Vlogging with EDS: Cardiology, Henna, and 1,000 Subscribers! | Week 11
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- čas přidán 22. 01. 2017
- Hey guys, thank you so so much for 1,000 subscribers! You guys are the best! Thank you for coming along with me on this journey and sharing your stories with me.
Where to find me:
My Instagram: @watercolor_me_impressed / watercolor_me_impressed
My Etsy Shop: www.etsy.com/shop/ChristinaPa...
My Redbubble: www.redbubble.com/people/chris...
My Medical Facebook: LoveOnChrist...
My Personal Facebook: / christina.doherty.315
My Email: Watercolormeimpressed@gmail.com
Hi there! I just have to say I love your videos. I am a student nurse and I originally came across your video on G-tubes and I can't stop watching. Thank you for sharing so much of your life with everyone, and your video about living with a chronic illness and body issues was absolutely inspiring! I deal with illness that is more of a mental issue but everything you said resonated with me. Again, thank you so much for sharing all that you do! You are inspiring!
Hey, glad to have you! Thank you for watching my videos, it makes me so happy to know that there is a future nurse who will now know just that much more about these conditions. Having the right nurse is probably one of the most important things to me during a hospital stay. They truly become your friends and family
I love how positive you are! I have pots and eds and it's really hard sometimes to find positive influences with people who struggle with the same thing. Keep up the awesome work and hope you are doing okay!❤️
Thanks girl, I try! Everything is always so out of my control, so I figure I may as well enjoy everything that I CAN control.
I found you after i got diagnosed with EDS and I've learned sooooooo much and I love that you do these videos! My doctor didn't really know anything about EDS and told me to look up stuff online and join online communities and so watching your videos is amazing because I can learn so much about everything and they make me feel a lot less alone with my condition, so thank you so much Christina! Maybe you can talk more to your cardiologist about the port by bringing up how much water can help with relieving pressure on joints and everything like that because sometimes it takes bringing up what they hadn't thought about to help sway them.
+Dana Max Im so glad that you found me! I make these videos because I wish I gad them when I was diagnosed. So it makes me happy to hear when they help. Thats a good point about the water! Thanks! I did aqua therapy a bit before and it was good. Swimming is a good exercise for bad joints. I don't want to force the port conversation if she's really uncomfortable, but I just feel like it would better fit my lifestyle
I love your videos, they really give me hope that things get better, and that hope and happiness is always the best option, i really can't say how much these videos mean to me.
❤
That henna looked like mud to me so that's pretty cool that it actually dyes your hair. I also shrieked inside when I saw your MacBook above all of that water lol. Glad to hear that whole regurgitation wasn't anything unexpected too! Congrats on 1k subs!
+Josh Hittie It basically is mud hahaha Thanks 💕
I'm commenting as I watch so now I need to add: Your hair looks beautiful! I love the effect it gave! Its subtle yet powerful. I love your aesthetic and your style
+earthandfire Thanks I like it too! Its fun that its just kinda tinted
I just stumbled across your channel in one of those serendipitous moments and am so glad I stopped to look in. I'm learning so much from you and really enjoy your videos.
+Christine Cortese So glad to have you here! 😊
Christine Cortese
I stumbled across her too a couple of days ago and I echo every word.
:)
Thank you so much for making these videos!
+justmeamara Thank YOU so much for watching them!
love your dream catcher necklace. ✌❤
Hi Christina, I am a new subscriber as well and I really enjoy your videos. I don't have EDS but I am in the nursing field and hopefully will be going to school for LPN in September. I am learning alot from you and you are helping me understand and introduce me to different things.
Thats awesome! Best of luck in your schooling! Having the right nurse honestly makes all the difference during a hospital stay or doctors visit. I know that my nurses have truly become my friends and family. I hope to show through these videos that patients really are people too and we may have some things that complicate us, but we do still have a life outside of the hospital
I love watching your blogs and seeing what you go through and how you educate everyone on your disorder I do not have this disorder but I do have other disorders and and I love watching medical stuff to educate myself about things stay strong you rock
+ConversionDisorder Thank you, I try to make is as applicable as I can to people with other conditions. Oftentimes our symptoms and experiences are so similar that the only difference is really the name for them
Congrats on 1000 subs! Good job!
+Through The Eyes Of Jesus Thanks so much💜
Your hair turned out wonderful!
+KneeCoal Lyb Thank you! I am loving it :). Its so subtle
I hope you get your port soon!
+Hanna Thanks Hanna! 😊❤
Congrats on 1000 subs 🎉 😊
+Rolling With Hannah - Life with invisible illness Thanks girl! 😘
There are things you can use in your hair to lighten it that aren't hair bleaches, if you really want to. lemon juice, baking soda, hydrogen peroxide, certain teas, etc etc
Hmm I will keep that in mind for the future. Is it damaging to the hair?
No, and you can mix it with conditioner or coconut oil to make sure the hair doesn't dry out
I am a water person too! Plus the water helps us EDSers so much! I don't blame you for wanting a port. Hopefully in May she'll be more for it. Do you go out of state for your Cardiologist too?
+Kerry Sheehan Some people just don't understand us water people lol. I would never go to a beach and just lay in the sun, that would be torture. Luckily my cardio is in state! Its so nice to have her so close. Its almost weird to me how easy it is.
Christina Doherty is she good with EDS? I was told I should get a referral to one to try to get my POTS under better control.
I really recommend the henna hair dye from LUSH! it's amazing!
+Flower_power I started using this brand since my friend had some extra and just stuck with it lol. I may try Lush in the future though since I love Lush ❤
Christina!!!! CONGRATS GIRL!!! 1,000!!! WOO HOO!! You are one amazing woman. Keep being positive. I'm going to check out your Etsy shop now, love all those little spoons. I had to laugh so hard when you had your laptop in the tub, I do the same thing, only I place mine on the back of the tub and watch YT, not work. lol. Have a great week!!
PS- are going to be selling those Zebra water color shirts?
+Chelsie Wise Thanks so much! Wahoo! The zebra shirts are available on my Redbubble account. They make and ship out the shirts and I get a small cut. They come in a few styles too which is nice. Its pretty cool. The link to that shop is in my video descriptions or you can search for the shop "ChristinaPaints" on their site ❤
I just checked out your etsy store...your jewelry is beautiful. Definitely gonna have to order a necklace sometime soon. 😆
+Lindsay Wager Thank you! I really enjoy making them :)
omg your necklaces look so so good. In the past I tried so hard to get good at macramé and it never worked :( They are so amazing. Checking out your etsy right after this video!
+earthandfire Thank you! I just started getting into macrame and Im loving it. All of those years of friendship bracelet making is paying off :)
Hi Christina! I enjoy your upbeat videos! They cheer me up. Who do I see for a tilt table test? I think I have pots but my family doctor doesn't know anything about it to refer me. Any help in getting this diagnosed would be helpful! Thank you so much! Kathy
Hey Kathy! I tilt table test would likely be performed through a cardiologist although I have heard of neurologists ordering them as well. I would probably start with cardiology though if you can get a referral
I've doctors that I fight with about what I want too. it can be hard sometimes, I hope you can get to swim this summer.
Me too! :) I am not giving up on that lol
You are strong willed, I'm sure you will fight.
I'm the reason you have 1,000. I recently subscribed. 😋
+music dreamer Wahoo! Thanks for subscribing 💜
Lol. You're welcome. It's me Stephanie btw ☺
Hypo ☺
I had a port and was supposed to have it in for at least a year, but because my skin just sucks at everything the skin over my port ripped and then had to get it taken out right away. The port was nice for the five months it lasted but if you have super fragile skin it might happen. Also after getting my port put in, it took weeks for me to get back to my normal. I am all for ports but if you get one be sure to watch for the skin tearing.
+Brianna Lewis Thanks so much for the tip! Its good to know. I do have fairly fragile skin, it does heal up but some of my scars have gotten quite wide. Sorry it didn't last for you! And also thanks for the heads up about the procedure. I kind of expect that, our bodies hate anesthesia/procedures. Hope you are well, thanks again 💕
I'm glad the hair dye worked i was afraid you would react. I'm off to rheumatologist tomorrow mri. My neuro symptoms have gotten bad. i hope this weeks appointments are happy and productive. Bill
+bill hundt Best of luck with the MRI! I hope you are able to get some well deserved answers ❤
Christina, I saw your reply on a Gifted Life, the one where she did art on front lawn. She is wild. I go back and re watch some her videos over and over. If you have not seen the ones where she tries to watch horror movies, the other is the one where she shows us her daily routine.
I love her! hahaha I have seen them all! She is just so funny
This reminded me to get a follow up with my cardiologist. He put me on fludrocortisone for my POTS and it's helping a bunch but I'm having so many side effects. I think I'm going to bring up IV saline therapy when I see him next, but I don't know how to bring it up
+Hayley White Florinef can be great but its good you are following up with your cardio. You have to be careful since it can drop your potassium. Its not always easy to bring up IV hydration, every doctor seems to feel differently about it. I recommend just being straightforward but open to his opinion on it. "Im not sure im totally happy with my current POTS management. The florinef is helping but I am having a lot of side effects. I have heard that some people have luck with IV saline therapy. Do you think that could be beneficial in my case?"
Wish they'd do IV fluids for POTS etc here. No idea how I'm meant to drink this much water with all my other issues lol they do offer it in very rare circumstances but supposedly infection risk is higher than any possible benefit lol
It seems to be pretty rare for doctors to prescribe it for POTS, I guess you are right, the infection risk is a real danger. In my case we maxed out absolutely everything they could think of and I was still fainting 5-6 times a day and ending up in urgent care once a week for fluids. I think they just got tired of me XD. But I think its kind of a shame that it isn't more widely used since it really does make a huge difference.
if you haven't found an endocrinologist yet, check out Dr. Nada Kerouz in Winchester. I don't know if she has an experience with EDS, but for adrenal disease she is great. very intelligent. a little intimidating but intelligent nonetheless!
+Colleen Balfour That is so helpful! I desperately need one. I will be looking into her. Thank you!
oh, what is the name of your Etsy shop? I have one too, want to see your!
Its linked in my video descriptions, but the shop name is "ChristinaPaintsStuff" :) I would love to check yours out as well!
cant wait to check it out!
ISewYouReap is mine
Can EDS cause bone problems such as frequent stress fractures?
+A Wojcik Yes it can although it is one of the slightly less common symptoms. EDS is a disorder of the collagen and that can affect the bones plus we tend to have a hard time absorbing important nutrients for bone health like vitamin D and calcium. But there is also something called osteogenesis imperfecta which is also a collagen disorder (so it causes loose joints and muscles) but it is known for making the bones very brittle and fracture very easily. If you are having issues with fracturing and other symptoms I would definitely recommend seeing a geneticist. They are the ones who can help you to figure out what exactly is going on
that hair dye looks a bit like cake mix
Hi i just startet to follow you today. I am from Norway and my name is Lisbeth band i am fasenatet about cronicel disease, i have some of my one. But today i wonder about those neckles? do you make them and then sell them? in thath case can i by one ore maybe 2of you.i belive you are verry strong its not verry easy. Do you have some where you show things you make? would be coul too see them. I am sorry me english is not the best but i hope you get most of it.
MA GAWD. Are you saying you found a treatment that actually works for POTS/dysautomnia?! 😰
+Vera Waters Well my dysautonomia is pretty well managed now but it does take a lot to get me here. Its been years of balance but with a betablocker, midodrine, florinef, desmopressin, steroids (that are actually prescribed for something else), and IV saline I am pretty well functional POTS wise.