A Reason for Hope
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- čas přidán 2. 12. 2013
- Over 1 million Americans are living with an incurable condition that can only be treated with brain surgery. It's called hydrocephalus and it's caused by a build-up of fluid that puts pressure on the brain. Anyone can get hydrocephalus at any time. "A Reason for Hope" features three vignettes of hydrocephalus, illustrating the different populations affected, diagnoses, and treatment responses.
Help the Hydrocephalus Association fund critical research to find better treatment options and a cure and support the individuals and families living with this condition. To learn more about hydrocephalus and the work of the association, visit www.hydroassoc.org or call 888-598-3789.
who the heck is the one person who disliked this video? Me I like this video it definitely reassures me that I'm not alone dealing with this condition because I have had this condition my whole life(25 yrs.) and it's not been easy. I mean in my case it's extremely rare cause I haven't had surgery for my shunt in 25 yrs. since it was placed when I was born. I'm thankful to God but I always have to be cautious and stay aware cause those with hydro never know when the next shunt malfunction or infection is gonna be so I'm counting my blessings everyday that I don't have an infection or malfunction with my shunt.
I hope I find a guy as nice as Andrew!💕
To those who are disliking this video and videos like this I'm guessing either don't know someone with the condition (ie family member or close friend) or they don't have the condition themselves.
I have hydrocephalus but I only had one brain surgery, I hope they live great lives
Same here got a shunt and a tube and going strong for 28 years since my surgery
@@Bearodon I'm 28 I need surgery I have weird symptoms I know it's a malfunction waiting for the doctors to know that. I'm praying you a good life
@@Bearodon you’re very lucky! I’m 31 and I’ve had over 40 surgeries
My baby was born premature at 33+6 weeks and have hydrocephalus. He is 3 months old but corrected age less than 2 months. He had shunt surgery three times in one month, my heart breaks everytime I think about it. He has been more in the hospital because of those surgeries. We live in Finland and there isn't much awareness about this condition. His father worries and stresses for the future of our son and we really hate to see our baby suffer. He's doing well now because he's been with us for few days at home. We are now helping him reach milestones. I'm hoping that there would be a cure in the future and everyone living with this condition can be completely free.
How's your son now ?
Thanks....
Is it possible that an EEG could be misread as epilepsy when it actually indicates NPH?
Two of my sons were born with this. One died in 1992, the other (a twin) just turned 28 yrs old. I am interested in the causes of x-linked
I live in North Jersey. Diagnosed with HYDROCEPHALUS about 4 years ago and a shunt was surgically implanted. Can anyone refer me to a qualified doctor in North Jersey?
Nice 👍
We may find a cure, but will it be affordable?
i dont see the lump from their shunts like mine has always been...
SweetBrwnSuga Actually, Jen has some pretty intense scarring and think scalp from her shunt being revised over 100 times but wears a hairstyle that makes it not as visible. Tanzanea has a scar on her forehead that you can't see in the video. Sometimes you see the lump, sometimes you see the tubing, and sometimes you don't. It can just depend on the person and how the shunt was placed.
SweetBrwnSuga I have a lump too but my hair hides it. I remember after my last surgery they had to shave a lot of hair because I began leaking and that fluid became infected so they wanted all the “affected” hair gone you could see EVERYTHING. But it really just depends on your hairstyle like the hydro association said.
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I have hydrocephalus my primary doctor has said it mild to moderate. I get headaches, dizzy, I can't control my bladder, my arms and legs go numb sometimes. I feel the pressure on my brain. I was born premature. Pain medicine doesn't help with my headaches. Do you think I'm gonna need a shunt?
Sherae Guerrero you may want to consult a doctor. Better to be safe than sorry
As great as the HA is and the awareness and support they bring, as well as Dr. Williams being truly elite, it is sad to see Jennifer publicly discuss a pending marriage that ultimately failed. But also keep in mind she is the "education manager" yet has no post-secondary education apparently based on the HA bios that clearly indicate all of those who do and she is not one of them. Also consider that this organization is hopeless bloated - they are up to 20 full time staff now thus much of the revenue they must generate has to pay for this excessive staff. And of the 20 staff, about 6 appear to be full time fund raisers. Then also consider that of the 20 staff, 18 are women. The reverse would never be tolerated.