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LBDAtv
Registrace 6. 06. 2008
This is the CZcams location for The Lewy Body Dementia Association. www.lbda.org
You'll find excerpted lectures, and information pertaining to Lewy body dementia (LBD). Please contact us at www.lbda.org for more information, support groups, research updates, clinical information and more.
You'll find excerpted lectures, and information pertaining to Lewy body dementia (LBD). Please contact us at www.lbda.org for more information, support groups, research updates, clinical information and more.
Exercise & Empowerment in LBD
The Lewy Body Dementia Association (LBDA) is proud to present ‘Exercise & Empowerment in LBD.’
In this webinar, physical therapist Dr. Joellyn Fox, covered the numerous benefits of exercise for those living with Lewy body dementia (LBD) and safe, effective exercise that can be practiced from the comfort of your own home.
Chapters:
02:00 - Introduction With Julia Wood
06:52 - Introducing Joellyn Fox, DPT
09:05 - Benefits of Staying Active
16:34 - Let's Move Beyond "Exercise"
21:39 - Stretching Tutorial
41:20 - Time to Move
50:54 - Balance Systems
59:25 - Tips to Follow
01:07:15 - Thank You
Sleep disturbances are common in LBD and can significantly impact health and well-being for people living with Lewy and their care partners.
In our upcoming webinar, ‘Counting Sheep with Lewy: Coping with Sleep Disturbances in LBD,’ on Aug. 15 at 2pm ET, Dr. Bhavana Patel will break down these sleep symptoms, offer advice to help you better manage your sleep disturbances and find the support you need to improve your sleep quality with Lewy.
Register at: shorturl.at/zahrR
In this webinar, physical therapist Dr. Joellyn Fox, covered the numerous benefits of exercise for those living with Lewy body dementia (LBD) and safe, effective exercise that can be practiced from the comfort of your own home.
Chapters:
02:00 - Introduction With Julia Wood
06:52 - Introducing Joellyn Fox, DPT
09:05 - Benefits of Staying Active
16:34 - Let's Move Beyond "Exercise"
21:39 - Stretching Tutorial
41:20 - Time to Move
50:54 - Balance Systems
59:25 - Tips to Follow
01:07:15 - Thank You
Sleep disturbances are common in LBD and can significantly impact health and well-being for people living with Lewy and their care partners.
In our upcoming webinar, ‘Counting Sheep with Lewy: Coping with Sleep Disturbances in LBD,’ on Aug. 15 at 2pm ET, Dr. Bhavana Patel will break down these sleep symptoms, offer advice to help you better manage your sleep disturbances and find the support you need to improve your sleep quality with Lewy.
Register at: shorturl.at/zahrR
zhlédnutí: 400
Video
Navigating End-of-Life Challenges in Lewy Body Dementia
zhlédnutí 1,5KPřed měsícem
The Lewy Body Dementia Association (LBDA) is proud to present ‘Navigating End-of-Life Challenges with Lewy body dementia.’ In this webinar, Dr. Melissa Armstrong, discussed the challenges of end-of-life in Lewy body dementia (LBD) and offered practical strategies to cope with them. Chapters: 00:00- Introduction with Julia Wood 03:05 - About LBDA 07:13 - Welcoming Melissa Armstrong, MD, MSc, FAA...
Autonomic Symptoms in Lewy Body Dementia
zhlédnutí 2,2KPřed měsícem
The Lewy Body Dementia Association (LBDA) is proud to present "Autonomic Symptoms in Lewy Body Dementia." In this webinar, Dr. Shannon Chiu, M.D., discussed the various autonomic symptoms associated with living with Lewy body dementia (LBD) and offered advice on how to cope with them. Chapters: 00:00 - Introduction with Shannon Chin, MD,MSc 01:47 - What is the autonomic nervous system? 07:03 - ...
Demystifying Lewy Body Dementia: Women in the Spotlight
zhlédnutí 518Před 2 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present "Demystifying Lewy Body Dementia: Women in the Spotlight." Although sex and gender play an important role, the experiences of women often do not get adequate representation in Lewy body dementia (LBD) research. In this webinar featuring Dr. Ece Bayram, PhD, we discussed what women experience in the LBD community and how women's exper...
Coping with Ambiguous Loss in Lewy Body Dementia
zhlédnutí 802Před 2 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present 'Coping with Ambiguous Loss in Lewy body dementia.’ In this webinar, social worker Lance M. Wilson, MSS, LSW, C-SWHC, ASW-G defined and explored the very real experience of ambiguous loss with people living with Lewy body dementia (LBD) and their care partners, offering a glimpse into their experience with LBD and the methods they em...
Understanding & Advocating for Your Rights to Rehab Services with Lewy
zhlédnutí 428Před 3 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present 'Understanding & Advocating for Your Rights to Rehab Services with Lewy.’ Presented by Dr. Jennifer Brown, physical therapist and owner of Dynamic Home Therapy, this webinar sheds light on how rehab services can improve your life with Lewy body dementia (LBD), your rights to accessing these services, and strategies for finding the be...
The Magic of Music: Music Therapy and Quality of Life in LBD
zhlédnutí 783Před 3 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present 'The Magic of Music: Music Therapy and Quality of Life in LBD.’ Presented by Dr. Concetta Tomaino, a world-renowned pioneer in the field of music therapy, this interactive Wellness Workshop explored the many potential benefits of music therapy on symptom management and well-being for people living with Lewy body dementia (LBD) and th...
How to Find and Participate in Clinical Trials: Practical Advice & Real-World Examples
zhlédnutí 251Před 4 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present the fifth webinar of 2024 'How to Find and Participate in Clinical Trials: Practical Advice & Real-World Examples.’ Presented by LBDA Director of Scientific Initiatives, Keith N. Fargo, PhD, this webinar offered an overview of different kinds of studies that are seeking people with Lewy body dementia (LBD), shared tips for finding re...
Unpacking Parkinsonism: Understanding Movement Changes in LBD
zhlédnutí 1,3KPřed 4 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present the fourth webinar of 2024 'Unpacking Parkinsonism: Understanding Movement Changes in LBD.’ Presented by Dr. Jori Fleisher, MD MSCE from LBDA’s Research Center of Excellence at Rush University Medical Center, this webinar defined the various presentations of common movement symptoms in Lewy body dementia (LBD), the medication and non...
Introduction to Synuclein Biomarkers: How Researchers are “Seeing” Lewy Bodies in the Living Brain
zhlédnutí 1,5KPřed 4 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present the third webinar of 2024 'Introduction to Synuclein Biomarkers: How Researchers are “Seeing” Lewy Bodies in the Living Brain.’ Hosted by Dr. Kathleen Poston, a leading figure in Lewy body dementia (LBD) research and care and co-lead of the LBDA Research Center of Excellence at Stanford University, this webinar discussed the currentl...
Move BIG and Speak LOUD with Lewy
zhlédnutí 667Před 5 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present the second webinar of 2024 ‘Move BIG and Speak LOUD with Lewy: The Power of LSVT BIG® and LSVT LOUD® to Optimize Your Quality of Life.’ Hosted by LBDA and LSVT® Global, this webinar explored movement and voice changes associated with #Parkinson’s disease and #Lewybodydementia (LBD) and the evidence-based approaches available to addre...
Discovering the Power of Purpose
zhlédnutí 706Před 6 měsíci
The Lewy Body Dementia Association (LBDA) is proud to present our first webinar of 2024 ‘Discovering the Power of Purpose.’ Hosted by Julia Wood, MOT, OTR/L, LBDA Director of Professional & Community Education, this webinar explored what it means to live with purpose and delves into the research-backed benefits. We were joined by a panel of true experts, including individuals living with Lewy b...
The Role of DaTscan in the Diagnosis of Dementia with Lewy bodies (DLB) | Episode #8
zhlédnutí 672Před 6 měsíci
LBDA is proud to present the eighth episode of our 2023 Community Webinar Series, ‘The Role of DaTscan in the Diagnosis of Dementia with Lewy bodies (DLB).' 'The Role of DaTscan in the Diagnosis of Dementia with Lewy bodies (DLB),' examines the overlapping pathology and symptoms of Parkinson’s and Alzheimer’s diseases, which can create challenges to diagnosing DLB. Research suggests that DLB is...
Building Your Care Team: The Role of an Aging Life Care Manager® | Episode #7
zhlédnutí 215Před 8 měsíci
LBDA is proud to present the seventh episode of our 2023 Community Webinar Series, ‘Building Your Care Team: The Role of an Aging Life Care Manager ®.’ This webinar introduces Aging Life Care™ management: a holistic, client-centered approach to caring for older adults or those facing ongoing health challenges. Their guidance leads families to the actions and decisions that ensure quality care a...
You Spoke, We Listened: Research Priorities of the Lewy body dementia Community | Episode #6
zhlédnutí 348Před 9 měsíci
LBDA is proud to present the sixth episode of our 2023 Community Webinar Series, ‘You Spoke, We Listened: Research Priorities of the Lewy body dementia Community.’ In 2021, the LBDA Research Centers of Excellence Community Engagement Working Group conducted a survey aimed at identifying the research priorities of individuals living with Lewy body dementia (LBD) and their care partners. This gav...
Understanding the Science Behind Disease Modifying Trials in Dementia with Lewy Bodies | Episode #5
zhlédnutí 850Před 10 měsíci
Understanding the Science Behind Disease Modifying Trials in Dementia with Lewy Bodies | Episode #5
Prescription for Hope: Using Palliative Care Concepts to Support Self-management in LBD | Episode #4
zhlédnutí 1,1KPřed 11 měsíci
Prescription for Hope: Using Palliative Care Concepts to Support Self-management in LBD | Episode #4
Vision in Lewy body dementia | 2023 Community Webinar Series #3
zhlédnutí 3,5KPřed 11 měsíci
Vision in Lewy body dementia | 2023 Community Webinar Series #3
Effectively Managing Medical Appointments in Lewy body dementia | 2023 Community Webinar Series #2
zhlédnutí 806Před rokem
Effectively Managing Medical Appointments in Lewy body dementia | 2023 Community Webinar Series #2
Coping with Cognitive Challenges in Lewy body dementia | 2023 Community Webinar Series #1
zhlédnutí 2,4KPřed rokem
Coping with Cognitive Challenges in Lewy body dementia | 2023 Community Webinar Series #1
Rising Above Lewy, Ted Turner and Susan Schneider Williams
zhlédnutí 3,6KPřed 2 lety
Rising Above Lewy, Ted Turner and Susan Schneider Williams
8 Inspiring Years of LBD Walk for Awareness
zhlédnutí 92Před 2 lety
8 Inspiring Years of LBD Walk for Awareness
Wow, this should be deleted.
Excellent presentation - Dr Armstrong is a great communicator - clear and direct. Thank you
PERSERVERE (out of Rush University) is currently recruiting now. I have enrolled.
This was a great presentation. Very informative regarding autonomic symptom and associated issues because of LewyBody dementia.
Thanks Dr. Tomaino for this great presentation. Valuable info I will use and share!
I miss him so badly being the head of CNN. When news was proper news
This has been very helpful information to me. Thank you all very much!
As a 65 yr old woman recently diagnosed with LB Disease, I found this video helpful. My journey has been very different than the 3 women spotlighted. My diagnosis came within 2 yrs of my sleep study and I have always felt listened to and seen by my providers. If anything, I was the one dragging my feet to move forward with additional testing to obtain a diagnosis. Thank you for the work you do. I look forward to more of these informative productions.
Is she trying to make Turner her next husband? I have LBD and I dont care for this. Just me I guess.
Because society has blindly accepted the myth perpetrated by trans activists, people who were duped into believing they can medically change sex, have a unique challenge with dementia. People who have had healthy body parts removed or exchanged, when they suffer from dementia, are very confused and distressed because they know what sex they are, and don't understand why their bodies don't reflect that.
FJB
Thank you for putting this amazing session together! It was so thoughtful and really connected with my personal journey as a Lewy Body Dementia patient. There are so many untangables which this condition throws at us. The panel add brilliant insight into how we may cope with loss associate with this condition. THANKS YOU!!!
Yep, didnt age well
Can I lose my ability to read in the early stages?
What happens as my wife has become agitated , taking Razol 13:30
I’m so proud of you my friend! You’re an amazing inspiration to me and all living this journey with you 🫶🏻😊🤗💚
What if they refuse a shower for a month vs day? An SSRI won't work quickly for a shower?
caregiver wife
yes
Caregiver wife
New
❤ Thank you Dr. Fleischer n speaker for LBDA group
Caregiver wife
No have not yet
caregiver wife
Add date to webinars
Yeah, this didn’t age well.
Friend and former care-giver
I have LBD. I can put up with alot but hallucinations are driving me crazy. I have meds but they wear off.
Ok works
Why I did not have sound?
I had this for a while and I’m only 20 some but I was convinced my parents and everyone had been swapped out with identical clones by the government. It was weird though because I could entertain these delusions and become very scared but I also knew why it was happening it was childhood trauma sort of coming out I remember as a kid once my mom was kind of cold with me I knew as a kid that was my mom but subconsciously I must’ve thought that maybe my mom had been replaced while I wasn’t around abandonment type issues lol but I can easily snap out of it if I go to a doctor they’re gonna try and say I’m schizophrenic but I feel good tbh
Oh yea and it sort of happened while I felt the people who I thought were cloned had betrayed me
The reply you are reading is merely a piece of your imagination
You’re a doctor? Dumber than a f’ing box of rocks. 😡
I don't know if these webinars are intended for LBD patients, but, if they are, they are much too long. Information provided in 5-15 minute bites would be much better for those of us who have severe attention issues, Thanks
Ted is a globalist who purchased the Georgia guide stones stating we must depopulate to 500 million worldwide. He assisted polluting our air water land and food. Good luck with your life review Ted.😇
Finally! Confirmation that what my LBD person is experiencing is not just eye related! Our eye health providers are not educated on this matter. Thank you for the information.
thank you so very much for this important information !
I truly believe that LBD, and Crohn's Disease (IBS)are one of many diseases caused by chemicals, pesticides, and GMOs. I suffer from both. The government should be held responsible for allowing poisons like fluoride in water supplies, which now know it has poisoned us for generations...😢
We all are getting to that point. Be alive and enjoy our World. Be inspired each day. Your mind functions darn well. Here for you
He inspires all of us. Our environment. Now that he accepts aging,. he can enjoy his senior years. I stand for you as a person. Love you always
I doubt that he will enjoy his sr yrs. Are u daft?
What to do when family takes behavioral changes as personal affront?
Thank you for this question! Our Support Services team is here to provide compassion, support, resources, and education. Please contact our Support team through our Lewy Line at 800.539.9767 for more advice on what to do when your family takes behavioral changes with LBD as a person affront or email us at support@lbda.org. Find 'Understanding Behavioral Changes' on our website at www.lbda.org/understanding-behavioral-changes-in-dementia/ for more information on these behavioral changes and helpful tips for navigating them.
Ted Turner is my hero! One of the most facinating person of our time. I love how he always danced to hus own music! Thank you Ted for everything!!
JR, thank you for sharing your story! I greatly appreciate everything you do for those of us living our best lives with Lewy!
Thank you Gary for sharing your story. God Bless you for all you have done and do to educate others on LBD.
YOU NEED TO RETHINK THIS VIDEO..... WOW
Sometimes at night, my husband sees stewards from a ship. He has never been on a cruise. I said to him next time ask them to bring you a drink, but don't tip them.
So now that they dumped the term "dementia" for "major neurocognitive disorder" they removed the criteria that put memory impairment as an essential feature?
My mom had a cute little alien visit her.
Omg, amazing this is still on and the crap that was being pushed at that time. Get the vaccine your a guinea pig. What is a vaccine? Its a faster way to death's doorstep.
This series has been edited. I watched this in 2019. There were five parts, they were longer, slides were shown. The segments didn’t break in the middle of his sentence.