Journey of diagnosing autism and acceptance - heartfelt sharing from KFam - Episode 5

Nori, Didi, Anit and Desiree share their personal experiences in getting their children assessed and diagnosed with autism. Each recalled their moments of realisation which led to the diagnosis.
No two journeys are the same but a mother’s love and instincts are undeniable.
Follow our socials here: linktr.ee/kitafamilypodcast
CREDITS:
Podcasters - Nori, Desiree, Anit and Didi
Audio and Video - Box Million Story Studio, Isa Yusoff
Editor - Box Million Story Studio
Music - Mukhlis Nor, Troka Broadcast

[@nurhaninabdulrahman4400]

Such an amazing session. U guys just made me remember exactly my feeling when i went through the journey diagnosing my son with autism. The acceptance,the denial,the sadness..and the fact tht u cant indulge in this feeling bcz time is ticking..its not my life..its my son’s life. I had to push aside all ths feeling n get into action mode. I still remember going numb walking to JKM for the OKU card.the moment the officer gave me the pink card i just went numb. Like didi ckp,u felt the death of the dreamful child. Im grateful tht im in training industry so somehow i know tvet is way more recognised. 2 yrs down the road,OMG i get him into the PPKI and he starts to love the school. And i told him when he asleep..go rock the world son! God has plan for u.i am ur enable. I am always here just in case things get overwhelmed. And thus i must be strong. Thank u for this session.. i know now i am not alone ❤

[@fariezakamil9308]

My daughter is ASD girl.. she is also hyperlexia..my girl boleh baca masa umur 2 tahun..memori dia sngt amazing.. she's very smart girl.. Alhamdulillah ❤

[@diamondnezzy215]

Suka sharing nii❤ My son belum di diagnose. He is 3 years old now. Masih dalam appt dengan doc. Tapi sejak dia umur 18 bulan, bila nurse bagi M chart untuk I tick2, then kena refer to paeds, perlahan2 saya cuba terima yang anak saya ni ada autism. Walaupun sebenarnya saya doa dari sebelum pregnant supaya anak saya ‘sempurna’ sebab abang2 saya salah seorang dari mereka autism n sorang lagi dyslexia. So saya rasa macam ada posibility untuk dapat anak begitu.
Awal2 ada jugak sikittt in denial tapi tak lama. Saya fikir sekarang ni sama ada dia autism atau tak dah bukan lagi isu besar. Yang penting saya kena bantu dia. Cuma my struggle know kadang2 saya blur nak buat apa. Rasa macam tak kreatif😅 Then Saya rasa bersalah untuk biarkan dia tak de aktiviti sedangkan saya pun ada kerja lain nak dibuat. Saya rasa macam saya a loser mom if saya tak buat any activity. Saya cuba untuk create activity. It just kadang saya rasa blur apa benda saya perlu buat. Buat masa ni mampu untuk hantar ank terapi 4 kali sbln sahaja. InsyaAllah kami tengah cuba untuk naikkan kekerapan hantar dia ke pusat terapi sebab therapist lebih pakar untuk buat activity. Mm, dia macam seolah if he is not improve saya terasa nak salahkan diri sendiri. Mungkin sebab saya ada simpan harapan supaya anak saya boleh masuk aliran perdana. Entah lah😅 Mungkin saya perlu refer moms yang dah ada pengalaman lebih lama tentang hala tuju anak2 autism.
Macam abang2 saya, sekarang dibawah jagaan saya. Tak bekerja. Saya cuma harap anak saya jauh lebih baik masa depan. Panjang pulak saya tulis kan. Kadang2 memang banyak benda terbuku tapi tak tahu nak tanya pada siapa😅

[@user-pg2dq8um4x]

Suka podcast mcm ni utk org yg kurg faham bahasa inggeris.. sy ada autisme juge...moga segala urusan pn nori dipermudahkan

[@maryamfarzana8631]

Hi Didi, I have 2 asd & nonverbal son and I can totally relate to how you feel. The acceptance came on and off my head. Still trying... Thanks for this wonderful sharing ❤

[@enoughluv]

Good topic and may this channel grow and have more interesting topic to come😊