're such a beautiful person!

  • @lourdesarguellesjimenez8242

    Qué interesante entrevista sobre este síndrome aún desconocido por la mayoría de la gente. Qué bien que Celeste se ha superado y sobrellevar con valentía y conciencia este proceso.

  • @CB-vg1wq
    @CB-vg1wq Před 6 měsíci

    I have watched this video so many times because I enjoy listening to Celeste speak, they is so well spoken. I enjoy the optimism, too. Have a great day, Celeste!

  • @putthecandleback9
    @putthecandleback9 Před 3 lety +6

    What an amazing family, alot of love here ❤️

  • @spacebeanstudios7979
    @spacebeanstudios7979 Před 3 lety +20

    They seem really cool and sweet, they don't look different to me at all.
    Just be yourself, don't worry, if you have a disability or anything, you are awesome the way you are !!!

  • @jazzyflorida3757
    @jazzyflorida3757 Před 2 lety +1

    Great video, I had no idea about Turner syndrome, but I’m sure I’ve met some. Love mom & dad, so loving and compassionate in their responses ❤️ thank you for sharing, the universe had special plans for you… and here you are living your truth ✨✨✨✨

  • @Didsomebodysayslay
    @Didsomebodysayslay Před rokem

    I really wanna thank everyone who's in charge of making the show and all the guests as well , this is really helpful for me as a medical student to understand these syndromes more

  • @hosseinfattahi5540
    @hosseinfattahi5540 Před 2 lety +3

    "It's a beautiful reflection of how different each person can be"...

  • @carolnorton2551
    @carolnorton2551 Před 2 lety +3

    Fascinating and educational interview, I have learned a lot from Celeste.

  • @conlon4332
    @conlon4332 Před 11 měsíci +1

    I've always been interested in intersex conditions, so I've known for a while that this was a thing. But I'd never actually heard about it from the perspective of someone with the condition, so this was really interesting and nice to hear about. There needs to be a lot more awareness of the fact that not everybody quite fits "male" or "female" and that's natural. I know humans love binaries and organised boxes, but reality is so much more complicated than that, so a lot of the time those boxes aren't quite accurate. I know uncertainty and complexity can feel uncomfortable, but it's better to accept the complexity of reality and be uncertain about things, than to feel certain and be wrong. That is important for how we perceive the world in general, but it's especially important for how we perceive people, because people have feelings and if we pretend they don't exist because it's similar or easier, that hurts people. We need to learn early on that life is not black and white, and for almost everything you learn there's an exception. Learning that early on will set people up for success in their own lives, and acceptance of others who are different.

  • @gothrockfairy
    @gothrockfairy Před 2 lety +6

    I would love an update on Celeste and how they are doing :)

  • @morganelliott1484
    @morganelliott1484 Před 2 lety +2

    I have turners! Mosaic Turner syndrome (I have both Xs but one isn’t normal) I have a masters, and I’m currently teaching English at a couple colleges! One thing that helped me growing up was going to a camp where I met other turners girls. I’m still learning a lot about how it impacts my health as I’m getting close to my 30s. Love this! One interesting thing I’ve found is every turners story is different, so this is really cool!

  • @lacyboltiador6370
    @lacyboltiador6370 Před 3 lety +7

    My favorite cousin has Turner Syndrome. She is such a fighter!

  • @Marilynefc
    @Marilynefc Před 28 dny

    I always love these videos. They speak so elegantly