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My Type 1 Diabetes Diagnosis Story: 1 Year Diaversary Recap
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- čas přidán 18. 02. 2022
- This week is my 1 year diaversary of living with Type 1 Diabetes! In honor of this week, I am doing a recap of my diagnosis story back in Feb of 2021. Watch this video to hear about my symptoms and about my hospital visit.
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#SamanthaFarley #type1diabetes #T1D
I was diagnosed when I was 7 years old in August. I remember we went on this trip to beach in Rocky Point, and the drive was so long I kept going to the restroom every half an hour. I was so tired the entire time.
When we got back I just got sicker and sicker, I was losing weight very rapidly. The last week I lost about 5 pounds for a small child is very significant. The last morning I woke very sick, stomach pain, tired and very thirsty. I asked my mom for a large soda I was craving sweet stuff and thirsty so made sense to get a soda. She got me a large 1 liter Pepsi. I drank the entire thing. As time went on I was just falling asleep and was so hungry, we went to KFC and got some smashed potatoes and biscuits (bad choice). Around 6pm I was so tired I could not stay up and passed out. At 1am I woke up and starting throwing up and I was very dehydrated. I was so thirsty and started drinking water and immediately vomited. We went to the ER as it was alarming puking water. I had the kasmaul respiration and fruity breath. The doctor saw me and asked my mom if I was diabetic. She said no, doesn’t run in the family. They checked my blood sugar and it was 478 mg/dl. I was diagnosed on the spot.
I never had leg pain but I did have trouble breathing, I was physically exhausted to the point where I couldn't walk across the room, and was throwing up after every meal. I later found out my blood sugar was in the 800's because I was drinking a ton of orange juice thinking it would help. 🤣
Wow!!!
I was diagnosed with Type 1 diabetes October 19th, 2011 when I was only 3 years old. I’m 14 now. This October is 11 years with diabetes for me!!
Just got diagnosed last week and I had the same leg pains, thirst and blurred vision. Learning all I can now. Thank you for your videos.
Hospitals, doctors etc are notoriously bad and uneducated on the diet side f things when it comes to type 1 diabetes. Let’s be very very clear here. THERE IS NOTHING YOU CANNOT EAT! I have been Type 1 since I was a very young child, 32yrs.
As long as you carb count and take the right amount of insulin you’ll be fine.
Here in the UK, we have specialist doctors and nurses for diabetes and these are the hero’s that give you all the information you need and they are so supportive.
Happy to talk to anyone that has T1D. Remember, you’re not alone even though sometimes it feels that way.
Help me please how do I talk to you😊😊
Hi, I was recently diagnosed with type one. ( misdiagnosed as type 2 for over a year) . The docs have me taking 15 units of fast acting insulin ( 5 before breakfast, 5 before lunch and 5 units before dinner) . My concern is that, I have been given this instruction from they just found out inqas diabetic. Now that they know fir sure I am type one, should I still be taking my insulin the same way? As a type one , do I need to administer insulin every time I eat something ?
Fast acting Insulin is needed every time you eat
Kinda hard when doctors say u type 2 for 3 years when actually a type 1 so very thankful for the videos & do we suppose to give us insulin every time the sugar is high?
I was diagnosed when I was 12 with a blood sugar of 1,021. The best thing to do is to fall in love with nutrition, exercising and the science behind TD1.
My 12 year old was diagnosed with type 1 April 19th 2022.. So this is really new for us. I was just watching your story and I’m thinking about my daughters symptoms. All her symptoms were pretty much the same as yours extreme thirst, weight loss, and frequent urination. The one thing I have never heard as a symptom until now is leg pain. My daughter complained of leg pain before she was diagnosed and I thought it was just growing pains. Even just a few days ago she said her legs were hurting really bad, I never thought it had anything to do with her diabetes. I was going to take her to her primary doctor for the leg pain but now I’m going to bring it up to her endocrinologist. Thank you for your story🙏🏾
Thank you for your video!
I am still in the hospital, waiting for my blood sugar to go down and normalise, just got diagnosed with T1D as well.
Feels nice to hear your story. I am also 27 years old and the diagnosis feels like a slap on the face - like, I just got my life together and now I have to relearn everything all over.
😢I was diagnosed at 27 I'm still trying to make sense of this 30 years later. Not to discourage you because there is a ton of medical information and equipment available to T1D
Ask about the DEXCOM G6 or G7
I hope you take on healing and being healthy best you can.
Jannell W
I was diagnosed at 27, 30 years ago.
Thank you just gave me a little peace of mind. My son that's 27 was diagnosed last year!!! It's been so scary!!!! I've been crying a lot!!!! Because I just have one child and I don't want to lose him, so thanks a lot. 🙏🙏🙏 I wish you good health .🙏
My 30 year old daughter is just going through this! She gets home from the hospital today! Very similar story. Right now it’s so overwhelming. Thank you for sharing ❤
Wow, thanks for the video! The same thing happened to me, when I turned 30. But, initially they wrongly diagnosed me with type 2 diabetes. Then I got really sick, but it finally got sorted out a few months later.
I'm also a "brittle diabetic," so my BS is easily affected. I used to frequent the gym 4 day's a week. But haven't for years now. I've had a few incidents that scared me. And somehow developed a phobia of sorts. Hopecto, get over this and get active again. I also developed really bad neuropathy in my hands,arms, and legs. Which puts a damper on things.
Take care-
Thank you very much!! Very well explained!!
I've been type 2 since 1989. 15 years ago I went on insulin after taking all the usual pills, diet and exercise and still not getting control. Going on insulin was the best thing that a doctor did for me as far as treatment goes. I have long said that calling type 1 and type 2 the same word "diabetes" is probably wrong. I of course, have insulin resistance where you have no insulin production ability. The symptoms and consequences may be the same but the disease and treatment is quite a bit different. I read these diagnosis stories with great interest and though I of course, have my own story, I am not at a place where I feel I should share it. I wish you a long and healthy life and I am thankful we live at this time where there is so much more understanding and treatment available!
I have Diabetes since I was 10 😢 you are not alone
Diagnosed 1/17/1985, just after my 17th birthday. Just had my 39th diaversary this year. While T1 isn't the worst thing someone can have (at least it is treatable), it is a very difficult condition. I do predictive modeling and statistics for a living - so you'd think I'd be better at carb counting, corrections, etc. Sometimes you do everything textbook perfect, and nothing goes right. So frustrating! Best of luck to your long-term health!
So true!!!
You may have saved my life! I have an autoimmune disease that attacks excrecotory glands. 20 lb weight loss no explanation. I started putting it together and watched your video. Perfect timing! Thanks for sharing!!!
I have had T1D for 4 months! All the same symptoms! Thanks for sharing!!!
Oh my story! I may share it one day. I feel like they treat/train children when they are diagnosed more thoroughly.
I was diagnosed with T1D 2/12/21, so right about the same time! I was so chronically exhausted for about 8 weeks prior to diagnosis. Being really active was definitely my saving grace!
Just watched your video & wanted to say I was diagnosed at 3 months of age & I am 54 years of age now so yes I have had it a long time. I actually have a 50 year plaque from my insulin co. which when I received that, it meant a lot
How are you filling now? My son get tip 1, at 3 years old. I'm very worry about him.
2018 I was diagnosed with T2D after been tired,weak,fatigue, all day constant thirst and peeing and fast weight loss of 10 kg in a couple of weeks.
I wasn't overweight or anything, but the clue comes later hold on!
I immediately started running and exercising more frequently and was of the metformin in two months after two to three months I started Ketogenic and could keep everything in check without meds!
Past February I got a virus and was sick for a day or four after that I was very weak and recovering went very slow till non.
I lost 12 kg in about two weeks time and I was thinking, well it could be the virus?
My energy dropped like crazy and breathing was heavy and couldn't do much because of the breathing.
I went to see the doctor total of three times,first time the advice was,take a rest...week later...blood work and they stated...your blood sugar is a little raised but nothing to worry about...go to a physician to work on your breathing...I went one time...didn't need them.
The third time I went to my doctor I said to him that I want to go to the hospital because this is getting crazy by now,lost more weight, all my muscles where gone and still they were looking at me as to say take a rest.
A couple of weeks later I had an appointment at the hospital and they did blood work ..the week or so after that I was put directly on insuline and saved my life 🙏🏻
By the end of April I started insuline so three months I was dying literally!
The doctors told me that if I was a week or two later they had to put me on the IC and if I was a month or maybe two months later I was dead.
Diagnosed now with lada, the T2D was all wrong from the start sadly enough!
I'm now on insuline and almost back on track,still doing Ketogenic diet and going strong!
Keep it up and keep thinking for yourselfs because most doctors are copies of big pharmacy so watch out!
i was also diagnosed having T1D 3 years ago when i was 46...it surprised me as i always have idea it's not adults diabetes...take care!
Writing a book series about my daughters life as a type 1. The plate! That killed me! Yes!
I was diagnosed at 29 just like you in December 1999 23 yeears ago. Just like you I didn't suspect i had anything going on with me ike diabetes even though i was constantly thirstly needing to pee every 30 minutes and very very lethargic all the time. I remember my brother noticing these changes and was concerned I was on drugs which made me cry. I was complaining to my doctor about numbness in hands and legs so she set up a Nerve conduction test and the doctor testng me suspected i had diabetes just by my overall attitude and seeing me all lethargic at 9am in the morning, i was always really active and ate really well no processed foods etc and was quite active. so this doctor gave me a form to get myself tested after a 24 hour fast for diabetes. MY A1C was clost to 20!!!! which meant my blood sugars were running superhigh but my doctor didnt send me to the hospital she set up an appoint with an endo and the hosptial for diabetes training for some reason for first 6 years my endo insisted i was type 2 despite my heathy diet and activty levels and refused to put me on insulin even with all my efforts i never could get my A1C down below 12,5 which is still horrible numbers. I finally dumped my original endo my family doctor thought i was nuts but got me a new endo. that endo put me on insulin immediately and he told me that i must of had diabetes for many years before i was offiicially diagnosed because it was virtually impossible to have neauropathy and vision loss that quickly into the desease but because i ate healthy was relatively active i burned off alot of my blood sugars its 2022 now and sincee i been put on MDI insulin injecttions i have managed to keep my A1Cs between 7 and 8.5% most of the time.. Not perfect I know but so much better thenn were I started. Next step for me is possibly going on a pump. probably omnipod since i cant imagine having to deal with tubing. Good luck with your diabetic journyey there will be some ups and downs but with today technology and treatmend options we can live a long full and healtjy life. 😎😎😎😎😎😎
pretty much the same thing happened to me while i was in the Army stationed in Germany at age 35 in 2012... couldnt sleep due to leg cramps on both sides, weight loss, blurred vision, massive thirst... told me doc, drew blood, coupe hours later got told to go to the ER asap.... got diagnosed as a type 1.. was in great shape at the time...
@@Sambamhilde im good... thru the years, went thru the honeymoon phase, burnout etc but 10 years later it makes me more conscious of my health so im seeing the docs regularly vs reactively ... the best guidance i can give you is to figure out what works best for you, the docs though they care and are competent can only give guidelines especially when it comes to diet most times you'll just get categorized as a type 2 with everyone saying you cant have carbs..... if you ever go on a pump and cgm, you'll have much better control and have the data as feedback... you gotthis!
@@Sambamhilde also i see youre are an athlete...there is a professional cycling team that has type 1 diabetics (TEAM TYPE 1) that started around the time i was diagnosed... finding other type 1 diabetics that were athletes helped me out that first couple years when i was having issues finding out what levels and routines worked for me while riding bikes long distances.... the founder Phil Southerland
has a book that was a good read
I agree with you I get so confused is the same too I got diagnosed of type one diabetes when I was 12 years old and if you do wanna carbs calculated in when you get the insulin pump big deal it’s all in moderation
Recently diagnosed with type one diabetes, and the hospital that diagnosed me only gave me Metformin. Then I soon learned that type one means your body doesn't produce insulin, because I ended up back in the hospital. Now i'm taking insulin and feeling much better. Thank you for sharing your story!
Glad you are now on insulin!!
@@Sambamhilde Me too. I have been feeling so much better! I hope you are having a great day! 🙂🙏
I’m curious to know what kind of instructions they gave you to manage the diabetes before you left the hospital. The symptoms I had were blurry vision and loss of weight but other than that I felt perfectly normal.
I’m 36 years in. I was 21, I was dx in 1987 Laborday which is tomorrow finger sticks were new and machine was too big to carry. I had leg pain and I would go hypo. And didn’t understand either. I also got blurry vision. Was hospitalized with diabetic ketoacidosis. Spent 3 days in the hospital. Then discharged with 2 bottles of insulin and a sliding scale. I really had no idea what I was doing early in and my sugars were all over. Much better now. I have a pump and cgm. My control is good. I have had no complications. So far.
Hey Samantha, thanks for sharing your story. Exercise is a stressor, so maybe over-exercising may contributed to causing T1 diabetes.
Also, exercising heightens blood sugar
What was your A1C when you got diagnosed? Must have been up there. Hope you are under control. I had 70% of my pancreas removed 2 years ago and just started insulin so watching a lot of people’s stories. Good luck!
my son John 16th he was very thirsty drinking and running to toilet but it was more at night so I didnt know until I bumped into him one night he was also losing a lot of weight and I thought it was a growning sprout as he was thin and 5ft 9 he was then gettin too thin lookin wanting very sweet foods and told me he didnt feel right we went to see doctor that day they said us to go to hosp his sugars were 26 in uk we went hosp he got all blood checks told us he was diabetic lucky dat before 16th birthday we could go to childrens diabetic ward otherwise if he was over 16 we were told we may have been on Covid adult ward in which Covid patients were on at that time. children's ward was brilliant gave us all help and advice bit by bit
I just watched your story my son john on 16 birthday got diabetes type 1 2021 it was a big roller coaster just over a year now we have discovered Dr Bernstein book hs is type 1 diabetic from his 13th birthday we are reading it and trying to keep blood sugars level best we can early days quite a book to read he also has videos very eye opening diabetes to be controlled by diet to live long life.
I'm so sorry to hear that John was diagnosed with diabetes. It's not a fun disease for him or for you as the parent! I've heard great things about Dr. Bernstein and his diet!!
Hlw mam stem cell will help us soon we all become normal again I pray to God that type 1 community become normal community that's it no worry about glucose levels
I almost died because i could not keep any food in for a week. So that was 2 weeks ago. I'm still finding my feet and yes it's very scary. My sugar levels are looking good now but please share tips on what I can eat. ❤
Thank you for video, I have supports on Facebook. You learn a lot
I'm 47 and I was diagnosed with type 1 diabetes in 4/2023. My symptoms were similar to yours. My life has changed drastically due to managing this disease. I'm not complaining. It has really forced me to take better care of myself. I'm grateful for that.
@gamingwithmrlongstroke0076 Yes
@gamingwithmrlongstroke0076 It's shocking to me too. My spouse's side has Type 1 and I'm just learning even he or his brother could be diagnosed in their 40s, 50s, 60s.
I was diagnosed type 1 in March after being rushed to hospital with acute pancreatitis. I’ve just turned 48. Trying to eat ketogenic.
I was already celiac prior to this.
I lost a lot of weight and I’m pretty small anyway. My gp thought I was diabetic a year and half before my diagnosis but he thought type 2. It’s a life changer. I lost all my muscle mass. Had all the symptoms as you did also.
Take care ❤
Ugh 🤦🏾♀️ try being diagnosed at 7 years old and can’t even eat birthday cake my mom gave me a choice of getting a pound cake and a carrot cake and of course I chose the carrot cake because at least it has some frosting but she just gave me a tiny piece 😢 i have had type 1 diabetes for 32 years I’m 40 now and it has been a roller coaster for me i have diabetic neuropathy in both of my feet but that’s ok I’m strong i can still walk and jog stay strong queen
You got this!!!
@@Sambamhilde yess I do and you too sis 🦋💙
I am diagnosed 2 days ago ..i am so scared
What was the leg pain?
When you get on the insulin pump if you already already have the insulin pump get the tendon there more better than Medtronic
My son 11 was just diagnosed. We vere all admitted in hospital for two weeks to learn everything. He got a pump( t slim), but we needed to learn to do it the old fashioned way first. We vere akso told he can eat everything ,we jyst have to take insulin acordingly.
When I had ketoacidosis the first meal they fed me was baked ziti. The nutrition in hospitals for diabetics is abysmal. You will go through a honeymoon period after being diagnosed where you will have more leeway. After 50 years of diabetes, I reduce carbs because of insulin resistance…that happens often after years of injecting insulin. Early on, I could eat pasta, bread and desserts with a few units of short acting insulin…not so after fifty years.
My 13 year old daughter was diagnosed monday. Got the exact same conflicting advice you did. She’s a club soccer player so no carbs wasn’t an option for us. It feels like we are all drinking from a fire hose right now. Hopefully it gets better. As an avid runner, what pump do you use?
I don’t use a pump. I’m on MDI pens. Which is technically a bit more difficult
Did your endocrinologist prescribe afrezza?
Sound like mine I was TD1 last year this summer. They can Not explain all the food issues. I was placed into a coma and had a major pancreatic event that messed me up
Diagnosed last year, I am still in Honeymoon phase. My life was turned upside-down 🙃 😅. I wonder why diabetes caused leg pain for you? I have established a good routine but nights still scare me. I try and stick with a low carb diet, that makes things simpler for meals.
Leg pain is caused by electrolyte imbalance, caused by dehydration secondary to water/electrolyte depletion. Tertiary to high blood sugar. Her potassium, magnesium, calcium and sodium was off.
💙
i have a question
I have all the symptoms of type 1 diabetes but no diagnosisI have all the symptoms but I don't have it, my blood sugar was 6.4
Oh my goodness! My story is so similar to yours… Except my doctors weren’t smart enough to put me in the hospital, when I probably should’ve been…
I too, experienced the terrible leg cramps and had never heard anyone else speak of those… Do you know what they are attributed to? Perhaps dehydration from the cells not being able to take nutrients? (from the high blood sugar and lack of insulin.?)
Ugh I’m sorry! The doctors don’t know much about my random symptoms
Checkout the Juicebox Type 1 diabetes alot of diabetic stories and very educational.
@@Sambamhilde I second this. There is a podcast, YT and a great FB group.
Hi, almost the same story as yours haha. especially about the leg pain. F### diabetes
I was diagnose on the year 2010
I think the nurses first thought it was Type 2 not realizing you were diagnosed with Type 1
Leg pain, fatigue, eye pain and blurred vision, nauseous, headaches, caused me to go to er Friday night.
Ugh!!
A mi me lo diagnosticaron en el año 2010
Extremely poor health care and advice on type 1 diabetes. You should have been assigned an endocrinologist on diagnosis and a dietician well versed on type 1 diabetes. This is what happens in Australian hospitals.
Come on, they could have given you eggs and bacon, two obviously things that basically have no carbs.
I am so shocked that you got such crappy advice from the nutritionist. Eat your chips! Take your insulin! 😂
Seriously right?!!!!
Type 1 diabetes happens with no reason, maybe environmental factors suddenly cause changes with genetics triggering pancrease to shut down the insulin secretion. Type 2 diabetes is often occurs due to excessive semen loss through doing masturbation and over sex, it is seen person who follows celibacy for 1 year, preserving semen in most cases they do reverse type 2 diabetes.
@@Sambamhilde you are welcome, hope you get fine, feeling sad for you but happy to see you are very happy and confident, semen retention concept is real and supported by even now many scientists of modern medical, it is said after doing semen retention for 90 days it completes one cycle, once over 3 cycles done, semen will start nourishing damaged cells of body especially endocrine gland, animals rarely get any diseases the reason is they do sex only 1-2 times in a year and that is too in specific season not 24*7*52
Can you bring up the study regarding this topic. I am sure there are more reasons and diabetes is more complicated than what you described type1 diabetes especially
@@alial-qasim2453 excessive sex or masturbation destroys androgen Receptors means body no longer be able to use testosterone effectively, instead they will get converted into estrogen, and eventually significantly lowes testosterone, that is now happening hormonal imbalance that will lead to fat gain and that is how insulin resistance occurs as hormonal imbalance permanently destroys insulin receptors of cells so lack of receptors means poor insulin sensitivity leading to diabetes, in type 1 diabetes if it is since childhood then okay but in often young people and especially in late teens and early 20s when a person thinks about sex or masturbation, his body will react extreme negatively and will destroy Pancreas beta cells, that is how type 1 occurs.
@@Rahul_bhatt_123 this is absolutely ridiculous. If true only males would be afflicted by diabetes. Females would be exempt, also children and celibates would be exempt. My severely mentally handicapped brother in law is type 1 diabetic and doesn't even know what sex, or masturbation is. This theory is way out there and there is no evidence of it being even remotely accurate.