Advanced Parkinson’s with Dr. Cherian Karunapuzha

[@lidaschoeman1528]

I am from South Africa with Parkinson' s from 2006. Thank you for this information. Now I know what to expect in the future.

[@davisphinneyfdn]

Thanks for joining us. Just keep in mind that everyone's experience of Parkinson's is unique! You may not ever encounter all things Dr. K. mentions during this webinar.

[@gshinn1689]

I am in Oklahoma and have the good fortune to have Dr. K as my neurologist. He is one of the best, but I have always had dips with the medication and have non motor symptoms. Exactly as he is describing. The medication management is overwhelming, and it IS very depressing and anxiety provoking. However, I appreciate his encouragement that I can continue working and continue my life, with real quality of life. Cycling and other rigorous exercise is the best medicine, but I have had to accept the reality of multiple medications, and this will never end. It's a lot to manage, but Dr. K and his staff are helping me and my wife navigate what it means to live with Parkinsons. Sometimes I think it's harder on her than on me. Tough stuff, but I feel blessed to have quality care and support.

[@davisphinneyfdn]

Thanks for your comment. Dr. K is one of the best, for sure! We're happy that you have a great care team.

[@johndaniel5165]

very good information and thank you Dr. K

[@marthasway]

I am grateful for these sessions. I am blessed to be a patient of Dr K's, and glad his wisdom is available to others who are impacted by PD.

[@davisphinneyfdn]

Thanks for your comment. We are glad, too!

[@delegewi8884]

This is excellent! Helpful, informative, just excellent.

[@gulserentekbas555]

Greetings from Turkey. Thank you for the detailed information. I am dealing with this illness. ❤

[@davisphinneyfdn]

Welcome!

[@splashesin8]

Thanks.

[@margaretmagno8098]

This is the only discussion of advanced stages, print these which I am in parentheses

[@dadjohngartling7801]

Very informative and practical advice. Thank you!

[@davisphinneyfdn]

Thanks for your comment! We're glad it was helpful!

[@user-hd2eq8my4u]

Thanks…….

[@rossmiles7169]

Very Interesting...thank you

[@janetcandia7458]

Ojalá y pudieran doblarlo al español
Saludos desde Ciudad de México

[@davisphinneyfdn]

Hola Janet, gracias por tu comentario. Vamos a revisar el video y trabajar con el resto del equipo para ver si podemos ofrecer el video en español; o al menos que tenga los subtítulos en dicho idioma. Mientras tanto te invitamos a que visites nuestra playlist con los videos en espanol que hemos creado hasta el momento: czcams.com/play/PLjhrt2hLuddI29eSM3WXX0H209siUiddw.html&si=pYoEnKH35zlAcHxZ

[@evprather4669]

When a person at end stage Parkinsons with many issues, loses interest in excercise or therapy or working to improve, should you leave them alone and just give them comfort.?

[@davisphinneyfdn]

Thanks for your question. It is very challenging. You might consider talking with your care team about what palliative care resources are available in your area.
Often, a palliative care specialist is a great resource to help address the range of issues faced by those with significantly advanced Parkinson's. You can find information about the reasons this can be helpful here: davisphinneyfoundation.org/webinar-recording-palliative-care-parkinsons-dr-kluger/
You might find value in our recent care partner training series: davisphinneyfoundation.org/programs/care-partner-training/

[@clmims100]

I have multiple issues that are interfering with the journey of Parkinson’s. I am not a good candidate for deep brain stimulation.

[@davisphinneyfdn]

Thanks for your comment. We're sorry to hear you're having issues that disrupt your experience.
If you have any questions with which we can help, please reach out to us at [e-mail].

[@danielknutson5402]

As with so many of these Parkinson's videos, this is almost an hour in length, with lots of filler, hemming and hawing and precious little hard or new information -- mostly a repeat of a few scraps of information that have been raked over many times before. I suggest that in the future make information availagle in an economically readable and organized article so that it can be read without all the fluff of an "interview", panel discussion and without all the preamble. Get to the point, please. I have PD and I just don't have the time to listen to all the droning on. If you have new information give it to me straight.

[@davisphinneyfdn]

Thanks for your comment.
We publish blog posts that aim to highlight the key moments/topics, and we do this for most webinars. We expect to publish the post for this webinar on November 6th. Typically, the video and blog post go up closer together, but we had a lot of interest in this particular webinar, so we put the video up as quickly as possible.
You'll be able to find the blog post here: davisphinneyfoundation.org/resources/
Additionally, producing shorter videos--highlight reels, of sorts--is being discussed for 2024. We'll add your perspective to the arguments in favor of this approach!

[@marthasway]

Bless your heart. I hope you can get the help and information you need in a format that works for you.

[@rosemaryclarke6250]

I agree with you wholeheartedly

[@robshore2114]

Does anyone else find this video very depressing

[@rosemaryclarke6250]

Yes, it's stupidly depressing. Who wants that