@@mirilovely7351 …That’s rough buddy. But seriously they need to add in that little disclaimer, ‘when you try oats, eat only a bit cause there is a 1 in 5 chance that it’ll f*ck you up.’
Ate one of the two pieces that come in a nature valley honey oat bar. Suffice to say I could not move my hands, they became extremely swollen and the joints stiff. I love oat meal but I’ve never ate oats again after this problem with my celiac
My doctor thought it was all in my head, or it was IBS. I was so annoyed with everyone telling me nothing was wrong when I knew there was. My other blood tests were normal, but my coeliac antibody level was really high for a 13 year old, I got another blood test and it is confirmed I have coeliac disease :(
As a 13 year old right now I experienced exactly that but my parents let me visit the doctors a few times, get my blood work. And I had over 250 antibodies. So there is a 98% chance I have it. Starting the diet tomorrow
Good fucking god it’s universal. Same in the U.S. my doctor said the same after an igg test, and told me to buy oodies instead of wonder bread, and told me to stop eating wheat. 6 years later I’m still finding out about hidden gluten in everything!
I have it and it’s so expensive and when I was in year 3 I would just watch people eat cake like we need to raise awareness bc there isn’t many gluten free stuff you can buy 😢
@@craftcrazy67hey why don’t you boil potatoes and eggs and sweet potatoes and mash them up with abit if veggies like onion some chillis It’s so easy cheap and tasty And sometimes eat that with steak, liver or fish for protein That’s what I do because of my celiac
then there's the follow questions that come when you go back in..."so, what happens when you eat gluten?" and you sit there dumbfounded, because you have never done so after you were told not to..and you really can't find any good answer at all.
I don’t think u are lactose intolerant forever eith it tho, for my first 7 months of being diagnosed I wasn’t able to take dairy at all as it was making me really sick, but now I am fine eating it
I’ve known about my celiac disease since I was 3! It was frustrating being the only one in preschool that was unable to make gingerbread cookies but now I am a master of finding gf food and rarely get sick due to this skill 😎
@@noglu106hello. Probably because wheat products comes with many gi disruptors (additives, bromine, synthetic vitamins, commercial yeast). Even wheat itself contain other components like ATI, fructans, wheat germ agglutinin). That's why it is important to know if is actually gluten / wheat what is triggering you discomfort. Greetings
Same! My blood test anti ttg came positive but my endoscopy came negative so the hospital said that they'll call us for the third test and its been over a month since I last visited and they didn't call. my doctor is actually a family friend so whenever we try to call him he doesn't pick up :(
Mine was like this too. They dont tell anything abou cross contamination or dont put gluten in your skin. You will discovery it all by yourself in the worse way
I’m a swiss person that lived in UK for 15 years, I always tell my friends back home how bad the medical system is in UK. I swear this is a 100% legit representation of how i describe it 🤣🤣 The GP’s just typing without even looking at you, the appointments taking months, them not even checking you for symptoms or anything, the time checking to kick you out as quickly as possible,and them explaining your diagnosis very poorly as if it’s nothing serious (even when it is) Aw all of this after dealing with a very rude receptionist who acts like she’s doing you a favor for letting you book the appointment 💀. Why are they like this?!? 🤣 I’m so glad I’m back in Switzerland
I have celiac and I can understand this but sometimes it can be fun because if you hate mushrooms then you can’t eat them because they can grow in barley
I tought that this kind of thing only happens in 3º words countries like mine (Brazil), but now I've seen that the lack of information about cross contamination happens in another kinds of countries either.
Truth is if you get diagnosed with celiac that's not a time to settle with just this diagnoses, you are more likely to have 2 auto immune disease than 1 so seek out more lab test for antibodies of other auto immune diseases lupus, hashimotos, RA etc. Maybe could catch it early
@@PineaoplesYum I have it what do you mean and if you are gluten free for a while the symptoms will start going away, *but* as soon as you eat gluten they come right back. It’s a thing that lasts for life.
My little brother was diagnosed with celiacs 4 years ago. He was only 4 years old so after the blood test the doctors said they don’t need a biopsy to confirm the diagnosis. His IgA level is way less now but it is still not low enough. Is it possible he was misdiagnosed? And if yes what could it be? He never eats gluten, not even the tiniest amount.
They didn't even bother to call me! 😂 I got an email that the lab results were in. It was a Friday at 4pm. I called them Monday, and the receptionist said the doctor would call me back. 4 days later, the RECEPTIONIST called me back! Don't eat gluten. Take vitamins. Good luck 👍
there one one single doctor that will tell you what to do. like if they want you to be running around doing tests or be coming back.. we have to find out and look for a cure or treatment doctors won't do it understand that
They also never mention that you might be at risk from oats. No. You have to find out the hard way.
i ate oatmeal and it led me going to the hospital to need an enema and that's how i found out
@@mirilovely7351
…That’s rough buddy.
But seriously they need to add in that little disclaimer, ‘when you try oats, eat only a bit cause there is a 1 in 5 chance that it’ll f*ck you up.’
Frrrr
Ate one of the two pieces that come in a nature valley honey oat bar. Suffice to say I could not move my hands, they became extremely swollen and the joints stiff. I love oat meal but I’ve never ate oats again after this problem with my celiac
Any other sufferers have the shits with being coeiliac?
As a Celiac patient myself, I found this so funny because this is literally everyone whos ever had celiacs diagnosis. Thanks for the laugh!
My doctor thought it was all in my head, or it was IBS. I was so annoyed with everyone telling me nothing was wrong when I knew there was. My other blood tests were normal, but my coeliac antibody level was really high for a 13 year old, I got another blood test and it is confirmed I have coeliac disease :(
Did u struggle to gain weight?
@@valefarx Kinda, but not really, I was really bloated all the time
@@avamadiboo good for you 🤍, I'm struggling to gain weight. It severely blocked my gym progress
@@valefarxthe same here 😭 what to do 😢
As a 13 year old right now I experienced exactly that but my parents let me visit the doctors a few times, get my blood work. And I had over 250 antibodies. So there is a 98% chance I have it. Starting the diet tomorrow
This is 100% accurate to how I found out
Good fucking god it’s universal. Same in the U.S. my doctor said the same after an igg test, and told me to buy oodies instead of wonder bread, and told me to stop eating wheat. 6 years later I’m still finding out about hidden gluten in everything!
I have it and it’s so expensive and when I was in year 3 I would just watch people eat cake like we need to raise awareness bc there isn’t many gluten free stuff you can buy 😢
@@craftcrazy67hey why don’t you boil potatoes and eggs and sweet potatoes and mash them up with abit if veggies like onion some chillis
It’s so easy cheap and tasty
And sometimes eat that with steak, liver or fish for protein
That’s what I do because of my celiac
then there's the follow questions that come when you go back in..."so, what happens when you eat gluten?" and you sit there dumbfounded, because you have never done so after you were told not to..and you really can't find any good answer at all.
They also don't tell you that having celiac disease that you are also lactose intolerant as well, due to the small intestine being damaged.
That’s not the case for everyone. I’m all good with lactose and always have been
I don’t think u are lactose intolerant forever eith it tho, for my first 7 months of being diagnosed I wasn’t able to take dairy at all as it was making me really sick, but now I am fine eating it
I’ve known about my celiac disease since I was 3! It was frustrating being the only one in preschool that was unable to make gingerbread cookies but now I am a master of finding gf food and rarely get sick due to this skill 😎
First person I found diagnosed younger than me, I was diagnosed when I was 5
I was never officially diagnosed, they said I probably have it and that’s it. No one contacted me besides a phone call.
@@noglu106hello. Probably because wheat products comes with many gi disruptors (additives, bromine, synthetic vitamins, commercial yeast). Even wheat itself contain other components like ATI, fructans, wheat germ agglutinin). That's why it is important to know if is actually gluten / wheat what is triggering you discomfort. Greetings
Same! My blood test anti ttg came positive but my endoscopy came negative so the hospital said that they'll call us for the third test and its been over a month since I last visited and they didn't call. my doctor is actually a family friend so whenever we try to call him he doesn't pick up :(
Mine was like this too. They dont tell anything abou cross contamination or dont put gluten in your skin. You will discovery it all by yourself in the worse way
I’m a swiss person that lived in UK for 15 years, I always tell my friends back home how bad the medical system is in UK. I swear this is a 100% legit representation of how i describe it 🤣🤣 The GP’s just typing without even looking at you, the appointments taking months, them not even checking you for symptoms or anything, the time checking to kick you out as quickly as possible,and them explaining your diagnosis very poorly as if it’s nothing serious (even when it is) Aw all of this after dealing with a very rude receptionist who acts like she’s doing you a favor for letting you book the appointment 💀. Why are they like this?!? 🤣 I’m so glad I’m back in Switzerland
I was just diagnosed and this is 100% accurate.
I have celiac and I can understand this but sometimes it can be fun because if you hate mushrooms then you can’t eat them because they can grow in barley
New celiac here lol I don't hate mushrooms but now I understand why I get so sick with those 😢😂😅😅😅
Bro i found the hard way, didnt know mushroom can contain gluten until i ate it
Oh my god the ptsd - I had my dietitician appt about 6 months later and they just focused on me being overweight and didn’t touch on gluten AT ALL.
Oink oink
I had to wait 3 months for my dietician. We had already figured out all of the stuff they told me.
I tought that this kind of thing only happens in 3º words countries like mine (Brazil), but now I've seen that the lack of information about cross contamination happens in another kinds of countries either.
I got diagnosed 2 years ago and never got told about a yearly blood test?!
Truth is if you get diagnosed with celiac that's not a time to settle with just this diagnoses, you are more likely to have 2 auto immune disease than 1 so seek out more lab test for antibodies of other auto immune diseases lupus, hashimotos, RA etc. Maybe could catch it early
Lovely how they call you lucky to have an autoimmune disease ah yes so lucky 💀
They mean lucky because Coeliac disease is the only autoimmune disease that can be reversed
@@PineaoplesYum it can be reversed *very* *very* *very* rarely
@@thedumpsterman no, bro knows nothing about coeliacs
@@PineaoplesYum I have it what do you mean and if you are gluten free for a while the symptoms will start going away, *but* as soon as you eat gluten they come right back. It’s a thing that lasts for life.
@@thedumpsterman bro I’m done fighting with this 7 yr old
100% accurate!!!!!!! Literally same thing happened to me :(
My little brother was diagnosed with celiacs 4 years ago. He was only 4 years old so after the blood test the doctors said they don’t need a biopsy to confirm the diagnosis. His IgA level is way less now but it is still not low enough. Is it possible he was misdiagnosed? And if yes what could it be? He never eats gluten, not even the tiniest amount.
Exactly.
What blood test??
They didn't even bother to call me! 😂 I got an email that the lab results were in. It was a Friday at 4pm. I called them Monday, and the receptionist said the doctor would call me back. 4 days later, the RECEPTIONIST called me back! Don't eat gluten. Take vitamins. Good luck 👍
Did more than my US doctors lol, but still just by a hair.
Yeah I have that
Can you tell me how you found out pls
😂 #tooreal
Mood
there one one single doctor that will tell you what to do. like if they want you to be running around doing tests or be coming back.. we have to find out and look for a cure or treatment doctors won't do it understand that
there's no luck!!! only GOD so follow Him!!! ❤️✝️🙏
No
😂😂
Pretty lucky??
I really don't like this decease..
dont use GOD'S name in vain!!! its a sin!!! follow GOD everyone!!! 🙏✝️❤️
I’m ok thanks
I hate drs
What the hell did you expect them to do? Get a violin team together?
😂😂😂
Give them some education and resources for their newly acquired disease?