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Have my volume as high as possible but can barely hear the presenters

Thank you for sharing this information. I just got diagnosed. I'm 64 years old and I have stage 4 lung cancer and ms. I hope 🙏🏼 I can beat this! This is my 5th time fighting cancer. I am trying to learn as much as I can to fight. I read that the bone marrow transplant could heal MDS and stop the progression of MS. Do you agree with these findings? Thank you for your time and services. ❤️🙏🏼✝️

Excellent presentation!

Just now starting to learn more about my disease outcome is not good but gives me time to prepare for my lord and Savior thank you God for your mercy amen 😊

I am also PNH,diagnosed in 2006.FROM INDIA GUJARAT STATE

mi mama tiene esa enfermedad y empezo con lenalomida y tuvo reaccion alergica ahora esta tomando azacitidina tiene 85 años y le hacen transfuciones pero nonsube su hemoglobina es la tercera vez que le ponen espero que funcione tiene sindrome mieledisplasico areb 2

My dad has this cancer and we just found out. This is going to help me be a much better support system for him to understand and ask questions as I come with him for treatments. Thank you for this presentation

What will be the treatment for hMDS del 20q?.please suggest me.l am 66yrs old

Hi Rohail, Thank you for sharing your experience. AA.MDS is there any AA community that we can join?

informative summary, thank you

Buenas tardes soy de perú, mi hijo de 12 años tiene ese diagnostico, realmente aquí no hay mucha información sobre esa enfermedad en niños, actualmente el está en tratamiento con romiplostim ( sus plaquetas se mantienen en 100k , 105k con el medicamento ) y hierro (se mantiene en 11) a mi me gustaría obtener mayor información, le agradecería.

What wiil be the trratment for hypo plastic MDS del20q

My husband (74) has recently been diagnosed with Severe Aplastic Anemia. He has been in the hospital for 5 weeks now and is starting a drug treatment of Promacta, Clyclosporine and ATG.

Gracias por la informacion me diagnosticaron mielodisplacia hace poco más de un año me tratan con eritropoyetina de 10mil /u y filgastrin. Saludos desde Argentina

Hello... Doctors Say my 8 yo son have obliterans bronchiolitis...they do CT and bronhoskophy...he have no any signs... No cough etc..he can run and play with other kids.. is there chance he dont have

My daughter went to the ER 9 days ago. She has been in the hospital ever since. Two days ago she was diagnosed with AA and PNH. She is 33 yrs old. :'(

🥳

My little brother has just been diagnosed, any way Ican get helpç

Excellent presentation

tweezers & histology / cytology. hail the lord !

My daughter has it my son has passed and my other son has health issues. The town where we live had a mill that made telephone poles and the toxic water they had as infants. Can this cause aplastic anemia?

My daughter was admitted to the hospital because of her urine was black she w is yellow and her hemoglobin’s were 4.3 and with her diagnosis her California insurance changed and the only doctor in LosAngels don’t accept her insurance no longer. She has severe aplastic anemia. She also has a rare blood type. She is 35 7 children on experimental trials. Now her kidneys took a hit her liver and she is quickly dying now so this is a stretch for me to ask “ Is there any doctors that will accept her type insurance medi cal that is a specialist in aplastic anemia?

The empathy that is seen in these healthcare providers are remarkable, so glad they are part of the health care system here. Thank you for this very insightful discussion and sharing your experiences

After 10 months of Eltrombopag my family member’s PNH Clone went from 87% to 5%! But the clone is back up after stopping Eltrombopag. Where can we report this?

Thank you for sharing this presentation. the information is most helpful.

My husband was diagnosed with Multiple Myeloma on his 70th birthday last July. He got a stem cell transplant to give us more time. He's actually doing well. Numbers coming up nicely. This cancer has no cure but they are surely saving his life, and giving us more time. We've been married 45 years, I'm not ready! God bless you and all you help. We are seeing the top Oncologist in Dallas, giving us more time, spectacular. We are secluded for 90-100 days, making sure he doesn't catch any infection, so far so good!

Buenos días saludos desde cumaná estado Sucre Venezuela me diagnosticaron con esa enfermedad, tengo 14 años es desesperante pero gracias por todo la información es muy buena..

Any aplastic anemia experts near Columbia, MO?

Hello, My mother has been diagnosed with MDs/ MPN overlap syndrome. She was on Viadza for a year and half no longer working. Can she try anything else. Open to clinical trials.We are desparate. We live in canada.

Thanks Dr. Arellano. Your clear structured presentation and deep expertise are really valuable.

What food is good for bone marrow

To com essa doenca descobri a 2 meses😢

What a wonderful man, so dedicated and comforting for his patients.

What about the patients children for getting stem cells for transplants?

Good talk, helpful for Beginners

Thanks a lot! Dr. Arellano, you are amazing!

How is the cost like?

If you had an AML patient with mutations IDH2, SF3B1, ASXL1, NPM1 and a history of heart disease would you choose low intensity chemo with a menin inhibitor or high intensity chemo with a menin inhibitor?

great video, thank you

Great

Anyone can donate me azacitidine

my husband was diagnose with pnh,we are from philippines,

MY HUSBAND WAS DIAGNOSE WITH PNH 🥺

My brother is diagnosed with PNH in India. The family is very much scared as he is just maried and have a small child. What should we do?? He is also not having any insurance coverage.

Thank you

Please note your Mike is off

Thank you

this is an awesome and comprehensive explanation of AA thank you.

I had an allogeneic peripheral blood HSCT in July 2016, same gender, same blood type, 10 out of 10 HLA match. I have had chronic GVHD ever since the procedure; due to what I believe was mismanagement by multiple oncologists/hemotologists. My quality of life has been very difficult and caused me to go through my savings, sell my farm property, and I am still struggling with this GVHD condition. The only relief I have had and positive reduction in the symptoms were with IV mesenchymal stem cells (MSCs), and exosomes. This type of treatment is not available in the US and not covered by insurance. There have been many clinical trials investigating this type of treatment (MSCs) with the conclusion stating that more and better controlled clinical trials should be conducted. With the damage done by chemotherapy and the resulting acute & chronic GVHD, these regenerative treatments should be available to the cancer patient that survives. One aspect not covered in this presentation is the role that hemochromatosis would have in exacerbating chronic GVHD, morbidity, and mortality in SCT patients. I would suggest that blood assays be done for patients that have undergone multiple red blood cell transfusions for ferritin levels. It might be good to test for the genetic predisposition of an individual HSCT patient to see if this is present. High ferritin levels exacerbate chronic GVHD, and could be present if the patient had multiple red blood transfusions or has the gene for hemochromatosis. IMHO over 45 years of doing SCT and the ability to mitigate GVHD is still not solidified. The use of mesenchymal stem cells and exosomes has not been pursued in the same interest as in a pharmaceutical solution. I was put on Rezurock, and after 30 days developed severe musculoskeletal pain such that I had to discontinue the medication, and I believe it damaged my thymus.

Hi sir, my 7 mons baby boy is just diagnosed prca. Is it curable i am so worried. Feel dying 😭 his physical conations including feeding and weight is normal.