Coralfully
Coralfully
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Brain Tumor Awareness | Cameron's Story
In this conversation, Coral interviews Cara, the mother of a brain tumor warrior named Cameron. Cara shares Cameron's story, including his diagnosis and treatment journey. The conversation highlights the importance of advocating for your child and trusting your instincts as a parent. Cameron underwent brain surgery and made a remarkable recovery. The pathology results revealed that he has an ependymoma, specifically a PFA ependymoma, which is the most aggressive type. The prognosis for this type of tumor is around a 64% survival rate. However, Cameron's tumor came back balanced, which is a positive sign. He also underwent radiation therapy to improve his prognosis. In this conversation, Cara Sarubin shares her experience as a caregiver for her son Cameron, who was diagnosed with a brain tumor. They discuss the challenges of treatment, including surgery, proton radiation, and the decision not to pursue chemotherapy. They also talk about the impact of the diagnosis on the entire family, particularly Cameron's younger brother. Cara emphasizes the importance of being an advocate for your child and seeking support from the pediatric cancer community. She also highlights the ongoing uncertainty and fear that comes with living in the aftermath of a brain tumor diagnosis.
zhlédnutí: 1 383

Video

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zhlédnutí 2,2KPřed 2 měsíci
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Komentáře

  • @lindseyrodriguez2600
    @lindseyrodriguez2600 Před 11 hodinami

    This really breaks my heart

  • @sherrymcclure1049
    @sherrymcclure1049 Před 5 dny

    You’re so right about hospice. They are angels in human form. Truly sorry for your loss

  • @elsiealvarodriguez8014

    I may not know from a mother's perspective what it's like to lose a child to brain tumor, but I do understand from a sibling perspective. My brother was 5 years old and I was 8 at the time. I don't know how my parents were strong enough to continue. I admire them and you guys for being so strong. As a sibling it hurt and it was hard to understand. Wish my parents took us to therapy because the reality of death hit me so hard that I struggle with till this day.

  • @amanda2825
    @amanda2825 Před 16 dny

    So very sad but also confused as to why she keeps refering to ger as a teenager when she was 10. Thats quite a ways away from a teenager

  • @rds1233
    @rds1233 Před měsícem

    Thank you for bringing awareness and for this series. You are a beautiful soul, Coral. I’ll continue to donate and support until we find a cure. Around 8 mins 42 sec, that was a great point about being an advocate. Thank you for bringing awareness and educating

  • @kathrinefeinstein2595
    @kathrinefeinstein2595 Před měsícem

    How amazing. You are an amazing mom. Keep up the great work

  • @ashleyflunker4389
    @ashleyflunker4389 Před měsícem

    You are the best Mom Coral! It fills my heart to see you smiling! You deserve all the happiness♥️🫶🏻

  • @christinakoch2738
    @christinakoch2738 Před měsícem

    I’m thinking of and praying for you both ❤️

  • @user-my7ic8xv3t
    @user-my7ic8xv3t Před měsícem

    As a former oncology nurse, when I see or hear other people complaining about the little things in life. I remind them, “somewhere there’s a parent fight for a child with cancer, someone who’s just lost a loved one….” Today, people complain about the silliest things and to hear the courage and bravery of these young mothers talking about their journeys should make everyone pause and appreciate every moment, even the minor inconveniences of life and use that time to stop and pray for these children and there families. Praying for a miracle for this beautiful Charlie and her family. 🙏💜

  • @gabrielhermano7758
    @gabrielhermano7758 Před měsícem

    I like his eyes above in his forehead

  • @christelmahieu5114
    @christelmahieu5114 Před měsícem

    Please pray for Charlie, Taylor and her family. They had negative news on the scan .....

  • @StarMagicProductions
    @StarMagicProductions Před měsícem

    Taylor Meza is a HERO.

  • @cheezycat68
    @cheezycat68 Před měsícem

    Poor kid

  • @kathrinefeinstein2595
    @kathrinefeinstein2595 Před měsícem

    😢😢❤❤❤

  • @madison.bodorrr
    @madison.bodorrr Před 2 měsíci

    im 15 and had a total resection of a group four medulloblastoma in December. I also had posterior fossa syndrome. This story makes me so sad. No child should have to go through this. Realizing that I'm not alone with this, I'm fighting and fighting hard, and seeing this from a mothers perspective is so eye-opening

  • @madison.bodorrr
    @madison.bodorrr Před 2 měsíci

    i am very grateful that my medical team immediately sent me in for an MRI. I've heard horror stories of how the doctors sent their kids back saying it was a virus. I went into my doctor around December 8th looking for the cause of my off balance walking and head pressure. My pediatrician immediately scheduled an MRI for the following week. I went in for the scan December 13th and i was complaining to my dad bc i didn't want to be late to school, and they took me back and i remember they had a mirror on the cage that goes over your head so i could see the ppl doing the scan, and there was atleast 5 ppl. They came in and grabbed me and told me to change and sit w my dad, i immediately knew smth wasn't right. I came out and my dad was sobbing and he told me "they found smth" it was a group 4 medulloblastoma. my life hasn't been normal since

  • @jennifervirgo4692
    @jennifervirgo4692 Před 2 měsíci

    Such a ugly story told so beautifully, Charlie will get her miracle!!! Speaking positivity and grace over her now and forever. And on a side note Taylor is so pretty, she reminds me of Drew Barrymore. Coral you are always a beautiful bright light as well, thank you for sharing

  • @christinakoch2738
    @christinakoch2738 Před 2 měsíci

    Sweet girl! ❤ I’m so sorry for your loss!

  • @christinakoch2738
    @christinakoch2738 Před 2 měsíci

    Hugs to both of you! 🤗🤗🤗

  • @nutrirebyanaluarrivillaga2646

    Charlie is a light for sure… and so are you momma! ⭐️

  • @nancynalepinski8705
    @nancynalepinski8705 Před 2 měsíci

    Incredible interview! I love Taylor and Charlie, and pray to God for continued health for Charlie girl. 💓

  • @1077kris
    @1077kris Před 2 měsíci

    Here for Taylor & Charlie

  • @christinaewing2425
    @christinaewing2425 Před 2 měsíci

    What a great story glad Charlie is doing so well God has this and her fully she will beat this ! can I ask what hospital is this my sister was diagnosed in April with Gbm Google it and she needs a good hospital if she may change hospitals she starts Oral chemo med may 30th with radiation thanks

  • @hissweetestsin143
    @hissweetestsin143 Před 2 měsíci

    Love you Taylor! Lunas mom is so right Charlie is so strong because of YOU she feeds off of your energy and shes fightingfor you because you are showing her that she can! We love you so much!!

  • @twinmomma2116
    @twinmomma2116 Před 2 měsíci

    I pray for total and permanent healing for Charlie. Where can we follow her journey?

  • @erica_0612
    @erica_0612 Před 2 měsíci

    Cancer moms are phenomenal, and these two women are prime examples of that. My heart is with them and all families going through what nobody should ever have to go through.

  • @sandygibbsbutler6461
    @sandygibbsbutler6461 Před 2 měsíci

    Beautiful interview, Taylor. Thank you Coralfully for doing this.

  • @Mz.Chingona619
    @Mz.Chingona619 Před 2 měsíci

    Another CK mom here! 😢 I was crying right a long with you warrior mamas!!

  • @christinaanguiano5377
    @christinaanguiano5377 Před 2 měsíci

    Thank you for bringing awareness to this topic. Your daughter had a beautiful spirit and name to match!

  • @anasedeno5917
    @anasedeno5917 Před 2 měsíci

    What a beautiful name ❤❤

  • @alorablesports4695
    @alorablesports4695 Před 2 měsíci

    What a beautiful girl

  • @rishacrow99
    @rishacrow99 Před 2 měsíci

    its a great song

  • @renaissancereasoning895
    @renaissancereasoning895 Před 2 měsíci

    Thank you for sharing your journey. I pray that you both find peace and comfort in knowing that you are not alone. I want to share my journey from England ❤❤🙏🏿🙏🏿

  • @River9900
    @River9900 Před 2 měsíci

    Hello Coral! I´d love to hear also the story about your Luna, in the way your doing this interviews, big hugs

  • @VivianArenas-oh4gg
    @VivianArenas-oh4gg Před 2 měsíci

    What’s the name of her shop

  • @nancyruvalcaba1520
    @nancyruvalcaba1520 Před 2 měsíci

    I lost my son Emilio to this exact tumor year ago. He passed away on St. Patrick’s Day. One month before his birthday. To hear you guys speak and how similar things spiraled for us. Broke me yet gave me a peace of mind because there is much guilt we go through blaming ourselves. My son was so full of life always dancing and after his chemo 2 months after the cancer returned and took my sons light away. He couldn’t speak or walk 11 days in the hospital two days at home and just like that he was gone 💔 thank you for sharing these stories and spreading awareness. #EmilioForeverStrong ♥️🙏🏼🦖

  • @e.c.1975
    @e.c.1975 Před 2 měsíci

    I really hope that they find a cure for cancer. I lost a close love one from it so I can’t imagine my own child. Please continue to educate people on what they can do in order to help children with cancer. You two were amazing mothers and I’m sure your children were grateful that you guys were there every step of the way and never left their side.

    • @ClumsyPlant
      @ClumsyPlant Před 2 měsíci

      They supposedly have one but don’t want us to have it

  • @marcoantonio7983
    @marcoantonio7983 Před 2 měsíci

    Me hace recordar cuando mi hermanito murió de cáncer perder un ser querido es un dolor que no se le desea ni a tu peor enemigo

  • @cristianasaras6898
    @cristianasaras6898 Před 2 měsíci

    Coral you are doing a wonderful job of bringing these babies stories to light I’m so sorry for both of your losses my heart is broken

  • @lindseyrodriguez2600
    @lindseyrodriguez2600 Před 2 měsíci

    This is so Heartbreaking

  • @Jennifergaray-cl1wi
    @Jennifergaray-cl1wi Před 2 měsíci

    You a good mom blanca

  • @ZenithZephyr-8
    @ZenithZephyr-8 Před 2 měsíci

    You look beautiful..infact more beautiful after the buzz.. you seem like the reflection of the divine feminine❤.

  • @kendramaple912
    @kendramaple912 Před 2 měsíci

    I admire how brave you both are for sharing your stories and spreading awareness about this type of cancer. Shedding the tears and really feeling the struggle. I learned so much and am hopeful for more awareness, funding, support, and options for families faced with children diagnosed with DMG, DIPG. <3 "I have this hope in the depth of my soul." -Tenth Avenue North

  • @meganemerson7919
    @meganemerson7919 Před 2 měsíci

    Thank you both for sharing your stories.

  • @ElettraMazza-fx5pb
    @ElettraMazza-fx5pb Před 2 měsíci

    💖🌙 i will never stop sharing awarness of this

  • @alorablesports4695
    @alorablesports4695 Před 2 měsíci

    Love to hear you talk about your babies ❤

  • @meganemerson7919
    @meganemerson7919 Před 2 měsíci

    Keep it up coral you’re amazing

  • @ronmiller7910
    @ronmiller7910 Před 4 měsíci

    I'm sorry for your loss. There's not much I can say to help the grieving you're going through because nothing really helps when a child passes. My son passed 4 months before his 6th birthday from a PNETumor cancer. I completely agree more change is needed. I was told by a rep at American cancer society point blank that a majority of funds go to breast cancer patients. And that just a tiny amount goes to brain cancer. Please don't think I'm not fully aware that any type of cancer is horrible. But, the money should be provided differently. Not only for research but to help the families that are affected.

  • @sourceguidancebychrissy
    @sourceguidancebychrissy Před 5 měsíci

    YOU ARE THE BEST MOM IN THE WORLD. NEVER ALONE. SENDING ALL THE LOVE TO YOU AND FAMILY. MY HEART FEELS SO DEEP FOR YOU AND I HOPE ONE DAY YOU WILL HEAL FROM THIS WITH BABYGIRL GUIDING YOU AND LOVING YOU FOREVER IN YOUR HEART.

  • @Abutado
    @Abutado Před 7 měsíci

    Rest in peace beautiful girl. #Lunaseverglow #lunazoestrong