I’ve recently been diagnosed as Hyper Elhers Danlos syndrome. I have problems with my veins bursting when needles are used for sedation and when I have strong spasms. I did dna tests for vaslurs but got lucky I was a negative. But plain ole elhers danlos suffer from vein ruptures and or weakness.
I have E.D.S. too. I have had blowouts in my veins when they are doing blood testing and when this happens the pain in the blowout area can last a month.
I had an English teacher in my senior year of high school, 1989, really liked him. I can remember his name, he was a good teacher. He had veins burst sometimes during class. We were told it was varicose veins. I wonder if it was this? He’s passed away now. This brought back some memories of a good man🥹
I'm hyper Mobile EDS too, mainly really loose joints and weird skin scarring. Was great when I was young but now I'm a lot older the joints don't go back in as nicely and there's a lot more arthritis than I should have for my age.
I'm watching my bones die due to lack of blood flow, my teeth are falling out of my head and cracking apart, and I keep feeling like I have clots in my legs, it's the strangest pain. I'm so tired of being the walking embodiment of Murphys Law
I...actually would love a cross over episode with the two shows. House would probably actually like the kid, and say something along the lines of "finally somone who understands that social norms are a waste of time."
@ihitalick607 it has! honestly as someone with a few disorders that aren't widely talked about or are straight up misrepresented, I'm happy to see pretty much any lesser known one get more visibility lol
Life becomes immeasurable more difficult when you debilitating illness that is undiagnosed, did you factor that in, or you westerners just so jaded and everything is just me, me, me all the time.
Sometimes we have that small douth with people that we loved but they never showed us any love back if they ever cared for us, with or without us admitting it, this is a small peace that he can have, because at the end you only have one mother and we all want to know it at least bealive our mother cares and loved us until the end, it won’t make the paint and trauma go away but it’s a way to make peace with it and start to heal,
My prayers are with you also.Keep ur spirits up don't let negativity be ur prime resource. Life is sssssooooo hard and if we cared as much as we hated who knows what could be done 👍😊
For those of us with Ehrlos-Danlos, we can all have Vascular Ehrlos-Danlos-or symptoms of it. My heart Dr said I had "gerd in my legs" so he did a procedure that "killed off" the extra capillaries. One time thing!!! LOL after 5 times he got frustrated and told me I might wanna get my Ehrlos-Danlos reassessed 😂 my veins kept GROWING BACK. No reason, no rhyme, no precedence, no clue exactly why. One time, maybe. Two times fluke. Five times you gotta be kidding. At least he has a sense of humor!! We gave up. Compression hose are my friends 24/7 😂
I lost all my teeth by 37 and was always accused of never brush my teeth I was in my mid 50’s when I was diagnosed with Ed’s and finally understood so many things wrong with me my son has a even milder version of it than I do. My mother had it but refused to believe she did because she didn’t have the same things I did she refused to admyshe had it, it she did have many of the same things I do yet still refused to believe it. it she’s dead now from dimensia and I don’t worry anymore I worry about my son who will lists d has been Che Jed out by dr’s. So I could care less abywhtbmy mother thought anymore!
@salmontanio212 *hugs* I was born with hip displaysia, my knees started actively dislocating at 7-to where I was in and out of casts every few months. Hip actually dislocated when I was in labor (lol eldest was "a little big" almost 10lbs, and almost 25"!!!!) Drs never could explain the why......so I stopped going. Finally was sent to a rheumatologist at 50 for confirmation of Sjogrens-which I got but he was more excited about my Ehrlos-Danlos....I talked with my hands and he was amazed that as I was talking my fingers & wrists were dislocating and I was just ignoring it (oooohhhh that explained so much!!!!!) My kids both have a few loosey-goosey joints, all mine are.....but like you I was in my 50s. I'm glad they can diagnose it younger now. I hate to tell those who get it there is no cure, just keep your muscles strong to keep your joints in their sockets......
I also have EDS but I don't take pain meds. My rheumatologist put me on 2 meds that keep my pain level down but I have to get my eyes checked every few months.. I also take CBD gummies for severe pain.. Doesn't the pain meds cause stomach problems for you?
I got it from my mom and it’s kinda scary knowing it only gets worse, I’m still towards the beginning of it and I’ve just gotten to the point that I have at least some level of pain every day instead of it only happening during flare ups
I love the character growth that is shown through shawn murphy throughout the show (and the actor is absolutely amazing at his job to top it) but they grew him from someone that couldnt even handle a simple interaction to a full grown surgeon that realized all the feeling of the patients he treated not only their illness but the mental affairs The show is called "the good doctor" and is an absolutely amazing watch
@@arafatrafi9873EDS is the new fibromyalgia, Epstein-Barr, chronic fatigue, and so on. It started out as a list of symptoms and turned into different, unrelated types. Most of the types now have a dna test. The one that is diagnosed the most doesn't and is subjective flexibility/heredity test. I'm under the assumption that most people diagnosed with hyper mobility EDS (30-something year old stay at home moms, although younger people have the same complaints anymore and reddit diagnosis) just need a job and to get better sleep, not stay up until 2am on their phone. The same as the other syndromes I listed. The main complaints from those people are joint pain, fatigue, depression, and flu like symptoms. All can be attributed to bad sleeping habits.
My niece has some pretty bad Vascular EDS, and most of my family on my mom’s side has some form of EDS. It was scary for my niece at the start, but there’s a specialist close by that only deals with EDS and POTS, and they have been a literal life saver. ❤
I got diagnosed with EDS type 3 about 10 years ago. I’m 22 now. It’s absolutely awful but it’s been helpful as I just helped my friend fight for a diagnosis… she sadly has EDS vascular
This reminds me of a story I had read online when I was younger, more than likely fictional but it still hits hard when I think about it. A boy had grown up with a mom who had one eye, she was hideous in his eyes because everyone else had made comments on it growing up. As he grew up he started feeling like his mother was beneath him because of her one eye, even though she was loving, and kind, and cared more about him than anyone else and did absolutely everything she could to make him happy. One day he’s old enough to go to college and leaves his mother behind. Great life with a wife and kid. Great job, lots of money. She would try and come see him and his family on holidays, but his shame led to him running her away and verbally berating her everytime she tried and he told her never to show her face at his house again. That was on Christmas Eve. Skip ahead a little and he goes by the house his mom had lived in, cause she’d passed. She left him a note and explained everything to him, that when he was a child he’d had an accident, and he’d actually lost an eye. Without a second thought his mother gave her eye to him, but she never told him. And for all the hatred and disgust he felt for her. He fell to his knees and cried like a little boy, cause she was gone - and he could never correct the years of mistreatment he put her through. He never even told her he loved her before she died.
My family and i have traps syndrome. My mother got it from her mother. I am 28 and already been through kidney faliure, dialysis, and a transplant. I have it the worst out of my entire family except for her mother who died at 30. No person can understand how much i would willingly trade 10 years of my life to be free of it. After years of depression, depression that kills every hope and dream youd ever have i have started to pick up the pieces. I was told by a doctor at 12 id never make it to 30. Now that medicine has advanced i have a chance, and i have to put myself back together. After years of literal hopelessness, after years and years of feeling cheated by life itself. I am in tears writing this because thats how robbed i will always feel.
My grandma died last year at 102. I always made sure to say “love you” on the phone to her and when saying bye after leaving her place as an adult because we knew her as very closed off. My family was surprised by her response and she got better at saying I love you to other family members. She’d say “love you back”. She once told me within the last two years of her life she didn’t know how to say I love you or be intimate like that because her parents never told her they loved her and it was alien, they never even hugged her so growing up and even as an adult she didn’t know how to do this. It was so touching she’d share that with me. 😢 miss her.
Oh hey i have ehrlors, Recently i went to a manipulative therapy appointment to help with some back and hip pain from carrying my son while hes putting pressureon my Sciatic nerve. I warned the wonderful doctor that was doing my adjustments that im hyper flexible so almost nobody has been able to stretch or pop my joints/muscles without just putting me in pain. She actually took a note and gave me an extra once over on how to approach me and ended up turning me into a limp noodle plus doing some extra work on my upper body and neck that was noticed from previous injuries. It was the first time in my life that anyone was able to help me out in that manner and it is blissful Freaked her out by popping my hip joint in and out though 😅
@@antumbraeclipse340 there are therapies to strengthen your problem areas. I just got a specialty strap to wear on long road trips to see if it will help me not slightly pull my hips out of joint. It takes a while to work out the pain and be able to walk on road trips.
“So the only thing my mother gave me was a potentially deadly disease” Real. I have two neurodivergent conditions and an autoimmune disorder, all from my dad’s side
As parents, we are all too often, don't know we have a diseases we pass on. My eldest had her tubes tied bc of her daughter's problems that seem to have skipped her but landed on her daughter. Asthma. Severe ADHD. Allergies. Delayed development. In her late 20's she was diagnosed with her own asthma and allergies. They also both have small heads -- no one in either my fam or her father's has this, but there is obviously something from both sides combined to cause this. 😢
The only thing I got from my father was the possibility of macular degeneration, which could rob me of some if not most of my sight. He hasn't been in my life since I was 7 months old.
It took awhile for this show to grow on me. But, it is a really good show. Great writers! As shown in this clip. It also helps having a fantastic cast to deliver the lines written by said writers!
@@gsbrockway349 thats when you say "I aint the one that spread my legs for someone with no rubber" how can you be the one who messed up her life when you are a result of her action... unless there is something fucked up underlying as to how you came to be i dont see her logic..
Imagine calling the cops on an autistic Dr whose taken the time to bother to care and has shown up to your door to save you.... seemingly out of respect for life. Some scenes are very silly and great all at the same time. I dont like so much of it but ive watched most of it. Go figure.
It's just that he thought his mother never loved him so he already hated (or pretended to hate) his mom. That's why he didn't want to hear anything related to her.
I have EDS, and a friend of mine has the severe form mentioned here. She lost a child really young to a random brain aneurysm because he inherited her condition. It's devastating.
@@hayleyclark2711 wow! What’s the symptoms of a brain stem stroke? I had what they said was a TIA when I drained the blood out of my head with a million pin pricks in the back of my head and then I lost eyesight. I was sitting at a red light and had just enough time to say oh! holy shit! Oh! Holy shit! ( I thought I was dying) when my eyesight returned and I drove myself to the hospital. I had no lasting effects other than a small spot on my right eye that they kept watching, it faded on its own so they decided it was a cataract. Now I suffer constant scleritis over and over again. Not related to EDS.
I was just diagnosed with EDS, not the vascular kind. Its one of the not to invasive or extreme stages. My whole life doctors wouldnt listen to me. They kept saying suspected autoimmune but then wrote me off saying fibromyalgia as usual. I have torn ligaments, broke toes and fingers and dislocated my sternaclavic 3 times and super flexable amongst other symptoms. Then a few weeks ago I was walking down steps on a trail. My foot hardly hit the wood step with much force but i immediately felt severe pain. It felt like my big toe had to pop. It kept me up for 2 days until i finally got in a hot bath for the 8th time and decided to try and pop it. I hardly even touched my toe and i heard a crack like a chicken bone and i cried in a pillow all night trying to now wake my fiance lmao i couldnt stop crying. I never cry but this was bad. Went to urgent care where i was told i tore ligaments and she looked at my medical recorded and told me "someone dropped the ball years ago. EDS is hard to diagnosis but for how many times you have dislocated, broke and tore ligaments that needed surgery 3 times, someone didnt want to do their job and probably due to your insurance" Fml. Im glad i know now but theres no cure but I've dealt with this my whole life and used to it.
Some times people need to stop interrupting and let a person finish speaking. I love this show because Shawn always has so much to say. But it's always getting interrupted and he gets discounted undervalued until everyone understands it's important. After awhile as people get use to him. They stop interrupting. But it takes such a long time before people give him respect
Someone please see this comment and answer for me- I’m 17 and terrified because I don’t understand what’s so dangerous about EDS but I have been diagnosed with it and I see people talking about needing to be tested for something in the comments I’m so confused
I literally almost burst into tears when i saw the clip... I among others have the hypermobile variant, which is not fully known what gene link it is... I love seeing more regarding EDS and one of the WORST and DEADLIEST variants of it!
@@rheanekagearashiwoods I just got my results that I don’t have the vasulars type only HEDS. My veins started bursting when trying to sedate me for surgeries( bad back) I had to get a port put in to access my veins. I learned that even EDS patients can have weak veins because of the tissue issue.
i have ehlers danlos syndrome, but i have a different kind, i have hypermobile EDS. i also have autism. and my special interest is medical stuff. fun fact, hypermobility and autism are commonly comorbid. this is due to both of the genetic mutations being in a similar area of the DNA. part of the balance issues, odd posture, and bad spatial awareness that autistic people have is often related to being hypermobile. since its been discovered that most people that have one will have the other, when youre getting evaluated for one, a common screening question is to ask if you have the other. also, if you get diagnosed with one, doctors will often recommend that you be evaluated for the other.
@@clowncarcollective interesting information, no one asked me those questions when getting the exam or dna testing. I just felt so lucky to not have the vascular EDS. My veins are super weak at 62 though because of HEDS. I have a Pacemaker and a port. All of that before I learned about Elhers Danlos.
@teresareinert8271 it could just be due to when you got diagnosed, and if the doctor(s) had learned about the connection between the two. the link was only discovered in 2016, and (to my knowledge) it wasn't super common knowledge until 2018-ish. I'm also very glad you don't have vascular EDS, as I know it's the worst kind to have, and significantly shortens people's lives. as well as lowering their quality of life. I hope that you're able to live a long life, that's as happy and painless as possible. regarding the link with autism, if you think there's a chance you could have it, I recommend looking into it. especially if you have any family members that are autistic. I know that for me, figuring out I'm autistic was incredibly helpful. I now understand how my brain works, and what accommodations I need to make me able to be as okay as possible. of course, having hEDS doesn't automatically mean you're autistic. but if you figure out that you may be, even if you can't get a diagnosis, it often helps to know how and why our brains work the way they do.
Classical EDS joint hypermobility. loose, unstable joints that dislocate easily. stretchy skin. fragile skin that can split easily, especially over the forehead, knees, shins and elbows. smooth, velvety skin that bruises easily. wounds that are slow to heal and leave wide scars. hernias and organ prolapse. I have it and it sucks
Parents can never get it right 💯 percent of the time. Please lets forgive them for their weaknesses , Honor them regardless and put effort to ensure we don't repeat their mistakes with our own children. Because being a great parent is easier said than done.
@overwatchgeek5735 actually, he does everything he can to identify her mother she arrived at the ER as a Jane Doe, with no one knowing who she was. Her name turns out to be Maribel Ventane, and she has a son named jules ventane - "Coley" Dr. Shaun tracks Jules down to inform him of his mother's death and to request permission for an autopsy. Coley doesn't care how she died and angrily slams the door in their faces shaun persisted in his efforts to obtain coleys consent, for the autopsy, , which eventually leads to coley getting angry and calling the police as a result shaun is arrested and sent to jail.
My ma and Pa never told me that they loved me, they would just say “have you eaten today? I’m making that meal that you like” or they would randomly transfer money to my account. They also left me an inheritance when they passed. Typical Ugandan parents 😅.
I have Yeah Buddy syndrome. Everytime i lift heavy weight i start saying YEEAAAHH BBUUUDDDYYY.. But seriously after i decided to be serious about my health i need no more medications..
I have EDS. I Saw vascular EDS, but I have vascular involvement. I don’t think any of us are without it. The veins in my wrist once exploded because I opened a pickle jar …. This genetic disabling degenerative condition needs to be further understood. #EDS #MedicalAwareness #RareDisease
![James Fridman Photoshop Trolls [2020]](http://i.ytimg.com/vi/5CKFV0vU2WY/mqdefault.jpg)
I’ve recently been diagnosed as Hyper Elhers Danlos syndrome. I have problems with my veins bursting when needles are used for sedation and when I have strong spasms. I did dna tests for vaslurs but got lucky I was a negative. But plain ole elhers danlos suffer from vein ruptures and or weakness.
I have E.D.S. too. I have had blowouts in my veins when they are doing blood testing and when this happens the pain in the blowout area can last a month.
I had an English teacher in my senior year of high school, 1989, really liked him. I can remember his name, he was a good teacher.
He had veins burst sometimes during class. We were told it was varicose veins. I wonder if it was this? He’s passed away now. This brought back some memories of a good man🥹
I'm hyper Mobile EDS too, mainly really loose joints and weird skin scarring. Was great when I was young but now I'm a lot older the joints don't go back in as nicely and there's a lot more arthritis than I should have for my age.
HEDS here, I refuse needles and the moron "drs" lots of painkillers and taking it slow.
I'm watching my bones die due to lack of blood flow, my teeth are falling out of my head and cracking apart, and I keep feeling like I have clots in my legs, it's the strangest pain. I'm so tired of being the walking embodiment of Murphys Law
That last sentence must have meant the world to him......
Even if it was a lie
@@hedroxladimon321 autistic people don’t lie
Too little too late.
More like the end
@@nebs6888never.
‘No, I don’t want to get arrested again.’ 😂 Bless his heart!
😂
😂😂😂
Bendito 🫶🏻🫶🏻🫶🏻😍
The way he just slipped that in and continued like nothing xD
Cue House screaming " GENETIC!" at someone who doesn't care how their family member died
I...actually would love a cross over episode with the two shows.
House would probably actually like the kid, and say something along the lines of "finally somone who understands that social norms are a waste of time."
I know House ended over a decade ago, but a good cop/bad cop crossover would be great, even if it were just for one episode.
film name?
@@user-ub9my1hu7dTV series : House M.D
@@user-ub9my1hu7d if you mean for house the show is called "house md," if you mean the short it's a show called "the good doctor"
I have Hypermobile Ehlers-Danlos Syndrome, it's nice to see it talked about more, especially the rarer forms of EDS
Best wishes to you, stay strong
I’ve noticed MS has been getting a lot more attention lately as well
@@daviee031 thank you!
@ihitalick607 it has! honestly as someone with a few disorders that aren't widely talked about or are straight up misrepresented, I'm happy to see pretty much any lesser known one get more visibility lol
If you have an access to visit a hypermobility clinic ,it will be good for you
She didn't show it at any point during the precious time she had. I'm sorry, doc, but that's 10x more important.
Yup
But it was the closure he needed
Life becomes immeasurable more difficult when you debilitating illness that is undiagnosed, did you factor that in, or you westerners just so jaded and everything is just me, me, me all the time.
Sometimes we have that small douth with people that we loved but they never showed us any love back if they ever cared for us, with or without us admitting it, this is a small peace that he can have, because at the end you only have one mother and we all want to know it at least bealive our mother cares and loved us until the end, it won’t make the paint and trauma go away but it’s a way to make peace with it and start to heal,
he didmt want to hear from his mother, so she died respecting her son''s wishes.
💕 Lovely he thought to tell this mothers son, that she loved him.
He is a beautiful relatable actor, for those of us on the Autism Spectrum
❤️❤️❤️❤️❤️❤️❤️
No he's not. Lol. Speak for yourself.
he doesnt actually have autism hes pretending
I like him❤
Everyone is on the spectrum lol
It sounds soo sweet coming from him in such a calm voice.
Honestly nice to hear EDS becoming more well-known
Whats EDS plz explain if possible
Crazy because damn near everyone has it. That or scoliosis
Absolutely! I believe it's not as rare as they say it is.
This disease runs in my family and my sister just got diagnosed. I'm prayin
White peoples, Reproduced with Asian, then genetic diseases will be less
My prayers are with you also.Keep ur spirits up don't let negativity be ur prime resource. Life is sssssooooo hard and if we cared as much as we hated who knows what could be done 👍😊
@@deannamassey amen
@@deannamasseymost likely not be answered
Good luck, best wishes to you and your family
For those of us with Ehrlos-Danlos, we can all have Vascular Ehrlos-Danlos-or symptoms of it. My heart Dr said I had "gerd in my legs" so he did a procedure that "killed off" the extra capillaries. One time thing!!! LOL after 5 times he got frustrated and told me I might wanna get my Ehrlos-Danlos reassessed 😂 my veins kept GROWING BACK. No reason, no rhyme, no precedence, no clue exactly why. One time, maybe. Two times fluke. Five times you gotta be kidding. At least he has a sense of humor!! We gave up. Compression hose are my friends 24/7 😂
Replacements. I just have to be Cafeful how I use them and how far I reaocor things
I lost all my teeth by 37 and was always accused of never brush my teeth I was in my mid 50’s when I was diagnosed with Ed’s and finally understood so many things wrong with me my son has a even milder version of it than I do. My mother had it but refused to believe she did because she didn’t have the same things I did she refused to admyshe had it, it she did have many of the same things I do yet still refused to believe it. it she’s dead now from dimensia and I don’t worry anymore I worry about my son who will lists d has been Che Jed out by dr’s. So I could care less abywhtbmy mother thought anymore!
@salmontanio212 *hugs* I was born with hip displaysia, my knees started actively dislocating at 7-to where I was in and out of casts every few months. Hip actually dislocated when I was in labor (lol eldest was "a little big" almost 10lbs, and almost 25"!!!!) Drs never could explain the why......so I stopped going. Finally was sent to a rheumatologist at 50 for confirmation of Sjogrens-which I got but he was more excited about my Ehrlos-Danlos....I talked with my hands and he was amazed that as I was talking my fingers & wrists were dislocating and I was just ignoring it (oooohhhh that explained so much!!!!!) My kids both have a few loosey-goosey joints, all mine are.....but like you I was in my 50s. I'm glad they can diagnose it younger now. I hate to tell those who get it there is no cure, just keep your muscles strong to keep your joints in their sockets......
Yeah I got EDS too. I have aneurysms in both carotids and my aorta that they're watching. Gotta have surgery soon To fix them.
@Cat-ti1kc *hugs* happy thoughts and well wishes!!!! ❤️
I have this. I have EDS II and III. Life is so hard. There isn't a cure, they just help with pain meds and other meds.
I also have EDS but I don't take pain meds. My rheumatologist put me on 2 meds that keep my pain level down but I have to get my eyes checked every few months.. I also take CBD gummies for severe pain.. Doesn't the pain meds cause stomach problems for you?
I got it from my mom and it’s kinda scary knowing it only gets worse, I’m still towards the beginning of it and I’ve just gotten to the point that I have at least some level of pain every day instead of it only happening during flare ups
You know a disease is going to suck when it got sequels.
Best wishes to everyone who has this disease, stay strong
I have EDS type 3, it's tough but we need more awareness. I love Shaun in this show, he's so relatable and amazing to watch.
Please stop following me
I love the character growth that is shown through shawn murphy throughout the show (and the actor is absolutely amazing at his job to top it) but they grew him from someone that couldnt even handle a simple interaction to a full grown surgeon that realized all the feeling of the patients he treated not only their illness but the mental affairs
The show is called "the good doctor" and is an absolutely amazing watch
The rollercoaster of emotions for that guy right then 😬😬
All the overthinkers now counting their cavities
All the cavities counting their overthinkers.
Can u explain a bit more about this disease and symptoms..plz??
@@arafatrafi9873EDS is the new fibromyalgia, Epstein-Barr, chronic fatigue, and so on. It started out as a list of symptoms and turned into different, unrelated types. Most of the types now have a dna test. The one that is diagnosed the most doesn't and is subjective flexibility/heredity test.
I'm under the assumption that most people diagnosed with hyper mobility EDS (30-something year old stay at home moms, although younger people have the same complaints anymore and reddit diagnosis) just need a job and to get better sleep, not stay up until 2am on their phone. The same as the other syndromes I listed. The main complaints from those people are joint pain, fatigue, depression, and flu like symptoms. All can be attributed to bad sleeping habits.
I didn't have to count! LOL. My mouth is full of root canals and crowns.
My niece has some pretty bad Vascular EDS, and most of my family on my mom’s side has some form of EDS. It was scary for my niece at the start, but there’s a specialist close by that only deals with EDS and POTS, and they have been a literal life saver. ❤
Best wishes to you and your family, stay strong
I have Hypermobile Ehlers Danlos. We definitely need more awareness on this condition
I got diagnosed with EDS type 3 about 10 years ago. I’m 22 now. It’s absolutely awful but it’s been helpful as I just helped my friend fight for a diagnosis… she sadly has EDS vascular
I love this man, amazing what people with autism can do!❤
This made me laugh and cry a little at the same time all he inherited was a deadly disease from his mother just hearing it cracks me up sick right.
Its weird you felt the need to post this comment and get attention for it. Sick isbt really the right word. Pathetic might work though
This reminds me of a story I had read online when I was younger, more than likely fictional but it still hits hard when I think about it. A boy had grown up with a mom who had one eye, she was hideous in his eyes because everyone else had made comments on it growing up. As he grew up he started feeling like his mother was beneath him because of her one eye, even though she was loving, and kind, and cared more about him than anyone else and did absolutely everything she could to make him happy. One day he’s old enough to go to college and leaves his mother behind. Great life with a wife and kid. Great job, lots of money. She would try and come see him and his family on holidays, but his shame led to him running her away and verbally berating her everytime she tried and he told her never to show her face at his house again. That was on Christmas Eve. Skip ahead a little and he goes by the house his mom had lived in, cause she’d passed. She left him a note and explained everything to him, that when he was a child he’d had an accident, and he’d actually lost an eye. Without a second thought his mother gave her eye to him, but she never told him. And for all the hatred and disgust he felt for her. He fell to his knees and cried like a little boy, cause she was gone - and he could never correct the years of mistreatment he put her through. He never even told her he loved her before she died.
Damn
Well your story just broke my heart. Wow.
Eye transplants don't work like that
@@dominusanuli3595 at least we know who needs new eyes, I said it’s more than likely fictitious and I read it online.
They would have had to reattach the optic nerve, or he would have been blind in that eye... Doesn't seem even remotely possible.
My family and i have traps syndrome. My mother got it from her mother. I am 28 and already been through kidney faliure, dialysis, and a transplant. I have it the worst out of my entire family except for her mother who died at 30.
No person can understand how much i would willingly trade 10 years of my life to be free of it. After years of depression, depression that kills every hope and dream youd ever have i have started to pick up the pieces. I was told by a doctor at 12 id never make it to 30. Now that medicine has advanced i have a chance, and i have to put myself back together. After years of literal hopelessness, after years and years of feeling cheated by life itself. I am in tears writing this because thats how robbed i will always feel.
I’m glad you’re here.
Best wishes to you and your family, stay strong
@@AzraelAngleOfDeath God Bless you and I admire your strength and endurance.
My grandma died last year at 102. I always made sure to say “love you” on the phone to her and when saying bye after leaving her place as an adult because we knew her as very closed off. My family was surprised by her response and she got better at saying I love you to other family members. She’d say “love you back”. She once told me within the last two years of her life she didn’t know how to say I love you or be intimate like that because her parents never told her they loved her and it was alien, they never even hugged her so growing up and even as an adult she didn’t know how to do this. It was so touching she’d share that with me. 😢 miss her.
Oh hey i have ehrlors,
Recently i went to a manipulative therapy appointment to help with some back and hip pain from carrying my son while hes putting pressureon my Sciatic nerve. I warned the wonderful doctor that was doing my adjustments that im hyper flexible so almost nobody has been able to stretch or pop my joints/muscles without just putting me in pain. She actually took a note and gave me an extra once over on how to approach me and ended up turning me into a limp noodle plus doing some extra work on my upper body and neck that was noticed from previous injuries. It was the first time in my life that anyone was able to help me out in that manner and it is blissful
Freaked her out by popping my hip joint in and out though 😅
Best wishes to you, stay strong
@@antumbraeclipse340 there are therapies to strengthen your problem areas. I just got a specialty strap to wear on long road trips to see if it will help me not slightly pull my hips out of joint. It takes a while to work out the pain and be able to walk on road trips.
Pure heart....now i understand the value of having that kind of heart ❤❤
“So the only thing my mother gave me was a potentially deadly disease”
Real. I have two neurodivergent conditions and an autoimmune disorder, all from my dad’s side
As parents, we are all too often, don't know we have a diseases we pass on. My eldest had her tubes tied bc of her daughter's problems that seem to have skipped her but landed on her daughter. Asthma. Severe ADHD. Allergies. Delayed development. In her late 20's she was diagnosed with her own asthma and allergies. They also both have small heads -- no one in either my fam or her father's has this, but there is obviously something from both sides combined to cause this. 😢
The only thing I got from my father was the possibility of macular degeneration, which could rob me of some if not most of my sight. He hasn't been in my life since I was 7 months old.
Love Shaun and this series. Will miss it. ❤
It took awhile for this show to grow on me. But, it is a really good show. Great writers! As shown in this clip. It also helps having a fantastic cast to deliver the lines written by said writers!
🥹❤️❤️😘 That's true this show has taught me medical terms and inspired me to research them further. @nana-x9
What is the show????
@@kimpietrucki7825 The Good Doctor | Season 3, Episode 16 | Autopsy
@@MomentsHub928 The Good Doctor. I've heard if it and seen many shorts with this young man. Thank you!
@kimpietrucki7825 your welcome 😊
I love this doc character its growing in me from watching shorts.
Yeah right nice to have a stranger tell you that your mother loved you and never hearing it from her makes you fell so much better .
I'd rather hear it like this than not at all.
At 35, my mother told me she'd hated me all my life. It was my fault that her life had turned out the way it did.
@@gsbrockway349 thats when you say "I aint the one that spread my legs for someone with no rubber" how can you be the one who messed up her life when you are a result of her action... unless there is something fucked up underlying as to how you came to be i dont see her logic..
I love this Doctor❤
EDS MENTIONED?? VEDS TOO? I have HEDS (hyper mobility) and it fills me with so much joy when its mentioned or brought up ❤
Now he knows his mother dis love him!!!
Imagine calling the cops on an autistic Dr whose taken the time to bother to care and has shown up to your door to save you.... seemingly out of respect for life. Some scenes are very silly and great all at the same time. I dont like so much of it but ive watched most of it. Go figure.
It's just that he thought his mother never loved him so he already hated (or pretended to hate) his mom. That's why he didn't want to hear anything related to her.
Coincidentally I just watched a episode of House MD with the patient diagnosed with elhers danlos syndrome.
My youngest has EDS, the excessively hyperextending joints type. Happy to see that it's being shown more in shows like this.
I have EDS (not this type) and its nice to see us getting attention in the media :)
I have EDS, and a friend of mine has the severe form mentioned here. She lost a child really young to a random brain aneurysm because he inherited her condition. It's devastating.
Holy crap 2 shorts in a row of my conditions, brain stem stroke and vascular eds. My phone is definitly listening lol
@@hayleyclark2711 wow! What’s the symptoms of a brain stem stroke? I had what they said was a TIA when I drained the blood out of my head with a million pin pricks in the back of my head and then I lost eyesight. I was sitting at a red light and had just enough time to say oh! holy shit! Oh! Holy shit! ( I thought I was dying) when my eyesight returned and I drove myself to the hospital. I had no lasting effects other than a small spot on my right eye that they kept watching, it faded on its own so they decided it was a cataract. Now I suffer constant scleritis over and over again. Not related to EDS.
He is honestly my favourite character from across series and movies
Damn thanks for making me cry
I was just diagnosed with EDS, not the vascular kind. Its one of the not to invasive or extreme stages. My whole life doctors wouldnt listen to me. They kept saying suspected autoimmune but then wrote me off saying fibromyalgia as usual. I have torn ligaments, broke toes and fingers and dislocated my sternaclavic 3 times and super flexable amongst other symptoms. Then a few weeks ago I was walking down steps on a trail. My foot hardly hit the wood step with much force but i immediately felt severe pain. It felt like my big toe had to pop. It kept me up for 2 days until i finally got in a hot bath for the 8th time and decided to try and pop it. I hardly even touched my toe and i heard a crack like a chicken bone and i cried in a pillow all night trying to now wake my fiance lmao i couldnt stop crying. I never cry but this was bad. Went to urgent care where i was told i tore ligaments and she looked at my medical recorded and told me "someone dropped the ball years ago. EDS is hard to diagnosis but for how many times you have dislocated, broke and tore ligaments that needed surgery 3 times, someone didnt want to do their job and probably due to your insurance"
Fml. Im glad i know now but theres no cure but I've dealt with this my whole life and used to it.
Thank you for sharing your experience it will help others who read your comment, I hope you're getting better take care of yourself…
“You might be entitled to compensation” was stuck in my mind 😅
Fantastic series. We want series like this
It’s The Good Doctor |Season 3, Episode 16 | Autopsy
@@MomentsHub928 Thank you Sir.
@Govindan999 Your welcome 😉
It’s really amazing to see EDS represented more at the moment. A lot of people still don’t know what it is
"No, I don't want to get arrested again" that was iconic bro
I have hEDS and it really is the worst! It’s wreaked my entire body. Grateful it’s becoming more well known.
Some times people need to stop interrupting and let a person finish speaking. I love this show because Shawn always has so much to say. But it's always getting interrupted and he gets discounted undervalued until everyone understands it's important. After awhile as people get use to him. They stop interrupting. But it takes such a long time before people give him respect
bro just made me teary eyed
😢damn hes lucky he got a good mother
Someone please see this comment and answer for me- I’m 17 and terrified because I don’t understand what’s so dangerous about EDS but I have been diagnosed with it and I see people talking about needing to be tested for something in the comments I’m so confused
I don’t care how emotional the situation is supposed to be. This guy is annoying and drains the emotion out of the situation
I literally almost burst into tears when i saw the clip... I among others have the hypermobile variant, which is not fully known what gene link it is... I love seeing more regarding EDS and one of the WORST and DEADLIEST variants of it!
@@rheanekagearashiwoods I just got my results that I don’t have the vasulars type only HEDS. My veins started bursting when trying to sedate me for surgeries( bad back) I had to get a port put in to access my veins. I learned that even EDS patients can have weak veins because of the tissue issue.
Norman was sentimental
murphy was talking like the guy was legally entitled to a compensation for a disease
I have Hypermobile Ehlers-Danlos Syndrome and POTS to go with it. I’m so glad I don’t have Vascular EDS
The fact that shawn runs past the whole I don't wanna get arrested again...lol
My cousin has that, gastroparesis, and gastric failure along with a few other issues. Her dad died from the ED too.
I wish House could like Cameo in one of the shows at like, the end of his travels with Wilson.. that would've been awesome to see
i have ehlers danlos syndrome, but i have a different kind, i have hypermobile EDS.
i also have autism. and my special interest is medical stuff.
fun fact, hypermobility and autism are commonly comorbid. this is due to both of the genetic mutations being in a similar area of the DNA. part of the balance issues, odd posture, and bad spatial awareness that autistic people have is often related to being hypermobile. since its been discovered that most people that have one will have the other, when youre getting evaluated for one, a common screening question is to ask if you have the other. also, if you get diagnosed with one, doctors will often recommend that you be evaluated for the other.
@@clowncarcollective interesting information, no one asked me those questions when getting the exam or dna testing. I just felt so lucky to not have the vascular EDS. My veins are super weak at 62 though because of HEDS. I have a Pacemaker and a port. All of that before I learned about Elhers Danlos.
@teresareinert8271 it could just be due to when you got diagnosed, and if the doctor(s) had learned about the connection between the two. the link was only discovered in 2016, and (to my knowledge) it wasn't super common knowledge until 2018-ish. I'm also very glad you don't have vascular EDS, as I know it's the worst kind to have, and significantly shortens people's lives. as well as lowering their quality of life. I hope that you're able to live a long life, that's as happy and painless as possible.
regarding the link with autism, if you think there's a chance you could have it, I recommend looking into it. especially if you have any family members that are autistic. I know that for me, figuring out I'm autistic was incredibly helpful. I now understand how my brain works, and what accommodations I need to make me able to be as okay as possible. of course, having hEDS doesn't automatically mean you're autistic. but if you figure out that you may be, even if you can't get a diagnosis, it often helps to know how and why our brains work the way they do.
My wife had VEds, we should never have met, we had 36 years of marriage, 3 kids and she was diagnosed 4 years before she died. It's untreatable.
@@user-ep7lg5mp8r so sorry for your loss, I imagine your children are being tested regularly. 💗
Sad 😢
Those last words of a Mothers love
Imagine just walking up to someone's house and knock on ths door just to tell them "i know why your mother died"
Well she sure didn't show it to him during any of the precious time that she had.
Shaun: "oh, you have problems with a parent? Let me tell you about this bunny I used to have..."
Classical EDS
joint hypermobility.
loose, unstable joints that dislocate easily.
stretchy skin.
fragile skin that can split easily, especially over the forehead, knees, shins and elbows.
smooth, velvety skin that bruises easily.
wounds that are slow to heal and leave wide scars.
hernias and organ prolapse.
I have it and it sucks
Colibri is the Spanish word for Hummingbird...
This show is so unintentionally funny
“No, I don’t want to be arrested again” 😂😂😂😂
Turns out that Coley is the name of the bf of his estranged mom
Colibri is hummingbird in Portuguese too
"I know why your mother died" out of context 😂
"Maybe" loud af ma boi
Parents can never get it right 💯 percent of the time. Please lets forgive them for their weaknesses , Honor them regardless and put effort to ensure we don't repeat their mistakes with our own children. Because being a great parent is easier said than done.
They kinda look good together 😭
When doctors still care enough to make house calls.
Literally, the only doctor I would ever want other than Dr. house or someone from the resident meaning Dr. Kane or Dr. Austin
Bro really showed up to his house.
Strong words❤
P.S. my mom liked Hummingbirds as did my brother. She waited for the hummingbirds. Hoping.
Bro ending made me tear up
His face didn't change much from Charilie and Chocolate Factory.. ❤❤
Imagine being unaware of this series and hearing "no, i dont want to be arrested again"
@overwatchgeek5735 actually, he does everything he can to identify her mother she arrived at the ER as a Jane Doe, with no one knowing who she was. Her name turns out to be Maribel Ventane, and she has a son named jules ventane - "Coley"
Dr. Shaun tracks Jules down to inform him of his mother's death and to request permission for an autopsy. Coley doesn't care how she died and angrily slams the door in their faces shaun persisted in his efforts to obtain coleys consent, for the autopsy, , which eventually leads to coley getting angry and calling the police as a result shaun is arrested and sent to jail.
Colibri is also a word presented in Spanish and Portuguese ('cause of colonization).
Damn, you didn't have to tug my heartstrings like that 😅
Tasha broke Rose down and ate her right on up...wine boiled not spilled😂❤
Ok that's me sobbing!! 😭
that last bit
My ma and Pa never told me that they loved me, they would just say “have you eaten today? I’m making that meal that you like” or they would randomly transfer money to my account. They also left me an inheritance when they passed. Typical Ugandan parents 😅.
I have Yeah Buddy syndrome. Everytime i lift heavy weight i start saying YEEAAAHH BBUUUDDDYYY.. But seriously after i decided to be serious about my health i need no more medications..
"No i dont wannna get arrested again" 😂
The fact that that last sentence came from Shaun, of all people, makes a world of difference, if the guy knows how much shaun Hates lying.
I have EDS. I Saw vascular EDS, but I have vascular involvement. I don’t think any of us are without it.
The veins in my wrist once exploded because I opened a pickle jar …. This genetic disabling degenerative condition needs to be further understood.
#EDS #MedicalAwareness #RareDisease
Oh mah god that hit me in the feels
😭
And she's no more 💔
Colibrì is italian, not french
Colibri means hummingbird in many languages.😊
I learned about EDS from Reddit stories and I hope more people learn of it.
Why would a mother be afraid to tell her son she loves him? Makes no sense