Amanda Breem's Journey with Hydrocephalus
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- čas přidán 23. 03. 2016
- After struggling for 16 years with hydrocephalus, Amanda is introduced to Dr Fried who soon changes her life.
In this video, Amanda Breem shares her journey with Hydrocephalus and the exceptional level of care that she received from Advanced Neurosurgery Associates (ANA) in New Jersey.
For more information on hydrocephalus and ANA, visit www.ana-neurosurgery.com/hydro...
My daughter had hydrocephalus. She had 3 brain surgeries. Now she is an assistant professor.
Hi Amanda,my name is Jason. I have had congenital hydro since birth and I am now 41,and I have had 5 brain surgeries plus another to remove a tumor from my ear canal. I also didn't know anyone with my condition and felt isolated. Your story is amazing. God Bless You
Are you leaving a normal life
Jason I am 28 I have hydrocephalus I have balance, sight, hearing, anxiety depression and I'm pretty sure it's a blocked shunt it's 7 years old the tubing the pump is 19 years old. I am so glad others have this too I feel better knowing I'm not alone. I love y'all this is scary sometimes like rn this is debilitating sometimes. I hope they do surgery soon and get the ok to. It's been 4 months since the symptoms started and the progression is getting worse. Jason I wish and pray that you have much happiness and a beautiful life. Thank you for your story and take care. Oh yeah and that's another thing through this I was sinning alot with girls and drinking but now that this happened four months ago all I want to do is call on Jesus and show others love and tell them they are loved and to cheer up if they are down. I have a Joy that I was always looking for. God works in mysterious ways, and I was lost but I'm found. We are only here for a blink of an eye compared to eternity in heaven so every second here should be worth it and for Jesus. Satan can't win I am yours Jesus!!
I was born with congenital hydrocephalus in September of 88 including 2 shunt revisions within my first 30 days of my life and have had 4 additional shunt revisions since then with..my latest shunt revision bring on July 1st 2010.
Amanda, your story is so inspiring and uplifting! Good for you for talking out about your condition and inspiring others. You are an amazing young woman!
This hits so close to home to me I was born with hydrocephalus due to being born so prematurely my consultants and surgeons were amazing during my surgeries for it couldn’t be more thankful 🙏🏻
Inspiring. I got my first shunt when I was 18, in 1984, and have had 23 shunt revisions since then. The recent three-back-to-back in March & April, 2023.
So happy to hear you are doing so well with your hydrocephalus.Your story is so inspiring.I also am doing very well with my hydrocephalus thanks to Dr. Adamo at Albany Medical center.
My baby hydrocephalus
Hi Amanda you are an incredible young lady. My name is Zachary Ellis. I was born in 1990 and I was diagnosed with Hydrrocephalus at 3 weeks old and had my first Neuro Surgery then. I had a shunt put in. I had many many problems such as being up every night sick up until I was 10 years old. In February of 2001 my Shunt failed and I had to have a 2nd surgery to get another Shunt put in on the opposite side. I had to have a 3rd surgery about a week later due to my new Shunt as it become blocked and surrounded with fluid. Luckily since 2002 I haven't had to have any more Shunt surgeries but I still have problems that I am trying to manage with medications such as seizures and balance problems. My Neurologisy isn't 100% sure if my shunt is still working properly but the medications help alot. Throughout school I was in modified classrooms and had incredible teachers. Take care and I hope you are doing well.
I Had surgery for a brain Tumor at age 2 and a half. I can relate to your story.
I have hydrocephilous i was born 1 pound 11 ounces i was born blind but a army eye surgeon fixed my eyes i have a vp shunt i had my last revission when i was 11
I will be 50 in July, and have had a shunt my entire life.
مشاءالله كيف صحتك كيف امورك هل عيشه حياة طبعيه
Hi I've had a shunt since I was 11yrs old and I am 39 years old now. I haven't ever had to have it replaced. About 2 years ago I found out that the tube has disconnected itself and they said there was no trace of fluid on my brain. And they can't tell me when it may have disconnected itself. Have you ever had to have yours replaced??
Hi Amanda. I was born with Spina Bifida Hydrocephalus. I have a VP Shunt.
what did ANA do differently to the previous 15 neuro-surgeries???
Why did she have surgery in multiple locations so far apart? Did her family move and just require a new neurosurgeon or did she actually travel for the surgery? I'm in my 40s. I was born, went to college, and had 5 shunt surgeries for hydrocephalus all within 1 mile of where I currently live. Ok, I actually grew up in a suburb of Detroit, but now I live in the city back where it literally all began for me.
The piano in the background is really distracting. This video clip would be better without.
Hi
Hi mam
@@mattasowjanya9798 my daughter is 4 yrs old, having shunt from birth, pls suggest any good Dr or suggestions from your side
By the grace of God, However she is doing absolutely fine..
@@nirajkumari1153 I took treatment from sai krishna neuro hospital kachiguda mam
MALTEASERS.
DR SIAN MORRIS.
MALTEASERS.
DR SIAN MORRIS.
MALTEASERS.
DR SIAN MORRIS.