MDS Survivor: Cindy Sargeant
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- čas přidán 23. 08. 2018
- "I was scared to death," says Cindy Sargeant. Watch interview from her garden, where she describes her MDS journey from diagnosis to clinical trial to survival!
If you need a word of hope or encouragement, this is for you.
#MDS #myelodysplasia #MarrowStrong #AAMDSIF
Very Informative and helpful story....and definitely a blessing!!! God Bless you! AND God Bless your physician and medical team!
Amen!! GOD BLESS YOU 🙌🙏
Congratulations! My good friend was diagnosed with MDs after chemo for breast cancer. She underwent two bmt and NK cell therapy. Nothing has worked. I wish we could find something consistent and be more careful with chemotherapy that probably caused the MDs. You haven’t fixed anything by causing something else just as bad or worse.
We are so sorry to hear about your friend. Please feel free to reach out to our Patient Services at help@aamds.org if you have other questions, we are happy to help.
Hello, my mom was diagnosed with this two years ago maybe she had it way before that! She is taking antibiotics but the doctor said she still doesn't need to take vidaza. She is doing okay but she has some infections and she gets tired sometimes. I want to know if she is in a serious conditions even though the doctors say she isn't and she is doing good!
Hi Sarra - thank you for reaching out to us. It's always a good idea to get a second opinion with MDS. A second opinion can provide another perspective on how to treat and manage the disease. It can also ease the patients and families mind everything possible is being done for the patient. Make sure she is seeing a doctor that specializes in MDS. Use our map of specialist to help you find an expert near you, www.aamds.org/patients/find-a-specialist. If you would like to receive a patient MDS toolkit, please email harper@aamds.org.
my husband was just diagnosed and his oncologist wants him to go through chemotherapy. Is that a normal treatment? He said by pushing the cancer into remission he can then get a bone marrow transplant. I dont see how chemo can work. Please answer asap! Please!
Hello, Kat C,
We are sorry to hear about your husband's diagnosis. Most patients undergo a pre-transplant chemotherapy regimen. It would be best to ask his treating physician and transplant team for answers to your questions; they can best help you understand the transplant process. You can also contact our Patient Advocate at help@aamds.org or call (800) 747-2820, option 2, during business hours.
I was just diagnosed with MDS yesterday, I’m 48 yrs old and I am not sure what I am in for. Is that drug available in the U.S. if i face the same outcome?.
Thank you for reaching out. Revlimid is available in the US for MDS patients. Here is some information you will find helpful about Revlimid, medlineplus.gov/druginfo/meds/a608001.html. Each patient's response to treatment can be different. Your medical team will help you with making the treatment decisions that are best for you.
For other information about MDS, please click here: www.aamds.org/diseases/mds
Hi. Greetings from Lima, Perú. This story is really encouraged. Would you please tell me which was the clinical trial that she took in 2013?
My mon is 65 years old and has MDS for about 8 month. She took azacitidine VIDASA for 5 months but the doctor actually stop this for a new studio of cells marrow, apparently it did not worked. Three months ago, the cariotype result was 47, XX,1qh+,+8[19]/ 46,XX,1qh+ [ 04 ].
Thank you for writing, Carla.
We don't have any physicians here, so we can't address the data that you list. Cindy mentions the drug Regosertib. If you are looking for clinical trials currently enlisting patients, please visit clinicaltrials.gov or visit a similar site in your country. All the best to you and your mom!
God Bless your mother!Praying she will pull through nd enjoy life!!!
How is Cindy doing today?
Cindy is doing great!