Brain Tumor Awareness | Lovelynn's Story

Lovelynn , a brain tumor warrior, had a love for her culture, music, and art. She was non-vocal but communicated through cues and had a sassy personality. The initial symptoms that something was wrong included raspiness, difficulty swallowing, and vomiting. Despite multiple visits to the doctor, Lovelynn's symptoms were dismissed as reflux and allergies. It wasn't until a head CT scan that a tumor on her brainstem was discovered. Lovelynn underwent treatment in Denver, including surgery, chemotherapy, and radiation. She had a strong support system and her family still finds comfort in the little things she left behind. Kaylene reflects on the strength and resilience they gained from their battle with cancer and the loss of their daughter, Lovelynn. They learned to be stronger for themselves and hide their pain and sadness. Lovelynn was determined to keep a positive attitude and not let others see her down. In her last days, she danced and spent time with her sisters, trying to be present. Kaylene and her husband had to make difficult decisions about end-of-life care and set boundaries to honor Lovelynn's memory. They kept her belongings and created a quilt as a way to hold onto her presence. The conversation explores the different ways grief can manifest and how it can change over time. The speakers discuss the importance of support and finding ways to remember and honor their loved ones. They also share advice for parents navigating the medical system and advocating for their children. The conversation highlights the need for continued support after a child's passing and the importance of building relationships with healthcare teams.

[@christinakoch2738]

Sweet girl! ❤ I’m so sorry for your loss!

[@christinaanguiano5377]

Thank you for bringing awareness to this topic. Your daughter had a beautiful spirit and name to match!

[@alorablesports4695]

What a beautiful girl

[@anasedeno5917]

What a beautiful name ❤❤