“Newly Diagnosed with Parkinson’s: Now What?” with Dr. Aaron Haug
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- čas přidán 29. 06. 2024
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In this webinar, Dr. Soania Mathur, family physician and person living with Parkinson’s for over 20 years, speaks with movement disorder specialist Aaron Haug, discussing the most important information to know if you or someone you know has recently been diagnosed with Parkinson’s.
For more resources for someone who’s been newly diagnosed with Parkinson’s, make sure and check out the following link for numerous free resources to help you navigate this diagnosis. davisphinneyfoundation.org/re...
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Mentioned Links
Getting Involved in Research: clinicaltrials.gov
Every Victory Counts Manual: davisphinneyfoundation.org/ev...
Davis Phinney Foundation Home Page: davisphinneyfoundation.org/
0:00 - Introduction
3:01 - What Symptoms are Looked at When Diagnosing Parkinson’s?
5:26 - The Non-Motor (Non-Movement) Symptoms of Parkinson’s
8:53 - What's Happening in the Brain to Cause Parkinson’s Symptoms?
9:42 - Why Do These Brain Changes Occur?
13:12 - Medications to Treat Parkinson’s Disease
15:44 - Common First Line Medications
20:41 - Does Treatment Vary for Each Person with Parkinson’s?
22:37 - Type of Physician to See for Parkinson’s
24:37 - Team Approach to Managing Parkinson’s and Taking Ownership
27:50 - Lifestyle Changes to Manage Parkinson’s and the Importance of Exercise
32:30 - The Importance of Remaining Social and Having Community
34:33 - How to Know Which Online Resources to Trust
36:50 - Why to Consider Participating in Parkinson’s Research
39:58 - Most Important Advice for Someone Newly Diagnosed with Parkinson’s
Diagnosed 7 years ago at 57. As far as exercise goes I would encourage everyone to try Power for Parkinson's on you tube. Parkinson specific exercises that really make a difference!!
How does it help please
@@kazjac Hi Karen, power for parkinsons classes concentrate on excercises designed to keep you more mobile. From walking to getting out of a chair strengthening muscles including the brain. For many levels of fitness from wheel chair bound to much more vigerious boot camp style workouts. PFP will challenge mind and body with people dedicated to keep you moving. Vocal exercises to promote voice strength and projjection. I would encourage you to give it a try.
Thank you! Very helpful!
Bill was diagnosed a year ago. Power for Parkinson CZcams videos have been terrific for us: they get both our brains and bodies working in challenging and encouraging ways. We began with their beginning series. Highly highly recommend. Free and new videos weekly. Amazing...and free. We're fortunate w/ great senior center with daily classes for PD, excellent neurologist and movement specialist...Power for Parkinson is an important for both of us.
Thank you both so much. That was a really helpful discussion.
Excellent video with great info - diagnosed 2021 with PD and overall doing well.
This video was very interesting, informative and helpful.
Outstanding !!
Very interesting thank you
I am newly diagnosed. Thanks so much!
HELLO, THANK YOU FOR ALL YOU ARE DOING. PLEASE CHECK, ' FIGHTING PARKINSON'S DISEASE AND WINNING.'
I was diagnosed just under 4 years ago & I found this very informative, particularly the information about Dr Haug's approach to the introduction of medications and likely treatment progression relative to development of symptoms. I wish I had heard this 4 years ago and I am very grateful I found the Foundation's CZcams channel. Thank you for shedding light on this complex condition.
Thank you.
Very helpful for me to understand what I'm going through about when I started but just brushed it off until 3 years ago.
Thank you. This was very helpful.
The conversation was very useful as my husband is having Parkinson's from 2 years
Excellent, sound and hopeful presentation. Thank you!
Thank you for this very informative video. The knowledge I gained will be helpful during my first visit with the new neurologist.
I was diagnosed in June 2022 and am on 5 mg of Selegiline.
I was diagnosed in May 2022, and I'm in a rural community. I've had a rough time ..but finally found a good neurologist and am getting good care. Most of my information comes from these videos, and MJ Fox, Parkinson's Foundation...thank you so very much. This answered so many questions. Bless you both and all of us who fight this every day ❤
😊
At 63 i was diagnosed
Great video! I was diagnosed in 2013 and my mom last year in March of 2022, I am sending this video her way. Thank you for doing what you do and being a trusted online resource for the Parkinson's community! 🥰
You are so welcome!
I was diagnosed with Parkinsons in 2015 ,i had mild right handtremors only and i was working telepsychiatry .I did not have any other symptoms .I was started carbilevo 25/100 tid
now i have to larger dose 50/200 cr sinemet three times. I do exercise 5 days. meds did help. I self educated thru UTUBE /grand rounds and lecture. My brother inlaw Dr Krishna kumar practiced as neurosurgeon in Regina and his son is movement disorder specialist in Denver colorado.I take all kinds of b12/b1 and i think exercise does help ie yoga/taichi and treadmil.
36:44 😊😊
How long do you exercise each day? I have the same symptoms as yours. I took madopar 1/2 tablet 4 times a day. I exercise 2 a week, it does help but one of my symptoms that annoying me is that I speak very fast and can hardly understanding. I was sport commentator, it made me stopped my career. Thank you very much.
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What are your views about this?
I have read about usage of high dosage of vitamin B1 for PD. Do you know about this if so what are your views?
As a new patient how much research is going on right now?
Yes thank you both Mom has been on cardio dopa for 5 yrs & Nuplazid for 6months for paranoia which it helps a bit . She is starring now not much communication. In a hospital bed at our house con diapers
We're sorry to hear about the issues your mom is facing. Have you seen our resources for care partners? They might give some ideas about how you can help your mom and maintain your own wellbeing, too. davisphinneyfoundation.org/resources/parkinsons-care-partner-resources/
I was diagnosed with PD the end of Nov. 23. The neurologist I was sent to walked in made a couple entries in the computer and stopped and looked at me and said "You have Parkinson's Disease." The doctor stated he would see again in 3 months, He looked at me and walked out. That was my introduction to this disease. I struggle to find info and I'm trying to educate myself in PD. Very frustrating!
We're sorry to hear you had that experience. If you have any questions we might help with, please reach out to us at blog@dpf.org.
I am getting ready to turn 58-yrs old and I was recently diagnosed by my GM with Parkinson's (2-3 weeks). I think that I might have been experiencing minor effects of tremors for most of last year. Several of the symptoms that I am experiencing are motion disorder (resting tremors, slower movements, stooping at the knees, speaking softly and excessive drooping, bladder issues). I am trying to get into see either the neurologist or a motion disorder specialist to start building the team. My mom's mother had a sister who was diagnosed with PD and her father's brother was diagnosed with PD. So, I am wondering if there are benefits and their risks of determining if hereditary study is of benefit since I have two sons that are in their early twenties. I have started Rock Steady Boxing and general cardio exercise 3 - 4 times per week to determine what is going to work for me while I am still working. Any suggestions?
Thanks for your message, @scottmcdonald359.
We're glad you found us. You're on the right track by paying attention to your care team as early as possible.
Your question about hereditary is interesting. There are many considerations involved in this, but you might start by reading our post about genetic testing and genetic counseling: davisphinneyfoundation.org/genetictestingyopd/
Another good resource to consider (which can provide free is the PD GENEration study: www.parkinson.org/advancing-research/our-research/pdgeneration
Reach us at blog@dpf.org if we can help in any way!
Any recommendations for the central Indiana (Indianapolis) for Neurologist or Motion Disorder Specialist that are taking on new patients?
Hi @scottmcdonald359, we have a group in our Healthy Parkinson's Communities network in Indianapolis.
They produced this document, which you may find helpful: davisphinneyfoundation.org/download/1073323/?tmstv=1704747419
You might also consider reaching out to Carolyn Utesch, an Ambassador of ours from Bloomington: davisphinneyfoundation.org/ambassador/carolyn-utesch/
Just a comment: at the end of the presentation, Dr Haug said that just telling people with Parkinsons that everyone is different. and that their Parkinsons will develop at a different rate from everyone else', is very unsatisfying. I was diagnosed in Nov. 2014, almost 9 years ago, and my doctors will not tell me this information. I know that they have averages from all the medical supervision that Parkinson patients get. And I do understand averages and standard deviations. I do not know why they will not tell me. My neurologist is retiring, and my next visit is with a new neurologist, maybe she will tell me.
Ecellent video and thanks to both of you!