Jenni's Dazzle's Top Hacks to Help You Manage Your EDS & HSD || Awareness Month 2019
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- čas přidán 7. 05. 2019
- #EDSAwarenessMonth #HSDAwarenessMonth
Me and my beautiful dazzle are back and bigger than ever for this years Ehlers Danlos Syndromes and Hypermobile Spectrum Disorder Awareness Month 2019. This May we will be bringing you lots of videos sharing our lives with EDS & HSD to help fellow sufferers and help the rest of the world understand what living with these chronic conditions is really like!
This week is all about our top products and hacks that help us to manage our EDS or HSD.
You can find a handy list of links to lots of the products featured in this video here: kit.com/ChronicallyJenni
Find me across social media:
Facebook: / chronicallyjenni
Instagram: / chronicallyjenni
Twitter: / jennipettican
Facebook support group: / 785786465114178
Mixcloud: www.mixcloud.com/jenni-pettican/
Email: chronicallyjenni@gmail.com
Patreon: / chronicallyjenni
Kit: www.kit.com/chronicallyjenni
Music Credit: www.bensound.com/
Meet the Dazzle:
Amy, 23, hEDS, Dunblane, Scotland. Instagram & Snapchat: ymagunn
Beverley, 41, hEDS, Staffordshire, UK. CZcams: Beverley Butterfly Blog: www.BloomingMindfulness.co.uk
Brittany, 25, hEDS, Washington, USA. Instagram: @brittanys_hope & @servicedog.jasmine Twitter: @brittany_app
Catie, 26, hEDS, North Carolina, USA.
Christina, 31, hEDS, Delaware, USA. Instagram: @fawnhope0206
Cosima, 21, hEDS, Switzerland. Instagram: @cecescrazylife
Gemma, 22, hEDS, Bedfordshire, England. Instagram: @gembaileysmith
Georgia, 20, hEDS, Cardiff, Wales. Instagram: @Georgia.elise
Jay, 40, hEDS, New Jersey, USA. Twitter & CZcams: SuperFlyEDSGuy
Kilynn, 20, hEDS, Iowa, USA. Also has Type 2 Diabetes. Twitter: @tealzebra1 Instagram: @Ki_4ever_
Kim, 30, hEDS, Ireland. Instagram: @ChronicallyKim
Laura, 24, hEDS, Lincolnshire/Yorkshire, UK. Instagram: @LolaaMaple
May, 25, hEDS, USA. Instagram: @priceofgenetics
Nicole, 37, hEDS, Oregon, USA. Also has a visual impairment. Instagram: @SaunderNicole
Noah, 17, hEDS, Virginia, USA. Instagram: @Noah_Knicker.258 Snapchat: noah10Knick
Poppy, 15, hEDS, UK.
Rachael B, hEDS, 32, Illinois, USA. Instagram: @RachaelBangertPhotography
Rachael O, cEDS, 28, Texas, USA. Instagram: @ravishingnailswithrachel CZcams: Living with Stripes
Jess & Shannon, 18 & 20, Hertfordshire, UK. Instagram: @JessGibson678 @ShannonHookerr
Sonia, hEDS, Illinois, USA. Instagram: @solo_1981 Facebook: sonia.lozano.503
Stacey, 25, hEDS, Colarado/Washington, USA. Instagram: @runtriveg
Sydney, 22, cEDS, Ohio, USA. Instagram: @ClinicallyChronically
Teri, 39, hEDS, Texas, USA.
![All That You Can't See: Living with Ehlers Danlos Syndrome [CC]](http://i.ytimg.com/vi/ENuOE-C9WJs/mqdefault.jpg)
If you want to find out more about some of the products in the video I've made a handy Kit with lots of bits including other things I've found helpful over the years: www.Kit.com/ChronicallyJenni
If there's anything you don't see make sure you comment below so I can add it to the list.
Also, make sure you subscribe as new EDS Awareness Month Videos will be coming your way every Wednesday in May!
Spoons & Love xxx
I really liked that so many people from all over the world came together to make this helpful video. Great job everyone!
I so love getting this amazing community together! Glad you found it helpful! x
It’s so nice actually seeing people talk about what helps. Thank you for putting this together.
Definitely! There can be so much doom and gloom sometimes (although hardly surprising) but good to put something positive, helpful and practical out there. Thank you for watching! x
I would second the adjustable bed. Even though it’s expensive it has been a godsend. If you have a partner you can get single mattresses that fit in a king size bed frame so you can just adjust your side of the bed. I also have a chair that rises and reclines in my living room. This makes such a difference to my life as has my electric wheelchair that I got last year that allows me to go out more. Thanks Jenni and friends for producing a great video that I picked up lots of tips from xx
May have to look into this for when I get a place of my own Just having that little bit of support to get up would be so helpful sometimes! So glad you found it helpful :D x
I find that ALEXA helps us a lot. It means I don't have to yell (hurts my aching head) or look all over the house for my kids or to check whether they are doing their work in their rooms (we home educate). I can call their room or the area of the house I know they said they would be in using the system (or just call everywhere), and do a check in a minute or two of all of them. It is also great for audiobook listening and cheerful music, as well as reminders to call for refills or to pay bills (I write messages to myself at night, then set reminders in the morning). I imagine any similar system will help as well, we just enjoy playing Jeopardy and asking "her" to tell us jokes. Hugs!
I'm definitely going to be getting ones when I move out they are so useful even for simple things like turning lights on and off! Spoons & Love x
Loved this video and I feel so proud to be included amongst so many warriors xx
So glad to finally have you in one of these! Looking forward to the next one :)
Thanks Jenni. Some really good ideas there!
Thank you Gordon!
Great job! Thanks for making this
Thank you for being part of it! Lots more to come!
So a hack I have for cooking in pans is using a chip fryer strainer, I’ll try and put a link to what I mean, but I use it in a saucepan whilst cooking so you put your veg, potatoes or even pasta inside the chip fryer basket and put that inside your boiling water saucepan and cook as normal. It means I can use two hands to lift and drain the boiling water just there in the sauce pan, then put food onto the plate. I then can leave the boiling water in the pan on the hob to go cold and all I need to do is then use two hands to then drain that cold water out later on. Hope the link works and you understand what I mean. www.wilko.com/en-uk/wilko-functional-chip-pan-basket-8-x-18cm/p/0042850
Yes! I was taught that in Rehab and just haven't been using it but I really should it's a great hack! Thank you! x
I literally purchased an ergonomic knife while she discussed it because I needd it to live! Thank you
@@charleennicholson6280 literally makes life soo much easier glad you found it helpful! Spoons & Love x
Jenni, where did you get that knife? I could really do with one of those x
Not to worry, just noticed your pinned comment duh :)
Hope you found it okay :) x