Often Awesome The Series - An ALS Love Story: Episode 36
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- čas přidán 17. 12. 2012
- Episode 36: Passing the Torch - Often Awesome becomes a nonprofit organization and continues raising ALS awareness and Steve Gleason takes the torch from Tim and the Often Awesome Army and continues the battle against ALS with his organization Team Gleason.
Often Awesome The Series is a web series about Tim and Kaylan's battle with ALS (Lou Gehrig's Disease). Its a story about love, friends, strength and courage. Join us every month for a new chapter in this amazing adventure.
For more information about Tim and Kaylan's fight and to help them please visit : oftenawesome.org
More information about Steve Gleason and Team Gleason visit: www.teamgleason.org
Do you want to help support this series? Info here:
allacesmedia.com/oftenawesome/...
Often Awesome The Series on Facebook:
/ oftenawesometheseries
Often Awesome The Series Website:
oftenawesometheseries.com
For more information about the filmmakers visit:
allacesmedia.com - Krátké a kreslené filmy
Thank you for the honest feedback. The hardest part about doing this web series was after Tim passed away. During his illness it was a way for us to feel like we were doing something to help. We also worked 40+ hours during our regular jobs and did this on the side. It was physically and mentally exhausting but we (Blake & Andy) were determined to finish the story. We are so proud of the community Tim and Kaylan built. Yeah, this series made us cry while editing. No shame in that.
Thank you for watching and commenting. It changed our lives too.
Tim was so inspirational to my husband and myself like no other in the ALS community has been, when my husband was diagnosed with bulbar ALS in Jan 2011 we had little ongoing support and did most by ourselves, he never got any of his last wishes fullfilled and died March 2012 THANK YOU for continuing to keep Tim's mission going and to help others who will sadly be diagnosed with ALS I have every faith you will all at OFTEN AWESOME do amazing things !!!!!!!!!!!
I am so sorry to hear about your loss ! I have been watching Tim's story since I was diagnosed with ALS in March of this year 2019. He was such a wonderful inspiration to me. I loved seeing Tim's wife after their baby was born and I could see the love and joy he felt when his wife would hold the baby up close to his face so he could feel his precious baby. Tim was so blessed to have his wonderful loving and supportive wife whose love and compassion shown through and always was his shinning light! I am blessed to have that same love and support from my loving husband. I Thank God everyday for for my husband and my family. I started having trouble with my speech and swallowing last August 2018. It was March of this year before I got my diagnosis. In January I had to have a feeding tube inserted. I had lost 70lbs from August to January. I have Bulbar ALS which is very difficult to adjust to because I have lost my ability to speak. My ability to eat or swallow is gone. Everything goes through my tube. I have been having trouble with my breathing and the summer heat has really been taking a toll on me. I have had several falls so I am in the process of getting a loaner power chair. I was measured for my own power wheelchair at my last MDA Clinic appointment 2 weeks ago. We just got our bathroom remodeled so I now have a roll in shower. I have been fighting for a little over 3 months trying to get a Tobey Dynavox Speaking device and was devastated to find out it will be 4 to 6 weeks before I will find out if my Medicare and Insurance will assist me in paying for the device. It seems like my Medicare doesn't feel or understand the importance of me being able to communicate with my my husband and my family and friends. I am so scared and concerned that time is something that they don't understand is not something I have a lot of. I am trying to stay positive and I want to live my best life everyday and I feel like we are constantly fighting for everything that I need. I pray everyday for God to give me strength and hope to keep fighting for my life! My first grandchild is going to be born in September and I pray that I will be able to hold my precious baby girl Hattie. I want to have time for her to understand how much I love her. I know my son will be a wonderful daddy and I want so badly to be able to see that. I would like to ask for your prayers while we try to move forward on my journey! I will be praying for Tim's wife and family to have peace with his passing. I will never forget Tim and I know he is looking down and continues to watch over his baby, wife and all of his friends and family who took such wonderful care of him ! RIP TIM
Ronda, could you please email us your contact info. We have some people that would like to reach out to you. allacesmedia@gmail.com
In which episode he met his baby i want to watch please tellme and god bless all als patient.
I watched the whole series. I dont think they jad any kids
Thank you so much for this awesome web series, I have no idea why it was in my recommendations but I’m sure glad that it was! Rest easy Tim you were and incredibly inspiring with or without the diagnosis ❤️! His friends and community are beyond amazing for everything that they did, what a truly amazing group of wonderful, kind, and just such genuine people!
Also I noticed that you were playing The American Dollar as the background music for a lot of these episodes, it was very fitting with the general vibe of the series, plus they’re such great band, super talented and amazing live.
Heartfelt thanks to all of you, God bless you all, and God rest that truly inspiring, amazing man.
I just finished watching the whole entire series. Sigh.... I don't know what to say I have so many emotions. My heart is heavy and full. I guess the most important thing is to donate and spread awareness. Now with the #icebucketchallenge it's a great thing that's going viral right now, but the point is to donate after doing it guys..... :)
I just finished the whole series. I've cared for ALS patients over the years while I worked for hospice. It is a horrid disease. Tim had care and support like no other. Sadly, it's often not that way. This has been a wonderful series. How could it not be with Tim as the star. 😉
You guys have changed my life forever.
Thank you Tim for an awesome life of awareness.
God bless everyone involved bringing this front and center.
Keep up the fight and hope for an awesome tomorrow.
Thank you all for sharing your lives with the world. It's a beautiful story of love and courage, though heartbreaking at the same time. I'm incredibly happy that the Often Awesome team's generosity didn't stop with Tim's death. Many more sufferers will benefit from your gifts. I'm praying and hoping for a cure soon. RIP Tim.
what a hard challenge! It made me cry a lot.God bless you all!
Thank you.
i have often watched tim, my brother steve passed away 14th november 2013, it is a terrible terrible thing to have, you all did so well, tim was an amazing guy. steve was a hero too. it is a death sentence, just dont know how they are going to go. we were always hopeful too and lived every day, there must be a cure or treatment
soon xxxx sending love and support to you all you are all awesome x god bless TIM rip.and all the other sufferers who are at rest now xx
Wow. That was an amazing series. I can't believe how much I cried through out the last dozen or so episodes. Thank you for bringing the world this documentary series. I have a question though. As a filmmaker, how did you survive making it? It must have been not only gut wrenching to film, but even more so to edit it together to tell the story.
I think this is one of the few documentaries that has made me cry, and I'm not ashamed to say it either.
first time i learn bout ALS was from japanese drama called '' boku no ita jikan ''
i was very shock ALS is Cruel disease..and scary to think of if its happened to me..i think i can imagine how scary n how much you cried...but after i studied about ALS from internet, you tube, blogs ...and im surprised that people have a ALS they are normal human, im sorry i might rude but they looks happy to me because they are strong , loved , energy !! i dont think there is a 100% sure something in the world,,always exceptions or Miracle..I just really pray and hope that the treatment is found soon ! agh i have to appriciate my life more n i need try more like you ><
Wait Tim died?
All nice and good, and may GOD send health to all the people that are sick with this horrible ALS. but why the tattoo? I was going to donate but I think it's stupid to convince people to do tattoo. please don't do that.
+Lola Get Or maybe folks can do as they please?