NO MORE PAIN MEDS!!!! (After a DECADE of Use!)
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- čas přidán 17. 05. 2020
- This is - sincerely - a monumental day in my life! I can't believe I get to finally say this!
First video about coming off of medications: • I'm Coming OFF MY MEDS...
#chronicpain #chronicillness
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MY STORY //
Fourteen years of pain and failed ankle surgeries brought me to 2018, when I made the difficult decision to become a twenty-seven-year-old below-the-knee elective amputee. This channel is to document my journey of amputation surgery, recovery, and reclaiming my life.
MY PROSTHETIC LEG:
I use the Ossur ProFlex XC Torsion foot/ankle with a direct socket with passive vaccum suction.
MY AMPUTATION STORY - IN VIDEO:
Why Did I Lose My Leg? • HOW I BECAME AN AMPUTE...
How I Said Goodbye To My Leg: • COME WITH ME ON A GOOD...
Seeing My Amputated Leg for the First Time: • Seeing my amputated le...
Day in the Life of an Amputee: • A Day in the Life of a...
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Had to smile at: Wow I don't feel like crap, this must be energy.
Hi Jo, I cant begin to say how inspirational your videos are. Congratulations on being med free. Would you do a video on exercising from not being able to use your right leg to being able to stand? How much exercise do you do in a day?
That's my reality and it made me laugh!
I was on morphine for 4 years with my amputation below knee right leg. I was in a motorcycle accident. It was rough to come off of. I cut down gradually then stopped at 15 ml a day. After 3 days when all the morphine drained out of me the withdrawal symptoms hit hard. It lasted a month. I still took gabapentin 3200 no a day. Then I stopped that after cutting it down pretty quick. More withdrawal. The pain doctor was right. It hurts no more or no less without the drugs. It was in my head that I needed it. I took them way longer than I should have. I'm ok with a certain amount of pain I have to deal with. Keep up the good work you're so upbeat and inspiring.
Morphine withdrawals are no joke! Glad you got through it ok.
I got switched from oxycodone to subutex to help me come off. But ended up staying on subs for 2 years. Now that was a nightmare coming off of subutex. Living hell for months
Iam so happy for you jo that you can finally get off the opieds love jo great news love you jo awesome video
Thank you so much, Liam!!
@@FootlessJo happy to hear. But Jo you stated in this video this is only your first DAY of not taking your opiate medication. Shouldn't you tell everyone you're going to be going through withdrawal by tonight. And in fact struggle incredibly. It is impossible for you to stop talking those kind of prescriptions and stop at one day and think you'll be fine. It would be lying to yourself and all of your viewers. Right.
I wish you luck and positivity my friend 😊
@@jenpinkerton773 Hi Jenna! Great point and I appreciate you bringing that up. However, I've been working alongside my pain medication doctor for months now to slowly cut back the dose which I brought up in the video (because you're totally right - just stopping would trigger crazy withdrawls!). Since January - and the day I filmed this video was the first full day off of them. I didn't go into withdrawls and haven't - its been about a week totally off of them now. Some extra anxiety which is normal, but thankfully, that's it. Grateful to have been able to come off of them slowly with good medical help!
Even if this isn’t something you can do in the long term, you did it now! That’s amazing 🥳 I take lots of medication at the age of 23 as I have chronic physical and mental health conditions and it can be so worrying. Thank you for sharing that things can change ❤️
So happy for you.
My husband is on pain meds due to injuries while in the military. At one time he was on 2 high dose opioids plus Gabapentin & he's been able to stop the Gabapentin & 1 opioid completely & cut WAY back on the other.
One unexpected thing that REALLY helped was him getting on Oxygen. He has low O2 due to central apnea (his brain forgets to breathe) but getting on Oxygen really helped his pain levels as well. Some relief was almost immediate, more as his body was able to repair some of the damage from long term low O2 levels. To anyone reading this I'm not a doctor, not giving medical advice, etc but if someone is on pain meds & there's any chance O2 could be low please look into it bc low O2 levels increases pain.
Yea Jo! Congratulations! I recently moved and the a-hole Dr. I saw down here stopped me cold turkey after 12 years! Stupid on his part? Yes. And my anxiety and depression went off the wall as well so I get what you're saying. You said all of this wonderfully and chose your words wisely, but most of all, thank you for putting this out there! Sadly with the opioid crisis and the new state I live in, for me, getting back on meds IS the only way I function. I moved almost 6 months ago and I'm STILL no unpacked! Smh. But with only a three-to-four hour window of barely functioning, I'm done for the day! By the time I get dressed, take care of the animals and do breakfast and lunch, I'm done.
I wish you could send this to every doctor out there.....not everyone WANTS to be on these drugs, some of would just like to have some sort of semblance of a normal life! Blessing and love, Grannie Annie.
It's a dance. Pain management.
Thank You for Living Love.
Posting on Facebook!
Very accurate statement!
Agree!
Totally!!!
I'm so so happy for you! Every attempt to get off my drugs failed. But I will make it, when the time is right. Love from Germany 🥳😘
Congratulations. I am so proud of you. It is such a milestone for you!
This is such a great thing to hear! I'm so glad that you were able to do this safely! I hope you're still feeling great and are as bubbly ad you were in this video
I'm so happy for you Jo! I love following your journey so much!
I'm so happy for you! I love that youre reevaluating your situation, trying different things and doing what you can to improve your life quality. It's great to hear that you're also getting the help you get. Hearing you talk about how you're handling your problems gives me hope that I can do the same. Bit by bit, finding what's working. Thank you for sharing your great mind, I always like to hear what you're thinking about different subjects because your doing a thorough job to find and think about all different aspects, and that's not as common as I would wish. You're awesome, Jo, don't ever forget that!
Happy for you. For those of us with chronic pain it is HUGE!!
I don’t even know you but I’m so very proud of you! I’d like to think of you as the daughter I never had. You’ve gone through so much and you just keep smashing through it all 🌸
I am so happy for you!! I have been watching you for a while and I feel very close to you because of all the vulnerability you show on you channel. I am so happy and proud of your progress! Girl you are doing amazing and keep motivating people as you always do
I'm so happy for you Jo!💕 I've been off of my anxiety medicine for 2 1/2 months and I have been managing my anxiety well!
CONGRATULATIONS!!!!! Happy For you Jo!!!
This is so amazing! The body is weird and takes time to heal/finds new ways to adjust. Potentially the brain rewired to just ignore the pain signals (not a doctor, just a hypothesis)
Whatever the reason, I am so glad your pain is manageable! I have occasional migraines and feel so sorry for people who have them regularly.
Also, I totally know what you mean about the 'I dont feel totally horrible so this must be energy' type fatigue and I'm so glad I have got passed that now too fairly recently.
How awesome for you Jo! I'm so glad you are able to feel free! I love watching your channel not only to learn about your life as an amputee but also learn someone else's experience with depression and anxiety! Your videos are some of my favorite! Thank you for your content!
It's so great to see how proud you are and you have every reason to be! Stay inspiring! Much love :)
Great to hear you are getting better!! Best wishes!
I lost my leg, and almost my life in Jan 2020, because of staff infection. I have a prosthetic leg and i'm getting around pretty good. I spent 3 months in the hospital, and was on some heavy drugs. I took myself off all pain meds on April 1st. I have an amazing soulmate, like yourself who encourages me. Your story is an inspiration to me. Fight the good fight.God Bless......
I'm so happy for you! Please don't feel discouraged if you have bad days where you need to take something again, this is such a cool point to be at! I am 19 and have had constant pain in both my ankles for the past 3 years, but my doctor doesn't want me on any intense pain killers until we know actually what is wrong and what will be needed, so at the moment I am just going round lots of specialists seeing if anyone has any answers, but I hope that maybe by the end of the year I will have some answers and a plan in place to manage it! Your videos really inspire me though to keep searching and doing what is right for me, so thank you!
So flipping happy for you. It’s so good to see you so happy. Don’t get discouraged if it all takes a while. You can do whatever you set your mind to doing. You’re fabulous.
Stoked for you Jo! I've been waiting for this day for you too!!
Great news Jo, so happy for you, I also have been took off some of my meds this year that I've been taking for 15years. One was for depression, Dr said I didn't need anymore. Stay safe!
Jo, that is such good news. You look amazing! Keep on doing what you are doing 😊
That is awesome. So proud of you. From one person with chronic pain to another, that is a massive achievement for sure.
Good for you! I loved this video most from the ones you did. It is very positive and filled with energy. I guess I could relate to this the most as a somebody with injury to my cervical spine decades of treatment with most of the doctors telling me it won't get better and now I don't even know I have a neck apart from 2 or 3 flare ups a year. Thank you for sharing, it will be OK and good luck!
Jo, the smile on your face says it all! I am so happy that you are finally free from pain enough to no longer need those meds. 😊❤️
Congratulations Jo!
That's great, the one think that shocked me was that I was waiting for you to say you found a new kind of treatment of some kind to help with the pain. I'm amazed that just reducing meds is mostly what you did. Way to go.👍😁
So happy for you! I hope you didn't have to bad withdrawl symptoms. When I went off Morphine I had I horrible time but my Dr also didn't wean me correctly. Congrats!!
Yay! Congrats Jo I’m so happy for you!😄🎉
It's awesome that you've been able to make that step. Looking forward to the same point, but my own injury is fresh so I'm a long way out. Seeing this is super encouraging, so thanks for that.
Jo this is incredible! I totally understand this process and I am so proud of you! Also, it is totally okay if there are bumps in the road with this as well because you can get through those too. I am so glad to see you reaching your goals as I am currently working toward the same one :)
Congratulations, really enjoyed hearing your story. Pain management is a complex issue and no one size fits all. I hope your journey continues and you find ways to manage your chronic pain. I had similar concerns and still use medication for acute episodes but try to keep it to a minimum as that helps me cope better with the rest of my life
I'm wishing you the best in your healing!
Im so happy for you! I'm having the same experience with a medication I'm on. The bottle ran out and I've decided to see if I'm okay without it, which my doctor is also on board with. It's cool to see things slowly change in life...
So happy for you jo . I been off for 8 months now i feel so much better .
I am so proud/happy for you! I had a similar experience, but with anxiety meds. Which I know is a whole different ball game. Still I found myself stressed about going to the appointments or calling the pharmacy for my meds, sometimes to the point of anxiety attacks, and I started to question how much the meds were actually doing. They had been so helpful at first, I wouldn’t have made it through my first year of college without them. But then I realized that they weren’t always helping. I ended up being my cat to college as an ESA (not a service animal that is a very important distinction) and I was feeling way better with him so I talked to my doctor and got myself off the meds. It feels amazing to not have those pills in my life. Like you said they have their place and they are invaluable there, but there are some times when their purpose has been served and seizing that moment can be incredibly liberating. Thank you for all that you do and good luck!
Your story is so inspiring. You are very brave and i love the way you talk ... you have so much of love and happiness in your voice. May God Bless you with the best in life .
Very Happy For You!! Keep it up Best wishes from Boston, Stay safe. Steve
Congratulations, Jo! I wish you all the best, greetings from Finland
Im so happy for you Jo ♥️ sending love
That's extremely exciting!!! Congratulations! ❤
Jo I’m so happy to hear that you’re finally able to get off of all of the opioids that you were taking for your pain from your amputation.
I really hope that you continue to do well and feel well!!!
I’m so sorry that you had to resort to amputation in order to be able to not be in so much pain.
I wish you all the best in your future.
Fellow chronic pain sufferer here...
As time goes on I think we get used to pain to some extent. I certainly have and any acute pain away from my usual areas hurts way worse than my normal pain. Along with increasing your dose and tolerance to the medication I think its likely your tolerance to the pain increased. At the stable dose you were on it was probably doing nothing, so as you reduce the dose your pain level stayed constant.
I'm on an opiod too and with the slow dose version over night I am wiped the next day. With a different medication type for my illness I've been able to taper my dose and I had a 24hr period without any earlier in the year 🎉 then my new med got temporarily stopped for medical reasons. So up went my opiod dose... I'm back on new med now and tapering the opiod again, but the new med takes 3 months to kick on every single time 🙄 I hope to be able to stop that at some point too.
I agree with you 100% Nicola. I think the pain you feel becomes relevant to how long you have had that pain. The body 'learns' what 'normal' is and the bar moves up.
I've been in increasing pain over many years and for me the levels of pain I'm used to are often hard to even notice if asked by say a Dr what about your pain lately? But when the pain increases where it hasn't yet been Then it is really much harder for me to tolerate That pain level for awhile Until I get used to the new level of pain. Also I've noticed in more recent times that when the pain is tolerable Sometimes if I get a typical pain like what for many people in the world a doable pain without intervention when I get this type of pain and the other Together NO I don't do well in tolerance for awhile when this happens either. But then I get used to that also, thankfully those types of pain are fleeting at least until some other pain comes along lol ... I didn't think my post would be this long and I realize I may not have explained well I get mental fatigue and brain fog as well as other communication challenges I'm fairly used to but not always clear at explaining those either heh 🤷
That is so incredible! I'm so happy for you!
That is INCREDIBLE Jo! I am proud of you!
Congrats Jo!!!! This is a huge accomplishment. Definitely calls for celebrating.
So happy for you Jo!!!!
I’m really excited for you! It’s a kind of freedom.
You are one amazing strong woman. An inspiration for so many. Always be proud of yourself and your achievements. I wish more doctors understood the mechanics of long term effects of opioids (addiction vs dependence) as well as you do.
Yay !!!!! I do love me some Footless Jo !
Good on you, my prayers for continued healing.
Congrats, I am so happy for you!!
Congratulations, that’s awesome!
I'm so excited for you. I love hearing that there is a possibility that someone can come off. I haven't been put on the longer lasting kind, except right after a surgery. I do still have the prescription for them every 4-6 hours. I've been on the same dose for 5 years now. I've been thinking about trying to go off of them for quite a while because I keep thinking the same you did about where will I be in 5 more years from now. Or like when I'm really old.
Smiling so hard right now for you! You got this!
Your energy is palpable. So happy for you Jo!! Keep up the good work. But don’t beat yourself up if you end up needing something for pain down the road. Hopefully this “detox” will make it so you can take lower doses when needed. Take care! 💜
So happy for you today Jo!
Dont have time to watch right this second but i am so proud and happy for you as im sure the pain was a struggle some days. So happy for you!
I'm so happy for you! You go, girl!
Way to go! Happy for you!
I love the way you make it clear that pain medication still has a place for those who need it and take it properly. So many people when they get off of them swing the other way and act like everyone should. As well as medical professionals it seem go to the extreme and think because there is abuse then we should stop prescribing all together. There needs to be a balance and every case is not the same. And you are a perfect example that not every case is the same and not every situation is the same forever. At one time you needed them and now hopefully you will be able to continue your journey away from them!! I wish you so much success you seem to be a very lovely caring person and thank you for sharing your story your love and your joy!!
Just saw the title and I'M SO HAPPY FOR YOU omg
Fantastic lady!
I’m so happy for you.
This is awesome! And it makes sense to have tried to do it at this time. I wasn't sure how it was going after the first video where you talked about it. It might be good too to talk to your pain doctor and neurologist about non opioid medications to use for the chiari headaches and migraines. That is if they pick up more to the point you need something. OTCs not touching my neck and head pain is what got me back to a neurologist. I have two RXs I can use and it's always a guess which one will work and I take pseudoephedrine daily because it keeps the pressure down around my brain. I hate being on daily medication but it's what I need right now. I hope the 2 weeks since you've posted this you've been able to stay opioid free!
The feeling of getting off of a medication is amazing
You are helping me in so many ways
I'm so thrilled for you. Day 1!
I'm so happy for you!
I've got chronic pain and am still dependant on certain pain killers, but last year I was able to come off opiate painkillers and now only use them occasionally as I need. If anyone reading this is still on painkillers, there's absolutely nothing wrong with that. We have to do what our bodies need and medication is not a failure.
I agree with everything you said here, PuddingCat! I'm SO glad you were able to come off of opiate painkillers - that's something to be very proud of! But yes, exactly - there's no shame or nothing at ALL wrong with taking them. We all need to find a way to get by, and different solutions work for different people at different times!
I just want to tell you that you are very brave and you are doing a super job trying to free yourself from your meds. I respect you.
I’m beyond stoked for you Jo, I know you may have to take each day as it comes but to get to the stage you’re at is fantastic. It must feel amazing to be present more, instead of blurry from the meds. I was lucky to come off a lot of my meds post chop but not all....yet....🤞🏻🤞🏻Coming off a lot of my meds still feels amazing as I’m more present and my liver and kidneys are functioning so much better. I also use exercise and staying creative to help managing my pain levels better. it really does help both physically and mentally. I really hope you’re able to manage better without especially on those evil migraines days (or just take for migraine days) that would be my dream too, please don’t feel bad if you do.... So so happy for you 🤗🤗🤗
congraaats
I'm glad you're feeling better and your pain is better managed I hope this is a good step for you and that you were able to recognize that your body may not need it take care and stay in touch with your doctor as well
God bless you sweetart.xxxx well done you. Icant wait to get to that position.xxx
Congratulations! I know that is a difficult thing to do. I hope life continues to improve for you!
Amazing news to hear 🙏 am hoping that you can continue this great journey without medications (opioid) am so very happy for you! I enjoy watching your vedios. Keep up the good work❤️👍
I´m constantly talking about you with people you´re an inspiration, love from Costa Rica
Congratulations! I hope that you are able to live without pain meds, but also please don’t feel guilty if you need to take anything. As long as you are safe happy and comfortable that’s what matters. That being said this is an amazing accomplishment! You are a total badass
So happy for you 💕
I am soo happy for you! As someone with chronic pain, I aspire to be like you
SO GREAT TO HEAR and that you have support in your live. Please accept my virtual hug. God bless you Jo.
Congratulations 🎉 continued success. I am on 2 meds I will never be off of but getting off pain meds was a good thing for me as well. Have a great rest of the day.
Congrats!!!!! Exercise is also a miracle drug. Keep staying positive and moving forward 💕
Congratulations for achieving a valued personal goal! I always appreciate how you make sure you express you are not against medication. Managing chronic pain, to be as 'normal' as I can, I'm not persecuted now by the Anti-Medication Inquisition. But I certainly have been. As my former PCP well understood (from my sharing histories) well understood like other abuse survivors, "Rage is never far away.."
Congratulations!! Thats an awesome feat to conquer! I myself am 2 weeks free of all opiates & i started taking them in 2008 after suffering an injury at work that destroyed my left shoulder and I needed 3 very extensive reconstruction surgeries. I suffered with really bad neck pain and that led me to suffer from clusters of migraines (it was hard to enjoy anything in my life).....now my life is totally different and eventhough im not 100% the same prior to the injury.....im most definitely back to enjoying my life without the aide of pharmaceuticals. This video is super informative and i love the fact you were so open about ur own personal thoughts on the matter and did it with grace. Love ur smile & godspeed for the days ahead ❣🥰
Its so good to hear that you can start to come of these drugs. Same for me, not against drugs. But its great to know you dont need them any longer. Thank you for stressing that it is under medical supervision. I hope you keep doing well in the current situation (medication wise and the other stuff thats going on)
Also, as a biomedical science student; science still doesn't understand pain all that well. This is why it is important for people to understand their own body and communicate to doctors about how to manage their pain. And for those doctors to listen.
Congratulations I know that's a big step!!!
I have been on sleeping medication and strong pain meds like you for several years. I have a very painful chronic disease that leaves me in pain every moment in the day and night. I am currently in the tapering down process and it’s amazing as to how my body is working with me. The pain just seems manageable without these meds, I don’t understand how it’s possible, but it’s working! No one else understands amazing 18hrs feels without pain meds, it’s really incredible! Well done to you, long term I think you (and myself) will be so glad you made this choice to stop them!
im so happy for you! that rocks!
Yeah Jo good job I have back issues and live with pain daily it is no fun I'm so happy for you sending you good thoughts 💕
GREAT NEWS! Thanks for sharing.
I feel so happy for you ♡
So happy for you!!!!👍🏼🤗
Good for you. If it works, and the docs are working with you- go for it. Using the current situation to work this out is smart.
I have some meds I will never stop taking. I need them to keep the ticker working and the brain on track. But if I get my meds reviewed often to see if things can be trimmed.
I truly hope it continues to work for you.
I am so extremely proud of you, Jo! I supported an ex through withdrawal from two types of opioids, a patch based and a pill based... His withdrawal was intense and afterwards he had extreme anxiety... I really hope you had a less intense time than he had
Congrats Jo 💪