My Alopecia Story (with Pictures) - Alo Jules
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- čas přidán 5. 09. 2024
- Here's my alopecia story, which started 20 months ago and is yet to end. Hopefully, this story might give knowledge to others that would like to hear more about the nature of alopecia areata, treatments and hair solutions/systems.
Much love x
I cried watching your video, you are so beautiful and sweet, I feel you deeply in my heart as I am going through it as well, and is very devastating for us women, I hope we both regrow our hair again
I have had this from age 8-10 years old, I’m now 63 and I’m done with all the treatments that are supposed to be helpful.. I quit wasting money when I was about 40 and shaved my head... i think I realized Christ there’s no cure. So I called it good.. I’ll just wear a scarf and or hat and make it work... I honestly don’t think it has crap to do with stress... it’s autoimmune disorder so don’t listen to the doctors that mention stress as a factor. It didn’t matter one bit in my 60 years...
For us man also, you would not belive how devastating we feel but we just hide it better, pretending we dont mind..
As a person with AA i could really feel your pain. Your smile is more beautiful than anything. I hope you don’t lose the beautiful smile anymore.
Alopecia treatment 👇👇👇100% checked
instagram.com/vitiligo_psoriasis_alopecia?igshid=1wxx6d8aaoi0x
Love the way u talk... U r really a kind person... Blessings💓
You're such a beautiful woman!! And might I add, extremely strong and brave for still being so happy and content with what you have. Good for you girl! I wish you all the best xx
You seem like an awesome person. I wish you the best.
You are so kind and very positive person! I am so happy to see your beautiful speech! I hope we all get our hair growth back
Literally 95% of the videos that I've watched about reversing alopecia areata was from people who focused on be happy. Currently I found two spots in my hair during this pandemic when I was cutting it. So, I am doing two courses diploma and graduation at the same time in another country, working in a very stressful job as a chef, and having exams all together. I think I need to slow down.
How are you brother?
Yeah, how are you doing?
I know you probably hear this all the time, you’re beautiful with or without hair. I’ve been working on a bald spot right in the front on the top of my head for about 30 years. I’m an old lady, 82 and I shouldn’t care but I do. I’m in a panic because I can’t cover the front anymore. I don’t have a beautiful face like you. You’ve made me feel ashamed so I’m going to get a better attitude.
I have alopecia also and mine is a headband style. So sides back and some in front. I know your pain. And you are STRONG.. I've had mine for years and I'm scared to wear my hair up or even get a wash at a salon. Self esteem issues.. I'm proud of you for showing us your story.
PS I think mine is tension alapecia
You've tugged at my heartstrings ♡...I wish you so much happiness. I can't help but wonder about the big picture, upstream, immune issues. I know you said stress was a factor but...
Immune issues is key...
I’m 62 and have been a test dummy for years... I have type one diabetes, thyroid issues, cancer twice, several autoimmune issues... my hair came and went so often and gave me false hopes.
One day I just got tired. Screw it. I shaved my head and called it good. No more treatments. Treatments that failed me often. Such a waste of money, time and hopeful outcome...
it’s not stress induced. It’s autoimmune induced.. you must trick your immune system. Shock it per say.
Thank you for sharing such personal sensitive topic. I have the same condition. Usually, my hair grows back. So sorry about the difficulties you’ve had. ❤
You have such a positive attitude! ily xoxo
I also was diagnosed with Alopecia Areata during COVID-19. I lost hair on my crown. When I went to see my GP, he confirmed it. Fortunately, my hair has grown back for now.
I was told that it is an autoimmune disease and not caused by stress. I wore hair toppers and received many compliments, and that helped with my confidence.
Good you are so positive and cool in finding solutions.. and hair grew back too for you! Love the way you didnt lose your dignity in the middle of all this. I keep hating myself, losing dignity and feel exhausted to find solutions! May be that's why my hair refuses to grow back too!
I also suffer from Alopecia Areata. Big Hugs to you.. I can feel the frustration.. But I still hope you fully recover.. ❤️
You are amazing! I am so sorry those ppl who gave you those treatments were not honest with you. You are so brave to show photos of your hair loss. I wish you all the best on this journey! XOXO
Would love to see you do an update! I’m suffering and have the same anxieties. Just lovely to follow for advice and to listen to your experiences! X
I appreciate your honesty. I know how stressful the experience itself, set aside that it happened as result of the stress. I would strongly advise you incorporate taking vitamin B6 (injections if possible). Good luck
I had alopecia Areata and healed it with garlic. This method has its roots from Turkey coiffures. Take the juice from garlic and but it on the bold spot. Rob it until you feel a burn (the inflammation reacts of the garlic juice). After that stop. Repeat it every day until you see some hair growing back. Most of the time it starts with white hair. Good luck!
Does it really work even if you have those shiny bald spots with no hair
@@manelidamane6153 Yes. I had alopecia ophiasis on both sides of my back head.
But it takes time and the process is slow. My left side is still not fully healed. But more and more hair are growing back. The right side is normal again. And I had pretty huge bald spots. So give it a chance!
@@mperini1815 thankyou so much ,the garlic is working.god bless you.
@@mperini1815 hey i also have ophiasis form and i am from Turkey, there is also another remedy which worked great but you have to go to the specific barber shop owner who puts it on😊
This is great currently going through own journey and ended up losing over half my head ! Love your post and so helpful and informative (1st I have listened to all way to end) I am sharing my journey but have spent fortune on cheap wigs and realised that I just need to pay more !! (helps me sharing 😅) it’s certainly an experience and your amazing have a great outlook on Alopecia and beautiful too so extra bonus ! X x
My daughter has this. She is 4. The doctors say ring worm then they said no it isn't. Then they sent me to a hormone doctor and she basically told me she couldn't help me at all and she's not even sure why they sent us to her so she referred me to a dermatologist. The dermatologist still hasn't contacted me and my daughter's hair is worsening. It's so frustrating. Hers started off as spots and we thought she or someone was pulling her hair out then they started to grow, now she has over 50% hair loss and kids are starting to bully her. Her doctor said that her bloodwork didn't show alopecia at all but I am almost certain she has alopecia areata. Thank you so much for this video. You gave so much helpful info. Thank you thank you thank you!!!!!
Do garlic,onion and ginger rinse overnight once a week
@@lisascales6541 How this things work?
@@melagutierrez885 garlic and onion have sulfur that really grow hair great and all 3 of these kills any scalp infection and all encourage hair growth just try once a week and also don't over wash your hair or mess with it much just keep moisturizing and put up in lose bun or braids don't even over brush or comb above all prayers and just have faith that you will be healed and it's done but u must believe
You are such a wonderful person! So positive!! Keep smiling dear :)
Thank you, you cured 80% of my alopecia ❤️
This is sad you are a role model stay strong and you are still beautiful no matter what
Beautiful smile despite facing this issue : positive mind set ! Great video !bringing such a positive energy brought by your positive personality is amazing ! I wd have explored also to optimise the gut and microbiome ..alopecia areata is auto immune disease but we still need to find the origin of it .! I wish you a good luck ! 👨🏾⚕️
My daughter just found a large spot of baldness a month ago, she only told me 2 weeks ago. We are seeing the doctor next week for a dermatologist appointment. In the month the spot has not grown so hopefully it was mostly caused by the start of high school and all the stress that brings.
Sending you hugs AA sister! I am currently going through a VERY bad flare and have lost 60% of my hair. This is a peculiar condition with a mind of its own 😋
Anyway, you are lovely and beautiful. Good for you for carrying on with your life and making positive changes 👍
As of age 55 I’ve lost more hair all over my body, I have smooth arms and legs, and I’ve started loosing hair from my private areas, under arms et cetera... I’m very poor in the financial side but very rich in what I believe is most important, love of close family.
Thank you for sharing your story ! I love your attitude about losing your hair ! I wish you the best !
So glad I watched your video. Covids taken circa 40% of my hair and it’s still coming out in clumps. I was considering the hair system you mention, which is a really big investment. I think you’ve just helped me to decide it’s not worth it!!
Be strong! You look great!
Thank you for your story. You’re amazing and inspiring. I’m trying PRP treatments
I have alopecia as well and I relate so much to what you have said, especially at the end. Thanks for sharing you're story, gave me abit of Hope and made me feel more comfortable about my situation.
Her enthusiasm is bright
You are such a pretty lady. What an amazing video.
You are very strong , Why have you stopped uploading videos ?
You’re so sweet. Going through the same. Thank you, awesome perspective :)
Try BITTER APPLE fruit. Just apply the raw juice 3 to 4 times a day @ the infected area, and rinse your hair once a week with plane water, within 1 month you'll notice the change... I have the same problem but the magic fruit is giving good result..
A saw a successful case of hair transplanting on CZcams that looked great! Good luck to you. You deserve it. 🙂
You are so strong and beautiful and i have alopecia too so stay strong always!❤️
Teodora Vujic yes she is very strong how come she is so positive ! I really enjoyed her personality she should coach people : how to be positive despite hard time ... she is talented !
Darling, I’ve had this autoimmune issue from age 8-10 it came and went over the years and around age 59 I quit, gave up on all possible treatments .. I shaved what was left off.. tied a scarf on my head and called it good.. I have tried everything for this, horrible!!!!
I tried wigs for some time but found it horribly uncomfortable, I remember the injections.... the topicals.. however it was great and awful off and on.. I’m 63 now and I’m good with wearing a scarf and hat, I do remember my scalp being itchy. Horrible. I have been diagnosed with type one diabetes, I have thyroid issues, I’ve had cancer twice, needless to say it’s been a rough medical challengingly life...
I don’t have money for fancy hair replacements. So I’m really good with a scarf or hat
Stay strong
Hi Alo Jules,heart wrenching story for a young person making their way in the world. So what causes your condition? well it appears stress is the main contributor, and so what are you stressing about? Might be many things originally but made worse by you hair falling out also what people are thinking and saying about you.. Great recommendation is box breathing to find more calm in you life, and you will hopefully find better physical and mental health. Also you might be zinc deficient, red meat, oysters, nuts, and sea kelp helps with this. Definitely no sugar, carbs, or processed food. Hope this helps...
You are very cute! I have alopecia areata also but I'm controlling it with nutrition supplements, more sleep, essential oils, and garlic.
What do you do with garlic?
@@melagutierrez885 I cut a clove in half and rub it on the bald spot once every 3-4 days. After about 15 min of letting the juice absorb, I wash it off with shampoo. Be careful, too much rubbing will burn your scalp. Just rub it for about 30 sec.
So i have a hairloss problem and its horrible , im actually thinking of shaving my hair off and wearing a wig . I have been to a doctor he suggested injecting something in my scalp , but i have no insurance. Sooo idk why my life turned out like this but its annoying , i just want to be “ normal” and focus on my studies .
I have been struggling with AA for about 20 years, the past 5 years I have seriously been considering shaving my head but cant seem to find a wig that suits me. I just cant seem to get myself to shave my head though!!!
Ladies I'm in the same boat! I've thought of the same thing and I've tried shaving around a spot and it still won't grow but it sucks having a flaw as a woman and when I see someone with long hair putting their hair in a messy bun, ugh I could never do that since 8th grade and I'm 37 so years of hating and wanting. But I wish you both the best and wigs are better at hiding 😉 stay Blessed ladies ♥
You couldn t be prettier 😘😘
I just got diagnosed with aga a week ago. 😔 but it can’t be reversed at all. My depressions worsened and it’s taken such a toll on my mental health because it will only progress over time. I’d rather have something that can be reversed. 😞
I admire your positive attitude! Hang in there!
Thank you so much for your video. I am currently suffering with alopecia and have a rather large bald spot at the back of my head. I have stocked up on vitamins but it’s a very slow process. My doctor has prescribed me with betnovate cream but I am very hesitant to use it. I have been using coconut oil at night. Where are you at with your journey now? ❤️🙏🏼 xxxx
On July I lost all my hair in a few days, after some weeks eyebrows and eyelashes. I'm starting now a treatment that will suppress my antibodies, so let's see... It's so hard and videos like yours help ♥️
Mystical Candles thyroid antibodies??
@@VartikaAnand my antibodies are destroying the thyroid too... But the doctors say that it's not related
@Mystical Candles: we have the same thing. I lost all my hairs, in the body and eyebrows in a span of 2 months I guess. Everything was normal with me though. That was like more than a year ago. I wear wigs for the past year but now, thank God it’s growing back and I have a pixie hair now and started not to use wig a week ago. I felt so blessed and thankful.
@@MNLiyyi2 that is amazing!!! I have baby eyelashes starting to appear, let's hope that hair and eyebrows will follow :)
@Mystical Candles: yeah don’t lose hope. Your hair regrowth might come out as white hairs though but you know, hair is hair.
This was so comforting thank you
An update on my recovery (yes recovery!) is now online! Check it out! czcams.com/video/MD8fCZElIeI/video.html
Hey! How is it going! Keep on downloading videos it helps people and encourage them. I love the way you talk!
I am 31 years old. I just noticed bald patch on the crown of my head. I have just endured a stressful time too. So I don't know if I have alopecia, but I don't think I will bother with the doctors. Think if it gets bigger I will just shave my head and donate the rest of the hair to charity.
Alopecia treatment 👇 100% checked
instagram.com/vitiligo_psoriasis_alopecia?igshid=1wxx6d8aaoi0x
Did it grow back?^^
I just want to live to the day when a hair loss patient goes to the doctor and A) they are not immediately dismissed and B) they are not misdiagnosed. I just hate how much doctors don't give a fuck about hair loss and when you are even doing their job for them they refuse to let you get tested, for which you pay out of your own pocket.
I went through all of the shampoos and other topical treatments. Eventually I realized they do not work.
Try BITTER APPLE fruit. Just apply the raw juice 3 to 4 times a day @ the infected area, and rinse your hair once a week with plane water, within 1 month you'll notice the change... I have the same problem but the magic fruit is giving good result..
Thank you a lot for being so honest! 🙏🙏🙏 I have a similar story around my hair and I feel with you so much! 🌸💗🌸 would you be so kind to name a brand of your topper? I admire you and sending you lots of love from Slovenia!
Thank you for sharing. I see the video is a year old. What is the current state of your hair and how are you covering it up? Thanks again
Your smile is really beautiful. Safe travels.
Hey which country you live in??? That is such a big waiting list 😅
Amazing and inspiring video. Please post an update ❤️
Hi tried garlic on this areas the hair grows back
Oh darling ❤ thank you deeply for sharing
You are so lovely and beautiful. You are perfect the way you are. ✨
so kind, thank you!
I started crying hope the v best for you
What a beautiful lovely girl I wish you all the best in the world
Thank you very much for sharing
I too have AA..not only my hair my eye brows even my eye lashes also fallen😢😢.. treatment is going bt no improvement😩
Freedom vacuum hairpiece from Resilience Hair Group. For more information on please visit @t or call us at 800.586.6422
Did u try dr rohit shah
@@littleworldexperiments695 no bro
At wat age did u notice it?
@@Harry-vy5dk it came last year Aug 2019 bro
Question, does this effect all hair colors?
Hi there, how is your hair now at the moment?
Yes would love an update too!
me 3
look at her instagram :)
@@MarioBanatoli what is her instagram
@@sparklelee5948 alo_jules
Can you do the update?
Can you do an update on your product please
I can feel u sis m suffering from same issue since 2012.. my hair grow back after treatment but from April 2012 to May 2019 its my 4th time. i recently spotted a patch and in 10 days its getting bigger. I m just tired of visiting doctors n getting the same answers and treatments... i hv already tried diet and naturopahy etc. this time m more dipressed i hv ever been in my life.
You should really go to trichologist😊😊 they will help you alot! Believe me
@@priyankadas. where is that please if I may ask
Have you tried cutting sugar or diary out of your diet or maybe tried the carnivore diet? Or are you sure its from the stress
steelboy I have alopecia areata. I have tried keto, carnivore, paleo, still alopecia flares up. Lost 80lbs and reversed diabetes, medication free. I thought I was doing everything right! Even still, spots fall out.
Having a good healthy diet is great but it will not cure an auto immune disease.
Jennifer Wilson - that’s not true at all because I was able to reverse my alopecia with the aip diet, but cool story!
Your smile beautyful.
Thanks so much for sharing! How can we contact you for a collab?
My mom used to live in a rural village in Bangladesh. She said when she was young she saw few people having the same bald spots on their head. They rub fresh blood of Cuche fish ( Asian swamp eel) and let it dry. She doesn't know how many times they used the blood but their hair grew back. It was a popular belief among older generation in the village that the Chuche fish blood has some medicinal property. That fish is available in Asian countries. If there is no cure available to you, you may try it as a last resort.
I am just 16 in 9 th grade I started noticiding one bald spot and now it's increasing and spreading even after using treatments I don't have much money to spend on injections and all but I am really struggling now it's starting to come in front I don't know what will I do
Oh, darling. Spend the money. It will bring you peace knowing that you are trying everything possible. How are you doing?
If anyone here needs helping finding an appropriate hair system and are struggling with alopecia feel free to message me!
This happened to me to they said I have ring worm to
Any medicines which you are presently taking for alopecia areata and you think they are really working ? IF YES PLEASE DROP SUGGESTIONS
Hi! There are thousands with Alopecia areata and many more kind of Alopecia growing hair back WITHOUT medication. ONLYYYY using a treatment line and one special oil. If you are interested DM me on Instagram.
ARIANA @business_hairskin
@@theconnection3474 greetings, if I may ask you please what helped you because I have alopecia too and it's stressing me out I got it when I was in my twenties and it gotten worse to the point that I don't have hair in front
@@manelidamane6153 My hair has started to regrow and I do a daily and discipline regiment. I treat my scalp like a garden: 1) I go out 3 times a day to walk my dog and let my body absorb the sunshine 2) Take organic, nonGMO vitamins and nutrients because the food quality in food is not as good as it used to, so you have to compensate for it 3) I spray my hair with pure water (drinking water with no flouride) and put aloe vera (I took some wild from the desert- but you can find them at grocery stores) and made my own concoction of organic vitamins that I melted and used coconut oil or another natural medium to "feed" my scalp. My regiment works, it's natural and organic, does not cost a lot, and aside from taking care of your scalp, your also taking care of your body.
Update please ...
❤️❤️
I have alopecia and wear wigs. Maybe that will work for you too. Raquel Welch wig, Jon Reneau wigs, Ellen Willa wigs, etc. so many beautiful styles that are very very. Check out Michelle Moffat (bald barbie) on u-tube who also sells wigs on the UK. comfortable.
Yes I was misdiagnosed too, with a fungal infection! I was like no way, I specifically use antifungal stuff and I'm a preschool teacher I know what those look like.
Found a really cool dermatologist and he didn't even need to dig deep he was like, okay girl this is the issue. He was quite expensive too haha, I might almost have died 😂.
You're sooo cute haha. Thank you so much for this videoooo!!! 💐
Might I ask what dermatologist this was? >< I’m looking for good dermatologists! Thank you
@@iolemaffei hi! 😃 Sorry, I am in south Africa, sorry 🤭, however, his name is Dr. Sher, at Bedford centre, Bedfordview, Johannesburg . Maybe you could look him up on Google maps and share an email with your symptoms. He may be able to recommend someone around you if you're lucky, or suggest what to check and ask to be checked for in a consult with someone you may visit near you.
All the best! 💐
Sheri Sheri Thank you!♥️🌻
I just shaved my hair off and wore a wig , I kind of like the balld head not taken meds
Freedom vacuum hairpiece from Resilience Hair Group. For more information on please visit @t or call us at 800.586.6422
Hi !!! Do the steroid injections eventually work????
That same like me.🤗
You are very beautiful and you have great smile
You are so beautiful! God bless you! Love you!
Do hijab, I was devastated with my alopecia. I had to shave all my Head.
Plz koi hindi m btado kya bola isne
Hi, did y tried derma rolling. Google it
Im gonna go to the doctor soon because I have just found a big spot in the back of my head with the size of a tennis ball so fucking freaky
You are so cute and nice :)
But I actually had alopecia
What helped you if I may ask please
maneli damane up to now nothing really it hurts to say it but I just have to accept it and maybe accept that I may have to live my self without this and many people take it for granted but oh well. I ate super healthy and take many supplements and used oils but up to know my head is full of peach fuzz and it’s long peach fuzz and some is black in some places just hoping it grows back.
I can sense how unhappy she is....and i also have a thining issue
You are soo cute
You ever thought of getting a full wig?
Have you been checked for an auto-immune issue? Aside from that, you're beautiful.
But you're so pretty