How to Keep Your Sanity When Your Health is Insane: Managing EDS/HSD and Multiple Comorbidities

As if having EDS/HSD isn’t enough, many of us have other comorbid conditions to manage as well. This often means juggling multiple specialists and complex coordination of care. Cynthia will share tips and tricks for bringing order to this chaos and prioritizing your healthcare needs. She will also show you ways to build and manage your care team, research your conditions, and ultimately choose the treatments that are best for you. Cynthia wants you to learn how to be in control of your healthcare.
Slides for this webinar can be found at
bit.ly/2SlUyse

[@ZebraGirl97]

Thank you so so much for this. As someone who, like Cynthia, has EDS, MCAS, immunodeficiency, as well as dysautonomia, lupus, and sjogrens, it can be a challenge to keep day to day life together. I would love if Cynthia would consider coming back and talking about navigating graduate school as someone chronically ill, or services and tips to help. I just finished my B.S. and am pursuing either a PhD or an MD-PhD and am understandably nervous considering my difficulties.

[@tucker2940]

Thank you!! This is so helpful for not only EDS folks (like me), but for anyone who suffers from any chronic condition. Going to pass all of this on to a friend who has an undiagnosed condition that has ruined his life & testing his marriage. Prayers for you & all those suffering from chronic conditions that cannot be completely remedied. 🙏🏼

[@desireeadrian5722]

Thank you SO much for this information. It has been a very sobering experience navigating things and realizing I had doctors who dismissed and downplayed my symptoms and conditions. I will be better prepared for the future and also more informed to advocate for my children, if they present with symptoms.

[@shannongreenwell1278]

I have EDS and Epilepsy. They both are enough to drive me insane!!

[@73DawnAllen]

Very helpful! Thank you

[@emw5]

THANK YOU FOR EVERYTHING!
GOD BLESS YOU ABUNDANTLY FOR PASSING ALONG THIS WEALTH OF KNOWLEDGE

[@dinornis]

An unrelated question, I was wondering whether the video for this session (back in 2017) is available at all? ehlers-danlos.com/pdf/Grahame-An-Old-Timer's-View-of-the-New-EDS-Criteria-S.pdf Thanks :)

[@Advocate.bettie]

I am very curious on who she is seeing im in Denver and struggling to find a good doctor

[@sarahjackson7889]

Hi i have jhs it cosis me a lot of pain in my body

[@shorelined1]

Idk if it's a technical issue, but the audio is nerve grating

[@StoreePowell]

Not the best use of insane...let’s try to not be ableist. There’s enough of that garbage already.

[@StoreePowell]

@Nat Zee Your ablesplaining sucks hard. www.autistichoya.com/p/ableist-words-and-terms-to-avoid.html?m=1