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Recovering Relationships After Brain Injury: A guide for survivors and family members - Part 1
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- čas přidán 9. 12. 2010
- Pacific Coast Brain Injury Conference 2010 - Keynote Speaker: Dr. Jeffrey Kreutzer, Director of Neuropsychology and Rehabilitation Psychology at Virginia Commonwealth University
Session Description: In the long term, loneliness and loss of relationships may be one of the most painful changes that follow brain injury. Years after injury, many survivors talk about feeling alone and misunderstood even when they have friends and family to spend time with. This presentation will discuss how and why relationships normally change after brain injury. Practical information will be provided to help survivors and family members improve existing relationships and establish new relationships on the road to recovery.
I am married to a person with brain injury, TBI ,it has been like living in hell ,while I love her !!!!! The pressure I details,talks,insults without her know she is insulting me ,the headaches and so on is hell . And almost every week is something? I feel like I have the brain injury. But say what ? It is what it is ! So I am trying. I wish everyone all the best who is also going through this and a merry Christmas and a prosperous God full new year
My wife CANNOT comprehend what I’m going through daily ….
i lost most of my family......it's been over 15 years now....they see me rarely....less than 1 - 2 times a year......their choice......i had encephalitis.....right frontal lobe 1/3 - 1/2 gone per MRI.....personality changes, processing difficulties, judgement errors, filter......dogs love me....
It's good dogs 🐕 love u 👍
Same here its been 15 years and ive lost most people,nobody understands or dismisses brain injury as i look fine and appear normal..
Whats worst is that you are treated like normal and doctors in kaiser all of them treat you like normal police treats you like normal and the judicial system treats you like normal but we are not we now have emotional memory jugdement cognitive disfunctions and none of that is our fault.
Yes but yr n we with brain injuries are not alone . If you knew how many people are walking around with invisible disabilities u would be shocking everyone's going thru hell no one else knows abt hence we should be kind
I’m a doctor with a moderate severity TBI. Happened 5 months ago. If I say I’m fine and press on, then I can get very quickly overwhelmed. If I say I’m not okay, then I can lose my practice privileges. On top of everyone else treating me like I’m either a slacker or I’m “brain damaged”.
Meanwhile, patients are fantastic. The most therapeutic thing in all of this has been seeing patients in clinic. Just doing my job-but having extra time to do it. Patients love it as much as I do. All appointments should be longer-all providers need more time to actually get to know their patients.
I can relate to this because I had to fight the system for 15 years to FINALLY receive SSDI-( Social Security Disability Income ) through 4 appeals and 3 attorneys...
I lost most everyone who was close to me before the injury, and for some reason it's my fault. Like I gave myself the injury 🙄.
Now that I'm sitting here with pretty much everyone gone, I'm so sick of trying to salvage my relationships with people. They can salvage it themselves or better yet, they can disappear.
I'd rather live away from every person that I'm no longer good enough for.
I have given up on love because I do not believe any woman could handle my TBI "quirks"... My Model Car Building hobby,SSDI income-( after fighting the system for 15 years through 4 appeals and 3 attorneys ) and driving part time for a car dealersship fill the void in a way,give my life meaning,help me deal with my TBI and PTSD issues,and improve my self esteem...
This talk is great. Thank you.
I am alone. Navigating "recovery" or life post TBI on my own.
Rural FL.
Senior. Far from help.
God willing I will get to treatment, support, better community before I lose all my marbles. 🙏
after a 2 tbi's Ive suddenly realized no one ever truly loved me
How do you mean? I'm asking honestly hoping to convince you that is not the case. I'm a TBI survivor as well, and struggle with what appears to be similar things.
Sometimes when dealing with my TBI, I never know who I can trust and who I can't either. It gets frustrating so I just take everything slow and try not to get upset. I hope you're feeling better now!
I don't know you but I love you and I know that God loves you and you have a purpose everybody has a purpose sometimes we don't know what it is but you just pray to God and say I'm healed pray to God everybody loves me people love me God loves me just say it over and over and over and you'll see you will truly see how much God loves you and everyone else
Yes. We ALL are really alone. The Holy Spirit is the only one who knows all my thoughts and feelings. I’ve learned how to really enjoy being alone. Being outside. Taking pictures. Art and music are healing.
I’m blessed with a very gentle neurologist, psychiatrist and mostly husband. A gentle older psychiatrist/therapist is crucial
Thank You for this important Information. NOW where is the HELP for my son, age 50, victim of near-drowning at age 17, near-suffocation at age 26?
Thank you so much for this information.
Where is the rest of this?
The lack of feedback from is tells how failed the experts are
Why can't we get professional help? What the hell are we supposed to do?
I had brain ruptured aneurysm almost 6 year’s ago.
Almost died. Couldn’t eat ,had g tube, couldn’t walk talk.. couldn’t swallow spit. Had suction.
But my Savior Lord Jesus Christ saved me and gave another chance to live.
God had put all doctors and nurses to help me, God really bless them and their families 🙏🏽🙏🏽🙏🏽.
Recently my gorgeous beautiful angle daughter went Heaven.
My pain is unbearable broken hearted.
But I’m here to tell everyone,, I have Hope in God that one day I will see her.
Receive Lord Jesus Christ as your savior.
Trust in Him ,He will help you .read Psalm 91;23:121.
My mother is going through hypoxic brain injury. Even she can't do anything, has suction totally bedridden 😞 By God's grace she has come out of coma & slowly regaining her memory. After reading your comment, I'm hopeful that she will recover and live a meaningful life🙏🏻