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Parkinson's Europe
Registrace 2. 11. 2009
Parkinson’s Europe is the only European Parkinson's umbrella organisation. We have been championing and working with the global Parkinson’s community for 30 years.
As the leading voice for Parkinson’s in Europe, we provide information and resources to all Parkinson’s stakeholders, raise awareness of the disease’s complexities and impact, and advocate for concrete policy change that benefits the Parkinson’s community.
Our vision is to enable all people with Parkinson's to live a full life, while supporting the search for a cure.
Founded in June 1992 in Munich, the European Parkinson's Disease Association (EPDA) is a non-political, non-religious, and non-profit organisation.
As the leading voice for Parkinson’s in Europe, we provide information and resources to all Parkinson’s stakeholders, raise awareness of the disease’s complexities and impact, and advocate for concrete policy change that benefits the Parkinson’s community.
Our vision is to enable all people with Parkinson's to live a full life, while supporting the search for a cure.
Founded in June 1992 in Munich, the European Parkinson's Disease Association (EPDA) is a non-political, non-religious, and non-profit organisation.
The importance of speech and language therapy: tips & advice for people with Parkinson's
Adult Speech & Language Therapist, Veronica Clark shares advice to help for communication & swallowing issues. Learn new self help tips to use day-to-day.
For information on speech & language therapy for Parkinson’s, see the 'Living Well' section of our website: www.parkinsonseurope.org/living-well/therapies/therapists-and-multidisciplinary-care/speech-and-language-therapy/
#Parkinsons #Parkinson #SLT #speechandlanguagetherapy #swallowing #drooling #sysarthria #dysphagia #sialorrhea
For information on speech & language therapy for Parkinson’s, see the 'Living Well' section of our website: www.parkinsonseurope.org/living-well/therapies/therapists-and-multidisciplinary-care/speech-and-language-therapy/
#Parkinsons #Parkinson #SLT #speechandlanguagetherapy #swallowing #drooling #sysarthria #dysphagia #sialorrhea
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Video
Parkinson's Europe: name change
zhlédnutí 275Před rokem
Parkinson's Europe - The new name for the European Parkinson's Disease Association. Celebrating 30 years as the voice for people with Parkinson's across Europe. Connect with us: www.parkinsonseurope.org Facebook: loom.ly/stAwrH8 Instagram: loom.ly/A2Yb2ME Twitter: loom.ly/NwrN2w8 LinkedIn: loom.ly/wPf7S7g #Parkinsons #ParkinsonsEurope #Parkinson #30thAnniversary
Improving how Parkinson's is represented to be more inclusive
zhlédnutí 215Před rokem
Hard-working and enthusiastic Parkinson's advocate Matt Eagles describes what he would like to see change for people with Parkinson's in the next 30 years - including changes to the public's perception of the condition and how its representation should be inclusive to all no matter the age, gender or ethnicity. #30WishesForParkinsons #Parkinsons #Parkinson #MattEagles #ParkinsonsManifestoforEur...
Strengthen and drive Parkinson’s research and innovation
zhlédnutí 110Před rokem
The ultimate wish for the #Parkinson’s community is to find a cure. Here’s Jannie, a person living with Parkinson’s in Spain, explaining how better research and innovation can help us reach this goal, as well as improving life for people with Parkinson's Disease. Read our full Parkinson's Manifesto for Europe: bit.ly/3UadcSy
Improving the wellbeing and quality of life for people with Parkinson’s and their caregivers
zhlédnutí 92Před rokem
Alexandra's father has Parkinson's, and she knows there are things that would improve his and her family’s quality of life. Here she is explaining the wishes the Parkinson's Community has to improve our wellbeing - which of these sound familiar to you? Read the full manifesto: bit.ly/3UadcSy
Improving diagnosis, treatment and complex care needs for people with Parkinson’s
zhlédnutí 94Před rokem
A personalised approach to Parkinson's healthcare and alternative treatment options are a big part of the Parkinson's community's wishes to improve treatment, as well as ensuring everyone can have a positive Parkinson's diagnosis experience. Introduction by Danny Lavender, and person living with the condition. Read our full Parkinson's Manifesto for Europe: bit.ly/3UadcSy
Increase awareness and understanding of Parkinson’s Disease
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The wishes in our Parkinson's manifesto aren’t just words - they represent the hopes and dreams of people living with Parkinson’s. Here’s Elizabeth, a Danish person with Parkinson's, explaining why the Parkinson's community want to increasing awareness and understanding of the condition. Read our full Parkinson's Manifesto for Europe: bit.ly/3UadcSy
Improving Parkinson's education and training for health professionals
zhlédnutí 79Před rokem
Here's Parkinson’s advanced nurse specialist, Brian Magennis, from Ireland, explaining why improving Parkinson's education and training for healthcare professionals is so important. This represents a key area of our Parkinson's Manifesto for Europe - read it in full: bit.ly/3UadcSy
Professor Bas Bloem endorses The Parkinson's manifesto for Europe.
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Professor Bas Bloem gives a heartwarming endorsement of our latest initiative - The Parkinson's manifesto for Europe. We couldn't have asked for a more positive reaction from a world class neurologist and one of the topmost influencers in the Parkinson's community. #30WishesForParkinsons #Parkinsons #Parkinson #BasBloem #ParkinsonsManifestoforEurope #ParkinsonsManifesto
Professor Bas Bloem endorses The Parkinson's manifesto for Europe.
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Professor Bas Bloem endorses The Parkinson's manifesto for Europe.
WEBINAR: DBS and sensing technology - State of the art and opportunities
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WEBINAR: DBS and sensing technology - State of the art and opportunities
La Présidence Unpacked - Non-Communicable Diseases (NCDs)
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La Présidence Unpacked - Non-Communicable Diseases (NCDs)
Sleep Well - Matt Eagles (UK) Medication wear off at night
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Sleep Well - Matt Eagles (UK) Medication wear off at night
Parkinson's Sleep Well: Josefa Domingos
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Parkinson's Sleep Well: Josefa Domingos
Parkinson's Sleep Well: Professor Michael Okun
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Parkinson's Sleep Well: Professor Michael Okun
Sleep Well for people with Parkinson's: Professor Bas Bloem #2
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Sleep Well for people with Parkinson's: Professor Bas Bloem #2
Sleep Well for people with Parkinson's: Professor Bas Bloem #1
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Sleep Well for people with Parkinson's: Professor Bas Bloem #1
Parkinson's Sleep Well for healthcare professionals: Professor Bas Bloem
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Parkinson's Sleep Well for healthcare professionals: Professor Bas Bloem
Parkinson's Sleep Well: Professor Bas Bloem
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Parkinson's Sleep Well: Professor Bas Bloem
Sleep Well - Matt Eagles (UK) Sleep hygiene
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Sleep Well - Matt Eagles (UK) Sleep hygiene
Sleep Well - Matt Eagles (UK) REM sleep behaviour disorder
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Sleep Well - Matt Eagles (UK) REM sleep behaviour disorder
Sleep Well - Morten Bremer Maerli (Norway) Difficulties with turning and moving in bed
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Sleep Well - Morten Bremer Maerli (Norway) Difficulties with turning and moving in bed
Sleep Well - Matt Eagles (UK) Sleep and movement disorders
zhlédnutí 660Před 3 lety
Sleep Well - Matt Eagles (UK) Sleep and movement disorders
Don't Lose sleep - EPDA's Parkinson's Sleep Well campaign
zhlédnutí 1,2KPřed 3 lety
Don't Lose sleep - EPDA's Parkinson's Sleep Well campaign
TreatER webcast seminar exercise break 2 - Josefa Domingos
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TreatER webcast seminar exercise break 2 - Josefa Domingos
TreatER webcast seminar exercise break 1 - Josefa Domingos
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TreatER webcast seminar exercise break 1 - Josefa Domingos
EPDA ExerciseCast EP.10 - Walking (and counting) in the woods
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EPDA ExerciseCast EP.10 - Walking (and counting) in the woods
EPDA ExerciseCast EP.9 - Exercise and compare numbers
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EPDA ExerciseCast EP.9 - Exercise and compare numbers
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again💫.
For more resources on exercise, cognition and speech therapy check out these links: #EPDA website: www.epda.eu.com/latest/resources/keep-on-moving/ #KeepitON website: www.bial-keepiton.com/training-area/
Dr Madida on CZcams indeed really helped me a lot in reversing my Parkinson disease
awesome video!
Keep up the good work!
Thank you for supporting this noble cause! #UniteForParkinsons
Great work Dr. Rana!! We always need dedicated and selfless people like you spreading awareness.
Tanta instruccion fastidia. Pongan a alguien que baile bien y suavemente , pongan la musica y dejenlos gozar.
EPDA I know you are probably just someone working on the channel..But from what you've seen and experienced personally, what do you think about the Rumors of Hillary Clinton having Parkinsons Disease?
Hello! Parkinson’s disease is complex to diagnose and this can only be done after a thorough assessment by an experienced doctor. We do not have the reliable information needed to be able to accurately comment on such speculation.
Sorry but I have Parkinson's to
so true it makes me not want to go out! hop they find a cure
Thank you for this!!! How is Terry doing in 2016?
+Turbo Diesel You're welcome. Terry is doing fine! You can see him performing an Ice Skating Challenge in support of the EPDA here: czcams.com/video/pdkS-Ah3nck/video.html
Mr. Isaacs, I appreciate this interview. It was quite helpful. I agree, open discussion is crucial. So many people don't understand there is more to this disease than shaking and trembling. I hope all is well. I see this was posted about 5 years ago I am curious how you are doing today if you care to share. Peace
How courageous of this wonderful man to make this video! It is very helpful to people like me who are newly diagnosed.
What a wonderful clip to remember a wonderful day. So proud to have been there and part of this amazing event.....lets keep moving for Parkinson's!
Thank you for sharing this. My body has Parkinson's and I can relate. He is so BLESSED to have you to help him!
Walking the walk & talking the talk! Brilliant idea!
love this!
Amazing initiative - go EPDA!
my dad has parkingsons this video make a lot on sense to me some time the little thing in life open your eyes
What an amazing story. Wonderful
Just watched this Terry...very moving and interesting. Lovely to meet you again at the AGM yesterday. You are an inspiration to all..!!!!
An absolutely fascinating study on how health authorities, insurers etc., graph a patient's 'worth' mathematically, environmentally and logistically. The science of the value of a life....if only people could be pigeon-holed. If only we would 'behave'....if only we would stay 'on trend' and become 'reliably sick'. Fantastic study!
I've never seen anything like this before; it really tells a side of the story that you don't often hear.
but unfortunately for PD sufferers, not all dopaminergic neurons are affected - so giving L-dopa can over-dose those neurons that are not affected - ie. those that are involved in addictions or motivation.
Das ist fast deutsch. And in english: thats in a Language spoken that Sounds like german .in Swiss Dialekt...
Well done, Amazing interview, don't ever give in.
@christina sly for run when I feel rough and it works for me so I think you should join a gymn or take up dancing but work up a sweat get out of breath, I apologise if this sounds smug but I cannot think of any other way of putting it, please contact me direct if I can be of any help at all Terry
@christina sly Hi Christina I am sorry to hear that you are having such a bad time I do not have anything very exciting to say except keep fighting you can have a pretty good standard of life if you get your meds right and keep going the more you do the better you will be I know it is easy for me to say but I always go
i enjoyed your movie,I am still crying...I am 48 and have parkinson's,most days nowI have ahard time getting around anymore...I feel for you and with you...I am fighting every day for the smallest things and the knowledge that I will not win this fight, makes it all the harder. but I wish you and I and our families the best anyway. the alternative would be to give up, and that is not an alternative. Christina
What a heartfelt video. Thank you very much of your honesty & sharing with us, I learned something and I am glad I did. God Bless you, I think you are doing a GREAT job! Keep it up! :)
The video has been produced by Norges Parkinsonforbund, the EPDA's Norwegian member organisation. Unless they have the video already available in German, unfortunately it is unlikely the video would be translated as the costs are prohibitive. You can contact Norges Parkinsonforbund directly at post@parkinson.no
As dopamine does not cross the blood-brain barrier, it cannot be used directly as a treatment for Parkinson's. However, Levodopa (L-dopa) which is a chemical cousin of dopamine, does gain access to the brain where it is converted to dopamine to replace the brain's dwindling supply. There are also dopamine agonists that have a structure very similar to dopamine. Because of this similarity, they are able to mimic the action of dopamine. More information can be found on MedInfo - EPDA website.
Why not give people with PD synthetic dopamine?
@viorelaismeralda - Sorry I could not post the actual link as CZcams does not permit this. However if you go to the EPDA website epda.eu.com and search for genetic testing, you should find the link.
@viorelaismeralda - There is some information on Genetic Testing on the EPDA webpage. You should also try asking your national Parkinson's disease organisation or your family doctor to see if they have any answers for you or point you in the right direction. Best wishes.
my grandmother and my mother had parkinson very young and I would like to get some test to see if I am prone to develop it as well. Are there any such tests I can take?
One has to remember that dopamin isn't just responsible for the correct functioning of motion but is tied to other functions of the brain such as cognition and association. This means that when there aren't enough cells left in the substantia nigra to take on the dopamine from the medicine and therefore other parts of the brain get a surplus, thereby producing a wholr range of quite stark non-motor symptoms.
Thank you very much, this is truly fascinating