Psychosis from a Caregiver’s Perspective
Vložit
- čas přidán 18. 03. 2024
- My mama helped bring me back from the worst place I’ve ever been and I’m forever grateful for her love and support. Here is her experience going through my battle with psychosis with me. Often loved ones face the challenges psychosis presents in their own way. It is very much an illness that you go through together. Mom did a great job of helping me through it, thanks so much Pretty Mama for saving my life. 🩵
“Lost Patients” NPR Podcast
open.spotify.com/show/1avleoc...
Check out more of my videos about mental health on TikTok!
/ psychotic.in.seattle
Keep up with my projects over on Instagram!
/ psychotic.in.seattle
Follow me on Facebook!
profile.php?...
🥲 Such a helpful video. I’m a mom to a son going through all of this. Seeing your mom so steadfast and calm is a real inspiration for me. Thank you both for taking the time to make this video. I am learning a lot from your channel.
What a beautiful mother-daughter relationship you have! It's so inspiring to see such love. Thank you for sharing such a vulnerable truth. This is immensely helpful.
@@snaify aw thank you! I will let my mom know what you said, I’m sure that will make her day.
I have a daughter who is
going through very difficult episodes...right now she's in a hospital(for probably a month or 2)She was home four years after her previous hospitalization....this episode with your mom is just incredible.....thanks
Good luck to both you and your daughter! I hope she recovers well.
Thank you Ms. Carolynn .
You have humbled me, made me aware of my ignorance to this subject, and have enlightened me, educated me, provided me with perspective and understanding.
You have made a Positive Impact on my life , and perhaps made it possible for me to reciprocate to others .
Experience is the Best Teacher , and You make it shine in a positive light .
Thank you.❤
@@user-fj9vb3un3i wow, thank you! I’m glad to share all this with you & it means so much to me that you’ve shared with me too.
It's so disappointing when you go on meds and they don't work. My son has persecutary delusions 6 months no improvement
I’m so sorry to hear that. I hope something will work. I wish you both good luck.
Meds aren't the solution, it's just a padding but the problem is always something else.
Thank you so much! We went through this with our daughter. It made me very relieved to hear you talk about what you all went through. It was almost the same for us and I am so glad you are getting good care and are in a good place now.🥰
This is so helpful! I have schizoaffective disorder bipolar type and dont know what I would have done without my mom. Your content is so honest and great👍 . My great uncle had paranoid schizophrenia and my paternal grandfather had bipolar and here i am lol.
Thank you. Thank you. Thank you.
Type 1 bipolar here. You're right! You can definitely have a lot of delusions and even psychosis with this disorder.
That's so exciting you got on a podcast! Will definitely listen ❤
Yaaay Thanks, Kim!
When my ex got really psychotic, the shows started setting him off. He was really bothered by abstract symbolism, pentacle rugs, Stephan king books and horror movies.
Helpful and informative, always! Always happy when you post
Thank you, I appreciate it. 🥰
I have to say.. I do understand how bad it might feel for someone suffering with psychosis how people treat you as a threat.. But it's not unnecessary fear they have. I have 2 siblings and father suffering with this illness.. All of them have had delusions that involved hurting somebody else, someone in the family, a baby, cats... And if not supervised or hospitalized things might have ended really badly.
Thank you so much to explain how you coped ❤
Carolyn!!! What a wonderful video!!! We too are in our sons psychosis. And hearing your Mom say I Knew she was in there!” Breaks my heart but gives me hope! Thank you both so much! Can I ask are you on clozapine? And have you read about Dr. Laitmans protocol? I had to learn the LEAP program and I truly believe it saved our sons life. Btw this is Lori Mull Andrews. Not sure I’m typing with my account
It's so nice you had that support while going through phycosis I unfortunately was inpatient and not well catatonic on off non verbal on and off but mine was induced by lithium and lasted a year the most terrifying thing I've ever experienced extremely scary not sure about yours but mine was mostly persecutory but I had the belief of my family being imposters too and interesting enough my phycologist gave me a bunch of meds changes and not informing my family so I understand.
Wow, I’m sorry you went through that! It really is the most terrifying thing I’ve experienced, too. I’m so glad it’s over, I hope you’re doing better now. Mine was very very persecutory too. I was even afraid of my mom! (Clearly she is not some evil witch trying to steal my soul but I had no idea)
I love your content. I have the same disorder and it’s hard to manage
It really is! I’ve got it mostly under control now but the mood episodes do still throw me off.
She probably has bipolar one with psychotic features. I had a diagnosis of bipolar one and recently received the "with psychotic features" that was always there.
Thank you for the video. The music is a little distracting. Maybe it's just me, but I have a difficult time concentrating with it in the background. That being said, I loved the video.
Me too no music would be better
What is your treatment plan? Did your doctor convince you that antipsychotics should be taken forever, or do you taper off at some point? From what I've read, abrupt withdrawal is the worst scenario that most people do out of ignorance once they feel better, but it's less known that long term usage actually causes psychosis (brain adds more dopamine receptors or something to compensate). I'd be curious to know about your protocol, do you have some plan, for example to reduce dosage over a long period?
Well, given the risks of both going off and staying on them, I’ve chosen to stay on them. I know the odds aren’t great either way, but I’d like to hold on to my sanity as long as I can before I possibly go back into psychosis due the long term effects of medication. Who knows, maybe I’ll be lucky and die before it ever comes to that point. I’m not changing my plan, I’m happy with it. I will be medicated for life.
@@psychotic.in.seattle That's sad to hear; in the end, you're relying on having a competent doctor who has researched this for you, because it's really difficult to find the trade-offs on our own. If the materials I've seen aren't lying, your risks won't be any lower if you keep this in the long term - just imagine all the millions of people who will follow the same fate, even those motivated by your story, their decision won't be any easier. For example, my doctor likes to think of it as prevention, and I have to push myself into the risk from my own initiative because it's just insane how incompetent they are at actually treating anything. Like, imagine gaining a new health problem, like a chronic pain; there is no way to make sure it's not an inevitable consequence of hoping there is a miracle cure that should be followed despite the drug's mechanism only being that of short-term help... That said, there may be some cases of schizofrenia where there actually is a physical imbalance in the brain, even though it's probably very unlikely for most people, so if you're definitively so unlucky, there is a chance nothing more can be done. But in general, I'd be interested in pursing the opposite extreme: imagine tapering off over a period of 5 years. If patents are worse off statistically after 7 years if they take the drug, by then the chance of episode could be the same. Is it really a bigger risk to taper this way? On the other side, no doctor will address root causes like nutrition. For example, Ketogenic diet can be one solution that could fix the problem on its own (synchronicity: I just heard a video I'm listening to in the background mention the same thing), I'd suggest researching things like nutrition if you go the route of tapering. Insulin resistance is treatable. Other thing is for example CBD, which is supposedly also something like antipsychotic, albeit without the negatives. Last but not least, even though this is never discussed or mentioned anywhere, and maybe isn't even possible: do you think there's no chance you've evolved your mind by experiencing an episode once you've integrated the reaction to your reaction during the period of a "loosened" logical functionality? For example, one of the typical symptoms is that under psychosis, we don't realize or trust anyone that it's a psychosis. But what if that is actually the goal? To learn to collaborate and be more at peace with delusions and hallucinations so that we don't "act on them as much" and trust that it's a short-term imbalance in the brain. For example, I believe many other drugs could be used to support the person, for example by sedating them, lessening anxiety, improving mood... From my personal experience, when an episode happens, it's not always a random accident, but rather is a chain of dozens of factors that trigger each other, whereas some of them in isolation would be easy enough to handle. There is also a spiritual perspective, though doctors like to dismiss it altogether. One thing is having delusions, which sometimes definitely are delusions (though they don't need to be judged, because for our mind, they would be natural for example in a dream state), other times (synchronicity or even telepathy) I would argue it's likely they can be a result of actions of some spirits/entities, because life just isn't as simple as materialists would have you believe. On the opposite end of the spectrum, one would even suspect the need for an exorcist (though I believe we're just as ignorant in the spirit world as doctors are in the material one, so you won't find anyone competent to help you anyway). Let's not forget that natives often use substances to induce trance-like states and basically consider psychosis as some natural transition phase of a shaman or something like that. That said, I believe there are situations where antipsychotics are a better choice - especially during acute phase, especially if we reach a dangerous state where we're unable to integrate anything. But prevention should be the key (e.g. nutrition like paleo plus treating all other organs, e.g. in my case I primarily had issues with thyroid, linked to anxiety, which can be the trigger / and I even suspect root canal, but that's just a speculation). Oh and when it comes to tapering, it's kinda strange that some drugs like Paliperidone don't even have ways to reduce the dose, so one has to switch to an inferior Risperidone just so that tapering becomes possible at all :) And instead of a chronic usage, wouldn't it be great to start dosing during a prodromal phase? (Though idk if it's backed by evidence, because I've also read somewhere that antipsychotics don't help in that phase.) Well, wishing you good luck!
This is Caroline's mom; I thought I'd jump in here because I think I can shed a little more light on this. Before Caroline moved up to live with me, she was in a program in Oregon which had Parent weekends when we could visit, see our child, and attend programs and workshops. One that I attended was given by her psychiatrist at the time and was about scaling back on medications. Everyone in the program was on some medication. What she had to say was so encouraging, because she said most of the people in the program would be able to scale back or even go off meds in the future. I went up to her afterwards and asked if that would apply to Caroline, and she said, no, Caroline will always have to be on meds. So, what I know is that it's a sliding scale. Yes, some people may be able to go medication free at some point if they make significant improvement in their mental health. I rejoice for them. That's not the case with Caroline. When she goes off her meds, it's huge and out of control. I'm sad more people don't understand this.
@@LeePotter-lg4kl hello from Australia. My adult son was recently diagnosed with schizoaffective disorder. To be honest the mental health system is really bad overhere. He has been on so many meds unfortunately didnt work. Was put on antipsychotic meds but he went off them hated how it made him feel mentally no emotions etc and rapid weight gain which added to the deppresion. Hes been clean off cannabis and alcohol for a year now thankfully, so he manages his mental health in the gym . The paranioa and delusions are hard to deal with i have been his full time carer for years and i have severe fibromyalgia so not easy but i love my son and will never give up on him. Sending hugs x do you find an extremely stressful situation can push our loved ones into mania etc this seems to be what i have noticed from my observations
But the devices are watching you, that's a real thing, its just most people don't actually care and are like "so what?"
malpractice in the field of mental health is as harmful as in the medical field and needs to be addressed in the same way medical malpractice is pursued with lawsuits.
@@billurugursal6349 agreed! I was gravely disabled! I feel that if anyone had been through psychosis themselves, they would be deathly serious about treating people with psychotic disorders, and not as flippantly as I was treated.
@@psychotic.in.seattle if i understand this well, most of the confused state were actually drug induced in your experiences which should not be compared with authentic psychosis or mental breakdown. similarly it can be chemically induced by mind altering chemicals as well as by a deficiency in mineral or hormones. your has a large component of drug induced psychosis that is totally separate from the spontane breakdowns induced by the harsh, war-like environments. the effects of them may be the same with some qualitative differences.