@@timmymccheee7213and how do you know God doesn't exist? We will all kneel at the feet of God one day I'm not pushing my beliefs on you but what proof do you have that there is no God or heaven?
I have heard of this but never saw the side effects in photo. That tells me how rare this is. Its a blessing she isn't allergic to her own saliva, if she is her own tears. That may only run in dogs ( canines ) tho. I've saw a dog like that, it makes their hair fall out if not treated. May she be blessed in out growing this allergy, so she van enjoy her water loving life 💗.
@@user-un8qt5yb9g my thought until her mother noted her own tears do the same side effects. Bless her little water loving 💗. I hope the specialist get her ALL fixed up.
I've told people for years that it's possible. I get itchy and my skin will feel like it's being burned when I shower, wash my hands and drink water. I was told repeatedly that it's mental. I'm glad they took her seriously
My arms break out in hives and itch so bad I break the skin if I stay in any water too long. It also makes my eyes completely red every single time I shower, like I haven’t slept in weeks. My arms have so many scars from the scratching. The sun gives me an allergic reaction if I stay in it too long too. My skin is so sensitive to soaps and shampoos. It definitely sucks. I know exactly how you feel.
My son had a teacher who was allergic to water. Ppl weren’t kind behind her back cuz she’d go long periods between washing her hair. She was a lovely woman who dealt with it as best she could.
They should be. Checked for chlorine allergy. Public water is treated. It's not temperature i that she is allergic too. How could she drink it's likely a chlorine allergy or other. Chemical
@@karenmorente7589 People with aquagenic urticaria can often drink water without having a reaction because the water really doesn't touch their skin. They have to drink through a straw so it doesn’t touch their lips however. This has nothing to do with chlorine. It’s any water.
@joz867 maybe because she's so little, the chlorine doesn't take long to spread through her body? My best friend has a chlorine allergy and breaks out in patches when she drinks tap water. Idk, just think if it can affect your body that quickly through that form of consumption, maybe she is allergic to what's IN her tears.
God be with all of you. She is a precious blessing for you and her dad. Just remind her how wonderful she is and all the great things the future holds for her.❤
In the name that's above ALL NAMES "JESUS CHRIST OF NAZARETH " RIGHT NOW I COMAND THIS SPIRIT OF INFERMATY TO BE COVERED BY THE PRECIOUS BLOOD OF JESUS CHRIST LOSE IVE NOW ! I CLAIM TOTAL HEALING OVER HER FROM THE TOP OF HER HEAD TO THE TIPS OF HER TOES TO THE TIPS OF HER FINGERS IN THE MIGHTY NAME OF JESUS CHRIST BE HEALED NOW AMEN, AMEN AND AMEN !!! THANK YOU LORD FOR THE BLOOD OF JESUS THAT HEALS ALLLLLLL SICKNESS AND DISEASES. HALLELUJAH THANK YOU LORD FOR YOUR MERCIES ,GRACE ,PEACE, JOY AND ALLLLL YOUR PROMISES . AMEN ! ALLLLLLL GLORY TO THE KING OF KINGS AND LORD OF LORD'S 😊😂❤😊❤ NO WEAPON FORMED AGAINST HER WILL PROSPER IN JESUS MIGHTY NAME AMEN!!!! ♥️ 😊
Raising a healthy child is a huge challenge in itself. I couldn't even imagine having to deal with this. I pray for this family and hope the find Peace
@@ech0zpAwz and if I add 0%+0%+0%+0%=0%= 0% does that mean I was never a mistake? And if I had to say I had 36 geese, does it mean I have 36 geese? no. Because I don't have 36 geese, but does that proof that I have 36 geese though? Yes because I told you the truth. 😶 If I told you I have 6 siblings including me 7, does that make me the largest amount of sibling population in the world? No😶🌫 and if you add all of these, it is already 100% and 100% in exams. (Includes the comment before.)
@@stevemcraemanager7119 you don't have to be part of a church to pray for something. There's something out there bigger than you and I. I'm spiritual not religious, but I can pray for something just the same. If anyone deserves goodness sent to them it's that child. What an incredibly difficult path they have in front of them.
If there was something worth "praying" to them why did it allow this? If a "prayer" is answered it's a "miracle". If it's not then it was the "plan" all along. Either way what's the point?
I used to clean my allergic infant son with Cetaphil lotion and a super soft washcloth when the pediatrician told me water was his enemy. He’s a grown man now, and his water sensitivity is non existent. He still has some food and chemical allergies, but he enjoys overall good health. Maybe this poor little one will find lesser sensitivity with age. May God heal your suffering.
Poor little bubby. My heart breaks for her. It must be so hard for her to understand right now being so young. It nust be exhausting to have to be so diligent with her care but such a relief to know why it happens. Happy thoughts and prayers.
Dude that's crazy! I hope she can get through her childhood without too much hardship. I feel like she will eventually be able to understand her condition and then be able to help stay away from water.
My husband was diagnosed with Cold Urticaria. He breaks out and swells up in cold weather of 45 degrees and below. It is painful! He can definitely sympathize with this poor baby.
I understand that all too well. I have cold urticaria as well. For me it is so bad that I have to carry epipens with me and I get 2 shots a month to help with the reactions along with daily doses of antihistamines. Hopefully this little girl can get some relief as she gets older and they can be able to help her more even if it is to just manage the symptoms better.
My cousin has the same thing. Growing up in upstate New York was miserable for her.. so much so that she moved to FLORIDA of all places 😂😢 I miss her 😭
I moved from Wisconsin to the south in my twenties. Not sure if this specifically is my diagnosis, but I used to break out in horrible painful hives all over my face and hands, really whatever was exposed to the cold.
I have cold urticaria and live in So FL 😅 I have a difficult time regulating my body temp and when that happens here come the hives. And I also have to bundle up more than the average person. So I definitely understand y’all.
They can outgrow allergies. My niece was allergic to all dairy, all fruits and most vegetables. She’s 22 now and isn’t allergic to any foods. My daughter was allergic to all perfumes and dyes, and a lot of different foods. She’s outgrown them all except anything that is Japanese, cherry blossom, perfumes, lotion, soaps, and Ajax. But people can also develop allergies later in life like myself, my favorite vegetable growing up was broccoli without cheese cause I didn’t like cheese growing up. When my daughter was two months old, I took my mother out for her birthday to Chinese, and I have. I always had the noodles with all the vegetables because I am a vegetable lover, I got violently sick and I couldn’t figure out why. Months later my mom made homemade Chinese I got sick again still couldn’t figure out whyfast-forward about two years I made broccoli at home no cheese and got sick as a dog and that’s exactly what it was I have to this day I cannot eat broccoli and my daughter will be 30 next week. So I develop an allergy to broccoli when I was 20 years old, and I’ve been allergic to it for the past 30 years.
Yes, allergies do change over the years. I have more than 40 food allergies, plus chemical, medication, and environmental allergies. Some of my allergies, like strawberries, have completely gone away. Some, like potatoes, have grown worse.
My mom has this as well (though no where near as severe). She gets those rashes whenever she’s in water for longer than 15 minutes or so. Thankfully it doesn’t hinder her as much as this little girl. She can go into the pool though not for long, and same with the shower and such. Very unfortunate condition for sure. Glad it is being talked about.
I'm almost at this point. I used to be able to be around it less than 5 mins. Take meds for MCAS for other health issues (mast cell activation syndrome) and those meds help the water allergy too. My reactions aren't as bad anymore because it stops the allergic reactions from being as bad.
My son had this! Anywhere the water would touch him. His tears would literally cause red welted lines down his cheeks. He also had severe red dye allergy that would cause anaphylaxis when ingested and welt the skin anywhere it would touch. He eventually grew out of it ALL and is now a normal, thriving 19 year old!
That is amazing! I can't imagine how tough things were for your son and also for you, his parents. I'm so glad to hear he's outgrown it, and hope everyone else afflicted with this condition outgrows it too 🙏🏼
@@User_yhvzman, that's a really good question. I would be curious also. Since water is the number 1 thing our bodies crave to stay hydrated in the summer and such.
I pray they find a cure. I am allergic to the cold, I cant eat or drink anything cold or have my body temperature drop, it causes anaphylaxis. My prayers go out to this precious little girl. I truly understand.
As someone with aquagenic urticaria, I'm very thankful mine is not this severe. I get at most some hives and maybe some red puffy eyes, but it usually goes away within an hour or so. I feel really bad for this young girl.
My daughter has the pruritis version of it and it sticks around for hours. Mine is secondary, so, it only shows up when my histamine bucket is full. I’m glad your urticaria is mild and goes away after about an hour.
@@susanflanagan8010 that's what I'm wondering?!?! Like, everything we drink, has some form of water in it.... I wonder if it's only mineralized water (since she's also allergic to her own tears) Or if she could have/tolerate water that, say, runs off a glacier?... glacier water usually contains much less saline and minerals than "ground/river" water.
Same, I always have to wear long sleeves, a jacket, and umbrella. Sometimes mask and hat. But to even hear another person with an allergy of water just makes me feel sad. I met a guy who was allergic to water. But I can't believe this poor baby is going through it too.
I was allergic to water when I was about 10. It lasted for several years and the doctor made me take horse sized pills. It was something to do with my immune system attacking itself. I loved swimming so suddenly breaking out in hives from any water even a bath made me constantly fearful I wouldn’t be able to enjoy a pool day or beach day ever again. It went away after a few years. I hope she grows out of it to.
@@ImReppen I don’t remember ever being affected by tears or sweat. I have very strong memories of going into the ocean and within a few minutes feeling like my skin was on fire from itching so bad. Same with the pool, rivers and bath water.
@@magpiewithagamingpc1516 I remember when this happened to me I ran out the tub as a grown woman. It’s like your body catches fire 🔥 to this day every now and then my itch comes when I’m taking a bath and I refuses to scratch it it’s gonna make it worst
A little girl that lived across the street for me years ago had this and I’m gonna tell you it was excruciating. I have never seen anything so sad in my whole life.
My niece suffered from this as a baby and toddler. Her body would develop massive welt-like rashes, and blisters. When she cried, her face looked like she'd been beaten. It took my sister nearly a year to get a diagnosis. In the interim, my poor niece had to have epipens carried in her changing bag, and antihistamines given 30 minutes before any bathing. They were prescribed "hypoallergenic" wipes etc. My niece is 15 nowĺ, and seems to have less instances, but sometimes she gets a flare, and it's an epipen moment. 😮
@@tankgirllovesroosit’s irrational, best to fear actually common quality of life affectors like malnutrition, overnutrition and conditions like hereditary ones. dont make people fear something so uncommon.
In 1977 I was working at a hospital in Texas. Our head nurse was allergic to water. She said she used a special lotion instead of water. I was so surprised. I had never heard of this possibility before. I pray you find all the help and information you need. Prayers for healing.
Same here I never heard of this or even thought about this being a possibility. Being allergic to water has to be difficult.i guess when you ind a routine that works it gets easier. I feel for Ivy and her parents.
You can drink it just can allow it in your skin. The inside parts of our body is not the same as our outside skin. They usually use straws so they don't get any around their mouth in accident. @@Katz_Pajamas
This is what I have!! Reacting to my tears as a baby was my first symptom. It's the most uncomfortable thing in the world. I saw a specialist in the PNW who specializes in mastcell disorders. He prescribed me ketotifen. The hives aren't 100 percent gone, but I can take a shower longer than a few minutes now, which is amazing.
This is absolutely gut wrenching. My heart hurts & breaks for this beautiful little princess. I pray that some type of a cure can be found. Sending love & prayers. ♡♡♡♡
Poor darlin. Life can just be so difficult and downright painful both physically and emotionally. Even mentally. I pray that she will find ways to enjoy her little life, or should I say her parents & physicians can find ways to make things easier for her. Precious little angel girl ❤️🙏🏻
You would think very low dose of malaria meds would work. That is how a doctor in Winston Salem NC treated my allergies where I was allergic to everything break out in hives every day. Since I met him and he put me on it for a few months. And this was 10 years ago I have not broke out and other than spring allergies am great. So thankful for him. After so many doctors he is the only one who helped me.😊 I will always be grateful
Such a sweet little baby, she doesn’t deserve this. “Allergic to her own tears” that broke my heart. May God bless the child with some kind of miracle and she overcomes this.✨
I had a neighborhood friend whose niece was also allergic to water, they used vinegar to wash her with. It seemed to work for her. I hope that these people can find something that will help this poor child out. God bless her!! ❤❤❤
I was severely allergic (not lactose intolerant) to milk from the time I was born til I was about 14. I couldn't even be breast fed. I ended up growing out of it though, thankfully. So it's absolutely possible that she can grow out of it. I really hope this little girl does.. 🖤
@@iwant2meetalienswhy would you think a common allergy to milk is anything like being allergic to water? most people grow out of food allergies when they get older. this is not the same.
I was wondering that about the rain… I got caught in the rain yesterday, it came out of nowhere and I was so far from my car. I was soaked. That would be a horrific experience for someone with this condition. I’m sorry your niece has to battle this, I pray one day, soon, there will be a cure 🙏🏾❤
@@minoltaaraya thank you so much. She is 23 now and just had a baby. Was a nightmare trying to have a baby with limited water. My daughter has a similar allergy but hers is soap and certain skin products. It’s just crazy
Water isn't just water. Water, whether it's rain water or tap water, now has chemicals in it. I have many allergies. My heart goes out to this child. GOD bless her. ❤
I have a friend who is allergic to water. She has done well in life with this disease. And it does get easier as you become an adult. I pray for this child. ❤❤
I recently told a family member of mine that I thought that there might be a possibility that their baby might have this disorder. They became very angry, and told me that I was insane, and that most people would be dead if that were true. How could I say such a stupid , idiotic statement when all of us were born out of water. This was a family gathering, and we were asked to leave! I had also been ridiculed for saying people can have severe allergy to gluten or milk. I was told that I was a radical leftist, it would be uncomfortable to have me at the party! I’m going to send this to one of my sisters in law,then she will pass it on. I’m concerned that she will suffer lifetime scars is this is not corrected ASAP. From the deepest parts of my heart, Thanks for sharing this vital message 🫶🏻‼️
Poor baby. Kudos to mom and dad dealing with it. Its hard enough just having kids much less difficulties. She is LUCKY to have both of her parents in her life. Much respect!!!❤
@@gundamOPS Well it says she's allergic to water. I'm not a doctor or dermatologist so how am I supposed to know it isn't an allergy but a skin condition
It seems like in these cases it's only skin related when it comes to contact with water . If it had internal reactions there's a good chance she'd have been DOA at delivery. This is all exaggerated speculation but it makes the most sense if the reaction was internal aswell.
@@ragnaroksangel oh how the world is so small. I'm allergic to gluten, well actually allergic, not like your girlfriend. I was diagnosed with celiac disease at age 4!
@@ragnaroksangel but anyway. It's not, and they can drink water. It only affects them if it touches the rest of their body, on the outside. Like skin and stuff
Being allergic to water is seriously one of the worst allergy someone can possibly have. Godspeed.
There is also cases of people being allergic to the sunlight
@@erinwhitbeck1474water is still the worst, you need water to survive, your body is made from water, you can live life without sunlight
It's the rarest
@@twukibxnnyshe can drink water
@@erinwhitbeck1474 we call them gingers where I'm from.
Poor girl, she probably doesn’t understand why she can’t touch water or hurts whenever she cries. God bless her
@@timmymccheee7213wtf is wrong with you
@@timmymccheee7213and how do you know God doesn't exist? We will all kneel at the feet of God one day I'm not pushing my beliefs on you but what proof do you have that there is no God or heaven?
@@thomasreeves15 God is un-falsifiable
@@thomasreeves15Why would God let her go through this to begin with is what they're trying to say
@@thomasreeves15you misunderstood their point .
To everyone asking, yes she can drink water
The allergy only affects the person’s skin so she can drink normally as long as she doesn’t spill
Thank you
I was just about to look this up, thank you.
Tysm for clearing this up… I get this question all of the time lol
Thank God she can drink water!
Will she grow out of it
imagine being stuck in the rain 😢 bless this child
How awful poor kid!
imagine being allergic to water, thats gonna be hard for her. hope she stay strong and her parents as well.
So she can't take baths? How's that gonna work?
@@hannypressley343Perhaps wipes? But even still, that sucks…
I couldn’t imagine a life without a hot bath or shower ): poor thing
They said they used wipes
I'm allergic to water but I have to take tablets to have a bath just to help with the itching and rashes
Allergic to water? That sounds incredibly tough. Sending strength and love to Ivy and her family.
I SEE YOU EVERWHERE😭😭😭😭😭
Ur everywhere😂😂
The Minecraft chicken is verified on CZcams, crazy 💀💀💀
UR EVERYWHERE I GO 👹👹✨🥚
How do you have so many subs but one video, who is this dude?!?
Ive never heard of this before 😢. Precious baby girl
Lord i pray for this child 🙏 i believe in ur power of healing 🙏
It’s not funny this person is actually praying to heal this child
Amen
@@ahmetsakin8573 how
How is it funny praying for a child
Amen❤
They way the mother said “she’s allergic to her own tears” 😭😭😭 God bless her😭😭😭
"God bless her" God bless YOU.......and her
Wrong emoji…
@@FloMillitaryhow ??
Ya imagine being sad, then crying, t allergic reaction and crying more from the blisters. That sounds horrible.
@@bangedurmom9109 😭implies the situation is funny
I remember telling to people that people can be allergic to water, and everyone always says that it's impossible. Wait till they see this.
Yup. I can become allergic to literally anything.
It’s not the water. It’s the chemicals in the water
You want a cookie 🍪
Here’s a fish 🐟 for now
I have heard of this but never saw the side effects in photo. That tells me how rare this is. Its a blessing she isn't allergic to her own saliva, if she is her own tears. That may only run in dogs ( canines ) tho. I've saw a dog like that, it makes their hair fall out if not treated. May she be blessed in out growing this allergy, so she van enjoy her water loving life 💗.
@@user-un8qt5yb9g my thought until her mother noted her own tears do the same side effects. Bless her little water loving 💗.
I hope the specialist get her ALL fixed up.
The poor little baby 🥹🥹❤️🩹🙏🏼 Bless her little heart 💜
That poor little sweetheart! I hope a cure is found, and that anyone who suffers from this allergy can live a fear-free, pain-free life!
Being allergic to your tears is literally a CURSE you can’t even cry without getting hurt bro😭
Think of all the things that make your eyes water too. A yawn, a sneeze, having a cold, being tired...ugh
@@TheAndy19891I think it’s just water not bodily fluids
@@ThatGreenM4they I’ll have water
What about sweat @@Chi-theduck
@@ThatGreenM4Most bodily fluids happen to contain a whole lotta water
That poor sweet baby girl. Luckily she has loving and caring parents
❤yes
I stopped watching the moment these (loving parents) video their child naked and post it online
And intelligent. To check further into it. Not assuming it was an allergy to chlorine or other chemicals in the water.
God Bless this baby. She is forever in my prayers. OMG this brought tears to my eyes it made me so sad. God Bless this child.
You can hear the fear in the mother's voice as she says, get it off her as Ivy touched the snow. The strength this mom has is immeasurable!!! ❤
I've told people for years that it's possible. I get itchy and my skin will feel like it's being burned when I shower, wash my hands and drink water. I was told repeatedly that it's mental. I'm glad they took her seriously
My arms break out in hives and itch so bad I break the skin if I stay in any water too long. It also makes my eyes completely red every single time I shower, like I haven’t slept in weeks. My arms have so many scars from the scratching. The sun gives me an allergic reaction if I stay in it too long too. My skin is so sensitive to soaps and shampoos. It definitely sucks. I know exactly how you feel.
Damn just think all the hardship all you ancestors had to go through just to have you allergic to damn water. That's rough.
How does it work tho?
“took her seriously“??? They could see it with their own eyes! 😂
If you actually had this condition they would have taken you seriously😂
This is heartbreaking 💔
So sorry for that little girl! Life will be rough for her her whole life!
My son had a teacher who was allergic to water. Ppl weren’t kind behind her back cuz she’d go long periods between washing her hair. She was a lovely woman who dealt with it as best she could.
They should be. Checked for chlorine allergy. Public water is treated. It's not temperature i that she is allergic too. How could she drink it's likely a chlorine allergy or other. Chemical
@@karenmorente7589R/ihadastroke
@@karenmorente7589you clearly do not understand. If she is allergic to her own tears it's not chlorine related.
@@karenmorente7589 People with aquagenic urticaria can often drink water without having a reaction because the water really doesn't touch their skin. They have to drink through a straw so it doesn’t touch their lips however. This has nothing to do with chlorine. It’s any water.
@joz867 maybe because she's so little, the chlorine doesn't take long to spread through her body? My best friend has a chlorine allergy and breaks out in patches when she drinks tap water. Idk, just think if it can affect your body that quickly through that form of consumption, maybe she is allergic to what's IN her tears.
When I heard “there is no cure”, I felt really sad😢😢 I hope the girl and her family stay healthy and wealthy, always!
God be with all of you. She is a precious blessing for you and her dad. Just remind her how wonderful she is and all the great things the future holds for her.❤
That's an awful illness. I hope she will be free of that illness. 🙏 ❤
Poor baby. To think she’s going to have a rough life ahead of her. Great parents! 👏🏻👏🏻👏🏻👏🏻
In the name that's above ALL NAMES "JESUS CHRIST OF NAZARETH " RIGHT NOW I COMAND THIS SPIRIT OF INFERMATY TO BE COVERED BY THE PRECIOUS BLOOD OF JESUS CHRIST LOSE IVE NOW ! I CLAIM TOTAL HEALING OVER HER FROM THE TOP OF HER HEAD TO THE TIPS OF HER TOES TO THE TIPS OF HER FINGERS IN THE MIGHTY NAME OF JESUS CHRIST BE HEALED NOW AMEN, AMEN AND AMEN !!! THANK YOU LORD FOR THE BLOOD OF JESUS THAT HEALS ALLLLLLL SICKNESS AND DISEASES. HALLELUJAH THANK YOU LORD FOR YOUR MERCIES ,GRACE ,PEACE, JOY AND ALLLLL YOUR PROMISES . AMEN ! ALLLLLLL GLORY TO THE KING OF KINGS AND LORD OF LORD'S 😊😂❤😊❤ NO WEAPON FORMED AGAINST HER WILL PROSPER IN JESUS MIGHTY NAME AMEN!!!! ♥️ 😊
Raising a healthy child is a huge challenge in itself. I couldn't even imagine having to deal with this. I pray for this family and hope the find Peace
This is as bad as the poor girl who is allergic to sunlight, Neither of these babies will have a normal life.
Poor girl… That is a horrible condition to have to live with. God bless her.
I could not imagine the things this family has to got through to keep this baby comfortable
girl will NEVER be able to hide tears😭
Edit: OMG TYSM FOR THE LIKES!!!
Jesus Christ 😂. " Where you crying?" "No"
Or she will never cry again in near future
How does she drink water then💦
@@giothekeeperI’m pretty sure that you’re not allergic to water on the inside of your body with this
@@giothekeeperI think it’s just skin exposure. They can drink and consume water.
Unfortunately because it’s so rare, there’s no research being done into it for the most part
God bless her. Good thing she has great parents. ❤❤❤❤
Unfortunately, God doesn't want to 😢
How sad. Poor girl. I hope she can have a happy life despite this trial.
Props to this mother! I couldn’t imagine how strong she has to be! ❤
Not the father? Just the mother… ?
@NineNineOne Don't be pedantic. 🙄 They probably said the mother because she's the only parent that's really shown in the video.
@@Little_Mama1996not the father for doing the mother to make the child and make the mother get applaused?
@@huhorbuniula4049you make absolute no sense 💀
@@ech0zpAwz and if I add 0%+0%+0%+0%=0%= 0% does that mean I was never a mistake? And if I had to say I had 36 geese, does it mean I have 36 geese? no. Because I don't have 36 geese, but does that proof that I have 36 geese though? Yes because I told you the truth. 😶 If I told you I have 6 siblings including me 7, does that make me the largest amount of sibling population in the world? No😶🌫 and if you add all of these, it is already 100% and 100% in exams. (Includes the comment before.)
Poor baby and parents! 😢like life isn't hard enough. Praying that you find the strength to endure.
Is she able to drink water? I'm praying for this baby! 🙏
If magic/prayers work. Why go to hospitals? Just go to church and truly have faith. Give credit where it's actually due.
@@stevemcraemanager7119 you don't have to be part of a church to pray for something. There's something out there bigger than you and I. I'm spiritual not religious, but I can pray for something just the same. If anyone deserves goodness sent to them it's that child. What an incredibly difficult path they have in front of them.
If there was something worth "praying" to them why did it allow this? If a "prayer" is answered it's a "miracle". If it's not then it was the "plan" all along. Either way what's the point?
@@glendahoward8259 bro is that a real question
So sad to hear there's no cure 😭
Thank God she has loving parents ❤
OMG, I never heard of such a disease. I feel so bad for this family and anyone else who suffers from such a horrible disease. God bless you 🙏 ❤️ 🙌
I used to clean my allergic infant son with Cetaphil lotion and a super soft washcloth when the pediatrician told me water was his enemy. He’s a grown man now, and his water sensitivity is non existent. He still has some food and chemical allergies, but he enjoys overall good health. Maybe this poor little one will find lesser sensitivity with age. May God heal your suffering.
I pray she grows out of it.
God gave her suffering in the first place
@@schrodingersdog5512you gave her suffering.
How did he drink?
In Jesus Christ Name Amen!
She's not alone. It gets better with time. I'm forty years old and I have always been allergic to water
how do you survive being 70% water
Guys you can still drink water. The SKIN just has allergic reactions.
@@Meeshilin_Man Ohhhh. Interesting
@@Meeshilin_Mannothing happens to your lips?
@@nonkwantabisa Straws. They use straws.
Poor little bubby. My heart breaks for her. It must be so hard for her to understand right now being so young. It nust be exhausting to have to be so diligent with her care but such a relief to know why it happens. Happy thoughts and prayers.
That is so heartbreaking, I can’t even imagine what this family is going through!💔
Dude that's crazy! I hope she can get through her childhood without too much hardship. I feel like she will eventually be able to understand her condition and then be able to help stay away from water.
Hopefully that's already happened. This was from 2018, it says in the corner. I wish they would've shown us an update instead of showing old videos.
My husband was diagnosed with Cold Urticaria. He breaks out and swells up in cold weather of 45 degrees and below. It is painful! He can definitely sympathize with this poor baby.
I understand that all too well. I have cold urticaria as well. For me it is so bad that I have to carry epipens with me and I get 2 shots a month to help with the reactions along with daily doses of antihistamines. Hopefully this little girl can get some relief as she gets older and they can be able to help her more even if it is to just manage the symptoms better.
I have urticaria pigmentosa Im allergic to myself. Ive had two attacks where my body has tried to kill itself.
My cousin has the same thing. Growing up in upstate New York was miserable for her.. so much so that she moved to FLORIDA of all places 😂😢 I miss her 😭
I moved from Wisconsin to the south in my twenties. Not sure if this specifically is my diagnosis, but I used to break out in horrible painful hives all over my face and hands, really whatever was exposed to the cold.
I have cold urticaria and live in So FL 😅 I have a difficult time regulating my body temp and when that happens here come the hives. And I also have to bundle up more than the average person. So I definitely understand y’all.
God bless this sweet little baby ❤
Such a beautiful baby girl and beautiful parents. At least they got a diagnosis for this and praying she outgrows the allergy.😇🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾
Can people outgrow allergies??? This baby girl deserves to feel how amazing it is to swim and dance in the rain 🥺
They can outgrow allergies. My niece was allergic to all dairy, all fruits and most vegetables. She’s 22 now and isn’t allergic to any foods. My daughter was allergic to all perfumes and dyes, and a lot of different foods. She’s outgrown them all except anything that is Japanese, cherry blossom, perfumes, lotion, soaps, and Ajax. But people can also develop allergies later in life like myself, my favorite vegetable growing up was broccoli without cheese cause I didn’t like cheese growing up. When my daughter was two months old, I took my mother out for her birthday to Chinese, and I have. I always had the noodles with all the vegetables because I am a vegetable lover, I got violently sick and I couldn’t figure out why. Months later my mom made homemade Chinese I got sick again still couldn’t figure out whyfast-forward about two years I made broccoli at home no cheese and got sick as a dog and that’s exactly what it was I have to this day I cannot eat broccoli and my daughter will be 30 next week. So I develop an allergy to broccoli when I was 20 years old, and I’ve been allergic to it for the past 30 years.
@Fibro_Warrior agreed. I used to be allergic to milk but grew out of it and later in life I developed an allergy to tetracycline antibiotics.
Yes, or atleast lessen.
Had a pollen allergy but became less bad over the years
It be awesome if she's able to outgrow this and go to a beach or jump in a swimming pool and just enjoy her life. Take a nice hot bubble bath😊
Yes, allergies do change over the years. I have more than 40 food allergies, plus chemical, medication, and environmental allergies. Some of my allergies, like strawberries, have completely gone away. Some, like potatoes, have grown worse.
Perfect name for someone allergic to water. I hope this angel can one day have a meditation or cure.
My Heart Breaks for this poor baby. This is the craziest thing I have ever heard of 😮😢😢
This is like irl h2o mermaid show except that it hurts 😢
My mom has this as well (though no where near as severe). She gets those rashes whenever she’s in water for longer than 15 minutes or so. Thankfully it doesn’t hinder her as much as this little girl. She can go into the pool though not for long, and same with the shower and such. Very unfortunate condition for sure. Glad it is being talked about.
I'm almost at this point. I used to be able to be around it less than 5 mins. Take meds for MCAS for other health issues (mast cell activation syndrome) and those meds help the water allergy too. My reactions aren't as bad anymore because it stops the allergic reactions from being as bad.
Also using ice packs after bathing helps.
How is it when she drinks water?
If no cure what will this specialist do? Just gave a diagnosis. Medical community needs to step up
What about drinking water? I wonder how this effects this little girl. Does your mom do just fine with drinking?
My son had this! Anywhere the water would touch him. His tears would literally cause red welted lines down his cheeks. He also had severe red dye allergy that would cause anaphylaxis when ingested and welt the skin anywhere it would touch. He eventually grew out of it ALL and is now a normal, thriving 19 year old!
Oh wow that is sooo AWESOME! PRAISE GOD! I hope and pray this little one outgrows her allergy as well. 🙏🤞
That is amazing! I can't imagine how tough things were for your son and also for you, his parents. I'm so glad to hear he's outgrown it, and hope everyone else afflicted with this condition outgrows it too 🙏🏼
Did he have to drink milk the whole time or is it only the skin that breaks out?
@@User_yhvzman, that's a really good question. I would be curious also. Since water is the number 1 thing our bodies crave to stay hydrated in the summer and such.
@@User_yhvz I was wondering this too! 🤔
I can't imagine 😢 God bless her throughout life
Prayers and hugs. That poor baby 😢🙏🏻🙏🏻🙏🏻
I pray they find a cure. I am allergic to the cold, I cant eat or drink anything cold or have my body temperature drop, it causes anaphylaxis. My prayers go out to this precious little girl. I truly understand.
best wishes to you and this girl 💜
Likely no cure. Most likely caused by vaccinations but they won't say that to people. I have Chronic Idiopathic Urticaria so I feel you.
Wow what a coincidence! I also have cold urticaria anaphylaxis but I also go into hypovolemic shock. Best wishes to you
Whats the coldest temperature you can digest? If you dont mind me asking
I also had this for some reason u was a weird Child but im cured now
As someone with aquagenic urticaria, I'm very thankful mine is not this severe. I get at most some hives and maybe some red puffy eyes, but it usually goes away within an hour or so. I feel really bad for this young girl.
Lil bro u do not have aquagenic urticaria ☠️
My daughter has the pruritis version of it and it sticks around for hours. Mine is secondary, so, it only shows up when my histamine bucket is full. I’m glad your urticaria is mild and goes away after about an hour.
What about drinking water? Is that a problem?
Yeah, how do thry drink it cause you need water to survive@@susanflanagan8010
@@susanflanagan8010 that's what I'm wondering?!?!
Like, everything we drink, has some form of water in it....
I wonder if it's only mineralized water (since she's also allergic to her own tears)
Or if she could have/tolerate water that, say, runs off a glacier?... glacier water usually contains much less saline and minerals than "ground/river" water.
I cannot imagine this. Many prayers for all of you 🙏
Being allergic to all water, even your own tears is just incredibly sad
God Bless her!
I remember having a teacher who was allergic to the sun. I was in 4th grade and she was loved by all the students.
Was it at Deanza?
Same, I always have to wear long sleeves, a jacket, and umbrella. Sometimes mask and hat. But to even hear another person with an allergy of water just makes me feel sad. I met a guy who was allergic to water. But I can't believe this poor baby is going through it too.
@@Shaila9348 believe it or not it was in HOT Phoenix Arizona
Bless her? i think it is a bit too late for that
I was allergic to water when I was about 10. It lasted for several years and the doctor made me take horse sized pills. It was something to do with my immune system attacking itself. I loved swimming so suddenly breaking out in hives from any water even a bath made me constantly fearful I wouldn’t be able to enjoy a pool day or beach day ever again. It went away after a few years. I hope she grows out of it to.
Damn that's tough. I'm allergic to roaches, mice, and dust mites 😅
Were you allergic to tears? If so, what about other things (sweat)
@@ImReppen I don’t remember ever being affected by tears or sweat. I have very strong memories of going into the ocean and within a few minutes feeling like my skin was on fire from itching so bad. Same with the pool, rivers and bath water.
@@magpiewithagamingpc1516 I remember when this happened to me I ran out the tub as a grown woman. It’s like your body catches fire 🔥 to this day every now and then my itch comes when I’m taking a bath and I refuses to scratch it it’s gonna make it worst
I am curious, what about drinking water? Does it affect your mouth?
Take her to a therapist of hypnosis regressive and Ivy will be healed.
She will be fine. Bless her.
Blessing all 🙏❤️
A little girl that lived across the street for me years ago had this and I’m gonna tell you it was excruciating. I have never seen anything so sad in my whole life.
My niece suffered from this as a baby and toddler. Her body would develop massive welt-like rashes, and blisters. When she cried, her face looked like she'd been beaten. It took my sister nearly a year to get a diagnosis. In the interim, my poor niece had to have epipens carried in her changing bag, and antihistamines given 30 minutes before any bathing. They were prescribed "hypoallergenic" wipes etc. My niece is 15 nowĺ, and seems to have less instances, but sometimes she gets a flare, and it's an epipen moment. 😮
Wow this is scary asf. I’m 20 I just know I’m not far from kids like at all so this just makes me a lil more nervous about it
@@frankpaparo4839 Good. I wish more ppl had that fear. Smart human. ❤
@@frankpaparo4839They did say it's extremely rare...so don't let this condition scare you too much.
@@tankgirllovesroosit’s irrational, best to fear actually common quality of life affectors like malnutrition, overnutrition and conditions like hereditary ones. dont make people fear something so uncommon.
How do they drink water
Bless her little heart. I hope they find a way to help her.💙💙💙
There's really only one solution, and you don't want to hear it.
@@aniyahlyszt3531a shotgun
@@aniyahlyszt3531what is it?
@@aniyahlyszt3531bruh a child can live off milk and soda, doesn’t mean they have to off the child 🤦♀️🤦♀️
My heart is breaking for this little angel. Please somebody find a cure for this.
Definitely will be praying for this poor little baby. ❤
Nothing is worse than seeing your child in pain. Absolutely heart breaking. So sorry for you and yours. ❤❤❤
Back in the day, they would just put them out of their misery.
@@AG-yc7vt Bro that's horrible of you to say but that made me laugh my ass off🤣🤣. Caught me by surprise
In 1977 I was working at a hospital in Texas. Our head nurse was allergic to water. She said she used a special lotion instead of water. I was so surprised. I had never heard of this possibility before. I pray you find all the help and information you need. Prayers for healing.
As a retired nurse who had my training in the dark ages, I had NEVER heard of this allergy! I can’t even imagine!
How does one survive without drinking water tho? That's scary.
Same here I never heard of this or even thought about this being a possibility. Being allergic to water has to be difficult.i guess when you ind a routine that works it gets easier. I feel for Ivy and her parents.
You can drink it just can allow it in your skin. The inside parts of our body is not the same as our outside skin. They usually use straws so they don't get any around their mouth in accident. @@Katz_Pajamas
God I pray you take this away from her, no one deserves this.
She is so cute , sorry to hear about her allergies
I just discovered this condition this week from a lady on IG. I pray for healing for all of them. This is so sad. 😢
praying will not do anything
@@minors290 don't be do sure
@@minors290it will
@@minors290Well some people believe in god and others don’t. So if you don’t then ts not worth it saying it in a reply
@@TollerMiss Its purely delusional to believe in a god.
This is what I have!! Reacting to my tears as a baby was my first symptom. It's the most uncomfortable thing in the world. I saw a specialist in the PNW who specializes in mastcell disorders. He prescribed me ketotifen. The hives aren't 100 percent gone, but I can take a shower longer than a few minutes now, which is amazing.
Legit question, how does effect you when you drink it? I know humans have to have water to survive. How do you get your water intake?
@melindahopejohnson7434 It will only effect the skin
@@user-ee7kb6sf5gbro you got skin all over 💀
@@user-ee7kb6sf5gyour skin is an organ though… so is it just the cells that react on the epidermis?
Does it even do it with sweat?
Bless her heart and her loving parents. ❤
This is absolutely gut wrenching. My heart hurts & breaks for this beautiful little princess. I pray that some type of a cure can be found.
Sending love & prayers. ♡♡♡♡
God bless this angel. I can’t begin to imagine how terrible this disease is. Praying for her and her family.
Ohh the irony
@@IceTTom😔❤️🔥😡
Praying to the same god that gave her this condition?🤦♂️
As somebody already said, "Oh, the irony"
God bless her
Bet the cause is not the water, but all the pollutants and chemicals in it, and the very food we grow and eat.
I really hope she can overcome and grow out of this allergy, you got this ivy!
I knew someone who was allergic to water in highschool, only difference was it wasn’t severe.
What kind of cruel trick does the universe play making somebody allergic to water, one of the very things that's essential for our survival
Poor darlin. Life can just be so difficult and downright painful both physically and emotionally. Even mentally. I pray that she will find ways to enjoy her little life, or should I say her parents & physicians can find ways to make things easier for her. Precious little angel girl ❤️🙏🏻
➕🙏🌌🇺🇸💁PRAYERS
Bless her heart. That must be so hard for her and her parents😢
You would think very low dose of malaria meds would work. That is how a doctor in Winston Salem NC treated my allergies where I was allergic to everything break out in hives every day. Since I met him and he put me on it for a few months. And this was 10 years ago I have not broke out and other than spring allergies am great. So thankful for him. After so many doctors he is the only one who helped me.😊 I will always be grateful
Hope in the future they find a way to stop this
Such a sweet little baby, she doesn’t deserve this. “Allergic to her own tears” that broke my heart.
May God bless the child with some kind of miracle and she overcomes this.✨
Ikr, the pain she has probably hurts and then she cries just making it even worse
I had a neighborhood friend whose niece was also allergic to water, they used vinegar to wash her with. It seemed to work for her. I hope that these people can find something that will help this poor child out. God bless her!! ❤❤❤
What do they drink???
Vinegar is 93% water (7%acetic acid) so how does that work for someone allergic to water?
@@user-bp8in8kd1nthe acid can typically stop the reaction from happening(on a case by case circumstance)
@@user-bp8in8kd1nwell it’s still probably better than straight water
god isn’t real
I'm sorry you have to go through that. God is with you. She will be okay
My heart is breaking for all of you,hope they find a cure.
Will it get better as she gets older? Props to you guys for making her life as normal as possible.
I was severely allergic (not lactose intolerant) to milk from the time I was born til I was about 14. I couldn't even be breast fed. I ended up growing out of it though, thankfully. So it's absolutely possible that she can grow out of it. I really hope this little girl does.. 🖤
@@iwant2meetaliens I'm not an expert, but I play one on TV
@@iwant2meetalienswhy would you think a common allergy to milk is anything like being allergic to water? most people grow out of food allergies when they get older. this is not the same.
i don't think so unfortunately
I was allergic to water. After my twenties it got much, much better.
Now, 69: no problems
My niece who is now 23 has this condition. She has scars her body from when she has been caught in rain.. it’s a horrible thing to endure
I was wondering that about the rain… I got caught in the rain yesterday, it came out of nowhere and I was so far from my car. I was soaked. That would be a horrific experience for someone with this condition. I’m sorry your niece has to battle this, I pray one day, soon, there will be a cure 🙏🏾❤
How do they drink? Is drinking okay?
@@Ch-tw4rx yes it’s a skin allergy so all on the outside
@@minoltaaraya thank you so much. She is 23 now and just had a baby. Was a nightmare trying to have a baby with limited water. My daughter has a similar allergy but hers is soap and certain skin products. It’s just crazy
@@lisabeth2994 Oohh okay my bad
Water isn't just water. Water, whether it's rain water or tap water, now has chemicals in it. I have many allergies. My heart goes out to this child. GOD bless her. ❤
Bless her heart. I Pray they find a cure.
I have a friend who is allergic to water. She has done well in life with this disease. And it does get easier as you become an adult. I pray for this child. ❤❤
Thank you. I was wondering if it gets easier as the person gets older.
What about drinking water? I am going to be down a total rabbit hole on my day off now researching. This is so sad! I hope baby can mature out of it.
does this mean she cant drink water then?
@@Mmshroomthey can drink water, it’s just when it touches skin. So like they’d maybe use a straw so it doesn’t touch their lips!
@@foofooberrygurlI think because the water has contact with the internal organs it’s okay. It’s the outer skin that’s targeted
I recently told a family member of mine that I thought that there might be a possibility that their baby might have this disorder. They became very angry, and told me that I was insane, and that most people would be dead if that were true. How could I say such a stupid , idiotic statement when all of us were born out of water. This was a family gathering, and we were asked to leave! I had also been ridiculed for saying people can have severe allergy to gluten or milk. I was told that I was a radical leftist, it would be uncomfortable to have me at the party! I’m going to send this to one of my sisters in law,then she will pass it on. I’m concerned that she will suffer lifetime scars is this is not corrected ASAP. From the deepest parts of my heart, Thanks for sharing this vital message 🫶🏻‼️
Stop getting into peoples business and maybe they won’t think your too much
@@oneblood100 What a weird reply lmao Calm down 🥸
Poor baby, best of wishes to them.
I pray that they find something to alleviate her pain ❤
Poor baby. Kudos to mom and dad dealing with it. Its hard enough just having kids much less difficulties. She is LUCKY to have both of her parents in her life. Much respect!!!❤
I hope she somehow outgrown her allergy. God bless this little girl. What a dreadful allergy. My heart goes out to her ❤❤❤
It's not an actual allergy, but a skin condition.
@@gundamOPS Well it says she's allergic to water. I'm not a doctor or dermatologist so how am I supposed to know it isn't an allergy but a skin condition
I hope so! Ugh sucks at that age cause she doesn’t understand yet! :(…
Hope she grows out of this soon❤
GOD BLESS THIS LITTLE GIRL
Wow! As someone who suffers from chronic urticaria I cannot imagine a kid suffering it too. Breaks my heart for this little darling 😭
Is this something you can develop later in life?
@@hazelmartinez5874 yes, I developed hydrophobic urticaria about 2 years ago, but it's unlikely you will :)
I’m curious, can you consume water??
It's extremely rare, and apparently, the comments make it common lol
Did you not have it as a kid?
How Does she keep Hydrated?
Poor little Girl.
Thank You Both for being Great Parents.
It seems like in these cases it's only skin related when it comes to contact with water . If it had internal reactions there's a good chance she'd have been DOA at delivery. This is all exaggerated speculation but it makes the most sense if the reaction was internal aswell.
They can drink water!
@@The2MagosSounds like my girlfriend who was "allergic" to gluten, but had "cheat days" on weekends.
@@ragnaroksangel oh how the world is so small. I'm allergic to gluten, well actually allergic, not like your girlfriend. I was diagnosed with celiac disease at age 4!
@@ragnaroksangel but anyway. It's not, and they can drink water. It only affects them if it touches the rest of their body, on the outside. Like skin and stuff
Lord bless this poor baby shes in my prayers and hopefully this doctor can find something to help her 😢
They don't know if there is a cure or not. God bless.
I hope and pray as she gets older it becomes less severe for her. ❤
dont think your prayers will do much
@@minors290it's actually possible to grow out of an allergy
@@bransonlopez884 I never said it wasnt???
@@bransonlopez884not out of severe/terminal ones usually and probably not this one
@@Idk-is2id is still possible my mom's a doctor I think she would know😂