Type 1 Diabetes: My Diagnosis Story
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- čas přidán 30. 01. 2014
- Hi! My name is Ellyse, I'm twenty years old, living in Albuquerque, NM and I was diagnosed with Type 1 Diabetes on August 17, 2009. Here is my story! Please subscribe and thumbs up, it took a lot of guts to share this with you all. Comment below if you are also Diabetic (type 1).
also check me out on instagram @ell.yse
ellyseygee
champagnefaerie.tumblr.com
.diabetes.org/living-with-diabetes/complications/ketoacidosis-dka.html
Hey everyone it's Ellyse, come check out our new channel, new videos to come!!!!!
czcams.com/channels/4wj83r_v9fIwm59NKU6ejA.html
i realize I am kinda randomly asking but does anyone know a good website to watch newly released movies online ?
@Lyle Aries i use FlixZone. You can find it by googling =)
@Cannon Jabari Yea, been using Flixzone for since march myself :)
@Cannon Jabari thanks, signed up and it seems like a nice service :D I appreciate it!!
@Lyle Aries Glad I could help =)
currently laying in hospital bed the day after my type 1 diagnosis.. my insulin education is tomorrow morning and anxiety is getting the best of me. this video is helping so thank you
update: leanred how to test my bg level and how to do my insulin injections just a few minutes ago. didnt hurt at all im so relieved!!
how are you doing now??
My mother never sued the pediatrician when I was younger and when he would always say I don't believe in T1D.When I was 19 I met my mom's endocrinologist and I said I have been through the brain hemorrhage and I have been through the stroke and I never received anything for T1D. I told my mother's doctor that I have had symptoms of excessive thirst and excessive hunger my entire life. 💔💔💔
It was really really neurologically upsetting to think about because now I have to sue every doctor around the world. I am mixed and the pediatrician when I was younger never said anything helpful.
He just went on and on about how much mixed people creep him out. I was also forced to spend several months in the hospital and I was also forced to go through over 50 brain surgeries. Symptoms of Gastroparesis were never ever taken care of and I was forced to play something called Change The Game and I was given 8 to 10 genetic diseases at one time.
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As far as doctors in Missouri go most of them fucking suck and to be honest they are all in my opinion dumb asses because they want to listen to schizophrenic children. Schizophrenia is when someone hears voices in their head. The part where all my mother's neighbors had children with schizophrenia was horrendous because I was expelled from an elementary school and I believe I was expelled from my middle school and I believe I was expelled from my high school as well. I have met more than one schizophrenic in my life and they all suck ass.
@@Ellyseeee hello I honestly didn't see this until now! It's been over 3 years and im doing pretty good! Hopefully getting my first pump this month!
My son was diagnosed with TD 1 on the same day, as you at age 6,5. You're very sweet and brave girl. May God bless you and keep you save .
I got diagnosed at 24 years old....it's been a change for sure, but a positive attitude has really helped....props to you for doing what you do 24-7/365
I was recently diagnosed two months ago with 350 of sugar. I’m definitely feeling bittersweet, every now and then I feel gloomy and down but I thank God that I don’t feel as bad as I felt before being diagnosed.
It's always a relief to know that there are ways to feel better and that we have insulin to help us along, even though it definitely DOES feel awful to even be dealing with this in the first place. Thank you for your comment!
Diagnosed at 36....now 44. Having your mortality challenged makes you want to live more. ..I've since been everywhere. ...get out there. ..travel. ..see everything. ..go everywhere. ..see everything! !!!!
I was diagnosed two weeks ago. I have been having some emotional moments, but your video really made me feel better. Thank you for sharing your story!
My bff got type one in november 2011 or 2012 and i was
the last person to know and even now she doesn't feel
confident saying the word diebetities. So i looked up Jdrf
so me and my friend told our head teacher and people
from Jdrf came to our school and now she feels 1000 times
confident about saying "i have type one diebtities and i am
proud."
She was only 8 or 9 when she got it. Just writtening this is
brining a tear to my eyes i am just so proud of her.
#justsayin subscribe to JDRF
💪💪💪💪💪💪💪💪💪💪💪
Be strong 👏👏👏👏👏👏👏👏
Wow... Thank you for this video. You are so inspiring. I was diagnosed with type 1 a month ago and this really helps and gives me a new perspective on diabetes. Thank you again for sharing! :)
My 5 yr old son was diagnosed on Nov. 2 (a little over a week ago). I spent 5 days in the hospital with him, as he also had a staph infection and a bit of asthma. We are just learning how to do all this... phew, it's a lot.... but he's a tough little guy, and what choice as a mom do I have... I have to take care of my baby. Thanks for sharing your story. It's true, without the support of close family members, it would be a lot different.
Barbi Tvrdik it is, but I'm here, a type 1 since 2006, my story above.
I was diagnosed with it on December 20, 2014, but it was okay because my sister has had it for 12 years and she helped me through it. My blood sugar was 380. Thank you so much for making this video it helps me a lot!
I had a similar experience as you, and got so much support from my family. I was diagnosed May 17, 2016 at the age of 20 and it was really weird how it happened. For months I had the symptoms of being super tired, peeing a lot, unquenchable thirst, and having no energy even after sleeping for a long time. Anyways, I had just gotten surgery to get my wisdom teeth out. So on top of the stress of having surgery, plus the fact I couldn't eat solid foods and was eating only really sugary things such as smoothies and yogurt, I think it just completely put my body into shock, but of course I didn't want to think it was Diabetes I thought it was just a side affect of the surgery I had just had. For about 3 days I was hyperventilating, walking up stairs made me feel like I ran an entire football field. I went to an instacare and then had to be sent by ambulance to the hospital with DKA, and I was in the hospital for 5 days. The first two days were the worst, I couldn't move at all and didn't sleep. Because unfortunately going through all of that, I was also going through alcohol withdrawals (I know, I had a drinking problem.. This was another reason I neglected to go to the doctors because I just thought my symptoms were from drinking too much. I now however have refrained from drinking. ) . So not only did I have to get treatment with all the IV's and insulin, but I had to get treatment for the withdrawals I was going through. It was the most terrifying experience of my life. My blood sugar was somewhere in the 700's, and I lost a whopping 30 pounds in a month. But the last night in the hospital when I finally felt better, was one of the biggest reliefs of my life. Ever since being out of the hospital I have never felt better in my life. I still get the occasional depression, but so far I have been in good control, and I am hoping to get the omnipod soon.
i was just diagnosed 2 months ago I'm 12 and i love your videos bc they make me feel like i have someone who understands and gets me plz keep making diabetes videos thx for making me not feel alone and that i have some1 to "talk" to
I actually was crying with you the whole time having family support is such a touching and beautiful thing and I am really missing it they were caring for my diabetes for less than a year and I was a teenager and diabetes affected my personality a lot through that time so they just left it all on me just because I was a teenager and said it once and now after seven years of diabetes I really miss that support but don't know how to get it back . Keep up the hard work your doing I don't know how my life would be without the diabetes online community you guys are awesome ❤️❤️❤️❤️❤️
Awe, thank you for this thoughtful message. And I am so grateful for the diabetic community as well, because even if you don't feel like your friends and family are being as supportive as you'd like, there is still an entire online group of people who are here to help you! much love, girl!
Your information is right on mark. I've dealt with Type 1 for over 30 years so I can relate to everything you discuss. The first autobiography I read of someone with Type 1 is called "Metal Jam" by Teresa McLean (from England). I crossed the street from the clinic to the library and found this book to read. It was amazing how she described everything she went through. You are becoming the voice for Type 1 Diabetics. Keep it up, and keep helping people. You're awesome!
my 3 year old son was recently diagnosed with type 1 diabetes. we just got home from the hospital a few days ago he was in the pediatric icu at presbaterian in alb for three days an then the pediatric unit for another four days. he was really really sick when we first got there the same symptoms your talking about here in your story, its been so hard to see my baby go threw everything hes been threw at such a young age but we are doing our best to take care of him an make it as easy as possible. thank you for sharing your story its great to know how well your doing now an gives me hope for him to do great in the future.
Hello Ellyse! I was just diagnosed with Type 1 and in the hospital for DKA this past weekend and your story is almost identical to mine. I really related to what you shared and appreciated your optimism. Its comforting to know that you are managing well and feeling great. I look forward to getting to that place in my own time. Thank you for sharing!
Noe
Thank you for commenting! I'm so sorry to hear that you were in the hospital. Just remember everything is going to be okay and you can still live a happy life. Best of luck to you, I'll be sending good thoughts your way!
You're doing great, young lady. :) I was diagnosed in Dec. of 1977 and didn't have any support at all. I was in the hospital for 3 months. I arrived in the hospital by ambulance from the doctors office. At ten years old, it was kind of overwhelming. We have a lot to support us these days and there's been a lot of advances. Hang in there, never give in and don't ever forget how really special you are.
My husband was diagnosed at 8. He was in a diabetic coma for 3 days. When his blood sugar finally was able to be read it was over 1500.
+Sam Rhodes that's crazy!
Sam Rhodes I went in ketoacidosis my blood sugar was in the 500s
Ellyse, I am so happy you are doing well. I am a registered nurse in the nurse practitioner program and I admire your courage and sharing your experience with all of us. :-) You are a beautiful woman inside and out.
I was diagnosed yesterday actually and i'm glad you made this video! Late reply, but still, great video!
Hello,
Thank you for sharing your story. I've been diagnosed a month ago and I'm still on the process of accepting it. I'm only 26 and I'm going through a lot mentally... I was looking for references, people of the same age and found your video. Now I feel less alone, thank you
My daughter was diagnosed in 1998 at the age of 8. Listening to your story transported me back 17 years to the day all of our lives changed forever. My daughter has learned to live and cope with her disease. Not a day goes by where I do not wish with all my heart that a cure is found for all of you wonderful people suffering from T1D.
I got diagnosed on November 24 of this year and I can totally relate with your symptoms. I was doubled over in pain from how badly I had to use the bathroom. I searched for symptoms too, but I actually was having all of the symptoms for bladder cancer! We took urine in and they instantly diagnosed me and told me that we caught it very early but if we would've waited two or three more days, I would've been in the ICU. I've been watching a lot of your videos and they have helped a lot with knowing that I'm not the only one!☺️
I was diagnosed two weeks ago, just after my sophomore year of high school started so I am about the same age as you were. I was driving home from Canada and experienced the same symptoms. Luckily we caught it fairly early but I still spent nights in the icu.. Your videos are so helpful and relatable thanks for your great advice :)
HI Ellyse, I am going to show your video to my 12 year old daughter Freya tomorrow. She was diagnosed with T1D in March and hasn't met anyone else with it yet. It's hard enough having the disease, but even harder that she's the only one she knows with it. I'm also going to show her your 10 bad habits....she matches you pretty much 100%! Thank you for sharing. I'm so glad you got to the hospital when you did. My mum was visiting us at the time when Freya was diagnosed. She's a doctor and as soon as she heard that Freya was thirsty and lethargic she sent us to get a sugar test. She was at 577, but not nearly as in bad shape as you were. 2 hours later we were in hospital and our lives had changed for ever. She is handling it pretty well, hated needles like you, but became an expert very quickly. It's a crappy disease but thank God it's manageable. Keep up the positivity! All the best, Fionnuala
I have felt this lethargic tired feeling for a couple years since freshman in high school and im now a freshmen in college
Thank you so much for this video! Really inspiring to know that there are other people feeling the same way as I do. Having type one diabetes can be a very lonely experience sometimes, seeing as there are so few of us. I was diagnosed at the age of seventeen in August 2015, and it was honestly such a shock. I'd had the symptoms for three/four months and hadn't gone to the doctor. Nonetheless, they obviously referred me to the diabetic clinic at the hospital as soon as they diagnosed me! Thank you, sincerely xxx
+Eleanor Noyce xoxxoxo!!!
Hi again, Eleanor!
Would you mind subscribing to my new channel czcams.com/channels/4wj83r_v9fIwm59NKU6ejA.html. I will no longer be posting videos on this channel. It would mean so much to me! xoxo ellyse
I was just diagnosed a week ago, I'm 17! this video helped a lot to make me feel like I'm not alone, everything is still so new and scary to me but I'm managing but I get upset and down about it every now and then! Everything you said was so relatable x
Same I though I was alone to when I was four but now iv hade it for 7 years but ur not alone
Wow, I'm so glad I was able to help you out a little! Wishing you the best of health and lots of strength in this new journey.
Hi Ellyse! Thanks so much for sharing your story. Even though it was my son who is 13 and not me, I had many of the same thoughts you did and did not want to admit that he probably had T1D. He was so thirsty and and losing weight (only 5 pounds but he also grew 3 inches at the same time so I was very worried). I tried to tell myself it was because he was becoming a teenager or that his mouth was dry because it was winter & mine was dry too (It gets very dry up here in Canada). Anyway... the joy in all the heartache has been brave people like you, Gary Hall and many others sharing their stories & giving us hope. One person said, "Diabetics can do everything that everyone else can do but... WE do it better!" I believe him. It take a lot of discipline to care for yourself with this condition and I applaud you all INCLUDING my son who took charge of counting carbs & injecting as soon as the shock wore off. His level was 3 points below yours at diagnosis but he was just getting confused, tired and so thirsty with occasional leg cramps and the doctors were so amazed. We went home from the hospital on the same day - so lucky! I'm glad you are feeling so much better. We found you because we are considering the Omnipod system. He's okay with pens but feels he'd have a greater freedom with the pod. HERE IS HIS BIG WORRY: Gym class - he thinks it would be weird for the other kids to see it in the locker room and ask questions and he does not want EVERYONE to know. Did you have that worry? Thanks! AND... keep up the great attitude. :-)
Ellyse will correct me if I am wrong! but I what I remember about high school is she did not like public attention, like the teacher asking her in front on the class if she was feeling ok and then everyone turing to look at her. The omnipod really was no big deal with other kids at E's school.
Thanks for your comment on my video! Would you mind subscribing to my new channel czcams.com/channels/4wj83r_v9fIwm59NKU6ejA.html. I will no longer be posting videos on this channel. It would mean so much to me! xoxo ellyse
I was diagnosed with type 1 diabetes September 25, 2005 just a month after my birthday. I was 6 years old. I loved listening to your story!
Wow, that's so young! I hope everything is going well for you :) It's almost your 10 year dia-versary! And thank you for watching xoxo
I can not even imagine how you got through telling your story I could not give my for more than 30 seconds without crying
Thank your for your comment, and best of wishes to you :)
My daughter was diagnosed with t1d 2 weeks ago. She's as beautiful, intelligent and sensitive as you are. Both of you are flowers. You are the best. Courage! Remedy will come soon.
What a lovely comment! Thank you!
I've been a T1D for 5 years. I was seeing an endocrinologist for a different autoimmune problem. The last thing he has you do is go to the vampires. So, I was driving home and the doctor called. He said to park in safe place, call 911 and immediately go to ED. He scared the whatever out of me. I found out my blood suger was 698. It took 3 miserable weeks to get use to 85 to 200. And the weird thing was I didn't have any symptoms. I lost a couple of pounds, but that was it. However, it encourages me to know that other people can cope with T1D. Thank you very much for sharing your story. I think your helping save people's lives. Be healthy with T1D and COVID-19.
Thanks again.
JDF
type 1 for four months, life changer! great video btw
Your video was very helpful to me. I'm a 26 year old male and I can relate to you. I'm not diagnosed but I am very concerned about myself and your video helped. Thank you so much for sharing
Thank you so much for watching!
Thank you for sharing your story! I'm 15 and i've had type 1 since December 17th, 2013. I'm still using a NovaLog insulin pen, but I hope to get an OmniPod pump, seems very convenient so Im keeping my fingers crossed!
I'm a type one diabetic too. :) I've only made one video ABOUT type one, mostly my videos are about being pregnant and having type one. I will have to make a my diagnosis story. Your video was beautiful. It seriously made me cry, just thinking of the feelings you actually have on that day, and how I related to them. I never forget those feelings but have probably never confronted them. :) you have inspired me to do so.
Oh my goodness, I feel honored to have inspired you! You seem like a very strong person with a good head on your shoulders.
I loved your video! You described your situation very. well. In fact, it reminded me of what happened to my son last March when he was diagnosed with Type 1 Diabetes. He had a blood sugar level of 1400. This is not a typo. I said 1400. He was suffering from Diabetic Ketoacidosis. I contacted you on FB. When you have a chance, please look in your folder. I would like to share more information with you.
This is so similar to my diagnosis story! The symptoms, the utter exhaustion and the "zombie" feeling. It was rough! Like you, I have a great family to help me through, and now I am feeling great. :D
That's wonderful to hear! Support from family is a HUGE help in dealing with diabetes. Good luck to you!
I was diagnosed with Type 1 Diabetes around the same time as you. I was diagnosed on August 10, 2009 watching your videos make me feel like I am not alone.
Wow, that is only a week from my diagnosis date. I'm so glad this video helped you to relate because you are absolutely NOT ALONE, don't ever forget that :)
:) I was wondering how you like the omnipod. i have the medtronic on and i wanted to switch to the omnipod . Also i want to know if you had a CGM
Hey I was diagnosed on 17/1/2015. Watching your video made me feel better and I just want to give you a hug really :p As much as I love my family they don't know what it's like to find out you have something like this. TBH I feel like I'm in a dream still. I've sometimes wondered how awful it would be to have a lifelong condition and thanked my lucky stars I was a healthy person.
Anyway, we're stronger with ppl we love around us, and good friends. Thanks for your video.
James
Ik how it feels to be diagnosed with type 1 diabetes I was only 5
***** rubbish when you find out, isn't it? I'm over it now though :] it's just a part of my life
I’m amazed that at that time no one around you knew the symptoms, this is why we need to educate others like this. I was dx 2 days after my sweet 16, that was back in 1983. My bg was also in the 600’s but we didn’t have all the great technology we have today.
thanks for sharing i want to share with someone special to me who is currently struggling with taking care of himself , i hear its common among teenagers but i think he need extra motivation because all of us who love him are worried, terrified of the results of poor management of his diabetes, ,
reminded me of my story, families are amazing!
I was 890 when I was diagnosed last year. I completely agree about feeling relieved when finally knowing.
Hi Sam!
Thanks for your comment on my video! Would you mind subscribing to my new channel czcams.com/channels/4wj83r_v9fIwm59NKU6ejA.html. I will no longer be posting videos on this channel. It would mean so much to me! xoxo ellyse
omg i drank so much milk too! I felt like that was quenching my thirst the best, it tasted so good when i was so thirrsy! Thanks for sharin this:)
Same..
I got diagnosed 9 years ago when i was 10. I was on holiday with my brothers and mum visiting my uncle. I started to go to the toilet alot, drink a lot and get out of breath just walking to the toilet. I would vomit anything i ate and spent most of my day (and night) sleeping. My aunty knew someone who was a nurse and called her up as everyone was getting worried about me and the first thing she said was to take me to the hospital. I didnt really want to go but my uncle and mum said it will be alright we will be back in no time. I went and got admitted straight away, my dad was at home as he had work and my mum called him to come straight away. My dad, his brother and my cousins drove up (8 hour drive).... And when i saw my dad i cried and told him to take me back home. It was a shock to me, i was 10 and didnt know about diabetes, my life completely changed. Listening to you, i realised there are other people who its affected too.
But one thing i always remember is there was a 2 year old on the bed next to mine and he was learning how to inject himself. And i thought if he can do it so can i
I was always in awe of the babies and their parents when we were at the endocrinologist office. It can be overwhelming at any age, but what a challenge when so young!
I remember when i was diagnosed last year. I was 12. Your video helped me and it has been a year and 18 days now. And i just want to say to any new diagnosis it gets way better. I hate it but i gotta get used to it. So just own it. ;)
Renee Magin You already seem so well-adjusted and strong! you should be so proud of yourself! :)
Awe thank you! But seriously love the video.
i just got diagnosed on March 8 and i hate the shots but i am happy it keeps me alive!!! remember to be thankful for insulin all those Type 1 diabetics out there!!!
hii im 12 and just got diagnosed with type one diabetes you would not beleive how similar our storys are when i went to hospital my sugars we 450 and they said the same tjing that if i hadent of went in i would be in a diabetic coma but i also had all the same symptoms as you only i got diagnosed ths winter on the 2 or january this videoo really helped me se i am not alone with this xx
Sarah McCabe wow i was diagnosed june 10th 2014 so a little over a year. My blood sugar was over 700 im currently 13. It sure is a struggle huh? Well we gotta own it. ;)
Omg we have such a similar story, especially the road trip omg
My name is Emily 11 years old and got diabetes when i was 9. There are a couple of reasons why i hate being a diabetic i cant sleep in because bs will rise,when people eat sugary stuff infront of me i feel emotional because i cant have it,my teachers are there for me mr.berwanger and mrs.sposato they help me get through stuff i email them if i need to tell them something. I am always with a high bs and if i can controll it without sneaking food i will be healthy when i grow up. When someone yells at me for doing something wrong i run in my room and start crying.
I'm 12 I was diagnosed last year 2015 and I love hearing others story....it let's me know I'm not alone facing the struggle of having Type 1 Diabetes 💞
Hi there! I'm glad you don't have to feel so alone anymore :)
Thanks for your comment on my video! Would you mind subscribing to my new channel czcams.com/channels/4wj83r_v9fIwm59NKU6ejA.html. I will no longer be posting videos on this channel. It would mean so much to me! xoxo ellyse
Last October I drove to a clinic over gastric problems. They said it was above their pay grade and told me to go to the emergency room. I drove myself there and my vitals were off so they took a blood sample. They retook the blood sample because the numbers that came back told them I should be doubled-over in pain about to pass out. Instead I was alert, I had a calm demeanor, and I drove myself there. Sure enough my blood sugar was 315 and I had DKA and pancreatitis.
Thankfully I'm only type 2 and after losing 85 lbs I've been able to keep my blood sugar between 80-120 by diet alone with only the occasional spike or low (although a "spike" for me is 160 or so).
Good for you for taking care of business! :)
HEYY! I'm 12 years old and currently in the 7th grade! I was diagnosed with diabetes when I was in the 4th grade. It was a really emotional change and I still have problems dealing with it to this day. I actually started cutting. I don't do it now. I used to do it because I felt really different. I would love if we talked more! I would love to have a friend that is also diabetic.
I also was diagnosed with type one and I had very similar symptoms,didn't have to be in the hospital like you I had to get my blood tested from school to prove that I had the chicken pox when I was younger and the doctor called my mother at like 7 pm saying my sugar was at 546 and I juts remember getting home from a driving with my mom and I went and laid on h coach and cried and then I had to go to the urgent care clinic the next morning and my sugar had gone down to like 300's by now and I went and got weight I have dropped almost 35 or more in 3 months, I remember when the doctor walked into the room and told me I couldn't keep it together I just started balling my eyes out and a specialist had moved to where I lived only weeks before or I would have had to go up to 6 hours away to see a specialist so I got there and they got me insulin and I felt so much better within such a shirt amount of time it is crazy how differently I felt
I cannot imagine what it might be for you,but keep with the strong courage,sure is worth a lot than any drugs.
Hi I'm a type one diabetic too!! I was diagnosed when I was 8 and I'm 11 now and my symtoms were that I had to go to the bathroom a lot too, I was in second grade, and everyday I would go to the bathroom like 9 or 10 times a day! I was sooooooooooooooooooo thirsty too and it is not fun at all!! I drank so much water that now I don't like to drink water so I drink plain water! And I had really bad stomach aches and I wet my bed a few times too! Anyway I know how it feels and I'm a new subscriber to your channel! I hope u feel ok!
Wow what a great video thanks for sharing
thanks this video made me feel a lot better
That's awesome, I'm so glad!
u r beautiful Ellyse
I think that on a personal level every single diagnosis story has its tragic and serious elements. But every diabetic is trained to laugh at it eventually. I catch myself sometimes to boast of how good I can analyze all of these symptoms in medical terms. But every time I feel sad deep inside. Diagnosed at age of 11, now 40....
Every Christmas since I was 6, I think, I would feel sick after eating one or two pieces of candy. All of those Christmases I remember thinking well it's happening again. When I reached the age of 8, I stopped growing completely. I was 10 was when my mom noticed something wrong when I still haven't grown, but what? I went to the nutritionist and they drew some blood. After that I went back to school like everything was normal. I had to leave school almost immediately after I got there. I got to the hospital, I was told I had a blood sugar of 625 and that I had diabetes. I was mostly thinking to myself not another thing to deal with since I have literally three pages full of severe food allergies that I was diagnosed with after a major anaphylaxis attack at the age of 6 (quite the coincidence, right?). I remember this as very overwhelming, but I've overcome it since then and am happy to share about my diabetes.
I got diagnosed with type 1 when i was 8, i am now 15. I have had the disease for around 8 years and everyday i pray for there to be a cure in my lifetime. Don't get me wrong i know i could of had it much worse and i am grateful for my life, but it can get very difficult and scary at times.
Ebonie R Ebonie, things could always be worse, and things can always be better. But remember that this is YOUR journey, and your feelings towards it are completely understandable. Lets be honest-- diabetes is awful! And scary & difficult like you said. And as silly as this may sound - I really do think there is a cure around the corner! We just have to wait it out together :)
Loved the video ♥ ♥
I was in a dka, everything was wrong with my blood and went into a diabetic coma for just under 24 hours. I find it hard to come to terms with the fact I just dont have reccolection of any of this period of time and that i dont have that day.
I also have Type 1 diagnosed 3-11-14. (I'm 16) Blood sugar was only at 389, they skipped over me possibly going into a coma if I waited longer, but said I just would have passed. Spent my spring break in the hospital and ICU. We don't have insurance, but the hospital charity program relieved all $44K of my medical debt.
That's wonderful you were able to have that money relieved. I'm sorry you diagnosis was so terrible! I wish you the best of luck with your diabetes :)
I did cry a lot at that time, I was alone in the hospital after 3 nights in unconcious situation, I was studied abroad when i was diagnose, and got on the ambulance with the GI at 47 (which is unbelievable high and nearly diabetics coma), while nomarl ppl just around 5 or 6. I had no family besides at that time.
Awe, that sounds so scary! Especially being abroad and everything.
Hi I'm Ellie and I was diagnosed with diabetese 11 year ago since I was born ☺️ this vid has made me realise I not scared anymore
So glad you feel that way! lots of love, xoxo
my sister just passed away and she had all those symptoms you just said on december 27th... please becareful
I am so sorry :( much love.
Sorry for your loss..blessings
I might not remember that day vividly, but I remember what happened well enough. I'm eighteen now and I was diagnosed with type 1 when I was in either first or second grade, so I was lucky in a way. I had started drinking a huge amount of juice and sometimes couldn't make it to the bathroom. My mom knew something was up, so she took a urine sample to the hospital. Later that day when I was in class trying to write the cursive "c" but Just. Couldn't. Do it, my dad came and picked me up. I was taken to the local hospital, where they took my BG level. As you probably guessed, it was way too high for a seven-year-old. After that I was shipped to a bigger hospital about 100 km away. I can't remember that part at all. I remember a cannula being inserted into my hand for an IV and another in my other hand for them to be able to monitor my BG level more easily. Due to the high level of ketones going through my body at the time I hallucinated some weird shit that first night in the hospital and I know this because my mom stayed with me the entire stay in the hospital. All I remember about that night was a really weird nightmare/dream hybrid.
After I got educated on my new illness I got to go home. Only to go straight back to the hospital due to a rota virus outbreak which was caused by the faulty air conditioning in the hospital. It was back to the hospital and back with the IV since I could not stomach anything and you know how big of a hazard constant vomiting is to a diabetic.
Once that was done things went back to normal. All the way til 9th grade, when I got Ketoacidosis. I can't remember shit about that, just waking up in the ER. It was terrible.
I'm fine now. Just normal diabetes problems now.
I was diagnosed with 7 years,on 2006 and now I'm turning 16 this year!! :)
Keep up the positive energy.
I was crying because it reminded me of how I was in the hospital. I'm good now and I'm only 11 two years later. I remember my mom weighing me like a week before a doctor's appointment and I saw her crying and talking to my dad. Btw have you ever been trying to talk but you can't say what you want to?
I just got diagnosed two days ago. went to the hospital with over a 999 mg/dl glucose level. I'm 26 years old. Doctor says it's most likely type 1.5 diabetes, an latent autoimmune diabetes. Couldn't believe it at first. crazy part is I'm lean, ranetrack and cross country in high school and college. now i'm trying to get this glucose monitor poke thing to work.
I consider myself one of the more lucky ones because I was diagnosed with Type 1 Diabetes at the age of 4.5 years old and my grandma was actually the one who noticed that I had lost 9.5 pounds and she mentioned it to my parents. At the same time I started getting very thirsty and began using the bathroom more frequently. Finally my mom took me to the doctor's office and when she mentioned what was going on they handed her a list of symptoms of Type 1 Diabetes. I was then taken to another room and they tested my blood sugar with a meter and the meter couldn't read it. So, they tested it via a blood draw instead. When the results came back they were shocked that I was so energetic because my blood sugar was 900. The funny thing is that we weren't really expecting this to happen to me but I was more at risk for developing Type. Diabetes because I had a kidney infection when I was 1 year old.
My friend is very open about it she is nine she was born with it and she has a very life threatening allergy to gluten
I was on a coma for several days,the hospital said that if I were to have gone to hospital fifteen minutes later, I would not have survived. My bg was well... About 1800 and at the time I was five foot two and weighed just over fifty pounds only.
Thank u so much for sharing
I was diagnosed around September 10th, 2006
Wow... I really think I am. I am 5'5 I weigh 110 I'm very skinny and I have almost all of your symptoms. A couple of months ago when I went to my check up my blood sugar was really high when they randomly checked it and they brought more people to look at it, they said they wanted to keep an eye on it because they said I could possibly be type one. I noticed when you were talking about the cranberry juice.... I wake up in the middle of the night dying of thirst my mom recently got the Welch's grape juice 2 days ago it is gone because I have randomly drank so much of it. I will drink like you said anything that makes me feel like I am not thirsty anymore. I also have to pee a lot too. I also feel so exhausted even from a full nights rest. I will go out somewhere say Walmart or somewhere right after my body is just so tired I need to go lay down. I love to take naps during the day and I am always so lethargic and I notice my friends get annoyed with it.
What was the website you took the quiz because I thing I have it so anyone please help me find a website
I was diagnosed with type 1 diabetes when I was 3. I was on vacation in NH and had to use the bathroom all the time. My parents drove me to the hospital and I was in there for 3 weeks! No one thought I had diabetes (the doctors) my parents knew and they did tests and found out I was a type one diabetic.
Braeden Carcieri Oh no! I am wishing you the very best!
i was 13 when I got diabetes i am now 53. so I have diabetes 40 years my doc said the same thing to me. just routine i said baloney how can it be routine when my bloods are so wacked high one day low the next and the stress pmg . of you need to ask me anything let me know. I know how you feel.
One of my serious symptoms was that I went through Hallucinations, went blind and had a 2-`3 day coma. Don't worry, the blindness went. :)
+I'M HERE TO BOOK IT! oh my gosh that sounds awful! glad you're okay now
Yeah somewhat. Sometimes I feel slightly depressed. Not sure if its a symptom of Type 1 or just something else :/
Hahaha when you said you went blind I was like how did he type this comment then but then I got to the end and I was oh ok haha
I guess I would get help from my parents :p
Thanks for the comment any way :D
+Dimitije Stankovic No. This is type one. Sod Off.
I just found this video and its very helpful i was diagnosed with type 1 diabetes when i was 10 years old i went into a coma and then i found out
just like me 8 months ago, thank you for sharing :D i dont know if you care about it, but seems like DT1 is so hard to lose weight. Im trying to apply low carb diet on it but I have to make a lot of adjustments since low sugar symtoms usually meet me :(
What were you eating on a normal day before this? Just out of curiosity :)
I was diagnosed the summer after my freshman year!
I myself have type 1 diabetes and find it really hard to talk to people about and bottle it up I have had it since I was 18 and get quite a few hypos while am sleeping then wake up next morning being sick with a headache
I was diagnosed last year and when the doctors came to check my blood sugar I was 826 my mom started to cry her eyes out then the doctors said if I wouldn't of came sooner I could of died because I had very large ketones
Hey, so first of all I'd like to say that your story reminded me of my story very much, soooo.. I got out of the hospital about three days ago and was diagnosed with Type 1 diabetes (juvenile diabetes), just like you. And I wanna ask you, how long did it take you to get down to normal blood sugar levels? Because since I left the hospital three days ago I can't get under 200. Should I shoot myself with more insulin? Not eat certain foods for a while? (I'm not eating any sugar, at least not the upcoming month or two months until I get myself to normal blood sugar levels) Did it take you a while to get normal blood sugar levels too? What did you do to get it down? Thanks aaand I'm glad to know there are other people my age that share the same problem
Hi, I just got diagnosed about a month ago. My story is very similar to yours. It's so stressful to deal with my sugar going up and down constantly.. If you wouldn't mind, maybe I can ask you for some advice? It would be appreciated.
Hi, Ellyse.
Did you know that berberine has been found to regenerate beta cells (the cells in the pancreas that produce insulin)?
I will show this video to my relatives diabities runs in my family
For the past week I have wondered if this could be the case for all the symptoms I have been having lately.. but today I felt like I was drained of every sliver of energy I had was sucked out of me. I know what is going on but idk how to say it. At this time covid 19 is going around and my parents don’t want to take me to the doctor. And they think I’m being a hypochondriac, and maybe I am but I truly feel like a zombie, and idk what to do. (After I ate dinner I felt a little better but idk. This has all happened so quickly idk what to do)
I have type one and have done since I was 9 years old (8 Years this October) I live in the UK and the highest our blood meters show are 35.0 and I was around 22.0 when I went into hospital and I was on intensive care unit, I dropped from 4 stone to 3 stone in 1 month.x
Best of luck to you, I am sending lots of love!
When I first got diabetes I got really sick cuz no-one knew I had it so first I started drinking loads and loads (not alcohol obviously I'm under 18) but just water juice and milk. My parents noticed and thought I was drinking instead of eating and that's also how they explained the fact I was getting so thin. And I did eat but no matter how much I ate I stayed really underweight. We were travelling to go and visit my Nan & gran and we constantly needed to stop at service stations because I would drinks something and almost emedietly need the toilet afterwards the drinks just went straight through me. Then I began to get a weird looking tongue it would go along dry but a bit purple with bits of white. We also thought this was because me and my dad struggle breathing through are noses and so we have to breath through are mouths, so we thought it was because I breathed through my mouth my tongue was getting dry. I began to have barely any energy but I was still walking and talking. When I got to my grans house she said my face was looking thin but still no-one really gave it a thought. My gran only had armchairs not a sofa so there wasn't anywhere (except from the beds) to lye down on the floor it was a long journey and my parents thought I was just tired. When I got home I got really angry and just wanted to lye on the coach. But still I went swimming and was fine and my parents just thought I was tired. I started high school the.next day and I couldn't think I just wanted to drink and lye down and I was really out of breath. I got sent home and now my mum took me to the hospital. I had to wait 2 hours and then had a blood test my blood sugars were in the 20s and my ketones were 7 times the amount they should be. I got sent to the RUH and they tried putting me in a week chair but I wouldn't let them. My pulse was racing and they gave me insulin. Not long after being put on insulin I became Sooo hungry! But they wouldn't let me eat or drink. When using finally got breakfast I was starving! They gave me some squash and I was like yes I get something to drink! And then use took a sip and was like...ew....That's disgusting and no longer had any cravings for drinks. They told me I had type one diabetes and when I was ill I was in a hypa for one month and that's why I was so ill I wasn't getting enough fluid I just weed out everything I ate and drank and that's why I got so thin. The insulin pen is a bit scary at first but you get used to it. If you know anyone this sounds like tell them to go to the doctor and get checked. It's horrible I remember walking up my stairs and having to stop for breath every two steps. Thanks for reading!
What was the quiz you took online website called