Thank you! I recently found your channel, and I look forward to watching all videos. I have had fibro for over 20 years and feel like I can relate to what you say.
I'm so glad you found my channel, and it means a lot to hear that you're looking forward to watching all the videos! Living with fibromyalgia for over 20 years is an incredibly long journey, and I'm truly sorry for the challenges you've faced along the way. It's my hope that by sharing my experiences and insights, I can offer some comfort, understanding, or even new strategies that might help people with Fibromyalgia manage their symptoms. Knowing that you can relate to what I say reinforces the importance of creating content that resonates with our community. Please feel free to share your own experiences, tips, or any topics you'd like to see covered in future videos. Thank you so much for your message and for joining our community!
I just turned 70 and was diagnosed with Fibromyalgia in my 40's.... fortunately i was diagnosed by a Dr who suffered from Fibromyalgia too and ended up having to quit her practice because of it 😔. Thank you so much for your videos, I really enjoy them, makes me feel not so much alone in this illness ❤ Social Anxiety is one of my worse symptoms . I spend most days alone, because I do best with quiet peaceful days. Any type of socializing takes alot of energy ..even with my family. Sleep does not come easy..pain through the night keeps me awake ...most my pain is in my neck which i injured years ago in a motorcycle accident on the freeway. So neck, back, shoulders ugh 😫. But I exercise on my rebounder (gentle bounce for my lymphatic system). Somedays if in a flare up i have to just rest. But i do feel better mentally if I am able to exercise. I definitely can't over do it! Or ...it will be weeks to months before i can exercise. I love being out in nature for walks too . soothing to my soul. Love the ocean and stay alot at our Ocean Resort. I am on Hormone Replacement Therapy....that definitely helps with pain and have no more hot flashes & depression 😊. Please don't stop posting ever! Hugs & Prayers 🙏
It's truly inspiring to hear about your journey and how you've navigated the challenges of fibromyalgia. It makes me so happy that my videos bring you comfort and a sense of companionship in dealing with this illness. It's a powerful reminder of why sharing our stories is so important. Your approach to managing symptoms shows incredible resilience and awareness of your body's needs. The fact that Hormone Replacement Therapy has been beneficial in managing some of your symptoms makes me very hopeful. 🙏❤
I hope your therapy works for you and you can go on your trip to Thailand. I had a long flight of around 24 hours and it was rough on the return trip and I missed the last day of sight seeing as I was in a bad flare but it was worth it. When I travel now I try to add in at least one day where I can just sit around my hotel room and do nothing but rest as I find that helps. And wow-7k subs! I hope your channel gets promoted more as well as you do a lot of work to bring lots of good info and inspiration!
Thank you so much for your kind words and thoughtful advice! I'm really looking forward to the trip to Thailand, and hearing about your experience, despite the challenges, makes me even more excited. It's a great tip to schedule a rest day during travel. I'll definitely book a comfortable hotel near the airport the day I arrive and get myself 24 hours of just rest. I really hope it happens as I am getting very excited as I plan it. I can imagine how tough the 24-hour travel must have been, especially with the flare-up towards the end. But it's great to hear that you found the overall experience worth it. That's the kind of attitude I hope to maintain during my travels. And about the 7k subscribers - that's such an encouraging milestone! Thank you for recognizing the effort that goes into the channel. Your support means a lot, and it motivates me to keep creating content that is not only informative but also inspiring. Let's hope for more growth and opportunities to spread positive messages. Thank you again for your support and advice!
I’m so happy that found your channel. We actually have a lot of auto-immune diseases in common. I was diagnosed with AS 9yrs ago, I have had chronic migraines my whole life, I was diagnosed with Crohn’s 6yrs ago and diagnosed with Fibromyalgia about 2yrs ago. I also have hypothyroidism. I just turned 50 in January and it was so nice to find someone who understands what I’m going through. My husband and kids are great, but it’s not the same. I’m a CCA, I worked both in a Nursing home and with Home Care, however, I haven’t been able to work for almost 3yrs because of all my illnesses/disabilities. Most days I feel lost…..
First off, a huge welcome to our channel community! 🌟 Finding out we share similar health challenges is comforting but I'm truly sorry to hear about the difficulties you've faced, especially impacting your work and day-to-day life. Turning 50 and navigating these conditions shows remarkable strength, and it’s wonderful to hear you have the support of your family. It’s so true, though, that there’s something deeply comforting in connecting with others who truly understand our experiences. Feeling lost is a feeling many of us can relate to, especially on the tougher days when the path forward seems unclear. I hope this channel can be a space for you to find comfort, information, and a sense of belonging. Let's continue to share, support, and uplift each other. You’re not alone, and every piece of your story adds to this community. Sending you a lot of strength and warmth. 💜
Hoping you do great on the hormones. You’re working so hard and I hope your channel picks up. It is hard to find anybody that is doing what you are on CZcams. You have so much information. Love your channel.
Thank you so much for your support! It truly means a lot to me. I'm working hard to share my journey and provide valuable information, hoping it helps others in similar situations. Knowing that you find my channel informative is very motivating. I just started the hormone therapy and I will be documenting every step of the way. Thanks again for being such an amazing part of our community!
That's fantastic to hear how much hormones have transformed your life! It's always encouraging to learn about treatments that significantly improve someone's well-being. Thank you for sharing your positive experience, and I appreciate your kind wishes. Let's keep sharing our progress and supporting each other on our paths to better health!
I’m sorry you missed your MRI appointment. I know you were waiting for that test. I hope you start feeling better. I enjoy your real life vlogs… I remember when you were celebrating 1,000 subscribers… you’ve got this… 💪💗
Thank you so much! I’m very upset about the MRI. I think I might actually go to Brazil to get it done there. I’ll definitely share if that is the case. My goal is to get to 10k before the summer but more than that I would like to have all my videos to get at least 1K views. I’m working really hard towards that but often I feel I have no control at all of the outcome. I guess that is the CZcams life….
I'm so glad you had a great experience with the obgyn and that you're on hormone treatment now! Let us know how it goes! I hope it brings you great relief. And I hope you make it to Thailand!
Thank you for the encouragement! I'm hopeful that it will bring me relief i and will definitely keep everyone posted on how things progress. And yes, Thailand is still very much on my dream list! I'm working on making it happen, and fingers crossed I'll be sharing some amazing stories from there soon.
I just found your channel and I enjoy listening to it. I’ve had fibromyalgia for years and I have been having a bad flare up. Its good to see someone going through the same thing that I go through. Keep it up.❤❤❤😊
I'm really glad you found my channel, and I'm so happy to hear that you enjoy it, especially during a challenging time with your flare-up. Knowing we share similar experiences makes this journey feel less isolating for both of us. I'll continue to share my story, hoping it can offer some comfort or help in any way. Let's keep supporting each other. Your encouragement means a lot, and I truly appreciate your kind words. Sending you lots of love! ❤️😊
My husband wants to go to Thailand next month, but I don't think my body can physically handle a 30 hour flight. I know my body and it would send me into a flare. My husband doesn't seem to understand what I need or can and can't do. I try to explain but healthy people don't get it. I want to travel, but ever since my diagnosis, I am afraid of travel. I told him I would rather travel domestic and see this beautiful country that we live in. I am turning 50 this month and I have never seen much more than Washington State. I want a camper van so I have a home with a bed and toilet wherever we go.
Navigating travel desires and physical limitations is a difficult balancing act. It's understandable that a 30-hour flight seems daunting and could potentially trigger a flare-up, given the stress and physical demands of long-haul travel. It's a big ask for your body, and it's totally valid to worry about a flare-up Trying to get your partner to see the full picture when they don't live with your condition can be like explaining color to someone who's only ever seen in black and white. Your idea to explore domestically and see the beauty of your own country is wonderful. We often don't see the beauty in our own backyard. Travelling in a camper van is an excellent compromise, offering the comfort of having your own space with necessary amenities like a bed but also allowing for flexibility in your travel plans, the ability to rest when needed, and the opportunity to explore at your own pace. If you get to Thailand and you are in a bad flare it will be no fun for either of you. Would your partner rather have you well, participating and happy while travelling domestically or sick and grumpy while in Thailand? Perhaps you could share more about how travelling domestically and in a camper van aligns with your needs. I'm also turning 50 next month! If you end up going to Thailand let me know as I am planning on going in March. Maybe we could meet on the other side of the world. Lol!!
Just bump in your channel, do you have expertion with the medice naltrexon? I have a flare for 5 mounth now. After 10 y off fibro my toolbox what normaly helpt in flares dont work any more. Back in a wheelchair... turn 50 in a few mounth maby become older...
I'm sorry to hear about the tough time you're having with your fibromyalgia flare-up, especially after managing it for so many years. It sounds like you've been through a lot, and finding that your usual methods aren't as effective right now must be overwhelming. While I'm not a doctor and can't offer medical advice, I can share that low-dose naltrexone has really helped me manage my Fibromyalgia. I'm also turning fifty next month and I agree that this doesn't get any easier with time. Wishing you strength and hope you find a path back to better days soon.
@@tt_looking_glass Thx for reaply, 6 mounth a go i did for two years 3 u hour per day 3 day per week volentaer work. So a bit of intgration in the world aftershave many yesrs housebound. So my body and braintrainig was finnly don i thout.in september suddly gut problem. En sins then back in shutdown. Grrr sorry form my bad writing grtj from belgium
I don't believe the pain is directly linked to hormones, but I suspect that the decrease in estrogen levels might be indirectly contributing to an increase in inflammation throughout my body. This heightened inflammatory response could be exacerbating my autoimmune condition. It's a complex interaction between hormonal changes and the immune system, and it seems like the reduction in estrogen is playing a significant role in triggering these symptoms.
Very happy for you! Quality of Life is so important. Wishing you all the best. ❤️🙏
Thank you. 🥰 I’m very excited and hopeful.
Thank you! I recently found your channel, and I look forward to watching all videos. I have had fibro for over 20 years and feel like I can relate to what you say.
I'm so glad you found my channel, and it means a lot to hear that you're looking forward to watching all the videos! Living with fibromyalgia for over 20 years is an incredibly long journey, and I'm truly sorry for the challenges you've faced along the way. It's my hope that by sharing my experiences and insights, I can offer some comfort, understanding, or even new strategies that might help people with Fibromyalgia manage their symptoms. Knowing that you can relate to what I say reinforces the importance of creating content that resonates with our community. Please feel free to share your own experiences, tips, or any topics you'd like to see covered in future videos. Thank you so much for your message and for joining our community!
I just turned 70 and was diagnosed with Fibromyalgia in my 40's.... fortunately i was diagnosed by a Dr who suffered from Fibromyalgia too and ended up having to quit her practice because of it 😔.
Thank you so much for your videos, I really enjoy them, makes me feel not so much alone in this illness ❤
Social Anxiety is one of my worse symptoms . I spend most days alone, because I do best with quiet peaceful days.
Any type of socializing takes alot of energy ..even with my family.
Sleep does not come easy..pain through the night keeps me awake ...most my pain is in my neck which i injured years ago in a motorcycle accident on the freeway. So neck, back, shoulders ugh 😫.
But I exercise on my rebounder (gentle bounce for my lymphatic system). Somedays if in a flare up i have to just rest. But i do feel better mentally if I am able to exercise. I definitely can't over do it! Or ...it will be weeks to months before i can exercise. I love being out in nature for walks too . soothing to my soul. Love the ocean and stay alot at our Ocean Resort. I am on Hormone Replacement Therapy....that definitely helps with pain and have no more hot flashes & depression 😊.
Please don't stop posting ever! Hugs & Prayers 🙏
It's truly inspiring to hear about your journey and how you've navigated the challenges of fibromyalgia. It makes me so happy that my videos bring you comfort and a sense of companionship in dealing with this illness. It's a powerful reminder of why sharing our stories is so important. Your approach to managing symptoms shows incredible resilience and awareness of your body's needs. The fact that Hormone Replacement Therapy has been beneficial in managing some of your symptoms makes me very hopeful. 🙏❤
That is great.
I hope your therapy works for you and you can go on your trip to Thailand. I had a long flight of around 24 hours and it was rough on the return trip and I missed the last day of sight seeing as I was in a bad flare but it was worth it. When I travel now I try to add in at least one day where I can just sit around my hotel room and do nothing but rest as I find that helps. And wow-7k subs! I hope your channel gets promoted more as well as you do a lot of work to bring lots of good info and inspiration!
Thank you so much for your kind words and thoughtful advice! I'm really looking forward to the trip to Thailand, and hearing about your experience, despite the challenges, makes me even more excited. It's a great tip to schedule a rest day during travel. I'll definitely book a comfortable hotel near the airport the day I arrive and get myself 24 hours of just rest. I really hope it happens as I am getting very excited as I plan it. I can imagine how tough the 24-hour travel must have been, especially with the flare-up towards the end. But it's great to hear that you found the overall experience worth it. That's the kind of attitude I hope to maintain during my travels.
And about the 7k subscribers - that's such an encouraging milestone! Thank you for recognizing the effort that goes into the channel. Your support means a lot, and it motivates me to keep creating content that is not only informative but also inspiring. Let's hope for more growth and opportunities to spread positive messages. Thank you again for your support and advice!
Always love seing your videos ❤️ it’s such a great channel and you are sooo appreciated ❤
You're the best! Thank you for being such a wonderful part of our community!
I’m so happy that found your channel. We actually have a lot of auto-immune diseases in common. I was diagnosed with AS 9yrs ago, I have had chronic migraines my whole life, I was diagnosed with Crohn’s 6yrs ago and diagnosed with Fibromyalgia about 2yrs ago. I also have hypothyroidism. I just turned 50 in January and it was so nice to find someone who understands what I’m going through. My husband and kids are great, but it’s not the same. I’m a CCA, I worked both in a Nursing home and with Home Care, however, I haven’t been able to work for almost 3yrs because of all my illnesses/disabilities. Most days I feel lost…..
First off, a huge welcome to our channel community! 🌟 Finding out we share similar health challenges is comforting but I'm truly sorry to hear about the difficulties you've faced, especially impacting your work and day-to-day life.
Turning 50 and navigating these conditions shows remarkable strength, and it’s wonderful to hear you have the support of your family. It’s so true, though, that there’s something deeply comforting in connecting with others who truly understand our experiences.
Feeling lost is a feeling many of us can relate to, especially on the tougher days when the path forward seems unclear. I hope this channel can be a space for you to find comfort, information, and a sense of belonging.
Let's continue to share, support, and uplift each other. You’re not alone, and every piece of your story adds to this community. Sending you a lot of strength and warmth. 💜
Another great blog.
Yay a new vlog!!!🤍
Hope you enjoyed it!
Pretty pup ❤
Thank you. 😊
❣
Hoping you do great on the hormones. You’re working so hard and I hope your channel picks up. It is hard to find anybody that is doing what you are on CZcams. You have so much information. Love your channel.
Thank you so much for your support! It truly means a lot to me. I'm working hard to share my journey and provide valuable information, hoping it helps others in similar situations. Knowing that you find my channel informative is very motivating. I just started the hormone therapy and I will be documenting every step of the way. Thanks again for being such an amazing part of our community!
I am on biologic hormone pellets. It has been life changing! Hope you get relief soon
That's fantastic to hear how much hormones have transformed your life! It's always encouraging to learn about treatments that significantly improve someone's well-being. Thank you for sharing your positive experience, and I appreciate your kind wishes. Let's keep sharing our progress and supporting each other on our paths to better health!
I’m sorry you missed your MRI appointment. I know you were waiting for that test. I hope you start feeling better. I enjoy your real life vlogs… I remember when you were celebrating 1,000 subscribers… you’ve got this… 💪💗
Thank you so much! I’m very upset about the MRI. I think I might actually go to Brazil to get it done there. I’ll definitely share if that is the case. My goal is to get to 10k before the summer but more than that I would like to have all my videos to get at least 1K views. I’m working really hard towards that but often I feel I have no control at all of the outcome. I guess that is the CZcams life….
I'm so glad you had a great experience with the obgyn and that you're on hormone treatment now! Let us know how it goes! I hope it brings you great relief. And I hope you make it to Thailand!
Thank you for the encouragement! I'm hopeful that it will bring me relief i and will definitely keep everyone posted on how things progress. And yes, Thailand is still very much on my dream list! I'm working on making it happen, and fingers crossed I'll be sharing some amazing stories from there soon.
I just found your channel and I enjoy listening to it. I’ve had fibromyalgia for years and I have been having a bad flare up. Its good to see someone going through the same thing that I go through. Keep it up.❤❤❤😊
I'm really glad you found my channel, and I'm so happy to hear that you enjoy it, especially during a challenging time with your flare-up. Knowing we share similar experiences makes this journey feel less isolating for both of us. I'll continue to share my story, hoping it can offer some comfort or help in any way. Let's keep supporting each other. Your encouragement means a lot, and I truly appreciate your kind words. Sending you lots of love! ❤️😊
My husband wants to go to Thailand next month, but I don't think my body can physically handle a 30 hour flight. I know my body and it would send me into a flare. My husband doesn't seem to understand what I need or can and can't do. I try to explain but healthy people don't get it. I want to travel, but ever since my diagnosis, I am afraid of travel.
I told him I would rather travel domestic and see this beautiful country that we live in. I am turning 50 this month and I have never seen much more than Washington State. I want a camper van so I have a home with a bed and toilet wherever we go.
Navigating travel desires and physical limitations is a difficult balancing act. It's understandable that a 30-hour flight seems daunting and could potentially trigger a flare-up, given the stress and physical demands of long-haul travel. It's a big ask for your body, and it's totally valid to worry about a flare-up Trying to get your partner to see the full picture when they don't live with your condition can be like explaining color to someone who's only ever seen in black and white.
Your idea to explore domestically and see the beauty of your own country is wonderful. We often don't see the beauty in our own backyard. Travelling in a camper van is an excellent compromise, offering the comfort of having your own space with necessary amenities like a bed but also allowing for flexibility in your travel plans, the ability to rest when needed, and the opportunity to explore at your own pace.
If you get to Thailand and you are in a bad flare it will be no fun for either of you. Would your partner rather have you well, participating and happy while travelling domestically or sick and grumpy while in Thailand?
Perhaps you could share more about how travelling domestically and in a camper van aligns with your needs. I'm also turning 50 next month! If you end up going to Thailand let me know as I am planning on going in March. Maybe we could meet on the other side of the world. Lol!!
Just bump in your channel, do you have expertion with the medice naltrexon? I have a flare for 5 mounth now. After 10 y off fibro my toolbox what normaly helpt in flares dont work any more. Back in a wheelchair... turn 50 in a few mounth maby become older...
I'm sorry to hear about the tough time you're having with your fibromyalgia flare-up, especially after managing it for so many years. It sounds like you've been through a lot, and finding that your usual methods aren't as effective right now must be overwhelming. While I'm not a doctor and can't offer medical advice, I can share that low-dose naltrexone has really helped me manage my Fibromyalgia. I'm also turning fifty next month and I agree that this doesn't get any easier with time. Wishing you strength and hope you find a path back to better days soon.
@@tt_looking_glass
Thx for reaply, 6 mounth a go i did for two years 3 u hour per day 3 day per week volentaer work. So a bit of intgration in the world aftershave many yesrs housebound. So my body and braintrainig was finnly don i thout.in september suddly gut problem. En sins then back in shutdown. Grrr sorry form my bad writing grtj from belgium
Volunteer work is a wonderful way to feel connected and valued. I hope you can get your gut problems improved soon.
do you think your back pain is from hormones or it's different symptoms?
I don't believe the pain is directly linked to hormones, but I suspect that the decrease in estrogen levels might be indirectly contributing to an increase in inflammation throughout my body. This heightened inflammatory response could be exacerbating my autoimmune condition. It's a complex interaction between hormonal changes and the immune system, and it seems like the reduction in estrogen is playing a significant role in triggering these symptoms.
I’m going to gyn end of this month and I’ll talk to him about this.
Let me know how it goes.